Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Dear Anita: I can certainly relate to and understand your situation. It seems that our timing on this decision is synchronized. I work at a school too and am on aygestin, loestrin, and now lupron again and I have had it too. I used up all of my sick leave and am planning to have an abdominal hysterectomy the first week of June. I don't want to see anymore blood, kotex-with or without wings, clots, bathrooms every 10 minutes or my little red backpack with my change of clothes and two pairs of underwear. Everything I've tried has failed ,so goodbye uterus. What are you going to do about your ovaries? I am not afraid of this surgery, in fact I am relieved to have finally made a decision in which there will never be a possibility of me bleeding again. I just wish there had been another solution for us that was easier. Hopefully, in the future there will be. Pam Ganser Ken Liggett wrote: Dear Friends, I guess the bleeding and clotting has finally worn me down. Again at work yesterday I couldn't stay out of the bathroom all morning. I got scared again that this was it I was just going to hemorrage. I called the Dr. and he wanted tosee me. I am off the aygestin and now taking a higher BC pill Two a day for now. I am going to get the Lupron shot in a couple of days and I decided to have a vaginal hysterectomy in July as soon as school is out. I hope I last that long. I have only one ovary that he will leave in place. Hopefully I don't have adhesions and he can complete the operation vaginally. I appreciate all the information and concern I received from all of you and will continue to monitor the e-mails. I'll let you know my experiences on Lupron. Thank you Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Dear Anita: I can certainly relate to and understand your situation. It seems that our timing on this decision is synchronized. I work at a school too and am on aygestin, loestrin, and now lupron again and I have had it too. I used up all of my sick leave and am planning to have an abdominal hysterectomy the first week of June. I don't want to see anymore blood, kotex-with or without wings, clots, bathrooms every 10 minutes or my little red backpack with my change of clothes and two pairs of underwear. Everything I've tried has failed ,so goodbye uterus. What are you going to do about your ovaries? I am not afraid of this surgery, in fact I am relieved to have finally made a decision in which there will never be a possibility of me bleeding again. I just wish there had been another solution for us that was easier. Hopefully, in the future there will be. Pam Ganser Ken Liggett wrote: Dear Friends, I guess the bleeding and clotting has finally worn me down. Again at work yesterday I couldn't stay out of the bathroom all morning. I got scared again that this was it I was just going to hemorrage. I called the Dr. and he wanted tosee me. I am off the aygestin and now taking a higher BC pill Two a day for now. I am going to get the Lupron shot in a couple of days and I decided to have a vaginal hysterectomy in July as soon as school is out. I hope I last that long. I have only one ovary that he will leave in place. Hopefully I don't have adhesions and he can complete the operation vaginally. I appreciate all the information and concern I received from all of you and will continue to monitor the e-mails. I'll let you know my experiences on Lupron. Thank you Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Dear Anita: I can certainly relate to and understand your situation. It seems that our timing on this decision is synchronized. I work at a school too and am on aygestin, loestrin, and now lupron again and I have had it too. I used up all of my sick leave and am planning to have an abdominal hysterectomy the first week of June. I don't want to see anymore blood, kotex-with or without wings, clots, bathrooms every 10 minutes or my little red backpack with my change of clothes and two pairs of underwear. Everything I've tried has failed ,so goodbye uterus. What are you going to do about your ovaries? I am not afraid of this surgery, in fact I am relieved to have finally made a decision in which there will never be a possibility of me bleeding again. I just wish there had been another solution for us that was easier. Hopefully, in the future there will be. Pam Ganser Ken Liggett wrote: Dear Friends, I guess the bleeding and clotting has finally worn me down. Again at work yesterday I couldn't stay out of the bathroom all morning. I got scared again that this was it I was just going to hemorrage. I called the Dr. and he wanted tosee me. I am off the aygestin and now taking a higher BC pill Two a day for now. I am going to get the Lupron shot in a couple of days and I decided to have a vaginal hysterectomy in July as soon as school is out. I hope I last that long. I have only one ovary that he will leave in place. Hopefully I don't have adhesions and he can complete the operation vaginally. I appreciate all the information and concern I received from all of you and will continue to monitor the e-mails. I'll let you know my experiences on Lupron. Thank you Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 Hi Guys. Boy did this hit me hard. Three years ago when I leanred these things had grown to the 20 week stage, I did the research and learned that " it was best to keep my uterus " for a) structural b)hormonal and c)sexual health. Ok. According to the same sources, I could have a myo no matter what size my uterus, no matter how many fibroids... WITH a bikini incision and WITH very little blood loss. OK!!! Fast recovery time too!! Then I began having consultations and that is NOT what I was told. In fact I was accused of being irrational and unreasonable. I eventually learned that nobody in my area was DOING this " new, improved " surgery. WHY????? I couldn't get them to tell me. So I looked at traveling to have surgery. My insurance at the time, a govt HMO, would not allow me to travel, even tho the policy stated that " for medical specialty, or when care is not available " I could go out of state. I went thru over 18 months of appeals and all I won was the right to go out of network but within my county which did not help at all, since no doctor here did the surgery or had ever done a successful myo on a uterus my size with this many fibroids. During this time my symptoms were taking over my life. I had gushing to the point of being afraid I would bleed to death almost every month. I became anemic. I had pain and pulling thruout the month and not just during my period. I had episodes of bladder spasms which sent me to the ER, bowels spasms which ended up putting me on medication, and developed such a severe consipation problem that Senokot and fiber have logging this has become a way of life. I have been reinstated on a plan which will allow me to travel...as of nine months ago, but by that time I had to move due to landlord problems and I was so debilitated that it took me all this time to get unpacked and settled and to a point where I felt organized enough to have this surgery. I have become increasingly desparate. I have pain from degenration and calcification (it feels like there is a sack of rocks in there) and the strain getting up and down from a seated position, walking any distance, going up and down stairs, well I am darn near handicapped from this. I began having erratic periods,like this last week, within two weeks of the last one! I feel like I am caving under the pressure of all of this. I have been recommended for UAE, but I am too burnt out to do the research right now. I had ruled that out due to my size and # of fibroids and also Carla's experience (losing uterine contraction). I have a couple of docs I could see for myo but they are all the way across the country and right now I don't feel up to the trip. Also, a woman who had a myo with Levine right about the time I began this, three years ago, ALREADY has regrowth and is having another surgery! I am NOT having TWO surgeries... Lap s/c hyst is looking pretty good. I like the fast recovery time. I like knowing that I will never bleed again or have any future problems. But I keep thinking about my original research. I will be setting myself up for loss of structural support in the pelvic area and possibly a life with Depends in the future. I could be looking at HRT which will be another whole bag of worms. And I will definetely lose the uterine contraction during orgasm which I still remember describing to my best friend all those years ago as a clenching, a " loins thing " ... and pretty terrific. I mean, that's the " big ending " ... how will sex end now? Three years ago I felt it was imperitive to hold on, not to lose anything. Now I am actually coming to terms with the idea of " growing old " of inevitable changes " facts of life " stuff. I don't know if I am , as I said, caving under the pressure, or finding " acceptance " . So now I am finding myself stymied and immobilized AGAIN. I don't know about you guys, but my family, friends, and boyfriend are SO SICK of hearing about this. I am SICK of talking about it. I feel like one of those women I used to hate, who go around discussing their gyn problems to get attention or just in inappropriate situations. I knew a couple of women like this at work and church when I was younger and I thought they had to be nuts to constantly talk about this. I have a real sense of urgency. I do not want to have another period. I want to get on with my life. I want all the hassle to go away and I want my time back and my energy. I want a flat stomach again. I want everyone to see that I finally " dealt with this " . BUT WHAT THE HECK IS THE ANSWER? I know that only I can decide. For the first time in my life I honestly don't know what to do now. This is going to be a week of much prayer and meditation, and if I can summons the energy, a re-look at all my reams and reams of research. B --- Pam Ganser wrote: > > Dear Anita: I can certainly relate to and > understand your situation. It seems that our timing > on this decision is synchronized. I work at a school > too and am on aygestin, loestrin, and now lupron > again and I have had it too. I used up all of my > sick leave and am planning to have an abdominal > hysterectomy the first week of June. I don't want to > see anymore blood, kotex-with or without wings, > clots, bathrooms every 10 minutes or my little red > backpack with my change of clothes and two pairs of > underwear. Everything I've tried has failed ,so > goodbye uterus. What are you going to do about your > ovaries? I am not afraid of this surgery, in fact I > am relieved to have finally made a decision in which > there will never be a possibility of me bleeding > again. I just wish there had been another solution > for us that was easier. Hopefully, in the future > there will be. Pam Ganser > > Ken Liggett wrote: > Dear Friends, > I guess the bleeding and clotting has finally worn > me down. Again at work yesterday I couldn't stay > out of the bathroom all morning. I got scared again > that this was it I was just going to hemorrage. I > called the Dr. and he wanted tosee me. I am off the > aygestin and now taking a higher BC pill > Two a day for now. I am going to get the Lupron > shot in a couple of days and I decided to have a > vaginal hysterectomy in July as soon as school is > out. I hope I last that long. I have only one > ovary that he will leave in place. Hopefully I > don't have adhesions and he can complete the > operation vaginally. I appreciate all the > information and concern I received from all of you > and will continue to monitor the e-mails. I'll let > you know my experiences on Lupron. Thank you > Anita > > > [Non-text portions of this message have been > removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 > > I feel like I am caving under the pressure of all of > this. I have been recommended for UAE, but I am too > burnt out to do the research right now. I had ruled > that out due to my size and # of fibroids and also > Carla's experience (losing uterine contraction). - You ruled UAE out before...this post and the one yesterday or the day before (when you said you had a consult about it) are the first I recall you even considering it. It sounds like you are still ruling it out, but just in case, PLEASE don't jump into UAE without giving it greater consideration and research than you have done so far. I had a successful UAE (so far - I am 6 weeks post) so I am a strong advocate for that procedure, but I had a 8 cm fibroid and I would have been more hesitant, as you have been, with your size uterus and number of fibroids. I'm not saying it shouldn't be considered, but there are some things you have said that disturbed me concerning the little you have written about UAE so far. Please e- mail me privately if you want me to expand on this (lbrowning@...). Regarding myomectomy and hysterectomy, I can only offer observations. I know you have been strongly considering myomectomy, but at your age (47?), you do have a chance that fibroids will grow back before you go into menopause, although perhaps not as soon or as quickly to cause the same problems you have now before you DO go into menopause. I don't think you have been unwise to pursue this route, especially since you have heeded the advice that you need a really experienced myomectomy doctor for your circumstances and you have made a strong effort to find one. As for hysterectomy, this seems always to be viewed as the most negative option possible, yet many women have been glad they have had it and it improved their quality of life greatly. After trying so hard to avoid hysterectomy, I think some women feel they have failed themselves to opt for it in the end. I don't think they should. Any option that is YOUR choice should not be viewed that way, even if you wish that another choice was more viable for you. This is just the way I look at it. Also, we need to keep reminding ourselves when we are looking at the positives and negatives of EACH treatment option, that we are not necessarily going to experience any of the negative side effects, much less ALL of them. It's scary not knowing what we WILL experience, but there's room to be optimistic about our outcomes, too. Good luck, . It hope that what you decide on will result in improved health for you very soon. B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 > > I feel like I am caving under the pressure of all of > this. I have been recommended for UAE, but I am too > burnt out to do the research right now. I had ruled > that out due to my size and # of fibroids and also > Carla's experience (losing uterine contraction). - You ruled UAE out before...this post and the one yesterday or the day before (when you said you had a consult about it) are the first I recall you even considering it. It sounds like you are still ruling it out, but just in case, PLEASE don't jump into UAE without giving it greater consideration and research than you have done so far. I had a successful UAE (so far - I am 6 weeks post) so I am a strong advocate for that procedure, but I had a 8 cm fibroid and I would have been more hesitant, as you have been, with your size uterus and number of fibroids. I'm not saying it shouldn't be considered, but there are some things you have said that disturbed me concerning the little you have written about UAE so far. Please e- mail me privately if you want me to expand on this (lbrowning@...). Regarding myomectomy and hysterectomy, I can only offer observations. I know you have been strongly considering myomectomy, but at your age (47?), you do have a chance that fibroids will grow back before you go into menopause, although perhaps not as soon or as quickly to cause the same problems you have now before you DO go into menopause. I don't think you have been unwise to pursue this route, especially since you have heeded the advice that you need a really experienced myomectomy doctor for your circumstances and you have made a strong effort to find one. As for hysterectomy, this seems always to be viewed as the most negative option possible, yet many women have been glad they have had it and it improved their quality of life greatly. After trying so hard to avoid hysterectomy, I think some women feel they have failed themselves to opt for it in the end. I don't think they should. Any option that is YOUR choice should not be viewed that way, even if you wish that another choice was more viable for you. This is just the way I look at it. Also, we need to keep reminding ourselves when we are looking at the positives and negatives of EACH treatment option, that we are not necessarily going to experience any of the negative side effects, much less ALL of them. It's scary not knowing what we WILL experience, but there's room to be optimistic about our outcomes, too. Good luck, . It hope that what you decide on will result in improved health for you very soon. B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 > > I feel like I am caving under the pressure of all of > this. I have been recommended for UAE, but I am too > burnt out to do the research right now. I had ruled > that out due to my size and # of fibroids and also > Carla's experience (losing uterine contraction). - You ruled UAE out before...this post and the one yesterday or the day before (when you said you had a consult about it) are the first I recall you even considering it. It sounds like you are still ruling it out, but just in case, PLEASE don't jump into UAE without giving it greater consideration and research than you have done so far. I had a successful UAE (so far - I am 6 weeks post) so I am a strong advocate for that procedure, but I had a 8 cm fibroid and I would have been more hesitant, as you have been, with your size uterus and number of fibroids. I'm not saying it shouldn't be considered, but there are some things you have said that disturbed me concerning the little you have written about UAE so far. Please e- mail me privately if you want me to expand on this (lbrowning@...). Regarding myomectomy and hysterectomy, I can only offer observations. I know you have been strongly considering myomectomy, but at your age (47?), you do have a chance that fibroids will grow back before you go into menopause, although perhaps not as soon or as quickly to cause the same problems you have now before you DO go into menopause. I don't think you have been unwise to pursue this route, especially since you have heeded the advice that you need a really experienced myomectomy doctor for your circumstances and you have made a strong effort to find one. As for hysterectomy, this seems always to be viewed as the most negative option possible, yet many women have been glad they have had it and it improved their quality of life greatly. After trying so hard to avoid hysterectomy, I think some women feel they have failed themselves to opt for it in the end. I don't think they should. Any option that is YOUR choice should not be viewed that way, even if you wish that another choice was more viable for you. This is just the way I look at it. Also, we need to keep reminding ourselves when we are looking at the positives and negatives of EACH treatment option, that we are not necessarily going to experience any of the negative side effects, much less ALL of them. It's scary not knowing what we WILL experience, but there's room to be optimistic about our outcomes, too. Good luck, . It hope that what you decide on will result in