Guest guest Posted May 15, 2001 Report Share Posted May 15, 2001 I don't have full details about what happens to fibroids after menopause. But, my doctor mentioned today that if they could just get me though menopause the fibroids would shrink quite a bit. Your mileage may vary. Jan Fibroids > Hello, I'm new to this group and have appreciated the information and > support so far. I have a large fibroid (12cm) which causes pressure on > bladder (my main concern as I like to lead an active life - badminton, walks > etc.) and heavy bleeding for 2 days each cycle. I am 50 and had thought to > " struggle on " past menopause (though I don't feel or see any signs yet!). > Saw the consultant a year ago who found out about UAE for me and a hospital > that could do it (it's not at all common in UK) but as my fibroid is big and > hard we decided that it would only have partial effect. Current thinking is > to have 3 months zoladex to shrink the fibroid and then a sub-total > hysterectomy. I've never had surgery and would obviously prefer not to but > feel that perhaps it would be a permanent solution. Does anyone have > similar experiences to mine? What does happen to large fibroids after the > menopause? > > Thanks for listening, > Ginny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2001 Report Share Posted May 15, 2001 I don't have full details about what happens to fibroids after menopause. But, my doctor mentioned today that if they could just get me though menopause the fibroids would shrink quite a bit. Your mileage may vary. Jan Fibroids > Hello, I'm new to this group and have appreciated the information and > support so far. I have a large fibroid (12cm) which causes pressure on > bladder (my main concern as I like to lead an active life - badminton, walks > etc.) and heavy bleeding for 2 days each cycle. I am 50 and had thought to > " struggle on " past menopause (though I don't feel or see any signs yet!). > Saw the consultant a year ago who found out about UAE for me and a hospital > that could do it (it's not at all common in UK) but as my fibroid is big and > hard we decided that it would only have partial effect. Current thinking is > to have 3 months zoladex to shrink the fibroid and then a sub-total > hysterectomy. I've never had surgery and would obviously prefer not to but > feel that perhaps it would be a permanent solution. Does anyone have > similar experiences to mine? What does happen to large fibroids after the > menopause? > > Thanks for listening, > Ginny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 Hello, I'm new to this group and have appreciated the information and support so far. I have a large fibroid (12cm) which causes pressure on bladder (my main concern as I like to lead an active life - badminton, walks etc.) and heavy bleeding for 2 days each cycle. I am 50 and had thought to " struggle on " past menopause (though I don't feel or see any signs yet!). Saw the consultant a year ago who found out about UAE for me and a hospital that could do it (it's not at all common in UK) but as my fibroid is big and hard we decided that it would only have partial effect. Current thinking is to have 3 months zoladex to shrink the fibroid and then a sub-total hysterectomy. I've never had surgery and would obviously prefer not to but feel that perhaps it would be a permanent solution. Does anyone have similar experiences to mine? What does happen to large fibroids after the menopause? Thanks for listening, Ginny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 Jan, I am in menopause and my fibroids have grown. They are not real big, but they grew with in a year. I have been in menopause for two years now. So I don't know how true that statement is. There are so many different senerios that it seems to me, the best thing is talking with the doctor that anyone has gone to on a regular basis that knows ones history and figure out the best proceedure for that individual. My head is spinning with all this info. Luckily I am not having half the extreme syptoms that I have been reading about on this site. I feel blessed in that repect. I am 54 years old and if I were to go the hyterecomy route, I don't feel it would be drastic for me. I have a few friends that have had that done, (at an earlier age) and feel it was the best thing they did. Time will tell, I have some more tests to go through to rule out other problems that might be causing the same symptoms that I am having now. Dottie " Jan A Cordes " on 05/16/2001 12:18:28 AM Please respond to uterinefibroids To: <uterinefibroids > cc: Subject: Re: Fibroids I don't have full details about what happens to fibroids after menopause. But, my doctor mentioned today that if they could just get me though menopause the fibroids would shrink quite a bit. Your mileage may vary. Jan Fibroids > Hello, I'm new to this group and have appreciated the information and > support so far. I have a large fibroid (12cm) which causes pressure on > bladder (my main concern as I like to lead an active life - badminton, walks > etc.) and heavy bleeding for 2 days each cycle. I am 50 and had thought to > " struggle on " past menopause (though I don't feel or see any signs yet!). > Saw the consultant a year ago who found out about UAE for me and a hospital > that could do it (it's not at all common in UK) but as my fibroid is big and > hard we decided that it would only have partial effect. Current thinking is > to have 3 months zoladex to shrink the fibroid and then a sub-total > hysterectomy. I've never had surgery and would obviously prefer not to but > feel that perhaps it would be a permanent solution. Does anyone have > similar experiences to mine? What does happen to large fibroids after the > menopause? > > Thanks for listening, > Ginny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 Jan, I am in menopause and my fibroids have grown. They are not real big, but they grew with in a year. I have been in menopause for two years now. So I don't know how true that statement is. There are so many different senerios that it seems to me, the best thing is talking with the doctor that anyone has gone to on a regular basis that knows ones history and figure out the best proceedure for that individual. My head is spinning with all this info. Luckily I am not having half the extreme syptoms that I have been reading about on this site. I feel blessed in that repect. I am 54 years old and if I were to