Re: Hyperthyroid treatment---links needed

[Guest guest]

There is a drug for hyper..yet I can't remember the name. Knew a lady that was

on it...it didn't really help all that much for her. But my sister in laws,

sister is on it and she does really well. (I will find the name of it )

Patti

Hyperthyroid treatment---links needed

Has anybody found any info on treatment for hyper that does NOT

include RAI or thyroid removal?? If so, send links.

Janie

------------------------------------------------------------------------------

[Guest guest]

There is a drug for hyper..yet I can't remember the name. Knew a lady that was

on it...it didn't really help all that much for her. But my sister in laws,

sister is on it and she does really well. (I will find the name of it )

Patti

Hyperthyroid treatment---links needed

Has anybody found any info on treatment for hyper that does NOT

include RAI or thyroid removal?? If so, send links.

Janie

------------------------------------------------------------------------------

[Guest guest]

You know the phrase " opposite sides of the same coin " ?? It always

strikes me about the thyroid and hypo vs. hyper. Couldn't they be

just opposite expressions of the same thing? And if so, why does one

get treatment with meds (like with Armour) yet the other gets

treatment that is drastic?? Seems wrong, wrong.

Janie

[Guest guest]

You know the phrase " opposite sides of the same coin " ?? It always

strikes me about the thyroid and hypo vs. hyper. Couldn't they be

just opposite expressions of the same thing? And if so, why does one

get treatment with meds (like with Armour) yet the other gets

treatment that is drastic?? Seems wrong, wrong.

Janie

[Guest guest]

You know the phrase " opposite sides of the same coin " ?? It always

strikes me about the thyroid and hypo vs. hyper. Couldn't they be

just opposite expressions of the same thing? And if so, why does one

get treatment with meds (like with Armour) yet the other gets

treatment that is drastic?? Seems wrong, wrong.

Janie

[Guest guest]

You go Topper!! I know " some " of your frustration,not all,as I've not been where

you've been and pray God it will never happen.But if these so called Dr's would

just sit down and listen! Tuesday when I called the dr,ohhhhhh the gidgey goo's

were in my gut,I thought,I can't do this,but I kept you all in my mind,AND I did

it!! And you're right or someone is,can't remember who posted it,but when the dr

is challenged about his dx and you the patient want's to try a different

treatment,,,,,look out!

Shirley

Re: Re: Hyperthyroid treatment---links

needed

Sometimes I'm afraid to find out if there is another solution, for folks

in my circumstance. I found out a few weeks ago that I have a genetic

defect that causes the thyroid to have defective TSH receptors... so the

thyroid doesn't get the instruction from the pituitary.. it just plugs

along as it wills... over time it just continues to speed up and speed

up... until thyroid storm...

I have a full brother that was actually tested for that genetic defect

and found to have it. That was when they were trying to determine if he

had rheumatoid arthritis or Raynaud's syndrome... yet no one told me that

the defect ran in family's and that I might very well have it too... We

have two half sibs that also went hyper in much the same way that I

did... so it's definitely something that runs in families, all four of

us, plus a fifth, diagnosed with bi-polar disorder... all have a common

parent.

So, in my case. When my full brother was tested it should have been

explained to him what that defect was and that I should also be made

aware of it.. I would have known what to say to that doc and I could have

told him what to do when he gave me that 'too fat to be sick line'. We

didn't meet our half sibs until '99. We'd all gone through either obvious

hyper, or hyper storm, by our late 30's... but since we were not aware of

each other there was no way for the first to tell the rest of us. We were

born in Germany and got split up because of all the crap that was

happening there in the '50s.

If this defect exists.. and was being looked for 15 years ago, gosh..

closer to 20 years ago, when my brother was tested... why are not more of

the folks that are hyper.. or even hypo from burned out thyroids, being

tested for this?

I've heard it many times. That thyroid disorder is considered a bread and

butter disease.. the patient comes in once a year for lab work or they

get no meds... if you short dose them you can get them to come in more

often for more office and lab fees.. underdosing them makes them feel

like crap and become dependant on the doctor... and it takes years and

years of misery and torture before they die... and by that time they are

so sick and run down and brain fogged with family that is sick and tired

of dealing with it that the doctors are never made to answer for their

shitty treatment.

If I had a genie's lamp and could make a wish (assuming that I could not

just wish thyroid disease away altogether) I'd wish for the opportunity

to go with folks to their docs and get nose to nose with them (I'm 5'10

and at my best was 277 pounds of solid muscle) and in a nice, calm voice

ask that doc explain to me why he's not taking proper lab tests, why he's

not asking about and taking into consideration the symptoms and comments

that the patient is making and why they feel that a synthetic T4 only med

is preferable to a natural medication that provides all the same

components that our healthy thyroids used to make.

If he started to lip off I'd ask him to recite the Hippocratic oath, ask

him why he chose to be a doctor and take an oath that he is not honoring

and then explain to him/her why I believe they are a miserable, worthless

piece of shit and that we (me and the patient I've come in with) will be

going to find a real doctor while making sure what a joke he/she is is

know to all!

Okay... calming down now.... I think.. whew.. yeah... deep breaths...

relax... yeah... I'm okay... I'm setting down the crutch.... I'm not

going to beat the monitor... the monitor is not the doctor that maimed

me.... inhale, one, two, three... exhale, one, two, three.... okay...

calm... yep.. fine now.... checking the keyboard for damage... no.. it's

fine... no broken keys... close one....