improved health for you very soon. B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 Dear : Is it possible that in our honest quests to gain knowledge and help ourselves in the best possible way that at some point we become overeducated and catatonic from the knowledge overload? I tried everything from new age LA chiropractors who thought they could " heal me " by having me hold a vial of progesterone to diet change, yoga, the Kaiser system, and then finally good medical attention with my medical group through Cedars Sinai. Nothing has worked. My uterus is too large and if I let this go on, it will only get worse. Wednesday when I was home from work bleeding again I made the decision in about a half second. It all seemed so clear. Everyone I speak to who has had a hysterectomy feels so much better and even though we don't know what HRT will bring, it has got to be better than this. Can you imagine not having to worry about when your next period will be in relation to vacations, work, LIFE???? You'll do what the right thing is for you and just " be " with the decision. Pam Ganser Belzer wrote: Hi Guys. Boy did this hit me hard. Three years ago when I leanred these things had grown to the 20 week stage, I did the research and learned that " it was best to keep my uterus " for a) structural b)hormonal and c)sexual health. Ok. According to the same sources, I could have a myo no matter what size my uterus, no matter how many fibroids... WITH a bikini incision and WITH very little blood loss. OK!!! Fast recovery time too!! Then I began having consultations and that is NOT what I was told. In fact I was accused of being irrational and unreasonable. I eventually learned that nobody in my area was DOING this " new, improved " surgery. WHY????? I couldn't get them to tell me. So I looked at traveling to have surgery. My insurance at the time, a govt HMO, would not allow me to travel, even tho the policy stated that " for medical specialty, or when care is not available " I could go out of state. I went thru over 18 months of appeals and all I won was the right to go out of network but within my county which did not help at all, since no doctor here did the surgery or had ever done a successful myo on a uterus my size with this many fibroids. During this time my symptoms were taking over my life. I had gushing to the point of being afraid I would bleed to death almost every month. I became anemic. I had pain and pulling thruout the month and not just during my period. I had episodes of bladder spasms which sent me to the ER, bowels spasms which ended up putting me on medication, and developed such a severe consipation problem that Senokot and fiber have logging this has become a way of life. I have been reinstated on a plan which will allow me to travel...as of nine months ago, but by that time I had to move due to landlord problems and I was so debilitated that it took me all this time to get unpacked and settled and to a point where I felt organized enough to have this surgery. I have become increasingly desparate. I have pain from degenration and calcification (it feels like there is a sack of rocks in there) and the strain getting up and down from a seated position, walking any distance, going up and down stairs, well I am darn near handicapped from this. I began having erratic periods,like this last week, within two weeks of the last one! I feel like I am caving under the pressure of all of this. I have been recommended for UAE, but I am too burnt out to do the research right now. I had ruled that out due to my size and # of fibroids and also Carla's experience (losing uterine contraction). I have a couple of docs I could see for myo but they are all the way across the country and right now I don't feel up to the trip. Also, a woman who had a myo with Levine right about the time I began this, three years ago, ALREADY has regrowth and is having another surgery! I am NOT having TWO surgeries... Lap s/c hyst is looking pretty good. I like the fast recovery time. I like knowing that I will never bleed again or have any future problems. But I keep thinking about my original research. I will be setting myself up for loss of structural support in the pelvic area and possibly a life with Depends in the future. I could be looking at HRT which will be another whole bag of worms. And I will definetely lose the uterine contraction during orgasm which I still remember describing to my best friend all those years ago as a clenching, a " loins thing " ... and pretty terrific. I mean, that's the " big ending " ... how will sex end now? Three years ago I felt it was imperitive to hold on, not to lose anything. Now I am actually coming to terms with the idea of " growing old " of inevitable changes " facts of life " stuff. I don't know if I am , as I said, caving under the pressure, or finding " acceptance " . So now I am finding myself stymied and immobilized AGAIN. I don't know about you guys, but my family, friends, and boyfriend are SO SICK of hearing about this. I am SICK of talking about it. I feel like one of those women I used to hate, who go around discussing their gyn problems to get attention or just in inappropriate situations. I knew a couple of women like this at work and church when I was younger and I thought they had to be nuts to constantly talk about this. I have a real sense of urgency. I do not want to have another period. I want to get on with my life. I want all the hassle to go away and I want my time back and my energy. I want a flat stomach again. I want everyone to see that I finally " dealt with this " . BUT WHAT THE HECK IS THE ANSWER? I know that only I can decide. For the first time in my life I honestly don't know what to do now. This is going to be a week of much prayer and meditation, and if I can summons the energy, a re-look at all my reams and reams of research. B --- Pam Ganser wrote: > > Dear Anita: I can certainly relate to and > understand your situation. It seems that our timing > on this decision is synchronized. I work at a school > too and am on aygestin, loestrin, and now lupron > again and I have had it too. I used up all of my > sick leave and am planning to have an abdominal > hysterectomy the first week of June. I don't want to > see anymore blood, kotex-with or without wings, > clots, bathrooms every 10 minutes or my little red > backpack with my change of clothes and two pairs of > underwear. Everything I've tried has failed ,so > goodbye uterus. What are you going to do about your > ovaries? I am not afraid of this surgery, in fact I > am relieved to have finally made a decision in which > there will never be a possibility of me bleeding > again. I just wish there had been another solution > for us that was easier. Hopefully, in the future > there will be. Pam Ganser > > Ken Liggett wrote: > Dear Friends, > I guess the bleeding and clotting has finally worn > me down. Again at work yesterday I couldn't stay > out of the bathroom all morning. I got scared again > that this was it I was just going to hemorrage. I > called the Dr. and he wanted tosee me. I am off the > aygestin and now taking a higher BC pill > Two a day for now. I am going to get the Lupron > shot in a couple of days and I decided to have a > vaginal hysterectomy in July as soon as school is > out. I hope I last that long. I have only one > ovary that he will leave in place. Hopefully I > don't have adhesions and he can complete the > operation vaginally. I appreciate all the > information and concern I received from all of you > and will continue to monitor the e-mails. I'll let > you know my experiences on Lupron. Thank you > Anita > > > [Non-text portions of this message have been > removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 Dear : Is it possible that in our honest quests to gain knowledge and help ourselves in the best possible way that at some point we become overeducated and catatonic from the knowledge overload? I tried everything from new age LA chiropractors who thought they could " heal me " by having me hold a vial of progesterone to diet change, yoga, the Kaiser system, and then finally good medical attention with my medical group through Cedars Sinai. Nothing has worked. My uterus is too large and if I let this go on, it will only get worse. Wednesday when I was home from work bleeding again I made the decision in about a half second. It all seemed so clear. Everyone I speak to who has had a hysterectomy feels so much better and even though we don't know what HRT will bring, it has got to be better than this. Can you imagine not having to worry about when your next period will be in relation to vacations, work, LIFE???? You'll do what the right thing is for you and just " be " with the decision. Pam Ganser Belzer wrote: Hi Guys. Boy did this hit me hard. Three years ago when I leanred these things had grown to the 20 week stage, I did the research and learned that " it was best to keep my uterus " for a) structural b)hormonal and c)sexual health. Ok. According to the same sources, I could have a myo no matter what size my uterus, no matter how many fibroids... WITH a bikini incision and WITH very little blood loss. OK!!! Fast recovery time too!! Then I began having consultations and that is NOT what I was told. In fact I was accused of being irrational and unreasonable. I eventually learned that nobody in my area was DOING this " new, improved " surgery. WHY????? I couldn't get them to tell me. So I looked at traveling to have surgery. My insurance at the time, a govt HMO, would not allow me to travel, even tho the policy stated that " for medical specialty, or when care is not available " I could go out of state. I went thru over 18 months of appeals and all I won was the right to go out of network but within my county which did not help at all, since no doctor here did the surgery or had ever done a successful myo on a uterus my size with this many fibroids. During this time my symptoms were taking over my life. I had gushing to the point of being afraid I would bleed to death almost every month. I became anemic. I had pain and pulling thruout the month and not just during my period. I had episodes of bladder spasms which sent me to the ER, bowels spasms which ended up putting me on medication, and developed such a severe consipation problem that Senokot and fiber have logging this has become a way of life. I have been reinstated on a plan which will allow me to travel...as of nine months ago, but by that time I had to move due to landlord problems and I was so debilitated that it took me all this time to get unpacked and settled and to a point where I felt organized enough to have this surgery. I have become increasingly desparate. I have pain from degenration and calcification (it feels like there is a sack of rocks in there) and the strain getting up and down from a seated position, walking any distance, going up and down stairs, well I am darn near handicapped from this. I began having erratic periods,like this last week, within two weeks of the last one! I feel like I am caving under the pressure of all of this. I have been recommended for UAE, but I am too burnt out to do the research right now. I had ruled that out due to my size and # of fibroids and also Carla's experience (losing uterine contraction). I have a couple of docs I could see for myo but they are all the way across the country and right now I don't feel up to the trip. Also, a woman who had a myo with Levine right about the time I began this, three years ago, ALREADY has regrowth and is having another surgery! I am NOT having TWO surgeries... Lap s/c hyst is looking pretty good. I like the fast recovery time. I like knowing that I will never bleed again or have any future problems. But I keep thinking about my original research. I will be setting myself up for loss of structural support in the pelvic area and possibly a life with Depends in the future. I could be looking at HRT which will be another whole bag of worms. And I will definetely lose the uterine contraction during orgasm which I still remember describing to my best friend all those years ago as a clenching, a " loins thing " ... and pretty terrific. I mean, that's the " big ending " ... how will sex end now? Three years ago I felt it was imperitive to hold on, not to lose anything. Now I am actually coming to terms with the idea of " growing old " of inevitable changes " facts of life " stuff. I don't know if I am , as I said, caving under the pressure, or finding " acceptance " . So now I am finding myself stymied and immobilized AGAIN. I don't know about you guys, but my family, friends, and boyfriend are SO SICK of hearing about this. I am SICK of talking about it. I feel like one of those women I used to hate, who go around discussing their gyn problems to get attention or just in inappropriate situations. I knew a couple of women like this at work and church when I was younger and I thought they had to be nuts to constantly talk about this. I have a real sense of urgency. I do not want to have another period. I want to get on with my life. I want all the hassle to go away and I want my time back and my energy. I want a flat stomach again. I want everyone to see that I finally " dealt with this " . BUT WHAT THE HECK IS THE ANSWER? I know that only I can decide. For the first time in my life I honestly don't know what to do now. This is going to be a week of much prayer and meditation, and if I can summons the energy, a re-look at all my reams and reams of research. B --- Pam Ganser wrote: > > Dear Anita: I can certainly relate to and > understand your situation. It seems that our timing > on this decision is synchronized. I work at a school > too and am on aygestin, loestrin, and now lupron > again and I have had it too. I used up all of my > sick leave and am planning to have an abdominal > hysterectomy the first week of June. I don't want to > see anymore blood, kotex-with or without wings, > clots, bathrooms every 10 minutes or my little red > backpack with my change of clothes and two pairs of > underwear. Everything I've tried has failed ,so > goodbye uterus. What are you going to do about your > ovaries? I am not afraid of this surgery, in fact I > am relieved to have finally made a decision in which > there will never be a possibility of me bleeding > again. I just wish there had been another solution > for us that was easier. Hopefully, in the future > there will be. Pam Ganser > > Ken Liggett wrote: > Dear Friends, > I guess the bleeding and clotting has finally worn > me down. Again at work yesterday I couldn't stay > out of the bathroom all morning. I got scared again > that this was it I was just going to hemorrage. I > called the Dr. and he wanted tosee me. I am off the > aygestin and now taking a higher BC pill > Two a day for now. I am going to get the Lupron > shot in a couple of days and I decided to have a > vaginal hysterectomy in July as soon as school is > out. I hope I last that long. I have only one > ovary that he will leave in place. Hopefully I > don't have adhesions and he can complete the > operation vaginally. I appreciate all the > information and concern I received from all of you > and will continue to monitor the e-mails. I'll let > you know my experiences on Lupron. Thank you > Anita > > > [Non-text portions of this message have been > removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 Dear : Is it possible that in our honest quests to gain knowledge and help ourselves in the best possible way that at some point we become overeducated and catatonic from the knowledge overload? I tried everything from new age LA chiropractors who thought they could " heal me " by having me hold a vial of progesterone to diet change, yoga, the Kaiser system, and then finally good medical attention with my medical group through Cedars Sinai. Nothing has worked. My uterus is too large and if I let this go on, it will only get worse. Wednesday when I was home from work bleeding again I made the decision in about a half second. It all seemed so clear. Everyone I speak to who has had a hysterectomy feels so much better and even though we don't know what HRT will bring, it has got to be better than this. Can you imagine not having to worry about when your next period will be in relation to vacations, work, LIFE???? You'll do what the right thing is for you and just " be " with the decision. Pam Ganser Belzer wrote: Hi Guys. Boy did this hit me hard. Three years ago when I leanred these things had grown to the 20 week stage, I did the research and learned that " it was best to keep my uterus " for a) structural b)hormonal and c)sexual health. Ok. According to the same sources, I could have a myo no matter what size my uterus, no matter how many fibroids... WITH a bikini incision and WITH very little blood loss. OK!!! Fast recovery time too!! Then I began having consultations and that is NOT what I was told. In fact I was accused of being irrational and unreasonable. I eventually learned that nobody in my area was DOING this " new, improved " surgery. WHY????? I couldn't get them to tell me. So I looked at traveling to have surgery. My insurance at the time, a govt HMO, would not allow me to travel, even tho the policy stated that " for medical specialty, or when care is not available " I could go out of state. I went thru over 18 months of appeals and all I won was the right to go out of network but within my county which did not help at all, since no doctor here did the surgery or had ever done a successful myo on a uterus my size with this many fibroids. During this time my symptoms were taking over my life. I had gushing to the point of being afraid I would bleed to death almost every month. I became anemic. I had pain and pulling thruout the month and not just during my period. I had episodes of bladder spasms which sent me to the ER, bowels spasms which ended up putting me on medication, and developed such a severe consipation problem that Senokot and fiber have logging this has become a way of life. I have been reinstated on a plan which will allow me to travel...as of nine months ago, but by that time I had to move due to landlord problems and I was so debilitated that it took me all this time to get unpacked and settled and to a point where I felt organized enough to have this surgery. I have become increasingly desparate. I have pain from degenration and calcification (it feels like there is a sack of rocks in there) and the strain getting up and down from a seated position, walking any distance, going up and down stairs, well I am darn near handicapped from this. I began having erratic periods,like this last week, within two weeks of the last one! I feel like I am caving under the pressure of all of this. I have been recommended for UAE, but I am too burnt out to do the research right now. I had ruled that out due to my size and # of fibroids and also Carla's experience (losing uterine contraction). I have a couple of docs I could see for myo but they are all the way across the country and right now I don't feel up to the trip. Also, a woman who had a myo with Levine right about the time I began this, three years ago, ALREADY has regrowth and is having another surgery! I am NOT having TWO surgeries... Lap s/c hyst is looking pretty good. I like the fast recovery time. I like knowing that I will never bleed again or have any future problems. But I keep thinking about my original research. I will be setting myself up for loss of structural support in the pelvic area and possibly a life