Re: violent aggressive temper

[Guest guest]

Gail, did you get my message about the inborn errors of metabolism article?

Also, I just wrote to Dr. Goldberg someone suggested for help too. I'm going

to try and forward you his " stuff " when I get home-I've got to run. S.

Re: violent aggressive temper

>

>

> -

>

>Grant used to be the sweetest, kindest child that existed until all the

>happened. His behavior over the last two years has changed dramatically

>for the worst. I, however, am attributing it to the seizure activity and

>specifically the seizures meds. It was at the worst when he was on the

>following meds : Mysoline, Topamax and Dilantin. He also became ADD-like

>while on Nitrazepam (and Tranxene and Klonopin for that matter). Maybe

>with an underlying mito disorder these meds are really too much for

>their body-chemistry to take. I think that the fewer the meds, the

>better... I just want to try and figure out what he is lacking and see

>if we can alter that vs. trying to deal with the symptoms.

>Unfortunately, this doesn't seem to be happening - I can't find anyone

>knowledgable enough to help me. Anyway, the behavior is often the worst

>part of the situation... Gail

>

>> wrote:

>>

>>

>>

>> Does anyone know if a violent aggressive temper is part of mito

>> disorders? The ADHD/mild autistic type behavior, the suicidal

>> depression, and this temper seem to all be related and coming from my

>> father's side. Each generation the severity of the symptoms drops into

>> a lower age group.

>> It is so diffucult to diagnose Tylynn as so many of his symptoms could

>> be caused by head injury, oxygen deprivation at birth, and abuse as

>> well as some genetic thing. His frustration has gotten so severe that

>> it is triggering this temper so often, so fast, and so severe I am

>> really afraid someone will get hurt.

>> I talked to Dr. Steiner's office at OHSU metabolic unit and we agreed

>> not to put him on any medicine until they see him so as not to mess up

>> any tests. That should be in 2-3 weeks.

>> Has anyone else had this sort of a problem? If not, I would feel I

>> could be pretty sure this is from the other injuries, although this is

>> why there have been several people in my extended family commit murder

>> (this horrible hairtrigger violent temper). This is a horrible thing

>> to have to say about my own family, but the truth. I don't want it to

>> happen to anyone else. We are going for help. Actually, we've been

>> trying to get help & figure all this out since 1974. I'm tired.

>> I also just found out about my great-grandmother who did some rather

>> strange behaviors like reading with a flashlite in the closet, and

>> taking off all her clothes and laying on the floor becoming a dead

>> wieght so no one could move her. I don't know what else except she

>> spent her last yrs in a mental hospital.

>> My sister just informed me this may be where my problems are stemming

>> from. How kind of her. Of course, none of my siblings will believe my

>> memories of being abused by my father. They would rather think I am

>> crazy.

>> I tried explaining how mito can affect the brain.

>> Most of the physical mito symptoms come from my mothers side (this

>> woman being on her side too tho) like the heart, leg, ptosis, blood

>> sugar (hormonal seems to come from my dad's), etc.

>> Anyway, any input would help. Thanks, S.

>> S.

>

>---------------------------

[Guest guest]

Kathy, I can't remember what OCD is-is it oppositional something? Tylynn

turns on everything all the time and then forgets. As a matter of fact he

never looks back like to flush, turn off lites, TV, running water, shut

cabinets, etc. Kody is the spitter. Well, so is . And licking is

something some of the kids do too esp. Natasha.

We can tell when the Ritalin is wearing off when they start behaviors like

screaming, spitting, cussing, and running around laughing at their

destruction like little maniacs. Their eyes sparkle they are so delighted

with their behavior. When the Ritalin kicks in they are like you hit a

switch and the sweetest kindest hearts! Wierd, huh?

You are correct with the thinking about what happened to set it off. Tylynn

doesn't " get " most things if he is the least bit frustrated or feeling bad.

It goes in and gets very mixed up and he thinks we said something we didn't

or something happened that wasn't that way at all. So we try to stay very

calm and explain things slowly and quietly and ever so kind to him and

reassure him of our love an support for him.

He is begging us for medicine that might help him and we tell him we are

trying our hardest to get some tests done and then we will probably be

trying some things that will help him. We also tell him how creative and

smart he is. S.

violent aggressive temper

>Date: Saturday, June 26, 1999 11:18 AM

>

>

>

>Does anyone know if a violent aggressive temper is part of mito disorders?

>The ADHD/mild autistic type behavior, the suicidal depression, and this

>temper seem to all be related and coming from my father's side. Each

>generation the severity of the symptoms drops into a lower age group.

>It is so diffucult to diagnose Tylynn as so many of his symptoms could be

>caused by head injury, oxygen deprivation at birth, and abuse as well as

>some genetic thing. His frustration has gotten so severe that it is

>triggering this temper so often, so fast, and so severe I am really afraid

>someone will get hurt.

>I talked to Dr. Steiner's office at OHSU metabolic unit and we agreed not

>to put him on any medicine until they see him so as not to mess up any

>tests. That should be in 2-3 weeks.

>Has anyone else had this sort of a problem? If not, I would feel I could be

>pretty sure this is from the other injuries, although this is why there

>have been several people in my extended family commit murder (this horrible

>hairtrigger violent temper). This is a horrible thing to have to say about

>my own family, but the truth. I don't want it to happen to anyone else. We

>are going for help. Actually, we've been trying to get help & figure all

>this out since 1974. I'm tired.

>I also just found out about my great-grandmother who did some rather

>strange behaviors like reading with a flashlite in the closet, and taking

>off all her clothes and laying on the floor becoming a dead wieght so no

>one could move her. I don't know what else except she spent her last yrs in

>a mental hospital.

>My sister just informed me this may be where my problems are stemming from.

>How kind of her. Of course, none of my siblings will believe my memories of

>being abused by my father. They would rather think I am crazy.

>I tried explaining how mito can affect the brain.

>Most of the physical mito symptoms come from my mothers side (this woman

>being on her side too tho) like the heart, leg, ptosis, blood sugar

>(hormonal seems to come from my dad's), etc.

