Re: submucosal fibroids and hysteroscopy

[Guest guest]

- Thanks for the great web site. It was extremely informative. I am

counting the hours until my ultrasound today. I am experiencing terrible

pain on my left side, putting pressure on my kidneys and colan. My lower

rib (in back on left) is also sticking out now and causing severe pain. I

am hoping the ultrasound will shed some light on everything.

I actually went to ER last night per the request of my OBGYN, when I called

her at home about the rib pain. The ER Doctor thinks I may have something

more serious (Cancer) than a Firbroid problem. I am now scheduled to see

and internal medicine doctor on Wednesday. Everything is moving so fast. I

am terrified!!

I am only 33 years old and have never had fibroids before, at least that I

know of. However, I have been pregnant 6 times. One healthy beautiful

daughter (12 years old), a stillborn anencephalic baby and 4 miscarriages.

I was going to a specialist during my 3 miscarriages, which were my last 3

pg and the doctor said my body was perfect for having children??? He felt

my immune system was just so strong it was causing me to miscarry the babies

and was the reason for our stillborn. So I opted to end my dreams of a

larger family and move on. I had my tubes cut and burned in Nov. 1995.

If any of this sounds familiar to anyone, please let me know. I would

prefer to think this is all from fibroids, I certainly do not want my worst

fears confirmed. Sheri

Re: submucosal fibroids & hysteroscopic removal

>

> ,

> Unfortunately that small fibroid is not the only one

> that I have, I do have three and they are larger. My

> Doc specializes in Fertility, Reproductive Medicine &

> Surgery " MINIMALLY INVASIVE " Endoscopic Surgery &

> Laser/Microsurgery. I have recently found out that he

> is one of the best here in Dallas for Fertility and

> Microsurgery. I did have the hysteroscopy done,

> however I did not watch the procedure, the tech

> positioned the machine right beside me (as in

> horizontal) and I didn't think to ask to watch until

> after we started. I know the Hystroscopy alone cannot

> be used to remove submucous fibroid (deep in the

> uterine wall) I know that he said one fibroid inside

> the wall is about 5cm (8 week pg) maybe that is why he

> suggested the abdominal myomectomy. Is that too large

> to removed by hysterscopic myomectomy? From what I've

> been told the size and the attachment of the fibroid

> is the most important in determining whether

> hysterscopic can be performed. Submucous- are

> associated with heavy and prolonged periods and

> severe cramps and also cause recurrent pg loss and

> infertility. I believe the size and location of the

> largest fibroid that I have is the reason he

> suggested abdominal, however, he said that there are

> many other options if I wasn't trying to conceive.

> Since he is a MINIMAllY INVASIVE Surgeon, I'll ask him

> about the hysterscopic resection and if that is a

> possible option for me. I know that he has removed 60

> fibriods by abdominal myomectomy from one lady who was

> also trying to get pg and after the surgery she was

> able to conceive..So, that gives me a little hope in

> the pg department, But, you are exactly right, if I

> don't have to be cut open and there is an easier

> route, than why not. He also is an excellent micro

> surgeon who has reconstructed fallopian tubes on

> ladies who were also trying to conceive and they were

> successful in conceiving after their surgery. Even

> though I've heard that he is excellent I do have a 2nd

> and 3rd opinion scheduled, just want to make sure we

> are all on the same page, so, I will certainly be

> asking if the hysterscopic myomectomy is for me. Ok, I

> just read your email again, you said that your

> fibroid was 5 cm that's how big mine is! Mine is

> submucosal and is deep inside the uterus and causes

> the heavy bleeding and infertility because it is

> pressing into the endo lining. Not intramural (as

> someone else suggested) but submucous deep in the

> uterus and pressing into the endo lining. Is this the

> same type that you had? My Gyn also stated that my

> uterus was the size of a 2 to 3 month pg due to the

> larger fibroid. You have been very helpful! Thanks

> for the insight and please get back to me. Where do

> you live? Are you and your Doc close to Texas by any

> chance? Take care and thanks again. SKY

> --- Reeves wrote:

> > Sky -

> >

_________________________________________________

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[Guest guest]

Sheri,

Stay strong. I too had a premature still born in the 7th month. It had a

neurotube defect. My first fibroid was discovered after the delivery of

that child when I was having complications. The doctor advised me not to

try to have anymore children, and I didn't.

