Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Jim in California: Thanks for the respoonse I am sure anxious to hear the answer on availability. I had a lung capacity test today and after less than 3 months there has been some drop in capacity. Guy in Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Jim in California: Thanks for the respoonse I am sure anxious to hear the answer on availability. I had a lung capacity test today and after less than 3 months there has been some drop in capacity. Guy in Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 In a message dated 8/7/2002 4:56:33 PM Central Daylight Time, motoman88@... writes: > is amioderone working for you, and are you regularly testing pulmonary and > liver function. I have been on amio for about 10 mos, I have been tested > every > 6 mos. for pulmonary and liver and to date, all tests returned normal. i > can > Sorry, I hit the wrong button the first time I tried to reply. I started amiodarone in early May and had baseline blood work and a pulmonary test. I had a second pulmonary test about 3 weeks ago and they found something they didn't like but said it was not related to the amio. My lung capacity was down but still in the normal range so the time to quit may be now. I will see my PCP this friday and hear why they are concerned. I understand amio can make an unrelated lung problem worse. I also have a sensitivity to the sun. I use SPF 45 sun block but the sun still stings my arms. I am a bicyclist so get several hours exposure at a time but don't want to give up the bike. Guy in Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 good luch when you check out the lung problem, hope it is nothing serious. the sun-which i love-is the one drawback of amio. i love to walk and play golf but sometimes the lathering up of my body parts with sunscreen takes me right out of the mood. but, small price to pay for the peace of mind one gets from the respite of a-fib. max > In a message dated 8/7/2002 4:56:33 PM Central > Daylight Time, > motoman88@... writes: > > > > is amioderone working for you, and are you > regularly testing pulmonary and > > liver function. I have been on amio for about > 10 mos, I have been tested > > every > > 6 mos. for pulmonary and liver and to date, > all tests returned normal. i > > can > > > > Sorry, I hit the wrong button the first time I > tried to reply. > I started > amiodarone in early May and had baseline blood > work and a pulmonary test. I > had a second pulmonary test about 3 weeks ago > and they found something they > didn't like but said it was not related to the > amio. My lung capacity was > down but still in the normal range so the time > to quit may be now. I will see > my PCP this friday and hear why they are > concerned. I understand amio can > make an unrelated lung problem worse. I also > have a sensitivity to the sun. I > use SPF 45 sun block but the sun still stings > my arms. I am a bicyclist so > get several hours exposure at a time but don't > want to give up the bike. > > Guy in Iowa > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 good luch when you check out the lung problem, hope it is nothing serious. the sun-which i love-is the one drawback of amio. i love to walk and play golf but sometimes the lathering up of my body parts with sunscreen takes me right out of the mood. but, small price to pay for the peace of mind one gets from the respite of a-fib. max > In a message dated 8/7/2002 4:56:33 PM Central > Daylight Time, > motoman88@... writes: > > > > is amioderone working for you, and are you > regularly testing pulmonary and > > liver function. I have been on amio for about > 10 mos, I have been tested > > every > > 6 mos. for pulmonary and liver and to date, > all tests returned normal. i > > can > > > > Sorry, I hit the wrong button the first time I > tried to reply. > I started > amiodarone in early May and had baseline blood > work and a pulmonary test. I > had a second pulmonary test about 3 weeks ago > and they found something they > didn't like but said it was not related to the > amio. My lung capacity was > down but still in the normal range so the time > to quit may be now. I will see > my PCP this friday and hear why they are > concerned. I understand amio can > make an unrelated lung problem worse. I also > have a sensitivity to the sun. I > use SPF 45 sun block but the sun still stings > my arms. I am a bicyclist so > get several hours exposure at a time but don't > want to give up the bike. > > Guy in Iowa > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Hi Dorthy I have been watching your progress and I like what I see, Yes I agree for patients with AF and Lung problems I do not feel that Amiodarone is a good thing. C Uk > Two weeks post PVA, I had to see my pulmonary doctor yesterday for > bronchitis (again). He was very interested in the procedure and was > happy to hear that I had been off of amiodarone for awhile. He said > that he is seeing more people with lung disease as a result of their > taking this drug. I had been on 200 mg./day for sometime, but the a- > fib was slipping through. He said many people are on 400/mg., and > they have more side effects. > > Dorothy > > > Web Page - http://groups.yahoo.com/group/AFIBsupport > FAQ - http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm > For more information: http://www.dialsolutions.com/af > Unsubscribe: AFIBsupport-unsubscribe > List owner: AFIBsupport-owner > For help on how to use the group, including how to drive it via email, > send a blank email to AFIBsupport-help > > Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Hi Dorthy I have been watching your progress and I like what I see, Yes I agree for patients with AF and Lung problems I do not feel that Amiodarone is a good thing. C Uk > Two weeks post PVA, I had to see my pulmonary doctor yesterday for > bronchitis (again). He was very interested in the procedure and was > happy to hear that I had been off of amiodarone for awhile. He said > that he is seeing more people with lung disease as a result of their > taking this drug. I had been on 200 mg./day for sometime, but the a- > fib was slipping through. He said many people are on 400/mg., and > they have more side effects. > > Dorothy > > > Web Page - http://groups.yahoo.com/group/AFIBsupport > FAQ - http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm > For more information: http://www.dialsolutions.com/af > Unsubscribe: AFIBsupport-unsubscribe > List owner: AFIBsupport-owner > For help on how to use the group, including how to drive it via email, > send a blank email to AFIBsupport-help > > Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 At 12:16 AM 12/17/2002 +0000, you wrote: >Does anybody happen to know how long it takes your body to be free of >Amiodarone once you have stopped taking it ? > >Steve It takes