Re: New to Group -- Feedback on UAE

[Guest guest]

To: a S.

What is UAE. I'm not familiar with the procedure. I'm having a very large

fibroid removed by surgery this month.

New to Group -- Feedback on UAE

> I am new to this group; my name is a, and I'm 43. Recently I was

> diagnosed with two fibroid tumors -- one is 5 cm, and the other is 10

> cm. I am a candidate for UAE, and I would like to try this, as I

> don't want a hysterectomy. Not because of the resulting infertility

> (I had my tubes tied, so that's not an issue), but it just seems a

> hysterectomy is a very drastic solution. I do not suffer from

> excessive bleeding, but I do have pain and cramping, frequent

> urination and sometimes have pain/spotting with intercourse. I like

> the idea of minimally invasive surgery and reduced recovery time.

>

> I would like to hear from the women who have undergone this

> procedure -- what was it like? How did you feel? Did it work - have

> your fibroids shrunk? Would you recommend it? Any feedback will be

> sincerely appreciated; naturally, my gynecologist is pushing

> hysterectomy, because that's the easiest and most familiar procedure,

> but I'm just not ready to accept that solution yet.

>

> Thanks, everyone --

> a

>

>

>

>

[Guest guest]

To: a S.

What is UAE. I'm not familiar with the procedure. I'm having a very large

fibroid removed by surgery this month.

New to Group -- Feedback on UAE

> I am new to this group; my name is a, and I'm 43. Recently I was

> diagnosed with two fibroid tumors -- one is 5 cm, and the other is 10

> cm. I am a candidate for UAE, and I would like to try this, as I

> don't want a hysterectomy. Not because of the resulting infertility

> (I had my tubes tied, so that's not an issue), but it just seems a

> hysterectomy is a very drastic solution. I do not suffer from

> excessive bleeding, but I do have pain and cramping, frequent

> urination and sometimes have pain/spotting with intercourse. I like

> the idea of minimally invasive surgery and reduced recovery time.

>

> I would like to hear from the women who have undergone this

> procedure -- what was it like? How did you feel? Did it work - have

> your fibroids shrunk? Would you recommend it? Any feedback will be

> sincerely appreciated; naturally, my gynecologist is pushing

> hysterectomy, because that's the easiest and most familiar procedure,

> but I'm just not ready to accept that solution yet.

>

> Thanks, everyone --

> a

>

>

>

>

[Guest guest]

To: a S.

What is UAE. I'm not familiar with the procedure. I'm having a very large

fibroid removed by surgery this month.

New to Group -- Feedback on UAE

> I am new to this group; my name is a, and I'm 43. Recently I was

> diagnosed with two fibroid tumors -- one is 5 cm, and the other is 10

> cm. I am a candidate for UAE, and I would like to try this, as I

> don't want a hysterectomy. Not because of the resulting infertility

> (I had my tubes tied, so that's not an issue), but it just seems a

> hysterectomy is a very drastic solution. I do not suffer from

> excessive bleeding, but I do have pain and cramping, frequent

> urination and sometimes have pain/spotting with intercourse. I like

> the idea of minimally invasive surgery and reduced recovery time.

>

> I would like to hear from the women who have undergone this

> procedure -- what was it like? How did you feel? Did it work - have

> your fibroids shrunk? Would you recommend it? Any feedback will be

> sincerely appreciated; naturally, my gynecologist is pushing

> hysterectomy, because that's the easiest and most familiar procedure,

> but I'm just not ready to accept that solution yet.

>

> Thanks, everyone --

> a

>

>

>

>

[Guest guest]

UAE stands for Uterine Artery Embolization. It is a

relatively new procedure (about five years old, I

think), wherein a small incision is made in the upper

thigh, a catheter is threaded into the arteries

leading to the fibroids. Then some sort of material

is fed into the arteries, blocking the blood supply to

the fibroids. And when the fibroids can't get blood,

they shrink and die. The surgery is minimally

invasive and the recovery time is supposedly much,

much shorter than other procedures.

a

--- Joe's Email wrote:

> To: a S.

>

> What is UAE. I'm not familiar with the procedure.

> I'm having a very large

> fibroid removed by surgery this month.

> New to Group -- Feedback

> on UAE

>

>

> > I am new to this group; my name is a, and I'm

> 43. Recently I was

> > diagnosed with two fibroid tumors -- one is 5 cm,

> and the other is 10

> > cm. I am a candidate for UAE, and I would like to

> try this, as I

> > don't want a hysterectomy. Not because of the

> resulting infertility

> > (I had my tubes tied, so that's not an issue), but

> it just seems a

> > hysterectomy is a very drastic solution. I do not

> suffer from

> > excessive bleeding, but I do have pain and

> cramping, frequent

> > urination and sometimes have pain/spotting with

> intercourse. I like

> > the idea of minimally invasive surgery and reduced

> recovery time.

> >

> > I would like to hear from the women who have

> undergone this

> > procedure -- what was it like? How did you feel?

> Did it work - have

> > your fibroids shrunk? Would you recommend it?

> Any feedback will be

> > sincerely appreciated; naturally, my gynecologist

> is pushing

> > hysterectomy, because that's the easiest and most

> familiar procedure,

> > but I'm just not ready to accept that solution

> yet.

> >

> > Thanks, everyone --

> > a

> >

> >

> >

> >

[Guest guest]

Hi a.

Well, so far, you're doing really well. When I was first diagnosed, I

had NO idea what my options were. You already know what UAE is...

that's great!

Personally, I found out about my fibroids when I was 23. I'm 26 now

and my husband and I are thinking about starting a family... A little

different than your experience, but faced with the same options...

Hysterectomy? UAE? Myo?

Since I was so young, and just barely engaged, I decided to go with

UAE. Regardless of the amount of research that had been done in the

U.S., the amount of experience, etc., it was the best - and least

invasive - option. Fortunately, my IR had performed nearly 300

procedures and even told me it was his favorite procedure (sounds

weird, huh!). So, to answer your questions:

What was it like?

I was awake the whole time - but extremely well-drugged - and watched

the entire procedure on the screen. He even told me exactly what he

was doing. Very interesting stuff. The nurses and drs were awesome

- I think they even played a Wynona Judd CD over the speakers.

They've created quite a support network so I spoke with several women

who went through the procedure before me. And now I'm on the contact

list. It's great to have such a well-known organization (Kaiser)

supporting this option for women with fibroids.

How did you feel?

Loopy. And then, the second he blocked off the second artery, I felt

the worst pain I've ever felt in my entire life. It was awful.

Imagine your worse cramps and multiply that by 100. But they hooked

me up to morphine (the kind that I could control) and I started to

feel better. The worse part of the whole thing was the morphine

withdrawls when I had to leave the next day. However, I believe that

48 hours after the surgery, I was feeling NO pain whatsoever; I wasn't

even taking my pain medication anymore. I could have gone back to

work had I already not taken the week off! I was pretty impressed,

actually, that the pain only lasted that long. There was no pain at

the inciscion site at any time. One thing that definitely helped, was

a warm bath... that's a definite cure-all!

Did it work - have your fibroids shrunk?

Previous to surgery, I had three fibroids: one was 8 cm in diameter

while the other 2 were 3 cm in diameter. Eight weeks after the

procedure, at my follow up ultrasound, the technician could only find

two of them. The 8 cm was now a 3 cm and one of the 3cm was 1 cm.

The last one, well, my gyn can no longer detect. So yes, my fibroids

have shrunk considerable.

Would you recommend it?

MOST DEFINITELY. I DON'T know if it has effected my fertility or

ability to carry a child, but I DO know that I still have my uterus

(as opposed to hysterectomy) and that my uterus is the shape it's

supposed to be (as opposed to myomectomy). My periods are pretty

normal now (4 to 6 days... no more clots, blood transfusions or

carrying a purse full of tampons every where I go).

Best of luck to you, a. It's such a difficult decision. And

definitely not one you ever thought you'd have to make. Do your

research, talk to your dr and go with your gut. That is all I can

really urge you to do. Only you know what is right for you.

Keep us updated on your decision.

-

> > To: a S.

> >

> > What is UAE. I'm not familiar with the procedure.

> > I'm having a very large

> > fibroid removed by surgery this month.

> > New to Group -- Feedback

> > on UAE

> >

> >

> > > I am new to this group; my name is a, and I'm

> > 43. Recently I was

> > > diagnosed with two fibroid tumors -- one is 5 cm,

> > and the other is 10

> > > cm. I am a candidate for UAE, and I would like to

> > try this, as I

> > > don't want a hysterectomy. Not because of the

> > resulting infertility

> > > (I had my tubes tied, so that's not an issue), but

> > it just seems a

> > > hysterectomy is a very drastic solution. I do not

> > suffer from

> > > excessive bleeding, but I do have pain and

> > cramping, frequent

> > > urination and sometimes have pain/spotting with

> > intercourse. I like

> > > the idea of minimally invasive surgery and reduced

> > recovery time.

