Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Dear Cliff, That I understand. It was not meant to say anything about your situation and many others need help and it is fantastic to see how you are doing with the fc-cc. But sometimes it is good to realise (in general) that when a patient get the diagnosis cancer a few weeks of waiting and research can prevent one from doing bad choices. If you believe the doctors they quite often say it is such a bad situation you have to decice now for chemo or surgery or whatever. And before you know your in the medical mill. And how to come out is much more difficult then the way you come in don't you think? I admire you for your work Cliff and I visit regularly your website. And I send often people who visit my website (700 visitors and 2000 pageviews a day average) to your site. Just to take a look and to read the information. Great work Cliff. Thanks for all. Gr. Kees Braam webmaster www.kanker-actueel.nl PCa > Hi Kees > > I am aware of those studies and I believe them. Believe me, I was not one > of those that could be let go. > > My doctor did not expect me to make it 6 months. > > cliff > > > > Get HUGE info at http://www.cures for cancer.ws, and post your own links there. Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by visiting http://www.bobhurt.com/subunsub.mv > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hi Wondered where you'd been. Great you are seeing improvements again this round. As you said, lots of discussion. I am right in thinking that PCA has ALA in it? Mandi > I haven't been able to visit the list in a while, so while catching > up, I was quite suprised to see the amount of posts dedicated to this > product recently. > > We had done one round of PCA with my 3 y/o ASD son months ago and had > been unable to repeat due to various circumstances. Our opinion at > that time was that the product was definately worthwhile in our case > and had few undesirable effects. I was unsure at that time if results > could 100% be dedicated to the product so I logged as objectively as > possible and decided to do another round when our lives were in a > fairly stable spot (HA Ha ha) and compare results again. > > We started several days ago and I am again being happily suprised. > Increased language, use of new language, following directions, > increased length of utterances, more compliant, seems to be > undersatnding explanations or logic when explained at difficult > transitions. Brendon asked to kiss his brother, 15m, goodnight last > night, they normally have no physical contact beyond Brendon defending > his space from or taking items from his brother. Best of all I am > seeing more happy child. He just seems a little more content. I know > those are two VERY subjective, unmeassured attributes, but I can't > credit anything else. > > This is just what we have experienced. Maybe I should try doing a > trial of ALA alone next and do a comparison. Anyone who knows more > about the dosing guidelines there I would love to chat with. > > Anyhow. I thought I could throw my 2 cents in for those who might be > interested. Take care! > > Spies > Mom to Brendon and Aidon- 2 terriffic boys! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 What is PCA and what is it supposed to do exactly? Thanks > Hi > Wondered where you'd been. Great you are seeing improvements again this > round. As you said, lots of discussion. I am right in thinking that PCA has > ALA in it? > Mandi > > > > I haven't been able to visit the list in a while, so while catching > > up, I was quite suprised to see the amount of posts dedicated to this > > product recently. > > > > We had done one round of PCA with my 3 y/o ASD son months ago and had > > been unable to repeat due to various circumstances. Our opinion at > > that time was that the product was definately worthwhile in our case > > and had few undesirable effects. I was unsure at that time if results > > could 100% be dedicated to the product so I logged as objectively as > > possible and decided to do another round when our lives were in a > > fairly stable spot (HA Ha ha) and compare results again. > > > > We started several days ago and I am again being happily suprised. > > Increased language, use of new language, following directions, > > increased length of utterances, more compliant, seems to be > > undersatnding explanations or logic when explained at difficult > > transitions. Brendon asked to kiss his brother, 15m, goodnight last > > night, they normally have no physical contact beyond Brendon defending > > his space from or taking items from his brother. Best of all I am > > seeing more happy child. He just seems a little more content. I know > > those are two VERY subjective, unmeassured attributes, but I can't > > credit anything else. > > > > This is just what we have experienced. Maybe I should try doing a > > trial of ALA alone next and do a comparison. Anyone who knows more > > about the dosing guidelines there I would love to chat with. > > > > Anyhow. I thought I could throw my 2 cents in for those who might be > > interested. Take care! > > > > Spies > > Mom to Brendon and Aidon- 2 terriffic boys! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 --- In @y..., " jamiespies " <jspies@p...