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Kay

I will say a prayer for you -- and it makes me laugh a little because

just before I went into the operating room, I had had an all-day wait

in pre-op. I didn't feel well from fasting (I'm diabetic) so I began

saying Catholic prayers for myself and prayed for " the best possible

outcome for surgery. " At one point I really became the child inside

of me " let go and let God " (in my case, to and the sainted

Little Flower, Therese).

After the surgery, I was groggy in the post-op area and the surgical

team was around my table saying " excellent, excellent, you have NO

NODES... NO VASCULAR INVASION.... BEAUTIFUL SURGERY... YOU DID

BEAUTIFULLY.... " Such smiles. When I groggily said " Did you get it

all in the margins? " They laughed, because I had had a mastectomy

instead of lumpectomy and the tumor was near the surface of the

breast, so they OF COURSE got wide, clean margins. They said " yes. "

One of the surgeons was saying " Excellent, excellent. "

Though I don't want to get your hopes unreasonably up in case you

don't have the same outcome, there was a message just previous to

this that said " prayer changes things. " We have to live, and

believe, I think...

So I really WILL put my hopes and prayers with you, and

We'll see...

But whatever your outcome, there will be a treatment plan to get it,

in God's hands, so don't get all shook.

Janie

>

> > Thank you for the message it was great just knowing someone out

there

> > isnt afraid to talk or discuss this issue. I received a phone

call

> > thursday and next wednesday they begin draining and poking and

taking

> > things out, and friday the pathologist and the surgeon will meet

with

> > us, and we decide iam glad they arent wasting any time just

nervous on

> > my part. Please say a prayer it hasnt traveled to far into the

lymph

> > nodes thats my main concern. So once again thanks for letting me

vent

> > a bit take care and keep in touch! Marik

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janie8002000 wrote:

>

> Kay

>

> I will say a prayer for you -- and it makes me laugh a little because

> just before I went into the operating room, I had had an all-day wait

> in pre-op. I didn't feel well from fasting (I'm diabetic) so I began

> saying Catholic prayers for myself and prayed for " the best possible

> outcome for surgery. " At one point I really became the child inside

> of me " let go and let God " (in my case, to and the sainted

> Little Flower, Therese).

>

> After the surgery, I was groggy in the post-op area and the surgical

> team was around my table saying " excellent, excellent, you have NO

> NODES... NO VASCULAR INVASION.... BEAUTIFUL SURGERY... YOU DID

> BEAUTIFULLY.... " Such smiles. When I groggily said " Did you get it

> all in the margins? " They laughed, because I had had a mastectomy

> instead of lumpectomy and the tumor was near the surface of the

> breast, so they OF COURSE got wide, clean margins. They said " yes. "

> One of the surgeons was saying " Excellent, excellent. "

>

> Though I don't want to get your hopes unreasonably up in case you

> don't have the same outcome, there was a message just previous to

> this that said " prayer changes things. " We have to live, and

> believe, I think...

>

> So I really WILL put my hopes and prayers with you, and

>

> We'll see...

>

> But whatever your outcome, there will be a treatment plan to get it,

> in God's hands, so don't get all shook.

>

> Janie

>

>

>

>

> >

> > > Thank you for the message it was great just knowing someone out

> there

> > > isnt afraid to talk or discuss this issue. I received a phone

> call

> > > thursday and next wednesday they begin draining and poking and

> taking

> > > things out, and friday the pathologist and the surgeon will meet

> with

> > > us, and we decide iam glad they arent wasting any time just

> nervous on

> > > my part. Please say a prayer it hasnt traveled to far into the

> lymph

> > > nodes thats my main concern. So once again thanks for letting me

> vent

> > > a bit take care and keep in touch! Marik

>

>

>

>

>

> *

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janie8002000 wrote:

>

> Kay

>

> I will say a prayer for you -- and it makes me laugh a little because

> just before I went into the operating room, I had had an all-day wait

> in pre-op. I didn't feel well from fasting (I'm diabetic) so I began

> saying Catholic prayers for myself and prayed for " the best possible

> outcome for surgery. " At one point I really became the child inside

> of me " let go and let God " (in my case, to and the sainted

> Little Flower, Therese).

