Guest guest Posted April 9, 1999 Report Share Posted April 9, 1999 Hi Barbara, I just wanted you to know that I saw Dr. Ziem yesterday. It was so nice to meet someone who understand what we are going through. Thank you so much for sending her name to me. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 1999 Report Share Posted April 28, 1999 In a message dated 4/28/99 2:54:58 AM Central Daylight Time, onelist writes: Jane, Re your problems with the contact lenses....be careful! I would definitely get the Schirmer " dry-eye " test done and talk to your optometrist about whether you have enough tears to wear contact lenses. I finally gave mine up about five years ago and went back to glasses because of the discomfort. Dwanna > > DOE ANYONE ELSE OUT THERE HAVE PROBLEMS WITH THEIR EYES. I HAVE BEEN FOR A > WHILE NOW. RED, BLOOD SHOT AND FEELING GRITTY. I WEAR CONTACT LENSES AND > NOW I AM DOWN TO WEARING ONLY THE LEFT ONE. IT BOTHERS ME THE LEAST. I ONLY > WEAR THEM WHEN I HAVE TO GO OUT, AT HOME I GET BY WITHOUT THEM. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 1999 Report Share Posted June 8, 1999 in San Diego: What bedtime tape do you use for your daughter? (my 8 year old) also has her worst worries at night, when she's absolutely SURE she's going to throw up. I've been staying with her until she falls asleep, at the CBT's suggestion, since none of us were getting any sleep. Tried a classical child's tape, and that relaxed her, but it also kept her awake, since she loves music. Just curious about what you're using... in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 1999 Report Share Posted December 1, 1999 Can anyone tell me if Kombucha is acceptable for a type-O diet? Kombucha is a fermented tea which utilizes a fungus culture to convert sugar into acetic acid, fructose, succinic acid, gluconic acid and keto-gluconic acids. It has many reported health benefits including digestive wellness since it has some healthful bacteria as well. I have a feeling it is a lot like apple cider which is on the avoid list. Regards, Mark > Digest Number 126 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2000 Report Share Posted April 23, 2000 I do not think I have ever met any patient that is able to go through the therapy past several months that do not have some degree of depression. Between the virus, how you feel, the uncertainty, poor nutrition, fatigue, and the medications themselves, can cause depression in the best of situations. I never prescribe the therapy without strongly encouraging someone to try an antidepressant as well. Depression is too common and some have even gone to try, or have committed suicide. Its not worth it. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 In a message dated 4/24/00 9:54:33 AM Pacific Daylight Time, egroups writes: << would wish that our kids could communicate with us their feelings, hurts, and fears. >> Amen! Hope all you parents whose kids have had recent surgery are " recovering " as well as the kids are.....they are resilient, tho, but I know what you mean about wishing they can express their feelings to us better...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 In a message dated 4/24/00 9:54:33 AM Pacific Daylight Time, egroups writes: << esa Mom to the tenacious ten! Nowa, , , Trent, Josiah, , Abigail, Luke, and . >> Lesa: What have I missed???? You have TEN KIDS???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 Hi alley/, I know exactly how you feel. If you need some help talking to your girlfriend you might show her the " letter to people without Hepatitis " that I included with one of my emails just a few weeks ago, or take some of it's ideas for some of what you say if you talk to her in person. I used a lot of it in a letter to two of my brothers that have not reached out to me hardly at all before, during, or after treatment. They still didn't quite get it, but now I can say I've done what I can to meet my needs by informing them of what's going on for me, and realize and accept that I can't change them, even though I'd like to. Hopefully your friend will come around...my best friend did to a great extent, even though not quite as much as I'd hoped, but about as much as I'd expect. Take care, Sara >> ... " Some days, I barely make it upstairs to my desk and we even have an elevator thank goodness. I felt so embarrassed the other day at work. This lady hops up the stairs and says I'd be healthier if I walked the stairs. She doesn't know about the hep, doesn't know me and doesn't see me use the stairs later in the day when I feel better. I just wanted to cry. Or slap her. But I cried instead. Then my girlfriend bubbles into my cubicle wanting me to walk with her down the hall while she gets a coke. I haven't even sat in my chair yet. I said no, and was about to ask her if she'd get me some ice water till she called me a grump. More silent tears. My girlfriend I'll have a talk with this weekend. Been thinking about how to do it without making her feel bad or putting her down ya know? " ... alley/ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 Hi alley/, I know exactly how you feel. If you need some help talking to your girlfriend you might show her the " letter to people without Hepatitis " that I included with one of my emails just a few weeks ago, or take some of it's ideas for some of what you say if you talk to her in person. I used a lot of it in a letter to two of my brothers that have not reached out to me hardly at all before, during, or after treatment. They still didn't quite get it, but now I can say I've done what I can to meet my needs by informing them of what's going on for me, and realize and accept that I can't change them, even though I'd like to. Hopefully your friend will come around...my best friend did to a great