with Depends in the future. I could be looking at HRT which will be another whole bag of worms. And I will definetely lose the uterine contraction during orgasm which I still remember describing to my best friend all those years ago as a clenching, a " loins thing " ... and pretty terrific. I mean, that's the " big ending " ... how will sex end now? Three years ago I felt it was imperitive to hold on, not to lose anything. Now I am actually coming to terms with the idea of " growing old " of inevitable changes " facts of life " stuff. I don't know if I am , as I said, caving under the pressure, or finding " acceptance " . So now I am finding myself stymied and immobilized AGAIN. I don't know about you guys, but my family, friends, and boyfriend are SO SICK of hearing about this. I am SICK of talking about it. I feel like one of those women I used to hate, who go around discussing their gyn problems to get attention or just in inappropriate situations. I knew a couple of women like this at work and church when I was younger and I thought they had to be nuts to constantly talk about this. I have a real sense of urgency. I do not want to have another period. I want to get on with my life. I want all the hassle to go away and I want my time back and my energy. I want a flat stomach again. I want everyone to see that I finally " dealt with this " . BUT WHAT THE HECK IS THE ANSWER? I know that only I can decide. For the first time in my life I honestly don't know what to do now. This is going to be a week of much prayer and meditation, and if I can summons the energy, a re-look at all my reams and reams of research. B --- Pam Ganser wrote: > > Dear Anita: I can certainly relate to and > understand your situation. It seems that our timing > on this decision is synchronized. I work at a school > too and am on aygestin, loestrin, and now lupron > again and I have had it too. I used up all of my > sick leave and am planning to have an abdominal > hysterectomy the first week of June. I don't want to > see anymore blood, kotex-with or without wings, > clots, bathrooms every 10 minutes or my little red > backpack with my change of clothes and two pairs of > underwear. Everything I've tried has failed ,so > goodbye uterus. What are you going to do about your > ovaries? I am not afraid of this surgery, in fact I > am relieved to have finally made a decision in which > there will never be a possibility of me bleeding > again. I just wish there had been another solution > for us that was easier. Hopefully, in the future > there will be. Pam Ganser > > Ken Liggett wrote: > Dear Friends, > I guess the bleeding and clotting has finally worn > me down. Again at work yesterday I couldn't stay > out of the bathroom all morning. I got scared again > that this was it I was just going to hemorrage. I > called the Dr. and he wanted tosee me. I am off the > aygestin and now taking a higher BC pill > Two a day for now. I am going to get the Lupron > shot in a couple of days and I decided to have a > vaginal hysterectomy in July as soon as school is > out. I hope I last that long. I have only one > ovary that he will leave in place. Hopefully I > don't have adhesions and he can complete the > operation vaginally. I appreciate all the > information and concern I received from all of you > and will continue to monitor the e-mails. I'll let > you know my experiences on Lupron. Thank you > Anita > > > [Non-text portions of this message have been > removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 , Send Dr. an email and ask him if he knows of a capable Laparoscopic myomectomy surgeon in your area or near you. Call information in Santa , CA and talk to Dr. 's nurse or get a message to him. Also, send an email or call the www.adlap.com doctors and ask them if they know of someone near you. Dr. told me that some Lap myo's can be performed on an outpatient basis, and it takes 7 - 10 day's to return to doing normal life stuff. I just found out about a Lap myo capable doctor, Dr. Alan in Fort Worth TX. I've been doing the research for about 8 months and just found out about Dr. this week. I live in Austin, TX. Austin is a very advanced technology city, very progressive, economically thriving, highly educated population, etc. And I can't find a lap myo surgeon here. To me this demonstrates the real absence of capable gyn's. Too few people know much beyond delivering a baby in female gynecology. But through perseverance, our daughters won't suffer from this absence. If you can finance this, I think it would be worth the money to buy a myo for yourself. I was listening to a talk radio show today, Dr. Dean Edell, he mentioned considering the process of financing your medical care then suing the HMO with all the proof after you've paid and proven the medical case. You sound like you've run out of time, and I'm very sorry to hear this. You've taught me the lesson of not postponing this for too long. Thanks and Good Luck, Debbie Re: decision made > Hi Guys. Boy did this hit me hard. Three years ago > when I leanred these things had grown to the 20 week > stage, I did the research and learned that " it was > best to keep my uterus " for a) structural b)hormonal > and c)sexual health. Ok. According to the same > sources, I could have a myo no matter what size my > uterus, no matter how many fibroids... WITH a bikini > incision and WITH very little blood loss. OK!!! Fast > recovery time too!! > > Then I began having consultations and that is NOT what > I was told. In fact I was accused of being irrational > and unreasonable. I eventually learned that nobody in > my area was DOING this " new, improved " surgery. > WHY????? I couldn't get them to tell me. > > So I looked at traveling to have surgery. My > insurance at the time, a govt HMO, would not allow me > to travel, even tho the policy stated that " for > medical specialty, or when care is not available " I > could go out of state. I went thru over 18 months of > appeals and all I won was the right to go out of > network but within my county which did not help at > all, since no doctor here did the surgery or had ever > done a successful myo on a uterus my size with this > many fibroids. > > During this time my symptoms were taking over my life. > I had gushing to the point of being afraid I would > bleed to death almost every month. I became anemic. > I had pain and pulling thruout the month and not just > during my period. I had episodes of bladder spasms > which sent me to the ER, bowels spasms which ended up > putting me on medication, and developed such a severe > consipation problem that Senokot and fiber have > logging this has become a way of life. > > I have been reinstated on a plan which will allow me > to travel...as of nine months ago, but by that time I > had to move due to landlord problems and I was so > debilitated that it took me all this time to get > unpacked and settled and to a point where I felt > organized enough to have this surgery. I have become > increasingly desparate. I have pain from degenration > and calcification (it feels like there is a sack of > rocks in there) and the strain getting up and down > from a seated position, walking any distance, going up > and down stairs, well I am darn near handicapped from > this. > > I began having erratic periods,like this last week, > within two weeks of the last one! > > I feel like I am caving under the pressure of all of > this. I have been recommended for UAE, but I am too > burnt out to do the research right now. I had ruled > that out due to my size and # of fibroids and also > Carla's experience (losing uterine contraction). I > have a couple of docs I could see for myo but they are > all the way across the country and right now I don't > feel up to the trip. Also, a woman who had a myo with > Levine right about the time I began this, three years > ago, ALREADY has regrowth and is having another > surgery! I am NOT having TWO surgeries... > > Lap s/c hyst is looking pretty good. I like the fast > recovery time. I like knowing that I will never bleed > again or have any future problems. But I keep > thinking about my original research. I will be > setting myself up for loss of structural support in > the pelvic area and possibly a life with Depends in > the future. I could be looking at HRT which will be > another whole bag of worms. And I will definetely > lose the uterine contraction during orgasm which I > still remember describing to my best friend all those > years ago as a clenching, a " loins thing " ... and > pretty terrific. I mean, that's the " big ending " ... > how will sex end now? > > Three years ago I felt it was imperitive to hold on, > not to lose anything. Now I am actually coming to > terms with the idea of " growing old " of inevitable > changes " facts of life " stuff. I don't know if I am > , as I said, caving under the pressure, or finding > " acceptance " . > > So now I am finding myself stymied and immobilized > AGAIN. I don't know about you guys, but my family, > friends, and boyfriend are SO SICK of hearing about > this. I am SICK of talking about it. I feel like one > of those women I used to hate, who go around > discussing their gyn problems to get attention or just > in inappropriate situations. I knew a couple of women > like this at work and church when I was younger and I > thought they had to be nuts to constantly talk about > this. > > I have a real sense of urgency. I do not want to have > another period. I want to get on with my life. I > want all the hassle to go away and I want my time back > and my energy. I want a flat stomach again. I want > everyone to see that I finally " dealt with this " . > > BUT WHAT THE HECK IS THE ANSWER? I know that only I > can decide. For the first time in my life I honestly > don't know what to do now. > > This is going to be a week of much prayer and > meditation, and if I can summons the energy, a re-look > at all my reams and reams of research. > > B > > --- Pam Ganser wrote: > > > > Dear Anita: I can certainly relate to and > > understand your situation. It seems that our timing > > on this decision is synchronized. I work at a school > > too and am on aygestin, loestrin, and now lupron > > again and I have had it too. I used up all of my > > sick leave and am planning to have an abdominal > > hysterectomy the first week of June. I don't want to > > see anymore blood, kotex-with or without wings, > > clots, bathrooms every 10 minutes or my little red > > backpack with my change of clothes and two pairs of > > underwear. Everything I've tried has failed ,so > > goodbye uterus. What are you going to do about your > > ovaries? I am not afraid of this surgery, in fact I > > am relieved to have finally made a decision in which > > there will never be a possibility of me bleeding > > again. I just wish there had been another solution > > for us that was easier. Hopefully, in the future > > there will be. Pam Ganser > > > > Ken Liggett wrote: > > Dear Friends, > > I guess the bleeding and clotting has finally worn > > me down. Again at work yesterday I couldn't stay > > out of the bathroom all morning. I got scared again > > that this was it I was just going to hemorrage. I > > called the Dr. and he wanted tosee me. I am off the > > aygestin and now taking a higher BC pill > > Two a day for now. I am going to get the Lupron > > shot in a couple of days and I decided to have a > > vaginal hysterectomy in July as soon as school is > > out. I hope I last that long. I have only one > > ovary that he will leave in place. Hopefully I > > don't have adhesions and he can complete the > > operation vaginally. I appreciate all the > > information and concern I received from all of you > > and will continue to monitor the e-mails. I'll let > > you know my experiences on Lupron. Thank you > > Anita > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 Pam, I don't think there is such a thing as " over education " . I think the real problem is that there is not a big enough population of gyn's that can perform myo's and/or IR's that can perform UAE's. I believe it's been scientifically proven that Hysterectomy's are unnecessarily over prescribed. Too many women have/are suffering unnecessarily because of these hystorectomy's. This is why today you see this new growing interest and exchange of information like this email news group. We are evolving, that's not " over education " . Sure, many of us will continue to submit to the unnecessary hysto, but not because it's the right thing, because it's the only thing available. However, it is NOT the right thing. Live's we love and value have been compromised because nothing better than hysto's were available. We need to to find better solutions....we need to keep doing the research. - Debbie Re: decision made > > Dear : Is it possible that in our honest quests to gain knowledge and help ourselves in the best possible way that at some point we become overeducated and catatonic from the knowledge overload? I tried everything from new age LA chiropractors who thought they could " heal me " by having me hold a vial of progesterone to diet change, yoga, the Kaiser system, and then finally good medical attention with my medical group through Cedars Sinai. Nothing has worked. My uterus is too large and if I let this go on, it will only get worse. Wednesday when I was home from work bleeding again I made the decision in about a half second. It all seemed so clear. Everyone I speak to who has had a hysterectomy feels so much better and even though we don't know what HRT will bring, it has got to be better than this. Can you imagine not having to worry about when your next period will be in relation to vacations, work, LIFE???? You'll do what the right thing is for you and just " be " with th! > e decision. Pam Ganser > > > Belzer wrote: > > Hi Guys. Boy did this hit me hard. Three years ago > when I leanred these things had grown to the 20 week > stage, I did the research and learned that " it was > best to keep my uterus " for a) structural b)hormonal > and c)sexual health. Ok. According to the same > sources, I could have a myo no matter what size my > uterus, no matter how many fibroids... WITH a bikini > incision and WITH very little blood loss. OK!!! Fast > recovery time too!! > > Then I began having consultations and that is NOT what > I was told. In fact I was accused of being irrational > and unreasonable. I eventually learned that nobody in > my area was DOING this " new, improved " surgery. > WHY????? I couldn't get them to tell me. > > So I looked at traveling to have surgery. My > insurance at the time, a govt HMO, would not allow me > to travel, even tho the policy stated that " for > medical specialty, or when care is not available " I > could go out of state. I went thru over 18 months of > appeals and all I won was the right to go out of > network but within my county which did not help at > all, since no doctor here did the surgery or had ever > done a successful myo on a uterus my size with this > many fibroids. > > During this time my symptoms were taking over my life. > I had gushing to the point of being afraid I would > bleed to death almost every month. I became anemic. > I had pain and pulling thruout the month and not just > during my period. I had episodes of bladder spasms > which sent me to the ER, bowels spasms which ended up > putting me on medication, and developed such a severe > consipation problem that Senokot and fiber have > logging this has become a way of life. > > I have been reinstated on a plan which will allow me > to travel...as of nine months ago, but by that time I > had to move due to landlord problems and I was so > debilitated that it took me all this time to get > unpacked and settled and to a point where I felt > organized enough to have this surgery. I have become > increasingly desparate. I have pain from degenration > and calcification (it feels like there is a sack of > rocks in there) and the strain getting up and down > from a seated position, walking any distance, going up > and down stairs, well I am darn near handicapped from > this. > > I began having erratic periods,like this last week, > within two weeks of the last one! > > I feel like I am caving under the pressure of all of > this. I have been recommended for UAE, but I am too > burnt out to do the research right now. I had ruled > that out due to my size and # of fibroids and also > Carla's experience (losing uterine contraction). I > have a couple of docs I could see for myo but they are > all the way across the country and right now I don't > feel up to the trip. Also, a woman who had a myo with > Levine right about the time I began this, three years > ago, ALREADY has regrowth and is having another > surgery! I am NOT having TWO surgeries... > > Lap s/c hyst is looking pretty good. I like the fast > recovery time. I like knowing that I will never bleed > again or have any future problems. But I keep > thinking about my original research. I will be > setting myself up for loss of structural support in > the pelvic area and possibly a life with Depends in > the future. I could be looking at HRT which will be > another whole bag of worms. And I will definetely > lose the uterine contraction during orgasm which I > still remember describing to my best friend all those > years ago as a clenching, a " loins thing " ... and > pretty terrific. I mean, that's the " big ending " ... > how will sex end now? > > Three years ago I felt it was imperitive to hold on, > not to lose anything. Now I am actually coming to > terms with the idea of " growing old " of inevitable > changes " facts of life " stuff. I don't know if I am > , as I said, caving under the pressure, or finding > " acceptance " . > > So now I am finding myself stymied and immobilized > AGAIN. I don't know about you guys, but my family, > friends, and boyfriend are SO SICK of hearing about > this. I am SICK of talking about it. I feel like one > of those women I used to hate, who go around > discussing their gyn problems to get attention or just > in inappropriate situations. I knew a couple of women > like this at work and church when I was younger and I > thought they had to be nuts to constantly talk about > this. > > I have a real sense of urgency. I do not want to have > another period. I want to get on with my life. I > want all the hassle to go away and I want my time back > and my energy. I want a flat stomach again. I want > everyone to see that I finally " dealt with this " . > > BUT WHAT THE HECK IS THE ANSWER? I know that only I > can decide. For the first time in my life I honestly > don't know what to do now. > > This is going to be a week of much prayer and > meditation, and if I can summons the energy, a re-look > at all my reams and reams of research. > > B > > --- Pam Ganser wrote: > > > > Dear Anita: I can certainly relate to and > > understand your situation. It seems that our timing > > on this decision is synchronized. I work at a school > > too and am on aygestin, loestrin, and now lupron > > again and I have had it too. I used up all of my > > sick leave and am planning to have an abdominal > > hysterectomy the first week of June. I don't want to > > see anymore blood, kotex-with or without wings, > > clots, bathrooms every 10 minutes or my little red > > backpack with my change of clothes and two pairs of > > underwear. Everything I've tried has failed ,so > > goodbye uterus. What are you going to do about your > > ovaries? I am not afraid of this surgery, in fact I > > am relieved to have finally made