>

> After the surgery, I was groggy in the post-op area and the surgical

> team was around my table saying " excellent, excellent, you have NO

> NODES... NO VASCULAR INVASION.... BEAUTIFUL SURGERY... YOU DID

> BEAUTIFULLY.... " Such smiles. When I groggily said " Did you get it

> all in the margins? " They laughed, because I had had a mastectomy

> instead of lumpectomy and the tumor was near the surface of the

> breast, so they OF COURSE got wide, clean margins. They said " yes. "

> One of the surgeons was saying " Excellent, excellent. "

>

> Though I don't want to get your hopes unreasonably up in case you

> don't have the same outcome, there was a message just previous to

> this that said " prayer changes things. " We have to live, and

> believe, I think...

>

> So I really WILL put my hopes and prayers with you, and

>

> We'll see...

>

> But whatever your outcome, there will be a treatment plan to get it,

> in God's hands, so don't get all shook.

>

> Janie

>

>

>

>

> >

> > > Thank you for the message it was great just knowing someone out

> there

> > > isnt afraid to talk or discuss this issue. I received a phone

> call

> > > thursday and next wednesday they begin draining and poking and

> taking

> > > things out, and friday the pathologist and the surgeon will meet

> with

> > > us, and we decide iam glad they arent wasting any time just

> nervous on

> > > my part. Please say a prayer it hasnt traveled to far into the

> lymph

> > > nodes thats my main concern. So once again thanks for letting me

> vent

> > > a bit take care and keep in touch! Marik

>

>

>

>

>

> *

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Welcome Marik. You are in the right place!

Hi my name is Marik (Kay), today i was diagnosed with breast cancer. This may result more than likely to loose my right breast. I felt simply stunned as if this couldnt happen to me so iam getting all the support i can through groups just like this one. Iam happy to share i have a good support system at home. I am looking forward to hearing from others and how they are dealing with this issue. Thank you so much! Marik

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  • 10 months later...

Hi Lynn --

Since you are here in OC...let me spout a little....(*wink)

check out www.droliak.com

if you register there, I can send you a patient questionnaire on Monday when I

get to work, and we can then converse more about the surgery, Dr. Oliak's

results and outcomes, the program we (his patients, not everyne on this board)

follow, costs, financing, insurance...all that good stuff.

good luck to you! and talk to you soon.

jb-bb

lynn_cummins2005 wrote:

Hi. My name is Lynn and I am looking for information on Orange County

gastric bypass surgeons.

Please share your resources with me. I have BC/BS insurance. Is is

easy to get approved for surgery? How long does it take to get approved.

I definately want this surgery. My weight is 342.

Lynn

We are a very active support group.

If the email becomes overwhelming,

please change your setting to NO EMAIL!

Please stay with us!

Any questions?

Please contact Group Creator/Moderator

Robyn@...

To visit your group on the web, go to:

http://groups.yahoo.com/group/GastricBypass-LOSERS/

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Hi Lynn --

Since you are here in OC...let me spout a little....(*wink)

check out www.droliak.com

if you register there, I can send you a patient questionnaire on Monday when I

get to work, and we can then converse more about the surgery, Dr. Oliak's

results and outcomes, the program we (his patients, not everyne on this board)

follow, costs, financing, insurance...all that good stuff.

good luck to you! and talk to you soon.

jb-bb

lynn_cummins2005 wrote:

Hi. My name is Lynn and I am looking for information on Orange County

gastric bypass surgeons.

Please share your resources with me. I have BC/BS insurance. Is is

easy to get approved for surgery? How long does it take to get approved.

I definately want this surgery. My weight is 342.

Lynn

We are a very active support group.

If the email becomes overwhelming,

please change your setting to NO EMAIL!

Please stay with us!

Any questions?

Please contact Group Creator/Moderator

Robyn@...

