Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 HIya another Rich in Mexico WHere in Mexico are you? I've been hoping to improve enough cognitively to relocate either to Mexico or Costa Rica. I know that being closer to the equator will help me. I have also a deep interest in indigenous healing. Yes, do get yourself tested for Lyme disease. A search of the archives will yield you the best tests to determine Lyme. BY, the way, you have a year and a few days on me. Mine was sudden onset on April 22,1990 about 4 pm. Muchas gracias mjh In a message dated 3/11/2006 3:51:15 PM Eastern Standard Time, racr27@... writes: I know many of you for different reasons can not pick up and move to Mexico but for some of you I think the move could help. I bought a nice home for 60 thousand dollars, which is a pretty good deal for a place with San Diego weather. I also live cheaply with low property taxs and cheap utility bills. Being completely disabled it's nice to be able to hire help for $20.00 a day. Also I know you have all heard stories about crime, home ownership, and many other problems in Mexico. In my 8 full years here I have far less problems than I had living in California. Ok enough about Mexico but I will answer anyones questions or fears about living here. I mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Hi Rich, I'm in the UK, so our tests are way behind the US. However, my last tick bite was 20 years ago and the organism has been identified via blood microscopy. It doesn't just disappear, SADLY, and it would give you one target to address. > > Hey you guys are good. I'm impressed with the wealth of knowledge > I have recieved in my first day with this group. I haven't been in a > cfids support group in ten years and was really missing hearing from > informed people. Now I think I have found a home. I have sudden onset > cfids, Apr.2,1989. I quit experimenting on my cfids in 1998 after > seeing dozens of doctors and injesting dozens of experimental pills > and potions. I was sicker every month not from cfids but from the new > pill or injection of the month. The main things I have done during the > last 7 years to help my self to feel better was to reduce my stress > drastically and move to a home in Mexico near the ocean. My cfids is > still with me daily but not like before. I suffer from multiple > chemical sensitivities but a clean sea breeze really helps. I know > many of you for different reasons can not pick up and move to Mexico > but for some of you I think the move could help. I bought a nice home > for 60 thousand dollars, which is a pretty good deal for a place with > San Diego weather. I also live cheaply with low property taxs and > cheap utility bills. Being completely disabled it's nice to be able to > hire help for $20.00 a day. Also I know you have all heard stories > about > crime, home ownership, and many other problems in Mexico. In my 8 > full years here I have far less problems than I had living in > California. Ok enough about Mexico but I will answer anyones questions > or fears about living here. I have many cfids questions but I will > only ask one. Approximately 5 months before my sudden onset with cfids > I had a tick bite on my leg that I watched go from a red mark to a > bulls eye that grew larger in diameter. At the time I didn't know what > it was but I mentioned it to all the doctors I went to. Only one > doctor thought it might be something and tested me for lymes. He said > the test didn't show much so I forgot about it. Now I know that I had > lymes disease just before I came down with cfids. My question is would > it do any good to be tested again for lymes after 17 years? Ok I will > look for the answer. You all take care. > Besos & abrazos Rich > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 In a message dated 3/11/2006 8:58:07 PM Eastern Standard Time, jenbooks13@... writes: I doubt I could get my vitamin/mineral IV's and my IVIG down there. I know a reputable place near Tijuana.... ask at _www.natural-oncology.com_ (http://www.natural-oncology.com) Vince also treat CFIDS mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 In a message dated 3/11/2006 9:03:54 PM Eastern Standard Time, jenbooks13@... writes: My advice would be to go get a couple bottles of amoxicillin and start with 500 mg 3x day and build up slowly, as you can tolerate the die-off, to 2000 mg 3x day or better yet 1500 mg 4x day (to keep high levels constant) and stay on that for a few years if you can Gee whiz, Jill, I think I saw that in the feed and grain store the other day. No prescription needed if you are a horse or a cow or a goat. mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Hi, Rich in Mexico. I'm Rich in California. Welcome. Buenos dias! I agree that it would be a good idea to be tested for Lyme disease. Check out http://www.igenex.com or http://www.immuno-sci-com. You would probably need to do an antibiotic provoked test to have the best chance of detecting the Borrelia, but if you contact these labs, they can advise you. Rich > > Hey you guys are good. I'm impressed with the wealth of knowledge > I have recieved in my first day with this group. I haven't been in a > cfids support group in ten years and was really missing hearing from > informed people. Now I think I have found a home. I have sudden onset > cfids, Apr.2,1989. I quit experimenting on my cfids in 1998 after > seeing dozens of doctors and injesting dozens of experimental pills > and potions. I was sicker every month not from cfids but from the new > pill or injection of the month. The main things I have done during the > last 7 years to help my self to feel better was to reduce my stress > drastically and move to a home in Mexico near the ocean. My cfids is > still with me daily but not like before. I suffer from multiple > chemical sensitivities but a clean sea breeze really helps. I know > many of you for different reasons can not pick up and move to Mexico > but for some of you I think the move could help. I bought a nice home > for 60 thousand dollars, which is a