I pray that your situation is not what you fear worst. Please pray for

yourself as I am praying for you right now.

Happy Easter,

>From: " son Sheri L " Reply-To: uterinefibroids To:

> " 'uterinefibroids ' " Subject: RE:

>submucosal fibroids and hysteroscopy Date: Fri, 13 Apr 2001 09:42:35 -0500

>

> - Thanks for the great web site. It was extremely informative. I am

>counting the hours until my ultrasound today. I am experiencing terrible

>pain on my left side, putting pressure on my kidneys and colan. My lower

>rib (in back on left) is also sticking out now and causing severe pain. I

>am hoping the ultrasound will shed some light on everything.

>

>I actually went to ER last night per the request of my OBGYN, when I called

>her at home about the rib pain. The ER Doctor thinks I may have something

>more serious (Cancer) than a Firbroid problem. I am now scheduled to see

>and internal medicine doctor on Wednesday. Everything is moving so fast. I

>am terrified!!

>

>I am only 33 years old and have never had fibroids before, at least that I

>know of. However, I have been pregnant 6 times. One healthy beautiful

>daughter (12 years old), a stillborn anencephalic baby and 4 miscarriages.

>I was going to a specialist during my 3 miscarriages, which were my last 3

>pg and the doctor said my body was perfect for having children??? He felt

>my immune system was just so strong it was causing me to miscarry the

>babies and was the reason for our stillborn. So I opted to end my dreams of

>a larger family and move on. I had my tubes cut and burned in Nov. 1995.

>

>If any of this sounds familiar to anyone, please let me know. I would

>prefer to think this is all from fibroids, I certainly do not want my worst

>fears confirmed. Sheri

>

> Re: submucosal fibroids & hysteroscopic removal > > , >

>Unfortunately that small fibroid is not the only one > that I have, I do

>have three and they are larger. My > Doc specializes in Fertility,

>Reproductive Medicine & > Surgery " MINIMALLY INVASIVE " Endoscopic Surgery &

> > Laser/Microsurgery. I have recently found out that he > is one of the

>best here in Dallas for Fertility and > Microsurgery. I did have the

>hysteroscopy done, > however I did not watch the procedure, the tech >

>positioned the machine right beside me (as in > horizontal) and I didn't

>think to ask to watch until > after we started. I know the Hystroscopy

>alone cannot > be used to remove submucous fibroid (deep in the > uterine

>wall) I know that he said one fibroid inside > the wall is about 5cm (8

>week pg) maybe that is why he > suggested the abdominal myomectomy. Is that

>too large > to removed by hysterscopic myomectomy? From what I've > been

>told the size and the attachment of the fibroid > is the most important in

>determining whether > hysterscopic can be performed. Submucous- are >

>associated with heavy and prolonged periods and > severe cramps and also

>cause recurrent pg loss and > infertility. I believe the size and location

>of the > largest fibroid that I have is the reason he > suggested

>abdominal, however, he said that there are > many other options if I wasn't

>trying to conceive. > Since he is a MINIMAllY INVASIVE Surgeon, I'll ask

>him > about the hysterscopic resection and if that is a > possible option

>for me. I know that he has removed 60 > fibriods by abdominal myomectomy

>from one lady who was > also trying to get pg and after the surgery she was

> > able to conceive..So, that gives me a little hope in > the pg

>department, But, you are exactly right, if I > don't have to be cut open

>and there is an easier > route, than why not. He also is an excellent micro

> > surgeon who has reconstructed fallopian tubes on > ladies who were also

>trying to conceive and they were > successful in conceiving after their

>surgery. Even > though I've heard that he is excellent I do have a 2nd >

>and 3rd opinion scheduled, just want to make sure we > are all on the same

>page, so, I will certainly be > asking if the hysterscopic myomectomy is

>for me. Ok, I > just read your email again, you said that your > fibroid

>was 5 cm that's how big mine is! Mine is > submucosal and is deep inside

>the uterus and causes > the heavy bleeding and infertility because it is >

>pressing into the endo lining. Not intramural (as > someone else suggested)

