Topper2 and Shirley.... Re: Hyperthyroid treatment---links needed

January 14, 2004

I apologize for not sending in a post sooner....will try to get something

sent in soon regarding environmental conditions and thyroid....but first

would like to ask your permission, and Shirley, to forward this post

to my doc and the director of Chaplain Services at the local hospital.

They're both good guys....and you have made several statements that

reflect my own thoughts/feelings about medical care in this country right

now. I can remove any and all identifying info, if you would prefer....and

just tell them the message was posted on a list I belong to (unnamed).

My hope is that healthcare providers will learn to listen, and actually

'hear', what we're trying to tell them. I think these two men are trying.

Also, is it okay to just go ahead and forward info from the web,

publications, etc. that is posted here?

Warm regards,

from Oregon

> You have to stand up for yourself.. it's something that we all HAVE to

> learn... Look at it this way... if your car is running like crap and you

> take it in to the garage and the guys says it just needed air in the

> tires and hands you a bill you'd be pissed... and if you left and it was

> still running like crap you'd be even more pissed and you'd be back in

> his face! Right?

>

> Why do we let doctors thump our knees with a hammer, feel our glands,

> read our charts, hand us antidepressants or diet pills and then go home?

>

> I'm not knocking anyone here that has done that, is doing that, or will

> do that... I'm hitting myself for having done that and it costing my my

> thyroid gland..... I listened to the doc say that I was okay.. that I

> needed to lose weight.. that I should ENJOY being able to eat anything

> and everything that I wanted and still lose weight....

>

> I was a body builder, I didn't have fat to lose.. I was losing muscle. I

> was losing bone, I was damaging my internal organs. I could have died....

> and I did lose my gland because by the time I was sick enough to see

> another doctor it was too late to have treatment options... I was

> scanned, weighed, handed a form to sign (releasing the HMO from all

> consequences of the radiation I was about to take) A person in what

> looked like a hazmat suit brought me a little metal box, carried with

> tongs.... It was brought into the room and set on a table in front of

> me... then everyone ran out of the room and watched through a window

> while I opened it and took out a capsule and had to swallow it. I was

> told to put the paper cup and the box in another container and close

> it... then the hazmat guy took the container away and then others came

> back into the room.... I was told to go straight home and to not be

> around any people for 3 days, no kids for a week.

>

> Trust yourself.. if you know there is something wrong, and the doc says

> you're fine.... tell him where to stick it and find a real doc.

>

> I was raised to respect my elders, and doctors and quite a few other

> folks, just because of who they were. Not any more. Not after it cost me

> the life that I had. If I know something is right, if someone else is

> wrong... I'm not gonna be polite anymore.

>

> I lost my home, my car, everything I owned. I can't work any of the jobs

> that I used to do, I can't even drive into town to get a job. I'm 46

> years old and living with my father..... I'm treated like a ten year old

> and continually reminded that this is not my home. I am considered lazy

> and irresponsible and told I'm taking advantage of my father. No one

> considers that I have a disability, it is not recognized. I'm just the

> lazy kid that couldn't keep a job (it's not even taken into consideration

> that the jobs I lost were from down-sizing and had nothing to do with

> me). At my last job (2 hours each way by bus to get there, and for six

> months that was done on crutches because I couldn't walk!) more than

> thirty of us were pulled out of the building in the middle of the morning

> and told we no longer had jobs. The remaining staff was pulled out a week

> later. The following week the company filed for bankruptcy... so yep...

> I'm lazy and irresponsible and can't hold down a job.

>

> Stand up for yourself!!!!!!

>

> *climbing down off soap box, head hanging low*

>

> Topper ()

>

> On Thu, 8 Jan 2004 02:53:01 -0700 " Shirley White "

> writes:

> > You go Topper!! I know " some " of your frustration,not all,as I've not

> > been where you've been and pray God it will never happen.But if

> > these so called Dr's would just sit down and listen! Tuesday when I

> > called the dr,ohhhhhh the gidgey goo's were in my gut,I thought,I

> > can't do this,but I kept you all in my mind,AND I did it!! And

> > you're right or someone is,can't remember who posted it,but when the

> > dr is challenged about his dx and you the patient want's to try a

> > different treatment,,,,,look out!

> > Shirley

>

January 14, 2004

.. there is nothing that I said in my post that is untrue or that

I'm ashamed to have said... you may give it to him in it's entirety...

let him know that I am just one person that was ignored by a doctor (and

mistreated by nearly a dozen other doctors) and subjected to his personal

prejudice and ignorance and it cost me my quality of life...... I had my

own home, a solar greenhouse that I designed and built (by myself) I was

a single woman that was doing very well for my circumstance and that was

all taken from me... I could no longer do what I had to do to keep

it.....

Those things may all still have happened... but that doctor took away the

time that I needed to explore other options for treatment... the doctors

after that, for a decade, failed to properly test and treat me.... and it

cost me everything.... I am not dead... but what I had before I started

self medicating was not a life either.

If they would like to contact me... great! topper2@... or check out

any of the groups that I co-own with , they are more that welcome

http://health.groups.yahoo.com/group/The_Thyroid_Support_Group/

http://health.groups.yahoo.com/group/Overcoming_TD_Metabolism/

Messages posted to open forums like this are considered public domain

unless otherwise stated. Although it is considered very courteous to ask

permission to forward, as you have done. That is why it is important to

state to source when forwarding other articles etc the you list here...

