Re: Re: Hip pain /Â bursitis

[Guest guest]

Sadly that is true, but sometimes you 'gotta do what ya gotta do' until

something better comes along. I think that the best thing is rest, with gentle

movement and time, is the answer. I am on pred and plaq and alieve for the RA

and they helped my tenis elbow (tendenitis?) and shoulder bursitis, but rest is

what finally allowed both to get better. I don't like the steriods either.

Did, after the 3 month of relief, the extreme pain resume? Mine finally gave up

and just comes 'round occassionally.

--

Leona,

We wish you all the best,

---- onecapricorn2003 wrote:

> Leona, I've tried maybe on three occassions taking the anti

> infoamoratory injection (Steriod), and it help for a good three

> months, but my doctor recommends that it's not the best choice, as it

> causes damage as well, and skin discoloration.

[Guest guest]

Hello all you folks. I'm new to this and not sure how it works...but I sure need

someone to talk to.

I was diagnosed with RA in Oct 2006. I have been fighting the pain and " self

medicating " for over 10 years. Everytime I would tell my doctor my body hurt he

just looked at me. As the years have gone by I have become very insecure about

how I feel. " is it all in my head " ? type stuff. " Am I making this up to get

drugs " Finally a new doctor tested me for RA and has been treating me

appropriately. I live in a very small town. Several people I go to church with

are aware of all the meds I take. I feel that they look at me with " veiled

eyes " . I am treated differently now. As you can see I am realy feeling sorry

for myself. My husband isn't very supportive either. who can blame him. His

partner lays on the couch more than plays. If our roles were reversed I don't

know if I would do any better. I hate beeng in pain all the time I hate the

sluggish feeling for the pain medication.

If I don't take enough pain meds before bed I wake up in the morn with burning

through out my body. Is this " normal " ?????

Please, someone send me some encouragement and advice.

Thanks, Sandi

Leona <leehen@...> wrote:

You certainly have my sympathy. I know how it is to be unable to sleep. I have

my days and nights just about turned around. I would imagine that you are in a

state of fatigue most of the time from the lack of rest. I've started back doing

my daily exercises after having had a couple of months of flare after flair, but

once in a while I have a pretty good day. I usually get up arpund 8 am, get some

of my chores done and at least by 10:30 try to take an hour of the exercise DVD

" Take Controlwith Exercise " and I am pretty well worn out, but strangely feel

better.

As you know, with RA and other off shoots of the Dancing desease,(it dances all

over ones body like the dance of a wind sprite, hitting where ever it has a

mind, and at times seeming to be as vicipus as a tornado) it is difficult to get

a straight 8 hours of sleep, I have to take mine when I can, day or night. Like

you, it has attacked my fingers violently swelling the knuckles, twisting the

fingers.. but it is strange, when the inflamation cools down, the ugly joints

are no longer sore, just stiff and hard to control. The inflamation progressed

to the wrists and has had a ball there. It likes to play around with my ankles

and toes and knees but so far has ignored my elbows but did a bit with my rib

cage and back muscles.

I get the the RA and periferal neuropathy symptoms mixed up and don't know which

is which or if it is just the gout popping up, but it makes no difference what

it is called, the pain is the same. I am lucky, though, as I am retired, so my

time is my own and I can rest when I need to. My heart goes out to those of you

who are not so fortunate and are still trying too take care of their families

and hold up a job. God Bless you. I wish you a good nights sleep. Sometimes I

use a wash of rubbing alcohol in which I have soaked ginger root (ground) and

comfrey and a tiny bit of cayenne and rub it on the afflicted area and it brings

quite a bit of relief. Don't know where I'd be without it.

been where you are, but have spells of better between where you are and where I

am before i get back to where you are. Isn't this dancing desease

unpridictable??lol

sorrry to go on and on..just like the RA..got started...can't stop..

lee/leona

> went else where, like mainly I have inflamation in my fingers and

> wrists, and lately my upper arms have been aching like crazy,

> especially at night.....I practically cry myself to sleep.