>but submucous deep in the > uterus and pressing into the endo lining. Is

>this the > same type that you had? My Gyn also stated that my > uterus was

>the size of a 2 to 3 month pg due to the > larger fibroid. You have been

>very helpful! Thanks > for the insight and please get back to me. Where do

> > you live? Are you and your Doc close to Texas by any > chance? Take care

>and thanks again. SKY > --- Reeves wrote: > > Sky - > >

>

>

>_________________________________________________ FindLaw - Free Case Law,

>Jobs, Library, Community http://www.FindLaw.com Get your FREE @JUSTICE.COM

>email! http://mail.Justice.com

>

>

>

[Guest guest]

,

I know that my Fibroid is submucous-this is what my

Doc has diagnosed. Also a submucous fibroid can still

be located deep inside the uterus, my fibroid is not

deep in the muscle (intramural). There is a more clear

picture in Uterine Fibroids by, Stringer pg. 19

under Submucosal Fibroids. Submucous fibroids can

still be deep within the uterus and removal makes it

hard because their depth and location that is why my

Doc suggested the abdominal myomectomy and aslo told

me that if I were to get pg. do to the location and

depth (and abdominal myomectomy) a C-section would

have to be my route for delivery. Fibroids do come in

all shapes sizes locations ect., And you are right

they don't necessarily follow the rules! Would be much

easier if they were text book! LOL And if there is

several different types of Fibroids (don't have any in

the cavity hanging freely as the hysteroscopy

confirmed) a myomectomy is normally suggested to

remove all types..submucous, intramural etc., and very

larg ones. Thanks, SKY

--- Reeves wrote:

> Sky -

>

> I think you may have fibroids that are not all in

> the same location. You may want to look at this

> site, it has a diagram that shows the difference in

> locations and names.

> http://www.scvir.org/fibroid/home.htm

>

> Submucosal fibroids are in the lining of the uterus,

> and protrude into the uterine cavity. They tend to

> cause lots of bleeding, even if they are as small as

> your pinky, because they are in the endometrium

> (which is what bleeds every month), rather than deep

> in the wall, of the uterus (which is just a big

> muscle).

>

> Unless they are too large, they can almost always be

> substantially removed by a hysteroscopic

> myomectomy/resection, because they grow in the

> endometrial lining which is accessible through the

> cervix. The one in the diagram backs into the wall

> of the uterus - and some of it might not be able to

> be removed hysteroscopically because it is not

> completely in the lining. Mine grew the other

> direction from the endometial lining - instead of

> backing into the uterine wall, it grew almost

> completely into the uterine cavity. It looked like

> a tennis ball stuck to the endometrial lining.

> Because of that it had yet another of the confusing

> names attached to it - pendunculated (means hanging

> on a stalk - although mine didn't literally hang on

> a stalk, its attachment location was less than half

> of its diameter).

>

> From your description of your 5 cm fibroid it sounds

> like a intramural fibroid (one which is deep in the

> wall of the uterus). If it is deep in the wall of

> the uterus, you probably will need an abdominal

> myomectomy to remove it, since it is not easily

> accessible in the endometrium.

>

> The names and locations of the fibroids gets pretty

> confusing - partly because the fibroids don't always

> follow the rules, and they can be partly submucosal

> and partly intramural, which yours may be. If it is

> a combination, it is almost certainly the intramural

> part that is the reason for your doctor's suggestion

> of an abdominal myomectomy.

>

> You might ask your doctor pin your doctor down on

> the location of each fibroid, and on which one (or

> ones) he thinks is causing all the problems with

> pregnancy. There is no rule that says you have to

> treat them all at one time. If he thinks that it is

> the one that is causing all the bleeding (which you

> said earlier was as small as your pinky), that one

> is probably submucosal and could likely be removed

> by hysteroscopic resection.

