Re:Biofeedback-Shelli

[Guest guest]

Shelli,

Hopefully I am remembering correctly. I think you mentioned you had an appt.

with Dr.Glazer in NY, but didn't find out if it helped b/c you no longer

had the problem due to low oxalate diet. What exactly did he do at your

appt? Did you buy the biofeedback equipment. The reason I am asking is b/c

the specialist,Dr.Kaufman, I saw in Houston,TX referred me to contact

Dr.Glazer for biofeedback and I emailed him and he suggested I have a

consult with the Dr. in Houston that he has hand-trained-Dr.Mckay. Houston

is 7 hrs away and I am frustrated b/c I would have scheduled to see her the

day I saw Dr. Kaufman, who just told me to contact Glazer and have my PT

contact Dr.Mckay to work out details of Glazer Protocol. He didn't tell me I

had to see Dr.Mckay. When I called Dr.Mckay she said I would need to see her

first for an assessment and to order the equipment and have it sent to her

office so she could show me how to use it and then would need a follow-up

appt exactly 2 wks after first appt. She said she would talk to my PT but it

would be pointless if I didn't see her for initial assessment and follow-up

b/c if I was using the " wrong " muscles it would be a waste of my time and

money. After first 2 appts I could follow-up with my PT here where I live

who could correspond with Dr.Mckay and I may need to see her periodically.

I am okay with going back down there to see her if it's pointless not to,

although I am not happy about it b/c its so far away and Dr.Kaufman should

have told me that in first place, but I talked w/ his nurse today and she

said it's not necessary to have first 2 appts with Dr.Mckay first, and that

they referr all patients that don't live in Houston to PT's in their town

and tell them to just consult with either Dr.Mckay or Dr.Glazer. I told her

that Dr.Mckay said he does usually set up for patients to see her on the

same day and even patients out of town. Regardless of which is true, I told

his nurse that he needs to communicate with Dr.Mckay, b/c she perferrs to

see patients herself, and if that's the case, he needs to pre-arrange for

his patients from out of town to schedule to see her on same day. Dr.Glazer

even said I need to see her first b/c she know his protocol. Here I go again

getting carried away.

So, any info you have on appt. with Dr.Glazer, biofeedback, or anything you

have heard about it from others would be helpful. I am just trying to

figure out if its worth the effort and expense to buy equipment and travel

back to Houston.

BTW-How long did it take to notice low oxalate diet worked? Thats also in

the back of my mind, as some foods do seem to make a difference, but I tried

to start the diet on Sun. and I have already cheated several times. Also am

considering the urine test with Dr.s, which is a little pricey, and

think I should try biofeedback first since that's what the specialist

suggested.

Thanks,

Melinda

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