go the hyterecomy route, I don't feel it would be drastic for me. I have a few friends that have had that done, (at an earlier age) and feel it was the best thing they did. Time will tell, I have some more tests to go through to rule out other problems that might be causing the same symptoms that I am having now. Dottie " Jan A Cordes " on 05/16/2001 12:18:28 AM Please respond to uterinefibroids To: <uterinefibroids > cc: Subject: Re: Fibroids I don't have full details about what happens to fibroids after menopause. But, my doctor mentioned today that if they could just get me though menopause the fibroids would shrink quite a bit. Your mileage may vary. Jan Fibroids > Hello, I'm new to this group and have appreciated the information and > support so far. I have a large fibroid (12cm) which causes pressure on > bladder (my main concern as I like to lead an active life - badminton, walks > etc.) and heavy bleeding for 2 days each cycle. I am 50 and had thought to > " struggle on " past menopause (though I don't feel or see any signs yet!). > Saw the consultant a year ago who found out about UAE for me and a hospital > that could do it (it's not at all common in UK) but as my fibroid is big and > hard we decided that it would only have partial effect. Current thinking is > to have 3 months zoladex to shrink the fibroid and then a sub-total > hysterectomy. I've never had surgery and would obviously prefer not to but > feel that perhaps it would be a permanent solution. Does anyone have > similar experiences to mine? What does happen to large fibroids after the > menopause? > > Thanks for listening, > Ginny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 my mother's fibroids shrank up and became soft. She has never had any problems since. She is 75 now. If you are going to have surgery, why can't you just have the fibroid out? You increase your risk of heart disease and may lower your imune function by losing your uterus. It produces prolactins that protect the heart and other tissues. If you know when your mother went into menopause, you will have a good idea about when you will. It a is highly inherited trait from the mother. Check out " Hormonal Health " by Dr. Colgan or " The Ultimate Rape " by Plourde for more on prolactins. Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 my mother's fibroids shrank up and became soft. She has never had any problems since. She is 75 now. If you are going to have surgery, why can't you just have the fibroid out? You increase your risk of heart disease and may lower your imune function by losing your uterus. It produces prolactins that protect the heart and other tissues. If you know when your mother went into menopause, you will have a good idea about when you will. It a is highly inherited trait from the mother. Check out " Hormonal Health " by Dr. Colgan or " The Ultimate Rape " by Plourde for more on prolactins. Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 Ginny, The average age of menopause is 51. Too bad your not having any signs of menopausal symptoms given the 12 cm size and the bladder pressure and bleeding symptoms. You write: " Saw the consultant a year ago who found out about UAE for me and a hospital that could do it (it's not at all common in UK) but as my fibroid is big and hard we decided that it would only have partial effect. " What diagnostics did the Consultant perform? Did s/he determine you had a calcifying uterine fibroid? Where is it located and what type of fibroid did your Consultant say it was? Did s/he indicate research showing women over 50 had a high risk for failed UAE with calcification? Have you considered getting an MRI and a consult from her/him? They may be able to answer whether it would " only have partial effect " more thoroughly and adequately. Also, they should be able to describe what would happen to the fibroid, post-UAE If that does not suffice, then the next step would be the surgery. It sounds like you are comfortable with and satisfied with your consultant's surgical competency. The choices are not easy but you might be more reassured with second opinions from an IR ...and you may be amazed to see the MRI vs an ultrasound. Best wishes, Marsha In a message dated 5/16/01 5:26:48 AM Eastern Daylight Time, virginia.tompkins@... writes: > Hello, I'm new to this group and have appreciated the information and > support so far. I have a large fibroid (12cm) which causes pressure on > bladder (my main concern as I like to lead an active life - badminton, walks > etc.) and heavy bleeding for 2 days each cycle. I am 50 and had thought to > " struggle on " past menopause (though I don't feel or see any signs yet!). > Saw the consultant a year ago who found out about UAE for me and a hospital > that could do it (it's not at all common in UK) but as my fibroid is big and > hard we decided that it would only have partial effect. Current thinking is > to have 3 months zoladex to shrink the fibroid and then a sub-total > hysterectomy. I've never had surgery and would obviously prefer not to but > feel that perhaps it would be a permanent solution. Does anyone have > similar experiences to mine? What does happen to large fibroids after the > menopause? > > Thanks for listening, > Ginny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 Ginny, The average age of menopause is 51. Too bad your not having any signs of menopausal symptoms given the 12 cm size and the bladder pressure and bleeding symptoms. You write: " Saw the consultant a year ago who found out about UAE for me and a hospital that could do it (it's not at all common in UK) but as my fibroid is big and hard we decided that it would only have partial effect. " What diagnostics did the Consultant perform? Did s/he determine you had a calcifying uterine fibroid? Where is it located and what type of fibroid did your Consultant say it was? Did s/he indicate research showing women over 50 had a high risk for failed UAE with calcification? Have you considered getting an MRI and a consult from her/him? They may be able to answer whether it would " only have partial effect " more thoroughly and adequately. Also, they should be able to describe what would happen to the fibroid, post-UAE If that does not suffice, then the next step would be the surgery. It sounds like you are comfortable with and satisfied with your consultant's surgical competency. The choices are not easy but you might be more reassured with