>

> Given the risks associated with most-myomectomy

> pregnancy and delivery, you might want to explore

> with your doctor whether it would be worthwhile to

> try to remove any submucosal fibroids

> hysteroscopically and try for a pregnancy before

> treating the others with more invasive surgery. On

> the other hand, if you treat only the submucosal it

> may turn out to be one of the others that is causing

> the problem - and you may still end up miscarrying.

> You'll have to balance risks vs. grief. In any

> event -it would probably be good idea to explore all

> the options. Good Luck!

>

> (My doctor is in Cleveland, by the way. A good hike

> from Texas.)

>

>

>

> >

> > Message: 12

> > Date: Thu, 12 Apr 2001 09:34:53 -0700 (PDT)

> >

> > Subject: Re: submucosal fibroids & hysteroscopic

> removal

> >

> > ,

> > Unfortunately that small fibroid is not the only

> one

> > that I have, I do have three and they are larger.

> My

> > Doc specializes in Fertility, Reproductive

> Medicine &

> > Surgery " MINIMALLY INVASIVE " Endoscopic Surgery &

> > Laser/Microsurgery. I have recently found out that

> he

> > is one of the best here in Dallas for Fertility

> and

> > Microsurgery. I did have the hysteroscopy done,

> > however I did not watch the procedure, the tech

> > positioned the machine right beside me (as in

> > horizontal) and I didn't think to ask to watch

> until

> > after we started. I know the Hystroscopy alone

> cannot

> > be used to remove submucous fibroid (deep in the

> > uterine wall) I know that he said one fibroid

> inside

> > the wall is about 5cm (8 week pg) maybe that is

> why he

> > suggested the abdominal myomectomy. Is that too

> large

> > to removed by hysterscopic myomectomy? From what

> I've

> > been told the size and the attachment of the

> fibroid

> > is the most important in determining whether

> > hysterscopic can be performed. Submucous- are

> > associated with heavy and prolonged periods and

> > severe cramps and also cause recurrent pg loss and

> > infertility. I believe the size and location of

> the

> > largest fibroid that I have is the reason he

> > suggested abdominal, however, he said that there

> are

> > many other options if I wasn't trying to conceive.

> > Since he is a MINIMAllY INVASIVE Surgeon, I'll ask

> him

> > about the hysterscopic resection and if that is a

> > possible option for me. I know that he has removed

> 60

> > fibriods by abdominal myomectomy from one lady who

> was

> > also trying to get pg and after the surgery she

> was

> > able to conceive..So, that gives me a little hope

> in

> > the pg department, But, you are exactly right, if

> I

> > don't have to be cut open and there is an easier

> > route, than why not. He also is an excellent micro

> > surgeon who has reconstructed fallopian tubes on

> > ladies who were also trying to conceive and they

> were

> > successful in conceiving after their surgery. Even

> > though I've heard that he is excellent I do have a

> 2nd

> > and 3rd opinion scheduled, just want to make sure

> we

> > are all on the same page, so, I will certainly be

> > asking if the hysterscopic myomectomy is for me.

> Ok, I

> > just read your email again, you said that your

> > fibroid was 5 cm that's how big mine is! Mine is

> > submucosal and is deep inside the uterus and

> causes

> > the heavy bleeding and infertility because it is

> > pressing into the endo lining. Not intramural (as

> > someone else suggested) but submucous deep in the

> > uterus and pressing into the endo lining. Is this

> the

> > same type that you had? My Gyn also stated that my

> > uterus was the size of a 2 to 3 month pg due to

> the

> > larger fibroid. You have been very helpful!

> Thanks

> > for the insight and please get back to me. Where

> do

> > you live? Are you and your Doc close to Texas by

> any

> > chance? Take care and thanks again. SKY

>

> > --- Reeves wrote:

> > > Sky -

> > >

>

>

> _________________________________________________

> FindLaw - Free Case Law, Jobs, Library, Community

> http://www.FindLaw.com

> Get your FREE @JUSTICE.COM email!

