Re: Thanks and Question about Reaction to GF Pretzels

[Guest guest]

Hi,

Keep an eye out for reaction to yeast-containing foods, too.

HTH,

> The ingredients in the pretzels were: corn starch, palm oil, soya

> flour, sugar, salt, leavening agents (ammonium bicarbonate, sodium

> carbonate), rapeseed lethicin, carboxymethyl cellulose, and

yeast. I

> guess the two biggest suspects would be the corn and soy

products?

> *Sigh* Here we go again. Poor little gal!

[Guest guest]

Hi,

Keep an eye out for reaction to yeast-containing foods, too.

HTH,

> The ingredients in the pretzels were: corn starch, palm oil, soya

> flour, sugar, salt, leavening agents (ammonium bicarbonate, sodium

> carbonate), rapeseed lethicin, carboxymethyl cellulose, and

yeast. I

> guess the two biggest suspects would be the corn and soy

products?

> *Sigh* Here we go again. Poor little gal!

[Guest guest]

Hi,

Keep an eye out for reaction to yeast-containing foods, too.

HTH,

> The ingredients in the pretzels were: corn starch, palm oil, soya

> flour, sugar, salt, leavening agents (ammonium bicarbonate, sodium

> carbonate), rapeseed lethicin, carboxymethyl cellulose, and

yeast. I

> guess the two biggest suspects would be the corn and soy

products?

> *Sigh* Here we go again. Poor little gal!

[Guest guest]

My celiac son, age 4, has horrible, intense reactions to soy protein.

He gets cramping and gas and diarrhea and his pain is so bad we've had

to sedate him on several occasions to get him through the night after

an accidental soy protein ingestion. For unknown reasons the reaction

usually starts in middle of the night and lasts until midday the next day.

I've read that intolerance to soy protein will often accompany celiac.

Maureen

> Hi everyone. First of all, thanks for your kind words about my rant

> last night (about the possibility of putting my daughter back on

> gluten for testing). I am so frustrated and it really helps to have

> people who " get it " . I truly do appreciate it.

>

> Secondly, we had a HORRIBLE HORRIBLE night last night. Almost as bad

> as when she has wheat. I've been keeping a very careful food diary,

> as was suggested to me by some of the people here, and that has just

> been fantastically helpful. The only new thing she had yesterday

> were some gluten free pretzels Now I feel terrible, because I guess

> I kind of figured if it was gluten free it would probably be " safe " ,

> but apparently something else sets her off too.

>

> The ingredients in the pretzels were: corn starch, palm oil, soya

> flour, sugar, salt, leavening agents (ammonium bicarbonate, sodium

> carbonate), rapeseed lethicin, carboxymethyl cellulose, and yeast. I

> guess the two biggest suspects would be the corn and soy products?

> *Sigh* Here we go again. Poor little gal!

[Guest guest]

My celiac son, age 4, has horrible, intense reactions to soy protein.

He gets cramping and gas and diarrhea and his pain is so bad we've had

to sedate him on several occasions to get him through the night after

an accidental soy protein ingestion. For unknown reasons the reaction

usually starts in middle of the night and lasts until midday the next day.

I've read that intolerance to soy protein will often accompany celiac.

Maureen

> Hi everyone. First of all, thanks for your kind words about my rant

> last night (about the possibility of putting my daughter back on

> gluten for testing). I am so frustrated and it really helps to have

> people who " get it " . I truly do appreciate it.

>

> Secondly, we had a HORRIBLE HORRIBLE night last night. Almost as bad

> as when she has wheat. I've been keeping a very careful food diary,

> as was suggested to me by some of the people here, and that has just

> been fantastically helpful. The only new thing she had yesterday

> were some gluten free pretzels Now I feel terrible, because I guess

> I kind of figured if it was gluten free it would probably be " safe " ,

> but apparently something else sets her off too.

>

> The ingredients in the pretzels were: corn starch, palm oil, soya

> flour, sugar, salt, leavening agents (ammonium bicarbonate, sodium

> carbonate), rapeseed lethicin, carboxymethyl cellulose, and yeast. I

> guess the two biggest suspects would be the corn and soy products?

> *Sigh* Here we go again. Poor little gal!

[Guest guest]

No kidding? Wow. I'm definitely going to keep an eye on that,

because she's certainly had corn syrup sweetener and that has not

bothered her, so I suspect that would direct the suspicion to the soy

or, as someone else suggested, yeast. Your poor little guy! What

did you have to use to sedate him? Did you just use something like

Benadryl or did a doctor give you something stronger?

All I can say is I am so grateful for the knowledge in this group and

for the fact that, regardless of the actual diagnosis, we were able

to get a handle on this early. I have to admit, I used to be a

skeptic on the topic, but having seen my daughter's reactions to

certain foods now, I can totally see how kids could end up showing

autistic-like or other severe symptoms as a result of food allergies

if they went undetected for a long time. I really can! (*eats crow*)

Thanks again! Hopefully as I learn more about this, I'll be able to

help out someone new and return the tremendous help you folks are

giving to me right now.

