Re: Benefits of PT and OT?

[Guest guest]

>And remember, don't tell them this private school

>

>is the *BEST* place for your child, they don't have to provide the BEST

>of

>

>anything, but they do need to provide what's appropriate.

Interesting Sue,

I never thought of it that way. My children are homeschooled or in college,

but I think this statement applies to services in general and to private

insurance, not just to public school.

Kathy, If I may add an addendum to the therapy thought, speaking of what is

" appropriate " , make sure they don't over work your child if you pursue

therapy. Over working is just as detrimental as not enough. In fact, for my

family we do not " work " or do strength building exercises for therapy and we

receive homebound services. With the therapist under my watchful eye, they

STILL want to work on strength!! When we over use our muscles, we actually

LOSE muscles. Literal atrophy that can be both seen and felt. It is very

erie to see sunk in spots on one's body.

I say all of this because I see how the therapist are in my home. For some

reason they just don't get it. Their focus seems to ALWAYS be on strength

training, in addition to other things. There is a fine line where if you

under use your muscles, you can't maintain what you have, but for us, and

possibly for some on the list, doing more than that (which for us are

activities of daily living, nothing more) results in losing that precious

muscle. For my youngest, more is at stake than just muscle as he gets into

respiratory troubles as well.

I know that if I wasn't around to monitor these things for my children, or if

I didn't experience it myself, I would never know to look out for it. We

discontinued another therapy as of yesterday to get a holiday break and the

OT STILL was saying to have my son reach across the table to get to his

project at hand rather then for me to place it next to him so that it is

convenient. He wants to do a good job and I would rather he put his energy

into being able to work on the project at hand for longer periods of time and

improve his skills than to tire out in five minutes and not stand a chance to

" practice " improving his skills. The end result is the same, he has only but

so much stamina and he always pushes himself. He is going to work his

muscles to their max but he would rather get more time doing the artwork than

to have to quit so suddenly because he was forced to struggle harder to do

only a few minutes. It is a very easy concept and I get frustrated that NO

therapist seems to be able to see this. They just seem to want to make

everything the hardest it can be and if therapy is done in a few minutes

because he gives out, then so be it. I know it apparently is the way they

are trained, but it is frustrating nevertheless.

for what it is worth,

Cheri

[Guest guest]

>And remember, don't tell them this private school

>

>is the *BEST* place for your child, they don't have to provide the BEST

>of

>

>anything, but they do need to provide what's appropriate.

Interesting Sue,

I never thought of it that way. My children are homeschooled or in college,

but I think this statement applies to services in general and to private

insurance, not just to public school.

Kathy, If I may add an addendum to the therapy thought, speaking of what is

" appropriate " , make sure they don't over work your child if you pursue

therapy. Over working is just as detrimental as not enough. In fact, for my

family we do not " work " or do strength building exercises for therapy and we

receive homebound services. With the therapist under my watchful eye, they

STILL want to work on strength!! When we over use our muscles, we actually

LOSE muscles. Literal atrophy that can be both seen and felt. It is very

erie to see sunk in spots on one's body.

I say all of this because I see how the therapist are in my home. For some

reason they just don't get it. Their focus seems to ALWAYS be on strength

training, in addition to other things. There is a fine line where if you

under use your muscles, you can't maintain what you have, but for us, and

possibly for some on the list, doing more than that (which for us are

activities of daily living, nothing more) results in losing that precious

muscle. For my youngest, more is at stake than just muscle as he gets into

respiratory troubles as well.