pretty good deal for a place with > San Diego weather. I also live cheaply with low property taxs and > cheap utility bills. Being completely disabled it's nice to be able to > hire help for $20.00 a day. Also I know you have all heard stories > about > crime, home ownership, and many other problems in Mexico. In my 8 > full years here I have far less problems than I had living in > California. Ok enough about Mexico but I will answer anyones questions > or fears about living here. I have many cfids questions but I will > only ask one. Approximately 5 months before my sudden onset with cfids > I had a tick bite on my leg that I watched go from a red mark to a > bulls eye that grew larger in diameter. At the time I didn't know what > it was but I mentioned it to all the doctors I went to. Only one > doctor thought it might be something and tested me for lymes. He said > the test didn't show much so I forgot about it. Now I know that I had > lymes disease just before I came down with cfids. My question is would > it do any good to be tested again for lymes after 17 years? Ok I will > look for the answer. You all take care. > Besos & abrazos Rich > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Hi Rich, I was in a similar situation. I have had CFIDS for 14 years and tested (supposedly) negative for Lymes at that time even though I had been bitten many times by ticks. I was recently tested again at a reputable lab (IgeneX) and tested positive immediately. It is a relief to know for sure exactly what one has and Lyme has treatments specific to it. All the best! Ballady > > Hey you guys are good. I'm impressed with the wealth of knowledge > I have recieved in my first day with this group. I haven't been in a > cfids support group in ten years and was really missing hearing from > informed people. Now I think I have found a home. I have sudden onset > cfids, Apr.2,1989. I quit experimenting on my cfids in 1998 after > seeing dozens of doctors and injesting dozens of experimental pills > and potions. I was sicker every month not from cfids but from the new > pill or injection of the month. The main things I have done during the > last 7 years to help my self to feel better was to reduce my stress > drastically and move to a home in Mexico near the ocean. My cfids is > still with me daily but not like before. I suffer from multiple > chemical sensitivities but a clean sea breeze really helps. I know > many of you for different reasons can not pick up and move to Mexico > but for some of you I think the move could help. I bought a nice home > for 60 thousand dollars, which is a pretty good deal for a place with > San Diego weather. I also live cheaply with low property taxs and > cheap utility bills. Being completely disabled it's nice to be able to > hire help for $20.00 a day. Also I know you have all heard stories > about > crime, home ownership, and many other problems in Mexico. In my 8 > full years here I have far less problems than I had living in > California. Ok enough about Mexico but I will answer anyones questions > or fears about living here. I have many cfids questions but I will > only ask one. Approximately 5 months before my sudden onset with cfids > I had a tick bite on my leg that I watched go from a red mark to a > bulls eye that grew larger in diameter. At the time I didn't know what > it was but I mentioned it to all the doctors I went to. Only one > doctor thought it might be something and tested me for lymes. He said > the test didn't show much so I forgot about it. Now I know that I had > lymes disease just before I came down with cfids. My question is would > it do any good to be tested again for lymes after 17 years? Ok I will > look for the answer. You all take care. > Besos & abrazos Rich > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 In a message dated 3/11/2006 9:08:03 PM Eastern Standard Time, jenbooks13@... writes: YEah but in Mexico there are border towns with literally 95 pharmacies in a few square blocks, and a bottle of 500 pills of amoxicillin is about $5 or $10 or something ridiculously cheap. This guy can get well! And for pennies! At Medsmex.com it's considerably more expensive. BUT via script at Drugstore.com, it's relatively cheap _http://www.drugstore.com/pharmacy/prices/drugprice.asp?ndc=00781261305 & trx=1Z 5006_ (http://www.drugstore.com/pharmacy/prices/drugprice.asp?ndc=00781261305 & trx=1Z50\ 06) mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 In a message dated 3/11/2006 11:03:42 PM Eastern Standard Time, foxhillers@... writes: In a message dated 3/11/2006 9:08:03 PM Eastern Standard Time, jenbooks13@... writes: YEah but in Mexico there are border towns with literally 95 pharmacies in a few square blocks, and a bottle of 500 pills of amoxicillin is about $5 or $10 or something ridiculously cheap. This guy can get well! And for pennies! At Medsmex.com it's considerably more expensive. BUT via script at Drugstore.com, it's relatively cheap _http://www.drugstore.com/pharmacy/prices/drugprice.asp?ndc=00781261305 & trx=1Z 5006_ (http://www.drugstore.com/pharmacy/prices/drugprice.asp?ndc=00781261305 & trx=1Z 5006) And, if something seems fishy, there's always ebay _http://cgi.ebay.com/Aquafish-Amoxicillin-Antibiotic-250-mg-100-Capsules_W0QQi temZ7750448913QQcategoryZ20751QQssPageNameZWDVWQQrdZ1QQcmdZViewItem_ (http://cgi.ebay.com/Aquafish-Amoxicillin-Antibiotic-250-mg-100-Capsules_W0QQite\ mZ77504 48913QQcategoryZ20751QQssPageNameZWDVWQQrdZ1QQcmdZViewItem) mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 I doubt I would ever relocate to Mexico but I want to hear all about it too. It seems like the medical care there is better and cheaper but I doubt I could get my vitamin/mineral IV's and my IVIG down there. > > > > HIya another Rich in Mexico > > WHere in Mexico are you? I've been hoping to improve enough cognitively to > relocate either to Mexico or Costa Rica. > > I know that being closer to the equator will help me. I have also a deep > interest in indigenous healing. > > Yes, do get yourself tested for Lyme