extent, even though not quite as much as I'd hoped, but about as much as I'd expect. Take care, Sara >> ... " Some days, I barely make it upstairs to my desk and we even have an elevator thank goodness. I felt so embarrassed the other day at work. This lady hops up the stairs and says I'd be healthier if I walked the stairs. She doesn't know about the hep, doesn't know me and doesn't see me use the stairs later in the day when I feel better. I just wanted to cry. Or slap her. But I cried instead. Then my girlfriend bubbles into my cubicle wanting me to walk with her down the hall while she gets a coke. I haven't even sat in my chair yet. I said no, and was about to ask her if she'd get me some ice water till she called me a grump. More silent tears. My girlfriend I'll have a talk with this weekend. Been thinking about how to do it without making her feel bad or putting her down ya know? " ... alley/ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 Oooh--wish I hadn't erased the last 3 months of UNREAD digests--sounds like lots of good sensory info has been flying. Tried shaving cream in the bathtub to finger paint with? I used to use it to help mask the smell of post poopy diaper, but thought that might be reinforcing to him since he loves the shaving cream. (Would he really be smart enough to make himself poop so he could get a shaving cream bath? Hmmmm). Found some wonderful foam soap that comes in a container like shaving cream. Easter Bunny brought that for him and he loves it. Joan, I met a new person (cousin of my only-once-a-year-hairdresser) who has a son with this diagnosis who actually lives in my city! Her son is 14, and she would like to get on the list. How do I get her to sign up? Thanks. in Little Rock, mom to , almost 6. Digest Number 126 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 Sherry, What is the sensory hammock? Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2001 Report Share Posted March 11, 2001 Hi everyone - I'm wondering if anyone knows of any literature or websites that may be available regarding the benefits of sending a child with Apraxia to a school for the hearing impaired. I am interested in having my Apraxic son placed in a hearing impaired school and would like to be prepared with something in writing during my IEP if they don't understand why. I can explain the reasons verbally, but would like to have something in writing if it exists. Thanks, Mazda1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Isreal, I was petrified to see my results. The way the doctor explained them.....I THOUGHT I was near the transplant list! NOT SO! I asked for a copy of my records to hand carry to a second opinion appointment. Even when I read the results.....I didnt fully understand what it meant. I bought several books on the liver and Hepatitis c. Like Dolans' Hepatitis C Handbook, and Dr. Cabot's The Healthy Liver and Bowel Book. Once I resigned myself that death wasn't imminent, I studied what I should and shouldn't eat. What helps the liver regenerate and what is hard work for the liver to process. Selenium is a good vitiamin and Milkthistle a good herb.....there are many more, but I'm giving you a brief good/bad so you know what you eat makes a difference. Animal fats are hard, but fats from nuts and avacados are easier on the liver. Peanuts can carry an organisim from the ground that can kill us, and potatoe skins can have concentrated pesticides from farming as can fruit from trees.....so peel them!!!! unless you grow them! Beets are really good for the liver......and juicing fruits and veggies take the processing job away from the liver so it gets a good healthy dose of nutritition......if you are concerned about waste.....use the veggie left overs in soup. A good potent anti oxident is good too. It's become a matter of feeding my liver now, rather that eating for the joy of something delicious to you. Think health food. raw fruits and veggies and whole grain everything. Quit 90% of sugar, salt and caffine......and the 10% will be enough to be a treat, and keep you from feeling too deprived. MOST OF ALL Drink as much DISTILLED water as you can, when you can. If it has preservatives or additives that aren't 100% mother nature....pass. Keep the eggs down to 4 a week and if you HAVE to fry it.....blot as much grease off as possible. I allow myself bacon once every 2 weeks.....or I'd be desperate!..... All this is your decision, and I'd rather you research the info than take my word for it. I do know my liver was swollen when I had the biopsy, and 2 months later after doing everything in this letter.......and a whole lot more......the swelling was down so much that the doc asked if my liver wasn't swollen last time I was in. I didn't explain to him my diet change because when I asked him previously....he said my diet was not a concern........which is why I'm switching Dr.s.......EVERYTHING you comsume will affect your liver for the good, or the bad.......and that includes breathing fumes, smoking, paint and chemicals......yard pesticides and herbacides......the dog or cats flea shampoo....your skin asorbs it and your liver gets it out. It is your filter. Without adequate amounts of WATER, you liver must clean out what your kidneys dont..... Oh yeah, after reading everything I could on the liver and what it does and how it does it, and hep-c....I found out I have almost no damage......I know alot of poeple who have cirrhoisi though....and they're doing great, now they know what to avoid, and what is good....and treatment. I'll keep you in my prayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Isreal, I was petrified to see my results. The way the doctor explained them.....I THOUGHT I was near the transplant list! NOT SO! I asked for a copy of my records to hand carry to a second opinion