> http://mail.Justice.com

>

__________________________________________________

[Guest guest]

Sky, that was a great reply. I have a submucosal fibroid.

I have a submucosal fibroid that has to be removed via

myomectomy. It is located below the endometrium lining, but it's

protruding into my uterus, but it's in the wall. I haven't

experienced any heavy bleeding... I too, will have to have a c-

section, my RE said you don't want the uterus to rupture during

labor. I have six fibroids being removed.

Another book that shows the picture is

" A Gynecologist's Second Opinion " The Questions and Answers You Need

to Take Charge of Your Health. See page 21 for a good picture of the

types of fibroids and the differeny types of surgery for fibroids.

myo April 19th.

> > > > Sky -

> > > >

> >

> >

> > _________________________________________________

> > FindLaw - Free Case Law, Jobs, Library, Community

> > http://www.FindLaw.com

> > Get your FREE @JUSTICE.COM email!

> > http://mail.Justice.com

> >

>

>

> __________________________________________________

>

[Guest guest]

Sky, that was a great reply. I have a submucosal fibroid.

I have a submucosal fibroid that has to be removed via

myomectomy. It is located below the endometrium lining, but it's

protruding into my uterus, but it's in the wall. I haven't

experienced any heavy bleeding... I too, will have to have a c-

section, my RE said you don't want the uterus to rupture during

labor. I have six fibroids being removed.

Another book that shows the picture is

" A Gynecologist's Second Opinion " The Questions and Answers You Need

to Take Charge of Your Health. See page 21 for a good picture of the

types of fibroids and the differeny types of surgery for fibroids.

myo April 19th.

> > > > Sky -

> > > >

> >

> >

> > _________________________________________________

> > FindLaw - Free Case Law, Jobs, Library, Community

> > http://www.FindLaw.com

> > Get your FREE @JUSTICE.COM email!

> > http://mail.Justice.com

> >

>

>

> __________________________________________________

>

[Guest guest]

Sky, that was a great reply. I have a submucosal fibroid.

I have a submucosal fibroid that has to be removed via

myomectomy. It is located below the endometrium lining, but it's

protruding into my uterus, but it's in the wall. I haven't

experienced any heavy bleeding... I too, will have to have a c-

section, my RE said you don't want the uterus to rupture during

labor. I have six fibroids being removed.

Another book that shows the picture is

" A Gynecologist's Second Opinion " The Questions and Answers You Need

to Take Charge of Your Health. See page 21 for a good picture of the

types of fibroids and the differeny types of surgery for fibroids.

myo April 19th.

> > > > Sky -

> > > >

> >

> >

> > _________________________________________________

> > FindLaw - Free Case Law, Jobs, Library, Community

> > http://www.FindLaw.com

> > Get your FREE @JUSTICE.COM email!

> > http://mail.Justice.com

> >

>

>

> __________________________________________________

>

[Guest guest]

,

Thanks for the resource and good luck on the 19th, my

prayers are with you! SKY

--- abm31210@... wrote:

> Sky, that was a great reply. I have a submucosal

> fibroid.

>

> I have a submucosal fibroid that has to be

> removed via

> myomectomy. It is located below the endometrium

> lining, but it's

> protruding into my uterus, but it's in the wall. I

> haven't

> experienced any heavy bleeding... I too, will have

> to have a c-

> section, my RE said you don't want the uterus to

> rupture during

> labor. I have six fibroids being removed.

>

> Another book that shows the picture is

> " A Gynecologist's Second Opinion " The Questions and

> Answers You Need

> to Take Charge of Your Health. See page 21 for a

> good picture of the

> types of fibroids and the differeny types of surgery

> for fibroids.

>

>

> myo April 19th.

>

>

>

> > > Sky -

> > >

> > > I think you may have fibroids that are not all

> in

> > > the same location. You may want to look at this

> > > site, it has a diagram that shows the difference

> in

> > > locations and names.