second opinions from an IR ...and you may be amazed to see the MRI vs an ultrasound. Best wishes, Marsha In a message dated 5/16/01 5:26:48 AM Eastern Daylight Time, virginia.tompkins@... writes: > Hello, I'm new to this group and have appreciated the information and > support so far. I have a large fibroid (12cm) which causes pressure on > bladder (my main concern as I like to lead an active life - badminton, walks > etc.) and heavy bleeding for 2 days each cycle. I am 50 and had thought to > " struggle on " past menopause (though I don't feel or see any signs yet!). > Saw the consultant a year ago who found out about UAE for me and a hospital > that could do it (it's not at all common in UK) but as my fibroid is big and > hard we decided that it would only have partial effect. Current thinking is > to have 3 months zoladex to shrink the fibroid and then a sub-total > hysterectomy. I've never had surgery and would obviously prefer not to but > feel that perhaps it would be a permanent solution. Does anyone have > similar experiences to mine? What does happen to large fibroids after the > menopause? > > Thanks for listening, > Ginny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 I have a VERY IMPORTANT QUESTION to ask here and I hope Carla or somebody can answer it. I just read a link : http://www.obgyn.net/avtranscripts/aagl98-bradley.htm which talks about laparoscopic supracervical hysterectomy. It says that the cervix and ovaries are retained and also a small part of the uterus. I had spoken to a dr about this and he mentioned that he could leave in a small part of my uterus and that I might actually spot a bit each month instead of menstruate. Considering that the original, young, uterus is about the size of a lemon... here is the MILLION DOLLAR QUESTION as far as I am concerned.... ready guys? HOW MUCH UTERUS OR UTERINE TISSUE DOES IT TAKE TO A) PRODUCE PROLACTINS AND HAVE A UTERINE CONTRACTION DURING ORGASM? AND HOW MUCH DO THEY LEAVE IN DURING THIS PROCEDURE? I am loving the no abdominal incision factor, as well as the fast recovery time. If anyone can tell me that the little bit of uterus they leave in can produce the needed hormones, and if as a bonus it is enough to contract during orgasm, well I'm in business as far as I am concerned. My only worry now is that I may be too big for this procedure and if that is the case then I may consider being UAE'd for pre-surgery shrinkage or may even take Lupron. If I could lose weight during the shrinkage time, and control the bleeding, well this might be the healthiest way to go all the way around. B --- lkwetter@... wrote: > my mother's fibroids shrank up and became soft. She > has never had any > problems since. She is 75 now. If you are going to > have surgery, why > can't you just have the fibroid out? You increase > your risk of heart > disease and may lower your imune function by losing > your uterus. It > produces prolactins that protect the heart and other > tissues. > > If you know when your mother went into menopause, > you will have a > good idea about when you will. It a is highly > inherited trait from > the mother. > > Check out " Hormonal Health " by Dr. Colgan or > " The Ultimate Rape " by Plourde for more on > prolactins. > > Tish > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 I have a VERY IMPORTANT QUESTION to ask here and I hope Carla or somebody can answer it. I just read a link : http://www.obgyn.net/avtranscripts/aagl98-bradley.htm which talks about laparoscopic supracervical hysterectomy. It says that the cervix and ovaries are retained and also a small part of the uterus. I had spoken to a dr about this and he mentioned that he could leave in a small part of my uterus and that I might actually spot a bit each month instead of menstruate. Considering that the original, young, uterus is about the size of a lemon... here is the MILLION DOLLAR QUESTION as far as I am concerned.... ready guys? HOW MUCH UTERUS OR UTERINE TISSUE DOES IT TAKE TO A) PRODUCE PROLACTINS AND HAVE A UTERINE CONTRACTION DURING ORGASM? AND HOW MUCH DO THEY LEAVE IN DURING THIS PROCEDURE? I am loving the no abdominal incision factor, as well as the fast recovery time. If anyone can tell me that the little bit of uterus they leave in can produce the needed hormones, and if as a bonus it is enough to contract during orgasm, well I'm in business as far as I am concerned. My only worry now is that I may be too big for this procedure and if that is the case then I may consider being UAE'd for pre-surgery shrinkage or may even take Lupron. If I could lose weight during the shrinkage time, and control the bleeding, well this might be the healthiest way to go all the way around. B --- lkwetter@... wrote: > my mother's fibroids shrank up and became soft. She > has never had any > problems since. She is 75 now. If you are going to > have surgery, why > can't you just have the fibroid out? You increase > your risk of heart > disease and may lower your imune function by losing > your uterus. It > produces prolactins that protect the heart and other > tissues. > > If you know when your mother went into menopause, > you will have a > good idea about when you will. It a is highly > inherited trait from > the mother. > > Check out " Hormonal Health " by Dr. Colgan or > " The Ultimate Rape " by Plourde for more on > prolactins. > > Tish > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Hi Marsha, Thanks for the reply - calcification of the large fibroid was evident from the two ultrasounds I had (a year apart) which also showed that the fibroid (high in uterus - don't know medical terms) had grown. My doctor (GP) is confident with the consultant and I respect my doctor's opinion, though through this group I feel that I need to do more research! A friend recently had a total hysterectomy at University College Hospital and was given no option as to the type of hys she wanted. My consultant was prepared to discuss the options. I haven't asked her about myectomy because my understanding is that fibroids grow back fairly rapidly - am I wrong? She also said that UAE shrinks fibroids but doesn't necessarily eliminate them and that a smaller fibroid could still cause pressure on the bladder. Thanks very much for the info Ginny Re: Fibroids > Ginny, > The average age of menopause is 51. Too bad your > not having any signs of menopausal symptoms given the 12 cm > size and the bladder pressure and bleeding