To visit your group on the web, go to:

http://groups.yahoo.com/group/GastricBypass-LOSERS/

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Hi Lynn --

Since you are here in OC...let me spout a little....(*wink)

check out www.droliak.com

if you register there, I can send you a patient questionnaire on Monday when I

get to work, and we can then converse more about the surgery, Dr. Oliak's

results and outcomes, the program we (his patients, not everyne on this board)

follow, costs, financing, insurance...all that good stuff.

good luck to you! and talk to you soon.

jb-bb

lynn_cummins2005 wrote:

Hi. My name is Lynn and I am looking for information on Orange County

gastric bypass surgeons.

Please share your resources with me. I have BC/BS insurance. Is is

easy to get approved for surgery? How long does it take to get approved.

I definately want this surgery. My weight is 342.

Lynn

We are a very active support group.

If the email becomes overwhelming,

please change your setting to NO EMAIL!

Please stay with us!

Any questions?

Please contact Group Creator/Moderator

Robyn@...

To visit your group on the web, go to:

http://groups.yahoo.com/group/GastricBypass-LOSERS/

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I just signed up on the Dr Oliak website. I am floored by the huge

weight loss. Does that happen to everyone?

Lynn

> Hi. My name is Lynn and I am looking for information on Orange County

> gastric bypass surgeons.

>

> Please share your resources with me. I have BC/BS insurance. Is is

> easy to get approved for surgery? How long does it take to get approved.

>

> I definately want this surgery. My weight is 342.

>

> Lynn

>

>

>

>

> We are a very active support group.

> If the email becomes overwhelming,

> please change your setting to NO EMAIL!

> Please stay with us!

>

> Any questions?

> Please contact Group Creator/Moderator

> Robyn@G...

>

> To visit your group on the web, go to:

> http://groups.yahoo.com/group/GastricBypass-LOSERS/

>

>

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I just signed up on the Dr Oliak website. I am floored by the huge

weight loss. Does that happen to everyone?

Lynn

> Hi. My name is Lynn and I am looking for information on Orange County

> gastric bypass surgeons.

>

> Please share your resources with me. I have BC/BS insurance. Is is

> easy to get approved for surgery? How long does it take to get approved.

>

> I definately want this surgery. My weight is 342.

>

> Lynn

>

>

>

>

> We are a very active support group.

> If the email becomes overwhelming,

> please change your setting to NO EMAIL!

> Please stay with us!

>

> Any questions?

> Please contact Group Creator/Moderator

> Robyn@G...

>

> To visit your group on the web, go to:

> http://groups.yahoo.com/group/GastricBypass-LOSERS/

>

>

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....how do I answer that without sounding arrogant....

The first testamonial on his website is me...Dos everyone lost that much

weight...no. But I was quite large, and had a lot of weight to lose. The

surgery works for everyone who is willing to put forth the effort to explore

themselves, their emotions, what got them to obesity (why did you eat), and are

willing to do a 180 and change their lives forever.

We have all heard that 'it's a lifestyle change' and we all think we are ready

for that change. But we thought we were ready every time we went to WW or

Craig...the difference is that when things got tough (stress in life) we could

go back to our old ways with those other programs. If you choose to haveWLS,

there is no going back. When life gets stressful -- you don't get to escape

with foo. You can't satisfy your frustrations by eating. So -- when life gets

tough...it actually gets tougher because you get to add the need to find a new

outlet for your frustrations. And that's not something that any of us really

work on, until the time comes and we need the outlet. And when that time comes,

it's because we are already stressed out...does this sound like a vicious

circle?

WLS can be a wonderous thing...but don't think it's easy. There are so many

changes one needs to make to be successful...not just in losing the weight, but

in becoming healthy for the rest of ones' life!

OK -- I gotta hit Costco -- I'm outta here!

Love you all!

blessings,

jb-bb

lynn_cummins2005 wrote:

I just signed up on the Dr Oliak website. I am floored by the huge

weight loss. Does that happen to everyone?

Lynn

> Hi. My name is Lynn and I am looking for information on Orange County

> gastric bypass surgeons.

