Re: New guy on the block

[Guest guest]

Barb,

Please tell us how you addressed your Lyme.

Lee

-- Re: new guy on the block

Regarding food allergies, chemical sensitivites, and

Hpersensitivities in general:

I had a myriad of them - even had the substances pegged so I could

Avoid them. And I never associated any of them with Lyme. And as a

Matter of fact- some of my other symptoms - like Trigeminal nerve

Pain, metal sensitivites (on my skin) and GI problems I never

Associated with Lyme either.......

BUT....... ALL of those symptoms went away post Lyme therapy.. And I

Mean all of them. Quite frankly, I had had many of those problems

For so long, I couldn't quite believe it myself when they were gone.

I am totally convinced - at least in my case- that when the root

Cause is removed (Lyme) hypersensitivites are releived.

Barb

[Guest guest]

If anyone's interested, I'll send my protocol off-line if you contact

me thru my address at .

Barb

>

>

>

> Barb,

>

> Please tell us how you addressed your Lyme.

>

> Lee

>

>

> -- Re: new guy on the block

>

> Regarding food allergies, chemical sensitivites, and

> Hpersensitivities in general:

>

> I had a myriad of them - even had the substances pegged so I could

> Avoid them. And I never associated any of them with Lyme. And as a

> Matter of fact- some of my other symptoms - like Trigeminal nerve

> Pain, metal sensitivites (on my skin) and GI problems I never

> Associated with Lyme either.......

>

> BUT....... ALL of those symptoms went away post Lyme therapy.. And

I

> Mean all of them. Quite frankly, I had had many of those problems

> For so long, I couldn't quite believe it myself when they were

gone.

>

> I am totally convinced - at least in my case- that when the root

> Cause is removed (Lyme) hypersensitivites are releived.

>

> Barb

>

[Guest guest]

Barb,

Can you share how you treated your Lyme infection?

Thanks,

Dawn

>From: " Barb Peck " <egroups1bp@...>

>Reply-

>

>Subject: Re: new guy on the block

>Date: Mon, 13 Mar 2006 13:12:53 -0000

>

>Regarding food allergies, chemical sensitivites, and

>hpersensitivities in general:

>

>I had a myriad of them - even had the substances pegged so I could

>avoid them. And I never associated any of them with Lyme. And as a

>matter of fact- some of my other symptoms - like Trigeminal nerve

>pain, metal sensitivites (on my skin) and GI problems I never

>associated with Lyme either.......

>

>BUT....... ALL of those symptoms went away post Lyme therapy.. and I

>mean all of them. Quite frankly, I had had many of those problems

>for so long, I couldn't quite beleive it myself when they were gone.

>

>I am totally convinced - at least in my case- that when the root

>cause is removed (Lyme) hypersensitivites are releived.

>

>Barb

>

>

>

>

>

>

>

> >

> > mjh,

> > I will definately share information with you as I recieve it.

> > Unfortunately, I have only had one apt so far, so I don't have too

>much to

> > share. I went to the Cleveland FFC. The doctor there was

>confident that

> > all of my illnesses and probably many of my food allergies/

>intolerences

> > were related to Lyme disease infection. She also believes that I

>have low

> > thyroid and an estrogen imbalance (too much). She ordered 44 blood

>tests

> > and I have an apt in the beging of April to get my lab results. I

>will

> > update you then.

> > Dawn

> >

> >

> > >From: foxhillers@...

> > >Reply-

> > >

> > >Subject: Re: new guy on the block

> > >Date: Sun, 12 Mar 2006 07:51:50 EST

> > >

> > >

> > >

> > >Dawn

> > >

> > >Which Fibro and Fatigue Center do you go to? Will you share the

> > >diagnoses,

> > >test results and treatment protocol with us here?

> >

> > _________________________________________________________________

> > Don't just search. Find. Check out the new MSN Search!

> > http://search.msn.click-url.com/go/onm00200636ave/direct/01/

> >

>

>

>

>

>

>

>This list is intended for patients to share personal experiences with each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

>

[Guest guest]

I am sorry to hear that you are having a tough time with your RA> I hope that

you have a good RA doctor that you can talk to about what pain is worse I have

both RA and OSTO so they can only treat one because the medicine counter acts

each other. What ever you do Please don't stop using your joints no matter how

muchpain in puts you in they will freeze up. I was on coated asprin to start

and have been on every thing out their now. So good luck stay possitive and

active

retool9700 <retool9700@...> wrote: Hi-I am a 46 male that just

found out that i have RA. I am having a

real hard time with it! I have always been very athlectic and this is

unbelievable how it has kicked me in the butt!!!!I am looking forward

to find out about all the good,bad,and ulgy of all the others out there.