> > >

> > > I would like to hear from the women who have

> > undergone this

> > > procedure -- what was it like? How did you feel?

> > Did it work - have

> > > your fibroids shrunk? Would you recommend it?

> > Any feedback will be

> > > sincerely appreciated; naturally, my gynecologist

> > is pushing

> > > hysterectomy, because that's the easiest and most

> > familiar procedure,

> > > but I'm just not ready to accept that solution

> > yet.

> > >

> > > Thanks, everyone --

> > > a

> > >

> > >

> > >

> > >

[Guest guest]

Hi a.

Well, so far, you're doing really well. When I was first diagnosed, I

had NO idea what my options were. You already know what UAE is...

that's great!

Personally, I found out about my fibroids when I was 23. I'm 26 now

and my husband and I are thinking about starting a family... A little

different than your experience, but faced with the same options...

Hysterectomy? UAE? Myo?

Since I was so young, and just barely engaged, I decided to go with

UAE. Regardless of the amount of research that had been done in the

U.S., the amount of experience, etc., it was the best - and least

invasive - option. Fortunately, my IR had performed nearly 300

procedures and even told me it was his favorite procedure (sounds

weird, huh!). So, to answer your questions:

What was it like?

I was awake the whole time - but extremely well-drugged - and watched

the entire procedure on the screen. He even told me exactly what he

was doing. Very interesting stuff. The nurses and drs were awesome

- I think they even played a Wynona Judd CD over the speakers.

They've created quite a support network so I spoke with several women

who went through the procedure before me. And now I'm on the contact

list. It's great to have such a well-known organization (Kaiser)

supporting this option for women with fibroids.

How did you feel?

Loopy. And then, the second he blocked off the second artery, I felt

the worst pain I've ever felt in my entire life. It was awful.

Imagine your worse cramps and multiply that by 100. But they hooked

me up to morphine (the kind that I could control) and I started to

feel better. The worse part of the whole thing was the morphine

withdrawls when I had to leave the next day. However, I believe that

48 hours after the surgery, I was feeling NO pain whatsoever; I wasn't

even taking my pain medication anymore. I could have gone back to

work had I already not taken the week off! I was pretty impressed,

actually, that the pain only lasted that long. There was no pain at

the inciscion site at any time. One thing that definitely helped, was

a warm bath... that's a definite cure-all!

Did it work - have your fibroids shrunk?

Previous to surgery, I had three fibroids: one was 8 cm in diameter

while the other 2 were 3 cm in diameter. Eight weeks after the

procedure, at my follow up ultrasound, the technician could only find

two of them. The 8 cm was now a 3 cm and one of the 3cm was 1 cm.

The last one, well, my gyn can no longer detect. So yes, my fibroids

have shrunk considerable.

Would you recommend it?

MOST DEFINITELY. I DON'T know if it has effected my fertility or

ability to carry a child, but I DO know that I still have my uterus

(as opposed to hysterectomy) and that my uterus is the shape it's

supposed to be (as opposed to myomectomy). My periods are pretty

normal now (4 to 6 days... no more clots, blood transfusions or

carrying a purse full of tampons every where I go).

Best of luck to you, a. It's such a difficult decision. And

definitely not one you ever thought you'd have to make. Do your

research, talk to your dr and go with your gut. That is all I can

really urge you to do. Only you know what is right for you.

Keep us updated on your decision.

-

> > To: a S.

> >

> > What is UAE. I'm not familiar with the procedure.

> > I'm having a very large

> > fibroid removed by surgery this month.

> > New to Group -- Feedback

> > on UAE

> >

> >

> > > I am new to this group; my name is a, and I'm

> > 43. Recently I was

> > > diagnosed with two fibroid tumors -- one is 5 cm,

> > and the other is 10

> > > cm. I am a candidate for UAE, and I would like to

> > try this, as I

> > > don't want a hysterectomy. Not because of the

> > resulting infertility

> > > (I had my tubes tied, so that's not an issue), but

> > it just seems a

> > > hysterectomy is a very drastic solution. I do not

> > suffer from

> > > excessive bleeding, but I do have pain and

> > cramping, frequent

> > > urination and sometimes have pain/spotting with

> > intercourse. I like

> > > the idea of minimally invasive surgery and reduced

> > recovery time.

> > >

> > > I would like to hear from the women who have

> > undergone this

> > > procedure -- what was it like? How did you feel?

> > Did it work - have

> > > your fibroids shrunk? Would you recommend it?

> > Any feedback will be

> > > sincerely appreciated; naturally, my gynecologist

> > is pushing

> > > hysterectomy, because that's the easiest and most

> > familiar procedure,

> > > but I'm just not ready to accept that solution

> > yet.

> > >

> > > Thanks, everyone --

> > > a

> > >

> > >

> > >

> > >

[Guest guest]

Hey there a. I am almost three weeks past my UAE

and am doing great...I am having a " period " with

cramps and bloating, but no bleeding...which is ok

with me!!! I am 45 and have two teenagers so fertility

is not problemmatic for me. My fibroid was the size

of a grapefruit and my ob/gyn wanted to do a

hysterectomy asap!!! I went home, got on the net,

found this option and have been extreemly pleased...

My first check up after the procedure is tomorrow,

then I'll have an ultrasound after 3 months. I am

extreemly hopeful that mine will do the disappearing

thing. I am also taking cat's claw to shrink things -

this is not my doctor, i had read an article in a

health food store. Good Luck. Peggy

--- stacy.isaac@... wrote:

> Hi a.

>

> Well, so far, you're doing really well. When I was

> first diagnosed, I

> had NO idea what my options were. You already know

> what UAE is...

> that's great!

>

> Personally, I found out about my fibroids when I was

> 23. I'm 26 now

> and my husband and I are thinking about starting a

> family... A little

> different than your experience, but faced with the

> same options...

> Hysterectomy? UAE? Myo?

>

> Since I was so young, and just barely engaged, I

> decided to go with

> UAE. Regardless of the amount of research that had

> been done in the

> U.S., the amount of experience, etc., it was the

> best - and least

> invasive - option. Fortunately, my IR had performed

> nearly 300

> procedures and even told me it was his favorite

> procedure (sounds

> weird, huh!). So, to answer your questions:

>

> What was it like?

> I was awake the whole time - but extremely

> well-drugged - and watched

> the entire procedure on the screen. He even told me

> exactly what he

> was doing. Very interesting stuff. The nurses and

> drs were awesome

> - I think they even played a Wynona Judd CD over the

> speakers.

> They've created quite a support network so I spoke

> with several women

> who went through the procedure before me. And now

> I'm on the contact

> list. It's great to have such a well-known

> organization (Kaiser)

> supporting this option for women with fibroids.

>

> How did you feel?

> Loopy. And then, the second he blocked off the

> second artery, I felt

> the worst pain I've ever felt in my entire life. It

> was awful.

> Imagine your worse cramps and multiply that by 100.

> But they hooked

> me up to morphine (the kind that I could control)

> and I started to

> feel better. The worse part of the whole thing was

> the morphine

> withdrawls when I had to leave the next day.

> However, I believe that

> 48 hours after the surgery, I was feeling NO pain

> whatsoever; I wasn't

> even taking my pain medication anymore. I could

> have gone back to

> work had I already not taken the week off! I was

> pretty impressed,

> actually, that the pain only lasted that long.

> There was no pain at

> the inciscion site at any time. One thing that

> definitely helped, was

> a warm bath... that's a definite cure-all!

>

> Did it work - have your fibroids shrunk?

> Previous to surgery, I had three fibroids: one was 8

> cm in diameter

> while the other 2 were 3 cm in diameter. Eight

> weeks after the

> procedure, at my follow up ultrasound, the

> technician could only find

> two of them. The 8 cm was now a 3 cm and one of the

> 3cm was 1 cm.

> The last one, well, my gyn can no longer detect. So

> yes, my fibroids

> have shrunk considerable.

>

> Would you recommend it?

> MOST DEFINITELY. I DON'T know if it has effected my

> fertility or

> ability to carry a child, but I DO know that I still

> have my uterus

> (as opposed to hysterectomy) and that my uterus is

> the shape it's

> supposed to be (as opposed to myomectomy). My

> periods are pretty

> normal now (4 to 6 days... no more clots, blood

> transfusions or

> carrying a purse full of tampons every where I go).

>

>

> Best of luck to you, a. It's such a difficult

> decision. And

> definitely not one you ever thought you'd have to

> make. Do your

> research, talk to your dr and go with your gut.

> That is all I can

> really urge you to do. Only you know what is right

> for you.

>

> Keep us updated on your decision.

> -

>

>

>

>

>

>

> > > To: a S.

> > >

> > > What is UAE. I'm not familiar with the

> procedure.

> > > I'm having a very large

> > > fibroid removed by surgery this month.

