Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 If you go on the diet and get better, you will have to go off the diet for a few months to be tested with the endoscopy to properly diagnose celiac. Why doesn't your doctor just go ahead and finish the testing with the endoscopy before putting you on the diet which will mess up the testing? ita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Did your doctor run the TTG screen? That one is by far the most accurate blood test. -----Original Message-----From: mlkaresh Sent: Thursday, September 23, 2004 2:35 PMTo: SillyYaks Subject: Gluten free trialHI!I am currently on a gluten free trial (week 4) due to positivebloodwork and an inconclusive biopsy. I have never had any symptomsof Celiacs but my Doc. thought to test me for it when i had a Crohnsflare up and I became anemic very fast, which is unusual with Crohns.My bloodwork was postive (IGA 44, IGG 110) and my doctor suggested igo on a gluten free trial. My question is, how long should I be onthis trial. She initially said 2-3 months, then said 1 month. Doesanyone have any input on this??? Thanks!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 You must be on it at least 3 weeks ….most people begin to see a difference in how they feel after 2-3 weeks, but give it a month. Of course, if you are Celiac you will have to be on the Gluten Free Diet forever. What state/city do you live in? If there is a Water To Go Diet & Nutrition Center close to you, most of them carry a good GF selection of foods. Gluten free trial HI! I am currently on a gluten free trial (week 4) due to positive bloodwork and an inconclusive biopsy. I have never had any symptoms of Celiacs but my Doc. thought to test me for it when i had a Crohns flare up and I became anemic very fast, which is unusual with Crohns. My bloodwork was postive (IGA 44, IGG 110) and my doctor suggested i go on a gluten free trial. My question is, how long should I be on this trial. She initially said 2-3 months, then said 1 month. Does anyone have any input on this??? Thanks!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 What is TTG stand for? Gluten free trial HI! I am currently on a gluten free trial (week 4) due to positive bloodwork and an inconclusive biopsy. I have never had any symptoms of Celiacs but my Doc. thought to test me for it when i had a Crohns flare up and I became anemic very fast, which is unusual with Crohns. My bloodwork was postive (IGA 44, IGG 110) and my doctor suggested i go on a gluten free trial. My question is, how long should I be on this trial. She initially said 2-3 months, then said 1 month. Does anyone have any input on this??? Thanks!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Oh, god...some long medical thing that they look for in your blood Anti-transglutaminase (tTG) There are only 5 labs in the country that accurately run the test, so the blood is sent out. I know my son's was sent to the Mayo Clinic. Our GI doc did that. -----Original Message-----From: Liz Hegarty Sent: Thursday, September 23, 2004 2:48 PMTo: SillyYaks Subject: RE: Gluten free trial What is TTG stand for? -----Original Message-----From: Calacci, Bridget Sent: Thursday, September 23, 2004 2:39 PMTo: SillyYaks Subject: RE: Gluten free trial Did your doctor run the TTG screen? That one is by far the most accurate blood test. -----Original Message-----From: mlkaresh Sent: Thursday, September 23, 2004 2:35 PMTo: SillyYaks Subject: Gluten free trial HI!I am currently on a gluten free trial (week 4) due to positivebloodwork and an inconclusive biopsy. I have never had any symptomsof Celiacs but my Doc. thought to test me for it when i had a Crohnsflare up and I became anemic very fast, which is unusual with Crohns.My bloodwork was postive (IGA 44, IGG 110) and my doctor suggested igo on a gluten free trial. My question is, how long should I be onthis trial. She initially said 2-3 months, then said 1 month. Doesanyone have any input on this??? Thanks!