Re: [wacma)VP shunts and CSF blockage, walking

[Guest guest]

>- what could

>the long term affects be of not doing something about the CSF blockage - in

>other words what is this doing to the spinal canal by not having enough CSF

>fluid going through it???

>Is this a situation where even after being decompressed, one could still

>develop a syrinx? I think it has been said here on the list that it is

>unlikey for a syrinx to form after being decompressed, but could this still

>happen in this type of situation? has fortunately not had a syrinx.

Roxannes syrinx formed after her third decompression, it grew when her

shunt was working well, and then did not increase at all whilst we had

problems with the shunt over a six month period.

The question about the long term effect of CFS flow or lack of is

something that I also wonder about, along with another large

group of questions related to Arnold that seem to have no answers.

BTW...Rox's has started walking on her own, small distances with

dreadful balance but they are her own steps and will lead to

many things that we all take for granted, independance....

Of all the things I have wanted for Rox, this is the

biggy, hope you all feel my happiness.

PS. I would love the Chiari to go away also....

Kym, Rox's Mum

ACM, Hydro,Teth cord, syrinx