Guest guest Posted July 28, 2006 Report Share Posted July 28, 2006 Cat, go back and read the messages that have been posted recently. We have been talking about all the concerns and stuff of having scs done. there is a lot of info in those posts. They should help a great deal and maybe make you feel a little better. If there are any questions that weren't answered then ask, ask, ask. We'll be happy to help. Good luck. Ruth > > I have a doctors appointment tomorrow and I'm a bit nervous. The last > appointment the psychologist suggested a spinal cord stimulator. That > is what I had been hoping for all this time. Now I am a bit scared that > my hopes will come true. I have concerns about the surgery, will it > help, how long will I be out of commission, what to expect, etc. I am > sure that it seems as if I am rambling but all these thoughts are > cluttering my brain. If anyone has any answers to these questions I > would appreciate any information I can get....Thanks, Cat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 just put one foot in front of the other...take it a day at a time and remember to breathe! oct is comming quickly and wait til u talk w/the expert.enjoy your baby,the sunshine and all the other blessings in your life.were here for u!, laurie saram22406 <saram22406@...> wrote: hello- I am new to this group, not sure where to begin or what may be going on- early in July I has swelling on my jawline when I would eat, wierd- so I went to pcp- ordered blood work to make sure things were okay- came back with a RF factor of 75- my ESR rate was 5, so she says I have RA, referred me to a rhummy doctor- can't get in until October. so I have been doing research online- which is pretty scary when you see the complications of what RA can do...I do not have any of the other symptoms that are listed on line and feel fine- so I am so confused- I am 30 years old and I have an 18 month old son, and we were thinking of having another soon, but now I don't know what to do or think, I keep having thoughts of how my life is going to change... glad to have found this group, and if anyone has any feedback as to how high RA factors are and what symptoms you were having that led you to the doctor would be great. just feeling a bit overwhelemed with this news- have confided with my husband but no one else until I see the rhummy doctor so I am feeling a bit alone about all of this... thanks in advance for any feedback! Sara u know i love ya...right? laurie --------------------------------- Ready for the edge of your seat? Check out tonight's top picks on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 hello- I am new to this group, not sure where to begin or what may be > going on- early in July I has swelling on my jawline when I would eat, > wierd- so I went to pcp- ordered blood work to make sure things were > okay- came back with a RF factor of 75- my ESR rate was 5, so she says > I have RA, referred me to a rhummy doctor- can't get in until October. > so I have been doing research online- which is pretty scary when you > see the complications of what RA can do...I do not have any of the > other symptoms that are listed on line and feel fine- so I am so > confused- I am 30 years old and I have an 18 month old son, and we > were thinking of having another soon, but now I don't know what to do > or think, I keep having thoughts of how my life is going to change... > glad to have found this group, and if anyone has any feedback as to > how high RA factors are and what symptoms you were having that led you > to the doctor would be great. just feeling a bit overwhelemed with > this news- have confided with my husband but no one else until I see > the rhummy doctor so I am feeling a bit alone about all of this... > thanks in advance for any feedback! > > Sara > > > > > > > u know i love ya...right? laurie > > > --------------------------------- > Ready for the edge of your seat? Check out tonight's top picks on TV. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Sara, A rheumatologist will be better equipped to give you a correct diagnosis than a PCP. Diseases other than RA sometimes increase the RF factor. But no matter what the diagnosis, just remember that there are lots of new medications to help control the diseases. I have RA, but can hardly tell it because my medication is helping me so much. So try to hang in there until October. Sometimes people have to wait much longer than that to get in to see a rheumatologist. Good luck! Sue On Thursday, September 6, 2007, at 09:16 AM, saram22406 wrote: > hello- I am new to this group, not sure where to begin or what may be > going on- early in July I has swelling on my jawline when I would eat, > wierd- so I went to pcp- ordered blood work to make sure things were > okay- came back with a RF factor of 75- my ESR rate was 5, so she says > I have RA, referred me to a rhummy doctor- can't get in until October. > so I have been doing research online- which is pretty scary when you > see the complications of what RA can do...I do not have any of the > other symptoms that are listed on line and feel fine- so I am so > confused- I am 30 years old and I have an 18 month old son, and we > were thinking of having another soon, but now I don't know what to do > or think, I keep having thoughts of how my life is going to change... > glad to have found this group, and if anyone has any feedback as to > how high RA factors are and what symptoms you were having that led you > to the doctor would be great. just feeling a bit overwhelemed with > this news- have confided with my husband but no one else until I see > the rhummy doctor so I am feeling a bit alone about all of this... > thanks in advance for any feedback! > > Sara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Hello Sue, Welcome to the Group, your young so stay active, being active is a big thing with RA, I was diagnosed about 11 years ago, I am now 47 years old, The disease progresses, but the drugs do slow it down and help. I have a mind set that I am not going to let it beat me or keep me from doing things, even thow I know it has already limited me in some things. Stay positive, this group is so wonderful for information and support, is wonderful, she finds alot of info for the group. Let us know how your RA visit goes, Make a list of question for the Dr. before you go. Jean Sue <marysue@...