a decision in which > > there will never be a possibility of me bleeding > > again. I just wish there had been another solution > > for us that was easier. Hopefully, in the future > > there will be. Pam Ganser > > > > Ken Liggett wrote: > > Dear Friends, > > I guess the bleeding and clotting has finally worn > > me down. Again at work yesterday I couldn't stay > > out of the bathroom all morning. I got scared again > > that this was it I was just going to hemorrage. I > > called the Dr. and he wanted tosee me. I am off the > > aygestin and now taking a higher BC pill > > Two a day for now. I am going to get the Lupron > > shot in a couple of days and I decided to have a > > vaginal hysterectomy in July as soon as school is > > out. I hope I last that long. I have only one > > ovary that he will leave in place. Hopefully I > > don't have adhesions and he can complete the > > operation vaginally. I appreciate all the > > information and concern I received from all of you > > and will continue to monitor the e-mails. I'll let > > you know my experiences on Lupron. Thank you > > Anita > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Debbie: I think in my case I was overloaded by the things I read and it was not helpful in the end. Hysterectomy is my only alternative now as I do not ever want another period again. Other things are at stake in my life too, like my job and relationship. I've had enough. I hope you understand. I certainly don't want to be chastised for making a decision to have a hysterectomy. Pam Debra Armendariz wrote: Pam, I don't think there is such a thing as " over education " . I think the real problem is that there is not a big enough population of gyn's that can perform myo's and/or IR's that can perform UAE's. I believe it's been scientifically proven that Hysterectomy's are unnecessarily over prescribed. Too many women have/are suffering unnecessarily because of these hystorectomy's. This is why today you see this new growing interest and exchange of information like this email news group. We are evolving, that's not " over education " . Sure, many of us will continue to submit to the unnecessary hysto, but not because it's the right thing, because it's the only thing available. However, it is NOT the right thing. Live's we love and value have been compromised because nothing better than hysto's were available. We need to to find better solutions....we need to keep doing the research. - Debbie Re: decision made > > Dear : Is it possible that in our honest quests to gain knowledge and help ourselves in the best possible way that at some point we become overeducated and catatonic from the knowledge overload? I tried everything from new age LA chiropractors who thought they could " heal me " by having me hold a vial of progesterone to diet change, yoga, the Kaiser system, and then finally good medical attention with my medical group through Cedars Sinai. Nothing has worked. My uterus is too large and if I let this go on, it will only get worse. Wednesday when I was home from work bleeding again I made the decision in about a half second. It all seemed so clear. Everyone I speak to who has had a hysterectomy feels so much better and even though we don't know what HRT will bring, it has got to be better than this. Can you imagine not having to worry about when your next period will be in relation to vacations, work, LIFE???? You'll do what the right thing is for you and just " be " with th! > e decision. Pam Ganser > > > Belzer wrote: > > Hi Guys. Boy did this hit me hard. Three years ago > when I leanred these things had grown to the 20 week > stage, I did the research and learned that " it was > best to keep my uterus " for a) structural b)hormonal > and c)sexual health. Ok. According to the same > sources, I could have a myo no matter what size my > uterus, no matter how many fibroids... WITH a bikini > incision and WITH very little blood loss. OK!!! Fast > recovery time too!! > > Then I began having consultations and that is NOT what > I was told. In fact I was accused of being irrational > and unreasonable. I eventually learned that nobody in > my area was DOING this " new, improved " surgery. > WHY????? I couldn't get them to tell me. > > So I looked at traveling to have surgery. My > insurance at the time, a govt HMO, would not allow me > to travel, even tho the policy stated that " for > medical specialty, or when care is not available " I > could go out of state. I went thru over 18 months of > appeals and all I won was the right to go out of > network but within my county which did not help at > all, since no doctor here did the surgery or had ever > done a successful myo on a uterus my size with this > many fibroids. > > During this time my symptoms were taking over my life. > I had gushing to the point of being afraid I would > bleed to death almost every month. I became anemic. > I had pain and pulling thruout the month and not just > during my period. I had episodes of bladder spasms > which sent me to the ER, bowels spasms which ended up > putting me on medication, and developed such a severe > consipation problem that Senokot and fiber have > logging this has become a way of life. > > I have been reinstated on a plan which will allow me > to travel...as of nine months ago, but by that time I > had to move due to landlord problems and I was so > debilitated that it took me all this time to get > unpacked and settled and to a point where I felt > organized enough to have this surgery. I have become > increasingly desparate. I have pain from degenration > and calcification (it feels like there is a sack of > rocks in there) and the strain getting up and down > from a seated position, walking any distance, going up > and down stairs, well I am darn near handicapped from > this. > > I began having erratic periods,like this last week, > within two weeks of the last one! > > I feel like I am caving under the pressure of all of > this. I have been recommended for UAE, but I am too > burnt out to do the research right now. I had ruled > that out due to my size and # of fibroids and also > Carla's experience (losing uterine contraction). I > have a couple of docs I could see for myo but they are > all the way across the country and right now I don't > feel up to the trip. Also, a woman who had a myo with > Levine right about the time I began this, three years > ago, ALREADY has regrowth and is having another > surgery! I am NOT having TWO surgeries... > > Lap s/c hyst is looking pretty good. I like the fast > recovery time. I like knowing that I will never bleed > again or have any future problems. But I keep > thinking about my original research. I will be > setting myself up for loss of structural support in > the pelvic area and possibly a life with Depends in > the future. I could be looking at HRT which will be > another whole bag of worms. And I will definetely > lose the uterine contraction during orgasm which I > still remember describing to my best friend all those > years ago as a clenching, a " loins thing " ... and > pretty terrific. I mean, that's the " big ending " ... > how will sex end now? > > Three years ago I felt it was imperitive to hold on, > not to lose anything. Now I am actually coming to > terms with the idea of " growing old " of inevitable > changes " facts of life " stuff. I don't know if I am > , as I said, caving under the pressure, or finding > " acceptance " . > > So now I am finding myself stymied and immobilized > AGAIN. I don't know about you guys, but my family, > friends, and boyfriend are SO SICK of hearing about > this. I am SICK of talking about it. I feel like one > of those women I used to hate, who go around > discussing their gyn problems to get attention or just > in inappropriate situations. I knew a couple of women > like this at work and church when I was younger and I > thought they had to be nuts to constantly talk about > this. > > I have a real sense of urgency. I do not want to have > another period. I want to get on with my life. I > want all the hassle to go away and I want my time back > and my energy. I want a flat stomach again. I want > everyone to see that I finally " dealt with this " . > > BUT WHAT THE HECK IS THE ANSWER? I know that only I > can decide. For the first time in my life I honestly > don't know what to do now. > > This is going to be a week of much prayer and > meditation, and if I can summons the energy, a re-look > at all my reams and reams of research. > > B > > --- Pam Ganser wrote: > > > > Dear Anita: I can certainly relate to and > > understand your situation. It seems that our timing > > on this decision is synchronized. I work at a school > > too and am on aygestin, loestrin, and now lupron > > again and I have had it too. I used up all of my > > sick leave and am planning to have an abdominal > > hysterectomy the first week of June. I don't want to > > see anymore blood, kotex-with or without wings, > > clots, bathrooms every 10 minutes or my little red > > backpack with my change of clothes and two pairs of > > underwear. Everything I've tried has failed ,so > > goodbye uterus. What are you going to do about your > > ovaries? I am not afraid of this surgery, in fact I > > am relieved to have finally made a decision in which > > there will never be a possibility of me bleeding > > again. I just wish there had been another solution > > for us that was easier. Hopefully, in the future > > there will be. Pam Ganser > > > > Ken Liggett wrote: > > Dear Friends, > > I guess the bleeding and clotting has finally worn > > me down. Again at work yesterday I couldn't stay > > out of the bathroom all morning. I got scared again > > that this was it I was just going to hemorrage. I > > called the Dr. and he wanted tosee me. I am off the > > aygestin and now taking a higher BC pill > > Two a day for now. I am going to get the Lupron > > shot in a couple of days and I decided to have a > > vaginal hysterectomy in July as soon as school is > > out. I hope I last that long. I have only one > > ovary that he will leave in place. Hopefully I > > don't have adhesions and he can complete the > > operation vaginally. I appreciate all the > > information and concern I received from all of you > > and will continue to monitor the e-mails. I'll let > > you know my experiences on Lupron. Thank you > > Anita > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 , Pam, and Anita, If you decide on hysterectomies, please consider a subtotal hysterectomy, in which the cervix is left in. This helps in structural support of pelvic organs. Also, why do your ovaries necessarily have to come out? Doctors are routinely removing ovaries of women over 45, to protect against ovarian cancer. But ovarian cancer is rare, and even with the ovaries removed, cancer can still appear. If you leave the ovaries in, you have a better than 50% chance that they will continue to function. Therese Re: decision made Hi Guys. Boy did this hit me hard. Three years ago when I leanred these things had grown to the 20 week stage, I did the research and learned that " it was best to keep my uterus " for a) structural b)hormonal and c)sexual health. Ok. According to the same sources, I could have a myo no matter what size my uterus, no matter how many fibroids... WITH a bikini incision and WITH very little blood loss. OK!!! Fast recovery time too!! Then I began having consultations and that is NOT what I was told. In fact I was accused of being irrational and unreasonable. I eventually learned that nobody in my area was DOING this " new, improved " surgery. WHY????? I couldn't get them to tell me. So I looked at traveling to have surgery. My insurance at the time, a govt HMO, would not allow me to travel, even tho the policy stated that " for medical specialty, or when care is not available " I could go out of state. I went thru over 18 months of appeals and all I won was the right to go out of network but within my county which did not help at all, since no doctor here did the surgery or had ever done a successful myo on a uterus my size with this many fibroids. During this time my symptoms were taking over my life. I had gushing to the point of being afraid I would bleed to death almost every month. I became anemic. I had pain and pulling thruout the month and not just during my period. I had episodes of bladder spasms which sent me to the ER, bowels spasms which ended up putting me on medication, and developed such a severe consipation problem that Senokot and fiber have logging this has become a way of life. I have been reinstated on a plan which will allow me to travel...as of nine months ago, but by that time I had to move due to landlord problems and I was so debilitated that it took me all this time to get unpacked and settled and to a point where I felt organized enough to have this surgery. I have become increasingly desparate. I have pain from degenration and calcification (it feels like there is a sack of rocks in there) and the strain getting up and down from a seated position, walking any distance, going up and down stairs, well I am darn near handicapped from this. I began having erratic periods,like this last week, within two weeks of the last one! I feel like I am caving under the pressure of all of this. I have been recommended for UAE, but I am too burnt out to do the research right now. I had ruled that out due to my size and # of fibroids and also Carla's experience (losing uterine contraction). I have a couple of docs I could see for myo but they are all the way across the country and right now I don't feel up to the trip. Also, a woman who had a myo with Levine right about the time I began this, three years ago, ALREADY has regrowth and is having another surgery! I am NOT having TWO surgeries... Lap s/c hyst is looking pretty good. I like the fast recovery time. I like knowing that I will never bleed again or have any future problems. But I keep thinking about my original research. I will be setting myself up for loss of structural support in the pelvic area and possibly a life with Depends in the future. I could be looking at HRT which will be another whole bag of worms. And I will definetely lose the uterine contraction during orgasm which I still remember describing to my best friend all those years ago as a clenching, a " loins thing " ... and pretty terrific. I mean, that's the " big ending " ... how will sex end now? Three years ago I felt it was imperitive to hold on, not to lose anything. Now I am actually coming to terms with the idea of " growing old " of inevitable changes " facts of life " stuff. I don't know if I am , as I said, caving under the pressure, or finding " acceptance " . So now I am finding myself stymied and immobilized AGAIN. I don't know about you guys, but my family, friends, and boyfriend are SO SICK of hearing about this. I am SICK of talking about it. I feel like one of those women I used to hate, who go around discussing their gyn problems to get attention or just in inappropriate situations. I knew a couple of women like this at work and church when I was younger and I thought they had to be nuts to constantly talk about this. I have a real sense of urgency. I do not want to have another period. I want to get on with my life. I want all the hassle to go away and I want my time back and my energy. I want a flat stomach again. I want everyone to see that I finally " dealt with this " . BUT WHAT THE HECK IS THE ANSWER? I know that only I can decide. For the first time in my life I honestly don't know what to do now. This is going to be a week of much prayer and meditation, and if I can summons the energy, a re-look at all my reams and reams of research. B --- Pam Ganser wrote: > > Dear Anita: I can certainly relate to and > understand your situation. It seems that our timing > on this decision is synchronized. I work at a school > too and am on aygestin, loestrin, and now lupron > again and I have had it too. I used up all of my > sick leave and am planning to have an abdominal > hysterectomy the first week of June. I don't want to > see anymore blood, kotex-with or without wings, > clots, bathrooms every 10 minutes or my little red > backpack with my change of clothes and two pairs of > underwear. Everything I've tried has failed ,so > goodbye uterus. What are you going to do about your > ovaries? I am not afraid of this surgery, in fact I > am relieved to have finally made a decision in which > there will never be a possibility of me bleeding > again. I just wish there had been another solution > for us that was easier. Hopefully, in the future > there will be. Pam Ganser > > Ken Liggett wrote: > Dear Friends, > I guess the bleeding and clotting has finally worn > me down. Again at work yesterday I couldn't stay > out of the bathroom all morning. I got scared again > that this was it I was just going to hemorrage. I > called the Dr. and he wanted tosee me. I am off the > aygestin and now taking a higher BC pill > Two a day for now. I am going to get the Lupron > shot in a couple of days and I decided to have a > vaginal hysterectomy in July as soon as school is > out. I hope I last that long. I have only one > ovary that he will leave in place. Hopefully I > don't have adhesions and he can complete the > operation vaginally. I appreciate all the > information and concern I received from all of you > and will continue to monitor the e-mails. I'll let > you know my experiences on Lupron. Thank you > Anita > > > [Non-text portions of this message have been > removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 , Pam, and Anita, If you decide on hysterectomies, please consider a subtotal hysterectomy, in which the cervix is left in. This helps in structural support of pelvic organs. Also, why do your ovaries necessarily have to come out? Doctors are routinely removing ovaries of women over 45, to protect against ovarian cancer. But ovarian cancer is rare, and even with the ovaries removed, cancer can still appear. If you leave the ovaries in, you have a better than 50% chance that they will continue to function. Therese Re: decision made Hi Guys. Boy did this hit me hard. Three years ago when I leanred these things had grown to the 20 week stage, I did the research and learned that " it was best to keep my uterus " for a) structural b)hormonal and c)sexual health. Ok. According to the same sources, I could have a myo no matter what size my uterus, no matter how many fibroids... WITH a bikini incision and WITH very little blood loss. OK!!! Fast recovery time too!! Then I began having consultations and that is NOT what I was told. In fact I was accused of being irrational and unreasonable. I eventually learned that nobody in my area was DOING this " new, improved " surgery. WHY????? I couldn't get them to tell me. So I looked at traveling to have surgery. My insurance at the time, a govt HMO, would not allow me to travel, even tho the policy stated that " for medical specialty, or when care is not available " I could go out of state. I went thru over 18 months of appeals and all I won was the right to go out of network but within my county which did not help at all, since no doctor here did the surgery or had ever done a successful myo on a uterus my size with this many fibroids. During this time my symptoms were taking over my life. I had gushing to the point of being afraid I would bleed to death almost every month. I became anemic. I had pain and pulling thruout the month and not just during my period. I had episodes of bladder spasms which sent me to the ER, bowels