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" Posted by: " " Matsumura_Clan@... gina_nmi_walker

Date: Mon Feb 12, 2007 1:03 pm ((PST))

I don't blame you for feeling frustrated, Carla. You've been through a lot.

Have you been with the same rheumatologist all along? Maybe getting a second

opinion would be a good idea. "

, I haven't. The thing is, is one of the two most highly

recommended rheumies in the state and I love the fact that she is

communicative (I can even email with her) and spends a lot of personal time

with you. At some point though, I may get a second opinion anyway.....

Before I got the RA diagnosis, I was treated for 2 years for Lyme disease

and got very mixed opinions on which disease was responsible for what

symptoms and which course of treatment to follow. I've been working on the

RA diagnosis for 2 years. During the same period, my husband became a

" relapsed " instead of " recovering " alcoholic and both my parents died .....

so it's been a bit of a " time " .....

Still I have 2 friends with terminal cancer and feel... awkward

complaining... Carla

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  • 6 months later...

,

My Rhummy said that I did not fit the mold for RA but he just had a

thought. My blood work was ok but I had the pain he sent me for an MRI of

the hands and when the contrast hit it showed the RA big time. So it could

be a situation such as mine.Worth asking.

Heidi M

On 8/20/07, Rose Paterson <mom2rkd@...> wrote:

>

> Hi Les,

>

> If it were me, I'd disregard what that doctor said. The Rheumatologist I

> saw here told me that Fibro is what is diagnosed when they can't find a

> diagnosis for you. While I know there are pressure points and such that the

> use to diagnos fibro with, I am still leaning towards RA with you. Joints

> don't always have to be swollen.

>

> I am picky with doctors it seems, but I've just been through the mill it

> feels like. If they aren't interested in taking care of me and helping me

> find out what is really wrong and treating it, well then, they don't need my

> business after all.

>

> I once was given muscle relaxants for joint pain too - and they did

> nothing except make me sleepy - - so be careful if you take them while

> driving....

>

> I'd keep searching for a doctor who will really listen and take into

> account your entire being and symptoms.

>

> Do take care and I'll keep you in my thoughts and prayers...

>

> Rose

>

> <leslielick777@... <leslielick777%40>> wrote: Hi

> everyone,

>

> I had an appointment with a new doctor for a second opinion about my

> RA status and diagnosis. He says that he cannot diagnose me with RA,

> but that he feel confident that I have fibromyalgia. He says that I

> have fibro because I don't have joint swelling. However, I have joint

> pain. I'm more confused than ever now. I thought that fibro was

> where the pain you feel is more muscular, not bones and joints. I

> really question whether he has it right or not. I just don't know

> what to think at this point. If anyone here has any thoughts, I'd love

> to hear them. He gave me a prescription for a muscle relaxant. I

> don't feel like I need a muscle relaxant. I do have trouble sleeping

> mostly beause my hips hurt at night. When I told him I had hip pain

> and that it is in the front, he practically told me that I was wrong

> and that my pain was elsewhere lower on the thigh. I think he just

> wanted to prove to me hat I have all the pressure points for fibromyalgia.

>

> Thanks for any thoughts you may have.

>

> Les

>

>

>

>

>

> ---------------------------------

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> ---------------------------------

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>

>

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