about 3-4 months I have been told- for me it took even longer....... I had the iodine levels in me for about 7 months- Ronnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 My only experience with Amiodarone is overhearing a couple of doctors speaking outside of my hospital room - saying that they would definitely not consider putting me on Amiodarone, because of the many side effects. Because of this statement, and because of what this drug has done to C., I don't think kindly of it at all............. If you are OK with this drug - then OK! But, If you have any doubts at all, talk to C......... Ellen (NSR on Dofetilide) ********************* ----- Original Message ----- Trudy wrote:> > > Nellie, it sounds to me, as an ignornat layperson, like the > amiodarone is making you worse. I'd talk to your doc about trying > something else, like dofetilide (snip) ************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Dear Dorothy, Thyroid problems are a known side effect of amio, which is why the guidelines recommend everyone get a baseline thyroid panel done before amio and follow up tests every 6 months thereafter. It is a very common occurance and usually one of the first organ problems you have (sun senstitivity is the first side effect, usually). S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Dear Dorothy, Thyroid problems are a known side effect of amio, which is why the guidelines recommend everyone get a baseline thyroid panel done before amio and follow up tests every 6 months thereafter. It is a very common occurance and usually one of the first organ problems you have (sun senstitivity is the first side effect, usually). S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Hi Guys, this is quite usual for this drug. I was informed that in 20 years of practice my EP had only seen three people with problems of the thyroid due to Amiodarone and I was one of them. Well I have seen more in five years just on this board. This is common and can take up to a year to get it right... Its a long and slow process, I lost my Thyroid and its not funny and now the AF have been treated by a PVA I am left with feeling pretty rough but I am getting there... I would suggest that anybody taking Amiodarone should have regular check ups for thyroid troubles. Keep an Eye if you lose weight , drink a lot , or get trembles in the hands but to be hones if you get this far it too late.. You Thyroid is out of Whack.. My advice would be any body on this drug for longer than a Year then ask to go on Dofetilde... Take care C > This drug was one of the main reasons I had the PVI done on NOvember > 7th, at St. LUke's hospital in Houston. I keep forgetting to mention > that now my thyroid is acting up, so now I get to waltz off to an > endocronoligist (sp?) I have been on synthroid for a number of years > and now the one test is running high normal (38). Has a poll been > done on the number of people having this effect from the amiodarone? > > ********************************************************************** This message may contain information which is confidential or privileged. If you are not the intended recipient, please advise the sender immediately by reply e-mail and delete this message and any attachments without retaining a copy. ********************************************************************** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Hi Guys, this is quite usual for this drug. I was informed that in 20 years of practice my EP had only seen three people with problems of the thyroid due to Amiodarone and I was one of them. Well I have seen more in five years just on this board. This is common and can take up to a year to get it right... Its a long and slow process, I lost my Thyroid and its not funny and now the AF have been treated by a PVA I am left with feeling pretty rough but I am getting there... I would suggest that anybody taking Amiodarone should have regular check ups for thyroid troubles. Keep an Eye if you lose weight , drink a lot , or get trembles in the hands but to be hones if you get this far it too late.. You Thyroid is out of Whack.. My advice would be any body on this drug for longer than a Year then ask to go on Dofetilde... Take care C > This drug was one of the main reasons I had the PVI done on NOvember > 7th, at St. LUke's hospital in Houston. I keep forgetting to mention > that now my thyroid is acting up, so now I get to waltz off to an > endocronoligist (sp?) I have been on synthroid for a number of years > and now the one test is running high normal (38). Has a poll been > done on the number of people having this effect from the amiodarone? > > ********************************************************************** This message may contain information which is confidential or privileged. If you are not the intended recipient, please advise the sender immediately by reply e-mail and delete this message and any attachments without retaining a copy. ********************************************************************** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Hi Guys, this is quite usual for this drug. I was informed that in 20 years of practice my EP had only seen three people with problems of the thyroid due to Amiodarone and I was one of them. Well I have seen more in five years just on this board. This is common and can take up to a year to get it right... Its a long and slow process, I lost my Thyroid and its not funny and now the AF have been treated by a PVA I am left with feeling pretty rough but I am getting there... I would suggest that anybody taking Amiodarone should have regular check ups for thyroid troubles. Keep an Eye if you lose weight , drink a lot , or get trembles in the hands but to be hones if you get this far it too late.. You Thyroid is out of Whack.. My advice would be any body on this drug for longer than a Year then ask to go on Dofetilde... Take care C > This drug was one of the main reasons I had the PVI done on NOvember > 7th, at St. LUke's hospital in Houston. I keep forgetting to mention > that now my thyroid is acting up, so now I get to waltz off to an > endocronoligist (sp?) I have been on synthroid for a number of years > and now the one test is running high normal (38). Has a poll been > done on the number of people having this effect from the amiodarone? > > ********************************************************************** This message may contain information which is confidential or privileged. If you are not the intended recipient, please advise the sender immediately by reply e-mail and delete this message and any attachments without retaining a copy. ********************************************************************** Quote Link to comment Share on other sites More sharing options...
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