Topper ()

On Thu, 08 Jan 2004 16:04:14 -0000 " loboshe " writes:

> >>The docs feel that its simpler just to get rid of the offending

> >>thyroid, eliminating all fluctuations and giving meds instead...

>

> Exactly, and that is what I am afraid of. That thousands upon

> thousands of folks (including my own mother in her 20's during the

> early 1940's) are losing their thyroids because it's the " easiest "

> thing to do. Surely, just as Armour is a MUCH better treatment for

> hypo, there IS a better treatment for hyper. Where is it? Who is

> the maverick out there who is doing it, or proposing it??

>

> Janie

------------------------------------------------------------------------------

[Guest guest]

You go Topper!! I know " some " of your frustration,not all,as I've not been where

you've been and pray God it will never happen.But if these so called Dr's would

just sit down and listen! Tuesday when I called the dr,ohhhhhh the gidgey goo's

were in my gut,I thought,I can't do this,but I kept you all in my mind,AND I did

it!! And you're right or someone is,can't remember who posted it,but when the dr

is challenged about his dx and you the patient want's to try a different

treatment,,,,,look out!

Shirley

Re: Re: Hyperthyroid treatment---links

needed

Sometimes I'm afraid to find out if there is another solution, for folks

in my circumstance. I found out a few weeks ago that I have a genetic

defect that causes the thyroid to have defective TSH receptors... so the

thyroid doesn't get the instruction from the pituitary.. it just plugs

along as it wills... over time it just continues to speed up and speed

up... until thyroid storm...

I have a full brother that was actually tested for that genetic defect

and found to have it. That was when they were trying to determine if he

had rheumatoid arthritis or Raynaud's syndrome... yet no one told me that

the defect ran in family's and that I might very well have it too... We

have two half sibs that also went hyper in much the same way that I

did... so it's definitely something that runs in families, all four of

us, plus a fifth, diagnosed with bi-polar disorder... all have a common

parent.

So, in my case. When my full brother was tested it should have been

explained to him what that defect was and that I should also be made

aware of it.. I would have known what to say to that doc and I could have

told him what to do when he gave me that 'too fat to be sick line'. We

didn't meet our half sibs until '99. We'd all gone through either obvious

hyper, or hyper storm, by our late 30's... but since we were not aware of

each other there was no way for the first to tell the rest of us. We were

born in Germany and got split up because of all the crap that was

happening there in the '50s.

If this defect exists.. and was being looked for 15 years ago, gosh..

closer to 20 years ago, when my brother was tested... why are not more of

the folks that are hyper.. or even hypo from burned out thyroids, being

tested for this?

I've heard it many times. That thyroid disorder is considered a bread and

butter disease.. the patient comes in once a year for lab work or they

get no meds... if you short dose them you can get them to come in more

often for more office and lab fees.. underdosing them makes them feel

like crap and become dependant on the doctor... and it takes years and

years of misery and torture before they die... and by that time they are

so sick and run down and brain fogged with family that is sick and tired

of dealing with it that the doctors are never made to answer for their

shitty treatment.

If I had a genie's lamp and could make a wish (assuming that I could not

just wish thyroid disease away altogether) I'd wish for the opportunity

to go with folks to their docs and get nose to nose with them (I'm 5'10

and at my best was 277 pounds of solid muscle) and in a nice, calm voice

ask that doc explain to me why he's not taking proper lab tests, why he's

not asking about and taking into consideration the symptoms and comments

that the patient is making and why they feel that a synthetic T4 only med

is preferable to a natural medication that provides all the same

components that our healthy thyroids used to make.

If he started to lip off I'd ask him to recite the Hippocratic oath, ask

him why he chose to be a doctor and take an oath that he is not honoring

and then explain to him/her why I believe they are a miserable, worthless

piece of shit and that we (me and the patient I've come in with) will be

going to find a real doctor while making sure what a joke he/she is is

know to all!

Okay... calming down now.... I think.. whew.. yeah... deep breaths...

relax... yeah... I'm okay... I'm setting down the crutch.... I'm not

going to beat the monitor... the monitor is not the doctor that maimed

me.... inhale, one, two, three... exhale, one, two, three.... okay...

calm... yep.. fine now.... checking the keyboard for damage... no.. it's

fine... no broken keys... close one....

Topper ()

On Thu, 08 Jan 2004 16:04:14 -0000 " loboshe " writes:

> >>The docs feel that its simpler just to get rid of the offending

> >>thyroid, eliminating all fluctuations and giving meds instead...

>

> Exactly, and that is what I am afraid of. That thousands upon

> thousands of folks (including my own mother in her 20's during the

> early 1940's) are losing their thyroids because it's the " easiest "

> thing to do. Surely, just as Armour is a MUCH better treatment for

> hypo, there IS a better treatment for hyper. Where is it? Who is

> the maverick out there who is doing it, or proposing it??

>

> Janie

------------------------------------------------------------------------------

[Guest guest]

I don't have links but there is a third method... it's a medication that

is given that slows the thyroid. If treatment is given soon enough the

thyroid can be slowed enough to be 'normal'. It was done to my half

sister but they slowed her too much and now she takes Synthroid, 75 mcg,

I think.....