>

> Please share your resources with me. I have BC/BS insurance. Is is

> easy to get approved for surgery? How long does it take to get approved.

>

> I definately want this surgery. My weight is 342.

>

> Lynn

>

>

>

>

> We are a very active support group.

> If the email becomes overwhelming,

> please change your setting to NO EMAIL!

> Please stay with us!

>

> Any questions?

> Please contact Group Creator/Moderator

> Robyn@G...

>

> To visit your group on the web, go to:

> http://groups.yahoo.com/group/GastricBypass-LOSERS/

>

>

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....how do I answer that without sounding arrogant....

The first testamonial on his website is me...Dos everyone lost that much

weight...no. But I was quite large, and had a lot of weight to lose. The

surgery works for everyone who is willing to put forth the effort to explore

themselves, their emotions, what got them to obesity (why did you eat), and are

willing to do a 180 and change their lives forever.

We have all heard that 'it's a lifestyle change' and we all think we are ready

for that change. But we thought we were ready every time we went to WW or

Craig...the difference is that when things got tough (stress in life) we could

go back to our old ways with those other programs. If you choose to haveWLS,

there is no going back. When life gets stressful -- you don't get to escape

with foo. You can't satisfy your frustrations by eating. So -- when life gets

tough...it actually gets tougher because you get to add the need to find a new

outlet for your frustrations. And that's not something that any of us really

work on, until the time comes and we need the outlet. And when that time comes,

it's because we are already stressed out...does this sound like a vicious

circle?

WLS can be a wonderous thing...but don't think it's easy. There are so many

changes one needs to make to be successful...not just in losing the weight, but

in becoming healthy for the rest of ones' life!

OK -- I gotta hit Costco -- I'm outta here!

Love you all!

blessings,

jb-bb

lynn_cummins2005 wrote:

I just signed up on the Dr Oliak website. I am floored by the huge

weight loss. Does that happen to everyone?

Lynn

> Hi. My name is Lynn and I am looking for information on Orange County

> gastric bypass surgeons.

>

> Please share your resources with me. I have BC/BS insurance. Is is

> easy to get approved for surgery? How long does it take to get approved.

>

> I definately want this surgery. My weight is 342.

>

> Lynn

>

>

>

>

> We are a very active support group.

> If the email becomes overwhelming,

> please change your setting to NO EMAIL!

> Please stay with us!

>

> Any questions?

> Please contact Group Creator/Moderator

> Robyn@G...

>

> To visit your group on the web, go to:

> http://groups.yahoo.com/group/GastricBypass-LOSERS/

>

>

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How much weight did you lose?

Have you undergone plastics? What were your costs and your surgeon's

name. Does he have a website?

Kristy

> > Hi. My name is Lynn and I am looking for information on Orange

County

> > gastric bypass surgeons.

> >

> > Please share your resources with me. I have BC/BS insurance. Is is

> > easy to get approved for surgery? How long does it take to get

approved.

> >

> > I definately want this surgery. My weight is 342.

> >

> > Lynn

> >

> >

> >

> >

> > We are a very active support group.

> > If the email becomes overwhelming,

> > please change your setting to NO EMAIL!

> > Please stay with us!

> >

> > Any questions?

> > Please contact Group Creator/Moderator

> > Robyn@G...

> >

> > To visit your group on the web, go to:

> > http://groups.yahoo.com/group/GastricBypass-LOSERS/

> >

> >

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Welcome Lynn

Please open a photo album to store your current photos. The after

photos that I have viewed are inspiring.

Sharon

> Hi. My name is Lynn and I am looking for information on Orange County

> gastric bypass surgeons.

>

> Please share your resources with me. I have BC/BS insurance. Is is

> easy to get approved for surgery? How long does it take to get

approved.

>

> I definately want this surgery. My weight is 342.

>

> Lynn

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Hi Lynn!!!!