disease. A search of the archives will > yield you the best tests to determine Lyme. > > BY, the way, you have a year and a few days on me. Mine was sudden onset on > April 22,1990 about 4 pm. > > Muchas gracias > mjh > > In a message dated 3/11/2006 3:51:15 PM Eastern Standard Time, > racr27@... writes: > > I know > many of you for different reasons can not pick up and move to Mexico > but for some of you I think the move could help. I bought a nice home > for 60 thousand dollars, which is a pretty good deal for a place with > San Diego weather. I also live cheaply with low property taxs and > cheap utility bills. Being completely disabled it's nice to be able to > hire help for $20.00 a day. Also I know you have all heard stories > about > crime, home ownership, and many other problems in Mexico. In my 8 > full years here I have far less problems than I had living in > California. Ok enough about Mexico but I will answer anyones questions > or fears about living here. I > > > > > mjh > " The Basil Book " > http://foxhillfarm.us/FireBasil/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 If this is genuinely the case, no need to test. Your sudden onset CFIDS is and was lyme disease. The bullseye is diagnostic for lyme. Antibiotics are very cheap in Mexico--I recall this from the border towns. My advice would be to go get a couple bottles of amoxicillin and start with 500 mg 3x day and build up slowly, as you can tolerate the die-off, to 2000 mg 3x day or better yet 1500 mg 4x day (to keep high levels constant) and stay on that for a few years if you can. I can't do that because of severe fungal issues, but I know several people who got completely well doing high dose amoxicillin. It is a very nontoxic antibiotic and can be taken in extremely high doses, and the higher doses that I am suggesting are for CNS penetration. I have many cfids questions but I will > only ask one. Approximately 5 months before my sudden onset with cfids > I had a tick bite on my leg that I watched go from a red mark to a > bulls eye that grew larger in diameter. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 P.S. The reasoning here, which has proved correct, is that syphilis, a similar spirochete, never became resistant to penicillin. This is a broad spectrum penicillin. I noticed when taking it for my tooth troubles, I decided to take 3 grams a day, and almost immediately my lyme symptoms improved (stiff neck eased and was mobile, neuropathic buzzing stopped, and I felt stronger). But as I said, fungal issues for me are too severe so I have to find other means or get rid of the fungus and I can't tolerate diflucan . > > If this is genuinely the case, no need to test. Your sudden onset > CFIDS is and was lyme disease. The bullseye is diagnostic for lyme. > Antibiotics are very cheap in Mexico--I recall this from the border > towns. My advice would be to go get a couple bottles of amoxicillin > and start with 500 mg 3x day and build up slowly, as you can tolerate > the die-off, to 2000 mg 3x day or better yet 1500 mg 4x day (to keep > high levels constant) and stay on that for a few years if you can. I > can't do that because of severe fungal issues, but I know several > people who got completely well doing high dose amoxicillin. It is a > very nontoxic antibiotic and can be taken in extremely high doses, > and the higher doses that I am suggesting are for CNS penetration. > > > I have many cfids questions but I will > > only ask one. Approximately 5 months before my sudden onset with cfids > > I had a tick bite on my leg that I watched go from a red mark to a > > bulls eye that grew larger in diameter. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 YEah but in Mexico there are border towns with literally 95 pharmacies in a few square blocks, and a bottle of 500 pills of amoxicillin is about $5 or $10 or something ridiculously cheap. This guy can get well! And for pennies! > > > In a message dated 3/11/2006 9:03:54 PM Eastern Standard Time, > jenbooks13@... writes: > > My advice would be to go get a couple bottles of amoxicillin > and start with 500 mg 3x day and build up slowly, as you can tolerate > the die-off, to 2000 mg 3x day or better yet 1500 mg 4x day (to keep > high levels constant) and stay on that for a few years if you can > > > Gee whiz, Jill, I think I saw that in the feed and grain store the other day. > > No prescription needed if you are a horse or a cow or a goat. > > mjh > " The Basil Book " > http://foxhillfarm.us/FireBasil/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Yes, definately worth looking into!! I am currently being treated at the FFC (fibro and fatigue center) for fibromyalgia and cfs. My first apt was last Monday. When I told the doctor about a probable tick bite and resulting lyme infection that occured 10 years ago, she felt confident it was responsible for my illness. She ordered several blood tests and believes that she will be able to treat me. So, definately look into into it. I know that many others here have recently talked about some reputable lab companies to do the correct testing. Just search the archives and you will find a lot of helpful information! -Dawn >From: " racr27 " <racr27@...