Re: [mitochondrial] gastritis

June 3, 1999

Anne, I wonder if I could take that stuff he takes (is it palatable to be

drank?) and see if everything would clear for me like when I fast totally?

That would be a good test for me since I have tested sensitive or allergic

to every single item ever tested by any form of testing and a 3 day fast

" wakes me up " and clears my whole mind and body.

It's never been as good as when I almost died from the Mellaril and then

suddenly everything broke open (I still think an alternate pathway for the

lipoic acid broke thru as is documented in medical journal writings), but it

was 80% better than when I eat (which I have to do to stay alive, dangit).

What do you think? It may sound nuts, but desperation for a better life will

make you try anything, right? I've often wished I could just take some

simple food pill and never have to eat again to have any reactions to

anything.

S.

Re: Re: [mitochondrial] gastritis

>

>, I don't know. I think it could come from that in some people. In

>my boys it could not because they get their nutrition from either

>Intravenous TPN and Lipids, (75% of Zachary's calories and 100% of

>Sammy's). the other source for them is from a formula called neocate one

>plus which is totally hypoallergenic and amino acid based. It is for

>people who are allergic to basically everything and is completely broken

>down for them.

>

>I think you are right though that it could cause gastritis in people who do

>eat and have allergies.

>Anne

>

>----------

>>

>> Anne, Could this possibly be happening as a reaction to a gluten/wheat

>> sensitivity as isn't this what happens to the intestines of people with

>> celiac disease ( my daughter & I had intestinal biopsys to test for this

>one

>> time).? I don't know, just a thought that came to mind. Does the stomach

>> create extra acid trying to digest things that are hard for it to digest?

>> Maybe I'm all wet here.

>> S.

>>

>

>---------------------------

July 1, 1999

Anne, Could this possibly be happening as a reaction to a gluten/wheat

sensitivity as isn't this what happens to the intestines of people with

celiac disease ( my daughter & I had intestinal biopsys to test for this one

time).? I don't know, just a thought that came to mind. Does the stomach

create extra acid trying to digest things that are hard for it to digest?

Maybe I'm all wet here.

S.

Re: [mitochondrial] gastritis

>

>Yes, both and Zachary do. Zach is the worst. He is on zantac and

>prilosec and still the pH of his stomach secretions remains 1.

>(therapeutic success of these drugs is defined partly by a pH of at least 4

>, preferably 5). It seems that as we increase the meds he brings up the pH

>for about 1 day and then his body readjusts, secretes even more acid and we

>go back down to 1. To be honest we have given up unless a new drug comes

>out. (Actually one just did so we're hoping to try it).

>

>Zachary bleeds constantly because of the gastritis. Usually just clots and

>dried , old blood. But a few weeks out he ended up admitted and transfused

>for a very large deep ulcer and has not recovered fully from that. The

>learning experience with this was that we, (GI and surgeon and I) had

>actually stopped the prilosec, thinking it was a waste of health care

>dollars when it did not help. Obviously it helped in that it did not

>improve him but kept him from getting even worse. So he is back on it.

>

>Also we use carafate and calcium carbonate to coat his stomach.

>

>Anne

>----------

>>

>> Anne, Niki, anyone,

>>

>> Do your fellas have a gastritis diagnosis?

>>

>> Cheri, mom to five, 7-17

>>

>> ---------------------------

August 30, 1999

Yes, both and Zachary do. Zach is the worst. He is on zantac and

prilosec and still the pH of his stomach secretions remains 1.

(therapeutic success of these drugs is defined partly by a pH of at least 4

, preferably 5). It seems that as we increase the meds he brings up the pH

for about 1 day and then his body readjusts, secretes even more acid and we

go back down to 1. To be honest we have given up unless a new drug comes

out. (Actually one just did so we're hoping to try it).

Zachary bleeds constantly because of the gastritis. Usually just clots and

dried , old blood. But a few weeks out he ended up admitted and transfused

for a very large deep ulcer and has not recovered fully from that. The

learning experience with this was that we, (GI and surgeon and I) had

actually stopped the prilosec, thinking it was a waste of health care

dollars when it did not help. Obviously it helped in that it did not

improve him but kept him from getting even worse. So he is back on it.

Also we use carafate and calcium carbonate to coat his stomach.

Anne

----------

>

> Anne, Niki, anyone,

>

> Do your fellas have a gastritis diagnosis?

>

> Cheri, mom to five, 7-17

>

> ---------------------------

August 30, 1999