spasms which ended up putting me on medication, and developed such a severe consipation problem that Senokot and fiber have logging this has become a way of life. I have been reinstated on a plan which will allow me to travel...as of nine months ago, but by that time I had to move due to landlord problems and I was so debilitated that it took me all this time to get unpacked and settled and to a point where I felt organized enough to have this surgery. I have become increasingly desparate. I have pain from degenration and calcification (it feels like there is a sack of rocks in there) and the strain getting up and down from a seated position, walking any distance, going up and down stairs, well I am darn near handicapped from this. I began having erratic periods,like this last week, within two weeks of the last one! I feel like I am caving under the pressure of all of this. I have been recommended for UAE, but I am too burnt out to do the research right now. I had ruled that out due to my size and # of fibroids and also Carla's experience (losing uterine contraction). I have a couple of docs I could see for myo but they are all the way across the country and right now I don't feel up to the trip. Also, a woman who had a myo with Levine right about the time I began this, three years ago, ALREADY has regrowth and is having another surgery! I am NOT having TWO surgeries... Lap s/c hyst is looking pretty good. I like the fast recovery time. I like knowing that I will never bleed again or have any future problems. But I keep thinking about my original research. I will be setting myself up for loss of structural support in the pelvic area and possibly a life with Depends in the future. I could be looking at HRT which will be another whole bag of worms. And I will definetely lose the uterine contraction during orgasm which I still remember describing to my best friend all those years ago as a clenching, a " loins thing " ... and pretty terrific. I mean, that's the " big ending " ... how will sex end now? Three years ago I felt it was imperitive to hold on, not to lose anything. Now I am actually coming to terms with the idea of " growing old " of inevitable changes " facts of life " stuff. I don't know if I am , as I said, caving under the pressure, or finding " acceptance " . So now I am finding myself stymied and immobilized AGAIN. I don't know about you guys, but my family, friends, and boyfriend are SO SICK of hearing about this. I am SICK of talking about it. I feel like one of those women I used to hate, who go around discussing their gyn problems to get attention or just in inappropriate situations. I knew a couple of women like this at work and church when I was younger and I thought they had to be nuts to constantly talk about this. I have a real sense of urgency. I do not want to have another period. I want to get on with my life. I want all the hassle to go away and I want my time back and my energy. I want a flat stomach again. I want everyone to see that I finally " dealt with this " . BUT WHAT THE HECK IS THE ANSWER? I know that only I can decide. For the first time in my life I honestly don't know what to do now. This is going to be a week of much prayer and meditation, and if I can summons the energy, a re-look at all my reams and reams of research. B --- Pam Ganser wrote: > > Dear Anita: I can certainly relate to and > understand your situation. It seems that our timing > on this decision is synchronized. I work at a school > too and am on aygestin, loestrin, and now lupron > again and I have had it too. I used up all of my > sick leave and am planning to have an abdominal > hysterectomy the first week of June. I don't want to > see anymore blood, kotex-with or without wings, > clots, bathrooms every 10 minutes or my little red > backpack with my change of clothes and two pairs of > underwear. Everything I've tried has failed ,so > goodbye uterus. What are you going to do about your > ovaries? I am not afraid of this surgery, in fact I > am relieved to have finally made a decision in which > there will never be a possibility of me bleeding > again. I just wish there had been another solution > for us that was easier. Hopefully, in the future > there will be. Pam Ganser > > Ken Liggett wrote: > Dear Friends, > I guess the bleeding and clotting has finally worn > me down. Again at work yesterday I couldn't stay > out of the bathroom all morning. I got scared again > that this was it I was just going to hemorrage. I > called the Dr. and he wanted tosee me. I am off the > aygestin and now taking a higher BC pill > Two a day for now. I am going to get the Lupron > shot in a couple of days and I decided to have a > vaginal hysterectomy in July as soon as school is > out. I hope I last that long. I have only one > ovary that he will leave in place. Hopefully I > don't have adhesions and he can complete the > operation vaginally. I appreciate all the > information and concern I received from all of you > and will continue to monitor the e-mails. I'll let > you know my experiences on Lupron. Thank you > Anita > > > [Non-text portions of this message have been > removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 , Pam, and Anita, If you decide on hysterectomies, please consider a subtotal hysterectomy, in which the cervix is left in. This helps in structural support of pelvic organs. Also, why do your ovaries necessarily have to come out? Doctors are routinely removing ovaries of women over 45, to protect against ovarian cancer. But ovarian cancer is rare, and even with the ovaries removed, cancer can still appear. If you leave the ovaries in, you have a better than 50% chance that they will continue to function. Therese Re: decision made Hi Guys. Boy did this hit me hard. Three years ago when I leanred these things had grown to the 20 week stage, I did the research and learned that " it was best to keep my uterus " for a) structural b)hormonal and c)sexual health. Ok. According to the same sources, I could have a myo no matter what size my uterus, no matter how many fibroids... WITH a bikini incision and WITH very little blood loss. OK!!! Fast recovery time too!! Then I began having consultations and that is NOT what I was told. In fact I was accused of being irrational and unreasonable. I eventually learned that nobody in my area was DOING this " new, improved " surgery. WHY????? I couldn't get them to tell me. So I looked at traveling to have surgery. My insurance at the time, a govt HMO, would not allow me to travel, even tho the policy stated that " for medical specialty, or when care is not available " I could go out of state. I went thru over 18 months of appeals and all I won was the right to go out of network but within my county which did not help at all, since no doctor here did the surgery or had ever done a successful myo on a uterus my size with this many fibroids. During this time my symptoms were taking over my life. I had gushing to the point of being afraid I would bleed to death almost every month. I became anemic. I had pain and pulling thruout the month and not just during my period. I had episodes of bladder spasms which sent me to the ER, bowels spasms which ended up putting me on medication, and developed such a severe consipation problem that Senokot and fiber have logging this has become a way of life. I have been reinstated on a plan which will allow me to travel...as of nine months ago, but by that time I had to move due to landlord problems and I was so debilitated that it took me all this time to get unpacked and settled and to a point where I felt organized enough to have this surgery. I have become increasingly desparate. I have pain from degenration and calcification (it feels like there is a sack of rocks in there) and the strain getting up and down from a seated position, walking any distance, going up and down stairs, well I am darn near handicapped from this. I began having erratic periods,like this last week, within two weeks of the last one! I feel like I am caving under the pressure of all of this. I have been recommended for UAE, but I am too burnt out to do the research right now. I had ruled that out due to my size and # of fibroids and also Carla's experience (losing uterine contraction). I have a couple of docs I could see for myo but they are all the way across the country and right now I don't feel up to the trip. Also, a woman who had a myo with Levine right about the time I began this, three years ago, ALREADY has regrowth and is having another surgery! I am NOT having TWO surgeries... Lap s/c hyst is looking pretty good. I like the fast recovery time. I like knowing that I will never bleed again or have any future problems. But I keep thinking about my original research. I will be setting myself up for loss of structural support in the pelvic area and possibly a life with Depends in the future. I could be looking at HRT which will be another whole bag of worms. And I will definetely lose the uterine contraction during orgasm which I still remember describing to my best friend all those years ago as a clenching, a " loins thing " ... and pretty terrific. I mean, that's the " big ending " ... how will sex end now? Three years ago I felt it was imperitive to hold on, not to lose anything. Now I am actually coming to terms with the idea of " growing old " of inevitable changes " facts of life " stuff. I don't know if I am , as I said, caving under the pressure, or finding " acceptance " . So now I am finding myself stymied and immobilized AGAIN. I don't know about you guys, but my family, friends, and boyfriend are SO SICK of hearing about this. I am SICK of talking about it. I feel like one of those women I used to hate, who go around discussing their gyn problems to get attention or just in inappropriate situations. I knew a couple of women like this at work and church when I was younger and I thought they had to be nuts to constantly talk about this. I have a real sense of urgency. I do not want to have another period. I want to get on with my life. I want all the hassle to go away and I want my time back and my energy. I want a flat stomach again. I want everyone to see that I finally " dealt with this " . BUT WHAT THE HECK IS THE ANSWER? I know that only I can decide. For the first time in my life I honestly don't know what to do now. This is going to be a week of much prayer and meditation, and if I can summons the energy, a re-look at all my reams and reams of research. B --- Pam Ganser wrote: > > Dear Anita: I can certainly relate to and > understand your situation. It seems that our timing > on this decision is synchronized. I work at a school > too and am on aygestin, loestrin, and now lupron > again and I have had it too. I used up all of my > sick leave and am planning to have an abdominal > hysterectomy the first week of June. I don't want to > see anymore blood, kotex-with or without wings, > clots, bathrooms every 10 minutes or my little red > backpack with my change of clothes and two pairs of > underwear. Everything I've tried has failed ,so > goodbye uterus. What are you going to do about your > ovaries? I am not afraid of this surgery, in fact I > am relieved to have finally made a decision in which > there will never be a possibility of me bleeding > again. I just wish there had been another solution > for us that was easier. Hopefully, in the future > there will be. Pam Ganser > > Ken Liggett wrote: > Dear Friends, > I guess the bleeding and clotting has finally worn > me down. Again at work yesterday I couldn't stay > out of the bathroom all morning. I got scared again > that this was it I was just going to hemorrage. I > called the Dr. and he wanted tosee me. I am off the > aygestin and now taking a higher BC pill > Two a day for now. I am going to get the Lupron > shot in a couple of days and I decided to have a > vaginal hysterectomy in July as soon as school is > out. I hope I last that long. I have only one > ovary that he will leave in place. Hopefully I > don't have adhesions and he can complete the > operation vaginally. I appreciate all the > information and concern I received from all of you > and will continue to monitor the e-mails. I'll let > you know my experiences on Lupron. Thank you > Anita > > > [Non-text portions of this message have been > removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Debbie, I feel the same way! Especially living in Dallas you would think that there would be more than one or two Docs performing these types of procedures..They have performed many of the procudures but doing just a couple isn't enough experience in my book. I've found a couple here in Dallas that perform myo's but now it's just getting the info out of them..how many myos have you done, how many were successful? etc. I thought about the lap myo but I hear that the uterus is weaker with this procudure and since I'll be trying to conceive I need to stick with the abdominal myo. I wonder if Dr. Alan is experienced in abdominal myos. I would like to get his phone # from you as Fort Worth is only 30 minutes from me. Thanks in advance for your response. SKY --- Debra Armendariz wrote: > , > > Send Dr. an email and ask him if he > knows of a capable > Laparoscopic myomectomy surgeon in your area or near > you. Call information > in Santa , CA and talk to Dr. 's nurse > or get a message to him. > Also, send an email or call the www.adlap.com > doctors and ask them if they > know of someone near you. > > Dr. told me that some Lap myo's can be > performed on an outpatient > basis, and it takes 7 - 10 day's to return to doing > normal life stuff. I > just found out about a Lap myo capable doctor, Dr. > Alan in Fort Worth > TX. I've been doing the research for about 8 months > and just found out > about Dr. this week. I live in Austin, TX. > Austin is a very advanced > technology city, very progressive, economically > thriving, highly educated > population, etc. And I can't find a lap myo surgeon > here. To me this > demonstrates the real absence of capable gyn's. Too > few people know much > beyond delivering a baby in female gynecology. But > through perseverance, > our daughters won't suffer from this absence. > > If you can finance this, I think it would be worth > the money to buy a myo > for yourself. I was listening to a talk radio show > today, Dr. Dean Edell, > he mentioned considering the process of financing > your medical care then > suing the HMO with all the proof after you've paid > and proven the medical > case. > > You sound like you've run out of time, and I'm very > sorry to hear this. > You've taught me the lesson of not postponing this > for too long. > Thanks and Good Luck, > Debbie > > > > Re: decision made > > > > Hi Guys. Boy did this hit me hard. Three years > ago > > when I leanred these things had grown to the 20 > week > > stage, I did the research and learned that " it was > > best to keep my uterus " for a) structural > b)hormonal > > and c)sexual health. Ok. According to the same > > sources, I could have a myo no matter what size my > > uterus, no matter how many fibroids... WITH a > bikini > > incision and WITH very little blood loss. OK!!! > Fast > > recovery time too!! > > > > Then I began having consultations and that is NOT > what > > I was told. In fact I was accused of being > irrational > > and unreasonable. I eventually learned that > nobody in > > my area was DOING this " new, improved " surgery. > > WHY????? I couldn't get them to tell me. > > > > So I looked at traveling to have surgery. My > > insurance at the time, a govt HMO, would not allow > me > > to travel, even tho the policy stated that " for > > medical specialty, or when care is not available " > I > > could go out of state. I went thru over 18 months > of > > appeals and all I won was the right to go out of > > network but within my county which did not help at > > all, since no doctor here did the surgery or had > ever > > done a successful myo on a uterus my size with > this > > many fibroids. > > > > During this time my symptoms were taking over my > life. > > I had gushing to the point of being afraid I > would > > bleed to death almost every month. I became > anemic. > > I had pain and pulling thruout the month and not > just > > during my period. I had episodes of bladder > spasms > > which sent me to the ER, bowels spasms which ended > up > > putting me on medication, and developed such a > severe > > consipation problem that Senokot and fiber have > > logging this has become a way of life. > > > > I have been reinstated on a plan which will allow > me > > to travel...as of nine months ago, but by that > time I > > had to move due to landlord problems and I was so > > debilitated that it took me all this time to get > > unpacked and settled and to a point where I felt > > organized enough to have this surgery. I have > become > > increasingly desparate. I have pain from > degenration > > and calcification (it feels like there is a sack > of > > rocks in there) and the strain getting up and down > > from a seated position, walking any distance, > going up > > and down stairs, well I am darn near handicapped > from > > this. > > > > I began having erratic periods,like this last > week, > > within two weeks of the last one! > > > > I feel like I am caving under the pressure of all > of > > this. I have been recommended for UAE, but I am > too > > burnt out to do the research right now. I had > ruled > > that out due to my size and # of fibroids and also > > Carla's experience (losing uterine contraction). > I > > have a couple of docs I could see for myo but they > are > > all the way across the country and right now I > don't > > feel up to the trip. Also, a woman who had a myo > with > > Levine right about the time I began this, three > years > > ago, ALREADY has regrowth and is having another > > surgery! I am NOT having TWO surgeries... > > > > Lap s/c hyst is looking pretty good. I like the > fast > > recovery time. I like knowing that I will never > bleed > > again or have any future problems. But I keep > > thinking about my original research. I will be > > setting myself up for loss of structural support > in > > the pelvic area and possibly a life with Depends > in > > the future. I could be looking at HRT which will > be > > another whole bag of worms. And I will definetely > > lose the uterine contraction during orgasm which I > > still remember describing to my best friend all > those > > years ago as a clenching, a " loins thing " ... and > > pretty terrific. I mean, that's the " big > ending " ... > > how will sex end now? > > > > Three years ago I felt it was imperitive to hold > on, > > not to lose anything. Now I am actually coming to > > terms with the idea of " growing old " of > inevitable > > changes " facts of life " stuff. I don't know if I > am > > , as I said, caving under the pressure, or finding > > " acceptance " . > > > > So now I am finding myself stymied and immobilized > > AGAIN. I don't know about you guys, but my > family, > > friends, and boyfriend are SO SICK of hearing > about > > this. I am SICK of talking about it. I feel like > one > > of those women I used to hate, who go around > > discussing their gyn problems to get attention or > just > > in inappropriate situations. I knew a couple of > women > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Pam, I didn't mean for my email to come across as a chastise. This fibroid alone is too much to deal with. My best wishes and support are intended for you no matter which option you choose. Re: decision