appointment. Even when I read the results.....I didnt fully understand what it meant. I bought several books on the liver and Hepatitis c. Like Dolans' Hepatitis C Handbook, and Dr. Cabot's The Healthy Liver and Bowel Book. Once I resigned myself that death wasn't imminent, I studied what I should and shouldn't eat. What helps the liver regenerate and what is hard work for the liver to process. Selenium is a good vitiamin and Milkthistle a good herb.....there are many more, but I'm giving you a brief good/bad so you know what you eat makes a difference. Animal fats are hard, but fats from nuts and avacados are easier on the liver. Peanuts can carry an organisim from the ground that can kill us, and potatoe skins can have concentrated pesticides from farming as can fruit from trees.....so peel them!!!! unless you grow them! Beets are really good for the liver......and juicing fruits and veggies take the processing job away from the liver so it gets a good healthy dose of nutritition......if you are concerned about waste.....use the veggie left overs in soup. A good potent anti oxident is good too. It's become a matter of feeding my liver now, rather that eating for the joy of something delicious to you. Think health food. raw fruits and veggies and whole grain everything. Quit 90% of sugar, salt and caffine......and the 10% will be enough to be a treat, and keep you from feeling too deprived. MOST OF ALL Drink as much DISTILLED water as you can, when you can. If it has preservatives or additives that aren't 100% mother nature....pass. Keep the eggs down to 4 a week and if you HAVE to fry it.....blot as much grease off as possible. I allow myself bacon once every 2 weeks.....or I'd be desperate!..... All this is your decision, and I'd rather you research the info than take my word for it. I do know my liver was swollen when I had the biopsy, and 2 months later after doing everything in this letter.......and a whole lot more......the swelling was down so much that the doc asked if my liver wasn't swollen last time I was in. I didn't explain to him my diet change because when I asked him previously....he said my diet was not a concern........which is why I'm switching Dr.s.......EVERYTHING you comsume will affect your liver for the good, or the bad.......and that includes breathing fumes, smoking, paint and chemicals......yard pesticides and herbacides......the dog or cats flea shampoo....your skin asorbs it and your liver gets it out. It is your filter. Without adequate amounts of WATER, you liver must clean out what your kidneys dont..... Oh yeah, after reading everything I could on the liver and what it does and how it does it, and hep-c....I found out I have almost no damage......I know alot of poeple who have cirrhoisi though....and they're doing great, now they know what to avoid, and what is good....and treatment. I'll keep you in my prayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 thanks for replys to my last post concerning the liver biopsy. i haven't gotten back the results back yet. in answer to your question marylin i wasn't put out during my procedure they just numbed my side. i am seeing a hepatologist i'm due to find out my results on friday. i'm very anxious and scared about all the possibilities that may come my way. let's just say that the results r against me. in my state of mind i am expecting the worst because of my past behaviors. when it came to abusing my body i didn't care what i did now i'm paying the consequenses. i " m working very hard at staying clean but now i feel that i am taking a step backwards and it sucks. the last thing that i want to do is to drink and drug again. the way i feel right now it doesn't sound like a bad idea. this is just a feeling. i have to much live for now. i have a son and a wife that r very dear to me and that i love very much. it would be very selfish of me to kill my pain and give them pain. i need all the support i can get so i hope that u and other members will keep posting so that we can support each other through this maddness. israel <spiria_spirit@...> > 3. Re: taking my first shot of Peg-intron > tonight > From: theemoculli@... > 4. Re: taking my first shot of Peg-intron > tonight > From: theemoculli@... > 5. sleeping > From: d25woods > 6. Re: sleeping > From: theemoculli@... > 7. Re: taking my first shot of Peg-intron > tonight > From: " Tobi Hale " <haletobi@...> > 8. Re: taking my first shot of Peg-intron > tonight > From: " Tobi Hale " <haletobi@...> > 9. Re: Missy and China > From: Sandy Booton <ibsandy77@...> > 10. liver biopsy > From: " isy1214 " <isy1214@...> > 11. Re: taking my first shot of Peg-intron > tonight > From: theemoculli@... > 12. Re: liver biopsy > From: theemoculli@... > 13. Re: Re: Missy and China > From: Elliott > <angelmissie2000@...> > 14. Re: taking my first shot of Peg-intron > tonight > From: " Marilyn " > <MarilynWilkinson@...> > 15. Re: liver biopsy > From: " Marilyn " > <MarilynWilkinson@...> > 16. Re: Re: Missy and China > From: " Marilyn " > <MarilynWilkinson@...> > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Sat, 27 Jul 2002 01:34:16 -0700 (PDT) > From: xxx ooo <spiria_spirit@...