> > > New to Group --

> Feedback

> > > on UAE

> > >

> > >

> > > > I am new to this group; my name is a, and

> I'm

> > > 43. Recently I was

> > > > diagnosed with two fibroid tumors -- one is 5

> cm,

> > > and the other is 10

> > > > cm. I am a candidate for UAE, and I would like

> to

> > > try this, as I

> > > > don't want a hysterectomy. Not because of the

> > > resulting infertility

> > > > (I had my tubes tied, so that's not an issue),

> but

> > > it just seems a

> > > > hysterectomy is a very drastic solution. I do

> not

> > > suffer from

> > > > excessive bleeding, but I do have pain and

> > > cramping, frequent

> > > > urination and sometimes have pain/spotting

> with

> > > intercourse. I like

> > > > the idea of minimally invasive surgery and

> reduced

> > > recovery time.

> > > >

> > > > I would like to hear from the women who have

> > > undergone this

> > > > procedure -- what was it like? How did you

> feel?

> > > Did it work - have

> > > > your fibroids shrunk? Would you recommend it?

>

> > > Any feedback will be

> > > > sincerely appreciated; naturally, my

> gynecologist

> > > is pushing

> > > > hysterectomy, because that's the easiest and

> most

> > > familiar procedure,

> > > > but I'm just not ready to accept that solution

> > > yet.

> > > >

> > > > Thanks, everyone --

> > > > a

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hey there a. I am almost three weeks past my UAE

and am doing great...I am having a " period " with

cramps and bloating, but no bleeding...which is ok

with me!!! I am 45 and have two teenagers so fertility

is not problemmatic for me. My fibroid was the size

of a grapefruit and my ob/gyn wanted to do a

hysterectomy asap!!! I went home, got on the net,

found this option and have been extreemly pleased...

My first check up after the procedure is tomorrow,

then I'll have an ultrasound after 3 months. I am

extreemly hopeful that mine will do the disappearing

thing. I am also taking cat's claw to shrink things -

this is not my doctor, i had read an article in a

health food store. Good Luck. Peggy

--- stacy.isaac@... wrote:

> Hi a.

>

> Well, so far, you're doing really well. When I was

> first diagnosed, I

> had NO idea what my options were. You already know

> what UAE is...

> that's great!

>

> Personally, I found out about my fibroids when I was

> 23. I'm 26 now

> and my husband and I are thinking about starting a

> family... A little

> different than your experience, but faced with the

> same options...

> Hysterectomy? UAE? Myo?

>

> Since I was so young, and just barely engaged, I

> decided to go with

> UAE. Regardless of the amount of research that had

> been done in the

> U.S., the amount of experience, etc., it was the

> best - and least

> invasive - option. Fortunately, my IR had performed

> nearly 300

> procedures and even told me it was his favorite

> procedure (sounds

> weird, huh!). So, to answer your questions:

>

> What was it like?

> I was awake the whole time - but extremely

> well-drugged - and watched

> the entire procedure on the screen. He even told me

> exactly what he

> was doing. Very interesting stuff. The nurses and

> drs were awesome

> - I think they even played a Wynona Judd CD over the

> speakers.

> They've created quite a support network so I spoke

> with several women

> who went through the procedure before me. And now

> I'm on the contact

> list. It's great to have such a well-known

> organization (Kaiser)

> supporting this option for women with fibroids.

>

> How did you feel?

> Loopy. And then, the second he blocked off the

> second artery, I felt

> the worst pain I've ever felt in my entire life. It

> was awful.

> Imagine your worse cramps and multiply that by 100.

> But they hooked

> me up to morphine (the kind that I could control)

> and I started to

> feel better. The worse part of the whole thing was

> the morphine

> withdrawls when I had to leave the next day.

> However, I believe that

> 48 hours after the surgery, I was feeling NO pain

> whatsoever; I wasn't

> even taking my pain medication anymore. I could

> have gone back to

> work had I already not taken the week off! I was

> pretty impressed,

> actually, that the pain only lasted that long.

> There was no pain at

> the inciscion site at any time. One thing that

> definitely helped, was

> a warm bath... that's a definite cure-all!

>

> Did it work - have your fibroids shrunk?

> Previous to surgery, I had three fibroids: one was 8

> cm in diameter

> while the other 2 were 3 cm in diameter. Eight

> weeks after the

> procedure, at my follow up ultrasound, the

> technician could only find

> two of them. The 8 cm was now a 3 cm and one of the

> 3cm was 1 cm.

> The last one, well, my gyn can no longer detect. So

> yes, my fibroids

> have shrunk considerable.

>

> Would you recommend it?

> MOST DEFINITELY. I DON'T know if it has effected my

> fertility or

> ability to carry a child, but I DO know that I still

> have my uterus

> (as opposed to hysterectomy) and that my uterus is

> the shape it's

> supposed to be (as opposed to myomectomy). My

> periods are pretty

> normal now (4 to 6 days... no more clots, blood

> transfusions or

> carrying a purse full of tampons every where I go).

>

>

> Best of luck to you, a. It's such a difficult

> decision. And

> definitely not one you ever thought you'd have to

> make. Do your

> research, talk to your dr and go with your gut.

> That is all I can

> really urge you to do. Only you know what is right

> for you.

>

> Keep us updated on your decision.

> -

>

>

>

>

>

>

> > > To: a S.

> > >

> > > What is UAE. I'm not familiar with the

> procedure.

> > > I'm having a very large

> > > fibroid removed by surgery this month.

> > > New to Group --

> Feedback

> > > on UAE

> > >

> > >

> > > > I am new to this group; my name is a, and

> I'm

> > > 43. Recently I was

> > > > diagnosed with two fibroid tumors -- one is 5

> cm,

> > > and the other is 10

> > > > cm. I am a candidate for UAE, and I would like

> to

> > > try this, as I

> > > > don't want a hysterectomy. Not because of the

> > > resulting infertility

> > > > (I had my tubes tied, so that's not an issue),

> but

> > > it just seems a

> > > > hysterectomy is a very drastic solution. I do

> not

> > > suffer from

> > > > excessive bleeding, but I do have pain and

> > > cramping, frequent

> > > > urination and sometimes have pain/spotting

> with

> > > intercourse. I like

> > > > the idea of minimally invasive surgery and

> reduced

> > > recovery time.

> > > >

> > > > I would like to hear from the women who have

> > > undergone this

> > > > procedure -- what was it like? How did you

> feel?

> > > Did it work - have

> > > > your fibroids shrunk? Would you recommend it?

>

> > > Any feedback will be

> > > > sincerely appreciated; naturally, my

> gynecologist

> > > is pushing

> > > > hysterectomy, because that's the easiest and

> most

> > > familiar procedure,

> > > > but I'm just not ready to accept that solution

> > > yet.

> > > >

> > > > Thanks, everyone --

> > > > a

> > > >

> > > >

> > > >

> > > >

[Guest guest]

or better yet do a websearch to read ALL about it. try these for information

uterinefibroids.com

www.fibroidworld.com

a wrote the following in answer to a question what is uae

> UAE stands for Uterine Artery Embolization. It is a

> relatively new procedure (about five years old, I

> think), wherein a small incision is made in the upper

> thigh, a catheter is threaded into the arteries

> leading to the fibroids. Then some sort of material

> is fed into the arteries, blocking the blood supply to

> the fibroids. And when the fibroids can't get blood,

> they shrink and die. The surgery is minimally

> invasive and the recovery time is supposedly much,

> much shorter than other procedures.

>

> a

>

[Guest guest]

or better yet do a websearch to read ALL about it. try these for information

uterinefibroids.com

www.fibroidworld.com

a wrote the following in answer to a question what is uae

> UAE stands for Uterine Artery Embolization. It is a

> relatively new procedure (about five years old, I

> think), wherein a small incision is made in the upper

> thigh, a catheter is threaded into the arteries

> leading to the fibroids. Then some sort of material

> is fed into the arteries, blocking the blood supply to

> the fibroids. And when the fibroids can't get blood,

> they shrink and die. The surgery is minimally

> invasive and the recovery time is supposedly much,

> much shorter than other procedures.

>

> a

>

[Guest guest]

where did you have the UAE done, ?

wrote : Hi a.

>

> Well, so far, you're doing really well. When I was first diagnosed, I

> had NO idea what my options were. You already know what UAE is...

> that's great!

>

> Personally, I found out about my fibroids when I was 23. I'm 26 now

> and my husband and I are thinking about starting a family...

[Guest guest]

My IR was in the Oakland facility. Not the safest or nicest of

neighborhoods, but still a great option. He's (my IR) currently

working on a study/report to convince the San Francisco facilities to

start doing the procedure, as well. Right now, I believe that only

(Kaiser) Oakland is doing it in the Bay Area.

Where are you located?

> where did you have the UAE done, ?

>

> wrote : Hi a.

> >

> > Well, so far, you're doing really well. When I was first

diagnosed, I

> > had NO idea what my options were. You already know what UAE is...

> > that's great!

> >

> > Personally, I found out about my fibroids when I was 23. I'm 26

now

> > and my husband and I are thinking about starting a family...

[Guest guest]

My IR was in the Oakland facility. Not the safest or nicest of

neighborhoods, but still a great option. He's (my IR) currently

working on a study/report to convince the San Francisco facilities to

start doing the procedure, as well. Right now, I believe that only

(Kaiser) Oakland is doing it in the Bay Area.