made > > > > > > Dear : Is it possible that in our honest quests to gain knowledge and > help ourselves in the best possible way that at some point we become > overeducated and catatonic from the knowledge overload? I tried everything > from new age LA chiropractors who thought they could " heal me " by having me > hold a vial of progesterone to diet change, yoga, the Kaiser system, and > then finally good medical attention with my medical group through Cedars > Sinai. Nothing has worked. My uterus is too large and if I let this go on, > it will only get worse. Wednesday when I was home from work bleeding again I > made the decision in about a half second. It all seemed so clear. Everyone I > speak to who has had a hysterectomy feels so much better and even though we > don't know what HRT will bring, it has got to be better than this. Can you > imagine not having to worry about when your next period will be in relation > to vacations, work, LIFE???? You'll do what the right thing is for you and > just " be " with th! > > e decision. Pam Ganser > > > > > > Belzer wrote: > > > > Hi Guys. Boy did this hit me hard. Three years ago > > when I leanred these things had grown to the 20 week > > stage, I did the research and learned that " it was > > best to keep my uterus " for a) structural b)hormonal > > and c)sexual health. Ok. According to the same > > sources, I could have a myo no matter what size my > > uterus, no matter how many fibroids... WITH a bikini > > incision and WITH very little blood loss. OK!!! Fast > > recovery time too!! > > > > Then I began having consultations and that is NOT what > > I was told. In fact I was accused of being irrational > > and unreasonable. I eventually learned that nobody in > > my area was DOING this " new, improved " surgery. > > WHY????? I couldn't get them to tell me. > > > > So I looked at traveling to have surgery. My > > insurance at the time, a govt HMO, would not allow me > > to travel, even tho the policy stated that " for > > medical specialty, or when care is not available " I > > could go out of state. I went thru over 18 months of > > appeals and all I won was the right to go out of > > network but within my county which did not help at > > all, since no doctor here did the surgery or had ever > > done a successful myo on a uterus my size with this > > many fibroids. > > > > During this time my symptoms were taking over my life. > > I had gushing to the point of being afraid I would > > bleed to death almost every month. I became anemic. > > I had pain and pulling thruout the month and not just > > during my period. I had episodes of bladder spasms > > which sent me to the ER, bowels spasms which ended up > > putting me on medication, and developed such a severe > > consipation problem that Senokot and fiber have > > logging this has become a way of life. > > > > I have been reinstated on a plan which will allow me > > to travel...as of nine months ago, but by that time I > > had to move due to landlord problems and I was so > > debilitated that it took me all this time to get > > unpacked and settled and to a point where I felt > > organized enough to have this surgery. I have become > > increasingly desparate. I have pain from degenration > > and calcification (it feels like there is a sack of > > rocks in there) and the strain getting up and down > > from a seated position, walking any distance, going up > > and down stairs, well I am darn near handicapped from > > this. > > > > I began having erratic periods,like this last week, > > within two weeks of the last one! > > > > I feel like I am caving under the pressure of all of > > this. I have been recommended for UAE, but I am too > > burnt out to do the research right now. I had ruled > > that out due to my size and # of fibroids and also > > Carla's experience (losing uterine contraction). I > > have a couple of docs I could see for myo but they are > > all the way across the country and right now I don't > > feel up to the trip. Also, a woman who had a myo with > > Levine right about the time I began this, three years > > ago, ALREADY has regrowth and is having another > > surgery! I am NOT having TWO surgeries... > > > > Lap s/c hyst is looking pretty good. I like the fast > > recovery time. I like knowing that I will never bleed > > again or have any future problems. But I keep > > thinking about my original research. I will be > > setting myself up for loss of structural support in > > the pelvic area and possibly a life with Depends in > > the future. I could be looking at HRT which will be > > another whole bag of worms. And I will definetely > > lose the uterine contraction during orgasm which I > > still remember describing to my best friend all those > > years ago as a clenching, a " loins thing " ... and > > pretty terrific. I mean, that's the " big ending " ... > > how will sex end now? > > > > Three years ago I felt it was imperitive to hold on, > > not to lose anything. Now I am actually coming to > > terms with the idea of " growing old " of inevitable > > changes " facts of life " stuff. I don't know if I am > > , as I said, caving under the pressure, or finding > > " acceptance " . > > > > So now I am finding myself stymied and immobilized > > AGAIN. I don't know about you guys, but my family, > > friends, and boyfriend are SO SICK of hearing about > > this. I am SICK of talking about it. I feel like one > > of those women I used to hate, who go around > > discussing their gyn problems to get attention or just > > in inappropriate situations. I knew a couple of women > > like this at work and church when I was younger and I > > thought they had to be nuts to constantly talk about > > this. > > > > I have a real sense of urgency. I do not want to have > > another period. I want to get on with my life. I > > want all the hassle to go away and I want my time back > > and my energy. I want a flat stomach again. I want > > everyone to see that I finally " dealt with this " . > > > > BUT WHAT THE HECK IS THE ANSWER? I know that only I > > can decide. For the first time in my life I honestly > > don't know what to do now. > > > > This is going to be a week of much prayer and > > meditation, and if I can summons the energy, a re-look > > at all my reams and reams of research. > > > > B > > > > --- Pam Ganser wrote: > > > > > > Dear Anita: I can certainly relate to and > > > understand your situation. It seems that our timing > > > on this decision is synchronized. I work at a school > > > too and am on aygestin, loestrin, and now lupron > > > again and I have had it too. I used up all of my > > > sick leave and am planning to have an abdominal > > > hysterectomy the first week of June. I don't want to > > > see anymore blood, kotex-with or without wings, > > > clots, bathrooms every 10 minutes or my little red > > > backpack with my change of clothes and two pairs of > > > underwear. Everything I've tried has failed ,so > > > goodbye uterus. What are you going to do about your > > > ovaries? I am not afraid of this surgery, in fact I > > > am relieved to have finally made a decision in which > > > there will never be a possibility of me bleeding > > > again. I just wish there had been another solution > > > for us that was easier. Hopefully, in the future > > > there will be. Pam Ganser > > > > > > Ken Liggett wrote: > > > Dear Friends, > > > I guess the bleeding and clotting has finally worn > > > me down. Again at work yesterday I couldn't stay > > > out of the bathroom all morning. I got scared again > > > that this was it I was just going to hemorrage. I > > > called the Dr. and he wanted tosee me. I am off the > > > aygestin and now taking a higher BC pill > > > Two a day for now. I am going to get the Lupron > > > shot in a couple of days and I decided to have a > > > vaginal hysterectomy in July as soon as school is > > > out. I hope I last that long. I have only one > > > ovary that he will leave in place. Hopefully I > > > don't have adhesions and he can complete the > > > operation vaginally. I appreciate all the > > > information and concern I received from all of you > > > and will continue to monitor the e-mails. I'll let > > > you know my experiences on Lupron. Thank you > > > Anita > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Pam, I didn't mean for my email to come across as a chastise. This fibroid alone is too much to deal with. My best wishes and support are intended for you no matter which option you choose. Re: decision made > > > > > > Dear : Is it possible that in our honest quests to gain knowledge and > help ourselves in the best possible way that at some point we become > overeducated and catatonic from the knowledge overload? I tried everything > from new age LA chiropractors who thought they could " heal me " by having me > hold a vial of progesterone to diet change, yoga, the Kaiser system, and > then finally good medical attention with my medical group through Cedars > Sinai. Nothing has worked. My uterus is too large and if I let this go on, > it will only get worse. Wednesday when I was home from work bleeding again I > made the decision in about a half second. It all seemed so clear. Everyone I > speak to who has had a hysterectomy feels so much better and even though we > don't know what HRT will bring, it has got to be better than this. Can you > imagine not having to worry about when your next period will be in relation > to vacations, work, LIFE???? You'll do what the right thing is for you and > just " be " with th! > > e decision. Pam Ganser > > > > > > Belzer wrote: > > > > Hi Guys. Boy did this hit me hard. Three years ago > > when I leanred these things had grown to the 20 week > > stage, I did the research and learned that " it was > > best to keep my uterus " for a) structural b)hormonal > > and c)sexual health. Ok. According to the same > > sources, I could have a myo no matter what size my > > uterus, no matter how many fibroids... WITH a bikini > > incision and WITH very little blood loss. OK!!! Fast > > recovery time too!! > > > > Then I began having consultations and that is NOT what > > I was told. In fact I was accused of being irrational > > and unreasonable. I eventually learned that nobody in > > my area was DOING this " new, improved " surgery. > > WHY????? I couldn't get them to tell me. > > > > So I looked at traveling to have surgery. My > > insurance at the time, a govt HMO, would not allow me > > to travel, even tho the policy stated that " for > > medical specialty, or when care is not available " I > > could go out of state. I went thru over 18 months of > > appeals and all I won was the right to go out of > > network but within my county which did not help at > > all, since no doctor here did the surgery or had ever > > done a successful myo on a uterus my size with this > > many fibroids. > > > > During this time my symptoms were taking over my life. > > I had gushing to the point of being afraid I would > > bleed to death almost every month. I became anemic. > > I had pain and pulling thruout the month and not just > > during my period. I had episodes of bladder spasms > > which sent me to the ER, bowels spasms which ended up > > putting me on medication, and developed such a severe > > consipation problem that Senokot and fiber have > > logging this has become a way of life. > > > > I have been reinstated on a plan which will allow me > > to travel...as of nine months ago, but by that time I > > had to move due to landlord problems and I was so > > debilitated that it took me all this time to get > > unpacked and settled and to a point where I felt > > organized enough to have this surgery. I have become > > increasingly desparate. I have pain from degenration > > and calcification (it feels like there is a sack of > > rocks in there) and the strain getting up and down > > from a seated position, walking any distance, going up > > and down stairs, well I am darn near handicapped from > > this. > > > > I began having erratic periods,like this last week, > > within two weeks of the last one! > > > > I feel like I am caving under the pressure of all of > > this. I have been recommended for UAE, but I am too > > burnt out to do the research right now. I had ruled > > that out due to my size and # of fibroids and also > > Carla's experience (losing uterine contraction). I > > have a couple of docs I could see for myo but they are > > all the way across the country and right now I don't > > feel up to the trip. Also, a woman who had a myo with > > Levine right about the time I began this, three years > > ago, ALREADY has regrowth and is having another > > surgery! I am NOT having TWO surgeries... > > > > Lap s/c hyst is looking pretty good. I like the fast > > recovery time. I like knowing that I will never bleed > > again or have any future problems. But I keep > > thinking about my original research. I will be > > setting myself up for loss of structural support in > > the pelvic area and possibly a life with Depends in > > the future. I could be looking at HRT which will be > > another whole bag of worms. And I will definetely > > lose the uterine contraction during orgasm which I > > still remember describing to my best friend all those > > years ago as a clenching, a " loins thing " ... and > > pretty terrific. I mean, that's the " big ending " ... > > how will sex end now? > > > > Three years ago I felt it was imperitive to hold on, > > not to lose anything. Now I am actually coming to > > terms with the idea of " growing old " of inevitable > > changes " facts of life " stuff. I don't know if I am > > , as I said, caving under the pressure, or finding > > " acceptance " . > > > > So now I am finding myself stymied and immobilized > > AGAIN. I don't know about you guys, but my family, > > friends, and boyfriend are SO SICK of hearing about > > this. I am SICK of talking about it. I feel like one > > of those women I used to hate, who go around > > discussing their gyn problems to get attention or just > > in inappropriate situations. I knew a couple of women > > like this at work and church when I was younger and I > > thought they had to be nuts to constantly talk about > > this. > > > > I have a real sense of urgency. I do not want to have > > another period. I want to get on with my life. I > > want all the hassle to go away and I want my time back > > and my energy. I want a flat stomach again. I want > > everyone to see that I finally " dealt with this " . > > > > BUT WHAT THE HECK IS THE ANSWER? I know that only I > > can decide. For the first time in my life I honestly > > don't know what to do now. > > > > This is going to be a week of much prayer and > > meditation, and if I can summons the energy, a re-look > > at all my reams and reams of research. > > > > B > > > > --- Pam Ganser wrote: > > > > > > Dear Anita: I can certainly relate to and > > > understand your situation. It seems that our timing > > > on this decision is synchronized. I work at a school > > > too and am on aygestin, loestrin, and now lupron > > > again and I have had it too. I used up all of my > > > sick leave and am planning to have an abdominal > > > hysterectomy the first week of June. I don't want to > > > see anymore blood, kotex-with or without wings, > > > clots, bathrooms every 10 minutes or my little red > > > backpack with my change of clothes and two pairs of > > > underwear. Everything I've tried has failed ,so > > > goodbye uterus. What are you going to do about your > > > ovaries? I am not afraid of this surgery, in fact I > > > am relieved to have finally made a decision in which > > > there will never be a possibility of me bleeding > > > again. I just wish there had been another solution > > > for us that was easier. Hopefully, in the future > > > there will be. Pam Ganser > > > > > > Ken Liggett wrote: > > > Dear Friends, > > > I guess the bleeding and clotting has finally worn > > > me down. Again at work yesterday I couldn't stay > > > out of the bathroom all morning. I got scared again > > > that this was it I was just going to hemorrage. I > > > called the Dr. and he wanted tosee me. I am off the > > > aygestin and now taking a higher BC pill > > > Two a day for now. I am going to get the Lupron > > > shot in a couple of days and I decided to have a > > > vaginal hysterectomy in July as soon as school is > > > out. I hope I last that long. I have only one > > > ovary that he will leave in place. Hopefully I > > > don't have adhesions and he can complete the > > > operation vaginally. I appreciate all the > > > information and concern I received from all of you > > > and will continue to monitor the e-mails. I'll let > > > you know my experiences on Lupron. Thank you > > > Anita > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Pam, I didn't mean for my email to come across as a chastise. This fibroid alone is too much to deal with. My best wishes and support are intended for you no matter which option you choose. Re: decision made > > > > > > Dear : Is it possible that in our honest quests to gain knowledge and > help ourselves in the best possible way that at some point we become > overeducated and catatonic from the knowledge overload? I tried everything > from new age LA chiropractors who thought they could " heal me " by having me > hold a vial of progesterone to diet change, yoga, the Kaiser system, and > then finally good medical attention with my medical group through Cedars > Sinai. Nothing has worked. My uterus is too large and if I let this go on, > it will only get worse. Wednesday when I was home from work bleeding again I > made the decision in about a half second. It all seemed so clear. Everyone I > speak to who has had a hysterectomy feels so much better and even though we > don't know what HRT will bring, it has got to be better than this. Can you > imagine not having to worry about when your next period will be in relation > to vacations, work, LIFE???? You'll do what the right thing is for you and > just " be " with th! > > e decision. Pam Ganser > > > > > > Belzer wrote: > > > > Hi Guys. Boy did this hit me hard. Three years ago > > when I leanred these things had grown to the 20 week > > stage, I did the research and learned that " it was > > best to keep my uterus " for a) structural b)hormonal > > and c)sexual health. Ok. According to the same > > sources, I could have a myo no matter what size my > > uterus, no matter how many fibroids... WITH a bikini > > incision and WITH very little blood loss. OK!!! Fast > > recovery time too!! > > > > Then I began having consultations and that is NOT what > > I was told. In fact I was accused of being irrational > > and unreasonable. I eventually learned that nobody in > > my area was DOING this " new, improved " surgery. > > WHY????? I couldn't get them to tell me. > > > > So I looked at traveling to have surgery. My > > insurance at the time, a govt HMO, would not allow me > > to travel, even tho the policy stated that " for > > medical specialty, or when care is not available " I > > could go out of state. I went thru over 18 months of > > appeals and all I won was the right to go out of > > network but within my county which did not help at > > all, since no doctor here did the surgery or had ever > > done a successful myo on a uterus my size with this > > many fibroids. > > > > During this time my symptoms were taking over my life. > > I had gushing to the point of being afraid I would > > bleed to death almost every month. I became anemic. > > I had pain and pulling thruout the month and not just > > during my period. I