symptoms. > > > You write: " Saw the consultant a year ago who found out about UAE for me and > a hospital that could do it (it's not at all common in UK) but as my fibroid > is big and > hard we decided that it would only have partial effect. " > > What diagnostics did the Consultant perform? Did s/he determine you > had a calcifying uterine fibroid? Where is it located and what type > of fibroid did your Consultant say it was? Did s/he indicate research > showing women over 50 had a high risk for failed UAE with calcification? > Have you considered getting an MRI and a consult from her/him? They may be > able to answer whether it would " only have partial effect " more thoroughly > and adequately. > Also, they should be able to describe what would happen to the fibroid, > post-UAE > If that does not suffice, then the next step would be the surgery. It sounds > like you are comfortable with and satisfied with your consultant's surgical > competency. > > The choices are not easy but you might be more reassured with > second opinions from an IR ...and you may be amazed to see > the MRI vs an ultrasound. > > Best wishes, > Marsha > > In a message dated 5/16/01 5:26:48 AM Eastern Daylight Time, > virginia.tompkins@... writes: > > Hello, I'm new to this group and have appreciated the information and > > support so far. I have a large fibroid (12cm) which causes pressure on > > bladder (my main concern as I like to lead an active life - badminton, walks > > etc.) and heavy bleeding for 2 days each cycle. I am 50 and had thought to > > " struggle on " past menopause (though I don't feel or see any signs yet!). > > Saw the consultant a year ago who found out about UAE for me and a hospital > > that could do it (it's not at all common in UK) but as my fibroid is big and > > hard we decided that it would only have partial effect. Current thinking is > > to have 3 months zoladex to shrink the fibroid and then a sub-total > > hysterectomy. I've never had surgery and would obviously prefer not to but > > feel that perhaps it would be a permanent solution. Does anyone have > > similar experiences to mine? What does happen to large fibroids after the > > menopause? > > > > Thanks for listening, > > Ginny > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Hi Marsha, Thanks for the reply - calcification of the large fibroid was evident from the two ultrasounds I had (a year apart) which also showed that the fibroid (high in uterus - don't know medical terms) had grown. My doctor (GP) is confident with the consultant and I respect my doctor's opinion, though through this group I feel that I need to do more research! A friend recently had a total hysterectomy at University College Hospital and was given no option as to the type of hys she wanted. My consultant was prepared to discuss the options. I haven't asked her about myectomy because my understanding is that fibroids grow back fairly rapidly - am I wrong? She also said that UAE shrinks fibroids but doesn't necessarily eliminate them and that a smaller fibroid could still cause pressure on the bladder. Thanks very much for the info Ginny Re: Fibroids > Ginny, > The average age of menopause is 51. Too bad your > not having any signs of menopausal symptoms given the 12 cm > size and the bladder pressure and bleeding symptoms. > > > You write: " Saw the consultant a year ago who found out about UAE for me and > a hospital that could do it (it's not at all common in UK) but as my fibroid > is big and > hard we decided that it would only have partial effect. " > > What diagnostics did the Consultant perform? Did s/he determine you > had a calcifying uterine fibroid? Where is it located and what type > of fibroid did your Consultant say it was? Did s/he indicate research > showing women over 50 had a high risk for failed UAE with calcification? > Have you considered getting an MRI and a consult from her/him? They may be > able to answer whether it would " only have partial effect " more thoroughly > and adequately. > Also, they should be able to describe what would happen to the fibroid, > post-UAE > If that does not suffice, then the next step would be the surgery. It sounds > like you are comfortable with and satisfied with your consultant's surgical > competency. > > The choices are not easy but you might be more reassured with > second opinions from an IR ...and you may be amazed to see > the MRI vs an ultrasound. > > Best wishes, > Marsha > > In a message dated 5/16/01 5:26:48 AM Eastern Daylight Time, > virginia.tompkins@... writes: > > Hello, I'm new to this group and have appreciated the information and > > support so far. I have a large fibroid (12cm) which causes pressure on > > bladder (my main concern as I like to lead an active life - badminton, walks > > etc.) and heavy bleeding for 2 days each cycle. I am 50 and had thought to > > " struggle on " past menopause (though I don't feel or see any signs yet!). > > Saw the consultant a year ago who found out about UAE for me and a hospital > > that could do it (it's not at all common in UK) but as my fibroid is big and > > hard we decided that it would only have partial effect. Current thinking is > > to have 3 months zoladex to shrink the fibroid and then a sub-total > > hysterectomy. I've never had surgery and would obviously prefer not to but > > feel that perhaps it would be a permanent solution. Does anyone have > > similar experiences to mine? What does happen to large fibroids after the > > menopause? > > > > Thanks for listening, > > Ginny > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Thanks very much for these contacts - I shall investigate. Ginny Re: Fibroids > Virginia in the UK: Everytime I see someone writing from the UK,. I invite them to join the UK Fibroids Discussion List, which you can access via http://www.smartgroups.com . The group is building up a database of consultants and other useful contacts in Europe, esp in Britain and Ireland. > > Other useful UK connections both based in London but with national outreach are : > The Fibroid Network (with Fibroid News and Sister Network bookshop) http://www.fibroidnetwork.co.uk > Women's Health: http://www.womenshealthlondon.org.uk/ > (addresses and phone nos can be found at the websites) > > I think large fibroids remain quite large after menopause except in those cases where they slough and are expelled (as can also happen after UAE and even with Zoladex; it is not the norm) > > I had