Re: Digest Number 124--Dianne

June 25, 2001

Hi Dianne, I've gone thru the HHtrip x 4 and have to say my time wasn't as bad

as some I have seen recounted here. The first time, I was so exhausted before

and after I can hardly remember any of

it. I think that was because of 3 surgeries within 3 months. It was an in-pt

treatment and I slept the whole 5 days. Woke for meals, did a very little

reading, and back to sleep. The 2nd and

3rd tx were a " piece of cake " . Although I did have some nausea and loss of

taste-as you describe-it wasn't bad before and not too bad afterwards. The 4th,

well that's a whole 'nother story. But

I think that was due to my particular situation. Was in a LOT of pain, out in

left field, and had the most incredible headache.. #4 was the only time I

experienced hair loss ( it has grown back

). We won't talk about weight gain !! My hope for you is that your hypo trip

won't be too difficult and that your scans are clear as a bell ! Best Wishes

lindalee@...

dx 12-96 follicular w/ bone mets

4 RAI= 840mCi 300mcg Synthroid

HPTH

Pgh., Pa

dbotwell@... wrote:

> Dear Chere,

>

> I gained less than five pounds which I lost immediately when I went hypo for

> RAI treatment in July 2000. I did not experience any hair loss. Being hypo

> was not that bad for me before the treatment, but I did feel really bad after

> the treatment. Shortly after the treatment, I lost my sense of taste for

> about three weeks. It was really weird! I could eat the most salty things

> and they tasted completely bland! Even ice cream did not taste sweet at all!

> Fortunately, that went away in about three weeks or a month!

>

> I am starting the process again as of today. I am wondering if others have

> found their experiences with being hypo to be different from their first time?

>

> Dianne

> PT 5/99; fol var pap 1.2cm; TT 10/99; RAI 150mCi 7/00; mets to neck lymph

> nodes; next scan 8/01

>

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