had episodes of bladder spasms > > which sent me to the ER, bowels spasms which ended up > > putting me on medication, and developed such a severe > > consipation problem that Senokot and fiber have > > logging this has become a way of life. > > > > I have been reinstated on a plan which will allow me > > to travel...as of nine months ago, but by that time I > > had to move due to landlord problems and I was so > > debilitated that it took me all this time to get > > unpacked and settled and to a point where I felt > > organized enough to have this surgery. I have become > > increasingly desparate. I have pain from degenration > > and calcification (it feels like there is a sack of > > rocks in there) and the strain getting up and down > > from a seated position, walking any distance, going up > > and down stairs, well I am darn near handicapped from > > this. > > > > I began having erratic periods,like this last week, > > within two weeks of the last one! > > > > I feel like I am caving under the pressure of all of > > this. I have been recommended for UAE, but I am too > > burnt out to do the research right now. I had ruled > > that out due to my size and # of fibroids and also > > Carla's experience (losing uterine contraction). I > > have a couple of docs I could see for myo but they are > > all the way across the country and right now I don't > > feel up to the trip. Also, a woman who had a myo with > > Levine right about the time I began this, three years > > ago, ALREADY has regrowth and is having another > > surgery! I am NOT having TWO surgeries... > > > > Lap s/c hyst is looking pretty good. I like the fast > > recovery time. I like knowing that I will never bleed > > again or have any future problems. But I keep > > thinking about my original research. I will be > > setting myself up for loss of structural support in > > the pelvic area and possibly a life with Depends in > > the future. I could be looking at HRT which will be > > another whole bag of worms. And I will definetely > > lose the uterine contraction during orgasm which I > > still remember describing to my best friend all those > > years ago as a clenching, a " loins thing " ... and > > pretty terrific. I mean, that's the " big ending " ... > > how will sex end now? > > > > Three years ago I felt it was imperitive to hold on, > > not to lose anything. Now I am actually coming to > > terms with the idea of " growing old " of inevitable > > changes " facts of life " stuff. I don't know if I am > > , as I said, caving under the pressure, or finding > > " acceptance " . > > > > So now I am finding myself stymied and immobilized > > AGAIN. I don't know about you guys, but my family, > > friends, and boyfriend are SO SICK of hearing about > > this. I am SICK of talking about it. I feel like one > > of those women I used to hate, who go around > > discussing their gyn problems to get attention or just > > in inappropriate situations. I knew a couple of women > > like this at work and church when I was younger and I > > thought they had to be nuts to constantly talk about > > this. > > > > I have a real sense of urgency. I do not want to have > > another period. I want to get on with my life. I > > want all the hassle to go away and I want my time back > > and my energy. I want a flat stomach again. I want > > everyone to see that I finally " dealt with this " . > > > > BUT WHAT THE HECK IS THE ANSWER? I know that only I > > can decide. For the first time in my life I honestly > > don't know what to do now. > > > > This is going to be a week of much prayer and > > meditation, and if I can summons the energy, a re-look > > at all my reams and reams of research. > > > > B > > > > --- Pam Ganser wrote: > > > > > > Dear Anita: I can certainly relate to and > > > understand your situation. It seems that our timing > > > on this decision is synchronized. I work at a school > > > too and am on aygestin, loestrin, and now lupron > > > again and I have had it too. I used up all of my > > > sick leave and am planning to have an abdominal > > > hysterectomy the first week of June. I don't want to > > > see anymore blood, kotex-with or without wings, > > > clots, bathrooms every 10 minutes or my little red > > > backpack with my change of clothes and two pairs of > > > underwear. Everything I've tried has failed ,so > > > goodbye uterus. What are you going to do about your > > > ovaries? I am not afraid of this surgery, in fact I > > > am relieved to have finally made a decision in which > > > there will never be a possibility of me bleeding > > > again. I just wish there had been another solution > > > for us that was easier. Hopefully, in the future > > > there will be. Pam Ganser > > > > > > Ken Liggett wrote: > > > Dear Friends, > > > I guess the bleeding and clotting has finally worn > > > me down. Again at work yesterday I couldn't stay > > > out of the bathroom all morning. I got scared again > > > that this was it I was just going to hemorrage. I > > > called the Dr. and he wanted tosee me. I am off the > > > aygestin and now taking a higher BC pill > > > Two a day for now. I am going to get the Lupron > > > shot in a couple of days and I decided to have a > > > vaginal hysterectomy in July as soon as school is > > > out. I hope I last that long. I have only one > > > ovary that he will leave in place. Hopefully I > > > don't have adhesions and he can complete the > > > operation vaginally. I appreciate all the > > > information and concern I received from all of you > > > and will continue to monitor the e-mails. I'll let > > > you know my experiences on Lupron. Thank you > > > Anita > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Sky, I don't have Dr. Alan 's number. I'd have to call information, or start searching the internet. I'm in the process of scheduling an MRI. One this is done I will have more facts to make my decision between UAE and/or lap myo. I'm done having children so lay myo is a choice for me. Thanks, -Debbie Re: decision made > > > > > > > Hi Guys. Boy did this hit me hard. Three years > > ago > > > when I leanred these things had grown to the 20 > > week > > > stage, I did the research and learned that " it was > > > best to keep my uterus " for a) structural > > b)hormonal > > > and c)sexual health. Ok. According to the same > > > sources, I could have a myo no matter what size my > > > uterus, no matter how many fibroids... WITH a > > bikini > > > incision and WITH very little blood loss. OK!!! > > Fast > > > recovery time too!! > > > > > > Then I began having consultations and that is NOT > > what > > > I was told. In fact I was accused of being > > irrational > > > and unreasonable. I eventually learned that > > nobody in > > > my area was DOING this " new, improved " surgery. > > > WHY????? I couldn't get them to tell me. > > > > > > So I looked at traveling to have surgery. My > > > insurance at the time, a govt HMO, would not allow > > me > > > to travel, even tho the policy stated that " for > > > medical specialty, or when care is not available " > > I > > > could go out of state. I went thru over 18 months > > of > > > appeals and all I won was the right to go out of > > > network but within my county which did not help at > > > all, since no doctor here did the surgery or had > > ever > > > done a successful myo on a uterus my size with > > this > > > many fibroids. > > > > > > During this time my symptoms were taking over my > > life. > > > I had gushing to the point of being afraid I > > would > > > bleed to death almost every month. I became > > anemic. > > > I had pain and pulling thruout the month and not > > just > > > during my period. I had episodes of bladder > > spasms > > > which sent me to the ER, bowels spasms which ended > > up > > > putting me on medication, and developed such a > > severe > > > consipation problem that Senokot and fiber have > > > logging this has become a way of life. > > > > > > I have been reinstated on a plan which will allow > > me > > > to travel...as of nine months ago, but by that > > time I > > > had to move due to landlord problems and I was so > > > debilitated that it took me all this time to get > > > unpacked and settled and to a point where I felt > > > organized enough to have this surgery. I have > > become > > > increasingly desparate. I have pain from > > degenration > > > and calcification (it feels like there is a sack > > of > > > rocks in there) and the strain getting up and down > > > from a seated position, walking any distance, > > going up > > > and down stairs, well I am darn near handicapped > > from > > > this. > > > > > > I began having erratic periods,like this last > > week, > > > within two weeks of the last one! > > > > > > I feel like I am caving under the pressure of all > > of > > > this. I have been recommended for UAE, but I am > > too > > > burnt out to do the research right now. I had > > ruled > > > that out due to my size and # of fibroids and also > > > Carla's experience (losing uterine contraction). > > I > > > have a couple of docs I could see for myo but they > > are > > > all the way across the country and right now I > > don't > > > feel up to the trip. Also, a woman who had a myo > > with > > > Levine right about the time I began this, three > > years > > > ago, ALREADY has regrowth and is having another > > > surgery! I am NOT having TWO surgeries... > > > > > > Lap s/c hyst is looking pretty good. I like the > > fast > > > recovery time. I like knowing that I will never > > bleed > > > again or have any future problems. But I keep > > > thinking about my original research. I will be > > > setting myself up for loss of structural support > > in > > > the pelvic area and possibly a life with Depends > > in > > > the future. I could be looking at HRT which will > > be > > > another whole bag of worms. And I will definetely > > > lose the uterine contraction during orgasm which I > > > still remember describing to my best friend all > > those > > > years ago as a clenching, a " loins thing " ... and > > > pretty terrific. I mean, that's the " big > > ending " ... > > > how will sex end now? > > > > > > Three years ago I felt it was imperitive to hold > > on, > > > not to lose anything. Now I am actually coming to > > > terms with the idea of " growing old " of > > inevitable > > > changes " facts of life " stuff. I don't know if I > > am > > > , as I said, caving under the pressure, or finding > > > " acceptance " . > > > > > > So now I am finding myself stymied and immobilized > > > AGAIN. I don't know about you guys, but my > > family, > > > friends, and boyfriend are SO SICK of hearing > > about > > > this. I am SICK of talking about it. I feel like > > one > > > of those women I used to hate, who go around > > > discussing their gyn problems to get attention or > > just > > > in inappropriate situations. I knew a couple of > > women > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Sky, I don't have Dr. Alan 's number. I'd have to call information, or start searching the internet. I'm in the process of scheduling an MRI. One this is done I will have more facts to make my decision between UAE and/or lap myo. I'm done having children so lay myo is a choice for me. Thanks, -Debbie Re: decision made > > > > > > > Hi Guys. Boy did this hit me hard. Three years > > ago > > > when I leanred these things had grown to the 20 > > week > > > stage, I did the research and learned that " it was > > > best to keep my uterus " for a) structural > > b)hormonal > > > and c)sexual health. Ok. According to the same > > > sources, I could have a myo no matter what size my > > > uterus, no matter how many fibroids... WITH a > > bikini > > > incision and WITH very little blood loss. OK!!! > > Fast > > > recovery time too!! > > > > > > Then I began having consultations and that is NOT > > what > > > I was told. In fact I was accused of being > > irrational > > > and unreasonable. I eventually learned that > > nobody in > > > my area was DOING this " new, improved " surgery. > > > WHY????? I couldn't get them to tell me. > > > > > > So I looked at traveling to have surgery. My > > > insurance at the time, a govt HMO, would not allow > > me > > > to travel, even tho the policy stated that " for > > > medical specialty, or when care is not available " > > I > > > could go out of state. I went thru over 18 months > > of > > > appeals and all I won was the right to go out of > > > network but within my county which did not help at > > > all, since no doctor here did the surgery or had > > ever > > > done a successful myo on a uterus my size with > > this > > > many fibroids. > > > > > > During this time my symptoms were taking over my > > life. > > > I had gushing to the point of being afraid I > > would > > > bleed to death almost every month. I became > > anemic. > > > I had pain and pulling thruout the month and not > > just > > > during my period. I had episodes of bladder > > spasms > > > which sent me to the ER, bowels spasms which ended > > up > > > putting me on medication, and developed such a > > severe > > > consipation problem that Senokot and fiber have > > > logging this has become a way of life. > > > > > > I have been reinstated on a plan which will allow > > me > > > to travel...as of nine months ago, but by that > > time I > > > had to move due to landlord problems and I was so > > > debilitated that it took me all this time to get > > > unpacked and settled and to a point where I felt > > > organized enough to have this surgery. I have > > become > > > increasingly desparate. I have pain from > > degenration > > > and calcification (it feels like there is a sack > > of > > > rocks in there) and the strain getting up and down > > > from a seated position, walking any distance, > > going up > > > and down stairs, well I am darn near handicapped > > from > > > this. > > > > > > I began having erratic periods,like this last > > week, > > > within two weeks of the last one! > > > > > > I feel like I am caving under the pressure of all > > of > > > this. I have been recommended for UAE, but I am > > too > > > burnt out to do the research right now. I had > > ruled > > > that out due to my size and # of fibroids and also > > > Carla's experience (losing uterine contraction). > > I > > > have a couple of docs I could see for myo but they > > are > > > all the way across the country and right now I > > don't > > > feel up to the trip. Also, a woman who had a myo > > with > > > Levine right about the time I began this, three > > years > > > ago, ALREADY has regrowth and is having another > > > surgery! I am NOT having TWO surgeries... > > > > > > Lap s/c hyst is looking pretty good. I like the > > fast > > > recovery time. I like knowing that I will never > > bleed > > > again or have any future problems. But I keep > > > thinking about my original research. I will be > > > setting myself up for loss of structural support > > in > > > the pelvic area and possibly a life with Depends > > in > > > the future. I could be looking at HRT which will > > be > > > another whole bag of worms. And I will definetely > > > lose the uterine contraction during orgasm which I > > > still remember describing to my best friend all > > those > > > years ago as a clenching, a " loins thing " ... and > > > pretty terrific. I mean, that's the " big > > ending " ... > > > how will sex end now? > > > > > > Three years ago I felt it was imperitive to hold > > on, > > > not to lose anything. Now I am actually coming to > > > terms with the idea of " growing old " of > > inevitable > > > changes " facts of life " stuff. I don't know if I > > am > > > , as I said, caving under the pressure, or finding > > > " acceptance " . > > > > > > So now I am finding myself stymied and immobilized > > > AGAIN. I don't know about you guys, but my > > family, > > > friends, and boyfriend are SO SICK of hearing > > about > > > this. I am SICK of talking about it. I feel like > > one > > > of those women I used to hate, who go around > > > discussing their gyn problems to get attention or > > just > > > in inappropriate situations. I knew a couple of > > women > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Dear Therese, I want to have a vaginal hysterectomy so that my recovery time is much quicker. I don't think they can leave the cervix in this case. Anita Re: decision made > > > Hi Guys. Boy did this hit me hard. Three years ago > when I leanred these things had grown to the 20 week > stage, I did the research and learned that " it was > best to keep my uterus " for a) structural b)hormonal > and c)sexual health. Ok. According to the same > sources, I could have a myo no matter what size my > uterus, no matter how many fibroids... WITH a bikini > incision and WITH very little blood loss. OK!!! Fast > recovery time too!! > > Then I began having consultations and that is NOT what > I was told. In fact I was accused of being irrational > and unreasonable. I eventually learned that nobody in > my area was DOING this " new, improved " surgery. > WHY????? I couldn't get them to tell me. > > So I looked at traveling to have surgery. My > insurance at the time, a govt HMO, would not allow me > to travel, even tho the policy stated that " for > medical specialty, or when care is not available " I > could go out of state. I went thru over 18 months of > appeals and all I won was the right to go out of > network but within my county which did not help at > all, since no doctor here did the surgery or had ever > done a successful myo on a uterus my size with this > many fibroids. > > During this time my symptoms were taking over my life. > I had gushing to the point of being afraid I would > bleed to death almost every month. I became anemic. > I had pain and pulling thruout the month and not just > during my period. I had episodes of bladder spasms > which sent me to the ER, bowels spasms which ended up > putting me on medication, and developed such a severe > consipation problem that Senokot and fiber have > logging this has become a way of life. > > I have been reinstated on a plan which will allow me > to travel...as of nine months ago, but by that time I > had to move due to landlord problems and I was so > debilitated that it took me all this time to get > unpacked and settled and to a point where I felt > organized enough to have this surgery. I have become > increasingly desparate. I have pain from degenration > and calcification (it feels like there is a sack of > rocks in there) and the strain getting up and down > from a seated position, walking any distance, going up > and down stairs, well I am darn near handicapped from > this. > > I began having erratic periods,like this last week, > within two weeks of the last one! > > I feel like I am caving under the pressure of all of > this. I have been recommended for UAE, but I am too > burnt out to do the research right now. I had ruled > that out due to my size and # of fibroids and also > Carla's experience (losing uterine contraction). I > have a couple of docs I could see for myo but they are > all the way across the country and right now I don't > feel up to the trip. Also, a woman who had a myo with > Levine right about the time I began this, three years > ago, ALREADY has regrowth and is having another > surgery! I am NOT having TWO surgeries... > > Lap s/c hyst is looking pretty good. I like the fast > recovery time. I like knowing that I will never bleed > again or have any future problems. But I keep > thinking about my original research. I will be > setting myself up for loss of