Re: Should I go get that myomectomy? or wait...

[Guest guest]

Audrey,

I was not up to my best when I had my fibroid problems. Looking back

on it I should not have beat myself up for not being superwoman

during this time. I found a resolution (UAE) and I am past it now

feeling better and stronger. There is an end in sight, be patient

and take it easy. IMO your kids might learn an important skill by

watching you take care of yourself, solve your problem and be strong

again!

> Dear Debbie, and All,

>

> Thank you for your letter Debbie. I feel the way you do about

UAE, maybe

> even more so. I didn't even bother checking it out. You have done

very good

> homework, I must say. Tell me why you think you would be in for a 4-

6 week

> hit with myo? I was counting on about a 10 day recovery. When I had

a lap ten

> years ago I was lying down for about a week afterwards. I am older

now, 44,

> and this is a bit more complicated than that was so I was thinking

2 weeks.

> And the doctor I am seeing concurred.

> Are you looking at abdominal, or laparoscopic myo? Your fibroid

does

> sound large, just a bit larger than mine. I understand that size is

perhaps

> not quite as important as placement. Is that the reason you are, or

they are

> recommending abdominal? If they are?

> Yesterday I had an in office test, I believe a sonohystergram,

where water is

> sent into the uterus to better determine size and placement. It

was hardly

> painful. Hours afterwards a burning pain began and stayed with me

through out

> the night. I do not know if it was due to the after affects of the

test or

> just part of the usual pain I live with that comes and goes. The

doctor felt

> confident of it's accuracy. He is sure a laparoscopic myo will be

no problem.

> He told me he does about a hundred a year. Did not seem to feel

that MRI was

> needed.

> I am very close to going and getting the lap myomectomy. I

could get it

> next week. Not sure what is stopping me. I had a hard time

sleeping. Visions

> of the 'thing' be pulled out in masticated bits, through my cut

belly button,

> some of which were forgotten inside, coupled with the pain kept me

up. Before

> I talked to the doctor yesterday, I had childishly envisioned the

fibroid

> coming out whole. Being weighed. But that is not how they do lap.

> I don't know what difference it makes, but for some weird

reason the

> churning up of it is scaring me.

> I might have to wait until the first week of June if I don't do

it next

> week. Maybe it takes a while to get used to the idea of being

operated on.

> Yes, I want it out very much. But I am not looking forward to

general

> anesthesia or the recovery period. And I don't want to risk missing

my

> daughter's school play.

> I still have not heard from my insurance as to how much they will

reimburse

> me. That's one matter. The other is that I have appointments lined

up with

> two other doctors other than the one who could do it next week. One

of the

> other doctors in on my plan, so I would shell out nothing. The

other is at a

> great hospital. Reason dictates that I should wait. I think.

> There are times I am so grateful that I have found a doctor who

is

> appalled by the idea of hysterectomy, and times when I am grateful

I am not

> in the midst of a truly life threatening malady. Times when I am

very

> grateful for the Internet and this group, for all this support.

But, but,

> there are time when I feel so sorry for myself, and so very guilty

for the

> mediocre mother I have been these last six months. And very guilty

for the

> loss my personal work has suffered. It is becoming more and more

difficult to

> turn away from researching my surgery options to dealing with the

other parts

> of my life.

> Does everyone else feel just plain weak all over? I am having

trouble now

> with subway stairs and simple things like cleaning the house and

brushing my

> girls hair, and just everything...

> The doctor gave me a prescription for Iron...maybe that will help.

I shall

> try to stop being so hard on myself, surgery is after all a big

deal. An

> acupuncturist I was seeing reminded me that although the dinners I

have been

> half heartily throwing together, and the disinterested glance at

the kids

> homework I give is better than nothing. At least I am here. Many

mothers are

> working so hard, poor things, they are not ever there to give even

that

> much....

> I hope you all had better nights than I did. Please forgive me for

rambling

> on. It is helpful to be able to. Audrey

[Guest guest]

Audrey,

you mentioned that you had a more accurate test in

determining the size of your fibroids, what kind of

test did you have? (Need to know if I am on the right

track for testing) I've had a diagnostic hysteroscopy

and the transvaginal ultrasound. Thanks in advance for

your response. SKY

--- matson9@... wrote:

> Donna,

>

> My fibroid is described as lemon size. It

> measured once at about 10

> centimeters, yesterday with a more accurate test it

> measured six-seven

> centimeters.

> I got information from cailleach@...