Copy right laws as concern the Internet are still gray in many areas...

so I tend to follow basic rules of common sense. Be courteous and ask, as

you have, give credit when from an outside source...

Topper ()

46 years old. Living in Minnesota

On Wed, 14 Jan 2004 07:36:57 -0800 (PST) Hugo

writes:

> I apologize for not sending in a post sooner....will try to get

> something

> sent in soon regarding environmental conditions and thyroid....but

> first

> would like to ask your permission, and Shirley, to forward

> this post

> to my doc and the director of Chaplain Services at the local

> hospital.

> They're both good guys....and you have made several statements that

> reflect my own thoughts/feelings about medical care in this country

> right

> now. I can remove any and all identifying info, if you would

> prefer....and

> just tell them the message was posted on a list I belong to

> (unnamed).

> My hope is that healthcare providers will learn to listen, and

> actually

> 'hear', what we're trying to tell them. I think these two men are

> trying.

>

> Also, is it okay to just go ahead and forward info from the web,

> publications, etc. that is posted here?

>

> Warm regards,

> from Oregon

>

> > You have to stand up for yourself.. it's something that we all

> HAVE to

> > learn... Look at it this way... if your car is running like crap

> and you

> > take it in to the garage and the guys says it just needed air in

> the

> > tires and hands you a bill you'd be pissed... and if you left and

> it was

> > still running like crap you'd be even more pissed and you'd be

> back in

> > his face! Right?

> >

> > Why do we let doctors thump our knees with a hammer, feel our

> glands,

> > read our charts, hand us antidepressants or diet pills and then go

> home?

> >

> > I'm not knocking anyone here that has done that, is doing that, or

> will

> > do that... I'm hitting myself for having done that and it costing

> my my

> > thyroid gland..... I listened to the doc say that I was okay..

> that I

> > needed to lose weight.. that I should ENJOY being able to eat

> anything

> > and everything that I wanted and still lose weight....

> >

> > I was a body builder, I didn't have fat to lose.. I was losing

> muscle. I

> > was losing bone, I was damaging my internal organs. I could have

> died....

> > and I did lose my gland because by the time I was sick enough to

> see

> > another doctor it was too late to have treatment options... I was

> > scanned, weighed, handed a form to sign (releasing the HMO from

> all

> > consequences of the radiation I was about to take) A person in

> what

> > looked like a hazmat suit brought me a little metal box, carried

> with

> > tongs.... It was brought into the room and set on a table in front

> of

> > me... then everyone ran out of the room and watched through a

> window

> > while I opened it and took out a capsule and had to swallow it. I

> was

> > told to put the paper cup and the box in another container and

> close

> > it... then the hazmat guy took the container away and then others

> came

> > back into the room.... I was told to go straight home and to not

> be

> > around any people for 3 days, no kids for a week.

> >

> > Trust yourself.. if you know there is something wrong, and the doc

> says

> > you're fine.... tell him where to stick it and find a real doc.

> >

> > I was raised to respect my elders, and doctors and quite a few

> other

> > folks, just because of who they were. Not any more. Not after it

> cost me

> > the life that I had. If I know something is right, if someone else

> is

> > wrong... I'm not gonna be polite anymore.

> >

> > I lost my home, my car, everything I owned. I can't work any of

> the jobs

> > that I used to do, I can't even drive into town to get a job. I'm

> 46

> > years old and living with my father..... I'm treated like a ten

> year old

> > and continually reminded that this is not my home. I am considered

> lazy

> > and irresponsible and told I'm taking advantage of my father. No

> one

> > considers that I have a disability, it is not recognized. I'm just

> the

> > lazy kid that couldn't keep a job (it's not even taken into

> consideration

> > that the jobs I lost were from down-sizing and had nothing to do

> with

> > me). At my last job (2 hours each way by bus to get there, and for

> six

> > months that was done on crutches because I couldn't walk!) more

> than

> > thirty of us were pulled out of the building in the middle of the

> morning

> > and told we no longer had jobs. The remaining staff was pulled out

> a week

> > later. The following week the company filed for bankruptcy... so

> yep...

> > I'm lazy and irresponsible and can't hold down a job.

> >

> > Stand up for yourself!!!!!!

> >

> > *climbing down off soap box, head hanging low*

> >

> > Topper ()

> >

> > On Thu, 8 Jan 2004 02:53:01 -0700 " Shirley White "

>

> > writes:

> > > You go Topper!! I know " some " of your frustration,not all,as

> I've not

> > > been where you've been and pray God it will never happen.But if

>

> > > these so called Dr's would just sit down and listen! Tuesday

> when I

> > > called the dr,ohhhhhh the gidgey goo's were in my gut,I

> thought,I

> > > can't do this,but I kept you all in my mind,AND I did it!! And

> > > you're right or someone is,can't remember who posted it,but when

> the

> > > dr is challenged about his dx and you the patient want's to try

> a

> > > different treatment,,,,,look out!

> > > Shirley

> >

January 14, 2004