UAE with an even larger fibroid than yours. So far (four months) if hasn't been a great success. But I still think it would be worth your while having a consultation with a radiologist before you schedule hysterectomy. Depending on the location of your dominant fibroid, the IR might say that there is too much risk of infection or too little hope of shrinkage. But on the other hand, s/he might think it would be useful. A woman I know who had UAE at the Royal Free Hospital, London (Dr Watkinson) for a minimally symptomatic 17 cm fibroid (intramural??) has been pleased with her outcome. > > You also might want to consider myomectomy, surgical removal of fibroids, rather than subtotal hysterectomy. > > If you have UAE and aren't satisfied with the results, further surgery is possible. although we choose UAE to avoid surgery, sometimes it's very necessary, sometimes elective for comfort and improved appearance and/or fertility. I don't know under what circumstances the NHS or even private insurance would pay for both UAE and elective myo or hyst, so this option may not be economically feasible for you. > > Where are you located? Have you been given an idea about the waiting lists to see other consultants and/or to schedule one or another of the possible treatments? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Thanks very much for these contacts - I shall investigate. Ginny Re: Fibroids > Virginia in the UK: Everytime I see someone writing from the UK,. I invite them to join the UK Fibroids Discussion List, which you can access via http://www.smartgroups.com . The group is building up a database of consultants and other useful contacts in Europe, esp in Britain and Ireland. > > Other useful UK connections both based in London but with national outreach are : > The Fibroid Network (with Fibroid News and Sister Network bookshop) http://www.fibroidnetwork.co.uk > Women's Health: http://www.womenshealthlondon.org.uk/ > (addresses and phone nos can be found at the websites) > > I think large fibroids remain quite large after menopause except in those cases where they slough and are expelled (as can also happen after UAE and even with Zoladex; it is not the norm) > > I had UAE with an even larger fibroid than yours. So far (four months) if hasn't been a great success. But I still think it would be worth your while having a consultation with a radiologist before you schedule hysterectomy. Depending on the location of your dominant fibroid, the IR might say that there is too much risk of infection or too little hope of shrinkage. But on the other hand, s/he might think it would be useful. A woman I know who had UAE at the Royal Free Hospital, London (Dr Watkinson) for a minimally symptomatic 17 cm fibroid (intramural??) has been pleased with her outcome. > > You also might want to consider myomectomy, surgical removal of fibroids, rather than subtotal hysterectomy. > > If you have UAE and aren't satisfied with the results, further surgery is possible. although we choose UAE to avoid surgery, sometimes it's very necessary, sometimes elective for comfort and improved appearance and/or fertility. I don't know under what circumstances the NHS or even private insurance would pay for both UAE and elective myo or hyst, so this option may not be economically feasible for you. > > Where are you located? Have you been given an idea about the waiting lists to see other consultants and/or to schedule one or another of the possible treatments? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Thanks very much for these contacts - I shall investigate. Ginny Re: Fibroids > Virginia in the UK: Everytime I see someone writing from the UK,. I invite them to join the UK Fibroids Discussion List, which you can access via http://www.smartgroups.com . The group is building up a database of consultants and other useful contacts in Europe, esp in Britain and Ireland. > > Other useful UK connections both based in London but with national outreach are : > The Fibroid Network (with Fibroid News and Sister Network bookshop) http://www.fibroidnetwork.co.uk > Women's Health: http://www.womenshealthlondon.org.uk/ > (addresses and phone nos can be found at the websites) > > I think large fibroids remain quite large after menopause except in those cases where they slough and are expelled (as can also happen after UAE and even with Zoladex; it is not the norm) > > I had UAE with an even larger fibroid than yours. So far (four months) if hasn't been a great success. But I still think it would be worth your while having a consultation with a radiologist before you schedule hysterectomy. Depending on the location of your dominant fibroid, the IR might say that there is too much risk of infection or too little hope of shrinkage. But on the other hand, s/he might think it would be useful. A woman I know who had UAE at the Royal Free Hospital, London (Dr Watkinson) for a minimally symptomatic 17 cm fibroid (intramural??) has been pleased with her outcome. > > You also might want to consider myomectomy, surgical removal of fibroids, rather than subtotal hysterectomy. > > If you have UAE and aren't satisfied with the results, further surgery is possible. although we choose UAE to avoid surgery, sometimes it's very necessary, sometimes elective for comfort and improved appearance and/or fertility. I don't know under what circumstances the NHS or even private insurance would pay for both UAE and elective myo or hyst, so this option may not be economically feasible for you. > > Where are you located? Have you been given an idea about the waiting lists to see other consultants and/or to schedule one or another of the possible treatments? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 > She refuses to talk me, give me lab results or answer any questions > if its not pertaining to the surgery. I am between a brick and a > hardplate. I don't know, what to do right now. I do have an appt. > with my family physican and I will communicate my situation at that > time. > > I want to know what about the fibroids, exactly how many, size, > shape, location? > What are and if my options, if any. > Is the excessive bleeding due to the Depo shot? > Could I be starting menopause ? > What are the advantages & disadvantages of the surgery? > and what type i.e., full hysterectomy, partial, etc. I had to respond to this one. I worked for five years for an HMO and although rules regarding medical records vary somewhat from one place to another, if you are in the U.S. the information in those records belongs to YOU - not to your doctor. That includes lab results, ultrasound reports, everything. A health care provider does not have the right to keep any of your medical information from you. They do have the right to charge you for copies and they will aviod giving you anything you don't explicity ask for in order to protect themselves but if you ask for it, they have to give it to you. Try writing them a letter and sending it certified mail. If that doesn't work, contact your local credentially board, usually a state agency. Almost always you have options, lots of them. The difficulty is finding a doctor who agrees with you on what treatment, if any, you want. If you have a good relationship with your family doctor, explain that you want a referral to someone else, that you don't feel comfortable with the first doctor or her treatment recommendations. That happens all the time and you shouldn't be embarrassed about asking for a change. Or two or three even. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 There are a number of options besides hysterectomy for fibroid treatment. Some may be suitable for you and some might not, but to even begin to consider those options, you need to know their size, location, etc. Also, OB-GYNs don't do every procedure associated with fibroid treatment (such as uterine artery embolization - or UAE) and therefore are reluctant--or refuse to--direct you to another option other than the ones they do. You are entitled to you medical records, too. Someone else already replied to you about that, so I won't elaborate, but please...take some time to learn of your options and obtain your test results in order to make a decision that you can live with. B. fibroids I went to the my ob/gyn for excessive bleeding. I bleed the month of March for 28 days. At that time, she mentioned she felt some fibroids during my annual exam and that was probably the cause of my bleeding. I am 47 years old, I was told I had fibroids approx. 15 years ago. I was told If it didn't bother me, don't bother it. I did have heavy periods back in 1993 and the doctor at that time did an dnc. I had no more problems until recently. The doctor told me, that once I started going through the change, the tumors would go away. Since, I wasn't it was best for me to have a hysterecotomy. I asked her about other procedures at which time she stated the only thing for fibroids is surgery and that is a hysterectomy. I had no other options. She had an temp. solution, and that was the depo provera shot. I would have to take evr'y 3 months. I have been bleeding since I took the shot and the dr. told me she thought it would work, but since it didn't I needed to have the hystorectomy. That is the only thing she will discuss with me. She got very agitated when I told her I didn't want to have one right now. She yelled, Why, have I heard stories or what. She refuses to talk me, give me lab results or answer any questions if its not pertaining to the surgery. I am between a brick and a hardplate. I don't know, what to do right now. I do have an appt. with my family physican and I will communicate my situation at that time. I want to know what about the fibroids, exactly how many, size, shape, location? What are and if my options, if any. Is the excessive bleeding due to the Depo shot? Could I be starting menopause ? What are the advantages & disadvantages of the surgery? and what type i.e., full hysterectomy, partial, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 There are a number of options besides hysterectomy for fibroid treatment. Some may be suitable for you and some might not, but to even begin to consider those options, you need to know their size, location, etc. Also, OB-GYNs don't do every procedure associated with fibroid treatment (such as uterine artery embolization - or UAE) and therefore are reluctant--or refuse to--direct you to another option other than the ones they do. You are entitled to you medical records, too. Someone else already replied to you about that, so I won't elaborate, but please...take some time to learn of your options and obtain your test results in order to make a decision that you can live with. B. fibroids I went to the my ob/gyn for excessive bleeding. I bleed the month of March for 28 days. At that time, she mentioned she felt some fibroids during my annual exam and that was probably the cause of my bleeding. I am 47 years old, I was told I had fibroids approx. 15 years ago. I was told If it didn't bother me, don't bother it. I did have heavy periods back in 1993 and the doctor at that time did an dnc. I had no more problems until recently. The doctor told me, that once I started going through the change, the tumors would go away. Since, I wasn't it was best for me to have a hysterecotomy. I asked her about other procedures at which time she stated the only thing for fibroids is surgery and that is a hysterectomy. I had no other options. She had an temp. solution, and that was the depo provera shot. I would have to take evr'y 3 months. I have been bleeding since I took the shot and the dr. told me she thought it would work, but since it didn't I needed to have the hystorectomy. That is the only thing she will discuss with me. She got very agitated when I told her I didn't want to have one right now. She yelled, Why, have I heard stories or what. She refuses to talk me, give me lab results or answer any questions if its not pertaining to the surgery. I am between a brick and a hardplate. I don't know, what to do right now. I do have an appt. with my family physican and I will communicate my situation at that time. I want to know what about the fibroids, exactly how many, size, shape, location? What are and if my options, if any. Is the excessive bleeding due to the Depo shot? Could I be starting menopause ? What are the advantages & disadvantages of the surgery? and what type i.e., full hysterectomy, partial, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Your doctor makes me so angry. I tried Depo also, it didn't work for me either (although I think it's worth a try, some women have had luck with this). Some women also have had luck controlling the bleeding with birth control pills (I did for about 6 months). Anyway, the reason she makes me so angry is that 1) she needs to tell you your OTHER treament options, which there