> >Reply- > >Subject: new guy on the block >Date: Sat, 11 Mar 2006 08:40:14 -0000 > > Hey you guys are good. I'm impressed with the wealth of knowledge >I have recieved in my first day with this group. I haven't been in a >cfids support group in ten years and was really missing hearing from >informed people. Now I think I have found a home. I have sudden onset >cfids, Apr.2,1989. I quit experimenting on my cfids in 1998 after >seeing dozens of doctors and injesting dozens of experimental pills >and potions. I was sicker every month not from cfids but from the new >pill or injection of the month. The main things I have done during the >last 7 years to help my self to feel better was to reduce my stress >drastically and move to a home in Mexico near the ocean. My cfids is >still with me daily but not like before. I suffer from multiple >chemical sensitivities but a clean sea breeze really helps. I know >many of you for different reasons can not pick up and move to Mexico >but for some of you I think the move could help. I bought a nice home >for 60 thousand dollars, which is a pretty good deal for a place with >San Diego weather. I also live cheaply with low property taxs and >cheap utility bills. Being completely disabled it's nice to be able to >hire help for $20.00 a day. Also I know you have all heard stories >about > crime, home ownership, and many other problems in Mexico. In my 8 >full years here I have far less problems than I had living in >California. Ok enough about Mexico but I will answer anyones questions >or fears about living here. I have many cfids questions but I will >only ask one. Approximately 5 months before my sudden onset with cfids >I had a tick bite on my leg that I watched go from a red mark to a >bulls eye that grew larger in diameter. At the time I didn't know what >it was but I mentioned it to all the doctors I went to. Only one >doctor thought it might be something and tested me for lymes. He said >the test didn't show much so I forgot about it. Now I know that I had >lymes disease just before I came down with cfids. My question is would >it do any good to be tested again for lymes after 17 years? Ok I will >look for the answer. You all take care. > Besos & abrazos Rich > > > > > > > > > >This list is intended for patients to share personal experiences with each >other, not to give medical advice. If you are interested in any treatment >discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Dawn Which Fibro and Fatigue Center do you go to? Will you share the diagnoses, test results and treatment protocol with us here? In a message dated 3/11/2006 11:46:32 PM Eastern Standard Time, dawnmunn@... writes: Yes, definately worth looking into!! I am currently being treated at the FFC (fibro and fatigue center) for fibromyalgia and cfs. My first apt was last Monday. When I told the doctor about a probable tick bite and resulting lyme infection that occured 10 years ago, she felt confident it was responsible for my illness. She ordered several blood tests and believes that she will be able to treat me. So, definately look into into it. I know that many others here have recently talked about some reputable lab companies to do the correct testing. Just search the archives and you will find a lot of helpful information! -Dawn mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Please be careful with this diagnosing and advice. Some of us cannot tolerate mega-antibiotics, and I am allergic to Amoxicillin specifically (among others.) I am not talking about die-off and herxing, but allergy and other serious problems. Even " die-off " or " herxing " needs to be handled cautiously. There can be many chain reactions from things that we take, even those that are helping something. It is dangerous for some of us to throw ourselves onto drugs, even small doses, and Rich has stated that his worst times were from reactions to drugs. So, this may be a good idea, but the above are important, too. Katrina > > If this is genuinely the case, no need to test. Your sudden onset > CFIDS is and was lyme disease. The bullseye is diagnostic for lyme. > Antibiotics are very cheap in Mexico--I recall this from the border > towns. My advice would be to go get a couple bottles of amoxicillin > and start with 500 mg 3x day and build up slowly, as you can tolerate > the die-off, to 2000 mg 3x day or better yet 1500 mg 4x day (to keep > high levels constant) and stay on that for a few years if you can. I > can't do that because of severe fungal issues, but I know several > people who got completely well doing high dose amoxicillin. It is a > very nontoxic antibiotic and can be taken in extremely high doses, > and the higher doses that I am suggesting are for CNS penetration. > > > I have many cfids questions but I will > > only ask one. Approximately 5 months before my sudden onset with cfids > > I had a tick bite on my leg that I watched go from a red mark to a > > bulls eye that grew larger in diameter. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Another guy, Bob, who I believe is on this list, said that he felt better in Mexico - and when he slept in a tent in the desert. Did you ever think that there could just be less electrosmog down there? (see my post on how microwaves weaknen the immune system.) Though I am sure that is changing fast with the cell phone towers popping up all over. The following maps are a bit behind but it will give you an idea of where the masts were and were not. It would be interesting to be able to correlate this with the amount of CFS in different countries. http://www.cellular-news.com/coverage/ paul d. > > > > > > > > HIya another Rich in Mexico > > > > WHere in Mexico are you? I've been hoping to improve enough > cognitively to > > relocate either to Mexico or Costa Rica. > > > > I know that being closer to the equator will help me. I have also a > deep > > interest in indigenous healing. > > > > Yes, do get yourself tested for Lyme disease. A search of the > archives will > > yield you the best tests to determine Lyme. > > > > BY, the way, you have a year and a few days on me. Mine was sudden > onset on > > April 22,1990 about 4 pm. > > > > Muchas gracias > > mjh > > > > In a message dated 3/11/2006 3:51:15 PM Eastern Standard Time, > > racr27@ writes: > > > > I know > > many of you for different reasons can not pick up and move to Mexico > > but for some of you I think the move could help. I bought a nice home > > for 60 thousand dollars, which is a pretty good deal for a place with > > San Diego weather. I also live cheaply with low property taxs and > > cheap utility bills. Being completely disabled it's nice to be able to > > hire help for $20.00 a day. Also I know you have all heard stories > > about > > crime, home ownership, and many other problems in Mexico. In my 8 > > full years here I have far less problems than I had living in > > California. Ok enough about Mexico but I will answer