I know that if I wasn't around to monitor these things for my children, or if

I didn't experience it myself, I would never know to look out for it. We

discontinued another therapy as of yesterday to get a holiday break and the

OT STILL was saying to have my son reach across the table to get to his

project at hand rather then for me to place it next to him so that it is

convenient. He wants to do a good job and I would rather he put his energy

into being able to work on the project at hand for longer periods of time and

improve his skills than to tire out in five minutes and not stand a chance to

" practice " improving his skills. The end result is the same, he has only but

so much stamina and he always pushes himself. He is going to work his

muscles to their max but he would rather get more time doing the artwork than

to have to quit so suddenly because he was forced to struggle harder to do

only a few minutes. It is a very easy concept and I get frustrated that NO

therapist seems to be able to see this. They just seem to want to make

everything the hardest it can be and if therapy is done in a few minutes

because he gives out, then so be it. I know it apparently is the way they

are trained, but it is frustrating nevertheless.

for what it is worth,

Cheri

[Guest guest]

>And remember, don't tell them this private school

>

>is the *BEST* place for your child, they don't have to provide the BEST

>of

>

>anything, but they do need to provide what's appropriate.

Interesting Sue,

I never thought of it that way. My children are homeschooled or in college,

but I think this statement applies to services in general and to private

insurance, not just to public school.

Kathy, If I may add an addendum to the therapy thought, speaking of what is

" appropriate " , make sure they don't over work your child if you pursue

therapy. Over working is just as detrimental as not enough. In fact, for my

family we do not " work " or do strength building exercises for therapy and we

receive homebound services. With the therapist under my watchful eye, they

STILL want to work on strength!! When we over use our muscles, we actually

LOSE muscles. Literal atrophy that can be both seen and felt. It is very

erie to see sunk in spots on one's body.

I say all of this because I see how the therapist are in my home. For some

reason they just don't get it. Their focus seems to ALWAYS be on strength

training, in addition to other things. There is a fine line where if you

under use your muscles, you can't maintain what you have, but for us, and

possibly for some on the list, doing more than that (which for us are

activities of daily living, nothing more) results in losing that precious

muscle. For my youngest, more is at stake than just muscle as he gets into

respiratory troubles as well.

I know that if I wasn't around to monitor these things for my children, or if

I didn't experience it myself, I would never know to look out for it. We

discontinued another therapy as of yesterday to get a holiday break and the

OT STILL was saying to have my son reach across the table to get to his

project at hand rather then for me to place it next to him so that it is

convenient. He wants to do a good job and I would rather he put his energy

into being able to work on the project at hand for longer periods of time and

improve his skills than to tire out in five minutes and not stand a chance to

" practice " improving his skills. The end result is the same, he has only but

so much stamina and he always pushes himself. He is going to work his

muscles to their max but he would rather get more time doing the artwork than

to have to quit so suddenly because he was forced to struggle harder to do

only a few minutes. It is a very easy concept and I get frustrated that NO

therapist seems to be able to see this. They just seem to want to make

everything the hardest it can be and if therapy is done in a few minutes

because he gives out, then so be it. I know it apparently is the way they

are trained, but it is frustrating nevertheless.

for what it is worth,

Cheri

[Guest guest]

>

>

> I know it sounds funny after reading it. What I wanted to get

>

>across is the LAW says schools only need to provide what is appropriate,

>not

>

>what is best for the child. We as moms and dads need to make sure when

>we

>

>want the best we just use the word appropriate. ) It's all semantics.

I understood Sue. And it is all a matter of semantics, but one I intend to

remember! It's amazing how one can say the " right " thing and have a far

smoother road! I am convinced this will work with our insurance on some

issue as well!!

Cheri

[Guest guest]

>

>

> I know it sounds funny after reading it. What I wanted to get

>

>across is the LAW says schools only need to provide what is appropriate,

>not

>

>what is best for the child. We as moms and dads need to make sure when

>we

>

>want the best we just use the word appropriate. ) It's all semantics.

I understood Sue. And it is all a matter of semantics, but one I intend to

remember! It's amazing how one can say the " right " thing and have a far

smoother road! I am convinced this will work with our insurance on some

issue as well!!

Cheri

[Guest guest]

>

>

> I know it sounds funny after reading it. What I wanted to get

>

>across is the LAW says schools only need to provide what is appropriate,

>not

>

>what is best for the child. We as moms and dads need to make sure when

>we

>

>want the best we just use the word appropriate. ) It's all semantics.

