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Re: [Re: [Re: post myo]]

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Kim, I'm glad everything ultimately worked out for you. Thats one of the

reasons why I stuck with my gyn that I've been going to for 14 years for the

myo. He never mentioned Lupron before surgery, did mention hysterectomy as

an option, but said he would do whatever I wanted. However, in the holdover

room prior to surgery, he did press me to sign permission to do a hyst if he

thought it was necessary. I was taken by surprise and only signed if it was

for life and death (eg hemorrhaging). If I had given blank consent he

would have done a hyst due to the adenomyosis. He told my husband it was

one of the most necessary hysterectomies that he has seen. I still am not

sure if I did the right thing (although at the time I was). This was also

right after a resident came overand said to my nurse " This is a TAH, right? "

not only was I nervous, but

a little shocked. Then my gyn came over with this pemission stuff. Ihad

briefly discussed it withhim a while ago and he said " If I wanted a myo he

would only do a myo " Of course he doesn't remember that and being a health

care provider myself, I can understand that as I rarely remember what I tell

patients

unless it is written in their charts. A caution to make sure you discuss

everything beforehand. I do not know if my cramps are surgery related or

due to the adeno. although I didn't have cramps before, expect for 2 days

during my period, I can't help but wonder if the trauma to my uterus caused

symptoms from the adeno. Take care, H. PS

otherwise I feel fine and actually went back to teach a class today. It was

good to use my brain!.

Re: [Re: [Re: post myo]]

" Pedro B. Gandol " wrote:

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Kim,

How were you treated for the infection? How long after surgery did it

start?Did you phone the surgoen who did the myo?Just a bit more

details if you can.

For those of us considering myo. I think your contribution of your

complication is quite valuable.

Thanks

Bonnie

KIM RANSDELL wrote:

> " " wrote:

>

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> I am 10 days post myo. I felt great for the first week. Now I have real

bad

> cramps for the past 3 days (2 motrin has had little effect). Otherwise, I

feel

> fine. Energy is 100% so this is really getting me down. Anybody have any

> experience with this.

> H.

>

> Hi ,

>

> Is it time for your period? If not, I would call your doc for

> some advice. I had severe cramping after my myo as a sign of a staph

> infection and severe myometritis (uterine infection.) There were

> other symptoms, as well, such as fever and discharge, but the

> 1st signs were the bad cramps. I don't want to alarm you, but I couldn't

> get the attention of my PCP or ER docs until it had progressed to

> the life-threatening stage...if it continues, get medical treatment.

>

> I hope you feel better soon. I know you'll be thrilled with the results

> of your myo after your system settles down and you're all healed.

>

> Regards,

> Kim

>

> ____________________________________________________________________

I developed a fever while in the hospital, but was released with no other

signs of problems. I live 3+ hours away from UCLA, where I had my myo. I

came back home and continued to get sicker. I was in touch with my gyn at

UCLA via telephone. He advised me to go to my local PCP. When I did, they

gave me some antibiotic, but no cultures/tests were done. I kept getting

sicker and my gyn advised me to go to ER. I did that 3 times. The 1st time

I

went they did a urinalysis and cultures. The urinalysis showed a UT

infection, so they treated me w/ some OTHER antibiotic. I continued to get

sicker and sicker, returning the other two times. My gyn at UCLA asked me

to

have the ER doc call him. When he did he tried to tell him what tests to

run,

etc. and the ER doc told me, " Just as I wouldn't tell YOUR doctor how to

practice, he shouldn't tell me what to do. " He sent me home w/ something

ELSE. The 3rd time I crawled in there a nurse practitioner examined me,

read

my chart and noted that the cultures that they's done on the 1st visit

revealed staph and some strep strain. Nobody had bothered to notify me or

read my chart. She jumped into action and got an IV of antibiotics started

and sent me home with more. Apparently, they'd been treating w/ the wrong

drugs and things had gotten out of control. A few days went by and I was

delirious w/ fever and pain when my husband finally loaded me into the car

and

headed back to LA. I was really too sick to travel, but had no options at

that point. I was hospitalized for 5 days of IV antibiotics. I had several

different types. I had to take a bunch when I came home after that.

I know my experience was extreme due to the lack of proper medical care I

received here in my local ER. My regular PCP took a " hands-off " approach to

my uterus after I had my UAE in 1998. I think the ER docs resented me

because

I dared to go to UCLA, then come to them for help afterwards. I endured

lots

of comments like, " Well, you should have had the hysterectomy... "

Most people do NOT develop infections post-myo. I had NO trouble after my

1st

one in 1986. My original gyn performed the myo during my c-section, a very

dangerous thing to do, and left behind the big fibroid I finally had to have

removed in 2000. I would do it again, in spite of all I went through. The

results were WELL worth all the trouble. I do think I was definitely the

exception to the rule.

Sorry to ramble on so, but I don't want to leave anyone w/ the impression

that

this is a common occurence.

Good luck in making your decision. I know it's not an easy one.

Kim

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