Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 Maggie. Sorry, I have not had this with my bladder. I usually get the opp problem. I feel like someone is stepping on my bladder or squashing it, and I have to GO! Even with a cath, I still always felt like I had to bear down to pee. As for the twitch, I do get that. I seem to always get this in my right eye. I get it in my right hand at times, but not often. It is the eye that bothers me. Not only does it just feel strange, but I have looke in the mirror and you can see it too. Thing is , have not a clue why this happens. It sounds like a spasming nerve, but I am not sure by any means. Hope someone else has some answers for yuo. I tend to not bring up eveything to the MDs as I have other things that are worse then this. Now you have me curious though. Love, Normi ----Original Message----- To: LUPIES <LUPIES > Date: Sunday, November 10, 2002 4:14 PM Subject: Weird symptoms >Ok, this is gonna sound strange . . . do any of you have this thing >where you drink water, your bladder fills up, but your mind never >gets the signal that you have to go pee? I mean, I feel pressure, >and I have no trouble going once I get to the potty, but I never have >the urge to go. This is new, so it's freaking me out. I got busy >with some stuff and didn't go for a few hours and started getting >queezy at my tummy beofre I realized it was because I hadn't gone and >emptied my bladder lately. I usually have to go every hour to hour >and a half. > >And, I have had this VERY annoying twitch in my right lower eyelid >that is making it hard to focus. IT JUST WON'T STOP!!!! This is all >new. . . has anyone else had this?? Should I be concerned? > >I must be going crazy. > >Maggie > > > " The LUPIES Store " Come check out our store... >http://www.cafepress.com/thelupies > > " The LUPIES Web Page " >http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " >Check out what your fellow Lupies look like... >http://www.picturetrail.com/gallery/view?username=lupies > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 Maggie. Sorry, I have not had this with my bladder. I usually get the opp problem. I feel like someone is stepping on my bladder or squashing it, and I have to GO! Even with a cath, I still always felt like I had to bear down to pee. As for the twitch, I do get that. I seem to always get this in my right eye. I get it in my right hand at times, but not often. It is the eye that bothers me. Not only does it just feel strange, but I have looke in the mirror and you can see it too. Thing is , have not a clue why this happens. It sounds like a spasming nerve, but I am not sure by any means. Hope someone else has some answers for yuo. I tend to not bring up eveything to the MDs as I have other things that are worse then this. Now you have me curious though. Love, Normi ----Original Message----- To: LUPIES <LUPIES > Date: Sunday, November 10, 2002 4:14 PM Subject: Weird symptoms >Ok, this is gonna sound strange . . . do any of you have this thing >where you drink water, your bladder fills up, but your mind never >gets the signal that you have to go pee? I mean, I feel pressure, >and I have no trouble going once I get to the potty, but I never have >the urge to go. This is new, so it's freaking me out. I got busy >with some stuff and didn't go for a few hours and started getting >queezy at my tummy beofre I realized it was because I hadn't gone and >emptied my bladder lately. I usually have to go every hour to hour >and a half. > >And, I have had this VERY annoying twitch in my right lower eyelid >that is making it hard to focus. IT JUST WON'T STOP!!!! This is all >new. . . has anyone else had this?? Should I be concerned? > >I must be going crazy. > >Maggie > > > " The LUPIES Store " Come check out our store... >http://www.cafepress.com/thelupies > > " The LUPIES Web Page " >http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " >Check out what your fellow Lupies look like... >http://www.picturetrail.com/gallery/view?username=lupies > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 I get muscle jerking all night it will startle me out of a sound sleep, sometimes my whole body jerks and I wake feeling like I am falling, mostly when I let myself relax at bed time or am sleeping is so strange and hard to describe, and I hate the startle effect it has, I never know when its coming and it just as well jump out at me in the dark from a closet, thats how startled I get. Is so strange I dont tell many people about it they will think I am bonkers, they probably already do but I dont want to add to it. lol Take care Carlasue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 Maggie. Isn't that eye twitch annoying. I hate looking right at anyone when it happens. It seems to happen for days on end, then is gone like nothing out of the ordinary. I do not get this really often though, " KNOCKING ON WOOD " . I have just never asked about it, and I am thinking it is also probably it is not happening at the time, and does not happen so often. I will have to ask this one day though. I think low grade chronic fever can go with lupus. Before I was dx, I went to the doc every month and said, " I have the damned flu