> Currently Im taking MTX, sulindex, folic acid, azathoraphine and

> philocorpin, but noticed the med's don't seem to last 24 hrs...so I

> suffer stiffness till it's time for the next dose.

>

>

[Guest guest]

Hi Sandi,

I know it can be so discouraging it took me 5 months to get to a med that

works. My doctor started with the less side effect drugs, but did not work.

After I flared for three weeks I called my doctor who saw me right away he put

me on Methotrexate and pred. I started feeling better with the pred and getting

some release with the Methotrexate for part of the week, but it takes 6+ weeks

for it to be totally up to speed. I was a runner and weight lifter before this

disease, I ride horses and do not know how long that will last if meds do not

work. My mind is still the runner and weight lifter but my body can no longer

deliver. So now I have to redefine myself which o.k. haven't done that yet but

I am working on it.

Hang in there Sandi it is hard when people have no idea the pain you are going

through that is the bad thing but we here and we totally get it each day - every

minute. If you need support we are here for you!!

Marsha

Re: Re: [ ] Hip pain /Â bursitis

Hello all you folks. I'm new to this and not sure how it works...but I sure need

someone to talk to.

I was diagnosed with RA in Oct 2006. I have been fighting the pain and " self

medicating " for over 10 years. Everytime I would tell my doctor my body hurt he

just looked at me. As the years have gone by I have become very insecure about

how I feel. " is it all in my head " ? type stuff. " Am I making this up to get

drugs " Finally a new doctor tested me for RA and has been treating me

appropriately. I live in a very small town. Several people I go to church with

are aware of all the meds I take. I feel that they look at me with " veiled

eyes " . I am treated differently now. As you can see I am realy feeling sorry for

myself. My husband isn't very supportive either. who can blame him. His partner

lays on the couch more than plays. If our roles were reversed I don't know if I

would do any better. I hate beeng in pain all the time I hate the sluggish

feeling for the pain medication.

If I don't take enough pain meds before bed I wake up in the morn with burning

through out my body. Is this " normal " ?????

Please, someone send me some encouragement and advice.

Thanks, Sandi

Leona <leehensuddenlink (DOT) net> wrote:

You certainly have my sympathy. I know how it is to be unable to sleep. I have

my days and nights just about turned around. I would imagine that you are in a

state of fatigue most of the time from the lack of rest. I've started back doing

my daily exercises after having had a couple of months of flare after flair, but

once in a while I have a pretty good day. I usually get up arpund 8 am, get some

of my chores done and at least by 10:30 try to take an hour of the exercise DVD

" Take Controlwith Exercise " and I am pretty well worn out, but strangely feel

better.

As you know, with RA and other off shoots of the Dancing desease,(it dances all

over ones body like the dance of a wind sprite, hitting where ever it has a

mind, and at times seeming to be as vicipus as a tornado) it is difficult to get

a straight 8 hours of sleep, I have to take mine when I can, day or night. Like

you, it has attacked my fingers violently swelling the knuckles, twisting the

fingers.. but it is strange, when the inflamation cools down, the ugly joints

are no longer sore, just stiff and hard to control. The inflamation progressed

to the wrists and has had a ball there. It likes to play around with my ankles

and toes and knees but so far has ignored my elbows but did a bit with my rib

cage and back muscles.

I get the the RA and periferal neuropathy symptoms mixed up and don't know which

is which or if it is just the gout popping up, but it makes no difference what

it is called, the pain is the same. I am lucky, though, as I am retired, so my

time is my own and I can rest when I need to. My heart goes out to those of you

who are not so fortunate and are still trying too take care of their families

and hold up a job. God Bless you. I wish you a good nights sleep. Sometimes I

use a wash of rubbing alcohol in which I have soaked ginger root (ground) and

comfrey and a tiny bit of cayenne and rub it on the afflicted area and it brings

quite a bit of relief. Don't know where I'd be without it.

been where you are, but have spells of better between where you are and where I

am before i get back to where you are. Isn't this dancing desease unpridictable?

?lol

sorrry to go on and on..just like the RA..got started...can' t stop..

lee/leona

> went else where, like mainly I have inflamation in my fingers and

> wrists, and lately my upper arms have been aching like crazy,

> especially at night.....I practically cry myself to sleep.