Welcome to the group!!!! Glad you are here!!! My Dr. Is DR. Milton

Owens in Orange, CA. He is a good DR I also know that Dr. Oliak

is a great DR. (cute too!!!) If I was having surgery today I would go

with Dr. Oliak. (own personal reasons) They are both out of Chapman

Medical Center in Orange, CA the hospital is on Chapman at the 55 fwy.

Please come join us and chat with us whenever!!! If you have any

questions we are ere to help!!

Hugs!!!

> Hi. My name is Lynn and I am looking for information on Orange County

> gastric bypass surgeons.

>

> Please share your resources with me. I have BC/BS insurance. Is is

> easy to get approved for surgery? How long does it take to get

approved.

>

> I definately want this surgery. My weight is 342.

>

> Lynn

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  • 1 year later...
Guest guest

,

Welcome to our group. We are so glad to have you here. You're right...we can learn from each other. It has been amazing for me. I thought I knew it all! I have been at this for some time.

Like you, I have Autoimmune Diseases. I have Lupus, Sjogren's and RA. Also a blood disorder called Anti-phospholipid Syndrome. At biopsy they told me that the fibrosis was secondary to Lupus. A good guess, I suppose.

Thanks for coming to us from across the pond. You really have some serious issues. Hope we can help you in some way....and hope you will help us too.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> > Hello , I am new here ,but have been lurking for a week or so ,In that > time I have already learned so much .> > My name is ,I am from Liverpool uk ,68 yrs. old & have been > dx'ed with many " Autoimmune " diseases over the past twenty yrs. > > Primary Biliary Cirrhosis ( PBC ), PF ,Fibromyalgia ,sjogren's > Syndrome , Peripheral Neuropathy ,costa chondritis & have recently had > surgery for cateracts on both eyes > > I worked with organic solvents for eighteen yrs. & I believe that > they were the cause of my illnesses .> > Thank you for being here > > best Wishes to all > uk>

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  • 1 month later...

Hi msinverness, First we would love to know your name! I am , 51 years old, also feel I have PF due to mold exposure. This is a wonderful group for support and information AND most of all -friends. You get to know about people through their posts and also through the phone chat held every other week. Leanne always posts the times and instructions and it is easy to join in. Most group members read all the posts and then just reply to the ones they feel they can help with or have advice, experience or knowledge to share. Sometime we just need to vent about the disease, doctors, family, etc. and this is a safe place. I'm sure others will be able to answer your question better. But in the meantime, welcome, and God bless you- PF/Sarcoid 3/2006msinverness wrote: Hi All, I am a 50 year old woman with COPD secondary to mold exposure about four years ago. I was 46 yrs old and placed on oxygen at that time and continue to be on O2 now. Many hospitalizations later, slips and slides, etc. I have been a member of this group for a little under 2 months. This is my first post. Could someone explain here in the group or email me and tell me what goes on here and how I maneuver around and get to know all of you? I would greatly appreciate it. I have so little support and so few friends because of this. Thanks in advance for any help you can give me. :)

Sarcoid/PF 3/2006

Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us.

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Hi there,

I think you have already started the ball rolling, by announcing to us that you are here!!! As sad as it is, I would like to say welcome to our group. Many of us suffer with PF of some kind, and it seems there are a few other lung issues and other complicating factors lurking about.

I just started posting less than a month ago. I usually download all the mail into my outlook express and go from there. Bacially an introduction is all it takes, and I think you will find people are very responsive. At least that has been my experience thus far.

I am 43 and have PF due to Hermansky Pudlak Syndrome, and I have a blog that you are free to visit at www.myspace.com/karenshpskorner I wil have to say that so far I am not as sick as most, but feel much compassion for everyone, and just hope to glean a lot of knowledge for when those really tough breathing times start to occur.

The life expectancy for someone with HPS and PF is less than age 50, and I feel so blessed that 5 years ago they told me that is probably all I had left.

again, welcome to the group, and my best advice is to find a subject and dive right in by asking whatever you feel you want or need to know.

