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Sharon

i lost 35 pounds from Sept-May last year but in August it started to creep

up now i gained back 10 pounds iam so scared it will all come back. but

every rise has been preceded by a carb binge.....so i guess no more carbs

once again but my problem is i ENJOY carb food too much.

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  • 1 month later...
Guest guest

Hi and Tina,

Our daughter could not process any formula or breast milk at all after 4

months of age and had to be put on Pregestimil. This formula saved her

life. Her internal bleeding and diarrhea stopped finally when she started

this formula.

From that information I can only guess that Kendra has serious digestive

problems. The Pregestimil is broken down into amino acids and is very easy

to process.

If you are looking at changing formulas, I would consider looking at this

one rather than one of the standard ones such as Prosobee.

In terms of the weight loss, it sounds like there is no diarrhea or

vomiting presently. That is very interesting. What do blood tests say

about the possibility of glucose problems or unidentified infections? I

hope you find good answers very soon.

Best wishes,

Mom to Kendra, CHARGE, 15, , 21 and Camille, 24

At 01:00 AM 4/3/02 +0000, you wrote:

>I am sorry that i don't have time to answer any of your question's,

>but between the goat farm and the grandchildren i haven't found time.

>We have a problem with Brittney (Tina's daughter). After they did the

>Neilsen surgery on her a couple of months ago, she has been losing

>weight. When they did the surgery they changed her milk to Enfamil

>with iron. Needless to say the milk just went right straight through

>her. So they change her back to NeoSure. But she hasn't done nothing

>but lose weight. She is in the hospital, but they haven't found

>anything medically to cause her to lose. She is 9 months old and

>weighs 11lbs. They are talking about changing her milk again to

>Prosobee. If anyone out there has had this problem could you please

>give us some insight on what could possibly be the problem. We need

>all the information we can get. Thank you for all of your answers.

>And my God Bless each and everyone of your children and family's.

> (Tina's Mom) Brittney 9months ChARGE, Cody 2years (diabetic)

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Guest guest

,

About the best advice I can give is just to keep trying different formulas until

you find one that Britt tolerates. It took some time for us, and we finally

ended up using Vivonex Pediatric (very broken down & easy to digest) for

Kennedy. At 4 she weighs about 38 lbs so she is VERY healthy and has grown

well. There are many other formulas out there, pediasure, peptamen jr,

etc...it's just a matter of finding which suits her the best.

Good luck and I hope she starts tolerating her food & growing very soon...

Hugs,

Weight Loss

I am sorry that i don't have time to answer any of your question's,

but between the goat farm and the grandchildren i haven't found time.

We have a problem with Brittney (Tina's daughter). After they did the

Neilsen surgery on her a couple of months ago, she has been losing

weight. When they did the surgery they changed her milk to Enfamil

with iron. Needless to say the milk just went right straight through

her. So they change her back to NeoSure. But she hasn't done nothing

but lose weight. She is in the hospital, but they haven't found

anything medically to cause her to lose. She is 9 months old and

weighs 11lbs. They are talking about changing her milk again to

Prosobee. If anyone out there has had this problem could you please

give us some insight on what could possibly be the problem. We need

all the information we can get. Thank you for all of your answers.

And my God Bless each and everyone of your children and family's.

(Tina's Mom) Brittney 9months ChARGE, Cody 2years (diabetic)

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Guest guest

,

About the best advice I can give is just to keep trying different formulas until

you find one that Britt tolerates. It took some time for us, and we finally

ended up using Vivonex Pediatric (very broken down & easy to digest) for

Kennedy. At 4 she weighs about 38 lbs so she is VERY healthy and has grown

well. There are many other formulas out there, pediasure, peptamen jr,

etc...it's just a matter of finding which suits her the best.

Good luck and I hope she starts tolerating her food & growing very soon...

Hugs,

Weight Loss

I am sorry that i don't have time to answer any of your question's,

but between the goat farm and the grandchildren i haven't found time.

We have a problem with Brittney (Tina's daughter). After they did the

Neilsen surgery on her a couple of months ago, she has been losing

weight. When they did the surgery they changed her milk to Enfamil

with iron. Needless to say the milk just went right straight through

her. So they change her back to NeoSure. But she hasn't done nothing

but lose weight. She is in the hospital, but they haven't found

anything medically to cause her to lose. She is 9 months old and

weighs 11lbs. They are talking about changing her milk again to

Prosobee. If anyone out there has had this problem could you please

give us some insight on what could possibly be the problem. We need

all the information we can get. Thank you for all of your answers.

And my God Bless each and everyone of your children and family's.

(Tina's Mom) Brittney 9months ChARGE, Cody 2years (diabetic)

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Guest guest

Hi and Tina,

I am quite new to the CHARGE life?, shy of 18 mo. but I will share what I

can-

(17 3/4 mo.) has not tolerated changes in her diet well. It HAD to be a

'gradual' change or else-

Another fact about , she always losses weight after a surgery. Her

digestive system is very 'messed up' after a surgery/anesthesia (for month(s)

thereafter). Thankfully God has blessed us with patience - 1cc every 5-10

minutes throughout the night type thing. She does have drip/pump feedings for

overnight, but does not tolerate it well after a surgery (she requires much

more venting then). Lots of TLC! venting, patience and THERAPY 'seems' to get

her back 'on track.' This has been frustrating. Basically we feel that we

keep her hydrated during those times, but not gaining weight. Diluting her

formula has helped, alternating Pedialite/formula (small amounts at a time).

No 'regular' bolus feedings work well for after a surgery-it's very

gradual....... has a gtube and nissen fundoplication.

