survey

[Guest guest]

I was wondering if all families with any AD(H)D in any family member had the

same mito suspected or confirmed disorder(s). I was thinking we could take a

survey on here and find out. If those with AD(H)D in their families would

respond I would appreciate it.

Also, many mito disorders affect the brain, but different mito disorders seem to

affect the brain in different ways. I was wondering (going on the premise that

AD(H)D IS a mito disorder) exactly how it is affecting those patients brains. I

understand that there is a variance in which cells and how many get affected and

to what degree, but obviously it seems to me that there still seem to be at

least loose categories of brain involvement. And also some problems are

structural as in areas of the brain actually being destroyed (Leigh's and

Alzheimer's), while others are chemical (problems with hormones, blood sugar and

oxygen levels).

It seems to me that we know that the low levels of chemicals eventually destroy

brain cells? It has been proven that AD(H)D patients have low levels of glucose

and oxygen to the brain (at the least-certain areas) and it is known that

families with AD(H)D in them generally also have Alzheimer's patients. The mito

specialists are surmizing that the Alzheimer's patients are those who have

undiagnosed/untreated milder forms of some mito disorder. They also think AD(H)D

is a milder form of some mito disorder. If families with AD(H)D could have a

diagnosis of exactly what the defect is causing their problem then maybe thru

treatment they could prevent the brain deterioration/cell destruction that leads

to some of them being diagnosed with Alzheimer's in late life.

Are AD(H)D patients brains not able to get proper glucose and oxygen because of

a problem with the brain cells themselves or just not getting them because of

problems elsewhere in the body? I remember when I did get the glucose and oxygen

my brain was able to function fine some years ago, but I wonder how much actual

structural damage has or is happening now as more and more time goes by with

improper amts so that I may end up like other family members with Alzheimer's.

Scarey thought.

If we could determine WHICH mito disorder these patients have they could be

treated more rationally. I just think if we did the survey on here and

happened to come up with a majority of AD(H)D families with the same or very

similar disorder(s) we might get a clue.

Hopeful shot in the dark but worth a try to me. S.