Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 Asacol is one of those drugs that is really quite safe and very few side effects, if any. My 15 year old son has both UC and PSC and has been on asacol for about 2 years. I cannot remember what dose he started on but his UC was very difficult to control. He now (and has for more than a year) takes 11 pills a day (4 in the morning, 3 in the afternoon, and 4 at night) which is 4400 mg a day. Good luck. Ask any questions you have. Sue (Mom of Phililp, age 15) Diag UC+ PSC 3/00, Pennsylvania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 Asacol is one of those drugs that is really quite safe and very few side effects, if any. My 15 year old son has both UC and PSC and has been on asacol for about 2 years. I cannot remember what dose he started on but his UC was very difficult to control. He now (and has for more than a year) takes 11 pills a day (4 in the morning, 3 in the afternoon, and 4 at night) which is 4400 mg a day. Good luck. Ask any questions you have. Sue (Mom of Phililp, age 15) Diag UC+ PSC 3/00, Pennsylvania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 Kat, Phil has had colitis since he was your age or maybe even younger. Keep watching your diet because that can play a part. Phil takes azulfadine which has sulfa in it. He didn't find the Asacol to be quite as effective. As far as I know the only down side he had was that he wasn't able to get his wife pregnant while he was taking it. Apparantly his little guys weren't as mottel (sp). Don't know if that happens if the woman is taking it. He had a lull at one point and was able to get off it and vowala his son. Did they say your colitis was ulcerative? If you get on medication it may keep it from getting to that point and I would imagine that you would be able just to be on a light dose if you aren't having symptoms. I bet you are getting excited about graduation. It's getting close. Sorry that you will be moving away but it was really nice meeting you the other day. Peg __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 Kat, Phil has had colitis since he was your age or maybe even younger. Keep watching your diet because that can play a part. Phil takes azulfadine which has sulfa in it. He didn't find the Asacol to be quite as effective. As far as I know the only down side he had was that he wasn't able to get his wife pregnant while he was taking it. Apparantly his little guys weren't as mottel (sp). Don't know if that happens if the woman is taking it. He had a lull at one point and was able to get off it and vowala his son. Did they say your colitis was ulcerative? If you get on medication it may keep it from getting to that point and I would imagine that you would be able just to be on a light dose if you aren't having symptoms. I bet you are getting excited about graduation. It's getting close. Sorry that you will be moving away but it was really nice meeting you the other day. Peg __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 , You have the same name as my wife. I am also a fairly new meber to this group in fact this is my first post. I was diagnosed with UC at about the same age you are now (I am now 31) and diagnosed with PSC last Summer. I would say my symptoms of Ulcerative Colitis are on the more mild side. After first being diagnosed 10 years ago I took Prednisone and Sulfasalazine (Sp?). The side effects of these medications were pretty strong with weight gain and anxiety from the prednisone and a very severe heartburn from the Sulfa. Fortunately then as I did now I responded quickly and positively to the medications and my symptoms cleared up in 3 months. I then went 10 years with no major problems except an occasional minor flare up that did not require medical intervention. This last episode during the summer I again responded quickly to the medication. Due to my past history I made the personal choice to not take prednisone and my Doctor supported my decision. Using just the Asacol my symptoms again cleared up starting at about 60 days. I understand many people with Ulcerative Colitis are not as lucky as I am and battle with chronic and frequently recurring symptoms. Hopefully your history will be similar to what I have experienced in living with Colitis. As far as the Asacol goes I have had no problems with this medication. I originally started on a dose of about 2700mg/day which is 3 pills 3 times/day. I am now on a maintenance does of 1800 mg which I am taking as 3 pills twice per day. My GI doctor when first prescribing this medecine said it was a good med with little side effects. Because of this they are able to keep many people on the medication for a long period of time to help prevent recurrance of Colitis. I can say I have had no noticable side effects on this medication which has been much better than the medication I was given 10 years ago. I hope this helps. This is just my personal experience and of course others may have had different experience. Let me know how the medication goes for you. G Bothell, WA DX UC 1991 DX PSC 2001 > Hello to all. I was recently diagnosed with colitis, based on > biopsies taken during a colonscopy. I have no symptoms at this point, > and am very unfamiliar with the disease and with the medications used > to treat it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 , You have the same name as my wife. I am also a fairly new meber to this group in fact this is my first post. I was diagnosed with UC at about the same age you are now (I am now 31) and diagnosed with PSC last Summer. I would say my symptoms of Ulcerative Colitis are on the more mild side. After first being diagnosed 10 years ago I took Prednisone and Sulfasalazine (Sp?). The side effects of these medications were pretty strong with weight gain and anxiety from the prednisone and a very severe heartburn from the Sulfa. Fortunately then as I did now I responded quickly and positively to the medications and my symptoms cleared up in 3 months. I then went 10 years with no major problems except an occasional minor flare up that did not require medical intervention. This last episode during the summer I again responded quickly to the medication. Due to my past history I made the personal choice to not take prednisone and my Doctor supported my decision. Using just the Asacol my symptoms again cleared up starting at about 60 days. I understand many people with Ulcerative Colitis are not as lucky as I am and battle with chronic and frequently recurring symptoms. Hopefully your history will be similar to what I have experienced in living with Colitis. As far as the Asacol goes I have had no problems with this medication. I originally started on a dose of about 2700mg/day which is 3 pills 3 times/day. I am now on a maintenance does of 1800 mg which I am taking as 3 pills twice per day. My GI doctor when first prescribing this medecine