>Anyway, any input would help. Thanks, S.

> S.

>

>

>---------------------------

[Guest guest]

Kathy, I can't remember what OCD is-is it oppositional something? Tylynn

turns on everything all the time and then forgets. As a matter of fact he

never looks back like to flush, turn off lites, TV, running water, shut

cabinets, etc. Kody is the spitter. Well, so is . And licking is

something some of the kids do too esp. Natasha.

We can tell when the Ritalin is wearing off when they start behaviors like

screaming, spitting, cussing, and running around laughing at their

destruction like little maniacs. Their eyes sparkle they are so delighted

with their behavior. When the Ritalin kicks in they are like you hit a

switch and the sweetest kindest hearts! Wierd, huh?

You are correct with the thinking about what happened to set it off. Tylynn

doesn't " get " most things if he is the least bit frustrated or feeling bad.

It goes in and gets very mixed up and he thinks we said something we didn't

or something happened that wasn't that way at all. So we try to stay very

calm and explain things slowly and quietly and ever so kind to him and

reassure him of our love an support for him.

He is begging us for medicine that might help him and we tell him we are

trying our hardest to get some tests done and then we will probably be

trying some things that will help him. We also tell him how creative and

smart he is. S.

violent aggressive temper

>Date: Saturday, June 26, 1999 11:18 AM

>

>

>

>Does anyone know if a violent aggressive temper is part of mito disorders?

>The ADHD/mild autistic type behavior, the suicidal depression, and this

>temper seem to all be related and coming from my father's side. Each

>generation the severity of the symptoms drops into a lower age group.

>It is so diffucult to diagnose Tylynn as so many of his symptoms could be

>caused by head injury, oxygen deprivation at birth, and abuse as well as

>some genetic thing. His frustration has gotten so severe that it is

>triggering this temper so often, so fast, and so severe I am really afraid

>someone will get hurt.

>I talked to Dr. Steiner's office at OHSU metabolic unit and we agreed not

>to put him on any medicine until they see him so as not to mess up any

>tests. That should be in 2-3 weeks.

>Has anyone else had this sort of a problem? If not, I would feel I could be

>pretty sure this is from the other injuries, although this is why there

>have been several people in my extended family commit murder (this horrible

>hairtrigger violent temper). This is a horrible thing to have to say about

>my own family, but the truth. I don't want it to happen to anyone else. We

>are going for help. Actually, we've been trying to get help & figure all

>this out since 1974. I'm tired.

>I also just found out about my great-grandmother who did some rather

>strange behaviors like reading with a flashlite in the closet, and taking

>off all her clothes and laying on the floor becoming a dead wieght so no

>one could move her. I don't know what else except she spent her last yrs in

>a mental hospital.

>My sister just informed me this may be where my problems are stemming from.

>How kind of her. Of course, none of my siblings will believe my memories of

>being abused by my father. They would rather think I am crazy.

>I tried explaining how mito can affect the brain.

>Most of the physical mito symptoms come from my mothers side (this woman

>being on her side too tho) like the heart, leg, ptosis, blood sugar

>(hormonal seems to come from my dad's), etc.

>Anyway, any input would help. Thanks, S.

> S.

>

>

>---------------------------

[Guest guest]

Kathy, I can't remember what OCD is-is it oppositional something? Tylynn

turns on everything all the time and then forgets. As a matter of fact he

never looks back like to flush, turn off lites, TV, running water, shut

cabinets, etc. Kody is the spitter. Well, so is . And licking is

something some of the kids do too esp. Natasha.

We can tell when the Ritalin is wearing off when they start behaviors like

screaming, spitting, cussing, and running around laughing at their

destruction like little maniacs. Their eyes sparkle they are so delighted

with their behavior. When the Ritalin kicks in they are like you hit a

switch and the sweetest kindest hearts! Wierd, huh?

You are correct with the thinking about what happened to set it off. Tylynn

doesn't " get " most things if he is the least bit frustrated or feeling bad.

It goes in and gets very mixed up and he thinks we said something we didn't

or something happened that wasn't that way at all. So we try to stay very

calm and explain things slowly and quietly and ever so kind to him and

reassure him of our love an support for him.

He is begging us for medicine that might help him and we tell him we are

trying our hardest to get some tests done and then we will probably be

trying some things that will help him. We also tell him how creative and

smart he is. S.

violent aggressive temper

>Date: Saturday, June 26, 1999 11:18 AM

>

>

>

>Does anyone know if a violent aggressive temper is part of mito disorders?

>The ADHD/mild autistic type behavior, the suicidal depression, and this

>temper seem to all be related and coming from my father's side. Each

>generation the severity of the symptoms drops into a lower age group.

>It is so diffucult to diagnose Tylynn as so many of his symptoms could be

>caused by head injury, oxygen deprivation at birth, and abuse as well as

>some genetic thing. His frustration has gotten so severe that it is

>triggering this temper so often, so fast, and so severe I am really afraid

>someone will get hurt.

>I talked to Dr. Steiner's office at OHSU metabolic unit and we agreed not

>to put him on any medicine until they see him so as not to mess up any

>tests. That should be in 2-3 weeks.

>Has anyone else had this sort of a problem? If not, I would feel I could be

>pretty sure this is from the other injuries, although this is why there

>have been several people in my extended family commit murder (this horrible

>hairtrigger violent temper). This is a horrible thing to have to say about

>my own family, but the truth. I don't want it to happen to anyone else. We

>are going for help. Actually, we've been trying to get help & figure all

>this out since 1974. I'm tired.

>I also just found out about my great-grandmother who did some rather

>strange behaviors like reading with a flashlite in the closet, and taking

>off all her clothes and laying on the floor becoming a dead wieght so no

>one could move her. I don't know what else except she spent her last yrs in

>a mental hospital.

>My sister just informed me this may be where my problems are stemming from.

>How kind of her. Of course, none of my siblings will believe my memories of

>being abused by my father. They would rather think I am crazy.

>I tried explaining how mito can affect the brain.