> Currently Im taking MTX, sulindex, folic acid, azathoraphine and

> philocorpin, but noticed the med's don't seem to last 24 hrs...so I

> suffer stiffness till it's time for the next dose.

>

>

[Guest guest]

I need to " Lay off the pills & learn

to live with the pain " !

This qoute sounds so like my hubby. But now he is getting OA in his knee's

and he is a little more understanding.

I agree with , we all have to just hang in there!

Joy

<llj1s@...> wrote:

You have my deepest sympathy - I too have felt the

" chill " of people I thought were my friends. I don't

know where they get the idea Methotrexate -

Sulfasalazin or Prednisone are Narcotics. One person

actually told me I need to " Lay off the pills & learn

to live with the pain " ! Another told me I was in need

of an intervention. If I could have made a fist I

would have popped them in the nose. So I told them of

a place on my body they could plant their lips.

My husband was so very understanding & sympathetic.

He lived with Osteoarthritis in his knees & back

problems for over 20 years & hip problems the last few

years of his life. He never once made me feel like I

was just being lazy. After working all day he would

help me with housework - shopping - making supper.

Plus he took me to all my doctor apts & if he thought

the doc wasn't doing enough he let the doc know.

Hang in there -

__________________________________________________________

Now that's room service! Choose from over 150,000 hotels

in 45,000 destinations on Travel to find your fit.

http://farechase./promo-generic-14795097

[Guest guest]

--

Leona, Lee, Jackie, Tvksi, Granny and Momma. We wish you all the best,

Join the crowd. We, here at RA support have been/are in the same boat, so any

time you want to get on the pity pot, join us<G> We all do at times and some

times it helps to blast off here and we don't mind 'cause we can complain here

and we all understand.

It is true that there is a lot of pain and there are as many ways to handle it

as there are people suffering from it. Don't let other folk's negative attitudes

bother you. You are not a hypochondriac and not imagining the pain. And, try not

to condemn them for their negative ness. They just don't know any better. If

some one asks me about it, I usually tell them That I'm doing better and that

they can find out a lot of information about it on the net. Some of my friends

who were a bit doubtful, since I have been going to Dr for 60 yrs trying to get

help, finally have a bit of compassion, at least. I don't want people feeling

sorry for me, just have a bit of cam passion, not condemning me as lazy. I even

tell some folks how some of you are in such dire circumstances so they realize

that this is a dilemma that effects a lot of people. I would tat I be alone,

however, as I do not feel good about other folks for being in this same boat.

The way I get it is that I got it, do what I can to keep as strong and healthy

as I can, hoping that things will get better and they do at times for which I am

thankful. I accept that I " got it " and like everyone else, I make each day as

good as I can by keeping my mind busy learning new things, working on my many

projects, and that way, I don't feel the pain as much...any way. not as much.

I made some of the best cookies today!! The best cookie recipe I found on the

net..or at least the best one that I had the nerve to try <g> cause my cooking

isn't one of my highest priority projects!

Also I had cooked a huge pot of mixed beans, lentils etc stuff and they left

that aggravating protein deposits in the pot, and it is so hard to scour out..I

started in on it and grumbles that there ought to be a better way, Lord, and it

just hit me that I use WD 40 to polish my stainless sink,...maybe it will get

the protein out of the stainless pot.. IT WORKS. There are a lot of things that

can make life easier to keep some of the stress off our aching joints. I think

we all ought to share our RA helper ideas. How about it? any one like to do

this? it's all about making the things we have to do easier.

get well, feel better, laugh a little, share a tip to work smarter.

Lee

---- Sandi Stillwell wrote:

> Hello all you folks. I'm new to this and not sure how it works...but I sure

need someone to talk to.