> wrote, in part: > Best of all I am > seeing more happy child. He just seems a little more content. I know > those are two VERY subjective, unmeassured attributes, but I can't > credit anything else. subjective unmeasurable attributes are very important ones > This is just what we have experienced. Maybe I should try doing a > trial of ALA alone next and do a comparison. Anyone who knows more > about the dosing guidelines there I would love to chat with. There are different protocols, as you probably know. You can find Andy Cutler's basic guidelines here: /files/Andy_dose_sched This does not include supplements, however, which Andy thinks are VERY important part. You can chat with me all you want. I always read the autism treatment list, and often read this list (although I tend to mostly read stuff with mercury/chelation/metals etc in the subject line....) I mostly use Andy's protocol (I am chelating *myself*). My dose is much higher now than his recommendation, but I worked my way up to this (I've been at it a looong time.) I'm glad you are having good results. A round of ALA might be interesting and/or useful test. best wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hi. I'm new to the group. I was reading through some of the archives to find information on PCA. It was discussed somewhat last month. I'm hoping to hear from parents who are using it and their experiences , good or bad. Someone posted about their 4 year old son regressing on PCA. I was wondering if after the regression did he rebound or do you feel he has not improved since removing the pca? Thanks in advance. Kathy --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 I met with a woman today named Amy who has been the only one to reply to my postings for a PCA. She's a very nice young woman and we got along well. She has experience with everything I need help with and is currently taking courses to lead her toward applying to Med school. Her schedule is alright with mine. There is only one afternoon she would not be able to help me (Friday's) so I'll have to figure out if it's worth hiring someone for a potty break or just waiting out the day on my own. So it looks like I've got a PCA, finally. I hope she's a good worker and punctual. She knows one of my classmates personally so at least it's a sort-of good way to judge what I'm getting into. Even if she falls through, at least it's a temporary situation. Amy isn't sure if she's staying in the area after the end of this semester. Is it okay to keep posting and looking around even if I'm not actually hiring for a position? <3 Kendra > Good luck! *crosses fingers* > > L > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 i think it's worth it to try to fill the friday. then, if amy's sick, maybe the 2nd PA can sub. also you build a pool...a network. if someone like working for you, they recommend the job to friends. my best resource for hiring good attendants is referrals from current and former good attendants. my 2nd best resource is friends' referrals, and my 3rd is referrals from seasoned and ethical attendant users. i don't use referrals from people who i know manage their attendants poorly. don't you have other shifts available? getting up...shower days...laundry...housework...cooking? good luck! alana >Is it okay to keep posting and looking around even if I'm not actually >hiring for a position? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 Right now I have Amy down as up to 2 hours/week for toileting/quick lunch (just a sandwich or prepacked thing to grab from the fridge) in afternoons and 8 hours in the evenings M-F. I'm letting her be flexible with how she wants to handle night hours as long as she notifies me in advance. These hours will be for light housekeeping (sweeping, dishes). I told her I'm interested in giving more hours for laundry and other things but they would have to be done on weekends. For now she only wants to try out the 10 hrs/weekdays, as she's also a grad student and dancer - it's understandable. I can't offer too many other shifts because my personal schedule is so tight. My morning routine, Joe and I have agreed will be continued to be done by him because it's easier and most reliable. We can get my morning done in one hour (including a shower!!) which is the most efficient I've ever gotten it. Plus, we're waking up and leaving the house at the same time for school and work. We also are really enjoying the mornings together now that we aren't working together. We get to have conversations and eat breakfast together. It's really gotten to be one of the only times during the day we can be relaxed and enjoy each others company, in the last few weeks. I'm in class 8am - 1pm with only two ten minute breaks. I work in Oakland 2pm - 5pm. That leaves 30 minutes in the afternoon to potty and grab a lunch before I have to be at BART - not much of a shift for Amy, but enough to get things done that need to be done. Once I'm home from work I can only offer 6pm - 10pm and I'm quite worried that having someone here for just the two hours Amy is trying out will interfere with my studying. There's no way I can push my bedtime later because I end up EXHAUSTED. I suppose I can hire someone for the Friday afternoon and maybe also put them on a weekend schedule, and use them as backup. Thanks for the idea! <3 Kendra > don't you have other shifts available? getting up...shower days...laundry...housework...cooking? > > good luck! > > alana > > > >Is it okay to keep posting and looking around even if I'm not actually > >hiring for a position? Quote Link to comment Share on other sites More sharing options...
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