Where are you located?

> where did you have the UAE done, ?

>

> wrote : Hi a.

> >

> > Well, so far, you're doing really well. When I was first

diagnosed, I

> > had NO idea what my options were. You already know what UAE is...

> > that's great!

> >

> > Personally, I found out about my fibroids when I was 23. I'm 26

now

> > and my husband and I are thinking about starting a family...

[Guest guest]

Thank you, Peggy. Don'cha just love doctors who are

so eager to yank out your uterus? I actually had one

(male) say to me, " Well, you're not going to have

children, so you don't need it anyway. " Jeeez

Louise... if I had a wart on my arm, would he suggest

cutting my arm off?

I know that sometimes hysterectomies are the only

option -- but good for you that you did your research

and found your options.

a

--- Peggy Renfroe wrote:

> Hey there a. I am almost three weeks past my

> UAE

> and am doing great...I am having a " period " with

> cramps and bloating, but no bleeding...which is ok

> with me!!! I am 45 and have two teenagers so

> fertility

> is not problemmatic for me. My fibroid was the size

> of a grapefruit and my ob/gyn wanted to do a

> hysterectomy asap!!! I went home, got on the net,

> found this option and have been extreemly pleased...

> My first check up after the procedure is tomorrow,

> then I'll have an ultrasound after 3 months. I am

> extreemly hopeful that mine will do the disappearing

> thing. I am also taking cat's claw to shrink things

> -

> this is not my doctor, i had read an article in a

> health food store. Good Luck. Peggy

> --- stacy.isaac@... wrote:

> > Hi a.

> >

> > Well, so far, you're doing really well. When I

> was

> > first diagnosed, I

> > had NO idea what my options were. You already

> know

> > what UAE is...

> > that's great!

> >

> > Personally, I found out about my fibroids when I

> was

> > 23. I'm 26 now

> > and my husband and I are thinking about starting a

> > family... A little

> > different than your experience, but faced with the

> > same options...

> > Hysterectomy? UAE? Myo?

> >

> > Since I was so young, and just barely engaged, I

> > decided to go with

> > UAE. Regardless of the amount of research that

> had

> > been done in the

> > U.S., the amount of experience, etc., it was the

> > best - and least

> > invasive - option. Fortunately, my IR had

> performed

> > nearly 300

> > procedures and even told me it was his favorite

> > procedure (sounds

> > weird, huh!). So, to answer your questions:

> >

> > What was it like?

> > I was awake the whole time - but extremely

> > well-drugged - and watched

> > the entire procedure on the screen. He even told

> me

> > exactly what he

> > was doing. Very interesting stuff. The nurses

> and

> > drs were awesome

> > - I think they even played a Wynona Judd CD over

> the

> > speakers.

> > They've created quite a support network so I spoke

> > with several women

> > who went through the procedure before me. And now

> > I'm on the contact

> > list. It's great to have such a well-known

> > organization (Kaiser)

> > supporting this option for women with fibroids.

> >

> > How did you feel?

> > Loopy. And then, the second he blocked off the

> > second artery, I felt

> > the worst pain I've ever felt in my entire life.

> It

> > was awful.

> > Imagine your worse cramps and multiply that by

> 100.

> > But they hooked

> > me up to morphine (the kind that I could control)

> > and I started to

> > feel better. The worse part of the whole thing

> was

> > the morphine

> > withdrawls when I had to leave the next day.

> > However, I believe that

> > 48 hours after the surgery, I was feeling NO pain

> > whatsoever; I wasn't

> > even taking my pain medication anymore. I could

> > have gone back to

> > work had I already not taken the week off! I was

> > pretty impressed,

> > actually, that the pain only lasted that long.

> > There was no pain at

> > the inciscion site at any time. One thing that

> > definitely helped, was

> > a warm bath... that's a definite cure-all!

> >

> > Did it work - have your fibroids shrunk?

> > Previous to surgery, I had three fibroids: one was

> 8

> > cm in diameter

> > while the other 2 were 3 cm in diameter. Eight

> > weeks after the

> > procedure, at my follow up ultrasound, the

> > technician could only find

> > two of them. The 8 cm was now a 3 cm and one of

> the

> > 3cm was 1 cm.

> > The last one, well, my gyn can no longer detect.

> So

> > yes, my fibroids

> > have shrunk considerable.

> >

> > Would you recommend it?

> > MOST DEFINITELY. I DON'T know if it has effected

> my

> > fertility or

> > ability to carry a child, but I DO know that I

> still

> > have my uterus

> > (as opposed to hysterectomy) and that my uterus is

> > the shape it's

> > supposed to be (as opposed to myomectomy). My

> > periods are pretty

> > normal now (4 to 6 days... no more clots, blood

> > transfusions or

> > carrying a purse full of tampons every where I

> go).

> >

> >

> > Best of luck to you, a. It's such a difficult

> > decision. And

> > definitely not one you ever thought you'd have to

> > make. Do your

> > research, talk to your dr and go with your gut.

> > That is all I can

> > really urge you to do. Only you know what is

> right

> > for you.

> >

> > Keep us updated on your decision.

> > -

> >

> >

> >

> >

> >

> >

> > > > To: a S.

> > > >

> > > > What is UAE. I'm not familiar with the

> > procedure.

> > > > I'm having a very large

> > > > fibroid removed by surgery this month.

> > > > New to Group --

> > Feedback

> > > > on UAE

> > > >

> > > >

> > > > > I am new to this group; my name is a,

> and

> > I'm

> > > > 43. Recently I was

> > > > > diagnosed with two fibroid tumors -- one is

> 5

> > cm,

> > > > and the other is 10

> > > > > cm. I am a candidate for UAE, and I would

> like

> > to

> > > > try this, as I

> > > > > don't want a hysterectomy. Not because of

> the

>

=== message truncated ===

__________________________________________________

[Guest guest]

Peggy, Can you tell us more about Cat's Claw? I only ever heard of it

being used for arthritis.

Unfortunately not everybody gets a great recovery from UAE. I'm one

of the less usual cases with prolonged pain. I didn't have pain from

fibroids pre UAE, but have had quite a bit in the 11 weeks since. Had

a very bad episode tonight. My fibroids and uterus are probably even

bigger than Peggy's so I'm not the most suitable subject for UAE. I

think the pain comes partly from a particularly large subserosal

fibroid and partly from intestinal cramps, maybe uterine cramping

too. Tonight I had lower back pain as well. I used two tramadol

tablets and a hot water bottle and a rest.

> > > UAE stands for Uterine Artery Embolization. It is

> > a relatively new procedure (about five years old, I

> > > think), wherein a small incision is made in the

> > upper thigh, a catheter is threaded into the arteries

> > > leading to the fibroids. Then some sort of

> > material is fed into the arteries, blocking the blood

> > supply to the fibroids. And when the fibroids can't get

> > blood, they shrink and die. The surgery is minimally invasive

and the recovery time is supposedly much, much shorter than other

procedures.>>>

[Guest guest]

Peggy, Can you tell us more about Cat's Claw? I only ever heard of it

being used for arthritis.

Unfortunately not everybody gets a great recovery from UAE. I'm one

of the less usual cases with prolonged pain. I didn't have pain from

fibroids pre UAE, but have had quite a bit in the 11 weeks since. Had

a very bad episode tonight. My fibroids and uterus are probably even

bigger than Peggy's so I'm not the most suitable subject for UAE. I

think the pain comes partly from a particularly large subserosal

fibroid and partly from intestinal cramps, maybe uterine cramping

too. Tonight I had lower back pain as well. I used two tramadol

tablets and a hot water bottle and a rest.

> > > UAE stands for Uterine Artery Embolization. It is

> > a relatively new procedure (about five years old, I

> > > think), wherein a small incision is made in the

> > upper thigh, a catheter is threaded into the arteries

> > > leading to the fibroids. Then some sort of

> > material is fed into the arteries, blocking the blood

> > supply to the fibroids. And when the fibroids can't get

> > blood, they shrink and die. The surgery is minimally invasive

and the recovery time is supposedly much, much shorter than other

procedures.>>>

[Guest guest]

Hi a,

My name is Celeste, 38 years old. Today, I am one

week post UFE. I honestly do not know where to begin.

I suppose there are still many things you will want

to know about the procedure as well as the anecdotal

posts. My experience was extremely positive beginning

with an excellent consult with the doctor and staff at

the hospital. We(my husband and me)arrived at the

hospital at7:00am We live about an hour away. I

already had my MRI so knew what to expect in terms of

location and size of fibroids. I waited for may be

twenty minutes and was prepped. The recovery nurse

told me that there were several things that needed to

happen prior to the procedure. They started an IV,

just glucose, put in a catheter,yuk, and I think

started pain meds. The doctor came in shortly there

after to talk with us. He went through again some of

the risks and I signed informed consent. I was in the

" procedure theater " about 8:45. Several additional

things happened and the procedure began. I was fully

alert although I literally felt NO pain. The IR

talked with me the entire time, explaining each thing

as he did it and instructing me on what I would see

on the monitor. Thats' right, I watched the entire

procedure on the monitor as well. I felt a warm

sensation when they injected dye and at the end, 9:30,

I distinctly recall cramping which they responded to

promptly with an adjustment in pain meds. I returned

to recovery very drugged and remained there for

several hours. When able, the doctor agreed with my

decision to go home and I was back in my own bed by

8:30 that night.