said it was a good med with little side effects. Because of this they are able to keep many people on the medication for a long period of time to help prevent recurrance of Colitis. I can say I have had no noticable side effects on this medication which has been much better than the medication I was given 10 years ago. I hope this helps. This is just my personal experience and of course others may have had different experience. Let me know how the medication goes for you. G Bothell, WA DX UC 1991 DX PSC 2001 > Hello to all. I was recently diagnosed with colitis, based on > biopsies taken during a colonscopy. I have no symptoms at this point, > and am very unfamiliar with the disease and with the medications used > to treat it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 , You have the same name as my wife. I am also a fairly new meber to this group in fact this is my first post. I was diagnosed with UC at about the same age you are now (I am now 31) and diagnosed with PSC last Summer. I would say my symptoms of Ulcerative Colitis are on the more mild side. After first being diagnosed 10 years ago I took Prednisone and Sulfasalazine (Sp?). The side effects of these medications were pretty strong with weight gain and anxiety from the prednisone and a very severe heartburn from the Sulfa. Fortunately then as I did now I responded quickly and positively to the medications and my symptoms cleared up in 3 months. I then went 10 years with no major problems except an occasional minor flare up that did not require medical intervention. This last episode during the summer I again responded quickly to the medication. Due to my past history I made the personal choice to not take prednisone and my Doctor supported my decision. Using just the Asacol my symptoms again cleared up starting at about 60 days. I understand many people with Ulcerative Colitis are not as lucky as I am and battle with chronic and frequently recurring symptoms. Hopefully your history will be similar to what I have experienced in living with Colitis. As far as the Asacol goes I have had no problems with this medication. I originally started on a dose of about 2700mg/day which is 3 pills 3 times/day. I am now on a maintenance does of 1800 mg which I am taking as 3 pills twice per day. My GI doctor when first prescribing this medecine said it was a good med with little side effects. Because of this they are able to keep many people on the medication for a long period of time to help prevent recurrance of Colitis. I can say I have had no noticable side effects on this medication which has been much better than the medication I was given 10 years ago. I hope this helps. This is just my personal experience and of course others may have had different experience. Let me know how the medication goes for you. G Bothell, WA DX UC 1991 DX PSC 2001 > Hello to all. I was recently diagnosed with colitis, based on > biopsies taken during a colonscopy. I have no symptoms at this point, > and am very unfamiliar with the disease and with the medications used > to treat it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi Kat, my husband Gene D. started on asacol in July of 2001 (1200 mg 2x day) and he has not been better! He has been very pleased with the way his "tummy etc." has been feeling. He has had UC since 1990 and only had been on prednisone with the initial bout. He has had no side effects(other than getting up to eat cookies and milk @ midnight) oh, wait,he did that before the medication too!! We did not even know there was such a med. he could be on to help control it( due to poor Dr. info and Dx). We thought prednisone was the only choice. A friend he works with also has UC quite seriously and asacol did nothing for him! So I guess it is a case by case basis. His friend follows a strict low sugar/carb /wheat diet and has had luck with that I am not sure what it is based o but I could find out if you need it. There are 3 project managers out of 10 in his consruction company that have UC! I think the stress of there job has some effect on them! Take care- Elesa Doll (Port.,Or) Wife of Gene UC-90 PSC-01 katherine_enns wrote: Hello to all. I was recently diagnosed with colitis, based on biopsies taken during a colonscopy. I have no symptoms at this point, and am very unfamiliar with the disease and with the medications used to treat it. My HEP has decided to prescribe Asacol ... I assume there are members of the group whom have taken this. I am anxious to hear from you what a typical dose is, and what can be expected when taking this medication (i.e., are there side effects, etc.). It is one thing to read the standard information that comes with the pills, and it's another thing to hear it first-hand from people who have taken it; I prefer a combination of both. Look forward to hearing from you. - Kat (21 yrs. old, PSC Oct. 2001, UC Feb. 2002) http://www.geocities.com/katherine_enns Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi Kat, my husband Gene D. started on asacol in July of 2001 (1200 mg 2x day) and he has not been better! He has been very pleased with the way his "tummy etc." has been feeling. He has had UC since 1990 and only had been on prednisone with the initial bout. He has had no side effects(other than getting up to eat cookies and milk @ midnight) oh, wait,he did that before the medication too!! We did not even know there was such a med. he could be on to help control it( due to poor Dr. info and Dx). We thought prednisone was the only choice. A friend he works with also has UC quite seriously and asacol did nothing for him! So I guess it is a case by case basis. His friend follows a strict low sugar/carb /wheat diet and has had luck with that I am not sure what it is based o but I could find out if you need it. There are 3 project managers out of 10 in his consruction company that have UC! I think the stress of there job has some effect on them! Take care- Elesa Doll (Port.,Or) Wife of Gene UC-90 PSC-01 katherine_enns wrote: Hello to all. I was recently diagnosed with colitis, based on biopsies taken during a colonscopy. I have no symptoms at this point, and am very unfamiliar with the disease and with the medications used to treat it. My HEP has decided to prescribe Asacol ... I assume there are members of the group whom have taken this. I am anxious to hear from you what a typical dose is, and what can be expected when taking this medication (i.e., are there side effects, etc.). It is one thing to read the standard information that comes with the pills, and it's another thing to hear it first-hand from people who have taken it; I prefer a combination of both. Look forward to hearing from you. - Kat (21 yrs. old, PSC Oct. 2001, UC Feb. 2002) http://www.geocities.com/katherine_enns Quote Link to comment Share on other sites More sharing options...
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