> I was diagnosed with RA in Oct 2006. I have been fighting the pain and " self

medicating " for over 10 years. Everytime I would tell my doctor my body hurt he

just looked at me. As the years have gone by I have become very insecure about

how I feel. " is it all in my head " ? type stuff. " Am I making this up to get

drugs " Finally a new doctor tested me for RA and has been treating me

appropriately. I live in a very small town. Several people I go to church with

are aware of all the meds I take. I feel that they look at me with " veiled

eyes " . I am treated differently now. As you can see I am realy feeling sorry for

myself. My husband isn't very supportive either. who can blame him. His partner

lays on the couch more than plays. If our roles were reversed I don't know if I

would do any better. I hate beeng in pain all the time I hate the sluggish

feeling for the pain medication.

> If I don't take enough pain meds before bed I wake up in the morn with burning

through out my body. Is this " normal " ?????

> Please, someone send me some encouragement and advice.

> Thanks, Sandi

>

[Guest guest]

--

Leona, Lee, Jackie, Tvksi, Granny and Momma. We wish you all the best,

Join the crowd. We, here at RA support have been/are in the same boat, so any

time you want to get on the pity pot, join us<G> We all do at times and some

times it helps to blast off here and we don't mind 'cause we can complain here

and we all understand.

It is true that there is a lot of pain and there are as many ways to handle it

as there are people suffering from it. Don't let other folk's negative attitudes

bother you. You are not a hypochondriac and not imagining the pain. And, try not

to condemn them for their negative ness. They just don't know any better. If

some one asks me about it, I usually tell them That I'm doing better and that

they can find out a lot of information about it on the net. Some of my friends

who were a bit doubtful, since I have been going to Dr for 60 yrs trying to get

help, finally have a bit of compassion, at least. I don't want people feeling

sorry for me, just have a bit of cam passion, not condemning me as lazy. I even

tell some folks how some of you are in such dire circumstances so they realize

that this is a dilemma that effects a lot of people. I would tat I be alone,

however, as I do not feel good about other folks for being in this same boat.

The way I get it is that I got it, do what I can to keep as strong and healthy

as I can, hoping that things will get better and they do at times for which I am

thankful. I accept that I " got it " and like everyone else, I make each day as

good as I can by keeping my mind busy learning new things, working on my many

projects, and that way, I don't feel the pain as much...any way. not as much.

I made some of the best cookies today!! The best cookie recipe I found on the

net..or at least the best one that I had the nerve to try <g> cause my cooking

isn't one of my highest priority projects!

Also I had cooked a huge pot of mixed beans, lentils etc stuff and they left

that aggravating protein deposits in the pot, and it is so hard to scour out..I

started in on it and grumbles that there ought to be a better way, Lord, and it

just hit me that I use WD 40 to polish my stainless sink,...maybe it will get

the protein out of the stainless pot.. IT WORKS. There are a lot of things that

can make life easier to keep some of the stress off our aching joints. I think

we all ought to share our RA helper ideas. How about it? any one like to do

this? it's all about making the things we have to do easier.

get well, feel better, laugh a little, share a tip to work smarter.

Lee

---- Sandi Stillwell wrote:

> Hello all you folks. I'm new to this and not sure how it works...but I sure

need someone to talk to.

> I was diagnosed with RA in Oct 2006. I have been fighting the pain and " self

medicating " for over 10 years. Everytime I would tell my doctor my body hurt he

just looked at me. As the years have gone by I have become very insecure about

how I feel. " is it all in my head " ? type stuff. " Am I making this up to get

drugs " Finally a new doctor tested me for RA and has been treating me

appropriately. I live in a very small town. Several people I go to church with

are aware of all the meds I take. I feel that they look at me with " veiled

eyes " . I am treated differently now. As you can see I am realy feeling sorry for

myself. My husband isn't very supportive either. who can blame him. His partner

lays on the couch more than plays. If our roles were reversed I don't know if I

would do any better. I hate beeng in pain all the time I hate the sluggish

feeling for the pain medication.

> If I don't take enough pain meds before bed I wake up in the morn with burning

through out my body. Is this " normal " ?????

> Please, someone send me some encouragement and advice.

> Thanks, Sandi

>

[Guest guest]

--

Leona, Lee, Jackie, Tvksi, Granny and Momma. We wish you all the best,

Join the crowd. We, here at RA support have been/are in the same boat, so any

time you want to get on the pity pot, join us<G> We all do at times and some

times it helps to blast off here and we don't mind 'cause we can complain here

and we all understand.

