Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 Yes, I do have some nausia, mostly indigestion. Its way low...... By one of the scars from my laperoscopy (spelling again), by my ovary. Did your daughter have severe pain all the time? Mine comes and goes, the severe stuff, but the pinching is always there.......my belly is swollen some on that side too. UGH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 Yes, I do have some nausia, mostly indigestion. Its way low...... By one of the scars from my laperoscopy (spelling again), by my ovary. Did your daughter have severe pain all the time? Mine comes and goes, the severe stuff, but the pinching is always there.......my belly is swollen some on that side too. UGH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 Yes, I do have some nausia, mostly indigestion. Its way low...... By one of the scars from my laperoscopy (spelling again), by my ovary. Did your daughter have severe pain all the time? Mine comes and goes, the severe stuff, but the pinching is always there.......my belly is swollen some on that side too. UGH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 I am going right now. You got to me. Thanks Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 I am going right now. You got to me. Thanks Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 I am going right now. You got to me. Thanks Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 and Ashermans friends: I just got back from the ER and they had to do a Cat Scan. It was an Ovarion Cyst. " Adrexal Cyst Right side. 4X5 cm Hemorrhagic Adnexal Cyst with Mild Free fluid. I am writing that directly off my discharge paper. They were really vague. I feel and look horrible with a temp. They said the temp makes no sense. Help! Now, I am wondering if that could mean it is a " tumor. " Im freaking! I don't know if that can happen or not. Any clinical minded friends out there? ? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 and Ashermans friends: I just got back from the ER and they had to do a Cat Scan. It was an Ovarion Cyst. " Adrexal Cyst Right side. 4X5 cm Hemorrhagic Adnexal Cyst with Mild Free fluid. I am writing that directly off my discharge paper. They were really vague. I feel and look horrible with a temp. They said the temp makes no sense. Help! Now, I am wondering if that could mean it is a " tumor. " Im freaking! I don't know if that can happen or not. Any clinical minded friends out there? ? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 and Ashermans friends: I just got back from the ER and they had to do a Cat Scan. It was an Ovarion Cyst. " Adrexal Cyst Right side. 4X5 cm Hemorrhagic Adnexal Cyst with Mild Free fluid. I am writing that directly off my discharge paper. They were really vague. I feel and look horrible with a temp. They said the temp makes no sense. Help! Now, I am wondering if that could mean it is a " tumor. " Im freaking! I don't know if that can happen or not. Any clinical minded friends out there? ? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 : It has not burst yet. It is 4x5 cm and could be infected. My company really went to bat for me. They called me today and told me that they were trying to get my insurance a month ahead of time so that I can get the proper treatment. I work for the MUPPETS people. I couldnt believe it. So, I imagine I am in no danger. Doc says if it bursts, I could pass out. I have no idea what that is all about. Im so tired all the time. Its silly! I will have a good doc out here if it kills me. I am not from here. New to this state. Never trusted doctors. Im sure this situation stems from a laperoscopy that I had trying to " fix " my damaged ovary from Endometriosis. Even though I have Ashermans and have no success getting pregnant for 13 years through 4 lap's, i want my female organs people! They are being stubborn, I'll tell ya. It feels like waiting for a time bomb to go off. POP, and then its gone? I dont know. Could it pop and I wouldnt know it? Fever 99 still. Just enough to make me mad. Is there a chance they would tell me its a cyst and it could be a tunor? Does that sound dumb? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 : It has not burst yet. It is 4x5 cm and could be infected. My company really went to bat for me. They called me today and told me that they were trying to get my insurance a month ahead of time so that I can get the proper treatment. I work for the MUPPETS people. I couldnt believe it. So, I imagine I am in no danger. Doc says if it bursts, I could pass out. I have no idea what that is all about. Im so tired all the time. Its silly! I will have a good doc out here if it kills me. I am not from here. New to this state. Never trusted doctors. Im sure this situation stems from a laperoscopy that I had trying to " fix " my damaged ovary from Endometriosis. Even though I have Ashermans and have no success getting pregnant for 13 years through 4 lap's, i want my female organs people! They are being stubborn, I'll tell ya. It feels like waiting for a time bomb to go off. POP, and then its gone? I dont know. Could it pop and I wouldnt know it? Fever 99 still. Just enough to make me mad. Is there a chance they would tell me its a cyst and it could be a tunor? Does that sound dumb? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 Thanks julie! My employer called me tonight and told me that the higher ups at the company approved retro-ing my insurance back to 10/1/00, which means I am covered! I almost cried friends. They want me to go back to see the doc asap. My insurance is HMO, so it may be starting from scratch. Im from Baltimore, land. Live in California now. I guess these cyst things have nothing to do with the Ashermans? I hope that it all gets straight soon. I look really bad, and wonder why from a cyst? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 Thanks julie! My employer called me tonight and told me that the higher ups at the company approved retro-ing my insurance back to 10/1/00, which means I am covered! I almost cried friends. They want me to go back to see the doc asap. My insurance is HMO, so it may be starting from scratch. Im from Baltimore, land. Live in California now. I guess these cyst things have nothing to do with the Ashermans? I hope that it all gets straight soon. I look really bad, and wonder why from a cyst? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 Thanks julie! My employer called me tonight and told me that the higher ups at the company approved retro-ing my insurance back to 10/1/00, which means I am covered! I almost cried friends. They want me to go back to see the doc asap. My insurance is HMO, so it may be starting from scratch. Im from Baltimore, land. Live in California now. I guess these cyst things have nothing to do with the Ashermans? I hope that it all gets straight soon. I look really bad, and wonder why from a cyst? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 Debbie, where are you located? Muppets? (Sounds fun.) Are you in Los Angeles? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 Debbie, where are you located? Muppets? (Sounds fun.) Are you in Los Angeles? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 HI peoples: I have surgery for the Ovarian cyst Tuesday. They are going to check everything then. lap sugery. Cross your fingers. THanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 HI peoples: I have surgery for the Ovarian cyst Tuesday. They are going to check everything then. lap sugery. Cross your fingers. THanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 HI peoples: I have surgery for the Ovarian cyst Tuesday. They are going to check everything then. lap sugery. Cross your fingers. THanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Liana - Thank you for your prayers and well wishes. We live in Austin, TX and are doing quite well under the circumstances ( is a great kid and doing the best of all of us actually). There are several of us who have lost children to CHARGE either on this list actively or were on it in the past. We've now started our own list (CHARGE angels) where we can support each other and share our stories. Having that community support helps all of us greatly. I hope that you will never need to know more about our list and that your daughter and you get the help that you need. It looks like she has a determined mother and that will serve her well in the near future. My prayers and well wishes are with you as well. Hugs, Debbie From the keyboard of anoushigs: > YOU ARE A KIND PERSON AND I WANT TO THANK YOU FOR YOUR CONCERN. IM SO > SORRY ABOUT YOUR CHILD IF THERE IS SOMETHING I CAN DO TO HELP OR IF > YOU EVER NEED ANYTHING LET ME KNOW. I HAVENT LOST A CHILD BUT I CAN > FEEL HOW DIFFICULT IT MUST HAVE BEEN FOR YOU AND YOUR FAMILY. I THINK > THROUGH THIS SITE YOU ARE SOMEHOW COMMUNICATING WITH YOUR CHILD BY > HELPING OTHERS. I DONT KNOW IF I COULD STILL DO WHAT YOU DO I ADMIRE > YOU FOR THAT. I WILL PRAY FOR YOU AND YOUR FAMILY TONIGHT. IM > CONSTANTLY ALERT, I LIVE EVERYDAY LIKE SOMETHING BAD WILL HAPPEN TO > MY DAUGHTER. I ALWAYS CHECK TO SEE IF SHE IS BREATING SINCE SHE IS > ALWAYS HAS A STUFFY CHEST AND NOSE. IM SO AFRAID FOR HER LIFE. > > THANK YOU FOR YOUR HUGS AND KISSES. > WHERE ARE YOU FROM?? > HOW IS YOUR CHILD COPING? > > LOTS OF LOVE LIANA -- +== Debbie Tropiano == Mommy to 8/17/95 & ^Sara^ 10/25/00-11/7/00 ==+ | God shows His opposition to cancer and birth defects, not by | | eliminating them or making them happen only to bad people (He | | can't do that), but by summoning forth friends and neighbors to | | ease the burden and to fill the emptiness. -- Harold S. Kushner | +== debbie@... ============= URL http://www.icus.com/personal.html ==+ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Liana - Thank you for your prayers and well wishes. We live in Austin, TX and are doing quite well