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Answers - Check it out.

[Guest guest]

Hi retool and welcome. I think the first 6 mos after diagnosis are among the

worst. You're frightened and may not have an effective drug treatment plan yet.

I'm coming up on 12 months since diagnosis and I'm happy to say that my good

days *far* outnumber my bad thanks to Enbrel, prednisone, Celebrex, and maybe

plaquenil. I hope for a cure every day, but until then, I'm grateful to Amgen

for Enbrel which has made a ton of difference for me and many others. The right

combo of drugs is out there for you to get your life back, try to keep the faith

as you and your doc search to find it. That said, a good rheumatologist is

worth his/her weight in gold. I almost didn't accept a new job b/c I'm so

attached to mine. I seriously considered flying back to see her! It's

definitely a team struggle: you+family/friends+your doc and medicine = good

functioning. As you feel better, you'll be able to get back to being athletic.

Exercise is so important in

managing RA. I didn't know I had it for years, and I think I did so well

(despite severe disease markers) because I was in the Navy and they made me work

out all the time! Feel free to write with any questions, best wishes, Kate F

[ ] New guy on the block

Hi-I am a 46 male that just found out that i have RA. I am having a

real hard time with it! I have always been very athlectic and this is

unbelievable how it has kicked me in the butt!!!!I am looking forward

to find out about all the good,bad,and ulgy of all the others out there.

________________________________________________________________________________\

____

Be a better Heartthrob. Get better relationship answers from someone who knows.

Answers - Check it out.

http://answers./dir/?link=list & sid=396545433

[Guest guest]

Welcome to our group. RA does knock one for a loop big time. We all

have major adjustments we have to go through, keep in mind we are here

for you. There are many different meds to help us through it, just

hang on, You will adjust.

>

> Hi-I am a 46 male that just found out that i have RA. I am having a

> real hard time with it! I have always been very athlectic and this is

> unbelievable how it has kicked me in the butt!!!!I am looking forward

> to find out about all the good,bad,and ulgy of all the others out

there.

>

[Guest guest]

I hear ya! I'm new here too, and was diagnosed about a month ago

after my first visit with the rheumatologist. Like you, I was active,

riding my bike 20 or so miles a day as late as June. Then in July the

joints just started hurting. It's amazing that it happened so fast.

They x-rayed my feet, hands, wrists, ankles and lungs. Nothing out of

the usual showed up. The RA factor was not found in my bloodwork, but

the rheumy felt that based upon the symptoms and high levels of

something or other in my blood that it is RA. I'm taking Etodolac 400

mg 3 times a day, and am due to see the doc next month. Not sure

where we go from there.

It's an adventure, as I never know what's going to hurt or be swollen

next. I've been reading lots of past posts, and I appreciate this

forum, for both information and support.

>

> Hi-I am a 46 male that just found out that i have RA. I am having a

> real hard time with it! I have always been very athlectic and this is

> unbelievable how it has kicked me in the butt!!!!I am looking forward

> to find out about all the good,bad,and ulgy of all the others out there.

>

[Guest guest]

Retool, you sound like me when I was 46. That's when I was introduced to RA

as well. Until then, I could do almost anything. That 'gift' stopped me from

even climbing stairs at the office, and I wasn't permitted to use the ramp

because it was only for vendors. I really had a bad time with office

politics, and it put a lot of pressure on me. That made the RA even greater

because it feeds on stress!

I was soon laid off, but not because of the RA, yeah, right... Our salvation

was that we built our own house out of our pocket, so didn't have a mortgage

or other monetary problems, although it seemed to be important at the time.

That was more stress, feeding the RA. Within a year, I was bed-ridden or

house bound until I gave in and got a scooter to get around. Today, almost

20 years later, we've adjusted our lifestyle to eliminate most of the stress

and don't have anything specific to do except for medical appointments.

Otherwise, we could jump into the motorhome we bought and not have to come

back home until we wanted or having to collect more meds.

It will get easier for you in time. Your past has gone away for the most

part, leaving just memories. But there's more good news, medicines are

better now as they were from the days my mother suffered from this disease

and I fought it. Hang in there and look forward to better times, they'll

come.