It was briefly outlined to me but I way too hyper, in storm, and didn't

have the time to go through that type of treatment, my only option was

RAI (thanks to the jerk doc that ignored my symptoms and told me to go

home)

Topper ()

On Thu, 08 Jan 2004 03:59:03 -0000 " loboshe " writes:

> Has anybody found any info on treatment for hyper that does NOT

> include RAI or thyroid removal?? If so, send links.

>

> Janie

[Guest guest]

>>The docs feel that its simpler just to get rid of the offending

>>thyroid, eliminating all fluctuations and giving meds instead...

Exactly, and that is what I am afraid of. That thousands upon

thousands of folks (including my own mother in her 20's during the

early 1940's) are losing their thyroids because it's the " easiest "

thing to do. Surely, just as Armour is a MUCH better treatment for

hypo, there IS a better treatment for hyper. Where is it? Who is

the maverick out there who is doing it, or proposing it??

Janie

[Guest guest]

>>The docs feel that its simpler just to get rid of the offending

>>thyroid, eliminating all fluctuations and giving meds instead...

Exactly, and that is what I am afraid of. That thousands upon

thousands of folks (including my own mother in her 20's during the

early 1940's) are losing their thyroids because it's the " easiest "

thing to do. Surely, just as Armour is a MUCH better treatment for

hypo, there IS a better treatment for hyper. Where is it? Who is

the maverick out there who is doing it, or proposing it??

Janie

[Guest guest]

Sometimes I'm afraid to find out if there is another solution, for folks

in my circumstance. I found out a few weeks ago that I have a genetic

defect that causes the thyroid to have defective TSH receptors... so the

thyroid doesn't get the instruction from the pituitary.. it just plugs

along as it wills... over time it just continues to speed up and speed

up... until thyroid storm...

I have a full brother that was actually tested for that genetic defect

and found to have it. That was when they were trying to determine if he

had rheumatoid arthritis or Raynaud's syndrome... yet no one told me that

the defect ran in family's and that I might very well have it too... We

have two half sibs that also went hyper in much the same way that I

did... so it's definitely something that runs in families, all four of

us, plus a fifth, diagnosed with bi-polar disorder... all have a common

parent.

So, in my case. When my full brother was tested it should have been

explained to him what that defect was and that I should also be made

aware of it.. I would have known what to say to that doc and I could have

told him what to do when he gave me that 'too fat to be sick line'. We

didn't meet our half sibs until '99. We'd all gone through either obvious

hyper, or hyper storm, by our late 30's... but since we were not aware of

each other there was no way for the first to tell the rest of us. We were

born in Germany and got split up because of all the crap that was

happening there in the '50s.

If this defect exists.. and was being looked for 15 years ago, gosh..

closer to 20 years ago, when my brother was tested... why are not more of

the folks that are hyper.. or even hypo from burned out thyroids, being

tested for this?

I've heard it many times. That thyroid disorder is considered a bread and

butter disease.. the patient comes in once a year for lab work or they

get no meds... if you short dose them you can get them to come in more

often for more office and lab fees.. underdosing them makes them feel

like crap and become dependant on the doctor... and it takes years and

years of misery and torture before they die... and by that time they are

so sick and run down and brain fogged with family that is sick and tired

of dealing with it that the doctors are never made to answer for their

shitty treatment.

If I had a genie's lamp and could make a wish (assuming that I could not

just wish thyroid disease away altogether) I'd wish for the opportunity

to go with folks to their docs and get nose to nose with them (I'm 5'10

and at my best was 277 pounds of solid muscle) and in a nice, calm voice

ask that doc explain to me why he's not taking proper lab tests, why he's

not asking about and taking into consideration the symptoms and comments

that the patient is making and why they feel that a synthetic T4 only med

is preferable to a natural medication that provides all the same

components that our healthy thyroids used to make.

If he started to lip off I'd ask him to recite the Hippocratic oath, ask

him why he chose to be a doctor and take an oath that he is not honoring

and then explain to him/her why I believe they are a miserable, worthless

piece of shit and that we (me and the patient I've come in with) will be

going to find a real doctor while making sure what a joke he/she is is

know to all!

Okay... calming down now.... I think.. whew.. yeah... deep breaths...

relax... yeah... I'm okay... I'm setting down the crutch.... I'm not

going to beat the monitor... the monitor is not the doctor that maimed

me.... inhale, one, two, three... exhale, one, two, three.... okay...

calm... yep.. fine now.... checking the keyboard for damage... no.. it's

fine... no broken keys... close one....

Topper ()

On Thu, 08 Jan 2004 16:04:14 -0000 " loboshe " writes:

> >>The docs feel that its simpler just to get rid of the offending

> >>thyroid, eliminating all fluctuations and giving meds instead...

>

> Exactly, and that is what I am afraid of. That thousands upon

> thousands of folks (including my own mother in her 20's during the

> early 1940's) are losing their thyroids because it's the " easiest "

> thing to do. Surely, just as Armour is a MUCH better treatment for

> hypo, there IS a better treatment for hyper. Where is it? Who is

> the maverick out there who is doing it, or proposing it??