again " . My doc finally said, no one gets the flu like this. The nurse noticed that I had a constant fever every time I came in there. She sat and went back through all my office visits. Not all so long after that, I was dx. The factor that got it all moving was the synnovial cysts in my finger joints. I told the doc, I have these pea things in my hands, and they hurt like all hell. She felt them and said OMG! It was a light going on, I never checked for you having RA or autoimmune disease. It suddenly started adding up for her, chronic fevers, hairloss, pain, fatiuque, bruises, mouth sore and nasal too, skin problems, etc..... SHe ran the panel, and next thing is I am going to a rheumy. I am not sure about the twitching, and how many people have that. I do not have red hair, my natural color is a very dark brown. My dad always called it midnight brown. It was kind of between dark brown and verging on black. Now, I do have red in my hair, but it is not natural , just out of a box. lol..... I did notice that many people in this group are redheads though. That is interesting, isn;t it? I will eventually bring up some smaller issues with my MD. It is just now, we are trying to get all my stuff out on the table. I am seeing him every 4 weeks right now. He is still awaiting many records from CA at this point , besides the ton I brought in with me. He is more concerned right now with my colon and seeing a rheumy and also a GI. He wants to get into all this stuff before other things. I know all about those tests. Benn there and done that. I paid my dues... yuck. Normi Weird Symptoms >Normi, I am beginning to wonder, too. I still have this twitch in my >eye (my right eye also), and I used to get one in my knee but I >haven't noticed it lately. > >I have been keeping a low grade fever, but I mean I've had it since >October. > >I wonder how many other Lupies out there have twitching eyes (and do >they have red hair LOL)? I know what you mean, too, about not >mentioning to your doctor every little thing. Either I forget because >there is something worse that I want looked at, or I purposely say >nothing cause I don't want them to put me through any diagnostic >testing LOL. I swear, the tests are worse than the actual illness. > > >Take care! > > >Maggie > > > " The LUPIES Store " Come check out our store... >http://www.cafepress.com/thelupies > > " The LUPIES Web Page " >http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " >Check out what your fellow Lupies look like... >http://www.picturetrail.com/gallery/view?username=lupies > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 chronic fevers I have these all the time it is rare that I dont have a bit of a fever. Carlasue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 chronic fevers I have these all the time it is rare that I dont have a bit of a fever. Carlasue "The LUPIES Store" Come check out our store... me to. made that hospital nurses nutty. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 I get muscle jerking all night it will startle me out of a sound sleep, sometimes my whole body jerks and I wake feeling like I am falling, mostly when I let myself relax at bed time or am sleeping is so strange and hard to describe, and I hate the startle effect it has, I never know when its coming and it just as well jump out at me in the dark from a closet, thats how startled I get. Is so strange I dont tell many people about it they will think I am bonkers, they probably already do but I dont want to add to it. lol Take care Carlasue Trust me she's bonkers, but it doesn't have anything to do with her muscle spasms. I get them to, must run in our family. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 I get muscle jerking all night it will startle me out of a sound sleep, sometimes my whole body jerks and I wake feeling like I am falling, mostly when I let myself relax at bed time or am sleeping is so strange and hard to describe, and I hate the startle effect it has, I never know when its coming and it just as well jump out at me in the dark from a closet, thats how startled I get. Is so strange I dont tell many people about it they will think I am bonkers, they probably already do but I dont want to add to it. lol Take care Carlasue Trust me she's bonkers, but it doesn't have anything to do with her muscle spasms. I get them to, must run in our family. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 I get muscle jerking all night it will startle me out of a sound sleep, sometimes my whole body jerks and I wake feeling like I am falling, mostly when I let myself relax at bed time or am sleeping is so strange and hard to describe, and I hate the startle effect it has, I never know when its coming and it just as well jump out at me in the dark from a closet, thats how startled I get. Is so strange I dont tell many people about it they will think I am bonkers, they probably already do but I dont want to add to it. lol Take care Carlasue Trust me she's bonkers, but it doesn't have anything to do with her muscle spasms. I get them to, must run in our family. a Quote Link to comment Share on other sites More sharing options...
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