anyones questions > > or fears about living here. I > > > > > > > > > > mjh > > " The Basil Book " > > http://foxhillfarm.us/FireBasil/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Right, all advice should be taken with caution. This is my advice, pure and simple. I know amoxy is a great drug for lyme and its nontoxic--unless as you note you have a rare penicillin allergy. I was shocked at how quickly effective it was for my lyme, and then I asked others and got the same answer, some who'd been bedridden adn thought they would die. Since he's on a fixed income, and he had a bullseye rash before getting sick, it's obvious its lyme. Its classic lyme. And, recalling how unbelievably cheap antibiotics were in those border towns, he could self treat. I do mean to reiterate starting " slow " and monitoring herxheimers. Rich, as you kill the bacteria, you may temporarily feel worse. Although frankly I didn't get herxheimers from amoxy and neither have those i've talked to. But the high doses and longterm are necessary for CNS penetration and the lyme is in the CNS. > > > > If this is genuinely the case, no need to test. Your sudden onset > > CFIDS is and was lyme disease. The bullseye is diagnostic for lyme. > > Antibiotics are very cheap in Mexico--I recall this from the border > > towns. My advice would be to go get a couple bottles of amoxicillin > > and start with 500 mg 3x day and build up slowly, as you can tolerate > > the die-off, to 2000 mg 3x day or better yet 1500 mg 4x day (to keep > > high levels constant) and stay on that for a few years if you can. I > > can't do that because of severe fungal issues, but I know several > > people who got completely well doing high dose amoxicillin. It is a > > very nontoxic antibiotic and can be taken in extremely high doses, > > and the higher doses that I am suggesting are for CNS penetration. > > > > > > I have many cfids questions but I will > > > only ask one. Approximately 5 months before my sudden onset with cfids > > > I had a tick bite on my leg that I watched go from a red mark to a > > > bulls eye that grew larger in diameter. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Rich, I looked at Immunosciences' web site and it looks like their Western blot test does not require antibiotic provocation. Does that make sense? Thanks, Ellen > > I agree that it would be a good idea to be tested for Lyme disease. > Check out http://www.igenex.com or http://www.immuno-sci-com. You > would probably need to do an antibiotic provoked test to have the > best chance of detecting the Borrelia, but if you contact these > labs, they can advise you. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Hiya (aka Mexico Rich) Such riches you have with your new lifestyle..... look below and I will try to respond to some of your questions. By the way, we are of the same era. In a message dated 3/12/2006 5:30:44 PM Eastern Standard Time, racr27@... writes: First I want to thank all the people who wrote to help me with my probable Lyme problem. jill1313,Kattemayo,foxhillers,Dawn, and others. How about I go by because I live in Mexico and because several people named Rich wrote me. Trying a coarse with amoxicillin sounds like a good start. I have no trouble with penicillin. Drugs are less expensive down here and you don't need prescriptions for antibiotics. We have alot of drug stores down here. Someone wrote me that they couldn't take amoxicillin because of fungal reasons. Does the amoxicillin cause the fungas to get out of control? >>> The way antibiotics work is to kill all bacteria... the good gut ones as well as the bad guys. So, when the good gut bacteria are slaughtered, this sets up an opportunity for the normal gut fungii and yeasts to go forth and propogate, the result being diarrhea and/or chronic fungal infections in the gut. My antidote with my late son was to feed him lots of homemade yoghurt while on antibiotics to keep the gut flora balanced. It worked for him and we never needed to resort to drugs for fungal issues. We did this for decades. ... Two quick questions. What is herxheimes? .... >>> Sometimes when something new is added at too high of a dose, one can get 'sick' flu like illness, so go slowly to let your body adapt and avoid being sicker than you already are. .. .. And what is cns penetration? >>> CNS is cerebral system including that difficult to penetrate blood/brain barrier. ... I hope those aren't stupid questions. >>>> THere ain't no such thing as a stupid question. We all have different levels of information on different subjects.... so, ask away. I also read in a couple of letters about diflucan. After I had been sick maybe 3 years my doctor prescribed diflucan and a very wonderful thing happened. The first three days I took the diflucan I felt normal, like before cfids. I was in seventh heaven than it was gone. I never felt better from diflucan again, even when I doubled the dose. Any one else have that happen? >>>> So, Diflucan helped to bring the yeast and fungii in your gut under control. If you really felt well and do not know, then I suggest you consider another look at yeast issues. .. .. Oh yes another quick question. A couple of you asked if we could talk back channel. Does that mean directly email someone? I would be happy to email anyone directly. Anything that will help I'm very happy to do. .. .. >>>> Yes, that's what it means.... but it also deprives the rest of us from a sharing of information of what might work and what might not work. We are all here to share our experience and figure out how to live happily and healthy ever after. But, of course, the choice is yours alone. .. .. Also I saw a letter from Doyan about cell phones that was very interesting. I don't have a cell phone but I believe what he has to say is probably correct. When I got sick I lived close to an Air America radio station outside of Dixon, Ca. The output of this station was strong enoungh to set off electrical blasting caps two miles away. I lived just over two miles away. I bring this up because when I became sick I