>

> Janie

[Guest guest]

Sometimes I'm afraid to find out if there is another solution, for folks

in my circumstance. I found out a few weeks ago that I have a genetic

defect that causes the thyroid to have defective TSH receptors... so the

thyroid doesn't get the instruction from the pituitary.. it just plugs

along as it wills... over time it just continues to speed up and speed

up... until thyroid storm...

I have a full brother that was actually tested for that genetic defect

and found to have it. That was when they were trying to determine if he

had rheumatoid arthritis or Raynaud's syndrome... yet no one told me that

the defect ran in family's and that I might very well have it too... We

have two half sibs that also went hyper in much the same way that I

did... so it's definitely something that runs in families, all four of

us, plus a fifth, diagnosed with bi-polar disorder... all have a common

parent.

So, in my case. When my full brother was tested it should have been

explained to him what that defect was and that I should also be made

aware of it.. I would have known what to say to that doc and I could have

told him what to do when he gave me that 'too fat to be sick line'. We

didn't meet our half sibs until '99. We'd all gone through either obvious

hyper, or hyper storm, by our late 30's... but since we were not aware of

each other there was no way for the first to tell the rest of us. We were

born in Germany and got split up because of all the crap that was

happening there in the '50s.

If this defect exists.. and was being looked for 15 years ago, gosh..

closer to 20 years ago, when my brother was tested... why are not more of

the folks that are hyper.. or even hypo from burned out thyroids, being

tested for this?

I've heard it many times. That thyroid disorder is considered a bread and

butter disease.. the patient comes in once a year for lab work or they

get no meds... if you short dose them you can get them to come in more

often for more office and lab fees.. underdosing them makes them feel

like crap and become dependant on the doctor... and it takes years and

years of misery and torture before they die... and by that time they are

so sick and run down and brain fogged with family that is sick and tired

of dealing with it that the doctors are never made to answer for their

shitty treatment.

If I had a genie's lamp and could make a wish (assuming that I could not

just wish thyroid disease away altogether) I'd wish for the opportunity

to go with folks to their docs and get nose to nose with them (I'm 5'10

and at my best was 277 pounds of solid muscle) and in a nice, calm voice

ask that doc explain to me why he's not taking proper lab tests, why he's

not asking about and taking into consideration the symptoms and comments

that the patient is making and why they feel that a synthetic T4 only med

is preferable to a natural medication that provides all the same

components that our healthy thyroids used to make.

If he started to lip off I'd ask him to recite the Hippocratic oath, ask

him why he chose to be a doctor and take an oath that he is not honoring

and then explain to him/her why I believe they are a miserable, worthless

piece of shit and that we (me and the patient I've come in with) will be

going to find a real doctor while making sure what a joke he/she is is

know to all!

Okay... calming down now.... I think.. whew.. yeah... deep breaths...

relax... yeah... I'm okay... I'm setting down the crutch.... I'm not

going to beat the monitor... the monitor is not the doctor that maimed

me.... inhale, one, two, three... exhale, one, two, three.... okay...

calm... yep.. fine now.... checking the keyboard for damage... no.. it's

fine... no broken keys... close one....

Topper ()

On Thu, 08 Jan 2004 16:04:14 -0000 " loboshe " writes:

> >>The docs feel that its simpler just to get rid of the offending

> >>thyroid, eliminating all fluctuations and giving meds instead...

>

> Exactly, and that is what I am afraid of. That thousands upon

> thousands of folks (including my own mother in her 20's during the

> early 1940's) are losing their thyroids because it's the " easiest "

> thing to do. Surely, just as Armour is a MUCH better treatment for

> hypo, there IS a better treatment for hyper. Where is it? Who is

> the maverick out there who is doing it, or proposing it??

>

> Janie

[Guest guest]

,

Thanks for venting all my feelings, that I do not have the energy to vent

Frannie

Re: Re: Hyperthyroid treatment---links needed

Sometimes I'm afraid to find out if there is another solution, for folks

in my circumstance. I found out a few weeks ago that I have a genetic

defect that causes the thyroid to have defective TSH receptors... so the

thyroid doesn't get the instruction from the pituitary.. it just plugs

along as it wills... over time it just continues to speed up and speed

up... until thyroid storm...

I have a full brother that was actually tested for that genetic defect

and found to have it. That was when they were trying to determine if he

had rheumatoid arthritis or Raynaud's syndrome... yet no one told me that

the defect ran in family's and that I might very well have it too... We

have two half sibs that also went hyper in much the same way that I

did... so it's definitely something that runs in families, all four of

us, plus a fifth, diagnosed with bi-polar disorder... all have a common

parent.

So, in my case. When my full brother was tested it should have been

explained to him what that defect was and that I should also be made

aware of it.. I would have known what to say to that doc and I could have

told him what to do when he gave me that 'too fat to be sick line'. We

didn't meet our half sibs until '99. We'd all gone through either obvious

hyper, or hyper storm, by our late 30's... but since we were not aware of

each other there was no way for the first to tell the rest of us. We were

born in Germany and got split up because of all the crap that was

happening there in the '50s.

If this defect exists.. and was being looked for 15 years ago, gosh..

closer to 20 years ago, when my brother was tested... why are not more of

the folks that are hyper.. or even hypo from burned out thyroids, being

tested for this?