>Most of the physical mito symptoms come from my mothers side (this woman

>being on her side too tho) like the heart, leg, ptosis, blood sugar

>(hormonal seems to come from my dad's), etc.

>Anyway, any input would help. Thanks, S.

> S.

>

>

>---------------------------

[Guest guest]

Laurel, I can't do Adderal either. In fact, I can't do Dexidrine. I get

sinus and eye infections from it. No one can figure that one out. Yet it was

the only drug that did help me calm down and focus and think before I spoke

or acted. I want to take it so bad. S.

Re: violent aggressive temper

>From: Dalsmith@...

>

>,

>

>OCD is Obbsessive Compulsive Disorder. A lot of children who have ADHD /

>Autistism Spectrum Disorders had OCD with it. There is a lot of debate

>whether this type behavior is truly OCD or another form of ritualistic

>behavior. Some families have had success with Prozac for OCD and ADHD.

>However, we never wanted to put our son on it. We also noticed that certain

>meds for the ADHD behavior seemed to making him more OCD - Adderall really

>did a number on him.

>

>Laurel

>

>---------------------------

[Guest guest]

Laurel & Kathy,

I notice with Kody (7) that tho he himself can break the rules and be kind

of haywire at times everyone else around him must be perfect and follow

every rule and do everything just right and fair. He checks my speed,

stopping at lights and signs, tells me what everything is for and how it

SHOULD be used and done, (altho when he wants to investigate something he

can take it down to the last screw), nitpiks everything.

We call him our legalist. It's like having a cop next to you 24-7. I catch

myself saying either I know I did that wrong but and then having to justify

myself or when very frustrated and overwhelmed I get angry with it and say

YOU are the child and I am the adult so CAN it!

Believe it or not tho, because he is so aware and into details and bright he

catchs a lot of things that the rest of us would miss and helps. When we

went camping & grandpa and I were putting up the new tent and struggling he

stands there and studies us and then says you have to put that pole thru

that top thing- Joe says NO and was put off from Kody trying to tell him

what to do so Kody says, OK and just stands there until Joe realized he was

right-ha ha.

He even told me yest. exactly how to better word a question for CPS on the

care of the other grandkids so he says it won't sound too pushy. Then he had

me write down a list of all the questions we should ask them about the care

of his cousins!

People with control issues really get ticked at him, but I usually need his

help-as so often I'm the overwhelmed ditz.

I thought his behavior was caused by his early abuse and he felt he had to

have control over his world. So other kids do this stuff too to this point?

At least his surrondings are clean and neat unlike Tylynn with the severe

CAPD who leaves a trail behind him like a tornado walked thru and is totally

unaware of it.

S.

Re: violent aggressive temper

>From: Dalsmith@...

>

>Kathy,

>

>I do know exactly what you mean. has Asperger's Syndrome (High

>Functioning Autism) and is extremely ritualistic. Everything has a routine.

>When he was on the Adderall, we saw him develop these OCD traits and then

>once we weaned him the traits remained. He used to wash his hands until

they

>were raw. He is better now, but still must follow his daily routines or he

>gets himself all worked up and miserable.

>

>Now that we know that he actually has a Mito disorder I wonder if the

>reaction was due to the Mito. gets weird reactions to meds too. As

>our ped says, if there is a small chance of a reaction, will get it.

>

>Laurel

>

>---------------------------

[Guest guest]

-

Grant used to be the sweetest, kindest child that existed until all the

happened. His behavior over the last two years has changed dramatically

for the worst. I, however, am attributing it to the seizure activity and

specifically the seizures meds. It was at the worst when he was on the

following meds : Mysoline, Topamax and Dilantin. He also became ADD-like

while on Nitrazepam (and Tranxene and Klonopin for that matter). Maybe

with an underlying mito disorder these meds are really too much for

their body-chemistry to take. I think that the fewer the meds, the

better... I just want to try and figure out what he is lacking and see

if we can alter that vs. trying to deal with the symptoms.

Unfortunately, this doesn't seem to be happening - I can't find anyone

knowledgable enough to help me. Anyway, the behavior is often the worst

part of the situation... Gail

> wrote:

>

>

>

> Does anyone know if a violent aggressive temper is part of mito

> disorders? The ADHD/mild autistic type behavior, the suicidal

> depression, and this temper seem to all be related and coming from my

> father's side. Each generation the severity of the symptoms drops into

> a lower age group.

> It is so diffucult to diagnose Tylynn as so many of his symptoms could

> be caused by head injury, oxygen deprivation at birth, and abuse as

> well as some genetic thing. His frustration has gotten so severe that

> it is triggering this temper so often, so fast, and so severe I am

> really afraid someone will get hurt.

> I talked to Dr. Steiner's office at OHSU metabolic unit and we agreed

> not to put him on any medicine until they see him so as not to mess up

> any tests. That should be in 2-3 weeks.

> Has anyone else had this sort of a problem? If not, I would feel I

> could be pretty sure this is from the other injuries, although this is

> why there have been several people in my extended family commit murder

> (this horrible hairtrigger violent temper). This is a horrible thing

> to have to say about my own family, but the truth. I don't want it to

> happen to anyone else. We are going for help. Actually, we've been

> trying to get help & figure all this out since 1974. I'm tired.

> I also just found out about my great-grandmother who did some rather

> strange behaviors like reading with a flashlite in the closet, and

> taking off all her clothes and laying on the floor becoming a dead

> wieght so no one could move her. I don't know what else except she

> spent her last yrs in a mental hospital.

> My sister just informed me this may be where my problems are stemming

> from. How kind of her. Of course, none of my siblings will believe my

> memories of being abused by my father. They would rather think I am

> crazy.

> I tried explaining how mito can affect the brain.

> Most of the physical mito symptoms come from my mothers side (this

> woman being on her side too tho) like the heart, leg, ptosis, blood

> sugar (hormonal seems to come from my dad's), etc.

> Anyway, any input would help. Thanks, S.

> S.