> wrote: Sara, A rheumatologist will be better equipped to give you a correct diagnosis than a PCP. Diseases other than RA sometimes increase the RF factor. But no matter what the diagnosis, just remember that there are lots of new medications to help control the diseases. I have RA, but can hardly tell it because my medication is helping me so much. So try to hang in there until October. Sometimes people have to wait much longer than that to get in to see a rheumatologist. Good luck! Sue On Thursday, September 6, 2007, at 09:16 AM, saram22406 wrote: > hello- I am new to this group, not sure where to begin or what may be > going on- early in July I has swelling on my jawline when I would eat, > wierd- so I went to pcp- ordered blood work to make sure things were > okay- came back with a RF factor of 75- my ESR rate was 5, so she says > I have RA, referred me to a rhummy doctor- can't get in until October. > so I have been doing research online- which is pretty scary when you > see the complications of what RA can do...I do not have any of the > other symptoms that are listed on line and feel fine- so I am so > confused- I am 30 years old and I have an 18 month old son, and we > were thinking of having another soon, but now I don't know what to do > or think, I keep having thoughts of how my life is going to change... > glad to have found this group, and if anyone has any feedback as to > how high RA factors are and what symptoms you were having that led you > to the doctor would be great. just feeling a bit overwhelemed with > this news- have confided with my husband but no one else until I see > the rhummy doctor so I am feeling a bit alone about all of this... > thanks in advance for any feedback! > > Sara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 You mean Sara; I was just responding to her email. I'm not 30; I'm 68, LOL. Sue On Thursday, September 6, 2007, at 07:40 PM, Nettleton wrote: > Hello Sue, > Welcome to the Group, your young so stay active, being active is a > big thing with RA, I was diagnosed about 11 years ago, I am now 47 > years old, The disease progresses, but the drugs do slow it down and > help. I have a mind set that I am not going to let it beat me or keep > me from doing things, even thow I know it has already limited me in > some things. Stay positive, this group is so wonderful for information > and support, is wonderful, she finds alot of info for the group. > Let us know how your RA visit goes, Make a list of question for the > Dr. before you go. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 oops, did I mention I might have some disfunctional brain cells also, SOOOO sorry Sue <marysue@...> wrote: You mean Sara; I was just responding to her email. I'm not 30; I'm 68, LOL. Sue On Thursday, September 6, 2007, at 07:40 PM, Nettleton wrote: > Hello Sue, > Welcome to the Group, your young so stay active, being active is a > big thing with RA, I was diagnosed about 11 years ago, I am now 47 > years old, The disease progresses, but the drugs do slow it down and > help. I have a mind set that I am not going to let it beat me or keep > me from doing things, even thow I know it has already limited me in > some things. Stay positive, this group is so wonderful for information > and support, is wonderful, she finds alot of info for the group. > Let us know how your RA visit goes, Make a list of question for the > Dr. before you go. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 oops, did I mention I might have some disfunctional brain cells also, SOOOO sorry Sue <marysue@...> wrote: You mean Sara; I was just responding to her email. I'm not 30; I'm 68, LOL. Sue On Thursday, September 6, 2007, at 07:40 PM, Nettleton wrote: > Hello Sue, > Welcome to the Group, your young so stay active, being active is a > big thing with RA, I was diagnosed about 11 years ago, I am now 47 > years old, The disease progresses, but the drugs do slow it down and > help. I have a mind set that I am not going to let it beat me or keep > me from doing things, even thow I know it has already limited me in > some things. Stay positive, this group is so wonderful for information > and support, is wonderful, she finds alot of info for the group. > Let us know how your RA visit goes, Make a list of question for the > Dr. before you go. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Sara, I am realativly new to the whole RA thing as well. If nothing else I have learned by going through the diagnostic portion of this disease is this: be patient as you can and be assertive when talking to your doctors. Remember that no matter what your insurance company says, doctors work for you, not the reverse. RA, Lupus, Hashimotos, and all the other dreaded autoimmune diseases all present differently to each individual and many times diagnosis is a matter of ruling out than making a difinitive decision. Good luck to you and I hope you receive some answers soon! Quote Link to comment Share on other sites More sharing options...
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