I've heard it many times. That thyroid disorder is considered a bread and

butter disease.. the patient comes in once a year for lab work or they

get no meds... if you short dose them you can get them to come in more

often for more office and lab fees.. underdosing them makes them feel

like crap and become dependant on the doctor... and it takes years and

years of misery and torture before they die... and by that time they are

so sick and run down and brain fogged with family that is sick and tired

of dealing with it that the doctors are never made to answer for their

shitty treatment.

If I had a genie's lamp and could make a wish (assuming that I could not

just wish thyroid disease away altogether) I'd wish for the opportunity

to go with folks to their docs and get nose to nose with them (I'm 5'10

and at my best was 277 pounds of solid muscle) and in a nice, calm voice

ask that doc explain to me why he's not taking proper lab tests, why he's

not asking about and taking into consideration the symptoms and comments

that the patient is making and why they feel that a synthetic T4 only med

is preferable to a natural medication that provides all the same

components that our healthy thyroids used to make.

If he started to lip off I'd ask him to recite the Hippocratic oath, ask

him why he chose to be a doctor and take an oath that he is not honoring

and then explain to him/her why I believe they are a miserable, worthless

piece of shit and that we (me and the patient I've come in with) will be

going to find a real doctor while making sure what a joke he/she is is

know to all!

Okay... calming down now.... I think.. whew.. yeah... deep breaths...

relax... yeah... I'm okay... I'm setting down the crutch.... I'm not

going to beat the monitor... the monitor is not the doctor that maimed

me.... inhale, one, two, three... exhale, one, two, three.... okay...

calm... yep.. fine now.... checking the keyboard for damage... no.. it's

fine... no broken keys... close one....

Topper ()

On Thu, 08 Jan 2004 16:04:14 -0000 " loboshe " writes:

> >>The docs feel that its simpler just to get rid of the offending

> >>thyroid, eliminating all fluctuations and giving meds instead...

>

> Exactly, and that is what I am afraid of. That thousands upon

> thousands of folks (including my own mother in her 20's during the

> early 1940's) are losing their thyroids because it's the " easiest "

> thing to do. Surely, just as Armour is a MUCH better treatment for

> hypo, there IS a better treatment for hyper. Where is it? Who is

> the maverick out there who is doing it, or proposing it??

>

> Janie

[Guest guest]

,

Thanks for venting all my feelings, that I do not have the energy to vent

Frannie

Re: Re: Hyperthyroid treatment---links needed

Sometimes I'm afraid to find out if there is another solution, for folks

in my circumstance. I found out a few weeks ago that I have a genetic

defect that causes the thyroid to have defective TSH receptors... so the

thyroid doesn't get the instruction from the pituitary.. it just plugs

along as it wills... over time it just continues to speed up and speed

up... until thyroid storm...

I have a full brother that was actually tested for that genetic defect

and found to have it. That was when they were trying to determine if he

had rheumatoid arthritis or Raynaud's syndrome... yet no one told me that

the defect ran in family's and that I might very well have it too... We

have two half sibs that also went hyper in much the same way that I

did... so it's definitely something that runs in families, all four of

us, plus a fifth, diagnosed with bi-polar disorder... all have a common

parent.

So, in my case. When my full brother was tested it should have been

explained to him what that defect was and that I should also be made

aware of it.. I would have known what to say to that doc and I could have

told him what to do when he gave me that 'too fat to be sick line'. We

didn't meet our half sibs until '99. We'd all gone through either obvious

hyper, or hyper storm, by our late 30's... but since we were not aware of

each other there was no way for the first to tell the rest of us. We were

born in Germany and got split up because of all the crap that was

happening there in the '50s.

If this defect exists.. and was being looked for 15 years ago, gosh..

closer to 20 years ago, when my brother was tested... why are not more of

the folks that are hyper.. or even hypo from burned out thyroids, being

tested for this?

I've heard it many times. That thyroid disorder is considered a bread and

butter disease.. the patient comes in once a year for lab work or they

get no meds... if you short dose them you can get them to come in more

often for more office and lab fees.. underdosing them makes them feel

like crap and become dependant on the doctor... and it takes years and

years of misery and torture before they die... and by that time they are

so sick and run down and brain fogged with family that is sick and tired

of dealing with it that the doctors are never made to answer for their

shitty treatment.

If I had a genie's lamp and could make a wish (assuming that I could not

just wish thyroid disease away altogether) I'd wish for the opportunity

to go with folks to their docs and get nose to nose with them (I'm 5'10

and at my best was 277 pounds of solid muscle) and in a nice, calm voice

ask that doc explain to me why he's not taking proper lab tests, why he's

not asking about and taking into consideration the symptoms and comments

that the patient is making and why they feel that a synthetic T4 only med

is preferable to a natural medication that provides all the same

components that our healthy thyroids used to make.

If he started to lip off I'd ask him to recite the Hippocratic oath, ask

him why he chose to be a doctor and take an oath that he is not honoring

and then explain to him/her why I believe they are a miserable, worthless

piece of shit and that we (me and the patient I've come in with) will be

going to find a real doctor while making sure what a joke he/she is is

know to all!

Okay... calming down now.... I think.. whew.. yeah... deep breaths...

relax... yeah... I'm okay... I'm setting down the crutch.... I'm not

going to beat the monitor... the monitor is not the doctor that maimed

me.... inhale, one, two, three... exhale, one, two, three.... okay...

calm... yep.. fine now.... checking the keyboard for damage... no.. it's

fine... no broken keys... close one....