> > Subject: Re: taking my first shot of Peg-intron > tonight > > > Also make sure you eat something healthy and I think > according to you Drs advise you can take 2 tylonal > or advil before injection to help with flu like > symptoms. I always took mine in the evening so I > would sleep through allot of it. But make sure > until you know how you react, you have every thing > you need handy and nothing planned. Dana > Marilyn wrote:I'm on the list and waiting for my > number to come up. Did you sign up with Be in > Charge at Schering? They have a 24/7 support number > to call - 1-880-437-2608. You can call any time to > be a part of it. The nurse I talked to gave me all > sorts of tips that patients share with her about > taking the shots. Some take a hot bath first, so > the needle goes in easier, some let the alcohol dry > completely before injecting so the shot doesn't > sting, some drink a big glass of water right before > and right after - they say the side-effects are > less. I'm sure there are lots of people on this > list who can give you tips, mine are just hearsay at > this point. Anyway, they are so nice, I'm sure > whoever you talk to will walk you through and stay > on the phone while you do it for the first time. I > wish you all the best. > > Marilyn > Re: taking my > first shot of Peg-intron tonight > > > God might have to kick my ass to get this first > shot over with. > I just read all the literture that comes with it. > I dont see this hapeneing this weekend. > I'm chickening out real fast > > > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 thanks for replys to my last post concerning the liver biopsy. i haven't gotten back the results back yet. in answer to your question marylin i wasn't put out during my procedure they just numbed my side. i am seeing a hepatologist i'm due to find out my results on friday. i'm very anxious and scared about all the possibilities that may come my way. let's just say that the results r against me. in my state of mind i am expecting the worst because of my past behaviors. when it came to abusing my body i didn't care what i did now i'm paying the consequenses. i " m working very hard at staying clean but now i feel that i am taking a step backwards and it sucks. the last thing that i want to do is to drink and drug again. the way i feel right now it doesn't sound like a bad idea. this is just a feeling. i have to much live for now. i have a son and a wife that r very dear to me and that i love very much. it would be very selfish of me to kill my pain and give them pain. i need all the support i can get so i hope that u and other members will keep posting so that we can support each other through this maddness. israel <spiria_spirit@...> > 3. Re: taking my first shot of Peg-intron > tonight > From: theemoculli@... > 4. Re: taking my first shot of Peg-intron > tonight > From: theemoculli@... > 5. sleeping > From: d25woods > 6. Re: sleeping > From: theemoculli@... > 7. Re: taking my first shot of Peg-intron > tonight > From: " Tobi Hale " <haletobi@...> > 8. Re: taking my first shot of Peg-intron > tonight > From: " Tobi Hale " <haletobi@...> > 9. Re: Missy and China > From: Sandy Booton <ibsandy77@...> > 10. liver biopsy > From: " isy1214 " <isy1214@...> > 11. Re: taking my first shot of Peg-intron > tonight > From: theemoculli@... > 12. Re: liver biopsy > From: theemoculli@... > 13. Re: Re: Missy and China > From: Elliott > <angelmissie2000@...> > 14. Re: taking my first shot of Peg-intron > tonight > From: " Marilyn " > <MarilynWilkinson@...> > 15. Re: liver biopsy > From: " Marilyn " > <MarilynWilkinson@...> > 16. Re: Re: Missy and China > From: " Marilyn " > <MarilynWilkinson@...> > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Sat, 27 Jul 2002 01:34:16 -0700 (PDT) > From: xxx ooo <spiria_spirit@...> > Subject: Re: taking my first shot of Peg-intron > tonight > > > Also make sure you eat something healthy and I think > according to you Drs advise you can take 2 tylonal > or advil before injection to help with flu like > symptoms. I always took mine in the evening so I > would sleep through allot of it. But make sure > until you know how you react, you have every thing > you need handy and nothing planned. Dana > Marilyn wrote:I'm on the list and waiting for my > number to come up. Did you sign up with Be in > Charge at Schering? They have a 24/7 support number > to call - 1-880-437-2608. You can call any time to > be a part of it. The nurse I talked to gave me all > sorts of tips that patients share with her about > taking the shots. Some take a hot bath first, so > the needle goes in easier, some let the alcohol dry > completely before injecting so the shot doesn't > sting, some drink a big glass of water right before > and right after - they say the side-effects are > less. I'm sure there are lots of people on this > list who can give you tips, mine are just hearsay at > this point. Anyway, they are so nice, I'm sure > whoever you talk to will walk you through and stay > on the phone while you do it for the first time. I > wish you all the best. > > Marilyn > Re: taking my > first shot of Peg-intron tonight > > > God might have to kick my ass to get this first > shot over with. > I just read all the literture that comes with it. > I dont see this hapeneing this weekend. > I'm chickening out real fast > > > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Israel, Keep thinking positive. I had not done drugs since the early 80's and went to being an occasional drinker in the early 90's and was not diagnosed with HepC till 1997. What a shock. The years do catch up to you and treatment is hell. But hopefully you will be one of the lucky stitistics that frees yourself from it. And keep remembering all you have to live for. God has already forgiven you for your past. Dana israel gonzalez wrote: thanks for replys to my last post concerning the liver biopsy. i haven't gotten back the results back yet. in answer to your question marylin i wasn't put out during my procedure they just numbed my side. i am seeing a hepatologist i'm due to find out my results on friday. i'm very anxious and scared about all the possibilities that may come my way. let's just say that the results r against me. in my state of mind i am expecting the worst because of my past behaviors. when it came to abusing my body i didn't care what i did now i'm paying the consequenses. i " m working very hard at staying clean but now i feel that i am taking a step backwards and it sucks. the last thing that i want to do is to drink and drug again. the way i feel right now it doesn't sound like a bad idea. this is just a feeling. i have to much live for now. i have a son and a wife that r very dear to me and that i love very much. it would be very selfish of me to kill my pain and give them pain. i need all the support i can get so i hope that u and other members will keep posting so that we can support each other through this maddness. israel <spiria_spirit@...