We were sent home with several different types of

medication. I had two narcotic pain medications, an

antibiotic, something for constipation, and an

anti-inflamatory. I had a difficult time for the next

36 hours as the pain management regimen was not

effective and the doctor was away. We did eventually

reach the person covering for him and adjusted the

medications accordingly. After the adjustment things

were much better and I stopped taking all medications

day five post procedure. Today, I feel pretty good.

I can't sleep much but have little to no pain. I do

have a full feeling in my lower abdomen but that is

it. I was pretty nervous going in and feel so happy

with my decision. Good luck and do not delay getting

information and meeting with doctors.

Celeste --- " a S. " wrote:

> I am new to this group; my name is a, and I'm

> 43. Recently I was

> diagnosed with two fibroid tumors -- one is 5 cm,

> and the other is 10

> cm. I am a candidate for UAE, and I would like to

> try this, as I

> don't want a hysterectomy. Not because of the

> resulting infertility

> (I had my tubes tied, so that's not an issue), but

> it just seems a

> hysterectomy is a very drastic solution. I do not

> suffer from

> excessive bleeding, but I do have pain and cramping,

> frequent

> urination and sometimes have pain/spotting with

> intercourse. I like

> the idea of minimally invasive surgery and reduced

> recovery time.

>

> I would like to hear from the women who have

> undergone this

> procedure -- what was it like? How did you feel?

> Did it work - have

> your fibroids shrunk? Would you recommend it? Any

> feedback will be

> sincerely appreciated; naturally, my gynecologist is

> pushing

> hysterectomy, because that's the easiest and most

> familiar procedure,

> but I'm just not ready to accept that solution yet.

>

> Thanks, everyone --

> a

>

>

>

[Guest guest]

Hi a,

My name is Celeste, 38 years old. Today, I am one

week post UFE. I honestly do not know where to begin.

I suppose there are still many things you will want

to know about the procedure as well as the anecdotal

posts. My experience was extremely positive beginning

with an excellent consult with the doctor and staff at

the hospital. We(my husband and me)arrived at the

hospital at7:00am We live about an hour away. I

already had my MRI so knew what to expect in terms of

location and size of fibroids. I waited for may be

twenty minutes and was prepped. The recovery nurse

told me that there were several things that needed to

happen prior to the procedure. They started an IV,

just glucose, put in a catheter,yuk, and I think

started pain meds. The doctor came in shortly there

after to talk with us. He went through again some of

the risks and I signed informed consent. I was in the

" procedure theater " about 8:45. Several additional

things happened and the procedure began. I was fully

alert although I literally felt NO pain. The IR

talked with me the entire time, explaining each thing

as he did it and instructing me on what I would see

on the monitor. Thats' right, I watched the entire

procedure on the monitor as well. I felt a warm

sensation when they injected dye and at the end, 9:30,

I distinctly recall cramping which they responded to

promptly with an adjustment in pain meds. I returned

to recovery very drugged and remained there for

several hours. When able, the doctor agreed with my

decision to go home and I was back in my own bed by

8:30 that night.

We were sent home with several different types of

medication. I had two narcotic pain medications, an

antibiotic, something for constipation, and an

anti-inflamatory. I had a difficult time for the next

36 hours as the pain management regimen was not

effective and the doctor was away. We did eventually

reach the person covering for him and adjusted the

medications accordingly. After the adjustment things

were much better and I stopped taking all medications

day five post procedure. Today, I feel pretty good.

I can't sleep much but have little to no pain. I do

have a full feeling in my lower abdomen but that is

it. I was pretty nervous going in and feel so happy

with my decision. Good luck and do not delay getting

information and meeting with doctors.

Celeste --- " a S. " wrote:

> I am new to this group; my name is a, and I'm

> 43. Recently I was

> diagnosed with two fibroid tumors -- one is 5 cm,

> and the other is 10

> cm. I am a candidate for UAE, and I would like to

> try this, as I

> don't want a hysterectomy. Not because of the

> resulting infertility

> (I had my tubes tied, so that's not an issue), but

> it just seems a

> hysterectomy is a very drastic solution. I do not

> suffer from

> excessive bleeding, but I do have pain and cramping,

> frequent

> urination and sometimes have pain/spotting with

> intercourse. I like

> the idea of minimally invasive surgery and reduced

> recovery time.

>

> I would like to hear from the women who have

> undergone this

> procedure -- what was it like? How did you feel?

> Did it work - have

> your fibroids shrunk? Would you recommend it? Any

> feedback will be

> sincerely appreciated; naturally, my gynecologist is

> pushing

> hysterectomy, because that's the easiest and most

> familiar procedure,

> but I'm just not ready to accept that solution yet.

>

> Thanks, everyone --

> a

>

>

>

[Guest guest]

Hi a,

My name is Celeste, 38 years old. Today, I am one

week post UFE. I honestly do not know where to begin.

I suppose there are still many things you will want

to know about the procedure as well as the anecdotal

posts. My experience was extremely positive beginning

with an excellent consult with the doctor and staff at

the hospital. We(my husband and me)arrived at the

hospital at7:00am We live about an hour away. I

already had my MRI so knew what to expect in terms of

location and size of fibroids. I waited for may be

twenty minutes and was prepped. The recovery nurse

told me that there were several things that needed to

happen prior to the procedure. They started an IV,

just glucose, put in a catheter,yuk, and I think

started pain meds. The doctor came in shortly there

after to talk with us. He went through again some of

the risks and I signed informed consent. I was in the

" procedure theater " about 8:45. Several additional

things happened and the procedure began. I was fully

alert although I literally felt NO pain. The IR

talked with me the entire time, explaining each thing

as he did it and instructing me on what I would see

on the monitor. Thats' right, I watched the entire

procedure on the monitor as well. I felt a warm

sensation when they injected dye and at the end, 9:30,

I distinctly recall cramping which they responded to

promptly with an adjustment in pain meds. I returned

to recovery very drugged and remained there for

several hours. When able, the doctor agreed with my

decision to go home and I was back in my own bed by

8:30 that night.

We were sent home with several different types of

medication. I had two narcotic pain medications, an

antibiotic, something for constipation, and an

anti-inflamatory. I had a difficult time for the next

36 hours as the pain management regimen was not

effective and the doctor was away. We did eventually

reach the person covering for him and adjusted the

medications accordingly. After the adjustment things

were much better and I stopped taking all medications

day five post procedure. Today, I feel pretty good.

I can't sleep much but have little to no pain. I do

have a full feeling in my lower abdomen but that is

it. I was pretty nervous going in and feel so happy

with my decision. Good luck and do not delay getting

information and meeting with doctors.

Celeste --- " a S. " wrote:

> I am new to this group; my name is a, and I'm

> 43. Recently I was

> diagnosed with two fibroid tumors -- one is 5 cm,

> and the other is 10

> cm. I am a candidate for UAE, and I would like to

> try this, as I

> don't want a hysterectomy. Not because of the

> resulting infertility

> (I had my tubes tied, so that's not an issue), but

> it just seems a

> hysterectomy is a very drastic solution. I do not

> suffer from

> excessive bleeding, but I do have pain and cramping,

> frequent

> urination and sometimes have pain/spotting with

> intercourse. I like

> the idea of minimally invasive surgery and reduced

> recovery time.

>

> I would like to hear from the women who have

> undergone this

> procedure -- what was it like? How did you feel?

> Did it work - have

> your fibroids shrunk? Would you recommend it? Any

> feedback will be

> sincerely appreciated; naturally, my gynecologist is

> pushing

> hysterectomy, because that's the easiest and most

> familiar procedure,

> but I'm just not ready to accept that solution yet.

>

> Thanks, everyone --

> a

>

>

>

[Guest guest]

Hi Celeste,

I wish you well with your procedure. I don't quite

know your situation, but my wife and I have been

trying to conceive for quite some time now, and she

found out yesterday that she has a very large fibroid

tumor growing inside of her uterus. I am writing

since she does not have much time to sift through the

emails. The doc wants to perform surgery to remove

the tumor, but says that he may have to remove the

uterus if it is damaged. We have no children so

neither one of us are too keen to that idea. We are

afraid that he may remove a uterus that has a

potentially slim chance of providing us with a child.

If you do not mind, may we ask where exactly you had

your UAE performed and maybe a little more specific

information on your condition. We are in Louisiana

and from what we understand, there aren't any docs

nearby that perform this type of procedure. Being

that you are a post procedure patient we would love

more information.