Take care

Tillman

PF/Hermansky Pudlak Syndrome 2002

NC

_______________________________________________________________ Tillman, Regional Coordinator, Mid Atlantic-USAHermansky-Pudlak Syndrome Network IncMy NC phone:1 NY home office 1. / fax * HPS is a genetic disorder that is characterized by albinism, visual impairment, and a bleeding problem.Some genetic mutations can include colitis and pulmonary fibrosis.* http://www.hpsnetwork.org One South Road Oyster Bay, NY 11771

New member

Hi All,I am a 50 year old woman with COPD secondary to mold exposure about four years ago. I was 46 yrs old and placed on oxygen at that time and continue to be on O2 now. Many hospitalizations later, slips and slides, etc. I have been a member of this group for a little under 2 months. This is my first post. Could someone explain here in the group or email me and tell me what goes on here and how I maneuver around and get to know all of you? I would greatly appreciate it. I have so little support and so few friends because of this. Thanks in advance for any help you can give me. :)

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.487 / Virus Database: 269.13.22/1013 - Release Date: 9/17/2007 1:29 PM

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Hi there,

I think you have already started the ball rolling, by announcing to us that you are here!!! As sad as it is, I would like to say welcome to our group. Many of us suffer with PF of some kind, and it seems there are a few other lung issues and other complicating factors lurking about.

I just started posting less than a month ago. I usually download all the mail into my outlook express and go from there. Bacially an introduction is all it takes, and I think you will find people are very responsive. At least that has been my experience thus far.

I am 43 and have PF due to Hermansky Pudlak Syndrome, and I have a blog that you are free to visit at www.myspace.com/karenshpskorner I wil have to say that so far I am not as sick as most, but feel much compassion for everyone, and just hope to glean a lot of knowledge for when those really tough breathing times start to occur.

The life expectancy for someone with HPS and PF is less than age 50, and I feel so blessed that 5 years ago they told me that is probably all I had left.

again, welcome to the group, and my best advice is to find a subject and dive right in by asking whatever you feel you want or need to know.

Take care

Tillman

PF/Hermansky Pudlak Syndrome 2002

NC

_______________________________________________________________ Tillman, Regional Coordinator, Mid Atlantic-USAHermansky-Pudlak Syndrome Network IncMy NC phone:1 NY home office 1. / fax * HPS is a genetic disorder that is characterized by albinism, visual impairment, and a bleeding problem.Some genetic mutations can include colitis and pulmonary fibrosis.* http://www.hpsnetwork.org One South Road Oyster Bay, NY 11771

New member

Hi All,I am a 50 year old woman with COPD secondary to mold exposure about four years ago. I was 46 yrs old and placed on oxygen at that time and continue to be on O2 now. Many hospitalizations later, slips and slides, etc. I have been a member of this group for a little under 2 months. This is my first post. Could someone explain here in the group or email me and tell me what goes on here and how I maneuver around and get to know all of you? I would greatly appreciate it. I have so little support and so few friends because of this. Thanks in advance for any help you can give me. :)

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.487 / Virus Database: 269.13.22/1013 - Release Date: 9/17/2007 1:29 PM

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Hey , I just went to your site, really nice. I was pleasantly

surprised to hear my favorite song. I dream to that song. It looks

like a fun vacation.

Love and Prayers, Peggy

ipf 6/04 Florida

" Worry looks around,

Sorry looks back,

Faith looks up. "

Hi there,

I think you have already started the ball rolling, by announcing to

us that you are here!!! As sad as it is, I would like to say welcome

to our group. Many of us suffer with PF of some kind, and it seems

there are a few other lung issues and other complicating factors

lurking about.

I just started posting less than a month ago. I usually download all

the mail into my outlook express and go from there. Bacially an

introduction is all it takes, and I think you will find people are

very responsive. At least that has been my experience thus far.

I am 43 and have PF due to Hermansky Pudlak Syndrome, and I have a

blog that you are free to visit atwww.myspace.com/karenshpskorner I

wil have to say that so far I am not as sick as most, but feel much

compassion for everyone, and just hope to glean a lot of knowledge

for when those really tough breathing times start to occur.

