Re: RE: lymphopenia and celiac?

[Guest guest]

Hi Marcie,

I was wondering if your some was diagnosed with lymphopenia after only

one CBC. My son had a CBC done last Oct. and it said his Neutrophils

were low and his Lymphocytes were high. (Another one done in January,

which I don't have a copy of, but think I'll get now just for

comparison.) Six months later in March he had another one done and it

said his Lymphocytes were low and his Neutrophils were high! All of

his doctors have looked at these results and didn't seem concerned with

them. The blood levels seem to go up and down occasionally, so unless

lymphocytes levels were repeatedly low, I wouldn't be too concerned.

Although lymphopenia can be an indication of Lupus which is also a

common related disease to Celiac, so you might want to ask about that

when you do get to the doctor.

http://www.gpnotebook.co.uk/cache/1282080827.htm

My son sees his Rheumotologist/Infectious Disease/Immunologist on

Tuesday at the children's Hospital, and I will ask about it.

God bless,

nn

Marcie Concepcion wrote:

Joanne,

Thank you for your input. I think you are right about not subjecting my

three and a half year old to a gluten challenge. I just feel bad when he

says thing like his happy thought is "being able to eat gluten again".

In

addition to the egg and soybean allergies, the biochemist also

diagnosed him

as having lymphopenia based on the results of his CBC. Is this common

for

celiacs? I read that it is often associated with autoimmune disorders

(the

other associations for it are much more awful). My appointment with

Fasano

is not until January, but what little I have read about lymphopenia has

me

concerned enough that maybe I should have him looked at by someone very

soon. Has anyone else had a similar diagnosis?

Marcie Concepcion

[Guest guest]

Hi Marcie,

I was wondering if your some was diagnosed with lymphopenia after only

one CBC. My son had a CBC done last Oct. and it said his Neutrophils

were low and his Lymphocytes were high. (Another one done in January,

which I don't have a copy of, but think I'll get now just for

comparison.) Six months later in March he had another one done and it

said his Lymphocytes were low and his Neutrophils were high! All of

his doctors have looked at these results and didn't seem concerned with

them. The blood levels seem to go up and down occasionally, so unless

lymphocytes levels were repeatedly low, I wouldn't be too concerned.

Although lymphopenia can be an indication of Lupus which is also a

common related disease to Celiac, so you might want to ask about that

when you do get to the doctor.

http://www.gpnotebook.co.uk/cache/1282080827.htm

My son sees his Rheumotologist/Infectious Disease/Immunologist on

Tuesday at the children's Hospital, and I will ask about it.

God bless,

nn

Marcie Concepcion wrote:

Joanne,

Thank you for your input. I think you are right about not subjecting my

three and a half year old to a gluten challenge. I just feel bad when he

says thing like his happy thought is "being able to eat gluten again".

In

addition to the egg and soybean allergies, the biochemist also

diagnosed him

as having lymphopenia based on the results of his CBC. Is this common

for

celiacs? I read that it is often associated with autoimmune disorders

(the

other associations for it are much more awful). My appointment with

Fasano

is not until January, but what little I have read about lymphopenia has

me

concerned enough that maybe I should have him looked at by someone very

soon. Has anyone else had a similar diagnosis?

Marcie Concepcion

[Guest guest]

Marcie, my daughter found it very effective to point out to her 3-1/2 year old, when she accidentally got gluten, that was what made her sick. My granddaughter absolutely doesn't want gluten now.

I had never heard of lymphopenia, but I just researched it a bit on the internet. I found that "approximately 10% of celiac patients have total white cell counts less than 3500 per cmm and approximately the same percentage have either a neutropenia of less than 3000 or a lymphopenia of less than 1500 per cmm."

http://www.celiac.com/st_prod.html?p_print=y & p_prodid=131

As much as I can guess from what I have read, lymphopenia with celiac disease might go away with a gluten-free diet, and it might be serious, so what you are doing in checking it out is the wise thing to do.

If you think that the appointment in January may be too far away, I recommend you send an e-mail to Dr. Fasano's ( AFasano@... ) telling him in no more than a few lines that you have a first appointment scheduled with Dr. Fasano on January ____, how your 3-1/2 son was diagnosed with celiac (type of test and results), that he has this lymphopenia test result of whatever the figure is (and any other two high or too low blood test scores), how he is doing on a gluten-free diet--medical symptoms including diarrhea if any, and because of the lymphopenia, you wonder if he should be scheduled earlier. You will probably get a response within a week, but if you don't, you should call him at to follow up your e-mail.

Jo Anne

RE: lymphopenia and celiac?

Joanne,Thank you for your input. I think you are right about not subjecting mythree and a half year old to a gluten challenge. I just feel bad when hesays thing like his happy thought is "being able to eat gluten again". Inaddition to the egg and soybean allergies, the biochemist also diagnosed himas having lymphopenia based on the results of his CBC. Is this common forceliacs? I read that it is often associated with autoimmune disorders (theother associations for it are much more awful). My appointment with Fasanois not until January, but what little I have read about lymphopenia has meconcerned enough that maybe I should have him looked at by someone verysoon. Has anyone else had a similar diagnosis?Marcie Concepcion

[Guest guest]

Marcie, my daughter found it very effective to point out to her 3-1/2 year old, when she accidentally got gluten, that was what made her sick. My granddaughter absolutely doesn't want gluten now.

I had never heard of lymphopenia, but I just researched it a bit on the internet. I found that "approximately 10% of celiac patients have total white cell counts less than 3500 per cmm and approximately the same percentage have either a neutropenia of less than 3000 or a lymphopenia of less than 1500 per cmm."

http://www.celiac.com/st_prod.html?p_print=y & p_prodid=131

As much as I can guess from what I have read, lymphopenia with celiac disease might go away with a gluten-free diet, and it might be serious, so what you are doing in checking it out is the wise thing to do.

If you think that the appointment in January may be too far away, I recommend you send an e-mail to Dr. Fasano's ( AFasano@... ) telling him in no more than a few lines that you have a first appointment scheduled with Dr. Fasano on January ____, how your 3-1/2 son was diagnosed with celiac (type of test and results), that he has this lymphopenia test result of whatever the figure is (and any other two high or too low blood test scores), how he is doing on a gluten-free diet--medical symptoms including diarrhea if any, and because of the lymphopenia, you wonder if he should be scheduled earlier. You will probably get a response within a week, but if you don't, you should call him at to follow up your e-mail.

Jo Anne

RE: lymphopenia and celiac?

Joanne,Thank you for your input. I think you are right about not subjecting mythree and a half year old to a gluten challenge. I just feel bad when hesays thing like his happy thought is "being able to eat gluten again". Inaddition to the egg and soybean allergies, the biochemist also diagnosed himas having lymphopenia based on the results of his CBC. Is this common forceliacs? I read that it is often associated with autoimmune disorders (theother associations for it are much more awful). My appointment with Fasanois not until January, but what little I have read about lymphopenia has meconcerned enough that maybe I should have him looked at by someone verysoon. Has anyone else had a similar diagnosis?Marcie Concepcion