always wore a battery powered watch. Ok this might sound crazy but when I took the watch off I felt better, put it back on I felt worse. I believe emf does affect alot of people, even at very low amounts. Last question for now. I said I had sudden onset cfids on April 2, 1989 and I did but I had spells of cfids like sickness back to 21 years old. Just months after returning from Viet Nam. I was dizzy and had unexplained vision problems with 20/20 and 20/15 vision. It took me almost two years to feel better. Than I had a spell for maybe 5 months 10 years later. And my last spell that lasted about two months maybe 6 years later. I believe these spells were caused by chemicals. After my cfids onset I am terribly affected by chemicals. MCS. I miss my weekly beer. >>> Your weekly cervesa contains yeasts.... and since you probably have an unidentified yest fungii issues, this is why the beer is off your current menu. ... ... My question is to the other people with sudden onset cfids did you ever experience cfids like spells that went away before you came down with cfids? I live in El Suazal De , Baja California, Mex.. Just outside of Ensenada and about 65 miles south of the border and San Diego. The doctors, in general, seem to be as good as the ones north of the border. I get one hour visits and the cost is generally $35.00. Lab test are inexpensive but I'm sure they can't do some of the tests we need. According to what I read in an AARP magizine foriegners can belong to Mexican Social Security medical insurance for about $350.00 a year. Social Security in Mexico is mainly medical help and not retirement pay. There are 5 Mex.SS hospitals in Ensenada. There are several other hospitals in Ensenada. I have used the military hospital and found the service good and the hospital clean. I have Kaiser insurance so I haven't tried to sign up for Mexican Social Security. I can highly recomend the dentists in Ensenada. They're work is good and if you shop around the cost is low compared to America. And yes they have modern equipment. For me I find the air cleaner and less daily stress. Also I get my mail delivered in Ensenada daily, for a cost. Someone told me they are trying to choose between Mexico and Costa Rica. Since cfids I can't handle much heat and I like being close to the U.S. so I choose Mexico. My wife lived in Costa Rica and prefers Mexico for weather and far less insects. Sorry this is so long winded. I guess I'm just excited to find this group. mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 First I want to thank all the people who wrote to help me with my probable Lyme problem. jill1313,Kattemayo,foxhillers,Dawn, and others. How about I go by because I live in Mexico and because several people named Rich wrote me. Trying a coarse with amoxicillin sounds like a good start. I have no trouble with penicillin. Drugs are less expensive down here and you don't need prescriptions for antibiotics. We have alot of drug stores down here. Someone wrote me that they couldn't take amoxicillin because of fungal reasons. Does the amoxicillin cause the fungas to get out of control? Two quick questions. What is herxheimes? And what is cns penetration? I hope those aren't stupid questions. I also read in a couple of letters about diflucan. After I had been sick maybe 3 years my doctor prescribed diflucan and a very wonderful thing happened. The first three days I took the diflucan I felt normal, like before cfids. I was in seventh heaven than it was gone. I never felt better from diflucan again, even when I doubled the dose. Any one else have that happen? Oh yes another quick question. A couple of you asked if we could talk back channel. Does that mean directly email someone? I would be happy to email anyone directly. Anything that will help I'm very happy to do. Also I saw a letter from Doyan about cell phones that was very interesting. I don't have a cell phone but I believe what he has to say is probably correct. When I got sick I lived close to an Air America radio station outside of Dixon, Ca. The output of this station was strong enoungh to set off electrical blasting caps two miles away. I lived just over two miles away. I bring this up because when I became sick I always wore a battery powered watch. Ok this might sound crazy but when I took the watch off I felt better, put it back on I felt worse. I believe emf does affect alot of people, even at very low amounts. Last question for now. I said I had sudden onset cfids on April 2, 1989 and I did but I had spells of cfids like sickness back to 21 years old. Just months after returning from Viet Nam. I was dizzy and had unexplained vision problems with 20/20 and 20/15 vision. It took me almost two years to feel better. Than I had a spell for maybe 5 months 10 years later. And my last spell that lasted about two months maybe 6 years later. I believe these spells were caused by chemicals. After my cfids onset I am terribly affected by chemicals. MCS. I miss my weekly beer. My question is to the other people with sudden onset cfids did you ever experience cfids like spells that went away before you came down with cfids? I live in El Suazal De , Baja California, Mex.. Just outside of Ensenada and about 65 miles south of the border and San Diego. The doctors, in general, seem to be as good as the ones north of the border. I get one hour visits and the cost is generally $35.00. Lab test are inexpensive but I'm sure they can't do some of the tests we need. According to what I read in an AARP magizine foriegners can belong to Mexican Social Security medical insurance for about $350.00 a year. Social Security in Mexico is mainly medical help and not retirement pay. There are 5 Mex.SS hospitals in Ensenada. There are several other hospitals in Ensenada. I have used the military hospital and found the service good and the hospital clean. I have Kaiser insurance so I haven't tried to sign up for Mexican Social Security. I can highly recomend the dentists in Ensenada. They're work is good and if you shop around the cost is low compared to America. And yes they have modern equipment. For me I find the air cleaner and less daily stress. Also I get my mail delivered in Ensenada daily, for a cost. Someone told me they are trying to choose between Mexico and Costa Rica. Since cfids I can't handle much heat and I like being close to the U.S. so I choose Mexico. My wife lived in Costa Rica and prefers Mexico for weather and far less insects. Sorry this is so long winded. I guess I'm just excited to find this group. Dawn Munn <dawnmunn@...