Topper ()

On Thu, 08 Jan 2004 16:04:14 -0000 " loboshe " writes:

> >>The docs feel that its simpler just to get rid of the offending

> >>thyroid, eliminating all fluctuations and giving meds instead...

>

> Exactly, and that is what I am afraid of. That thousands upon

> thousands of folks (including my own mother in her 20's during the

> early 1940's) are losing their thyroids because it's the " easiest "

> thing to do. Surely, just as Armour is a MUCH better treatment for

> hypo, there IS a better treatment for hyper. Where is it? Who is

> the maverick out there who is doing it, or proposing it??

>

> Janie

[Guest guest]

,

Thanks for venting all my feelings, that I do not have the energy to vent

Frannie

Re: Re: Hyperthyroid treatment---links needed

Sometimes I'm afraid to find out if there is another solution, for folks

in my circumstance. I found out a few weeks ago that I have a genetic

defect that causes the thyroid to have defective TSH receptors... so the

thyroid doesn't get the instruction from the pituitary.. it just plugs

along as it wills... over time it just continues to speed up and speed

up... until thyroid storm...

I have a full brother that was actually tested for that genetic defect

and found to have it. That was when they were trying to determine if he

had rheumatoid arthritis or Raynaud's syndrome... yet no one told me that

the defect ran in family's and that I might very well have it too... We

have two half sibs that also went hyper in much the same way that I

did... so it's definitely something that runs in families, all four of

us, plus a fifth, diagnosed with bi-polar disorder... all have a common

parent.

So, in my case. When my full brother was tested it should have been

explained to him what that defect was and that I should also be made

aware of it.. I would have known what to say to that doc and I could have

told him what to do when he gave me that 'too fat to be sick line'. We

didn't meet our half sibs until '99. We'd all gone through either obvious

hyper, or hyper storm, by our late 30's... but since we were not aware of

each other there was no way for the first to tell the rest of us. We were

born in Germany and got split up because of all the crap that was

happening there in the '50s.

If this defect exists.. and was being looked for 15 years ago, gosh..

closer to 20 years ago, when my brother was tested... why are not more of

the folks that are hyper.. or even hypo from burned out thyroids, being

tested for this?

I've heard it many times. That thyroid disorder is considered a bread and

butter disease.. the patient comes in once a year for lab work or they

get no meds... if you short dose them you can get them to come in more

often for more office and lab fees.. underdosing them makes them feel

like crap and become dependant on the doctor... and it takes years and

years of misery and torture before they die... and by that time they are

so sick and run down and brain fogged with family that is sick and tired

of dealing with it that the doctors are never made to answer for their

shitty treatment.

If I had a genie's lamp and could make a wish (assuming that I could not

just wish thyroid disease away altogether) I'd wish for the opportunity

to go with folks to their docs and get nose to nose with them (I'm 5'10

and at my best was 277 pounds of solid muscle) and in a nice, calm voice

ask that doc explain to me why he's not taking proper lab tests, why he's

not asking about and taking into consideration the symptoms and comments

that the patient is making and why they feel that a synthetic T4 only med

is preferable to a natural medication that provides all the same

components that our healthy thyroids used to make.

If he started to lip off I'd ask him to recite the Hippocratic oath, ask

him why he chose to be a doctor and take an oath that he is not honoring

and then explain to him/her why I believe they are a miserable, worthless

piece of shit and that we (me and the patient I've come in with) will be

going to find a real doctor while making sure what a joke he/she is is

know to all!

Okay... calming down now.... I think.. whew.. yeah... deep breaths...

relax... yeah... I'm okay... I'm setting down the crutch.... I'm not

going to beat the monitor... the monitor is not the doctor that maimed

me.... inhale, one, two, three... exhale, one, two, three.... okay...

calm... yep.. fine now.... checking the keyboard for damage... no.. it's

fine... no broken keys... close one....

Topper ()

On Thu, 08 Jan 2004 16:04:14 -0000 " loboshe " writes:

> >>The docs feel that its simpler just to get rid of the offending

> >>thyroid, eliminating all fluctuations and giving meds instead...

>

> Exactly, and that is what I am afraid of. That thousands upon

> thousands of folks (including my own mother in her 20's during the

> early 1940's) are losing their thyroids because it's the " easiest "

> thing to do. Surely, just as Armour is a MUCH better treatment for

> hypo, there IS a better treatment for hyper. Where is it? Who is

> the maverick out there who is doing it, or proposing it??

>

> Janie

[Guest guest]

Tell ya what... If I find that genie lamp first... I'll share one of the

wishes with you... and if you find it first... you could share one with

me... and we'll fix a couple of things.... deal?

*wink*

Topper ()

On Thu, 8 Jan 2004 16:24:49 -0800 " Fran Oyler " writes:

> ,

> Thanks for venting all my feelings, that I do not have the energy to

> vent

> Frannie

[Guest guest]

Tell ya what... If I find that genie lamp first... I'll share one of the

wishes with you... and if you find it first... you could share one with

me... and we'll fix a couple of things.... deal?

