RE: Hi, new here with a 3 year old with CD...

[Guest guest]

I would buy a new colander. I don't think it's possible to get the pasta (meaning gluten) slime out of the tiny holes in the colander...why take a chance when you can buy a new one at the dollar store? I don't know of any celiacs who don't have a separate one!

Dana, Gloriously GF

[Guest guest]

First, take a deep breath. Second, know you are not alone. There are many people on this board with small children going and we all went through exactly what you are now. My son was just diagnosed in June...he's 2 1/2.

Now, how careful do you have to be? Well, the toaster and the colander are both important. Replace any wooden utensils you use as well. Or, do not use them to cook GF and use something else instead. You will find that there are many, many "mainstream" foods that are GF so a lot of the "special" stuff is not necessary. You just might have to change brands is all. The hardest things are breads, baked goods, crackers and cereal. The mixes are great to have on hand for "emergencies" but it's definitely cheaper to make things from scratch with the "special" flours. I highly recommend Danna Korn's book on Raising our Celiac Kids...you will find it indespensible...and Bette Hagman's cookbooks. I have the Gluten Free Gourmet: Living Well without Wheat and I could not live without it.

ANd, last but most importantly, keep coming to this group. It's great!!!

Bridget

-----Original Message-----From: and Kristopher Sent: Tuesday, September 14, 2004 4:06 PMTo: SillyYaks Subject: Hi, new here with a 3 year old with CD...We just had our son diagnosed with CD. He has had 2 strongly positiveblood tests but his biopsy only showed damage and inflamation from avery severe gluten allergy so far... We think that just means wecought it before it could cause any worse damage...Anyway I am being tested and we are trying to decide if we will testour 1 year old daughter also since she has similar symptoms. I am at a loss though. I keep reading and trying to figure out what Iam doing. I have bought all this special gluten free food and amtrying to be careful but at the same time I just have such a hard timegrasping the concept of things like cross contamination??? My husbandand my family think it's insane when I said that I was told to buy newthings like a new toaster and new collander for his GF food only...And the idea of having multiple items of like Peanut butter and Jellyjust makes my husband convinced I am loosing my mind...I just dont know how serious I have to be about that stuff and what Ican let slide. We are really very tight on money and this specialfood is really killing us, I dont know how I will afford to buy somany new kitchen things if it is really necessary to get them.Any help would be greatly appreciated.. Thank you, , waiting on test results... (5-23-01), diagnosed with CD.Emma (7-17-03), yet to be tested.

[Guest guest]

Hi . Welcome to the world of gluten free. You've done a good job

getting your child diagnosed!

I think a new toaster is a worthwhile investment to prevent cross

contamination. Also a skillet that you can use for grilled cheeses on GF

bread, sauteeing, etc.

A good cookbook if you are short on cash is The Gluten Free Kitchen by

Roben Ryberg. She uses just corn starch and potato starch (I think) to

make her recipes, so you don't need a lot of expensive speciality flours

(you do need xanthan gum). The cornbread recipe (version 1) is worth the

price of the book alone. There are also lots of good recipe sites where

you can get GF recipes for free.

It's hard convincing people about cross-contamination issues, but they

are real.

Good luck,

Elaine

and Kristopher wrote:

> We just had our son diagnosed with CD. He has had 2 strongly positive

> blood tests but his biopsy only showed damage and inflamation from a

> very severe gluten allergy so far... We think that just means we

> cought it before it could cause any worse damage...

[Guest guest]

Hi . Welcome to the world of gluten free. You've done a good job

getting your child diagnosed!

I think a new toaster is a worthwhile investment to prevent cross

contamination. Also a skillet that you can use for grilled cheeses on GF

bread, sauteeing, etc.

A good cookbook if you are short on cash is The Gluten Free Kitchen by

Roben Ryberg. She uses just corn starch and potato starch (I think) to

make her recipes, so you don't need a lot of expensive speciality flours

(you do need xanthan gum). The cornbread recipe (version 1) is worth the

price of the book alone. There are also lots of good recipe sites where

you can get GF recipes for free.

It's hard convincing people about cross-contamination issues, but they

are real.

Good luck,

Elaine

and Kristopher wrote:

> We just had our son diagnosed with CD. He has had 2 strongly positive

> blood tests but his biopsy only showed damage and inflamation from a

> very severe gluten allergy so far... We think that just means we

> cought it before it could cause any worse damage...

[Guest guest]

Hi . Welcome to the world of gluten free. You've done a good job

getting your child diagnosed!

I think a new toaster is a worthwhile investment to prevent cross

contamination. Also a skillet that you can use for grilled cheeses on GF

bread, sauteeing, etc.

A good cookbook if you are short on cash is The Gluten Free Kitchen by

Roben Ryberg. She uses just corn starch and potato starch (I think) to

make her recipes, so you don't need a lot of expensive speciality flours

(you do need xanthan gum). The cornbread recipe (version 1) is worth the

price of the book alone. There are also lots of good recipe sites where

you can get GF recipes for free.

It's hard convincing people about cross-contamination issues, but they

are real.

Good luck,

Elaine

and Kristopher wrote:

> We just had our son diagnosed with CD. He has had 2 strongly positive

> blood tests but his biopsy only showed damage and inflamation from a

> very severe gluten allergy so far... We think that just means we

> cought it before it could cause any worse damage...

[Guest guest]

I have a follow up question based on a comment in the last response.

You mentioned one should change their wooden utensils.

Is that necessary? Isn't the dishwasher enough to remove any gluten

remnants?

Thanks for you help

paul stefano

> First, take a deep breath. Second, know you are not alone. There

are

> many people on this board with small children going and we all went

> through exactly what you are now. My son was just diagnosed in

> June...he's 2 1/2.