> > 3. Re: taking my first shot of Peg-intron > tonight > From: theemoculli@... > 4. Re: taking my first shot of Peg-intron > tonight > From: theemoculli@... > 5. sleeping > From: d25woods > 6. Re: sleeping > From: theemoculli@... > 7. Re: taking my first shot of Peg-intron > tonight > From: " Tobi Hale " <haletobi@...> > 8. Re: taking my first shot of Peg-intron > tonight > From: " Tobi Hale " <haletobi@...> > 9. Re: Missy and China > From: Sandy Booton <ibsandy77@...> > 10. liver biopsy > From: " isy1214 " <isy1214@...> > 11. Re: taking my first shot of Peg-intron > tonight > From: theemoculli@... > 12. Re: liver biopsy > From: theemoculli@... > 13. Re: Re: Missy and China > From: Elliott > <angelmissie2000@...> > 14. Re: taking my first shot of Peg-intron > tonight > From: " Marilyn " > <MarilynWilkinson@...> > 15. Re: liver biopsy > From: " Marilyn " > <MarilynWilkinson@...> > 16. Re: Re: Missy and China > From: " Marilyn " > <MarilynWilkinson@...> > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Sat, 27 Jul 2002 01:34:16 -0700 (PDT) > From: xxx ooo <spiria_spirit@...> > Subject: Re: taking my first shot of Peg-intron > tonight > > > Also make sure you eat something healthy and I think > according to you Drs advise you can take 2 tylonal > or advil before injection to help with flu like > symptoms. I always took mine in the evening so I > would sleep through allot of it. But make sure > until you know how you react, you have every thing > you need handy and nothing planned. Dana > Marilyn wrote:I'm on the list and waiting for my > number to come up. Did you sign up with Be in > Charge at Schering? They have a 24/7 support number > to call - 1-880-437-2608. You can call any time to > be a part of it. The nurse I talked to gave me all > sorts of tips that patients share with her about > taking the shots. Some take a hot bath first, so > the needle goes in easier, some let the alcohol dry > completely before injecting so the shot doesn't > sting, some drink a big glass of water right before > and right after - they say the side-effects are > less. I'm sure there are lots of people on this > list who can give you tips, mine are just hearsay at > this point. Anyway, they are so nice, I'm sure > whoever you talk to will walk you through and stay > on the phone while you do it for the first time. I > wish you all the best. > > Marilyn > Re: taking my > first shot of Peg-intron tonight > > > God might have to kick my ass to get this first > shot over with. > I just read all the literture that comes with it. > I dont see this hapeneing this weekend. > I'm chickening out real fast > > > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Israel, Keep thinking positive. I had not done drugs since the early 80's and went to being an occasional drinker in the early 90's and was not diagnosed with HepC till 1997. What a shock. The years do catch up to you and treatment is hell. But hopefully you will be one of the lucky stitistics that frees yourself from it. And keep remembering all you have to live for. God has already forgiven you for your past. Dana israel gonzalez wrote: thanks for replys to my last post concerning the liver biopsy. i haven't gotten back the results back yet. in answer to your question marylin i wasn't put out during my procedure they just numbed my side. i am seeing a hepatologist i'm due to find out my results on friday. i'm very anxious and scared about all the possibilities that may come my way. let's just say that the results r against me. in my state of mind i am expecting the worst because of my past behaviors. when it came to abusing my body i didn't care what i did now i'm paying the consequenses. i " m working very hard at staying clean but now i feel that i am taking a step backwards and it sucks. the last thing that i want to do is to drink and drug again. the way i feel right now it doesn't sound like a bad idea. this is just a feeling. i have to much live for now. i have a son and a wife that r very dear to me and that i love very much. it would be very selfish of me to kill my pain and give them pain. i need all the support i can get so i hope that u and other members will keep posting so that we can support each other through this maddness. israel <spiria_spirit@...> > 3. Re: taking my first shot of Peg-intron > tonight > From: theemoculli@... > 4. Re: taking my first shot of Peg-intron > tonight > From: theemoculli@... > 5. sleeping > From: d25woods > 6. Re: sleeping > From: theemoculli@... > 7. Re: taking my first shot of Peg-intron > tonight > From: " Tobi Hale " <haletobi@...> > 8. Re: taking my first shot of Peg-intron > tonight > From: " Tobi Hale " <haletobi@...> > 9. Re: Missy and China > From: Sandy Booton <ibsandy77@...> > 10. liver biopsy > From: " isy1214 " <isy1214@...> > 11. Re: taking my first shot of Peg-intron > tonight > From: theemoculli@... > 12. Re: liver biopsy > From: theemoculli@... > 13. Re: Re: Missy and China > From: Elliott > <angelmissie2000@...> > 14. Re: taking my first shot of Peg-intron > tonight > From: " Marilyn " > <MarilynWilkinson@...> > 15. Re: liver biopsy > From: " Marilyn " > <MarilynWilkinson@...> > 16. Re: Re: Missy and China > From: " Marilyn " > <MarilynWilkinson@...> > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Sat, 27 Jul 2002 01:34:16 -0700 (PDT) > From: xxx ooo <spiria_spirit@...> > Subject: Re: taking my first shot of Peg-intron > tonight > > > Also make sure you eat something healthy and I think > according to you Drs advise you can take 2 tylonal > or advil before injection to help with flu like > symptoms. I always took mine in the evening so I > would sleep through allot of it. But make sure > until you know how you react, you have every thing > you need handy and nothing planned. Dana > Marilyn wrote:I'm on the list and waiting for my > number to come up. Did you sign up with Be in > Charge at Schering? They have a 24/7 support number > to call - 1-880-437-2608. You can call any time to > be a part of it. The nurse I talked to gave me all > sorts of tips that patients share with her about > taking the shots. Some take a hot bath first, so > the needle goes in easier, some let the alcohol dry > completely before injecting so the shot doesn't > sting, some drink a big glass of water right before > and right after - they say the side-effects are > less. I'm sure there are lots of people on this > list who can give you tips, mine are just hearsay at > this point. Anyway, they are so nice, I'm sure > whoever you talk to will walk you through and stay > on the phone while you do it for the first time. I > wish you all the best. > > Marilyn > Re: taking my > first shot of Peg-intron tonight > > > God might have to kick my ass to get this first > shot over with. > I just read all the literture that comes with it. > I dont see this hapeneing this weekend. > I'm chickening out real fast > > > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 fish and a very small portion of red meat only if it's extremely lean. and that's my cross.....I love a big fat marbled steak seared w/baked......smothered.....had 1 at my friend's father's wedding.It was the best steak I've ever had. That was last August.lo-fat milk and cut back on cheese. If you gradually change your habits swich breads first....buy more fresh veggies and EAT them....you'll not feel like it's so awful. Fish is supose to be the leanest meat. not fried Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 fish and a very small portion of red meat only if it's extremely lean. and that's my cross.....I love a big fat marbled steak seared w/baked......smothered.....had 1 at my friend's father's wedding.It was the best steak I've ever had. That was last August.lo-fat milk and cut back on cheese. If you gradually change your habits swich breads first....buy more fresh veggies and EAT them....you'll not feel like it's so awful. Fish is supose to be the leanest meat. not fried Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Are you saying you eat no meat at all? No cheese? No spices? No sweets? Princess www.studioreflections.com Re: Digest Number 126 Isreal, I was petrified to see my results. The way the doctor explained them.....I THOUGHT I was near the transplant list! NOT SO! I asked for a copy of my records to hand carry to a second opinion appointment. Even when I read the results.....I didnt fully understand what it meant. I bought several books on the liver and Hepatitis c. Like Dolans' Hepatitis C Handbook, and Dr. Cabot's The Healthy Liver and Bowel Book. Once I resigned myself that death wasn't imminent, I studied what I should and shouldn't eat. What helps the liver regenerate and what is hard work for the liver to process. Selenium is a good vitiamin and Milkthistle a good herb.....there are many more, but I'm giving you a brief good/bad so you know what you eat makes a difference. Animal fats are hard, but fats from nuts and avacados are easier on the liver. Peanuts can carry an organisim from the ground that can kill us, and potatoe skins can have concentrated pesticides from farming as can fruit from trees.....so peel them!!!! unless you grow them! Beets are really good for the liver......and juicing fruits and veggies take the processing job away from the liver so it gets a good healthy dose of nutritition......if you are concerned about waste.....use the veggie left overs in soup. A good potent anti oxident is good too. It's become a matter of feeding my liver now, rather that eating for the joy of something delicious to you. Think health food. raw fruits and veggies and whole grain everything. Quit 90% of sugar, salt and caffine......and the 10% will be enough to be a treat, and keep you from feeling too deprived. MOST OF ALL Drink as much DISTILLED water as you can, when you can. If it has preservatives or additives that aren't 100% mother nature....pass. Keep the eggs down to 4 a week and if you HAVE to fry it.....blot as much grease off as possible. I allow myself bacon once every 2 weeks.....or I'd be desperate!..... All this is your decision, and I'd rather you research the info than take my word for it. I do know my liver was swollen when I had the biopsy, and 2 months later after doing everything in this letter.......and a whole lot more......the swelling was down so much that the doc asked if my liver wasn't swollen last time I was in. I didn't explain to him my diet change because when I asked him previously....he said my diet was not a concern........which is why I'm switching Dr.s.......EVERYTHING you comsume will affect your liver for the good, or the bad.......and that includes breathing fumes, smoking, paint and chemicals......yard pesticides and herbacides......the dog or cats flea shampoo....your skin asorbs it and your liver gets it out. It is your filter. Without adequate amounts of WATER, you liver must clean out what your kidneys dont..... Oh yeah, after reading everything I could on the liver and what it does and how it does it, and hep-c....I found out I have almost no damage......I know alot of poeple who have cirrhoisi though....and they're doing