[Guest guest]

-

Grant used to be the sweetest, kindest child that existed until all the

happened. His behavior over the last two years has changed dramatically

for the worst. I, however, am attributing it to the seizure activity and

specifically the seizures meds. It was at the worst when he was on the

following meds : Mysoline, Topamax and Dilantin. He also became ADD-like

while on Nitrazepam (and Tranxene and Klonopin for that matter). Maybe

with an underlying mito disorder these meds are really too much for

their body-chemistry to take. I think that the fewer the meds, the

better... I just want to try and figure out what he is lacking and see

if we can alter that vs. trying to deal with the symptoms.

Unfortunately, this doesn't seem to be happening - I can't find anyone

knowledgable enough to help me. Anyway, the behavior is often the worst

part of the situation... Gail

> wrote:

>

>

>

> Does anyone know if a violent aggressive temper is part of mito

> disorders? The ADHD/mild autistic type behavior, the suicidal

> depression, and this temper seem to all be related and coming from my

> father's side. Each generation the severity of the symptoms drops into

> a lower age group.

> It is so diffucult to diagnose Tylynn as so many of his symptoms could

> be caused by head injury, oxygen deprivation at birth, and abuse as

> well as some genetic thing. His frustration has gotten so severe that

> it is triggering this temper so often, so fast, and so severe I am

> really afraid someone will get hurt.

> I talked to Dr. Steiner's office at OHSU metabolic unit and we agreed

> not to put him on any medicine until they see him so as not to mess up

> any tests. That should be in 2-3 weeks.

> Has anyone else had this sort of a problem? If not, I would feel I

> could be pretty sure this is from the other injuries, although this is

> why there have been several people in my extended family commit murder

> (this horrible hairtrigger violent temper). This is a horrible thing

> to have to say about my own family, but the truth. I don't want it to

> happen to anyone else. We are going for help. Actually, we've been

> trying to get help & figure all this out since 1974. I'm tired.

> I also just found out about my great-grandmother who did some rather

> strange behaviors like reading with a flashlite in the closet, and

> taking off all her clothes and laying on the floor becoming a dead

> wieght so no one could move her. I don't know what else except she

> spent her last yrs in a mental hospital.

> My sister just informed me this may be where my problems are stemming

> from. How kind of her. Of course, none of my siblings will believe my

> memories of being abused by my father. They would rather think I am

> crazy.

> I tried explaining how mito can affect the brain.

> Most of the physical mito symptoms come from my mothers side (this

> woman being on her side too tho) like the heart, leg, ptosis, blood

> sugar (hormonal seems to come from my dad's), etc.

> Anyway, any input would help. Thanks, S.

> S.

[Guest guest]

, I do not know if violent aggressive temper is part of mito- but I

know alot of kids with autism with very aggressive behaviors. Wish I could

be writing to tell you the autism Dr's or mito Dr's know what to do. Just

want to share this. I have to do the ABC method of behavior analysis to

figure out what or why Bart is doing these odd behaviors. He is not

aggressive.. but my best friends daughter is and I whatch her alot. Id

have to really think hard when I watch her. What happened just before her

behavior, what was my reaction..which do I change to prevent that behavior.

It helps to think this way. Sorry, not a medical answer here but the only

intervention that works without proper medical expalanations. Just think

they do not know the answers. You make me want to ask is OCD behaviors

part of mito because I have spent the summer turning out the lights, fans,

heater, and live with a windex bottle in my hand to clean my windows of

spit writing!! He is also licking EVERYTHING.

How healthy can that be.? Kathy F

----------

To: mito support group <mitoonelist>

Subject: violent aggressive temper

Date: Saturday, June 26, 1999 11:18 AM

Does anyone know if a violent aggressive temper is part of mito disorders?

The ADHD/mild autistic type behavior, the suicidal depression, and this

temper seem to all be related and coming from my father's side. Each

generation the severity of the symptoms drops into a lower age group.

It is so diffucult to diagnose Tylynn as so many of his symptoms could be

caused by head injury, oxygen deprivation at birth, and abuse as well as

some genetic thing. His frustration has gotten so severe that it is

triggering this temper so often, so fast, and so severe I am really afraid

someone will get hurt.

I talked to Dr. Steiner's office at OHSU metabolic unit and we agreed not

to put him on any medicine until they see him so as not to mess up any

tests. That should be in 2-3 weeks.

Has anyone else had this sort of a problem? If not, I would feel I could be

pretty sure this is from the other injuries, although this is why there

have been several people in my extended family commit murder (this horrible

hairtrigger violent temper). This is a horrible thing to have to say about

my own family, but the truth. I don't want it to happen to anyone else. We

are going for help. Actually, we've been trying to get help & figure all

this out since 1974. I'm tired.

I also just found out about my great-grandmother who did some rather

strange behaviors like reading with a flashlite in the closet, and taking

off all her clothes and laying on the floor becoming a dead wieght so no

one could move her. I don't know what else except she spent her last yrs in

a mental hospital.

My sister just informed me this may be where my problems are stemming from.

How kind of her. Of course, none of my siblings will believe my memories of

being abused by my father. They would rather think I am crazy.

I tried explaining how mito can affect the brain.

Most of the physical mito symptoms come from my mothers side (this woman

being on her side too tho) like the heart, leg, ptosis, blood sugar

(hormonal seems to come from my dad's), etc.

Anyway, any input would help. Thanks, S.

S.

[Guest guest]

, I do not know if violent aggressive temper is part of mito- but I

know alot of kids with autism with very aggressive behaviors. Wish I could

be writing to tell you the autism Dr's or mito Dr's know what to do. Just

want to share this. I have to do the ABC method of behavior analysis to

figure out what or why Bart is doing these odd behaviors. He is not

aggressive.. but my best friends daughter is and I whatch her alot. Id

have to really think hard when I watch her. What happened just before her

behavior, what was my reaction..which do I change to prevent that behavior.