> > > http://www.scvir.org/fibroid/home.htm

> > >

> > > Submucosal fibroids are in the lining of the

> uterus,

> > > and protrude into the uterine cavity. They tend

> to

> > > cause lots of bleeding, even if they are as

> small as

> > > your pinky, because they are in the endometrium

> > > (which is what bleeds every month), rather than

> deep

> > > in the wall, of the uterus (which is just a big

> > > muscle).

> > >

> > > Unless they are too large, they can almost

> always be

> > > substantially removed by a hysteroscopic

> > > myomectomy/resection, because they grow in the

> > > endometrial lining which is accessible through

> the

> > > cervix. The one in the diagram backs into the

> wall

> > > of the uterus - and some of it might not be able

> to

> > > be removed hysteroscopically because it is not

> > > completely in the lining. Mine grew the other

> > > direction from the endometial lining - instead

> of

> > > backing into the uterine wall, it grew almost

> > > completely into the uterine cavity. It looked

> like

> > > a tennis ball stuck to the endometrial lining.

> > > Because of that it had yet another of the

> confusing

> > > names attached to it - pendunculated (means

> hanging

> > > on a stalk - although mine didn't literally hang

> on

> > > a stalk, its attachment location was less than

> half

> > > of its diameter).

> > >

> > > From your description of your 5 cm fibroid it

> sounds

> > > like a intramural fibroid (one which is deep in

> the

> > > wall of the uterus). If it is deep in the wall

> of

> > > the uterus, you probably will need an abdominal

> > > myomectomy to remove it, since it is not easily

> > > accessible in the endometrium.

> > >

> > > The names and locations of the fibroids gets

> pretty

> > > confusing - partly because the fibroids don't

> always

> > > follow the rules, and they can be partly

> submucosal

> > > and partly intramural, which yours may be. If

> it is

> > > a combination, it is almost certainly the

> intramural

> > > part that is the reason for your doctor's

> suggestion

> > > of an abdominal myomectomy.

> > >

> > > You might ask your doctor pin your doctor down

> on

> > > the location of each fibroid, and on which one

> (or

> > > ones) he thinks is causing all the problems with

> > > pregnancy. There is no rule that says you have

> to

> > > treat them all at one time. If he thinks that

> it is

> > > the one that is causing all the bleeding (which

> you

> > > said earlier was as small as your pinky), that

> one

> > > is probably submucosal and could likely be

> removed

> > > by hysteroscopic resection.

> > >

> > > Given the risks associated with most-myomectomy

> > > pregnancy and delivery, you might want to

> explore

> > > with your doctor whether it would be worthwhile

> to

> > > try to remove any submucosal fibroids

> > > hysteroscopically and try for a pregnancy before

> > > treating the others with more invasive surgery.

> On

> > > the other hand, if you treat only the submucosal

> it

> > > may turn out to be one of the others that is

> causing

> > > the problem - and you may still end up

> miscarrying.

> > > You'll have to balance risks vs. grief. In any

> > > event -it would probably be good idea to explore

> all

> > > the options. Good Luck!

> > >

> > > (My doctor is in Cleveland, by the way. A good

> hike

> > > from Texas.)

> > >

> > >

> > >

> > > >

> > > > Message: 12

> > > > Date: Thu, 12 Apr 2001 09:34:53 -0700 (PDT)

> > > > From: sky <sky67us@y...>

> > > > Subject: Re: submucosal fibroids &

> hysteroscopic

> > > removal

> > > >

> > > > ,

> > > > Unfortunately that small fibroid is not the

> only

> > > one

> > > > that I have, I do have three and they are

> larger.

> > > My

> > > > Doc specializes in Fertility, Reproductive

> > > Medicine &

> > > > Surgery " MINIMALLY INVASIVE " Endoscopic

> Surgery &

> > > > Laser/Microsurgery. I have recently found out

> that

>

=== message truncated ===

__________________________________________________

[Guest guest]

-

Are you in Cleveland, Ohio? If so, what doctor do you go to?

Thanks -