The life expectancy for someone with HPS and PF is less than age 50,

and I feel so blessed that 5 years ago they told me that is probably

all I had left.

again, welcome to the group, and my best advice is to find a subject

and dive right in by asking whatever you feel you want or need to know.

Take care

Tillman

PF/Hermansky Pudlak Syndrome 2002

NC

_______________________________________________________________

Tillman, Regional Coordinator, Mid Atlantic-USA

Hermansky-Pudlak Syndrome Network Inc

My NC phone:1

NY home office 1. / fax

* HPS is a genetic disorder that is characterized

by albinism, visual impairment, and a bleeding problem.

Some genetic mutations can include colitis and pulmonary fibrosis.*

http://www.hpsnetwork.org

One South Road

Oyster Bay, NY 11771

New member

Hi All,

I am a 50 year old woman with COPD secondary to mold exposure

about four years ago. I was 46 yrs old and placed on oxygen at that

time and continue to be on O2 now. Many hospitalizations later, slips

and slides, etc. I have been a member of this group for a little under

2 months. This is my first post. Could someone explain here in the

group or email me and tell me what goes on here and how I maneuver

around and get to know all of you? I would greatly appreciate it. I

have so little support and so few friends because of this. Thanks in

advance for any help you can give me. :)

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.487 / Virus Database: 269.13.22/1013 - Release Date:

9/17/2007 1:29 PM

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Hey , I just went to your site, really nice. I was pleasantly

surprised to hear my favorite song. I dream to that song. It looks

like a fun vacation.

Love and Prayers, Peggy

ipf 6/04 Florida

" Worry looks around,

Sorry looks back,

Faith looks up. "

Hi there,

I think you have already started the ball rolling, by announcing to

us that you are here!!! As sad as it is, I would like to say welcome

to our group. Many of us suffer with PF of some kind, and it seems

there are a few other lung issues and other complicating factors

lurking about.

I just started posting less than a month ago. I usually download all

the mail into my outlook express and go from there. Bacially an

introduction is all it takes, and I think you will find people are

very responsive. At least that has been my experience thus far.

I am 43 and have PF due to Hermansky Pudlak Syndrome, and I have a

blog that you are free to visit atwww.myspace.com/karenshpskorner I

wil have to say that so far I am not as sick as most, but feel much

compassion for everyone, and just hope to glean a lot of knowledge

for when those really tough breathing times start to occur.

The life expectancy for someone with HPS and PF is less than age 50,

and I feel so blessed that 5 years ago they told me that is probably

all I had left.

again, welcome to the group, and my best advice is to find a subject

and dive right in by asking whatever you feel you want or need to know.

Take care

Tillman

PF/Hermansky Pudlak Syndrome 2002

NC

_______________________________________________________________

Tillman, Regional Coordinator, Mid Atlantic-USA

Hermansky-Pudlak Syndrome Network Inc

My NC phone:1

NY home office 1. / fax

* HPS is a genetic disorder that is characterized

by albinism, visual impairment, and a bleeding problem.

Some genetic mutations can include colitis and pulmonary fibrosis.*

http://www.hpsnetwork.org

One South Road

Oyster Bay, NY 11771

New member

Hi All,

I am a 50 year old woman with COPD secondary to mold exposure

about four years ago. I was 46 yrs old and placed on oxygen at that

time and continue to be on O2 now. Many hospitalizations later, slips

and slides, etc. I have been a member of this group for a little under

2 months. This is my first post. Could someone explain here in the

group or email me and tell me what goes on here and how I maneuver

around and get to know all of you? I would greatly appreciate it. I

have so little support and so few friends because of this. Thanks in

advance for any help you can give me. :)

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.487 / Virus Database: 269.13.22/1013 - Release Date:

9/17/2007 1:29 PM

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hallo

welcome to the group. sorry about your condition.

i am 48 and from glasgow in scotland. can't help be intrigued by

inverness in your address and look forward to an explanation. is it

your name or where you live.