> not long ago that I am

> going to cut & paste for you in case you missed it.

> I also remember read

> somewhere, Dr. Stanley West's site? That there are

> those who specialize in

> lap myo who rarely find one too big to take out that

> way. Placement and type

> of fibroid are also a factors. My doctor is in NYC,

> Vidali, MD. He

> does minimally invasive surgery. He is part of a

> group.

> Advanced Laparoscopic Surgeons · Adlap

>

> Central Office

> 872 5th Ave.

> New York NY  10021 USA

> Phone Toll Free 1-

> Web site: Advanced Laparoscopic

> Surgeons-www.adlap.com

>

> Good Luck Take care Audrey

>

> Here is the repost from cailleach@...

> ( Carla, I believe who

> has a very interesting web site everyone should look

> at, sex, lies and

> uterinefibroids)

>

> I recall a woman reporting to this group that she

> had laparoscopic removal of

> a 10 cm fibroid and everyone who knew anything about

> lap. myo. was very

> impressed, so that would seem to be an upward limit.

>

>

>

> I looked up a couple of archived articles, but some

> of them gave weight

> limits " The largest myoma removed weighed 1300 gms. "

> , " Much morcellation may

> be necessary but the surgeon’s patience and hard

> work are rewarded by

> accomplishing removal of large-sized masses,

> sometimes exceeding 1000 g. " (H

> Reich, MD); " The weight of the leiomyomas ranged

> from 28 g to 998 g " (Nezhat

> et al., 1994)

>

> J-B DUBUISSON & C CHAPRON wrote " The means size of

> the largest myoma removed

> [from each woman] is 48 + 21.2 mm (from 20 to 130

> mm). " For size in cm,

> divide by 10, so this is talking of one woman's

> largest fibroid being 13 cm.

> But the author also mentioned an attempted

> laporoscopy on a " 10 cm myoma

> which proved difficult to dissect and haemorrhaged " ;

> the operation was

> converted to laporotomy. In their conclusion, these

> authors write, " As far as

> sub-serous and/or interstitial myomas are concerned,

> all myomectomies cannot

> be treated by laparoscopic surgery. In our opinion,

> the indications for

> laparotomy, which correspond to the limits of

> laparoscopic surgery for this

> indication, are as follows: several myomas (more

> than 3) of 4 cm or more in

> size, and a myoma of more than 8 cm. "

>

>

>

>

__________________________________________________

[Guest guest]

Re: Should I go get that myomectomy? or wait...

> Dear Debbie, and All,

>

> Thank you for your letter Debbie. I feel the way you do about UAE,

maybe

> even more so. I didn't even bother checking it out. You have done very

good

> homework, I must say. Tell me why you think you would be in for a 4-6 week

> hit with myo? I was counting on about a 10 day recovery. When I had a lap

ten

> years ago I was lying down for about a week afterwards. I am older now,

44,

> and this is a bit more complicated than that was so I was thinking 2

weeks.

> And the doctor I am seeing concurred.

> Are you looking at abdominal, or laparoscopic myo? Your fibroid does

> sound large, just a bit larger than mine. I understand that size is

perhaps

> not quite as important as placement. Is that the reason you are, or they

are

> recommending abdominal? If they are?

> Yesterday I had an in office test, I believe a sonohystergram, where water

is

> sent into the uterus to better determine size and placement. It was

hardly

> painful. Hours afterwards a burning pain began and stayed with me through

out

> the night. I do not know if it was due to the after affects of the test or

> just part of the usual pain I live with that comes and goes. The doctor

felt

> confident of it's accuracy. He is sure a laparoscopic myo will be no

problem.

> He told me he does about a hundred a year. Did not seem to feel that MRI

was

> needed.

> I am very close to going and getting the lap myomectomy. I could get

it

> next week. Not sure what is stopping me. I had a hard time sleeping.

Visions

> of the 'thing' be pulled out in masticated bits, through my cut belly

button,

> some of which were forgotten inside, coupled with the pain kept me up.

Before

> I talked to the doctor yesterday, I had childishly envisioned the fibroid

> coming out whole. Being weighed. But that is not how they do lap.

> I don't know what difference it makes, but for some weird reason the

> churning up of it is scaring me.

> I might have to wait until the first week of June if I don't do it

next

> week. Maybe it takes a while to get used to the idea of being operated on.

> Yes, I want it out very much. But I am not looking forward to general

> anesthesia or the recovery period. And I don't want to risk missing my

> daughter's school play.

