Guest guest Posted May 13, 1998 Report Share Posted May 13, 1998 Jackie, I will read Psalms and I am trying to get thru Romans too right now. Thanks to both of you. I wanted that Excitotoxin bk a while back and had forgotten about it. My problem is all the bks I buy and then don't have time or energy to read them. I keep trying dragging them everywhere with me. What is the macrobiotic diet? I know Connie can't do a special diet, she has problems with the Feingold diet. Also, we seem to be sensitive to EVERY fd. so it seems so useless to work on diet too extensively. I feel like and have read that if you can get around the metabolic blocks your body will then be able to process all healthy foods. Like the lipoic helps us process the wheat, etc. but some of us can't do the lipoic, it makes us worse. We were told there is some other rate-limiting factor we are not aware of yet for those family members. If we have a mtDNA and a nDNA disorder who knows who has what combination of problems genetically? I don't think I knew that some people reacted to aspartame but I did know it damages brain cells, scary thought. And I didn't know they were putting it in nutrients! Following is religious so some may not want to read it: I had forgotten until someone reminded me yest. that when was just born and I walked into the room (he was an emergency C-section and I wasn't in there for the actual delivery), his head spun around and he just stared at me, I looked at him and it took my breath away-I actually gasped, it was as if we knew each other. There has always been a special bond there from that moment. I always felt my son had some special mission on earth since God returned him to me and gifted at that, but I wonder now if it was not necessarily something he would do as much as it was to be the father of and it is thru 's trials that we will finally get an answer for our families long history of pain. I feel and have for years that my special purpose on earth is to solve this and maybe that is why and I " knew " each other. What is really wierd is that is as brilliant as my father was and my father abused me almost to death whereas I am now trying to save . It feels like the tables have turned. I loved my father and I know now how sick he was, I wanted him to be well so I feel like by helping I can stop a horrible cycle of sickness that causes abuse. If my father could have been well, he could have done wonderful things with his brilliance and hopefully will have that opportunity. I'm sorry these posts are so long. S. Progress with > > >Well, , it sounds like you are getting things on track and making some >real progress in several areas. Lynnie's advice to you about getting into >the Psalms is real good advice and will hold you in good stead while other >things are being worked out. > >My experience, when nothing else seems to work, is to eliminate all >processed food and be wary of meds with additives such as food colorings. >Parents whose children are very reactive to aspartame are finding that for >some strange reason it is turning up in medications and children's vitamins. >I bought a calcium supplement the other day that my doctor prescribed and it >had aspartame in it. I have seen some astounding results with the >macrobiotic healing diet on so many degenerative diseases that if I were up >against the wall that is what I would do. > >I'm real good at recommending books: (Amazon loves me !) Excitotoxins by >Dr. Blaylock (he is a neurosurgeon) is not directly related to mito >disorders but it certainly sheds a lot of light on how the brain works and >how we can 1-protect it from damage and 2-take a more learned position with >medical people as advocates for our own health care and in your case, >little . > >Our prayers are with you and so is God-- he cares for that little one just >as much as you do, Jackie > > >------------------------------------------------------------------------ >Give back to your community through " Grow to Give. " >http://www.ONElist.com >See homepage for details. >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1998 Report Share Posted May 13, 1998 Jackie, I will read Psalms and I am trying to get thru Romans too right now. Thanks to both of you. I wanted that Excitotoxin bk a while back and had forgotten about it. My problem is all the bks I buy and then don't have time or energy to read them. I keep trying dragging them everywhere with me. What is the macrobiotic diet? I know Connie can't do a special diet, she has problems with the Feingold diet. Also, we seem to be sensitive to EVERY fd. so it seems so useless to work on diet too extensively. I feel like and have read that if you can get around the metabolic blocks your body will then be able to process all healthy foods. Like the lipoic helps us process the wheat, etc. but some of us can't do the lipoic, it makes us worse. We were told there is some other rate-limiting factor we are not aware of yet for those family members. If we have a mtDNA and a nDNA disorder who knows who has what combination of problems genetically? I don't think I knew that some people reacted to aspartame but I did know it damages brain cells, scary thought. And I didn't know they were putting it in nutrients! Following is religious so some may not want to read it: I had forgotten until someone reminded me yest. that when was just born and I walked into the room (he was an emergency C-section and I wasn't in there for the actual delivery), his head spun around and he just stared at me, I looked at him and it took my breath away-I actually gasped, it was as if we knew each other. There has always been a special bond there from that moment. I always felt my son had some special mission on earth since God returned him to me and gifted at that, but I wonder now if it was not necessarily something he would do as much as it was to be the father of and it is thru 's trials that we will finally get an answer for our families long history of pain. I feel and have for years that my special purpose on earth is to solve this and maybe that is why and I " knew " each other. What is really wierd is that is as brilliant as my father was and my father abused me almost to death whereas I am now trying to save . It feels like the tables have turned. I loved my father and I know now how sick he was, I wanted him to be well so I feel like by helping I can stop a horrible cycle of sickness that causes abuse. If my father could have been well, he could have done wonderful things with his brilliance and hopefully will have that opportunity. I'm sorry these posts are so long. S. Progress with > > >Well, , it sounds like you are getting things on track and making some >real progress in several areas. Lynnie's advice to you about getting into >the Psalms is real good advice and