great, now they know what to avoid, and what is good....and treatment. I'll keep you in my prayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Are you saying you eat no meat at all? No cheese? No spices? No sweets? Princess www.studioreflections.com Re: Digest Number 126 Isreal, I was petrified to see my results. The way the doctor explained them.....I THOUGHT I was near the transplant list! NOT SO! I asked for a copy of my records to hand carry to a second opinion appointment. Even when I read the results.....I didnt fully understand what it meant. I bought several books on the liver and Hepatitis c. Like Dolans' Hepatitis C Handbook, and Dr. Cabot's The Healthy Liver and Bowel Book. Once I resigned myself that death wasn't imminent, I studied what I should and shouldn't eat. What helps the liver regenerate and what is hard work for the liver to process. Selenium is a good vitiamin and Milkthistle a good herb.....there are many more, but I'm giving you a brief good/bad so you know what you eat makes a difference. Animal fats are hard, but fats from nuts and avacados are easier on the liver. Peanuts can carry an organisim from the ground that can kill us, and potatoe skins can have concentrated pesticides from farming as can fruit from trees.....so peel them!!!! unless you grow them! Beets are really good for the liver......and juicing fruits and veggies take the processing job away from the liver so it gets a good healthy dose of nutritition......if you are concerned about waste.....use the veggie left overs in soup. A good potent anti oxident is good too. It's become a matter of feeding my liver now, rather that eating for the joy of something delicious to you. Think health food. raw fruits and veggies and whole grain everything. Quit 90% of sugar, salt and caffine......and the 10% will be enough to be a treat, and keep you from feeling too deprived. MOST OF ALL Drink as much DISTILLED water as you can, when you can. If it has preservatives or additives that aren't 100% mother nature....pass. Keep the eggs down to 4 a week and if you HAVE to fry it.....blot as much grease off as possible. I allow myself bacon once every 2 weeks.....or I'd be desperate!..... All this is your decision, and I'd rather you research the info than take my word for it. I do know my liver was swollen when I had the biopsy, and 2 months later after doing everything in this letter.......and a whole lot more......the swelling was down so much that the doc asked if my liver wasn't swollen last time I was in. I didn't explain to him my diet change because when I asked him previously....he said my diet was not a concern........which is why I'm switching Dr.s.......EVERYTHING you comsume will affect your liver for the good, or the bad.......and that includes breathing fumes, smoking, paint and chemicals......yard pesticides and herbacides......the dog or cats flea shampoo....your skin asorbs it and your liver gets it out. It is your filter. Without adequate amounts of WATER, you liver must clean out what your kidneys dont..... Oh yeah, after reading everything I could on the liver and what it does and how it does it, and hep-c....I found out I have almost no damage......I know alot of poeple who have cirrhoisi though....and they're doing great, now they know what to avoid, and what is good....and treatment. I'll keep you in my prayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Israel, You are a really neat person, and I'm glad to meet you through this list. I'm sorry they didn't do a better job of keeping you out of pain with your biopsy. Now that you are on the list and can share experiences with us and we can with you, you can hold the doctor's feet to the fire the next time you need a procedure done. The doctors had me so scared that I was willing to do anything they said. I was so horrified that I had this disease, and they told me that I needed all this testing done ASAP. I expected the worst when I got my results, because they told me they believed I contracted this disease 40 years ago. And I am the type of person who expects the worst and is pleasantly surprised when the news isn't that bad. I cried like a baby when I got my results - the doctors said no cirrhosis, no fibrosis, no inflammation, and only a little bit of fat on my liver. My viral load was only 401,000. I have heard of levels up to 25 million. I was very lucky, but it doesn't mean I have to worry any less than anyone else. But it means absolutely nothing in the scheme of things, everyone responds differently to the treatment. It is just the luck of the draw. I have to tell you something. I loved what you said about your wife and your son, that to kill your pain would be to give them pain. It tells me a lot about your character. I am a lot older than you, and I have grown children. I cannot tell you the joy of going to my son's track meets in high school, seeing him enroll in college, the first one in my family, seeing him get his own apartment and live on his own as an adult. The best was last year, seeing him marry a girl who loves him as much as he loves her. I could have missed those things - my life was rotten, but I loved my children more than my own life, and they kept me going. My daughter didn't make such good choices, but she will be ok. She gave me 4 wonderful grandchildren, even if I wasn't ready to be a grandma at 40. Every day when I woke up, I made the first choice of the day to live for my children. When I took the focus off of myself, it wasn't so hard to do and it became easier every day. You are right, it is madness, and it is scary. That's what these lists and groups are for. We can help each other along the way. Love and prayers for you tonight, Marilyn Re: Digest Number 126 thanks for replys to my last post concerning the liver biopsy. i haven't gotten