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Tissue Transglutaminase Barbara in Missouri RE: Gluten free trial What is TTG stand for? -----Original Message-----From: Calacci, Bridget Sent: Thursday, September 23, 2004 2:39 PMTo: SillyYaks Subject: RE: Gluten free trial Did your doctor run the TTG screen? That one is by far the most accurate blood test. -----Original Message-----From: mlkaresh Sent: Thursday, September 23, 2004 2:35 PMTo: SillyYaks Subject: Gluten free trial HI!I am currently on a gluten free trial (week 4) due to positivebloodwork and an inconclusive biopsy. I have never had any symptomsof Celiacs but my Doc. thought to test me for it when i had a Crohnsflare up and I became anemic very fast, which is unusual with Crohns.My bloodwork was postive (IGA 44, IGG 110) and my doctor suggested igo on a gluten free trial. My question is, how long should I be onthis trial. She initially said 2-3 months, then said 1 month. Doesanyone have any input on this??? Thanks!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 tTG (tissue transglutaminase) is used to test the IgA antigens to gliadin. This blood test can help in determining CD. They find a positive tTG response highly correlates with tissue damage in a CD patient. Unfortunately for those who are IgA deficient, this does not help. Many people who are gluten intolerant may have only elevated IgG antigens to gliadin due to a deficiency in overall IgA antibodies. This screening tool can be successfully used to rule IN a patient, but I don't think it should be used to rule OUT someone. As for doing a gluten free trial.... if your blood work showed that your body has developed an immune response to gliadin then whether or not you have visible damage to the villi in your small intestines, you should try to eliminate gluten from your diet. Failure to do so could cause a host of many OTHER auto immune disorders, CD being only one such disorder to be generated from a gluten intolerance. Currently many doctors are unaware of the ramifications of having elevated IgG blood response. This means you are gluten intolerant. The symptoms for you may or may not be intestinal... this is but ONE way your body cries out for help... There are many neurological responses that can occur as well. If you go on a GF trial and then have your blood work retested and your antibodies to gliadin drop, then you know that staying on a GF diet will decrease your chances of triggering your body into attacking itself and developing an auto immune disorder. Many doctors are unwilling or unable (due to lack of knowledge) to diagnose a gluten intolerance... it just doesn't seem to be too widely accepted a notion. Although, I believe this is where all the studies related to CD will take us. I am NOT a doctor, nor do I play one on t.v.! I am just a mother of a gluten intolerant child who has read and chatted with others in the same boat. Please feel free to challenge me or point me towards any research and information, I'm always searching! Priscilla Graham " Cleaning your house while your kids are still growing is like shoveling the walk before it stops snowing. " --Phyllis Diller SAHM to 3 beautiful boys and one adorable girl - 6 - 4 (Gluten Free since 11/03) - 2 Abigail - 7 months My hands are full, but my heart is not! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 If you're Celiac, or at least Gluten sensitive, you'll feel better in a day or two. It will be a few weeks before you feel " normal " again. I was diagnosed with Crohns 4 years ago. After giving up on traditional methods, I tried a Gluten Free diet. I felt great for an entire month. I stopped all steroid use and felt better than I had in years. I spent a weekend, gorging myself on regular food, and got violenty ill again. That was 2 months ago this week, and I've been back to Gluten Free ever since. I feel great now, and am in the process of tapering myself off of Asacol (mesalamine). I should bve completely medication free in a week! Sorry for the long winded answer, but background info helps with these things. It should be noted that my gastroenterologist suggested seeking alternative modalities to cure the Crohns/Colitis. I've kept him informed every step of the way. Good Luck, paul > HI! > I am currently on a gluten free trial (week 4) due to positive > bloodwork and an inconclusive biopsy. I have never had any symptoms > of Celiacs but my Doc. thought to test me for it when i had a Crohns > flare up and I became anemic very fast, which is unusual with Crohns. > My bloodwork was postive (IGA 44, IGG 110) and my doctor suggested i > go on a gluten free trial. My question is, how long should I be on > this trial. She initially said 2-3 months, then said 1 month. Does > anyone have any input on this??? Thanks!!! Quote Link to comment Share on other sites More sharing options...
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