It is true that there is a lot of pain and there are as many ways to handle it

as there are people suffering from it. Don't let other folk's negative attitudes

bother you. You are not a hypochondriac and not imagining the pain. And, try not

to condemn them for their negative ness. They just don't know any better. If

some one asks me about it, I usually tell them That I'm doing better and that

they can find out a lot of information about it on the net. Some of my friends

who were a bit doubtful, since I have been going to Dr for 60 yrs trying to get

help, finally have a bit of compassion, at least. I don't want people feeling

sorry for me, just have a bit of cam passion, not condemning me as lazy. I even

tell some folks how some of you are in such dire circumstances so they realize

that this is a dilemma that effects a lot of people. I would tat I be alone,

however, as I do not feel good about other folks for being in this same boat.

The way I get it is that I got it, do what I can to keep as strong and healthy

as I can, hoping that things will get better and they do at times for which I am

thankful. I accept that I " got it " and like everyone else, I make each day as

good as I can by keeping my mind busy learning new things, working on my many

projects, and that way, I don't feel the pain as much...any way. not as much.

I made some of the best cookies today!! The best cookie recipe I found on the

net..or at least the best one that I had the nerve to try <g> cause my cooking

isn't one of my highest priority projects!

Also I had cooked a huge pot of mixed beans, lentils etc stuff and they left

that aggravating protein deposits in the pot, and it is so hard to scour out..I

started in on it and grumbles that there ought to be a better way, Lord, and it

just hit me that I use WD 40 to polish my stainless sink,...maybe it will get

the protein out of the stainless pot.. IT WORKS. There are a lot of things that

can make life easier to keep some of the stress off our aching joints. I think

we all ought to share our RA helper ideas. How about it? any one like to do

this? it's all about making the things we have to do easier.

get well, feel better, laugh a little, share a tip to work smarter.

Lee

---- Sandi Stillwell wrote:

> Hello all you folks. I'm new to this and not sure how it works...but I sure

need someone to talk to.

> I was diagnosed with RA in Oct 2006. I have been fighting the pain and " self

medicating " for over 10 years. Everytime I would tell my doctor my body hurt he

just looked at me. As the years have gone by I have become very insecure about

how I feel. " is it all in my head " ? type stuff. " Am I making this up to get

drugs " Finally a new doctor tested me for RA and has been treating me

appropriately. I live in a very small town. Several people I go to church with

are aware of all the meds I take. I feel that they look at me with " veiled

eyes " . I am treated differently now. As you can see I am realy feeling sorry for

myself. My husband isn't very supportive either. who can blame him. His partner

lays on the couch more than plays. If our roles were reversed I don't know if I

would do any better. I hate beeng in pain all the time I hate the sluggish

feeling for the pain medication.

> If I don't take enough pain meds before bed I wake up in the morn with burning

through out my body. Is this " normal " ?????

> Please, someone send me some encouragement and advice.

> Thanks, Sandi

>

[Guest guest]

--

Leona, Lee, Jackie, Tvksi, Granny and Momma. We wish you all the best,

Join the crowd. We, here at RA support have been/are in the same boat, so any

time you want to get on the pity pot, join us<G> We all do at times and some

times it helps to blast off here and we don't mind 'cause we can complain here

and we all understand.

It is true that there is a lot of pain and there are as many ways to handle it

as there are people suffering from it. Don't let other folk's negative attitudes

bother you. You are not a hypochondriac and not imagining the pain. And, try not

to condemn them for their negative ness. They just don't know any better. If

some one asks me about it, I usually tell them That I'm doing better and that

they can find out a lot of information about it on the net. Some of my friends

who were a bit doubtful, since I have been going to Dr for 60 yrs trying to get

help, finally have a bit of compassion, at least. I don't want people feeling

sorry for me, just have a bit of cam passion, not condemning me as lazy. I even

tell some folks how some of you are in such dire circumstances so they realize

that this is a dilemma that effects a lot of people. I would tat I be alone,

however, as I do not feel good about other folks for being in this same boat.