Dennis in eastexas

[ ] New guy on the block

> Hi-I am a 46 male that just found out that i have RA. I am having a

> real hard time with it! I have always been very athlectic and this is

> unbelievable how it has kicked me in the butt!!!!I am looking forward

> to find out about all the good,bad,and ulgy of all the others out there.

[Guest guest]

I was just diagnosed last week with RA. Wow, reading all this is a

bit overwhelming, but much needed to educate myself so I can be

prepared for my first appointment with my RA doctor. I am 45 years

old and have always felt like the world was mine to explore and

would stop at nothing. I hope to continue that attitude as I

continue my journey in life.

>

> Retool, you sound like me when I was 46. That's when I was

introduced to RA

> as well. Until then, I could do almost anything. That 'gift'

stopped me from

> even climbing stairs at the office, and I wasn't permitted to use

the ramp

> because it was only for vendors. I really had a bad time with

office

> politics, and it put a lot of pressure on me. That made the RA

even greater

> because it feeds on stress!

>

> I was soon laid off, but not because of the RA, yeah, right... Our

salvation

> was that we built our own house out of our pocket, so didn't have

a mortgage

> or other monetary problems, although it seemed to be important at

the time.

> That was more stress, feeding the RA. Within a year, I was bed-

ridden or

> house bound until I gave in and got a scooter to get around.

Today, almost

> 20 years later, we've adjusted our lifestyle to eliminate most of

the stress

> and don't have anything specific to do except for medical

appointments.

> Otherwise, we could jump into the motorhome we bought and not have

to come

> back home until we wanted or having to collect more meds.

>

> It will get easier for you in time. Your past has gone away for

the most

> part, leaving just memories. But there's more good news, medicines

are

> better now as they were from the days my mother suffered from this

disease

> and I fought it. Hang in there and look forward to better times,

they'll

> come.

>

> Dennis in eastexas

>

>

> [ ] New guy on the block

>

>

> > Hi-I am a 46 male that just found out that i have RA. I am

having a

> > real hard time with it! I have always been very athlectic and

this is

> > unbelievable how it has kicked me in the butt!!!!I am looking

forward

> > to find out about all the good,bad,and ulgy of all the others

out there.

>

[Guest guest]

Hey, I am new to this too and have always been athleticy and in a job

that I need my health, so to say... Anyways, yeah, I totally get

that " kicked in the butt " feeling. It's been very hard, we lost our

home but have our family, so that's good. I think the worst for me

is the 40 lbs I have gained! I always have been " lean " and no matter

what I can't lose the weight. And the chronic fatigue. That is

something, I feel like I am sleeping my life away.

> >

> > Retool, you sound like me when I was 46. That's when I was

> introduced to RA

> > as well. Until then, I could do almost anything. That 'gift'

> stopped me from

> > even climbing stairs at the office, and I wasn't permitted to use

> the ramp

> > because it was only for vendors. I really had a bad time with

> office

> > politics, and it put a lot of pressure on me. That made the RA

> even greater

> > because it feeds on stress!

> >

> > I was soon laid off, but not because of the RA, yeah, right...

Our

> salvation

> > was that we built our own house out of our pocket, so didn't have

> a mortgage

> > or other monetary problems, although it seemed to be important at

> the time.

> > That was more stress, feeding the RA. Within a year, I was bed-

> ridden or

> > house bound until I gave in and got a scooter to get around.

> Today, almost

> > 20 years later, we've adjusted our lifestyle to eliminate most of

> the stress

> > and don't have anything specific to do except for medical

> appointments.

> > Otherwise, we could jump into the motorhome we bought and not

have

> to come

> > back home until we wanted or having to collect more meds.

> >

> > It will get easier for you in time. Your past has gone away for

> the most

> > part, leaving just memories. But there's more good news,

medicines

> are

> > better now as they were from the days my mother suffered from

this

> disease

> > and I fought it. Hang in there and look forward to better times,

> they'll

> > come.

> >

> > Dennis in eastexas

> >

> >

> > [ ] New guy on the block

> >

> >

> > > Hi-I am a 46 male that just found out that i have RA. I am

> having a

> > > real hard time with it! I have always been very athlectic and

> this is

> > > unbelievable how it has kicked me in the butt!!!!I am looking

> forward

> > > to find out about all the good,bad,and ulgy of all the others

> out there.

> >

>