are (myomectomy and UAE), 2) if she thinks these are not possible WHY, 3) and you have an ABSOLUTE right to your medical information--including what type of fibroid you have (the location), the ultrasound report (if you've had one, if not, you should get one to pinpoint this information). If it were me, I would absolutely go to another doctor if I didn't get the responses and information I wanted. You have the right to control your treatment and to know everything about your condition--she is acting irresponsibly not to give you all the information YOU need to make this decision (it is not her decision, it's yours). Sorry about the ranting, but that kind of arrogance angers me. Good luck, it sounds like you will really have to work at getting what you need. Sydney At 05:30 PM 6/11/2001 +0000, you wrote: >I went to the my ob/gyn for excessive bleeding. I bleed the month of >March for 28 days. At that time, she mentioned she felt some >fibroids during my annual exam and that was probably the cause of my >bleeding. I am 47 years old, I was told I had fibroids approx. 15 >years ago. I was told If it didn't bother me, don't bother it. I did >have heavy periods back in 1993 and the doctor at that time did an >dnc. I had no more problems until recently. > >The doctor told me, that once I started going through the change, the >tumors would go away. Since, I wasn't it was best for me to have a >hysterecotomy. I asked her about other procedures at which time she >stated the only thing for fibroids is surgery and that is a >hysterectomy. I had no other options. > >She had an temp. solution, and that was the depo provera shot. I >would have to take evr'y 3 months. I have been bleeding since I took >the shot and the dr. told me she thought it would work, but since it >didn't I needed to have the hystorectomy. That is the only thing she >will discuss with me. She got very agitated when I told her I didn't >want to have one right now. She yelled, Why, have I heard stories or >what. > >She refuses to talk me, give me lab results or answer any questions >if its not pertaining to the surgery. I am between a brick and a >hardplate. I don't know, what to do right now. I do have an appt. >with my family physican and I will communicate my situation at that >time. > >I want to know what about the fibroids, exactly how many, size, >shape, location? > What are and if my options, if any. >Is the excessive bleeding due to the Depo shot? >Could I be starting menopause ? >What are the advantages & disadvantages of the surgery? >and what type i.e., full hysterectomy, partial, etc. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Your doctor makes me so angry. I tried Depo also, it didn't work for me either (although I think it's worth a try, some women have had luck with this). Some women also have had luck controlling the bleeding with birth control pills (I did for about 6 months). Anyway, the reason she makes me so angry is that 1) she needs to tell you your OTHER treament options, which there are (myomectomy and UAE), 2) if she thinks these are not possible WHY, 3) and you have an ABSOLUTE right to your medical information--including what type of fibroid you have (the location), the ultrasound report (if you've had one, if not, you should get one to pinpoint this information). If it were me, I would absolutely go to another doctor if I didn't get the responses and information I wanted. You have the right to control your treatment and to know everything about your condition--she is acting irresponsibly not to give you all the information YOU need to make this decision (it is not her decision, it's yours). Sorry about the ranting, but that kind of arrogance angers me. Good luck, it sounds like you will really have to work at getting what you need. Sydney At 05:30 PM 6/11/2001 +0000, you wrote: >I went to the my ob/gyn for excessive bleeding. I bleed the month of >March for 28 days. At that time, she mentioned she felt some >fibroids during my annual exam and that was probably the cause of my >bleeding. I am 47 years old, I was told I had fibroids approx. 15 >years ago. I was told If it didn't bother me, don't bother it. I did >have heavy periods back in 1993 and the doctor at that time did an >dnc. I had no more problems until recently. > >The doctor told me, that once I started going through the change, the >tumors would go away. Since, I wasn't it was best for me to have a >hysterecotomy. I asked her about other procedures at which time she >stated the only thing for fibroids is surgery and that is a >hysterectomy. I had no other options. > >She had an temp. solution, and that was the depo provera shot. I >would have to take evr'y 3 months. I have been bleeding since I took >the shot and the dr. told me she thought it would work, but since it >didn't I needed to have the hystorectomy. That is the only thing she >will discuss with me. She got very agitated when I told her I didn't >want to have one right now. She yelled, Why, have I heard stories or >what. > >She refuses to talk me, give me lab results or answer any questions >if its not pertaining to the surgery. I am between a brick and a >hardplate. I don't know, what to do right now. I do have an appt. >with my family physican and I will communicate my situation at that >time. > >I want to know what about the fibroids, exactly how many, size, >shape, location? > What are and if my options, if any. >Is the excessive bleeding due to the Depo shot? >Could I be starting menopause ? >What are the advantages & disadvantages of the surgery? >and what type i.e., full hysterectomy, partial, etc. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Your doctor makes me so angry. I tried Depo also, it didn't work for me either (although I think it's worth a try, some women have had luck with this). Some women also have had luck controlling the bleeding with birth control pills (I did for about 6 months). Anyway, the reason she makes me so angry is that 1) she needs to tell you your OTHER treament options, which there are (myomectomy and UAE), 2) if she thinks these are not possible WHY, 3) and you have an ABSOLUTE right to your medical information--including what type of fibroid you have (the location), the ultrasound report (if you've had one, if not, you should get one to pinpoint this information). If it were me, I would absolutely go to another doctor if I didn't get the responses and information I wanted. You have the right to control your treatment and to know everything about your condition--she is acting irresponsibly not to give you all the information YOU need to make this decision (it is not her decision, it's yours). Sorry about the ranting, but that kind of arrogance angers me. Good luck, it sounds like you will really have to work at getting what you need. Sydney At 05:30 PM 6/11/2001 +0000, you wrote: >I went to the my ob/gyn for excessive bleeding. I bleed the month of >March for 28 days. At that time, she mentioned she felt some >fibroids during my annual exam and that was probably the cause of my >bleeding. I am 47 years old, I was told I had fibroids approx. 