back the results back yet. in answer to your question marylin i wasn't put out during my procedure they just numbed my side. i am seeing a hepatologist i'm due to find out my results on friday. i'm very anxious and scared about all the possibilities that may come my way. let's just say that the results r against me. in my state of mind i am expecting the worst because of my past behaviors. when it came to abusing my body i didn't care what i did now i'm paying the consequenses. i " m working very hard at staying clean but now i feel that i am taking a step backwards and it sucks. the last thing that i want to do is to drink and drug again. the way i feel right now it doesn't sound like a bad idea. this is just a feeling. i have to much live for now. i have a son and a wife that r very dear to me and that i love very much. it would be very selfish of me to kill my pain and give them pain. i need all the support i can get so i hope that u and other members will keep posting so that we can support each other through this maddness. israel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Israel, You are a really neat person, and I'm glad to meet you through this list. I'm sorry they didn't do a better job of keeping you out of pain with your biopsy. Now that you are on the list and can share experiences with us and we can with you, you can hold the doctor's feet to the fire the next time you need a procedure done. The doctors had me so scared that I was willing to do anything they said. I was so horrified that I had this disease, and they told me that I needed all this testing done ASAP. I expected the worst when I got my results, because they told me they believed I contracted this disease 40 years ago. And I am the type of person who expects the worst and is pleasantly surprised when the news isn't that bad. I cried like a baby when I got my results - the doctors said no cirrhosis, no fibrosis, no inflammation, and only a little bit of fat on my liver. My viral load was only 401,000. I have heard of levels up to 25 million. I was very lucky, but it doesn't mean I have to worry any less than anyone else. But it means absolutely nothing in the scheme of things, everyone responds differently to the treatment. It is just the luck of the draw. I have to tell you something. I loved what you said about your wife and your son, that to kill your pain would be to give them pain. It tells me a lot about your character. I am a lot older than you, and I have grown children. I cannot tell you the joy of going to my son's track meets in high school, seeing him enroll in college, the first one in my family, seeing him get his own apartment and live on his own as an adult. The best was last year, seeing him marry a girl who loves him as much as he loves her. I could have missed those things - my life was rotten, but I loved my children more than my own life, and they kept me going. My daughter didn't make such good choices, but she will be ok. She gave me 4 wonderful grandchildren, even if I wasn't ready to be a grandma at 40. Every day when I woke up, I made the first choice of the day to live for my children. When I took the focus off of myself, it wasn't so hard to do and it became easier every day. You are right, it is madness, and it is scary. That's what these lists and groups are for. We can help each other along the way. Love and prayers for you tonight, Marilyn Re: Digest Number 126 thanks for replys to my last post concerning the liver biopsy. i haven't gotten back the results back yet. in answer to your question marylin i wasn't put out during my procedure they just numbed my side. i am seeing a hepatologist i'm due to find out my results on friday. i'm very anxious and scared about all the possibilities that may come my way. let's just say that the results r against me. in my state of mind i am expecting the worst because of my past behaviors. when it came to abusing my body i didn't care what i did now i'm paying the consequenses. i " m working very hard at staying clean but now i feel that i am taking a step backwards and it sucks. the last thing that i want to do is to drink and drug again. the way i feel right now it doesn't sound like a bad idea. this is just a feeling. i have to much live for now. i have a son and a wife that r very dear to me and that i love very much. it would be very selfish of me to kill my pain and give them pain. i need all the support i can get so i hope that u and other members will keep posting so that we can support each other through this maddness. israel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 To & - - love your fund raising idea. Are you Brit? Tapioca wouldn't be my first choice as an american boy-- perhaps jello or choc pudding or something. May be just personal taste. Welcome back. - I agree with others that I wouldn't take this as after-effects so much as continued working through of tissue levels. I recall Wheldon noting that after immune cells get cleared (he was referring to clearing by flagyl of immune cells infected with Chlamydia pneumonia) they start functioning again, and people have herx and immune reactions long after the flagyl pulse is stopped. Also, he mentions the cycling of each organism through it's phases (where it then gets killed by different agents you are taking) has it's own cycling and periodicity. So I'd be inclined to stay with it until you dont have reactions. The goal in most treatments is to work until you aren't getting reactions, then gradually use pulsed treatments, extending the time between them until you are sure you have gotten any residual reservoirs of organisms. My reference point on this is the Cpn protocal by Wheldon. Jim Quote Link to comment Share on other sites More sharing options...
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