Thanks so much,

and Brent

--- celeste keane wrote:

> Hi a,

> My name is Celeste, 38 years old. Today, I am one

> week post UFE. I honestly do not know where to

> begin.

> I suppose there are still many things you will want

> to know about the procedure as well as the anecdotal

> posts. My experience was extremely positive

> beginning

> with an excellent consult with the doctor and staff

> at

> the hospital. We(my husband and me)arrived at the

> hospital at7:00am We live about an hour away. I

> already had my MRI so knew what to expect in terms

> of

> location and size of fibroids. I waited for may be

> twenty minutes and was prepped. The recovery nurse

> told me that there were several things that needed

> to

> happen prior to the procedure. They started an IV,

> just glucose, put in a catheter,yuk, and I think

> started pain meds. The doctor came in shortly there

> after to talk with us. He went through again some

> of

> the risks and I signed informed consent. I was in

> the

> " procedure theater " about 8:45. Several additional

> things happened and the procedure began. I was

> fully

> alert although I literally felt NO pain. The IR

> talked with me the entire time, explaining each

> thing

> as he did it and instructing me on what I would see

> on the monitor. Thats' right, I watched the entire

> procedure on the monitor as well. I felt a warm

> sensation when they injected dye and at the end,

> 9:30,

> I distinctly recall cramping which they responded to

> promptly with an adjustment in pain meds. I returned

> to recovery very drugged and remained there for

> several hours. When able, the doctor agreed with my

> decision to go home and I was back in my own bed by

> 8:30 that night.

>

> We were sent home with several different types of

> medication. I had two narcotic pain medications, an

> antibiotic, something for constipation, and an

> anti-inflamatory. I had a difficult time for the

> next

> 36 hours as the pain management regimen was not

> effective and the doctor was away. We did

> eventually

> reach the person covering for him and adjusted the

> medications accordingly. After the adjustment

> things

> were much better and I stopped taking all

> medications

> day five post procedure. Today, I feel pretty good.

>

> I can't sleep much but have little to no pain. I do

> have a full feeling in my lower abdomen but that is

> it. I was pretty nervous going in and feel so happy

> with my decision. Good luck and do not delay

> getting

> information and meeting with doctors.

> Celeste --- " a S. " wrote:

> > I am new to this group; my name is a, and I'm

> > 43. Recently I was

> > diagnosed with two fibroid tumors -- one is 5 cm,

> > and the other is 10

> > cm. I am a candidate for UAE, and I would like to

> > try this, as I

> > don't want a hysterectomy. Not because of the

> > resulting infertility

> > (I had my tubes tied, so that's not an issue), but

> > it just seems a

> > hysterectomy is a very drastic solution. I do not

> > suffer from

> > excessive bleeding, but I do have pain and

> cramping,

> > frequent

> > urination and sometimes have pain/spotting with

> > intercourse. I like

> > the idea of minimally invasive surgery and reduced

> > recovery time.

> >

> > I would like to hear from the women who have

> > undergone this

> > procedure -- what was it like? How did you feel?

> > Did it work - have

> > your fibroids shrunk? Would you recommend it?

> Any

> > feedback will be

> > sincerely appreciated; naturally, my gynecologist

> is

> > pushing

> > hysterectomy, because that's the easiest and most

> > familiar procedure,

> > but I'm just not ready to accept that solution

> yet.

> >

> > Thanks, everyone --

> > a

> >

> >

> >

[Guest guest]

Hi Celeste,

I wish you well with your procedure. I don't quite

know your situation, but my wife and I have been

trying to conceive for quite some time now, and she

found out yesterday that she has a very large fibroid

tumor growing inside of her uterus. I am writing

since she does not have much time to sift through the

emails. The doc wants to perform surgery to remove

the tumor, but says that he may have to remove the

uterus if it is damaged. We have no children so

neither one of us are too keen to that idea. We are

afraid that he may remove a uterus that has a

potentially slim chance of providing us with a child.

If you do not mind, may we ask where exactly you had

your UAE performed and maybe a little more specific

information on your condition. We are in Louisiana

and from what we understand, there aren't any docs

nearby that perform this type of procedure. Being

that you are a post procedure patient we would love

more information.

Thanks so much,

and Brent

--- celeste keane wrote:

> Hi a,

> My name is Celeste, 38 years old. Today, I am one

> week post UFE. I honestly do not know where to

> begin.

> I suppose there are still many things you will want

> to know about the procedure as well as the anecdotal

> posts. My experience was extremely positive

> beginning

> with an excellent consult with the doctor and staff

> at

> the hospital. We(my husband and me)arrived at the

> hospital at7:00am We live about an hour away. I

> already had my MRI so knew what to expect in terms

> of

> location and size of fibroids. I waited for may be

> twenty minutes and was prepped. The recovery nurse

> told me that there were several things that needed

> to

> happen prior to the procedure. They started an IV,

> just glucose, put in a catheter,yuk, and I think

> started pain meds. The doctor came in shortly there

> after to talk with us. He went through again some

> of

> the risks and I signed informed consent. I was in

> the

> " procedure theater " about 8:45. Several additional

> things happened and the procedure began. I was

> fully

> alert although I literally felt NO pain. The IR

> talked with me the entire time, explaining each

> thing

> as he did it and instructing me on what I would see

> on the monitor. Thats' right, I watched the entire

> procedure on the monitor as well. I felt a warm

> sensation when they injected dye and at the end,

> 9:30,

> I distinctly recall cramping which they responded to

> promptly with an adjustment in pain meds. I returned

> to recovery very drugged and remained there for

> several hours. When able, the doctor agreed with my

> decision to go home and I was back in my own bed by

> 8:30 that night.

>

> We were sent home with several different types of

> medication. I had two narcotic pain medications, an

> antibiotic, something for constipation, and an

> anti-inflamatory. I had a difficult time for the

> next

> 36 hours as the pain management regimen was not

> effective and the doctor was away. We did

> eventually

> reach the person covering for him and adjusted the

> medications accordingly. After the adjustment

> things

> were much better and I stopped taking all

> medications

> day five post procedure. Today, I feel pretty good.

>

> I can't sleep much but have little to no pain. I do

> have a full feeling in my lower abdomen but that is

> it. I was pretty nervous going in and feel so happy

> with my decision. Good luck and do not delay

> getting

> information and meeting with doctors.

> Celeste --- " a S. " wrote:

> > I am new to this group; my name is a, and I'm

> > 43. Recently I was

> > diagnosed with two fibroid tumors -- one is 5 cm,

> > and the other is 10

> > cm. I am a candidate for UAE, and I would like to

> > try this, as I

> > don't want a hysterectomy. Not because of the

> > resulting infertility

> > (I had my tubes tied, so that's not an issue), but

> > it just seems a

> > hysterectomy is a very drastic solution. I do not

> > suffer from

> > excessive bleeding, but I do have pain and

> cramping,

> > frequent

> > urination and sometimes have pain/spotting with

> > intercourse. I like

> > the idea of minimally invasive surgery and reduced

> > recovery time.

> >

> > I would like to hear from the women who have

> > undergone this

> > procedure -- what was it like? How did you feel?

> > Did it work - have

> > your fibroids shrunk? Would you recommend it?

> Any

> > feedback will be

> > sincerely appreciated; naturally, my gynecologist

> is

> > pushing

> > hysterectomy, because that's the easiest and most

> > familiar procedure,

> > but I'm just not ready to accept that solution

> yet.

> >

> > Thanks, everyone --

> > a

> >

> >

> >

[Guest guest]

Hi Celeste,

I wish you well with your procedure. I don't quite

know your situation, but my wife and I have been

trying to conceive for quite some time now, and she

found out yesterday that she has a very large fibroid

tumor growing inside of her uterus. I am writing

since she does not have much time to sift through the

emails. The doc wants to perform surgery to remove

the tumor, but says that he may have to remove the

uterus if it is damaged. We have no children so

neither one of us are too keen to that idea. We are

afraid that he may remove a uterus that has a

potentially slim chance of providing us with a child.

If you do not mind, may we ask where exactly you had

your UAE performed and maybe a little more specific

information on your condition. We are in Louisiana

and from what we understand, there aren't any docs

nearby that perform this type of procedure. Being

that you are a post procedure patient we would love

more information.

Thanks so much,

and Brent

--- celeste keane wrote:

> Hi a,

> My name is Celeste, 38 years old. Today, I am one

> week post UFE. I honestly do not know where to

> begin.