The way I get it is that I got it, do what I can to keep as strong and healthy

as I can, hoping that things will get better and they do at times for which I am

thankful. I accept that I " got it " and like everyone else, I make each day as

good as I can by keeping my mind busy learning new things, working on my many

projects, and that way, I don't feel the pain as much...any way. not as much.

I made some of the best cookies today!! The best cookie recipe I found on the

net..or at least the best one that I had the nerve to try <g> cause my cooking

isn't one of my highest priority projects!

Also I had cooked a huge pot of mixed beans, lentils etc stuff and they left

that aggravating protein deposits in the pot, and it is so hard to scour out..I

started in on it and grumbles that there ought to be a better way, Lord, and it

just hit me that I use WD 40 to polish my stainless sink,...maybe it will get

the protein out of the stainless pot.. IT WORKS. There are a lot of things that

can make life easier to keep some of the stress off our aching joints. I think

we all ought to share our RA helper ideas. How about it? any one like to do

this? it's all about making the things we have to do easier.

get well, feel better, laugh a little, share a tip to work smarter.

Lee

---- Sandi Stillwell wrote:

> Hello all you folks. I'm new to this and not sure how it works...but I sure

need someone to talk to.

> I was diagnosed with RA in Oct 2006. I have been fighting the pain and " self

medicating " for over 10 years. Everytime I would tell my doctor my body hurt he

just looked at me. As the years have gone by I have become very insecure about

how I feel. " is it all in my head " ? type stuff. " Am I making this up to get

drugs " Finally a new doctor tested me for RA and has been treating me

appropriately. I live in a very small town. Several people I go to church with

are aware of all the meds I take. I feel that they look at me with " veiled

eyes " . I am treated differently now. As you can see I am realy feeling sorry for

myself. My husband isn't very supportive either. who can blame him. His partner

lays on the couch more than plays. If our roles were reversed I don't know if I

would do any better. I hate beeng in pain all the time I hate the sluggish

feeling for the pain medication.

> If I don't take enough pain meds before bed I wake up in the morn with burning

through out my body. Is this " normal " ?????

> Please, someone send me some encouragement and advice.

> Thanks, Sandi

>

[Guest guest]

--

Leona, Lee, Jackie, Tvksi, Granny and Momma. We wish you all the best,

Join the crowd. We, here at RA support have been/are in the same boat, so any

time you want to get on the pity pot, join us<G> We all do at times and some

times it helps to blast off here and we don't mind 'cause we can complain here

and we all understand.

It is true that there is a lot of pain and there are as many ways to handle it

as there are people suffering from it. Don't let other folk's negative attitudes

bother you. You are not a hypochondriac and not imagining the pain. And, try not

to condemn them for their negative ness. They just don't know any better. If

some one asks me about it, I usually tell them That I'm doing better and that

they can find out a lot of information about it on the net. Some of my friends

who were a bit doubtful, since I have been going to Dr for 60 yrs trying to get

help, finally have a bit of compassion, at least. I don't want people feeling

sorry for me, just have a bit of cam passion, not condemning me as lazy. I even

tell some folks how some of you are in such dire circumstances so they realize

that this is a dilemma that effects a lot of people. I would tat I be alone,

however, as I do not feel good about other folks for being in this same boat.

The way I get it is that I got it, do what I can to keep as strong and healthy

as I can, hoping that things will get better and they do at times for which I am

thankful. I accept that I " got it " and like everyone else, I make each day as

good as I can by keeping my mind busy learning new things, working on my many

projects, and that way, I don't feel the pain as much...any way. not as much.

I made some of the best cookies today!! The best cookie recipe I found on the

net..or at least the best one that I had the nerve to try <g> cause my cooking

isn't one of my highest priority projects!

Also I had cooked a huge pot of mixed beans, lentils etc stuff and they left

that aggravating protein deposits in the pot, and it is so hard to scour out..I

started in on it and grumbles that there ought to be a better way, Lord, and it

just hit me that I use WD 40 to polish my stainless sink,...maybe it will get

the protein out of the stainless pot.. IT WORKS. There are a lot of things that

can make life easier to keep some of the stress off our aching joints. I think

we all ought to share our RA helper ideas. How about it? any one like to do

this? it's all about making the things we have to do easier.

get well, feel better, laugh a little, share a tip to work smarter.