I understood Sue. And it is all a matter of semantics, but one I intend to

remember! It's amazing how one can say the " right " thing and have a far

smoother road! I am convinced this will work with our insurance on some

issue as well!!

Cheri

[Guest guest]

Hi Cheri,

I know it sounds funny after reading it. What I wanted to get

across is the LAW says schools only need to provide what is appropriate, not

what is best for the child. We as moms and dads need to make sure when we

want the best we just use the word appropriate. ) It's all semantics.

Sue ( & Jack)-worn out parents to the greatest kids on earth in Las Vegas, NV

Chris-9: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker

-8: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, trach

tube (larynotracheomalasia), g-tube/fundo Visit us! http://u2.lvcm.com/jscb

[Guest guest]

Hi Cheri,

I know it sounds funny after reading it. What I wanted to get

across is the LAW says schools only need to provide what is appropriate, not

what is best for the child. We as moms and dads need to make sure when we

want the best we just use the word appropriate. ) It's all semantics.

Sue ( & Jack)-worn out parents to the greatest kids on earth in Las Vegas, NV

Chris-9: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker

-8: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, trach

tube (larynotracheomalasia), g-tube/fundo Visit us! http://u2.lvcm.com/jscb

[Guest guest]

Hi Cheri,

I know it sounds funny after reading it. What I wanted to get

across is the LAW says schools only need to provide what is appropriate, not

what is best for the child. We as moms and dads need to make sure when we

want the best we just use the word appropriate. ) It's all semantics.

Sue ( & Jack)-worn out parents to the greatest kids on earth in Las Vegas, NV

Chris-9: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker

-8: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, trach

tube (larynotracheomalasia), g-tube/fundo Visit us! http://u2.lvcm.com/jscb

[Guest guest]

In a message dated 11/20/99 3:14:02 AM Eastern Standard Time,

Cheri77777@... writes:

<< I understood Sue. And it is all a matter of semantics, but one I intend

to

remember! It's amazing how one can say the " right " thing and have a far

smoother road! I am convinced this will work with our insurance on some

issue as well!!

Cheri

>>

Cheri and Sue - I agree on this one, too. It is like a code that you have to

know to make things easier. You have to learn the jargon of the industry.

If you phrase things in their language, then the road is smoother--both in

insurance and education--and other areas of life for that matter!!!

Interesting, huh?

Thanks for helping me with the " translations " !!!!!!!!

Kathy

[Guest guest]

In a message dated 11/20/99 3:14:02 AM Eastern Standard Time,

Cheri77777@... writes:

<< I understood Sue. And it is all a matter of semantics, but one I intend

to

remember! It's amazing how one can say the " right " thing and have a far

smoother road! I am convinced this will work with our insurance on some

issue as well!!

Cheri

>>

Cheri and Sue - I agree on this one, too. It is like a code that you have to

know to make things easier. You have to learn the jargon of the industry.

If you phrase things in their language, then the road is smoother--both in

insurance and education--and other areas of life for that matter!!!

Interesting, huh?

Thanks for helping me with the " translations " !!!!!!!!

Kathy

[Guest guest]

In a message dated 11/20/99 3:14:02 AM Eastern Standard Time,

Cheri77777@... writes:

<< I understood Sue. And it is all a matter of semantics, but one I intend

to

remember! It's amazing how one can say the " right " thing and have a far

smoother road! I am convinced this will work with our insurance on some

issue as well!!

Cheri

>>

Cheri and Sue - I agree on this one, too. It is like a code that you have to

know to make things easier. You have to learn the jargon of the industry.

If you phrase things in their language, then the road is smoother--both in

insurance and education--and other areas of life for that matter!!!

Interesting, huh?

Thanks for helping me with the " translations " !!!!!!!!

Kathy