> I still have not heard from my insurance as to how much they will

reimburse

> me. That's one matter. The other is that I have appointments lined up with

> two other doctors other than the one who could do it next week. One of the

> other doctors in on my plan, so I would shell out nothing. The other is at

a

> great hospital. Reason dictates that I should wait. I think.

> There are times I am so grateful that I have found a doctor who is

> appalled by the idea of hysterectomy, and times when I am grateful I am

not

> in the midst of a truly life threatening malady. Times when I am very

> grateful for the Internet and this group, for all this support. But, but,

> there are time when I feel so sorry for myself, and so very guilty for the

> mediocre mother I have been these last six months. And very guilty for

the

> loss my personal work has suffered. It is becoming more and more difficult

to

> turn away from researching my surgery options to dealing with the other

parts

> of my life.

> Does everyone else feel just plain weak all over? I am having trouble

now

> with subway stairs and simple things like cleaning the house and brushing

my

> girls hair, and just everything...

> The doctor gave me a prescription for Iron...maybe that will help. I shall

> try to stop being so hard on myself, surgery is after all a big deal. An

> acupuncturist I was seeing reminded me that although the dinners I have

been

> half heartily throwing together, and the disinterested glance at the kids

> homework I give is better than nothing. At least I am here. Many mothers

are

> working so hard, poor things, they are not ever there to give even that

> much....

> I hope you all had better nights than I did. Please forgive me for

rambling

> on. It is helpful to be able to. Audrey

>

>

>

[Guest guest]

Re: Should I go get that myomectomy? or wait...

> Dear Debbie, and All,

>

> Thank you for your letter Debbie. I feel the way you do about UAE,

maybe

> even more so. I didn't even bother checking it out. You have done very

good

> homework, I must say. Tell me why you think you would be in for a 4-6 week

> hit with myo? I was counting on about a 10 day recovery. When I had a lap

ten

> years ago I was lying down for about a week afterwards. I am older now,

44,

> and this is a bit more complicated than that was so I was thinking 2

weeks.

> And the doctor I am seeing concurred.

> Are you looking at abdominal, or laparoscopic myo? Your fibroid does

> sound large, just a bit larger than mine. I understand that size is

perhaps

> not quite as important as placement. Is that the reason you are, or they

are

> recommending abdominal? If they are?

> Yesterday I had an in office test, I believe a sonohystergram, where water

is

> sent into the uterus to better determine size and placement. It was

hardly

> painful. Hours afterwards a burning pain began and stayed with me through

out

> the night. I do not know if it was due to the after affects of the test or

> just part of the usual pain I live with that comes and goes. The doctor

felt

> confident of it's accuracy. He is sure a laparoscopic myo will be no

problem.

> He told me he does about a hundred a year. Did not seem to feel that MRI

was

> needed.

> I am very close to going and getting the lap myomectomy. I could get

it

> next week. Not sure what is stopping me. I had a hard time sleeping.

Visions

> of the 'thing' be pulled out in masticated bits, through my cut belly

button,

> some of which were forgotten inside, coupled with the pain kept me up.

Before

> I talked to the doctor yesterday, I had childishly envisioned the fibroid

> coming out whole. Being weighed. But that is not how they do lap.

> I don't know what difference it makes, but for some weird reason the

> churning up of it is scaring me.

> I might have to wait until the first week of June if I don't do it

next

> week. Maybe it takes a while to get used to the idea of being operated on.

> Yes, I want it out very much. But I am not looking forward to general

> anesthesia or the recovery period. And I don't want to risk missing my

> daughter's school play.

> I still have not heard from my insurance as to how much they will

reimburse

> me. That's one matter. The other is that I have appointments lined up with

> two other doctors other than the one who could do it next week. One of the

> other doctors in on my plan, so I would shell out nothing. The other is at

a

> great hospital. Reason dictates that I should wait. I think.

> There are times I am so grateful that I have found a doctor who is

> appalled by the idea of hysterectomy, and times when I am grateful I am

not

> in the midst of a truly life threatening malady. Times when I am very

> grateful for the Internet and this group, for all this support. But, but,

> there are time when I feel so sorry for myself, and so very guilty for the

> mediocre mother I have been these last six months. And very guilty for

the

> loss my personal work has suffered. It is becoming more and more difficult

to

> turn away from researching my surgery options to dealing with the other

parts

> of my life.

> Does everyone else feel just plain weak all over? I am having trouble

now

> with subway stairs and simple things like cleaning the house and brushing

my

> girls hair, and just everything...