will hold you in good stead while other >things are being worked out. > >My experience, when nothing else seems to work, is to eliminate all >processed food and be wary of meds with additives such as food colorings. >Parents whose children are very reactive to aspartame are finding that for >some strange reason it is turning up in medications and children's vitamins. >I bought a calcium supplement the other day that my doctor prescribed and it >had aspartame in it. I have seen some astounding results with the >macrobiotic healing diet on so many degenerative diseases that if I were up >against the wall that is what I would do. > >I'm real good at recommending books: (Amazon loves me !) Excitotoxins by >Dr. Blaylock (he is a neurosurgeon) is not directly related to mito >disorders but it certainly sheds a lot of light on how the brain works and >how we can 1-protect it from damage and 2-take a more learned position with >medical people as advocates for our own health care and in your case, >little . > >Our prayers are with you and so is God-- he cares for that little one just >as much as you do, Jackie > > >------------------------------------------------------------------------ >Give back to your community through " Grow to Give. " >http://www.ONElist.com >See homepage for details. >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1998 Report Share Posted May 13, 1998 Jackie, I will read Psalms and I am trying to get thru Romans too right now. Thanks to both of you. I wanted that Excitotoxin bk a while back and had forgotten about it. My problem is all the bks I buy and then don't have time or energy to read them. I keep trying dragging them everywhere with me. What is the macrobiotic diet? I know Connie can't do a special diet, she has problems with the Feingold diet. Also, we seem to be sensitive to EVERY fd. so it seems so useless to work on diet too extensively. I feel like and have read that if you can get around the metabolic blocks your body will then be able to process all healthy foods. Like the lipoic helps us process the wheat, etc. but some of us can't do the lipoic, it makes us worse. We were told there is some other rate-limiting factor we are not aware of yet for those family members. If we have a mtDNA and a nDNA disorder who knows who has what combination of problems genetically? I don't think I knew that some people reacted to aspartame but I did know it damages brain cells, scary thought. And I didn't know they were putting it in nutrients! Following is religious so some may not want to read it: I had forgotten until someone reminded me yest. that when was just born and I walked into the room (he was an emergency C-section and I wasn't in there for the actual delivery), his head spun around and he just stared at me, I looked at him and it took my breath away-I actually gasped, it was as if we knew each other. There has always been a special bond there from that moment. I always felt my son had some special mission on earth since God returned him to me and gifted at that, but I wonder now if it was not necessarily something he would do as much as it was to be the father of and it is thru 's trials that we will finally get an answer for our families long history of pain. I feel and have for years that my special purpose on earth is to solve this and maybe that is why and I " knew " each other. What is really wierd is that is as brilliant as my father was and my father abused me almost to death whereas I am now trying to save . It feels like the tables have turned. I loved my father and I know now how sick he was, I wanted him to be well so I feel like by helping I can stop a horrible cycle of sickness that causes abuse. If my father could have been well, he could have done wonderful things with his brilliance and hopefully will have that opportunity. I'm sorry these posts are so long. S. Progress with > > >Well, , it sounds like you are getting things on track and making some >real progress in several areas. Lynnie's advice to you about getting into >the Psalms is real good advice and will hold you in good stead while other >things are being worked out. > >My experience, when nothing else seems to work, is to eliminate all >processed food and be wary of meds with additives such as food colorings. >Parents whose children are very reactive to aspartame are finding that for >some strange reason it is turning up in medications and children's vitamins. >I bought a calcium supplement the other day that my doctor prescribed and it >had aspartame in it. I have seen some astounding results with the >macrobiotic healing diet on so many degenerative diseases that if I were up >against the wall that is what I would do. > >I'm real good at recommending books: (Amazon loves me !) Excitotoxins by >Dr. Blaylock (he is a neurosurgeon) is not directly related to mito >disorders but it certainly sheds a lot of light on how the brain works and >how we can 1-protect it from damage and 2-take a more learned position with >medical people as advocates for our own health care and in your case, >little . > >Our prayers are with you and so is God-- he cares for that little one just >as much as you do, Jackie > > >------------------------------------------------------------------------ >Give back to your community through " Grow to Give. " >http://www.ONElist.com >See homepage for details. >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 Well, , it sounds like you are getting things on track and making some real progress in several areas. Lynnie's advice to you about getting into the Psalms is real good advice and will hold you in good stead while other things are being worked out. My experience, when nothing else seems to work, is to eliminate all processed food and be wary of meds with additives such as food colorings. Parents whose children are very reactive to aspartame are finding that for some strange reason it is turning up in medications and children's vitamins. I bought a calcium supplement the other day that my doctor prescribed and it had aspartame in it. I have seen some astounding results with the macrobiotic healing diet on so many degenerative diseases that if I were up against the wall that is what I would do. I'm real good at recommending books: (Amazon loves me !) Excitotoxins by Dr. Blaylock (he is a neurosurgeon) is not directly related to mito disorders but it certainly sheds a lot of light on how the brain works and how we can 1-protect it from damage and 2-take a more learned position with medical people as advocates for our own health care and in your case, little . Our prayers are with you and so is God-- he cares for that little one just as much as you do, Jackie Quote Link to comment Share on other sites More sharing options...
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