Lee

---- Sandi Stillwell wrote:

> Hello all you folks. I'm new to this and not sure how it works...but I sure

need someone to talk to.

> I was diagnosed with RA in Oct 2006. I have been fighting the pain and " self

medicating " for over 10 years. Everytime I would tell my doctor my body hurt he

just looked at me. As the years have gone by I have become very insecure about

how I feel. " is it all in my head " ? type stuff. " Am I making this up to get

drugs " Finally a new doctor tested me for RA and has been treating me

appropriately. I live in a very small town. Several people I go to church with

are aware of all the meds I take. I feel that they look at me with " veiled

eyes " . I am treated differently now. As you can see I am realy feeling sorry for

myself. My husband isn't very supportive either. who can blame him. His partner

lays on the couch more than plays. If our roles were reversed I don't know if I

would do any better. I hate beeng in pain all the time I hate the sluggish

feeling for the pain medication.

> If I don't take enough pain meds before bed I wake up in the morn with burning

through out my body. Is this " normal " ?????

> Please, someone send me some encouragement and advice.

> Thanks, Sandi

>

[Guest guest]

--

Leona, Lee, Jackie, Tvksi, Granny and Momma. We wish you all the best,

Join the crowd. We, here at RA support have been/are in the same boat, so any

time you want to get on the pity pot, join us<G> We all do at times and some

times it helps to blast off here and we don't mind 'cause we can complain here

and we all understand.

It is true that there is a lot of pain and there are as many ways to handle it

as there are people suffering from it. Don't let other folk's negative attitudes

bother you. You are not a hypochondriac and not imagining the pain. And, try not

to condemn them for their negative ness. They just don't know any better. If

some one asks me about it, I usually tell them That I'm doing better and that

they can find out a lot of information about it on the net. Some of my friends

who were a bit doubtful, since I have been going to Dr for 60 yrs trying to get

help, finally have a bit of compassion, at least. I don't want people feeling

sorry for me, just have a bit of cam passion, not condemning me as lazy. I even

tell some folks how some of you are in such dire circumstances so they realize

that this is a dilemma that effects a lot of people. I would tat I be alone,

however, as I do not feel good about other folks for being in this same boat.

The way I get it is that I got it, do what I can to keep as strong and healthy

as I can, hoping that things will get better and they do at times for which I am

thankful. I accept that I " got it " and like everyone else, I make each day as

good as I can by keeping my mind busy learning new things, working on my many

projects, and that way, I don't feel the pain as much...any way. not as much.

I made some of the best cookies today!! The best cookie recipe I found on the

net..or at least the best one that I had the nerve to try <g> cause my cooking

isn't one of my highest priority projects!

Also I had cooked a huge pot of mixed beans, lentils etc stuff and they left

that aggravating protein deposits in the pot, and it is so hard to scour out..I

started in on it and grumbles that there ought to be a better way, Lord, and it

just hit me that I use WD 40 to polish my stainless sink,...maybe it will get

the protein out of the stainless pot.. IT WORKS. There are a lot of things that

can make life easier to keep some of the stress off our aching joints. I think

we all ought to share our RA helper ideas. How about it? any one like to do

this? it's all about making the things we have to do easier.

get well, feel better, laugh a little, share a tip to work smarter.

Lee

---- Sandi Stillwell wrote:

> Hello all you folks. I'm new to this and not sure how it works...but I sure

need someone to talk to.

> I was diagnosed with RA in Oct 2006. I have been fighting the pain and " self

medicating " for over 10 years. Everytime I would tell my doctor my body hurt he

just looked at me. As the years have gone by I have become very insecure about

how I feel. " is it all in my head " ? type stuff. " Am I making this up to get

drugs " Finally a new doctor tested me for RA and has been treating me

appropriately. I live in a very small town. Several people I go to church with

are aware of all the meds I take. I feel that they look at me with " veiled

eyes " . I am treated differently now. As you can see I am realy feeling sorry for

myself. My husband isn't very supportive either. who can blame him. His partner

lays on the couch more than plays. If our roles were reversed I don't know if I

would do any better. I hate beeng in pain all the time I hate the sluggish

feeling for the pain medication.