It helps to think this way. Sorry, not a medical answer here but the only

intervention that works without proper medical expalanations. Just think

they do not know the answers. You make me want to ask is OCD behaviors

part of mito because I have spent the summer turning out the lights, fans,

heater, and live with a windex bottle in my hand to clean my windows of

spit writing!! He is also licking EVERYTHING.

How healthy can that be.? Kathy F

----------

To: mito support group <mitoonelist>

Subject: violent aggressive temper

Date: Saturday, June 26, 1999 11:18 AM

Does anyone know if a violent aggressive temper is part of mito disorders?

The ADHD/mild autistic type behavior, the suicidal depression, and this

temper seem to all be related and coming from my father's side. Each

generation the severity of the symptoms drops into a lower age group.

It is so diffucult to diagnose Tylynn as so many of his symptoms could be

caused by head injury, oxygen deprivation at birth, and abuse as well as

some genetic thing. His frustration has gotten so severe that it is

triggering this temper so often, so fast, and so severe I am really afraid

someone will get hurt.

I talked to Dr. Steiner's office at OHSU metabolic unit and we agreed not

to put him on any medicine until they see him so as not to mess up any

tests. That should be in 2-3 weeks.

Has anyone else had this sort of a problem? If not, I would feel I could be

pretty sure this is from the other injuries, although this is why there

have been several people in my extended family commit murder (this horrible

hairtrigger violent temper). This is a horrible thing to have to say about

my own family, but the truth. I don't want it to happen to anyone else. We

are going for help. Actually, we've been trying to get help & figure all

this out since 1974. I'm tired.

I also just found out about my great-grandmother who did some rather

strange behaviors like reading with a flashlite in the closet, and taking

off all her clothes and laying on the floor becoming a dead wieght so no

one could move her. I don't know what else except she spent her last yrs in

a mental hospital.

My sister just informed me this may be where my problems are stemming from.

How kind of her. Of course, none of my siblings will believe my memories of

being abused by my father. They would rather think I am crazy.

I tried explaining how mito can affect the brain.

Most of the physical mito symptoms come from my mothers side (this woman

being on her side too tho) like the heart, leg, ptosis, blood sugar

(hormonal seems to come from my dad's), etc.

Anyway, any input would help. Thanks, S.

S.

[Guest guest]

,

OCD is Obbsessive Compulsive Disorder. A lot of children who have ADHD /

Autistism Spectrum Disorders had OCD with it. There is a lot of debate

whether this type behavior is truly OCD or another form of ritualistic

behavior. Some families have had success with Prozac for OCD and ADHD.

However, we never wanted to put our son on it. We also noticed that certain

meds for the ADHD behavior seemed to making him more OCD - Adderall really

did a number on him.

Laurel

[Guest guest]

,

OCD is Obbsessive Compulsive Disorder. A lot of children who have ADHD /

Autistism Spectrum Disorders had OCD with it. There is a lot of debate

whether this type behavior is truly OCD or another form of ritualistic

behavior. Some families have had success with Prozac for OCD and ADHD.

However, we never wanted to put our son on it. We also noticed that certain

meds for the ADHD behavior seemed to making him more OCD - Adderall really

did a number on him.

Laurel

[Guest guest]

,

OCD is Obbsessive Compulsive Disorder. A lot of children who have ADHD /

Autistism Spectrum Disorders had OCD with it. There is a lot of debate

whether this type behavior is truly OCD or another form of ritualistic

behavior. Some families have had success with Prozac for OCD and ADHD.

However, we never wanted to put our son on it. We also noticed that certain

meds for the ADHD behavior seemed to making him more OCD - Adderall really

did a number on him.

Laurel

[Guest guest]

Date: 08/29/1999 07:14 am (Sunday)

From: Janine Gentile

To: " <Mitoonelist > at INTERNET-MAIL " .CCMAIL.PHL-DOM1,

Subject: Re: violent aggressive temper

I can speak from experience that some of the mito disorders can cause

violent aggressive behavior. My grandmother, who had severe seizurez,

tried to kill my grandfather on 5 separate occasions. It got so bad that

she had to be put into a mental hospital for the criminally insane because

no one could control her behavior.

Trust me, I can relate to the skeletons in the closet...this isn't

something I necessarily share with the world.

Also, I've read about others with mito disorders exhibiting the same

behavior.

Hope this helps.

Janine

<<< <Mitoonelist > at INTERNET-MAIL 8/29 4:22a >>>

Kathy, I can't remember what OCD is-is it oppositional something? Tylynn

turns on everything all the time and then forgets. As a matter of fact he

never looks back like to flush, turn off lites, TV, running water, shut

cabinets, etc. Kody is the spitter. Well, so is . And licking is

something some of the kids do too esp. Natasha.

We can tell when the Ritalin is wearing off when they start behaviors like

screaming, spitting, cussing, and running around laughing at their

destruction like little maniacs. Their eyes sparkle they are so delighted

with their behavior. When the Ritalin kicks in they are like you hit a

switch and the sweetest kindest hearts! Wierd, huh?

You are correct with the thinking about what happened to set it off.

Tylynn doesn't " get " most things if he is the least bit frustrated or

feeling bad. It goes in and gets very mixed up and he thinks we said

something we didn't or something happened that wasn't that way at all. So

we try to stay very calm and explain things slowly and quietly and ever so

kind to him and reassure him of our love an support for him.

He is begging us for medicine that might help him and we tell him we are

trying our hardest to get some tests done and then we will probably be

trying some things that will help him. We also tell him how creative and

smart he is. S.

violent aggressive temper

>Date: Saturday, June 26, 1999 11:18 AM

>

>

>

>Does anyone know if a violent aggressive temper is part of mito

disorders? >The ADHD/mild autistic type behavior, the suicidal depression,

and this >temper seem to all be related and coming from my father's side.

Each >generation the severity of the symptoms drops into a lower age

group. >It is so diffucult to diagnose Tylynn as so many of his symptoms

could be >caused by head injury, oxygen deprivation at birth, and abuse as

well as >some genetic thing. His frustration has gotten so severe that it

i

s >triggering this temper so often, so fast, and so severe I am really

afraid >someone

will get hurt.

