uterine fibroids group - my intro

[Guest guest]

Hi, I'm Jane.

I have a large fibroid on my cervix, and a smaller one on the top of my uterus.

I

seem to have gotten some sort of control over the bleeding by using Depo-Provera

shots, spaced every 2 months instead of 3; and I've been taking vitamins (100%

RDA of everything) since Jan. 1.

I still live in slight nervous fear of " what if I bleed again " -- just wondering

what

experiences everyone else has had.

thanks,

Jane

[Guest guest]

Jane,

I have the same experience,except I sometimes live in much more than slight

fear,since I had a couple

of very,very bad bleeds last summer.I have a very big uterus(I just keep saying

that) but did not

have porblems until after UAE when I had post embo syndrome and then this

bleeding stuff.I am on

Prometrium,an oral natural progesterone,but I find it can't always be

trusted.What is your experinece

of that? Do periods come on time,reasonable lengthy and flow etc.?How much Depo

do you get? How long

have you been taking it? Which of the fibroids are resposible for the bleeding?

I just had an MRI and

only have preliminary results but they found a very small su-mucosal which I

think is the culprit.

Anway it would be good to hear your experience.

Bonnie

By the Way does anyone know WHY submucosal fibroids create so much bleeding?

What is the mechaism,how

does that work?

Jane Jenness wrote:

> Hi, I'm Jane.

> I have a large fibroid on my cervix, and a smaller one on the top of my

uterus. I

> seem to have gotten some sort of control over the bleeding by using

Depo-Provera

> shots, spaced every 2 months instead of 3; and I've been taking vitamins (100%

> RDA of everything) since Jan. 1.

> I still live in slight nervous fear of " what if I bleed again " -- just

wondering what

> experiences everyone else has had.

> thanks,

> Jane

>

>

[Guest guest]

Jane,

I have the same experience,except I sometimes live in much more than slight

fear,since I had a couple

of very,very bad bleeds last summer.I have a very big uterus(I just keep saying

that) but did not

have porblems until after UAE when I had post embo syndrome and then this

bleeding stuff.I am on

Prometrium,an oral natural progesterone,but I find it can't always be

trusted.What is your experinece

of that? Do periods come on time,reasonable lengthy and flow etc.?How much Depo

do you get? How long

have you been taking it? Which of the fibroids are resposible for the bleeding?

I just had an MRI and

only have preliminary results but they found a very small su-mucosal which I

think is the culprit.

Anway it would be good to hear your experience.

Bonnie

By the Way does anyone know WHY submucosal fibroids create so much bleeding?

What is the mechaism,how

does that work?

Jane Jenness wrote:

> Hi, I'm Jane.

> I have a large fibroid on my cervix, and a smaller one on the top of my

uterus. I

> seem to have gotten some sort of control over the bleeding by using

Depo-Provera

> shots, spaced every 2 months instead of 3; and I've been taking vitamins (100%

> RDA of everything) since Jan. 1.

> I still live in slight nervous fear of " what if I bleed again " -- just

wondering what

> experiences everyone else has had.

> thanks,

> Jane

>

>

[Guest guest]

Sydney,

Glad you were on-line tonight and caught Jane's story.I think I'm petering

out---but never can be

sure.(tons of super pads in the purse AT ALL TIMES)

I'm asking the group again what is the mechanism for the submucosal bleeding?

Maybe Carla knows?

Carla?

Bonnie

Sydney Lagier wrote:

> Jane:

>

> I'm glad you're having luck on Depo Provera. My first shot, I had no

> period for 7 weeks, but then bled for 4 weeks until my next shot (my doctor

> never gave me the option of coming for the next one before 11 weeks--I

> should discuss this with her). Then the next shot stopped the bleeding and

> I was good for 10 weeks. Had a one week period and then got the 3rd

> shot. This one I haven't been so lucky with. I had a 2-week period 5

> weeks after the shot, then one good week and today I'm back to

> bleeding. Another thing is that I pretty much spot every day since my 2nd

> shot (I can live with that for now!). So, that's my whole Depo history,

> I'm not sure what's in store for me the next few weeks.

>

> I'm much like you, though, that I live in constant fear of what might come

> at any given moment (I am ALWAYS prepared!).

>

> Thanks for sharing your experience, especially the information about the

> timing of your shots.

>

> Sydney

>

> At 04:43 PM 1/29/01 -0500, you wrote:

> >Hi, I'm Jane.

> >I have a large fibroid on my cervix, and a smaller one on the top of my

> >uterus. I

> >seem to have gotten some sort of control over the bleeding by using

> >Depo-Provera

> >shots, spaced every 2 months instead of 3; and I've been taking vitamins

> >(100%

> >RDA of everything) since Jan. 1.

> >I still live in slight nervous fear of " what if I bleed again " -- just

> >wondering what

> >experiences everyone else has had.

> >thanks,

> >Jane

> >

> >

> >

> >

[Guest guest]

Hi Jane

Let's hope the drugs have got the bleeding under control. Are you sticking with

the drugs option or are you planning surgery. I haven't heard of Depo-Provera is

that an American drug?

I too have a cervical fibroid causing a lot of bleeding but it is under control

since I've been taking the GnRH agonist Zoladex. (although I haven't had any

shrinkage) I'm looking into my options but am wondering if there are drugs I can

take on a long term basis if the other options such as UAE etc aren't

appropriate for me. Any info you have on drugs would be useful.

Thanks

KD

uterine fibroids group - my intro

Hi, I'm Jane.

I have a large fibroid on my cervix, and a smaller one on the top of my

uterus. I

seem to have gotten some sort of control over the bleeding by using

Depo-Provera

shots, spaced every 2 months instead of 3; and I've been taking vitamins (100%

RDA of everything) since Jan. 1.

I still live in slight nervous fear of " what if I bleed again " -- just

wondering what

experiences everyone else has had.

thanks,

Jane