15 >years ago. I was told If it didn't bother me, don't bother it. I did >have heavy periods back in 1993 and the doctor at that time did an >dnc. I had no more problems until recently. > >The doctor told me, that once I started going through the change, the >tumors would go away. Since, I wasn't it was best for me to have a >hysterecotomy. I asked her about other procedures at which time she >stated the only thing for fibroids is surgery and that is a >hysterectomy. I had no other options. > >She had an temp. solution, and that was the depo provera shot. I >would have to take evr'y 3 months. I have been bleeding since I took >the shot and the dr. told me she thought it would work, but since it >didn't I needed to have the hystorectomy. That is the only thing she >will discuss with me. She got very agitated when I told her I didn't >want to have one right now. She yelled, Why, have I heard stories or >what. > >She refuses to talk me, give me lab results or answer any questions >if its not pertaining to the surgery. I am between a brick and a >hardplate. I don't know, what to do right now. I do have an appt. >with my family physican and I will communicate my situation at that >time. > >I want to know what about the fibroids, exactly how many, size, >shape, location? > What are and if my options, if any. >Is the excessive bleeding due to the Depo shot? >Could I be starting menopause ? >What are the advantages & disadvantages of the surgery? >and what type i.e., full hysterectomy, partial, etc. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 Jean: As per the depo shot...I was on it for six months and bled the whole time, so I would guess that is what is happening to you. I was scheduled to go in for another shot in Feb. and never went. I haven't bled since mid March. fibroids >I went to the my ob/gyn for excessive bleeding. I bleed the month of >March for 28 days. At that time, she mentioned she felt some >fibroids during my annual exam and that was probably the cause of my >bleeding. I am 47 years old, I was told I had fibroids approx. 15 >years ago. I was told If it didn't bother me, don't bother it. I did >have heavy periods back in 1993 and the doctor at that time did an >dnc. I had no more problems until recently. > >The doctor told me, that once I started going through the change, the >tumors would go away. Since, I wasn't it was best for me to have a >hysterecotomy. I asked her about other procedures at which time she >stated the only thing for fibroids is surgery and that is a >hysterectomy. I had no other options. > >She had an temp. solution, and that was the depo provera shot. I >would have to take evr'y 3 months. I have been bleeding since I took >the shot and the dr. told me she thought it would work, but since it >didn't I needed to have the hystorectomy. That is the only thing she >will discuss with me. She got very agitated when I told her I didn't >want to have one right now. She yelled, Why, have I heard stories or >what. > >She refuses to talk me, give me lab results or answer any questions >if its not pertaining to the surgery. I am between a brick and a >hardplate. I don't know, what to do right now. I do have an appt. >with my family physican and I will communicate my situation at that >time. > >I want to know what about the fibroids, exactly how many, size, >shape, location? > What are and if my options, if any. >Is the excessive bleeding due to the Depo shot? >Could I be starting menopause ? >What are the advantages & disadvantages of the surgery? >and what type i.e., full hysterectomy, partial, etc. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 Jean: As per the depo shot...I was on it for six months and bled the whole time, so I would guess that is what is happening to you. I was scheduled to go in for another shot in Feb. and never went. I haven't bled since mid March. fibroids >I went to the my ob/gyn for excessive bleeding. I bleed the month of >March for 28 days. At that time, she mentioned she felt some >fibroids during my annual exam and that was probably the cause of my >bleeding. I am 47 years old, I was told I had fibroids approx. 15 >years ago. I was told If it didn't bother me, don't bother it. I did >have heavy periods back in 1993 and the doctor at that time did an >dnc. I had no more problems until recently. > >The doctor told me, that once I started going through the change, the >tumors would go away. Since, I wasn't it was best for me to have a >hysterecotomy. I asked her about other procedures at which time she >stated the only thing for fibroids is surgery and that is a >hysterectomy. I had no other options. > >She had an temp. solution, and that was the depo provera shot. I >would have to take evr'y 3 months. I have been bleeding since I took >the shot and the dr. told me she thought it would work, but since it >didn't I needed to have the hystorectomy. That is the only thing she >will discuss with me. She got very agitated when I told her I didn't >want to have one right now. She yelled, Why, have I heard stories or >what. > >She refuses to talk me, give me lab results or answer any questions >if its not pertaining to the surgery. I am between a brick and a >hardplate. I don't know, what to do right now. I do have an appt. >with my family physican and I will communicate my situation at that >time. > >I want to know what about the fibroids, exactly how many, size, >shape, location? > What are and if my options, if any. >Is the excessive bleeding due to the Depo shot? >Could I be starting menopause ? >What are the advantages & disadvantages of the surgery? >and what type i.e., full hysterectomy, partial, etc. > > > > > Quote Link to comment Share on other sites More sharing options...
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