>I talked to Dr. Steine

r's office at OHSU metabolic unit and we agreed not >to put him on any

medicine until they see him so as not to mess up any >tests. That should

be in 2-3 weeks.

>Has anyone else had this sort of a problem? If not, I would feel I could

be >pretty sure this is from the other injuries, although this is why

there >have been several people in my extended family commit murder (this

horrible >hairtrigger violent temper). This is a horrible thing to have to

say about >my own family, but the truth. I don't want it to happen to

anyone else. We >are going for help. Actually, we've been trying to get

help & figure all >this out since 1974. I'm tired.

>I also just found out about my great-grandmother who did some rather

>strange behaviors like reading with a flashlite in the closet, and taking

>off all her clothes and laying on the floor becoming a dead wieght so no

>one could move her. I don't know what else except she spent her last yrs

in >a mental hospital.

>My sister just informed me this may be where my problems are stemming

from. >How kind of her. Of course, none of my siblings will believe my

memories of >being abused by my father. They would rather think I am

crazy. >I tried explaining how mito can affect the brain.

>Most of the physical mito symptoms come from my mothers side (this woman

>being on her side too tho) like the heart, leg, ptosis, blood sugar

>(hormonal seems to come from my dad's), etc.

>Anyway, any input would help. Thanks, S.

> S.

>

>

>---------------------------

[Guest guest]

I would like to offer a suggestion to those of you dealing with aggressive

actions from your children.

It might be wise to check their blood sugar regularly to see if it is low.

I recently found out that my adult son with Mito ( who lives in a group

home) was exhibiting very agressive behavior. He recently started on the

supplements and it was thought that this was causing the problem until we

noticed that he had an unquenchable thirst. He cannot tell us this but it

was obvious when he guzzled glass after glass of soda and water down,

without taking a breath.

His blood work was done, after my suggestion, and it was 50. Believe me -

they must have been surprised. They have increased his food intake and are

weighing him daily ( he's 32 and weighs 122 lbs.). His blood work will be

done again this week, but I am told that his aggressive actions have

decreased dramatically since the new course of action was taken.

Alice

[Guest guest]

I would like to offer a suggestion to those of you dealing with aggressive

actions from your children.

It might be wise to check their blood sugar regularly to see if it is low.

I recently found out that my adult son with Mito ( who lives in a group

home) was exhibiting very agressive behavior. He recently started on the

supplements and it was thought that this was causing the problem until we

noticed that he had an unquenchable thirst. He cannot tell us this but it

was obvious when he guzzled glass after glass of soda and water down,

without taking a breath.

His blood work was done, after my suggestion, and it was 50. Believe me -

they must have been surprised. They have increased his food intake and are

weighing him daily ( he's 32 and weighs 122 lbs.). His blood work will be

done again this week, but I am told that his aggressive actions have

decreased dramatically since the new course of action was taken.

Alice

[Guest guest]

Alice, thank you and we will certainly be doing this with Tylynn as we have

just been going thru a scad of hypoglycemic problems and I just said we saw

it precipitated Kody's out of control behavior and how the starch at nite

helped. S.

Re: violent aggressive temper

>

>

>I would like to offer a suggestion to those of you dealing with aggressive

>actions from your children.

>

> It might be wise to check their blood sugar regularly to see if it is low.

>I recently found out that my adult son with Mito ( who lives in a group

>home) was exhibiting very agressive behavior. He recently started on the

>supplements and it was thought that this was causing the problem until we

>noticed that he had an unquenchable thirst. He cannot tell us this but it

>was obvious when he guzzled glass after glass of soda and water down,

>without taking a breath.

>

>His blood work was done, after my suggestion, and it was 50. Believe me -

>they must have been surprised. They have increased his food intake and are

>weighing him daily ( he's 32 and weighs 122 lbs.). His blood work will be

>done again this week, but I am told that his aggressive actions have

>decreased dramatically since the new course of action was taken.

>

>Alice

>

>

>

>---------------------------

[Guest guest]

Alice, thank you and we will certainly be doing this with Tylynn as we have

just been going thru a scad of hypoglycemic problems and I just said we saw

it precipitated Kody's out of control behavior and how the starch at nite

helped. S.

Re: violent aggressive temper

>

>

>I would like to offer a suggestion to those of you dealing with aggressive

>actions from your children.

>

> It might be wise to check their blood sugar regularly to see if it is low.

>I recently found out that my adult son with Mito ( who lives in a group

>home) was exhibiting very agressive behavior. He recently started on the

>supplements and it was thought that this was causing the problem until we

>noticed that he had an unquenchable thirst. He cannot tell us this but it

>was obvious when he guzzled glass after glass of soda and water down,

>without taking a breath.

>

>His blood work was done, after my suggestion, and it was 50. Believe me -

>they must have been surprised. They have increased his food intake and are

>weighing him daily ( he's 32 and weighs 122 lbs.). His blood work will be

>done again this week, but I am told that his aggressive actions have

>decreased dramatically since the new course of action was taken.

>

>Alice

>

>

>

>---------------------------

[Guest guest]

Hi , OCD is obssesive compulsive disorder. The same thought runs

thru Bart's mind over and over and over again. He gets a sad thought from a

video(that stays in his head forevers-like its been thown out 3 years ago)

and he cries and cries and cries. Then I say a favorite line he knows and

get his brain redirected to another thought. Today is the Jetson theme

song. Tomoorow will be a Pocohontas line. Then he laughs hysterically.

Sound like you know this behavior with the grandchildren. My parents are

telling me they are to old for this. UH oh. No help, no more. I had sukch

a nice break today not worrying about the spotlights and doors and heater

thermostats and air conditioning today when he went to school for 7 hours

after a long, long summer. Can you believe the heater can turn on my air

conditioner. Kathy F

----------

>

> To: Mitoonelist

> Subject: Re: violent aggressive temper

> Date: Tuesday, June 29, 1999 2:31 AM

>

>

>

> Kathy, I can't remember what OCD is-is it oppositional something? Tylynn

> turns on everything all the time and then forgets. As a matter of fact he

> never looks back like to flush, turn off lites, TV, running water, shut

> cabinets, etc. Kody is the spitter. Well, so is . And licking is

> something some of the kids do too esp. Natasha.