> wrote: Yes, definately worth looking into!! I am currently being treated at the FFC (fibro and fatigue center) for fibromyalgia and cfs. My first apt was last Monday. When I told the doctor about a probable tick bite and resulting lyme infection that occured 10 years ago, she felt confident it was responsible for my illness. She ordered several blood tests and believes that she will be able to treat me. So, definately look into into it. I know that many others here have recently talked about some reputable lab companies to do the correct testing. Just search the archives and you will find a lot of helpful information! -Dawn --------------------------------- Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Hi Rich/... I wrote about the fungal problems. Yes, longterm antibiotics can cause fungal problems if you are susceptible. The best you can do is limit your sugar and carb intake, do lots of yogurt and probiotics (good flora), and perhaps take antifungals if necessary. I have heard the same about diflucan--temporary boost--then relapse--and don't know why. If you have lyme in your system, you often become chemically and electrically sensitive. It makes you more vulnerable. Then the other assaults are harder to handle. Herxheimer--is named after the guy who figured out that when you kill off certain pathogens, they give off toxins that make you feel worse, partly by stimulating your own immune system to a highly inflammatory state. As time passes, that passes. But you don't want to overdo the killing of the pathogens and overwhelm your body with too many dead pathogens releasing toxins, which is why you slowly increase the dose, or even pulse it if necessary. Lyme is slow growing. Stopping for a few days won't matter that much if you are feeling particularly lousy and need a break. CNS is central nervous system. This organism moves into the central nervous system within 48 hours, and it is protected there. You need high levels of oral amoxicillin to penetrate in there and kill it. Good luck!!! > Also I saw a letter from Doyan about cell phones that was very interesting. I don't have a cell phone but I believe what he has to say is probably correct. When I got sick I lived close to an Air America radio station outside of Dixon, Ca. The output of this station was strong enoungh to set off electrical blasting caps two miles away. I lived just over two miles away. I bring this up because when I became sick I always wore a battery powered watch. Ok this might sound crazy but when I took the watch off I felt better, put it back on I felt worse. I believe emf does affect alot of people, even at very low amounts. > Last question for now. I said I had sudden onset cfids on April 2, 1989 and I did but I had spells of cfids like sickness back to 21 years old. Just months after returning from Viet Nam. I was dizzy and had unexplained vision problems with 20/20 and 20/15 vision. It took me almost two years to feel better. Than I had a spell for maybe 5 months 10 years later. And my last spell that lasted about two months maybe 6 years later. I believe these spells were caused by chemicals. After my cfids onset I am terribly affected by chemicals. MCS. I miss my weekly beer. My question is to the other people with sudden onset cfids did you ever experience cfids like spells that went away before you came down with cfids? > I live in El Suazal De , Baja California, Mex.. Just outside of Ensenada and about 65 miles south of the border and San Diego. The doctors, in general, seem to be as good as the ones north of the border. I get one hour visits and the cost is generally $35.00. Lab test are inexpensive but I'm sure they can't do some of the tests we need. According to what I read in an AARP magizine foriegners can belong to Mexican Social Security medical insurance for about $350.00 a year. Social Security in Mexico is mainly medical help and not retirement pay. There are 5 Mex.SS hospitals in Ensenada. There are several other hospitals in Ensenada. I have used the military hospital and found the service good and the hospital clean. I have Kaiser insurance so I haven't tried to sign up for Mexican Social Security. I can highly recomend the dentists in Ensenada. They're work is good and if you shop around the cost is low compared to America. And yes they have modern equipment. For me I > find the air cleaner and less daily stress. Also I get my mail delivered in Ensenada daily, for a cost. Someone told me they are trying to choose between Mexico and Costa Rica. Since cfids I can't handle much heat and I like being close to the U.S. so I choose Mexico. My wife lived in Costa Rica and prefers Mexico for weather and far less insects. Sorry this is so long winded. I guess I'm just excited to find this group. > > > Dawn Munn <dawnmunn@...> wrote: > Yes, definately worth looking into!! I am currently being treated at the > FFC (fibro and fatigue center) for fibromyalgia and cfs. My first apt was > last Monday. When I told the doctor about a probable tick bite and > resulting lyme infection that occured 10 years ago, she felt confident it > was responsible for my illness. She ordered several blood tests and > believes that she will be able to treat me. So, definately look into into > it. I know that many others here have recently talked about some reputable > lab companies to do the correct testing. Just search the archives and you > will find a lot of helpful information! > -Dawn > > > > --------------------------------- > > Bring photos to life! New PhotoMail makes sharing a breeze. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Hi, Ellen. I think it does. As I recall, the abx provocation is used for the types of tests that look for pieces of the bacteria (antigens), such as the one Igenex uses. Rich > > Rich, > > I looked at Immunosciences' web site and it looks like their Western blot > test does not require antibiotic provocation. Does that make sense? > > Thanks, > Ellen > > > > > > I agree that it would be a good idea to be tested for Lyme disease. > > Check out http://www.igenex.com or http://www.immuno-sci-com. You > > would probably need to do an antibiotic provoked test to have the > > best chance of detecting the Borrelia, but if you contact these > > labs, they can advise you. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 I do not mean to offend anyone, but I wholeheartedly agree with Katrina. There is a reason that antibiotics are only available through prescription. When abused, they can be quite dangerous. In addition to the dangers that Katrina listed, there is also the risk of creating superinfections (bacteria that are resistent to the antibiotics we currently have available). Also, without government regulation, you really can't be sure that you are getting the correct antibiotic, that it is the dosage they say it is, that it has been stored properly, that it is not expired, ect. All I am saying is to please be careful. >From: " kattemayo " <kattemayo@...> >Reply- > >Subject: Re: new guy on the block >Date: Sun, 12 Mar 2006 10:36:23 -0000 > > > >Please be careful with this diagnosing and advice. Some of us cannot >tolerate mega-antibiotics, and I am allergic to Amoxicillin specifically >(among others.) I am not talking about die-off and herxing, but allergy and >other serious problems. > >Even " die-off " or " herxing " needs to be handled cautiously. > >There can be many chain reactions from things that we take, even those that >are helping something. > >It is dangerous for some of us to throw ourselves onto drugs, even small >doses, and Rich has stated that his worst times were from reactions to >drugs. > >So, this may be a good idea, but the above are important, too. > >Katrina > > > > > > > If this is genuinely the case, no need to test. Your sudden onset > > CFIDS is and was lyme disease. The bullseye is diagnostic for lyme. > > Antibiotics are very cheap in Mexico--I recall this from the border > > towns. My advice would be to go get a couple bottles of amoxicillin > > and start with 500 mg 3x day and build up slowly, as you can tolerate > > the die-off, to 2000 mg 3x day or better yet 1500 mg 4x day (to keep > > high levels constant) and stay on that for a few years if you can. I > > can't do that because of severe fungal issues, but I know several > > people who got completely well doing high dose amoxicillin. It is a > > very nontoxic antibiotic and can be taken in extremely high doses, > > and the higher doses that I am suggesting are for CNS penetration. > > > > > > I have many cfids questions but I will > > > only ask one. Approximately 5 months before my sudden onset with cfids > > > I had a tick bite on my leg that I watched go from a red mark to a > > > bulls eye that grew larger in diameter. > > > > > > > > >This list is intended for patients to share personal experiences with each >other, not to give medical advice. If you are interested in any treatment >discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 mjh, I will definately share information with you as I recieve it. Unfortunately, I have only had one apt so far, so I don't have too much to share. I went to the Cleveland FFC. The doctor there was confident that all of my illnesses and probably many of my food allergies/ intolerences were related to Lyme disease infection. She also believes that I have low thyroid and an estrogen imbalance (too much). She ordered 44 blood tests and I have an apt in the beging of April to get my lab results. I will update you then. Dawn >From: foxhillers@... >Reply- > >Subject: Re: new guy on the block >Date: Sun, 12 Mar 2006 07:51:50 EST > > > >Dawn > >Which Fibro and Fatigue Center do you go to? Will you share the >diagnoses, >test results and treatment protocol with us here? _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Regarding food allergies, chemical sensitivites, and hpersensitivities in general: I had a myriad of them - even had the substances pegged so I could avoid them. And I never associated any of them with Lyme. And as a matter of fact- some of my other symptoms - like Trigeminal nerve pain, metal sensitivites (on my skin) and GI problems I never associated with Lyme either....... BUT....... ALL of those symptoms went away post Lyme therapy.. and I mean all of them. Quite frankly, I had had many of those problems for so long, I couldn't quite beleive it myself when they were gone. I am totally convinced - at least in my case- that when the root cause is removed (Lyme) hypersensitivites are releived. Barb > > mjh, > I will definately share information with you as I recieve it. > Unfortunately, I have only had one apt so far, so I don't have too much to > share. I went to the Cleveland FFC. The doctor there was confident that > all of my illnesses and probably many of my food allergies/ intolerences > were related to Lyme disease infection. She also believes that I have low > thyroid and an estrogen imbalance (too much). She ordered 44 blood tests > and I have an apt in the beging of April to get my lab results. I will > update you then. > Dawn > > > >From: foxhillers@... > >Reply- > > > >Subject: Re: new guy on the block > >Date: Sun, 12 Mar 2006 07:51:50 EST > > > > > > > >Dawn > > > >Which Fibro and Fatigue Center do you go to? Will you share the > >diagnoses, > >test results and treatment protocol with us here? > > _________________________________________________________________ > Don't just search. Find. Check out the new MSN Search! > http://search.msn.click-url.com/go/onm00200636ave/direct/01/ > Quote Link to comment Share on other sites More sharing options...
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