structural support in > the pelvic area and possibly a life with Depends in > the future. I could be looking at HRT which will be > another whole bag of worms. And I will definetely > lose the uterine contraction during orgasm which I > still remember describing to my best friend all those > years ago as a clenching, a " loins thing " ... and > pretty terrific. I mean, that's the " big ending " ... > how will sex end now? > > Three years ago I felt it was imperitive to hold on, > not to lose anything. Now I am actually coming to > terms with the idea of " growing old " of inevitable > changes " facts of life " stuff. I don't know if I am > , as I said, caving under the pressure, or finding > " acceptance " . > > So now I am finding myself stymied and immobilized > AGAIN. I don't know about you guys, but my family, > friends, and boyfriend are SO SICK of hearing about > this. I am SICK of talking about it. I feel like one > of those women I used to hate, who go around > discussing their gyn problems to get attention or just > in inappropriate situations. I knew a couple of women > like this at work and church when I was younger and I > thought they had to be nuts to constantly talk about > this. > > I have a real sense of urgency. I do not want to have > another period. I want to get on with my life. I > want all the hassle to go away and I want my time back > and my energy. I want a flat stomach again. I want > everyone to see that I finally " dealt with this " . > > BUT WHAT THE HECK IS THE ANSWER? I know that only I > can decide. For the first time in my life I honestly > don't know what to do now. > > This is going to be a week of much prayer and > meditation, and if I can summons the energy, a re-look > at all my reams and reams of research. > > B > > --- Pam Ganser wrote: > > > > Dear Anita: I can certainly relate to and > > understand your situation. It seems that our timing > > on this decision is synchronized. I work at a school > > too and am on aygestin, loestrin, and now lupron > > again and I have had it too. I used up all of my > > sick leave and am planning to have an abdominal > > hysterectomy the first week of June. I don't want to > > see anymore blood, kotex-with or without wings, > > clots, bathrooms every 10 minutes or my little red > > backpack with my change of clothes and two pairs of > > underwear. Everything I've tried has failed ,so > > goodbye uterus. What are you going to do about your > > ovaries? I am not afraid of this surgery, in fact I > > am relieved to have finally made a decision in which > > there will never be a possibility of me bleeding > > again. I just wish there had been another solution > > for us that was easier. Hopefully, in the future > > there will be. Pam Ganser > > > > Ken Liggett wrote: > > Dear Friends, > > I guess the bleeding and clotting has finally worn > > me down. Again at work yesterday I couldn't stay > > out of the bathroom all morning. I got scared again > > that this was it I was just going to hemorrage. I > > called the Dr. and he wanted tosee me. I am off the > > aygestin and now taking a higher BC pill > > Two a day for now. I am going to get the Lupron > > shot in a couple of days and I decided to have a > > vaginal hysterectomy in July as soon as school is > > out. I hope I last that long. I have only one > > ovary that he will leave in place. Hopefully I > > don't have adhesions and he can complete the > > operation vaginally. I appreciate all the > > information and concern I received from all of you > > and will continue to monitor the e-mails. I'll let > > you know my experiences on Lupron. Thank you > > Anita > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Dear Therese, I want to have a vaginal hysterectomy so that my recovery time is much quicker. I don't think they can leave the cervix in this case. Anita Re: decision made > > > Hi Guys. Boy did this hit me hard. Three years ago > when I leanred these things had grown to the 20 week > stage, I did the research and learned that " it was > best to keep my uterus " for a) structural b)hormonal > and c)sexual health. Ok. According to the same > sources, I could have a myo no matter what size my > uterus, no matter how many fibroids... WITH a bikini > incision and WITH very little blood loss. OK!!! Fast > recovery time too!! > > Then I began having consultations and that is NOT what > I was told. In fact I was accused of being irrational > and unreasonable. I eventually learned that nobody in > my area was DOING this " new, improved " surgery. > WHY????? I couldn't get them to tell me. > > So I looked at traveling to have surgery. My > insurance at the time, a govt HMO, would not allow me > to travel, even tho the policy stated that " for > medical specialty, or when care is not available " I > could go out of state. I went thru over 18 months of > appeals and all I won was the right to go out of > network but within my county which did not help at > all, since no doctor here did the surgery or had ever > done a successful myo on a uterus my size with this > many fibroids. > > During this time my symptoms were taking over my life. > I had gushing to the point of being afraid I would > bleed to death almost every month. I became anemic. > I had pain and pulling thruout the month and not just > during my period. I had episodes of bladder spasms > which sent me to the ER, bowels spasms which ended up > putting me on medication, and developed such a severe > consipation problem that Senokot and fiber have > logging this has become a way of life. > > I have been reinstated on a plan which will allow me > to travel...as of nine months ago, but by that time I > had to move due to landlord problems and I was so > debilitated that it took me all this time to get > unpacked and settled and to a point where I felt > organized enough to have this surgery. I have become > increasingly desparate. I have pain from degenration > and calcification (it feels like there is a sack of > rocks in there) and the strain getting up and down > from a seated position, walking any distance, going up > and down stairs, well I am darn near handicapped from > this. > > I began having erratic periods,like this last week, > within two weeks of the last one! > > I feel like I am caving under the pressure of all of > this. I have been recommended for UAE, but I am too > burnt out to do the research right now. I had ruled > that out due to my size and # of fibroids and also > Carla's experience (losing uterine contraction). I > have a couple of docs I could see for myo but they are > all the way across the country and right now I don't > feel up to the trip. Also, a woman who had a myo with > Levine right about the time I began this, three years > ago, ALREADY has regrowth and is having another > surgery! I am NOT having TWO surgeries... > > Lap s/c hyst is looking pretty good. I like the fast > recovery time. I like knowing that I will never bleed > again or have any future problems. But I keep > thinking about my original research. I will be > setting myself up for loss of structural support in > the pelvic area and possibly a life with Depends in > the future. I could be looking at HRT which will be > another whole bag of worms. And I will definetely > lose the uterine contraction during orgasm which I > still remember describing to my best friend all those > years ago as a clenching, a " loins thing " ... and > pretty terrific. I mean, that's the " big ending " ... > how will sex end now? > > Three years ago I felt it was imperitive to hold on, > not to lose anything. Now I am actually coming to > terms with the idea of " growing old " of inevitable > changes " facts of life " stuff. I don't know if I am > , as I said, caving under the pressure, or finding > " acceptance " . > > So now I am finding myself stymied and immobilized > AGAIN. I don't know about you guys, but my family, > friends, and boyfriend are SO SICK of hearing about > this. I am SICK of talking about it. I feel like one > of those women I used to hate, who go around > discussing their gyn problems to get attention or just > in inappropriate situations. I knew a couple of women > like this at work and church when I was younger and I > thought they had to be nuts to constantly talk about > this. > > I have a real sense of urgency. I do not want to have > another period. I want to get on with my life. I > want all the hassle to go away and I want my time back > and my energy. I want a flat stomach again. I want > everyone to see that I finally " dealt with this " . > > BUT WHAT THE HECK IS THE ANSWER? I know that only I > can decide. For the first time in my life I honestly > don't know what to do now. > > This is going to be a week of much prayer and > meditation, and if I can summons the energy, a re-look > at all my reams and reams of research. > > B > > --- Pam Ganser wrote: > > > > Dear Anita: I can certainly relate to and > > understand your situation. It seems that our timing > > on this decision is synchronized. I work at a school > > too and am on aygestin, loestrin, and now lupron > > again and I have had it too. I used up all of my > > sick leave and am planning to have an abdominal > > hysterectomy the first week of June. I don't want to > > see anymore blood, kotex-with or without wings, > > clots, bathrooms every 10 minutes or my little red > > backpack with my change of clothes and two pairs of > > underwear. Everything I've tried has failed ,so > > goodbye uterus. What are you going to do about your > > ovaries? I am not afraid of this surgery, in fact I > > am relieved to have finally made a decision in which > > there will never be a possibility of me bleeding > > again. I just wish there had been another solution > > for us that was easier. Hopefully, in the future > > there will be. Pam Ganser > > > > Ken Liggett wrote: > > Dear Friends, > > I guess the bleeding and clotting has finally worn > > me down. Again at work yesterday I couldn't stay > > out of the bathroom all morning. I got scared again > > that this was it I was just going to hemorrage. I > > called the Dr. and he wanted tosee me. I am off the > > aygestin and now taking a higher BC pill > > Two a day for now. I am going to get the Lupron > > shot in a couple of days and I decided to have a > > vaginal hysterectomy in July as soon as school is > > out. I hope I last that long. I have only one > > ovary that he will leave in place. Hopefully I > > don't have adhesions and he can complete the > > operation vaginally. I appreciate all the > > information and concern I received from all of you > > and will continue to monitor the e-mails. I'll let > > you know my experiences on Lupron. Thank you > > Anita > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Thanks Debbie. I'm a bit touchy these days with all the medications and the looming surgery. I just feel so beaten up because I tried so damn hard not to have a hysterectomy and now I don't see any other options. I really appreciate the support. Pam Ganser Debra Armendariz wrote: Pam, I didn't mean for my email to come across as a chastise. This fibroid alone is too much to deal with. My best wishes and support are intended for you no matter which option you choose. Re: decision made > > > > > > Dear : Is it possible that in our honest quests to gain knowledge and > help ourselves in the best possible way that at some point we become > overeducated and catatonic from the knowledge overload? I tried everything > from new age LA chiropractors who thought they could " heal me " by having me > hold a vial of progesterone to diet change, yoga, the Kaiser system, and > then finally good medical attention with my medical group through Cedars > Sinai. Nothing has worked. My uterus is too large and if I let this go on, > it will only get worse. Wednesday when I was home from work bleeding again I > made the decision in about a half second. It all seemed so clear. Everyone I > speak to who has had a hysterectomy feels so much better and even though we > don't know what HRT will bring, it has got to be better than this. Can you > imagine not having to worry about when your next period will be in relation > to vacations, work, LIFE???? You'll do what the right thing is for you and > just " be " with th! > > e decision. Pam Ganser > > > > > > Belzer wrote: > > > > Hi Guys. Boy did this hit me hard. Three years ago > > when I leanred these things had grown to the 20 week > > stage, I did the research and learned that " it was > > best to keep my uterus " for a) structural b)hormonal > > and c)sexual health. Ok. According to the same > > sources, I could have a myo no matter what size my > > uterus, no matter how many fibroids... WITH a bikini > > incision and WITH very little blood loss. OK!!! Fast > > recovery time too!! > > > > Then I began having consultations and that is NOT what > > I was told. In fact I was accused of being irrational > > and unreasonable. I eventually learned that nobody in > > my area was DOING this " new, improved " surgery. > > WHY????? I couldn't get them to tell me. > > > > So I looked at traveling to have surgery. My > > insurance at the time, a govt HMO, would not allow me > > to travel, even tho the policy stated that " for > > medical specialty, or when care is not available " I > > could go out of state. I went thru over 18 months of > > appeals and all I won was the right to go out of > > network but within my county which did not help at > > all, since no doctor here did the surgery or had ever > > done a successful myo on a uterus my size with this > > many fibroids. > > > > During this time my symptoms were taking over my life. > > I had gushing to the point of being afraid I would > > bleed to death almost every month. I became anemic. > > I had pain and pulling thruout the month and not just > > during my period. I had episodes of bladder spasms > > which sent me to the ER, bowels spasms which ended up > > putting me on medication, and developed such a severe > > consipation problem that Senokot and fiber have > > logging this has become a way of life. > > > > I have been reinstated on a plan which will allow me > > to travel...as of nine months ago, but by that time I > > had to move due to landlord problems and I was so > > debilitated that it took me all this time to get > > unpacked and settled and to a point where I felt > > organized enough to have this surgery. I have become > > increasingly desparate. I have pain from degenration > > and calcification (it feels like there is a sack of > > rocks in there) and the strain getting up and down > > from a seated position, walking any distance, going up > > and down stairs, well I am darn near handicapped from > > this. > > > > I began having erratic periods,like this last week, > > within two weeks of the last one! > > > > I feel like I am caving under the pressure of all of > > this. I have been recommended for UAE, but I am too > > burnt out to do the research right now. I had ruled > > that out due to my size and # of fibroids and also > > Carla's experience (losing uterine contraction). I > > have a couple of docs I could see for myo but they are > > all the way across the country and right now I don't > > feel up to the trip. Also, a woman who had a myo with > > Levine right about the time I began this, three years > > ago, ALREADY has regrowth and is having another > > surgery! I am NOT having TWO surgeries... > > > > Lap s/c hyst is looking pretty good. I like the fast > > recovery time. I like knowing that I will never bleed > > again or have any future problems. But I keep > > thinking about my original research. I will be > > setting myself up for loss of structural support in > > the pelvic area and possibly a life with Depends in > > the future. I could be looking at HRT which will be > > another whole bag of worms. And I will definetely > > lose the uterine contraction during orgasm which I > > still remember describing to my best friend all those > > years ago as a clenching, a " loins thing " ... and > > pretty terrific. I mean, that's the " big ending " ... > > how will sex end now? > > > > Three years ago I felt it was imperitive to hold on, > > not to lose anything. Now I am actually coming to > > terms with the idea of " growing old " of inevitable > > changes " facts of life " stuff. I don't know if I am > > , as I said, caving under the pressure, or finding > > " acceptance " . > > > > So now I am finding myself stymied and immobilized > > AGAIN. I don't know about you guys, but my family, > > friends, and boyfriend are SO SICK of hearing about > > this. I am SICK of talking about it. I feel like one > > of those women I used to hate, who go around > > discussing their gyn problems to get attention or just > > in inappropriate situations. I knew a couple of women > > like this at work and church when I was younger and I > > thought they had to be nuts to constantly talk about > > this. > > > > I have a real sense of urgency. I do not want to have > > another period. I want to get on with my life. I > > want all the hassle to go away and I want my time back > > and my energy. I want a flat stomach again. I want > > everyone to see that I finally " dealt with this " . > > > > BUT WHAT THE HECK IS THE ANSWER? I know that only I > > can decide. For the first time in my life I honestly > > don't know what to do now. > > > > This is going to be a week of much prayer and > > meditation, and if I can summons the energy, a re-look > > at all my reams and reams of research. > > > > B > > > > --- Pam Ganser wrote: > > > > > > Dear Anita: I can certainly relate to and > > > understand your situation. It seems that our timing > > > on this decision is synchronized. I work at a school > > > too and am on aygestin, loestrin, and now lupron > > > again and I have had it too. I used up all of my > > > sick leave and am planning to have an abdominal > > > hysterectomy the first week of June. I don't want to > > > see anymore blood, kotex-with or without wings, > > > clots, bathrooms every 10 minutes or my little red > > > backpack with my change of clothes and two pairs of > > > underwear. Everything I've tried has failed ,so > > > goodbye uterus. What are you going to do about your > > > ovaries? I am not afraid of this surgery, in fact I > > > am relieved to have finally made a decision in which > > > there will never be a possibility of me bleeding > > > again. I just wish there had been another solution > > > for us that was easier. Hopefully, in the future > > > there will be. Pam Ganser > > > > > > Ken Liggett wrote: > > > Dear Friends, > > > I guess the bleeding and clotting has finally worn > > > me down. Again at work yesterday I couldn't stay > > > out of the bathroom all morning. I got scared again > > > that this was it I was just going to hemorrage. I > > > called the Dr. and he wanted tosee me. I am off the > > > aygestin and now taking a higher BC pill > > > Two a day for now. I am going to get the Lupron > > > shot in a couple of days and I decided to have a > > > vaginal hysterectomy in July as soon as school is > > > out. I hope I last that long. I have only one > > > ovary that he will leave in place. Hopefully I > > > don't have adhesions and he can complete the > > > operation vaginally. I appreciate all the > > > information and concern I received from all of you > > > and will continue to monitor the e-mails. I'll let > > > you know my experiences on Lupron. Thank you > > > Anita > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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