> We can tell when the Ritalin is wearing off when they start behaviors

like

> screaming, spitting, cussing, and running around laughing at their

> destruction like little maniacs. Their eyes sparkle they are so delighted

> with their behavior. When the Ritalin kicks in they are like you hit a

> switch and the sweetest kindest hearts! Wierd, huh?

> You are correct with the thinking about what happened to set it off.

Tylynn

> doesn't " get " most things if he is the least bit frustrated or feeling

bad.

> It goes in and gets very mixed up and he thinks we said something we

didn't

> or something happened that wasn't that way at all. So we try to stay very

> calm and explain things slowly and quietly and ever so kind to him and

> reassure him of our love an support for him.

> He is begging us for medicine that might help him and we tell him we are

> trying our hardest to get some tests done and then we will probably be

> trying some things that will help him. We also tell him how creative and

> smart he is. S.

> violent aggressive temper

> >Date: Saturday, June 26, 1999 11:18 AM

> >

> >

> >

> >Does anyone know if a violent aggressive temper is part of mito

disorders?

> >The ADHD/mild autistic type behavior, the suicidal depression, and this

> >temper seem to all be related and coming from my father's side. Each

> >generation the severity of the symptoms drops into a lower age group.

> >It is so diffucult to diagnose Tylynn as so many of his symptoms could

be

> >caused by head injury, oxygen deprivation at birth, and abuse as well as

> >some genetic thing. His frustration has gotten so severe that it is

> >triggering this temper so often, so fast, and so severe I am really

afraid

> >someone will get hurt.

> >I talked to Dr. Steiner's office at OHSU metabolic unit and we agreed

not

> >to put him on any medicine until they see him so as not to mess up any

> >tests. That should be in 2-3 weeks.

> >Has anyone else had this sort of a problem? If not, I would feel I could

be

> >pretty sure this is from the other injuries, although this is why there

> >have been several people in my extended family commit murder (this

horrible

> >hairtrigger violent temper). This is a horrible thing to have to say

about

> >my own family, but the truth. I don't want it to happen to anyone else.

We

> >are going for help. Actually, we've been trying to get help & figure all

> >this out since 1974. I'm tired.

> >I also just found out about my great-grandmother who did some rather

> >strange behaviors like reading with a flashlite in the closet, and

taking

> >off all her clothes and laying on the floor becoming a dead wieght so no

> >one could move her. I don't know what else except she spent her last yrs

in

> >a mental hospital.

> >My sister just informed me this may be where my problems are stemming

from.

> >How kind of her. Of course, none of my siblings will believe my memories

of

> >being abused by my father. They would rather think I am crazy.

> >I tried explaining how mito can affect the brain.

> >Most of the physical mito symptoms come from my mothers side (this woman

> >being on her side too tho) like the heart, leg, ptosis, blood sugar

> >(hormonal seems to come from my dad's), etc.

> >Anyway, any input would help. Thanks, S.

> > S.

> >

> >

> >---------------------------

[Guest guest]

Hi , OCD is obssesive compulsive disorder. The same thought runs

thru Bart's mind over and over and over again. He gets a sad thought from a

video(that stays in his head forevers-like its been thown out 3 years ago)

and he cries and cries and cries. Then I say a favorite line he knows and

get his brain redirected to another thought. Today is the Jetson theme

song. Tomoorow will be a Pocohontas line. Then he laughs hysterically.

Sound like you know this behavior with the grandchildren. My parents are

telling me they are to old for this. UH oh. No help, no more. I had sukch

a nice break today not worrying about the spotlights and doors and heater

thermostats and air conditioning today when he went to school for 7 hours

after a long, long summer. Can you believe the heater can turn on my air

conditioner. Kathy F

----------

>

> To: Mitoonelist

> Subject: Re: violent aggressive temper

> Date: Tuesday, June 29, 1999 2:31 AM

>

>

>

> Kathy, I can't remember what OCD is-is it oppositional something? Tylynn

> turns on everything all the time and then forgets. As a matter of fact he

> never looks back like to flush, turn off lites, TV, running water, shut

> cabinets, etc. Kody is the spitter. Well, so is . And licking is

> something some of the kids do too esp. Natasha.

> We can tell when the Ritalin is wearing off when they start behaviors

like

> screaming, spitting, cussing, and running around laughing at their

> destruction like little maniacs. Their eyes sparkle they are so delighted

> with their behavior. When the Ritalin kicks in they are like you hit a

> switch and the sweetest kindest hearts! Wierd, huh?

> You are correct with the thinking about what happened to set it off.

Tylynn

> doesn't " get " most things if he is the least bit frustrated or feeling

bad.

> It goes in and gets very mixed up and he thinks we said something we

didn't

> or something happened that wasn't that way at all. So we try to stay very

> calm and explain things slowly and quietly and ever so kind to him and

> reassure him of our love an support for him.

> He is begging us for medicine that might help him and we tell him we are

> trying our hardest to get some tests done and then we will probably be

> trying some things that will help him. We also tell him how creative and

> smart he is. S.

> violent aggressive temper

> >Date: Saturday, June 26, 1999 11:18 AM

> >

> >

> >

> >Does anyone know if a violent aggressive temper is part of mito

disorders?

> >The ADHD/mild autistic type behavior, the suicidal depression, and this

> >temper seem to all be related and coming from my father's side. Each

> >generation the severity of the symptoms drops into a lower age group.

> >It is so diffucult to diagnose Tylynn as so many of his symptoms could

be

> >caused by head injury, oxygen deprivation at birth, and abuse as well as

> >some genetic thing. His frustration has gotten so severe that it is

> >triggering this temper so often, so fast, and so severe I am really

afraid

> >someone will get hurt.

> >I talked to Dr. Steiner's office at OHSU metabolic unit and we agreed

not

> >to put him on any medicine until they see him so as not to mess up any

> >tests. That should be in 2-3 weeks.

