Zach's update... biospy results are in...

[Guest guest]

Hi Gang(s),

Just a quick note to share that Zach's biopsy info is in ... I got a bit of

information over the phone on Friday night (don't 'cha love the " real "

doctors that will CALL you as soon as they get the info?? .. tommorrow I'm

to have both the boys at the neuro's office to discuss the " info " from the

past 3 months testings (blood work, biopsy, clinical evals, etc) so hopefully

I'll have even more information tommorrow!!!

But from the phone call on Friday I " heard " (hopefully I processed it

correctly!!!!) that the morphology on Zach's muscle was normal, that the

pathologist didn't confirm NOR rule out mitochondria diseases but that there

weren't any " ragged fibers " or something else (didn't catch the

pronunciation). That there were enzyme tests done and that info would have to

be explained by the othere doctor tommorrow. The MDD that called Friday (My

knight in flying lab coat) that is the one that got all this stuff " done "

(including fighting the ins. co with our PCP) said that this was his " first "

biopsy and that he was learning right along with us ... ya know I truely

don't mind that at all!!! Rather have one that is interested in " learning "

than the " Oh trust me ... " types but that's neither here nor there <wink>.

The MDD said that he was sorry he didn't call me right away but took that

extra week to " learn " enough to share with me the little that he could ... on

Friday he said he'd get an appt for us to meet with the other doctor that

would be able to go into specific details .. I totally expected to have to go

get the lab/pathology info then research it myself while waiting for an appt

for the other doctor thinking it would be weeks but this morning at 9:30 am

that office called to schedule an appt for Tommrrow at 8:15am.

I would of posted about this info on Friday but my out-laws got here and this

is the first chance I've had to be online to sit down and try to " type " it

all out. Thanks for all the encouragement and comforting ... it's been so

much easier knowing that we aren't the only ones out " here " on earth that are

going thru such rollercoaster riding emotions/events ... Hugs from all the

" elves " here in TN... Romona and crew

http://members.aol.com/elf808

[Guest guest]

>

>I would of posted about this info on Friday but my out-laws got here

Ramona,

I thank you for my laugh of the week!! I thought my father was the only one

to call his in-laws, " out-laws " !!!!

Cheri