> My celiac son, age 4, has horrible, intense reactions to soy

protein.

> He gets cramping and gas and diarrhea and his pain is so bad we've

had

> to sedate him on several occasions to get him through the night

after

> an accidental soy protein ingestion. For unknown reasons the

reaction

> usually starts in middle of the night and lasts until midday the

next day.

>

> I've read that intolerance to soy protein will often accompany

celiac.

>

> Maureen

[Guest guest]

No kidding? Wow. I'm definitely going to keep an eye on that,

because she's certainly had corn syrup sweetener and that has not

bothered her, so I suspect that would direct the suspicion to the soy

or, as someone else suggested, yeast. Your poor little guy! What

did you have to use to sedate him? Did you just use something like

Benadryl or did a doctor give you something stronger?

All I can say is I am so grateful for the knowledge in this group and

for the fact that, regardless of the actual diagnosis, we were able

to get a handle on this early. I have to admit, I used to be a

skeptic on the topic, but having seen my daughter's reactions to

certain foods now, I can totally see how kids could end up showing

autistic-like or other severe symptoms as a result of food allergies

if they went undetected for a long time. I really can! (*eats crow*)

Thanks again! Hopefully as I learn more about this, I'll be able to

help out someone new and return the tremendous help you folks are

giving to me right now.

> My celiac son, age 4, has horrible, intense reactions to soy

protein.

> He gets cramping and gas and diarrhea and his pain is so bad we've

had

> to sedate him on several occasions to get him through the night

after

> an accidental soy protein ingestion. For unknown reasons the

reaction

> usually starts in middle of the night and lasts until midday the

next day.

>

> I've read that intolerance to soy protein will often accompany

celiac.

>

> Maureen

[Guest guest]

The doctor gave us codeine syrup to give him for soy ingestions. When

he was 18 months old, we took him off dairy products completely to see

if milk protein was causing his gut problems (we already knew he was

lactose intolerant) and put him on soy formula and soy foods. The food

trial was supposed to last a week - he dropped 3 pounds (24 to 21) in

3 days and was in constant agony. NO MORE SOY AT MY HOUSE! It took

about 2 months to get that 3 pounds back on him.

That was the first time I heard about celiac. My son had tons of blood

work, and I thought the celiac tests were done. Turns out they

weren't, everything else was negative, and it only took about another

nearly 3 years to get the right diagnosis!

Maureen

> > My celiac son, age 4, has horrible, intense reactions to soy

> protein.

> > He gets cramping and gas and diarrhea and his pain is so bad we've

> had

> > to sedate him on several occasions to get him through the night

> after

> > an accidental soy protein ingestion. For unknown reasons the

> reaction

> > usually starts in middle of the night and lasts until midday the

> next day.

> >

> > I've read that intolerance to soy protein will often accompany

> celiac.

> >

> > Maureen

[Guest guest]

The doctor gave us codeine syrup to give him for soy ingestions. When

he was 18 months old, we took him off dairy products completely to see

if milk protein was causing his gut problems (we already knew he was

lactose intolerant) and put him on soy formula and soy foods. The food

trial was supposed to last a week - he dropped 3 pounds (24 to 21) in

3 days and was in constant agony. NO MORE SOY AT MY HOUSE! It took

about 2 months to get that 3 pounds back on him.

That was the first time I heard about celiac. My son had tons of blood

work, and I thought the celiac tests were done. Turns out they

weren't, everything else was negative, and it only took about another

nearly 3 years to get the right diagnosis!

Maureen

> > My celiac son, age 4, has horrible, intense reactions to soy

> protein.

> > He gets cramping and gas and diarrhea and his pain is so bad we've

> had

> > to sedate him on several occasions to get him through the night

> after

> > an accidental soy protein ingestion. For unknown reasons the

> reaction

> > usually starts in middle of the night and lasts until midday the

> next day.

> >

> > I've read that intolerance to soy protein will often accompany

> celiac.

> >

> > Maureen

[Guest guest]

The doctor gave us codeine syrup to give him for soy ingestions. When

he was 18 months old, we took him off dairy products completely to see

if milk protein was causing his gut problems (we already knew he was

lactose intolerant) and put him on soy formula and soy foods. The food

trial was supposed to last a week - he dropped 3 pounds (24 to 21) in

3 days and was in constant agony. NO MORE SOY AT MY HOUSE! It took

about 2 months to get that 3 pounds back on him.

That was the first time I heard about celiac. My son had tons of blood

work, and I thought the celiac tests were done. Turns out they

weren't, everything else was negative, and it only took about another

nearly 3 years to get the right diagnosis!

Maureen

> > My celiac son, age 4, has horrible, intense reactions to soy

> protein.

> > He gets cramping and gas and diarrhea and his pain is so bad we've

> had

> > to sedate him on several occasions to get him through the night

> after

> > an accidental soy protein ingestion. For unknown reasons the

> reaction

> > usually starts in middle of the night and lasts until midday the

> next day.

> >

> > I've read that intolerance to soy protein will often accompany

> celiac.

> >

> > Maureen