Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Tim, well..officially....welcome to the group! (even if you have lurked a while) It is encouraging to know that there is one more person who has had this disease for 2 decades....and still doesn't need the transplant yet. There is hope for all of us.Thanks for sharing. ===== in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms 2000) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Thanks for the welcome . I am also a Michigander and go to U of M. tim L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Hi Tim, I went to the U of M for my initial dx, but then because I also had my colon removed due to UC and dysplasia, I went to the Cleveland Clinic. Now, I am going to the Henry Ford Hospital. ===== in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms 2000) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Tim, Sure glad you came out of hiding! I too, have had PSC/UC for many years (19+), but just found this group 2 mo. ago. Also like you, I thought I knew a lot about these diseases, but had never discussed anything with another PSC patient. Since I've found this group I have become more informed and very much a part of this 'family'. Hope you remain 'out of hiding' as I'm sure you have info. worth sharing as well! We'll keep praying for good things to come for you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Tim, Sure glad you came out of hiding! I too, have had PSC/UC for many years (19+), but just found this group 2 mo. ago. Also like you, I thought I knew a lot about these diseases, but had never discussed anything with another PSC patient. Since I've found this group I have become more informed and very much a part of this 'family'. Hope you remain 'out of hiding' as I'm sure you have info. worth sharing as well! We'll keep praying for good things to come for you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Tim, Sure glad you came out of hiding! I too, have had PSC/UC for many years (19+), but just found this group 2 mo. ago. Also like you, I thought I knew a lot about these diseases, but had never discussed anything with another PSC patient. Since I've found this group I have become more informed and very much a part of this 'family'. Hope you remain 'out of hiding' as I'm sure you have info. worth sharing as well! We'll keep praying for good things to come for you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 Hi Tim.... Welcome to the group.... I am glad that you finally got the right diagnosis and are being treated correctly so that you feel better....going so long with wrong info....that is tough... I think we all learn something here everyday....I have been on this support group and another one for over 4 yrs now for my son...and I still learn things.... will be looking for more from you and learn alittle bit more about yourself... again welcome... take care Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 Hi Tim.... Welcome to the group.... I am glad that you finally got the right diagnosis and are being treated correctly so that you feel better....going so long with wrong info....that is tough... I think we all learn something here everyday....I have been on this support group and another one for over 4 yrs now for my son...and I still learn things.... will be looking for more from you and learn alittle bit more about yourself... again welcome... take care Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2002 Report Share Posted May 6, 2002 Hi Tim.... Welcome to the group.... I am glad that you finally got the right diagnosis and are being treated correctly so that you feel better....going so long with wrong info....that is tough... I think we all learn something here everyday....I have been on this support group and another one for over 4 yrs now for my son...and I still learn things.... will be looking for more from you and learn alittle bit more about yourself... again welcome... take care Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
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