Re: Do kids w/ataxia ever walk?

[Guest guest]

we all get frustrated, but we can't take it out on our kids. Don't

give up he'll learn to walk at his own pace, we can't compare our mito. kids

with other kids. My will be 17 yrs. old next month, she didn't start

walking until she was about 14 mths and then it was take a few steps fall,

take a few steps fall. She still has ataxia but she walks. I'll keep you in

my prays. Becky Sasser

Do kids w/ataxia ever walk?

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>I am so frustrated and I feel so guilty.

>

>I went to a birthday party today with for a friend's son who just

turned one. He is starting to walk

>all over the place. , at 2.5, can't even stand alone without support

and can only take about 5-10

>steps before falling down. The docs say this is ataxia, but I don't know

for sure.

>

>Anyway, I got so upset that I came home and tried to force him to stand up.

Of course he kept falling

>over. Then I threw him to the ground and told him that I couldn't wait

until he was dead so that I could

>get on with my life. I feel so bad. I just can't take it any more.

Nobody is doing anything to help

>this child. The orthopedist says there is no device that would help. The

physical therapist insists that

> has low muscle tone, not ataxia, and that is why he cannot walk. The

neurologist thinks it's a

>neuropathy. I am so confused. All I want is for to walk, and no one

is helping

>

>Does anyone know of any orthopedic devices, etc., that might help him? I

asked the neurologist about

>drugs for helping balance and she totally blew me off. I am so fed up with

doctors. All they want to do

>is test, test, test, and never once mention the word, " help. "

>

>I feel so bad that I was mean to . But sometimes it just seems like

his life is stunted at 9 months

>old. He used to talk and understand everything, now he understands nothing

and says very little. I just

>feel like I am losing him.

>

>Thanks for listening.

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