Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 hi all. been looking at chelation... i am wondering what can be purchased with out a prescription in the us or possibly canada besides ala.... thanks neva --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 > > hi all. been looking at chelation... i am wondering what can be purchased with out a prescription in the us or possibly canada besides ala.... thanks neva Hello Neva, Short answer: DMSA. Longer answer, with lots of details: /files/HOW_TO_buy_DMSA best wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Christy- So glad you're seeing improvement! It's funny you mention the " butt head " , that's the first I've heard it mentioned on this site...Emma had the same thing, I thought it made her head look like a peach. It was there for about 2 weeks, then when I brought it up the ortho said " huh " and shaved just a little bit off of the ledge, so it wasn't so sharp. It took another 2 weeks or so until it was gone, but I haven't seen it since then. Near the end of her band, when she was just getting to the outgrown stage, she was getting those red marks on her non-held side in front of the ear too....we were told that it was when she slept & put wierd pressure on it, that's what happened. We were also told that that couldn't be adjusted, since it had to be held for the sake of her forehead. Anyway, those were my experiences, perhaps I'm wrong or maybe someone has a more scientific explaination, but I thought I'd share! And the week we removed her band, I swear her tort tripled. Oh well, we're only doing what we can, right? Best of luck! , mom to Emma tort/tot collar this friday/doc grad 12/17/04 Cleveland, OH > > Kennedy's head is looking much better but still seems to have quite > a way to go. But it has only been 6 weeks since she received her > band. I am, overall, quite pleased with the improvement. My concerns > are these: > > 1) She seems to be developing " butt head " where the seam is in the > back of her helmet. I may be imagining this, but I see a slight dent > in the center of the back of her head where the seam is. Any one > experience this? Does it go away? Does it require an adjustment? > > 2)On the left side where her face is a little flat, the piece that > come down in front of her ear looks like it is really putting a lot > of pressure on her face. Could her sleeping on that side all the > time have warped the band at all? It is red there when we remove the > band, but always resolves quickly. It is on the side that we are not > holding. The other side still looks comfortable and roomy. Any > thoughts? > > I am also worried that she is out growing the band and there is > still quite a bit of room for improvement and I don't think we can > do a 2nd band. How often are 2nd bands necessary? > > Also, her tort seems to be " back " . > > Sorry for the lengthy, paranoid post. Thanks for any insight. I > tried posting a new pic today of her progress but couldn't get it to > upload. > > Christy- mom to Kennedy (almost 8 months) > Brachy/plagio/left tort > DOC band 11/23/04 > Tulsa, OK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Hi Christy, I'm glad you are pleased with Kennedy's progress so far. As for your questions ... 1) "butt crack" sound slike maybe an adjustment is needed, but possibly not. I do remember na had a little of this. We discussed with ortho. Some of it was determined to be fluid. Keep an eye on it and ask. I wouldn't worry. 2) Again could be a sign of growth and need for an adjustment. Is it only red after she sleeps on it - if so then it could be just pressure from sleeping. If it's fading quickly it really isn't anything to worry about. 3) I don't know how often 2nd bands are needed. na did need one. She out grew her first one in 29 days - ugh. She was banded at 4 1/2 months and grew like a weed. I think most children only need one band. 4) Tort - ugh - I am so with you on this one. na started very mild at 3 months. We did stretches and by 6 months no noticable tilt. Then 7 months - boom - back worse than ever. We kept stretching and strengthening. She graduated at 8 1/2 months with her worse tilt yet - check out the b & A pics. So at 9 months she went in to PT at the local hospital. She was in therapy for 4 months. We didn't go often, started 2 X/week, than 1/week, than once every 2 weeks, etc. It was good support and monitoring. Tort tends to come back with growth spurts, illnesses, new milestones (yes learning to sit can mess it up), teething, being tired, etc. These are all very good questions. I think you can have a very good conversation with your ortho. It's great to ask questions and alleviate your worries. I asked the same questions almost every week. I don't think my ortho minded - LOL. mom to na DOC Grad 2/04 Tort Resolved South Carolina www.thefilyaws.com christytolar <christytolar@...> wrote: Kennedy's head is looking much better but still seems to have quite a way to go. But it has only been 6 weeks since she received her band. I am, overall, quite pleased with the improvement. My concerns are these:1) She seems to be developing "butt head" where the seam is in the back of her helmet. I may be imagining this, but I see a slight dent in the center of the back of her head where the seam is. Any one experience this? Does it go away? Does it require an adjustment?2)On the left side where her face is a little flat, the piece that come down in front of her ear looks like it is really putting a lot of pressure on her face. Could her sleeping on that side all the time have warped the band at all? It is red there when we remove the band, but always resolves quickly. It is on the side that we are not holding. The other side still looks comfortable and roomy. Any thoughts?I am also worried that she is out growing the band and there is still quite a bit of room for improvement and I don't think we can do a 2nd band. How often are 2nd bands necessary?Also, her tort seems to be "back".Sorry for the lengthy, paranoid post. Thanks for any insight. I tried posting a new pic today of her progress but couldn't get it to upload.Christy- mom to Kennedy (almost 8 months)Brachy/plagio/left tortDOC band 11/23/04Tulsa, OKFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Hi guys, I have a couple of questions I am hoping you can answer. First off is it posible to rebreak a foot bone even though it is screwed I had a broken metatosel but they but a screw in it in october I am having the same pain, tenderness, and swelling as I did when i first got diagonsed with it. Second question is does any;one know of anything to do with getting a jaw to stop popping everytime you open your mouth. My third question is does stress make your RA worse i have been having a flare for a few weeks now. If anyone knows any answers to these questions please help me. THanks Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 Hi Angie, I don't know much. I do know stress and worry will put my RA. into overdrive. I hope this helped. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 I would definitly get your foot rechecked. It may have broke in a different spot or even where the screw is. Strange things can happen with our bodies. As for the jaw popping. You probably should be evaluated by a dentist for TMJ. They know what to do about that. And yes stress definitly affects our ra. I know I was told to try and keep my stress down. > > Hi guys, > I have a couple of questions I am hoping you can answer. First off > is it posible to rebreak a foot bone even though it is screwed I had > a broken metatosel but they but a screw in it in october I am having > the same pain, tenderness, and swelling as I did when i first got > diagonsed with it. Second question is does any;one know of anything > to do with getting a jaw to stop popping everytime you open your > mouth. My third question is does stress make your RA worse i have > been having a flare for a few weeks now. If anyone knows any answers > to these questions please help me. > > THanks > Angie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 My last blood work showed that my Calcium and Vitamin D levels were extremely low. My body was not absorbing the pills so I was changed to shots every week for the methotrexate and my Calcium and Vitamin D was tripled. My folic acid also was upped to 2 times a day 1 tablet. I was told to start taking Thera D 2000. I was taking already 4000 UI and that was not enough to keep my levels up. I have erosion/corrosion of my toes and my fingers have frozen in place where I cannot bend them very well. My right shoulder gives me problems now and sleeping is almost non the last few weeks. Pain meds do not work anymore unless I self-medicate way more than I am suppose to. Irish Quote Link to comment Share on other sites More sharing options...
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