Guest guest Posted September 14, 1999 Report Share Posted September 14, 1999 In a message dated 99-09-14 21:24:42 EDT, you write: << Anyone else have a child with an abnormal eeg? Will her eeg always be abnormal - even on seizure meds? >> Amy; When Orion was in St. Chris', he had hourly EEGs for several days. None of these were normal. Even after he had seemingly stabilized, and was on phenobarb, the EEGs continued to be abnormal, although he had no APPARENT seizures. In fact, all of the EEGs he had showed abnormal brain activity, even when he " seemed " fine... Orion's Mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 1999 Report Share Posted September 14, 1999 In a message dated 99-09-14 21:24:42 EDT, you write: << Anyone else have a child with an abnormal eeg? Will her eeg always be abnormal - even on seizure meds? >> Amy; When Orion was in St. Chris', he had hourly EEGs for several days. None of these were normal. Even after he had seemingly stabilized, and was on phenobarb, the EEGs continued to be abnormal, although he had no APPARENT seizures. In fact, all of the EEGs he had showed abnormal brain activity, even when he " seemed " fine... Orion's Mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 1999 Report Share Posted September 14, 1999 In a message dated 99-09-14 21:24:42 EDT, you write: << Anyone else have a child with an abnormal eeg? Will her eeg always be abnormal - even on seizure meds? >> Amy; When Orion was in St. Chris', he had hourly EEGs for several days. None of these were normal. Even after he had seemingly stabilized, and was on phenobarb, the EEGs continued to be abnormal, although he had no APPARENT seizures. In fact, all of the EEGs he had showed abnormal brain activity, even when he " seemed " fine... Orion's Mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 1999 Report Share Posted September 15, 1999 >Anyone else have a child with an abnormal eeg? Amy, I and my son have abnormal EEG's. Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 1999 Report Share Posted September 15, 1999 Amy, Aren't hosptial visits GRAND?!?! Sorry to hear about your brain-fade state of mind, but I wanted to respond to at least a coulple of questions. Lexi was also on seizure meds, but she wasn't able to absorb them very well so her doctor took her off of them. Her seizures are also the kind where sometimes you can see a change in behavior and sometimes you can't. The doc's said that her seizures were happening so deep within her brain that they weren't readily detectable on EEG. So I do know that it's possible to have seizures that don't show up, and it's possible to have abnormal EEG's even when you are on meds. Hope this helps a little..sorry I don't have more for you. ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 1999 Report Share Posted September 16, 1999 In a message dated 9/14/99 9:24:28 PM Eastern Daylight Time, KRYPTON1@... writes: << I also made an appointment with Dr. Kaye in Phila. Oct. 27th. >> Dr. Kaye is Clayton's neuro and he is wonderful. We followed him to CHOP from St. s (and I am not a big fan of CHOP - except there ENT dept). BUT we saw him there a couple of weeks ago and he is great. He is very kind and caring and will spend as much time as necessary with you. Love, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 1999 Report Share Posted September 18, 1999 > Does anyone know or have a case history (good news) were a child could > develop after seizures were under control? > Anyone else have a child with an abnormal eeg? > Will her eeg always be abnormal - even on seizure meds? My 7 yr. old, Zachary, has seizures. he has been in tegretol since he was about 2 years old. For the most part we have been lucky to have had the seizures well controlled. When he has had break through ones, they have either been associated with an illness or not enough meds. Usually an increase in the meds brings them back under control. At any rate, his development has been somewhat slow but he has progressed steadily through the years. Zachary walked about age 22 months, talked at age 2.5, is cognitively age appropriate, can hold a pencil and write for short periods of time, and although a few years delayed in gross motor skills he can do the essentials, (walk, run?) His original EEGs were actually normal. Our neurologist says that some of the patients he has with the worst epilepsy have absolutely normal EEG's. Conversely he has some kids doing very well and their EEG's are awful and say they shouldn't be. I think like anything it is just a test and has to be taken in conjunction with the clinical picture. Zachary's most recent EEG was abnormal in that it showed excessive slowing. however, it still did not show epilepsy, despite following a period of many seizures while an in patient and therefore witnessed by medical professionals who felt there was no doubt we were watching seizures. Hope this helps Anne, mom to: Brittany, 12 Zachary, 7, G tube, J tube, CVL for TPN/lipids, adrenal insufficient Abby, 6 , , 28 months, G tube, J tube, CVL for TPN/lipids, GH deficient Mitochondrial encephalomyopathy - complex 1 & 4 OxPhos defect Quote Link to comment Share on other sites More sharing options...
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