*wink*

Topper ()

On Thu, 8 Jan 2004 16:24:49 -0800 " Fran Oyler " writes:

> ,

> Thanks for venting all my feelings, that I do not have the energy to

> vent

> Frannie

[Guest guest]

Tell ya what... If I find that genie lamp first... I'll share one of the

wishes with you... and if you find it first... you could share one with

me... and we'll fix a couple of things.... deal?

*wink*

Topper ()

On Thu, 8 Jan 2004 16:24:49 -0800 " Fran Oyler " writes:

> ,

> Thanks for venting all my feelings, that I do not have the energy to

> vent

> Frannie

[Guest guest]

deal!!!

Re: Re: Hyperthyroid treatment---links needed

Tell ya what... If I find that genie lamp first... I'll share one of the

wishes with you... and if you find it first... you could share one with

me... and we'll fix a couple of things.... deal?

*wink*

Topper ()

On Thu, 8 Jan 2004 16:24:49 -0800 " Fran Oyler " writes:

> ,

> Thanks for venting all my feelings, that I do not have the energy to

> vent

> Frannie

[Guest guest]

deal!!!

Re: Re: Hyperthyroid treatment---links needed

Tell ya what... If I find that genie lamp first... I'll share one of the

wishes with you... and if you find it first... you could share one with

me... and we'll fix a couple of things.... deal?

*wink*

Topper ()

On Thu, 8 Jan 2004 16:24:49 -0800 " Fran Oyler " writes:

> ,

> Thanks for venting all my feelings, that I do not have the energy to

> vent

> Frannie

[Guest guest]

deal!!!

Re: Re: Hyperthyroid treatment---links needed

Tell ya what... If I find that genie lamp first... I'll share one of the

wishes with you... and if you find it first... you could share one with

me... and we'll fix a couple of things.... deal?

*wink*

Topper ()

On Thu, 8 Jan 2004 16:24:49 -0800 " Fran Oyler " writes:

> ,

> Thanks for venting all my feelings, that I do not have the energy to

> vent

> Frannie

[Guest guest]

You have to stand up for yourself.. it's something that we all HAVE to

learn... Look at it this way... if your car is running like crap and you

take it in to the garage and the guys says it just needed air in the

tires and hands you a bill you'd be pissed... and if you left and it was

still running like crap you'd be even more pissed and you'd be back in

his face! Right?

Why do we let doctors thump our knees with a hammer, feel our glands,

read our charts, hand us antidepressants or diet pills and then go home?

I'm not knocking anyone here that has done that, is doing that, or will

do that... I'm hitting myself for having done that and it costing my my

thyroid gland..... I listened to the doc say that I was okay.. that I

needed to lose weight.. that I should ENJOY being able to eat anything

and everything that I wanted and still lose weight....

I was a body builder, I didn't have fat to lose.. I was losing muscle. I

was losing bone, I was damaging my internal organs. I could have died....

and I did lose my gland because by the time I was sick enough to see

another doctor it was too late to have treatment options... I was

scanned, weighed, handed a form to sign (releasing the HMO from all

consequences of the radiation I was about to take) A person in what

looked like a hazmat suit brought me a little metal box, carried with

tongs.... It was brought into the room and set on a table in front of

me... then everyone ran out of the room and watched through a window

while I opened it and took out a capsule and had to swallow it. I was

told to put the paper cup and the box in another container and close

it... then the hazmat guy took the container away and then others came

back into the room.... I was told to go straight home and to not be

around any people for 3 days, no kids for a week.

Trust yourself.. if you know there is something wrong, and the doc says

you're fine.... tell him where to stick it and find a real doc.

I was raised to respect my elders, and doctors and quite a few other

folks, just because of who they were. Not any more. Not after it cost me

the life that I had. If I know something is right, if someone else is

wrong... I'm not gonna be polite anymore.

I lost my home, my car, everything I owned. I can't work any of the jobs

that I used to do, I can't even drive into town to get a job. I'm 46

years old and living with my father..... I'm treated like a ten year old

and continually reminded that this is not my home. I am considered lazy

and irresponsible and told I'm taking advantage of my father. No one

considers that I have a disability, it is not recognized. I'm just the

lazy kid that couldn't keep a job (it's not even taken into consideration

that the jobs I lost were from down-sizing and had nothing to do with

me). At my last job (2 hours each way by bus to get there, and for six

months that was done on crutches because I couldn't walk!) more than

thirty of us were pulled out of the building in the middle of the morning

and told we no longer had jobs. The remaining staff was pulled out a week

later. The following week the company filed for bankruptcy... so yep...

I'm lazy and irresponsible and can't hold down a job.

Stand up for yourself!!!!!!

*climbing down off soap box, head hanging low*

Topper ()

On Thu, 8 Jan 2004 02:53:01 -0700 " Shirley White "

writes:

> You go Topper!! I know " some " of your frustration,not all,as I've not

> been where you've been and pray God it will never happen.But if

> these so called Dr's would just sit down and listen! Tuesday when I

> called the dr,ohhhhhh the gidgey goo's were in my gut,I thought,I

> can't do this,but I kept you all in my mind,AND I did it!! And

> you're right or someone is,can't remember who posted it,but when the

> dr is challenged about his dx and you the patient want's to try a

> different treatment,,,,,look out!