> The doctor gave me a prescription for Iron...maybe that will help. I shall

> try to stop being so hard on myself, surgery is after all a big deal. An

> acupuncturist I was seeing reminded me that although the dinners I have

been

> half heartily throwing together, and the disinterested glance at the kids

> homework I give is better than nothing. At least I am here. Many mothers

are

> working so hard, poor things, they are not ever there to give even that

> much....

> I hope you all had better nights than I did. Please forgive me for

rambling

> on. It is helpful to be able to. Audrey

>

>

>

[Guest guest]

Re: Should I go get that myomectomy? or wait...

> Dear Debbie, and All,

>

> Thank you for your letter Debbie. I feel the way you do about UAE,

maybe

> even more so. I didn't even bother checking it out. You have done very

good

> homework, I must say. Tell me why you think you would be in for a 4-6 week

> hit with myo? I was counting on about a 10 day recovery. When I had a lap

ten

> years ago I was lying down for about a week afterwards. I am older now,

44,

> and this is a bit more complicated than that was so I was thinking 2

weeks.

> And the doctor I am seeing concurred.

> Are you looking at abdominal, or laparoscopic myo? Your fibroid does

> sound large, just a bit larger than mine. I understand that size is

perhaps

> not quite as important as placement. Is that the reason you are, or they

are

> recommending abdominal? If they are?

> Yesterday I had an in office test, I believe a sonohystergram, where water

is

> sent into the uterus to better determine size and placement. It was

hardly

> painful. Hours afterwards a burning pain began and stayed with me through

out

> the night. I do not know if it was due to the after affects of the test or

> just part of the usual pain I live with that comes and goes. The doctor

felt

> confident of it's accuracy. He is sure a laparoscopic myo will be no

problem.

> He told me he does about a hundred a year. Did not seem to feel that MRI

was

> needed.

> I am very close to going and getting the lap myomectomy. I could get

it

> next week. Not sure what is stopping me. I had a hard time sleeping.

Visions

> of the 'thing' be pulled out in masticated bits, through my cut belly

button,

> some of which were forgotten inside, coupled with the pain kept me up.

Before

> I talked to the doctor yesterday, I had childishly envisioned the fibroid

> coming out whole. Being weighed. But that is not how they do lap.

> I don't know what difference it makes, but for some weird reason the

> churning up of it is scaring me.

> I might have to wait until the first week of June if I don't do it

next

> week. Maybe it takes a while to get used to the idea of being operated on.

> Yes, I want it out very much. But I am not looking forward to general

> anesthesia or the recovery period. And I don't want to risk missing my

> daughter's school play.

> I still have not heard from my insurance as to how much they will

reimburse

> me. That's one matter. The other is that I have appointments lined up with

> two other doctors other than the one who could do it next week. One of the

> other doctors in on my plan, so I would shell out nothing. The other is at

a

> great hospital. Reason dictates that I should wait. I think.

> There are times I am so grateful that I have found a doctor who is

> appalled by the idea of hysterectomy, and times when I am grateful I am

not

> in the midst of a truly life threatening malady. Times when I am very

> grateful for the Internet and this group, for all this support. But, but,

> there are time when I feel so sorry for myself, and so very guilty for the

> mediocre mother I have been these last six months. And very guilty for

the

> loss my personal work has suffered. It is becoming more and more difficult

to

> turn away from researching my surgery options to dealing with the other

parts

> of my life.

> Does everyone else feel just plain weak all over? I am having trouble

now

> with subway stairs and simple things like cleaning the house and brushing

my

> girls hair, and just everything...

> The doctor gave me a prescription for Iron...maybe that will help. I shall

> try to stop being so hard on myself, surgery is after all a big deal. An

> acupuncturist I was seeing reminded me that although the dinners I have

been

> half heartily throwing together, and the disinterested glance at the kids

> homework I give is better than nothing. At least I am here. Many mothers

are

> working so hard, poor things, they are not ever there to give even that

> much....

> I hope you all had better nights than I did. Please forgive me for

rambling

> on. It is helpful to be able to. Audrey

>

>

>

[Guest guest]

MY VOTE IS FOR MYOMECTOMY. I HAD ONE IN 1999. UAE SOUNDS TOO SCARY. THOSE

PELLETS COULD STRAY.

[Guest guest]

lanisakai@...

Thank you for you help. I am going to go with lap myo.

Audrey

[Guest guest]

lanisakai@...

Thank you for you help. I am going to go with lap myo.

Audrey