> >Has anyone else had this sort of a problem? If not, I would feel I could

be

> >pretty sure this is from the other injuries, although this is why there

> >have been several people in my extended family commit murder (this

horrible

> >hairtrigger violent temper). This is a horrible thing to have to say

about

> >my own family, but the truth. I don't want it to happen to anyone else.

We

> >are going for help. Actually, we've been trying to get help & figure all

> >this out since 1974. I'm tired.

> >I also just found out about my great-grandmother who did some rather

> >strange behaviors like reading with a flashlite in the closet, and

taking

> >off all her clothes and laying on the floor becoming a dead wieght so no

> >one could move her. I don't know what else except she spent her last yrs

in

> >a mental hospital.

> >My sister just informed me this may be where my problems are stemming

from.

> >How kind of her. Of course, none of my siblings will believe my memories

of

> >being abused by my father. They would rather think I am crazy.

> >I tried explaining how mito can affect the brain.

> >Most of the physical mito symptoms come from my mothers side (this woman

> >being on her side too tho) like the heart, leg, ptosis, blood sugar

> >(hormonal seems to come from my dad's), etc.

> >Anyway, any input would help. Thanks, S.

> > S.

> >

> >

> >---------------------------

[Guest guest]

Hi , OCD is obssesive compulsive disorder. The same thought runs

thru Bart's mind over and over and over again. He gets a sad thought from a

video(that stays in his head forevers-like its been thown out 3 years ago)

and he cries and cries and cries. Then I say a favorite line he knows and

get his brain redirected to another thought. Today is the Jetson theme

song. Tomoorow will be a Pocohontas line. Then he laughs hysterically.

Sound like you know this behavior with the grandchildren. My parents are

telling me they are to old for this. UH oh. No help, no more. I had sukch

a nice break today not worrying about the spotlights and doors and heater

thermostats and air conditioning today when he went to school for 7 hours

after a long, long summer. Can you believe the heater can turn on my air

conditioner. Kathy F

----------

>

> To: Mitoonelist

> Subject: Re: violent aggressive temper

> Date: Tuesday, June 29, 1999 2:31 AM

>

>

>

> Kathy, I can't remember what OCD is-is it oppositional something? Tylynn

> turns on everything all the time and then forgets. As a matter of fact he

> never looks back like to flush, turn off lites, TV, running water, shut

> cabinets, etc. Kody is the spitter. Well, so is . And licking is

> something some of the kids do too esp. Natasha.

> We can tell when the Ritalin is wearing off when they start behaviors

like

> screaming, spitting, cussing, and running around laughing at their

> destruction like little maniacs. Their eyes sparkle they are so delighted

> with their behavior. When the Ritalin kicks in they are like you hit a

> switch and the sweetest kindest hearts! Wierd, huh?

> You are correct with the thinking about what happened to set it off.

Tylynn

> doesn't " get " most things if he is the least bit frustrated or feeling

bad.

> It goes in and gets very mixed up and he thinks we said something we

didn't

> or something happened that wasn't that way at all. So we try to stay very

> calm and explain things slowly and quietly and ever so kind to him and

> reassure him of our love an support for him.

> He is begging us for medicine that might help him and we tell him we are

> trying our hardest to get some tests done and then we will probably be

> trying some things that will help him. We also tell him how creative and

> smart he is. S.

> violent aggressive temper

> >Date: Saturday, June 26, 1999 11:18 AM

> >

> >

> >

> >Does anyone know if a violent aggressive temper is part of mito

disorders?

> >The ADHD/mild autistic type behavior, the suicidal depression, and this

> >temper seem to all be related and coming from my father's side. Each

> >generation the severity of the symptoms drops into a lower age group.

> >It is so diffucult to diagnose Tylynn as so many of his symptoms could

be

> >caused by head injury, oxygen deprivation at birth, and abuse as well as

> >some genetic thing. His frustration has gotten so severe that it is

> >triggering this temper so often, so fast, and so severe I am really

afraid

> >someone will get hurt.

> >I talked to Dr. Steiner's office at OHSU metabolic unit and we agreed

not

> >to put him on any medicine until they see him so as not to mess up any

> >tests. That should be in 2-3 weeks.

> >Has anyone else had this sort of a problem? If not, I would feel I could

be

> >pretty sure this is from the other injuries, although this is why there

> >have been several people in my extended family commit murder (this

horrible

> >hairtrigger violent temper). This is a horrible thing to have to say

about

> >my own family, but the truth. I don't want it to happen to anyone else.

We

> >are going for help. Actually, we've been trying to get help & figure all

> >this out since 1974. I'm tired.

> >I also just found out about my great-grandmother who did some rather

> >strange behaviors like reading with a flashlite in the closet, and

taking

> >off all her clothes and laying on the floor becoming a dead wieght so no

> >one could move her. I don't know what else except she spent her last yrs

in

> >a mental hospital.

> >My sister just informed me this may be where my problems are stemming

from.

> >How kind of her. Of course, none of my siblings will believe my memories

of

> >being abused by my father. They would rather think I am crazy.

> >I tried explaining how mito can affect the brain.

> >Most of the physical mito symptoms come from my mothers side (this woman

> >being on her side too tho) like the heart, leg, ptosis, blood sugar

> >(hormonal seems to come from my dad's), etc.

> >Anyway, any input would help. Thanks, S.

> > S.

> >

> >

> >---------------------------

[Guest guest]

Kathy,

I do know exactly what you mean. has Asperger's Syndrome (High

Functioning Autism) and is extremely ritualistic. Everything has a routine.

When he was on the Adderall, we saw him develop these OCD traits and then

once we weaned him the traits remained. He used to wash his hands until they

were raw. He is better now, but still must follow his daily routines or he

gets himself all worked up and miserable.

Now that we know that he actually has a Mito disorder I wonder if the

reaction was due to the Mito. gets weird reactions to meds too. As

our ped says, if there is a small chance of a reaction, will get it.

Laurel