may

uip/ipf 06.06

glasgow, scotland

>

> Hi All,

> I am a 50 year old woman with COPD secondary to mold exposure

> about four years ago. I was 46 yrs old and placed on oxygen at that

> time and continue to be on O2 now. Many hospitalizations later, slips

> and slides, etc. I have been a member of this group for a little

under

> 2 months. This is my first post. Could someone explain here in the

> group or email me and tell me what goes on here and how I maneuver

> around and get to know all of you? I would greatly appreciate it. I

> have so little support and so few friends because of this. Thanks in

> advance for any help you can give me. :)

>

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hallo

welcome to the group. sorry about your condition.

i am 48 and from glasgow in scotland. can't help be intrigued by

inverness in your address and look forward to an explanation. is it

your name or where you live.

may

uip/ipf 06.06

glasgow, scotland

>

> Hi All,

> I am a 50 year old woman with COPD secondary to mold exposure

> about four years ago. I was 46 yrs old and placed on oxygen at that

> time and continue to be on O2 now. Many hospitalizations later, slips

> and slides, etc. I have been a member of this group for a little

under

> 2 months. This is my first post. Could someone explain here in the

> group or email me and tell me what goes on here and how I maneuver

> around and get to know all of you? I would greatly appreciate it. I

> have so little support and so few friends because of this. Thanks in

> advance for any help you can give me. :)

>

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Hi, Welcome to the group! I'm 34 diagnosed with PF in March/07 and Raynaud's Disease in Sept/07.

Somedays are fine and other days I just want to crawl under the bed. You'll find a lot of helpful information

and caring people.

Irene

Canada

---- Original Message ----

To: Breathe-Support

Sent: Mon, 17 Sep 2007 8:50 pm

Subject: New member

Hi All,

I am a 50 year old woman with COPD secondary to mold exposure

about four years ago. I was 46 yrs old and placed on oxygen at that

time and continue to be on O2 now. Many hospitalizations later, slips

and slides, etc. I have been a member of this group for a little under

2 months. This is my first post. Could someone explain here in the

group or email me and tell me what goes on here and how I maneuver

around and get to know all of you? I would greatly appreciate it. I

have so little support and so few friends because of this. Thanks in

advance for any help you can give me. :)

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

Link to comment
Share on other sites

Hi, Welcome to the group! I'm 34 diagnosed with PF in March/07 and Raynaud's Disease in Sept/07.

Somedays are fine and other days I just want to crawl under the bed. You'll find a lot of helpful information

and caring people.

Irene

Canada

---- Original Message ----

To: Breathe-Support

Sent: Mon, 17 Sep 2007 8:50 pm

Subject: New member

Hi All,

I am a 50 year old woman with COPD secondary to mold exposure

about four years ago. I was 46 yrs old and placed on oxygen at that

time and continue to be on O2 now. Many hospitalizations later, slips

and slides, etc. I have been a member of this group for a little under

2 months. This is my first post. Could someone explain here in the

group or email me and tell me what goes on here and how I maneuver

around and get to know all of you? I would greatly appreciate it. I

have so little support and so few friends because of this. Thanks in

advance for any help you can give me. :)

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

Link to comment
Share on other sites

Hi, Welcome to the group! I'm 34 diagnosed with PF in March/07 and Raynaud's Disease in Sept/07.

Somedays are fine and other days I just want to crawl under the bed. You'll find a lot of helpful information

and caring people.

Irene

Canada

---- Original Message ----

To: Breathe-Support

Sent: Mon, 17 Sep 2007 8:50 pm

Subject: New member

Hi All,

I am a 50 year old woman with COPD secondary to mold exposure

about four years ago. I was 46 yrs old and placed on oxygen at that

time and continue to be on O2 now. Many hospitalizations later, slips

and slides, etc. I have been a member of this group for a little under

2 months. This is my first post. Could someone explain here in the

group or email me and tell me what goes on here and how I maneuver

around and get to know all of you? I would greatly appreciate it. I

have so little support and so few friends because of this. Thanks in

advance for any help you can give me. :)

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

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