> Shirley

[Guest guest]

You have to stand up for yourself.. it's something that we all HAVE to

learn... Look at it this way... if your car is running like crap and you

take it in to the garage and the guys says it just needed air in the

tires and hands you a bill you'd be pissed... and if you left and it was

still running like crap you'd be even more pissed and you'd be back in

his face! Right?

Why do we let doctors thump our knees with a hammer, feel our glands,

read our charts, hand us antidepressants or diet pills and then go home?

I'm not knocking anyone here that has done that, is doing that, or will

do that... I'm hitting myself for having done that and it costing my my

thyroid gland..... I listened to the doc say that I was okay.. that I

needed to lose weight.. that I should ENJOY being able to eat anything

and everything that I wanted and still lose weight....

I was a body builder, I didn't have fat to lose.. I was losing muscle. I

was losing bone, I was damaging my internal organs. I could have died....

and I did lose my gland because by the time I was sick enough to see

another doctor it was too late to have treatment options... I was

scanned, weighed, handed a form to sign (releasing the HMO from all

consequences of the radiation I was about to take) A person in what

looked like a hazmat suit brought me a little metal box, carried with

tongs.... It was brought into the room and set on a table in front of

me... then everyone ran out of the room and watched through a window

while I opened it and took out a capsule and had to swallow it. I was

told to put the paper cup and the box in another container and close

it... then the hazmat guy took the container away and then others came

back into the room.... I was told to go straight home and to not be

around any people for 3 days, no kids for a week.

Trust yourself.. if you know there is something wrong, and the doc says

you're fine.... tell him where to stick it and find a real doc.

I was raised to respect my elders, and doctors and quite a few other

folks, just because of who they were. Not any more. Not after it cost me

the life that I had. If I know something is right, if someone else is

wrong... I'm not gonna be polite anymore.

I lost my home, my car, everything I owned. I can't work any of the jobs

that I used to do, I can't even drive into town to get a job. I'm 46

years old and living with my father..... I'm treated like a ten year old

and continually reminded that this is not my home. I am considered lazy

and irresponsible and told I'm taking advantage of my father. No one

considers that I have a disability, it is not recognized. I'm just the

lazy kid that couldn't keep a job (it's not even taken into consideration

that the jobs I lost were from down-sizing and had nothing to do with

me). At my last job (2 hours each way by bus to get there, and for six

months that was done on crutches because I couldn't walk!) more than

thirty of us were pulled out of the building in the middle of the morning

and told we no longer had jobs. The remaining staff was pulled out a week

later. The following week the company filed for bankruptcy... so yep...

I'm lazy and irresponsible and can't hold down a job.

Stand up for yourself!!!!!!

*climbing down off soap box, head hanging low*

Topper ()

On Thu, 8 Jan 2004 02:53:01 -0700 " Shirley White "

writes:

> You go Topper!! I know " some " of your frustration,not all,as I've not

> been where you've been and pray God it will never happen.But if

> these so called Dr's would just sit down and listen! Tuesday when I

> called the dr,ohhhhhh the gidgey goo's were in my gut,I thought,I

> can't do this,but I kept you all in my mind,AND I did it!! And

> you're right or someone is,can't remember who posted it,but when the

> dr is challenged about his dx and you the patient want's to try a

> different treatment,,,,,look out!

> Shirley

[Guest guest]

When did you receive RAI? I was young and dumb when I was treated like this

and there were no haz-mat suits, etc. Of course, I also had no idea what

they were even doing to me.

-- Re: Re: Hyperthyroid treatment---links

needed

I was a body builder, I didn't have fat to lose.. I was losing muscle. I

was losing bone, I was damaging my internal organs. I could have died....

and I did lose my gland because by the time I was sick enough to see

another doctor it was too late to have treatment options... I was

scanned, weighed, handed a form to sign (releasing the HMO from all

consequences of the radiation I was about to take) A person in what

looked like a hazmat suit brought me a little metal box, carried with

tongs.... It was brought into the room and set on a table in front of

me... then everyone ran out of the room and watched through a window

while I opened it and took out a capsule and had to swallow it. I was

told to put the paper cup and the box in another container and close

it... then the hazmat guy took the container away and then others came

back into the room.... I was told to go straight home and to not be

around any people for 3 days, no kids for a week.

*climbing down off soap box, head hanging low*

Topper ()

[Guest guest]

When did you receive RAI? I was young and dumb when I was treated like this

and there were no haz-mat suits, etc. Of course, I also had no idea what

they were even doing to me.

-- Re: Re: Hyperthyroid treatment---links

needed

I was a body builder, I didn't have fat to lose.. I was losing muscle. I

was losing bone, I was damaging my internal organs. I could have died....

and I did lose my gland because by the time I was sick enough to see

another doctor it was too late to have treatment options... I was

scanned, weighed, handed a form to sign (releasing the HMO from all

consequences of the radiation I was about to take) A person in what

looked like a hazmat suit brought me a little metal box, carried with

tongs.... It was brought into the room and set on a table in front of

me... then everyone ran out of the room and watched through a window

while I opened it and took out a capsule and had to swallow it. I was

told to put the paper cup and the box in another container and close

it... then the hazmat guy took the container away and then others came

back into the room.... I was told to go straight home and to not be

around any people for 3 days, no kids for a week.

*climbing down off soap box, head hanging low*

Topper ()