Is Brittney on antibiotics? We have yet to find an antibiotic that we can

give for the recommended amount of duration- stools and

stools..........: (

Do you have a nutritionist or pediatric dietitian following Brittney? A

gastroenterologist? You may want to mention CHARGE.

has been our Isomil babe for a while now, as we too fear the next

change or step -- and surgery.

Hope Brittney is home soon! God Bless her and the family.

Hugs,

Jan H. Mom to (shy 18 mo.) CH(A?)RGE

Wife to

MN

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Guest guest

Hi and Tina,

I am quite new to the CHARGE life?, shy of 18 mo. but I will share what I

can-

(17 3/4 mo.) has not tolerated changes in her diet well. It HAD to be a

'gradual' change or else-

Another fact about , she always losses weight after a surgery. Her

digestive system is very 'messed up' after a surgery/anesthesia (for month(s)

thereafter). Thankfully God has blessed us with patience - 1cc every 5-10

minutes throughout the night type thing. She does have drip/pump feedings for

overnight, but does not tolerate it well after a surgery (she requires much

more venting then). Lots of TLC! venting, patience and THERAPY 'seems' to get

her back 'on track.' This has been frustrating. Basically we feel that we

keep her hydrated during those times, but not gaining weight. Diluting her

formula has helped, alternating Pedialite/formula (small amounts at a time).

No 'regular' bolus feedings work well for after a surgery-it's very

gradual....... has a gtube and nissen fundoplication.

Is Brittney on antibiotics? We have yet to find an antibiotic that we can

give for the recommended amount of duration- stools and

stools..........: (

Do you have a nutritionist or pediatric dietitian following Brittney? A

gastroenterologist? You may want to mention CHARGE.

has been our Isomil babe for a while now, as we too fear the next

change or step -- and surgery.

Hope Brittney is home soon! God Bless her and the family.

Hugs,

Jan H. Mom to (shy 18 mo.) CH(A?)RGE

Wife to

MN

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  • 1 year later...

Hi Bobby and EveryOne,

I know what you mean. I can only lose weight if I eat about 1,000 calories a

day or less and even then the weight loss is slow - about a pound a week,

four pounds a month. However it does stay off once it is gone if I am

careful. Up until I became Hypothyroid I used to have a very fast metabolism

and be able to eat whatever I wanted.

It seems to me that those with very slow metabolism ( I burn about 1350

calories a day) have very little choice about eating many calories and still

trying to lose weight. It does help to eat several small meals a day, drink

water, and by all means eat the best quality foods and supplements. For me

at least, the only way I could lose weight at all was to eat less than 1,000

cal/day.

Personally I would prefer to do that voluntarily and then be able to eat

normally again when at my ideal weight than to have surgery and have no

choice!

If I had a lot of weight to lose I would alternate the low calories every

few months with a month of eating enough just to maintain my weight. Slow

weight loss is better than none. Some people seem to do well on Atkins type

diet Low Carb but I wanted a diet I could live with. Basically I wanted to

retrain my eating habits to maintain the weight I want.

There are others who can and do lose weight eating more than that but I am

not one of them. I tried alternatives and gained weight on every one. I even

tried fasting for two weeks before I went on Armour and didn't lose an

ounce!!!

I am still tweaking my Armour dose, but 3 grains is right for now. I lost

most of the weight on none or less than that. I just went to 3 grains a few

weeks ago.

BTW I also find it necessary not to eat any snacks after dinner. That is my

weakness and it makes it hard to drop the pounds.

Peace, Love and Harmony,

Bev

Thyroid-Adrenal Connection: Information and Resources

http://www.bestweb.net/~om/thyroid

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Bev,

Are you mu long lost twin sister??????????????????????

LOL

Love Bobby

> Hi Bobby and EveryOne,

>

> I know what you mean. I can only lose weight if I eat about 1,000

calories a

> day or less and even then the weight loss is slow - about a pound a

week,

> four pounds a month. However it does stay off once it is gone if I

am

> careful. Up until I became Hypothyroid I used to have a very fast

metabolism

> and be able to eat whatever I wanted.

>

> It seems to me that those with very slow metabolism ( I burn about

1350

> calories a day) have very little choice about eating many calories

and still

> trying to lose weight. It does help to eat several small meals a

day, drink

> water, and by all means eat the best quality foods and supplements.

For me

> at least, the only way I could lose weight at all was to eat less

than 1,000

> cal/day.

>

> Personally I would prefer to do that voluntarily and then be able

to eat

> normally again when at my ideal weight than to have surgery and

have no

> choice!

>

> If I had a lot of weight to lose I would alternate the low calories

every

> few months with a month of eating enough just to maintain my

weight. Slow

> weight loss is better than none. Some people seem to do well on

Atkins type

> diet Low Carb but I wanted a diet I could live with. Basically I

wanted to

> retrain my eating habits to maintain the weight I want.

>

> There are others who can and do lose weight eating more than that

but I am

> not one of them. I tried alternatives and gained weight on every

one. I even

> tried fasting for two weeks before I went on Armour and didn't lose

an

> ounce!!!

>

> I am still tweaking my Armour dose, but 3 grains is right for now.

I lost

> most of the weight on none or less than that. I just went to 3

grains a few

> weeks ago.

> BTW I also find it necessary not to eat any snacks after dinner.

That is my

> weakness and it makes it hard to drop the pounds.

>

> Peace, Love and Harmony,

> Bev

>

>

> Thyroid-Adrenal Connection: Information and Resources

> http://www.bestweb.net/~om/thyroid

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