> I suppose there are still many things you will want

> to know about the procedure as well as the anecdotal

> posts. My experience was extremely positive

> beginning

> with an excellent consult with the doctor and staff

> at

> the hospital. We(my husband and me)arrived at the

> hospital at7:00am We live about an hour away. I

> already had my MRI so knew what to expect in terms

> of

> location and size of fibroids. I waited for may be

> twenty minutes and was prepped. The recovery nurse

> told me that there were several things that needed

> to

> happen prior to the procedure. They started an IV,

> just glucose, put in a catheter,yuk, and I think

> started pain meds. The doctor came in shortly there

> after to talk with us. He went through again some

> of

> the risks and I signed informed consent. I was in

> the

> " procedure theater " about 8:45. Several additional

> things happened and the procedure began. I was

> fully

> alert although I literally felt NO pain. The IR

> talked with me the entire time, explaining each

> thing

> as he did it and instructing me on what I would see

> on the monitor. Thats' right, I watched the entire

> procedure on the monitor as well. I felt a warm

> sensation when they injected dye and at the end,

> 9:30,

> I distinctly recall cramping which they responded to

> promptly with an adjustment in pain meds. I returned

> to recovery very drugged and remained there for

> several hours. When able, the doctor agreed with my

> decision to go home and I was back in my own bed by

> 8:30 that night.

>

> We were sent home with several different types of

> medication. I had two narcotic pain medications, an

> antibiotic, something for constipation, and an

> anti-inflamatory. I had a difficult time for the

> next

> 36 hours as the pain management regimen was not

> effective and the doctor was away. We did

> eventually

> reach the person covering for him and adjusted the

> medications accordingly. After the adjustment

> things

> were much better and I stopped taking all

> medications

> day five post procedure. Today, I feel pretty good.

>

> I can't sleep much but have little to no pain. I do

> have a full feeling in my lower abdomen but that is

> it. I was pretty nervous going in and feel so happy

> with my decision. Good luck and do not delay

> getting

> information and meeting with doctors.

> Celeste --- " a S. " wrote:

> > I am new to this group; my name is a, and I'm

> > 43. Recently I was

> > diagnosed with two fibroid tumors -- one is 5 cm,

> > and the other is 10

> > cm. I am a candidate for UAE, and I would like to

> > try this, as I

> > don't want a hysterectomy. Not because of the

> > resulting infertility

> > (I had my tubes tied, so that's not an issue), but

> > it just seems a

> > hysterectomy is a very drastic solution. I do not

> > suffer from

> > excessive bleeding, but I do have pain and

> cramping,

> > frequent

> > urination and sometimes have pain/spotting with

> > intercourse. I like

> > the idea of minimally invasive surgery and reduced

> > recovery time.

> >

> > I would like to hear from the women who have

> > undergone this

> > procedure -- what was it like? How did you feel?

> > Did it work - have

> > your fibroids shrunk? Would you recommend it?

> Any

> > feedback will be

> > sincerely appreciated; naturally, my gynecologist

> is

> > pushing

> > hysterectomy, because that's the easiest and most

> > familiar procedure,

> > but I'm just not ready to accept that solution

> yet.

> >

> > Thanks, everyone --

> > a

> >

> >

> >

[Guest guest]

B Romero,

Hello, replying to your post. I wish you and your wife

all the luck as my husband and I are trying to

conceive also. You asked about UAE, from the info that

I have been given, your wife would not be a candidate

for this if she wants to have kids. Myomectomy is an

option to preserve fertility. UAE, I believe cuts off

the blood supply to the arteries in the uterus that

feed the fibroids. Although, some people have been

known to conceive with UAE but you are taking a risk

at infertility. Myometomy is still the standard that

most Docs offer to maintain fertility. Best of luck,

SKY

--- b romero wrote:

> Hi Celeste,

>

> I wish you well with your procedure. I don't quite

> know your situation, but my wife and I have been

> trying to conceive for quite some time now, and she

> found out yesterday that she has a very large

> fibroid

> tumor growing inside of her uterus. I am writing

> since she does not have much time to sift through

> the

> emails. The doc wants to perform surgery to remove

> the tumor, but says that he may have to remove the

> uterus if it is damaged. We have no children so

> neither one of us are too keen to that idea. We are

> afraid that he may remove a uterus that has a

> potentially slim chance of providing us with a

> child.

>

> If you do not mind, may we ask where exactly you had

> your UAE performed and maybe a little more specific

> information on your condition. We are in Louisiana

> and from what we understand, there aren't any docs

> nearby that perform this type of procedure. Being

> that you are a post procedure patient we would love

> more information.

>

> Thanks so much,

>

> and Brent

> --- celeste keane wrote:

> > Hi a,

> > My name is Celeste, 38 years old. Today, I am one

> > week post UFE. I honestly do not know where to

> > begin.

> > I suppose there are still many things you will

> want

> > to know about the procedure as well as the

> anecdotal

> > posts. My experience was extremely positive

> > beginning

> > with an excellent consult with the doctor and

> staff

> > at

> > the hospital. We(my husband and me)arrived at the

> > hospital at7:00am We live about an hour away. I

> > already had my MRI so knew what to expect in terms

> > of

> > location and size of fibroids. I waited for may

> be

> > twenty minutes and was prepped. The recovery

> nurse

> > told me that there were several things that needed

> > to

> > happen prior to the procedure. They started an

> IV,

> > just glucose, put in a catheter,yuk, and I think

> > started pain meds. The doctor came in shortly

> there

> > after to talk with us. He went through again some

> > of

> > the risks and I signed informed consent. I was in

> > the

> > " procedure theater " about 8:45. Several

> additional

> > things happened and the procedure began. I was

> > fully

> > alert although I literally felt NO pain. The IR

> > talked with me the entire time, explaining each

> > thing

> > as he did it and instructing me on what I would

> see

> > on the monitor. Thats' right, I watched the

> entire

> > procedure on the monitor as well. I felt a warm

> > sensation when they injected dye and at the end,

> > 9:30,

> > I distinctly recall cramping which they responded

> to

> > promptly with an adjustment in pain meds. I

> returned

> > to recovery very drugged and remained there for

> > several hours. When able, the doctor agreed with

> my

> > decision to go home and I was back in my own bed

> by

> > 8:30 that night.

> >

> > We were sent home with several different types of

> > medication. I had two narcotic pain medications,

> an

> > antibiotic, something for constipation, and an

> > anti-inflamatory. I had a difficult time for the

> > next

> > 36 hours as the pain management regimen was not

> > effective and the doctor was away. We did

> > eventually

> > reach the person covering for him and adjusted the

> > medications accordingly. After the adjustment

> > things

> > were much better and I stopped taking all

> > medications

> > day five post procedure. Today, I feel pretty

> good.

> >

> > I can't sleep much but have little to no pain. I

> do

> > have a full feeling in my lower abdomen but that

> is

> > it. I was pretty nervous going in and feel so

> happy

> > with my decision. Good luck and do not delay

> > getting

> > information and meeting with doctors.

> > Celeste --- " a S. " wrote:

> > > I am new to this group; my name is a, and

> I'm

> > > 43. Recently I was

> > > diagnosed with two fibroid tumors -- one is 5

> cm,

> > > and the other is 10

> > > cm. I am a candidate for UAE, and I would like

> to

> > > try this, as I

> > > don't want a hysterectomy. Not because of the

> > > resulting infertility

> > > (I had my tubes tied, so that's not an issue),

> but

> > > it just seems a

> > > hysterectomy is a very drastic solution. I do

> not

> > > suffer from

> > > excessive bleeding, but I do have pain and

> > cramping,

> > > frequent

> > > urination and sometimes have pain/spotting with

> > > intercourse. I like

> > > the idea of minimally invasive surgery and

> reduced

> > > recovery time.

> > >

> > > I would like to hear from the women who have

> > > undergone this

> > > procedure -- what was it like? How did you

> feel?

> > > Did it work - have

> > > your fibroids shrunk? Would you recommend it?

> > Any

> > > feedback will be

> > > sincerely appreciated; naturally, my

> gynecologist

> > is

> > > pushing

> > > hysterectomy, because that's the easiest and

> most

> > > familiar procedure,

> > > but I'm just not ready to accept that solution

> > yet.

> > >

> > > Thanks, everyone --

> > > a

> > >

> > >

> > >

[Guest guest]

B Romero,

Hello, replying to your post. I wish you and your wife

all the luck as my husband and I are trying to

conceive also. You asked about UAE, from the info that

I have been given, your wife would not be a candidate

for this if she wants to have kids. Myomectomy is an

option to preserve fertility. UAE, I believe cuts off

the blood supply to the arteries in the uterus that

feed the fibroids. Although, some people have been

known to conceive with UAE but you are taking a risk

at infertility. Myometomy is still the standard that

most Docs offer to maintain fertility. Best of luck,

SKY

--- b romero wrote:

> Hi Celeste,

>

> I wish you well with your procedure. I don't quite

> know your situation, but my wife and I have been

> trying to conceive for quite some time now, and she

> found out yesterday that she has a very large

> fibroid

> tumor growing inside of her uterus. I am writing

> since she does not have much time to sift through

> the

> emails. The doc wants to perform surgery to remove

> the tumor, but says that he may have to remove the

> uterus if it is damaged. We have no children so

> neither one of us are too keen to that idea. We are

> afraid that he may remove a uterus that has a

> potentially slim chance of providing us with a

> child.

>

> If you do not mind, may we ask where exactly you had

> your UAE performed and maybe a little more specific

> information on your condition. We are in Louisiana

> and from what we understand, there aren't any docs

> nearby that perform this type of procedure. Being

> that you are a post procedure patient we would love

> more information.