under the circumstances ( is a great kid and doing the best of all of us actually). There are several of us who have lost children to CHARGE either on this list actively or were on it in the past. We've now started our own list (CHARGE angels) where we can support each other and share our stories. Having that community support helps all of us greatly. I hope that you will never need to know more about our list and that your daughter and you get the help that you need. It looks like she has a determined mother and that will serve her well in the near future. My prayers and well wishes are with you as well. Hugs, Debbie From the keyboard of anoushigs: > YOU ARE A KIND PERSON AND I WANT TO THANK YOU FOR YOUR CONCERN. IM SO > SORRY ABOUT YOUR CHILD IF THERE IS SOMETHING I CAN DO TO HELP OR IF > YOU EVER NEED ANYTHING LET ME KNOW. I HAVENT LOST A CHILD BUT I CAN > FEEL HOW DIFFICULT IT MUST HAVE BEEN FOR YOU AND YOUR FAMILY. I THINK > THROUGH THIS SITE YOU ARE SOMEHOW COMMUNICATING WITH YOUR CHILD BY > HELPING OTHERS. I DONT KNOW IF I COULD STILL DO WHAT YOU DO I ADMIRE > YOU FOR THAT. I WILL PRAY FOR YOU AND YOUR FAMILY TONIGHT. IM > CONSTANTLY ALERT, I LIVE EVERYDAY LIKE SOMETHING BAD WILL HAPPEN TO > MY DAUGHTER. I ALWAYS CHECK TO SEE IF SHE IS BREATING SINCE SHE IS > ALWAYS HAS A STUFFY CHEST AND NOSE. IM SO AFRAID FOR HER LIFE. > > THANK YOU FOR YOUR HUGS AND KISSES. > WHERE ARE YOU FROM?? > HOW IS YOUR CHILD COPING? > > LOTS OF LOVE LIANA -- +== Debbie Tropiano == Mommy to 8/17/95 & ^Sara^ 10/25/00-11/7/00 ==+ | God shows His opposition to cancer and birth defects, not by | | eliminating them or making them happen only to bad people (He | | can't do that), but by summoning forth friends and neighbors to | | ease the burden and to fill the emptiness. -- Harold S. Kushner | +== debbie@... ============= URL http://www.icus.com/personal.html ==+ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Liana - Thank you for your prayers and well wishes. We live in Austin, TX and are doing quite well under the circumstances ( is a great kid and doing the best of all of us actually). There are several of us who have lost children to CHARGE either on this list actively or were on it in the past. We've now started our own list (CHARGE angels) where we can support each other and share our stories. Having that community support helps all of us greatly. I hope that you will never need to know more about our list and that your daughter and you get the help that you need. It looks like she has a determined mother and that will serve her well in the near future. My prayers and well wishes are with you as well. Hugs, Debbie From the keyboard of anoushigs: > YOU ARE A KIND PERSON AND I WANT TO THANK YOU FOR YOUR CONCERN. IM SO > SORRY ABOUT YOUR CHILD IF THERE IS SOMETHING I CAN DO TO HELP OR IF > YOU EVER NEED ANYTHING LET ME KNOW. I HAVENT LOST A CHILD BUT I CAN > FEEL HOW DIFFICULT IT MUST HAVE BEEN FOR YOU AND YOUR FAMILY. I THINK > THROUGH THIS SITE YOU ARE SOMEHOW COMMUNICATING WITH YOUR CHILD BY > HELPING OTHERS. I DONT KNOW IF I COULD STILL DO WHAT YOU DO I ADMIRE > YOU FOR THAT. I WILL PRAY FOR YOU AND YOUR FAMILY TONIGHT. IM > CONSTANTLY ALERT, I LIVE EVERYDAY LIKE SOMETHING BAD WILL HAPPEN TO > MY DAUGHTER. I ALWAYS CHECK TO SEE IF SHE IS BREATING SINCE SHE IS > ALWAYS HAS A STUFFY CHEST AND NOSE. IM SO AFRAID FOR HER LIFE. > > THANK YOU FOR YOUR HUGS AND KISSES. > WHERE ARE YOU FROM?? > HOW IS YOUR CHILD COPING? > > LOTS OF LOVE LIANA -- +== Debbie Tropiano == Mommy to 8/17/95 & ^Sara^ 10/25/00-11/7/00 ==+ | God shows His opposition to cancer and birth defects, not by | | eliminating them or making them happen only to bad people (He | | can't do that), but by summoning forth friends and neighbors to | | ease the burden and to fill the emptiness. -- Harold S. Kushner | +== debbie@... ============= URL http://www.icus.com/personal.html ==+ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Liana, Hi My name is I have a daughter with charge who is 10, she has the same as your daughter coloboma in one eye and it is smaller than the other. I remember when she was a baby thinking she was blind for months, she wouldn't follow anything at all. But she sees extremely well, blind in one eye and 20/70 in the other but you wouldn't believe how she seems to see almost as well as me! I couldn't picture her ever being able to walk, but she walks runs skates, swims, shoots hoops, and is a sweet, loving girl. Don't worry too much, it definately gets better... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 No problem!! LOL. Check out the FILES section of this site and you'll be MORE informed than most docs!! Janie aka ThyroDiva > Please forgive, I'm new at this. I found the info on the web site. > > > > > > What is calcitonin? Is it something to do with calcium? > Debbie K > > > Quote Link to comment Share on other sites More sharing options...
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