> If I don't take enough pain meds before bed I wake up in the morn with burning

through out my body. Is this " normal " ?????

> Please, someone send me some encouragement and advice.

> Thanks, Sandi

>

[Guest guest]

Thanks Lee, It is good to be in contact with others like me. It is amazing the

weakness in my hands now. I use to be very strong and worked hard...but no more.

Am feeling better physically today. I have been keeping my 18 mo old grand

daughter several evenings a week and I have noticed that I am stronger in my

arms from picking her up...sore but stronger. ha!

I look forward to getting to know everyone!

Sandi

Leona <leehen@...> wrote:

--

Leona, Lee, Jackie, Tvksi, Granny and Momma. We wish you all the best,

Join the crowd. We, here at RA support have been/are in the same boat, so any

time you want to get on the pity pot, join us<G> We all do at times and some

times it helps to blast off here and we don't mind 'cause we can complain here

and we all understand.

It is true that there is a lot of pain and there are as many ways to handle it

as there are people suffering from it. Don't let other folk's negative attitudes

bother you. You are not a hypochondriac and not imagining the pain. And, try not

to condemn them for their negative ness. They just don't know any better. If

some one asks me about it, I usually tell them That I'm doing better and that

they can find out a lot of information about it on the net. Some of my friends

who were a bit doubtful, since I have been going to Dr for 60 yrs trying to get

help, finally have a bit of compassion, at least. I don't want people feeling

sorry for me, just have a bit of cam passion, not condemning me as lazy. I even

tell some folks how some of you are in such dire circumstances so they realize

that this is a dilemma that effects a lot of people. I would tat I be alone,

however, as I do not feel good about other folks for being in this same boat.

The way I get it is that I got it, do what I can to keep as strong and healthy

as I can, hoping that things will get better and they do at times for which I am

thankful. I accept that I " got it " and like everyone else, I make each day as

good as I can by keeping my mind busy learning new things, working on my many

projects, and that way, I don't feel the pain as much...any way. not as much.

I made some of the best cookies today!! The best cookie recipe I found on the

net..or at least the best one that I had the nerve to try <g> cause my cooking

isn't one of my highest priority projects!

Also I had cooked a huge pot of mixed beans, lentils etc stuff and they left

that aggravating protein deposits in the pot, and it is so hard to scour out..I

started in on it and grumbles that there ought to be a better way, Lord, and it

just hit me that I use WD 40 to polish my stainless sink,...maybe it will get

the protein out of the stainless pot.. IT WORKS. There are a lot of things that

can make life easier to keep some of the stress off our aching joints. I think

we all ought to share our RA helper ideas. How about it? any one like to do

this? it's all about making the things we have to do easier.

get well, feel better, laugh a little, share a tip to work smarter.

Lee

---- Sandi Stillwell wrote:

> Hello all you folks. I'm new to this and not sure how it works...but I sure

need someone to talk to.

> I was diagnosed with RA in Oct 2006. I have been fighting the pain and " self

medicating " for over 10 years. Everytime I would tell my doctor my body hurt he

just looked at me. As the years have gone by I have become very insecure about

how I feel. " is it all in my head " ? type stuff. " Am I making this up to get

drugs " Finally a new doctor tested me for RA and has been treating me

appropriately. I live in a very small town. Several people I go to church with

are aware of all the meds I take. I feel that they look at me with " veiled

eyes " . I am treated differently now. As you can see I am realy feeling sorry for

myself. My husband isn't very supportive either. who can blame him. His partner

lays on the couch more than plays. If our roles were reversed I don't know if I

would do any better. I hate beeng in pain all the time I hate the sluggish

feeling for the pain medication.

> If I don't take enough pain meds before bed I wake up in the morn with burning

through out my body. Is this " normal " ?????

> Please, someone send me some encouragement and advice.

> Thanks, Sandi

>