>

> Thanks so much,

>

> and Brent

> --- celeste keane wrote:

> > Hi a,

> > My name is Celeste, 38 years old. Today, I am one

> > week post UFE. I honestly do not know where to

> > begin.

> > I suppose there are still many things you will

> want

> > to know about the procedure as well as the

> anecdotal

> > posts. My experience was extremely positive

> > beginning

> > with an excellent consult with the doctor and

> staff

> > at

> > the hospital. We(my husband and me)arrived at the

> > hospital at7:00am We live about an hour away. I

> > already had my MRI so knew what to expect in terms

> > of

> > location and size of fibroids. I waited for may

> be

> > twenty minutes and was prepped. The recovery

> nurse

> > told me that there were several things that needed

> > to

> > happen prior to the procedure. They started an

> IV,

> > just glucose, put in a catheter,yuk, and I think

> > started pain meds. The doctor came in shortly

> there

> > after to talk with us. He went through again some

> > of

> > the risks and I signed informed consent. I was in

> > the

> > " procedure theater " about 8:45. Several

> additional

> > things happened and the procedure began. I was

> > fully

> > alert although I literally felt NO pain. The IR

> > talked with me the entire time, explaining each

> > thing

> > as he did it and instructing me on what I would

> see

> > on the monitor. Thats' right, I watched the

> entire

> > procedure on the monitor as well. I felt a warm

> > sensation when they injected dye and at the end,

> > 9:30,

> > I distinctly recall cramping which they responded

> to

> > promptly with an adjustment in pain meds. I

> returned

> > to recovery very drugged and remained there for

> > several hours. When able, the doctor agreed with

> my

> > decision to go home and I was back in my own bed

> by

> > 8:30 that night.

> >

> > We were sent home with several different types of

> > medication. I had two narcotic pain medications,

> an

> > antibiotic, something for constipation, and an

> > anti-inflamatory. I had a difficult time for the

> > next

> > 36 hours as the pain management regimen was not

> > effective and the doctor was away. We did

> > eventually

> > reach the person covering for him and adjusted the

> > medications accordingly. After the adjustment

> > things

> > were much better and I stopped taking all

> > medications

> > day five post procedure. Today, I feel pretty

> good.

> >

> > I can't sleep much but have little to no pain. I

> do

> > have a full feeling in my lower abdomen but that

> is

> > it. I was pretty nervous going in and feel so

> happy

> > with my decision. Good luck and do not delay

> > getting

> > information and meeting with doctors.

> > Celeste --- " a S. " wrote:

> > > I am new to this group; my name is a, and

> I'm

> > > 43. Recently I was

> > > diagnosed with two fibroid tumors -- one is 5

> cm,

> > > and the other is 10

> > > cm. I am a candidate for UAE, and I would like

> to

> > > try this, as I

> > > don't want a hysterectomy. Not because of the

> > > resulting infertility

> > > (I had my tubes tied, so that's not an issue),

> but

> > > it just seems a

> > > hysterectomy is a very drastic solution. I do

> not

> > > suffer from

> > > excessive bleeding, but I do have pain and

> > cramping,

> > > frequent

> > > urination and sometimes have pain/spotting with

> > > intercourse. I like

> > > the idea of minimally invasive surgery and

> reduced

> > > recovery time.

> > >

> > > I would like to hear from the women who have

> > > undergone this

> > > procedure -- what was it like? How did you

> feel?

> > > Did it work - have

> > > your fibroids shrunk? Would you recommend it?

> > Any

> > > feedback will be

> > > sincerely appreciated; naturally, my

> gynecologist

> > is

> > > pushing

> > > hysterectomy, because that's the easiest and

> most

> > > familiar procedure,

> > > but I'm just not ready to accept that solution

> > yet.

> > >

> > > Thanks, everyone --

> > > a

> > >

> > >

> > >

[Guest guest]

B Romero,

Hello, replying to your post. I wish you and your wife

all the luck as my husband and I are trying to

conceive also. You asked about UAE, from the info that

I have been given, your wife would not be a candidate

for this if she wants to have kids. Myomectomy is an

option to preserve fertility. UAE, I believe cuts off

the blood supply to the arteries in the uterus that

feed the fibroids. Although, some people have been

known to conceive with UAE but you are taking a risk

at infertility. Myometomy is still the standard that

most Docs offer to maintain fertility. Best of luck,

SKY

--- b romero wrote:

> Hi Celeste,

>

> I wish you well with your procedure. I don't quite

> know your situation, but my wife and I have been

> trying to conceive for quite some time now, and she

> found out yesterday that she has a very large

> fibroid

> tumor growing inside of her uterus. I am writing

> since she does not have much time to sift through

> the

> emails. The doc wants to perform surgery to remove

> the tumor, but says that he may have to remove the

> uterus if it is damaged. We have no children so

> neither one of us are too keen to that idea. We are

> afraid that he may remove a uterus that has a

> potentially slim chance of providing us with a

> child.

>

> If you do not mind, may we ask where exactly you had

> your UAE performed and maybe a little more specific

> information on your condition. We are in Louisiana

> and from what we understand, there aren't any docs

> nearby that perform this type of procedure. Being

> that you are a post procedure patient we would love

> more information.

>

> Thanks so much,

>

> and Brent

> --- celeste keane wrote:

> > Hi a,

> > My name is Celeste, 38 years old. Today, I am one

> > week post UFE. I honestly do not know where to

> > begin.

> > I suppose there are still many things you will

> want

> > to know about the procedure as well as the

> anecdotal

> > posts. My experience was extremely positive

> > beginning

> > with an excellent consult with the doctor and

> staff

> > at

> > the hospital. We(my husband and me)arrived at the

> > hospital at7:00am We live about an hour away. I

> > already had my MRI so knew what to expect in terms

> > of

> > location and size of fibroids. I waited for may

> be

> > twenty minutes and was prepped. The recovery

> nurse

> > told me that there were several things that needed

> > to

> > happen prior to the procedure. They started an

> IV,

> > just glucose, put in a catheter,yuk, and I think

> > started pain meds. The doctor came in shortly

> there

> > after to talk with us. He went through again some

> > of

> > the risks and I signed informed consent. I was in

> > the

> > " procedure theater " about 8:45. Several

> additional

> > things happened and the procedure began. I was

> > fully

> > alert although I literally felt NO pain. The IR

> > talked with me the entire time, explaining each

> > thing

> > as he did it and instructing me on what I would

> see

> > on the monitor. Thats' right, I watched the

> entire

> > procedure on the monitor as well. I felt a warm

> > sensation when they injected dye and at the end,

> > 9:30,

> > I distinctly recall cramping which they responded

> to

> > promptly with an adjustment in pain meds. I

> returned

> > to recovery very drugged and remained there for

> > several hours. When able, the doctor agreed with

> my

> > decision to go home and I was back in my own bed

> by

> > 8:30 that night.

> >

> > We were sent home with several different types of

> > medication. I had two narcotic pain medications,

> an

> > antibiotic, something for constipation, and an

> > anti-inflamatory. I had a difficult time for the

> > next

> > 36 hours as the pain management regimen was not

> > effective and the doctor was away. We did

> > eventually

> > reach the person covering for him and adjusted the

> > medications accordingly. After the adjustment

> > things

> > were much better and I stopped taking all

> > medications

> > day five post procedure. Today, I feel pretty

> good.

> >

> > I can't sleep much but have little to no pain. I

> do

> > have a full feeling in my lower abdomen but that

> is

> > it. I was pretty nervous going in and feel so

> happy

> > with my decision. Good luck and do not delay

> > getting

> > information and meeting with doctors.

> > Celeste --- " a S. " wrote:

> > > I am new to this group; my name is a, and

> I'm

> > > 43. Recently I was

> > > diagnosed with two fibroid tumors -- one is 5

> cm,

> > > and the other is 10

> > > cm. I am a candidate for UAE, and I would like

> to

> > > try this, as I

> > > don't want a hysterectomy. Not because of the

> > > resulting infertility

> > > (I had my tubes tied, so that's not an issue),

> but

> > > it just seems a

> > > hysterectomy is a very drastic solution. I do

> not

> > > suffer from

> > > excessive bleeding, but I do have pain and

> > cramping,

> > > frequent

> > > urination and sometimes have pain/spotting with

> > > intercourse. I like

> > > the idea of minimally invasive surgery and

> reduced

> > > recovery time.

> > >

> > > I would like to hear from the women who have

> > > undergone this

> > > procedure -- what was it like? How did you

> feel?

> > > Did it work - have

> > > your fibroids shrunk? Would you recommend it?

> > Any

> > > feedback will be

> > > sincerely appreciated; naturally, my

> gynecologist

> > is

> > > pushing

> > > hysterectomy, because that's the easiest and

> most

> > > familiar procedure,

> > > but I'm just not ready to accept that solution

> > yet.

> > >

> > > Thanks, everyone --

> > > a

> > >

> > >

> > >