>

> Now, how careful do you have to be? Well, the toaster and the

colander

> are both important. Replace any wooden utensils you use as well.

Or, do

> not use them to cook GF and use something else instead. You will

find

> that there are many, many " mainstream " foods that are GF so a lot

of the

> " special " stuff is not necessary. You just might have to change

brands

> is all. The hardest things are breads, baked goods, crackers and

cereal.

> The mixes are great to have on hand for " emergencies " but it's

> definitely cheaper to make things from scratch with the " special "

> flours. I highly recommend Danna Korn's book on Raising our Celiac

> Kids...you will find it indespensible...and Bette Hagman's

cookbooks. I

> have the Gluten Free Gourmet: Living Well without Wheat and I

could not

> live without it.

>

> ANd, last but most importantly, keep coming to this group. It's

great!!!

>

> Bridget

>

> Hi, new here with a 3 year old with

CD...

>

>

> We just had our son diagnosed with CD. He has had 2 strongly

> positive

> blood tests but his biopsy only showed damage and inflamation

> from a

> very severe gluten allergy so far... We think that just

means

> we

> cought it before it could cause any worse damage...

>

> Anyway I am being tested and we are trying to decide if we

will

> test

> our 1 year old daughter also since she has similar

symptoms.

>

> I am at a loss though. I keep reading and trying to figure

out

> what I

> am doing. I have bought all this special gluten free food

and

> am

> trying to be careful but at the same time I just have such a

> hard time

> grasping the concept of things like cross contamination???

My

> husband

> and my family think it's insane when I said that I was told

to

> buy new

> things like a new toaster and new collander for his GF food

> only...

> And the idea of having multiple items of like Peanut butter

and

> Jelly

> just makes my husband convinced I am loosing my mind...

>

> I just dont know how serious I have to be about that stuff

and

> what I

> can let slide. We are really very tight on money and this

> special

> food is really killing us, I dont know how I will afford to

buy

> so

> many new kitchen things if it is really necessary to get

them.

>

> Any help would be greatly appreciated..

>

> Thank you,

> , waiting on test results...

> (5-23-01), diagnosed with CD.

> Emma (7-17-03), yet to be tested.

>

>

>

>

[Guest guest]

I have a follow up question based on a comment in the last response.

You mentioned one should change their wooden utensils.

Is that necessary? Isn't the dishwasher enough to remove any gluten

remnants?

Thanks for you help

paul stefano

> First, take a deep breath. Second, know you are not alone. There

are

> many people on this board with small children going and we all went

> through exactly what you are now. My son was just diagnosed in

> June...he's 2 1/2.

>

> Now, how careful do you have to be? Well, the toaster and the

colander

> are both important. Replace any wooden utensils you use as well.

Or, do

> not use them to cook GF and use something else instead. You will

find

> that there are many, many " mainstream " foods that are GF so a lot

of the

> " special " stuff is not necessary. You just might have to change

brands

> is all. The hardest things are breads, baked goods, crackers and

cereal.

> The mixes are great to have on hand for " emergencies " but it's

> definitely cheaper to make things from scratch with the " special "

> flours. I highly recommend Danna Korn's book on Raising our Celiac

> Kids...you will find it indespensible...and Bette Hagman's

cookbooks. I

> have the Gluten Free Gourmet: Living Well without Wheat and I

could not

> live without it.

>

> ANd, last but most importantly, keep coming to this group. It's

great!!!

>

> Bridget

>

> Hi, new here with a 3 year old with

CD...

>

>

> We just had our son diagnosed with CD. He has had 2 strongly

> positive

> blood tests but his biopsy only showed damage and inflamation

> from a

> very severe gluten allergy so far... We think that just

means

> we

> cought it before it could cause any worse damage...

>

> Anyway I am being tested and we are trying to decide if we

will

> test

> our 1 year old daughter also since she has similar

symptoms.

>

> I am at a loss though. I keep reading and trying to figure

out

> what I

> am doing. I have bought all this special gluten free food

and

> am

> trying to be careful but at the same time I just have such a

> hard time

> grasping the concept of things like cross contamination???

My

> husband

> and my family think it's insane when I said that I was told

to

> buy new

> things like a new toaster and new collander for his GF food

> only...

> And the idea of having multiple items of like Peanut butter

and

> Jelly

> just makes my husband convinced I am loosing my mind...

>

> I just dont know how serious I have to be about that stuff

and

> what I

> can let slide. We are really very tight on money and this

> special

> food is really killing us, I dont know how I will afford to

buy

> so

> many new kitchen things if it is really necessary to get

them.

>

> Any help would be greatly appreciated..

>

> Thank you,

> , waiting on test results...

> (5-23-01), diagnosed with CD.

> Emma (7-17-03), yet to be tested.

>

>

>

>

[Guest guest]

I have a follow up question based on a comment in the last response.

You mentioned one should change their wooden utensils.

Is that necessary? Isn't the dishwasher enough to remove any gluten

remnants?

Thanks for you help

paul stefano

> First, take a deep breath. Second, know you are not alone. There

are

> many people on this board with small children going and we all went

> through exactly what you are now. My son was just diagnosed in

> June...he's 2 1/2.

>

> Now, how careful do you have to be? Well, the toaster and the

colander

> are both important. Replace any wooden utensils you use as well.

Or, do

> not use them to cook GF and use something else instead. You will

find

> that there are many, many " mainstream " foods that are GF so a lot

of the

> " special " stuff is not necessary. You just might have to change

brands

> is all. The hardest things are breads, baked goods, crackers and

cereal.

> The mixes are great to have on hand for " emergencies " but it's

> definitely cheaper to make things from scratch with the " special "

> flours. I highly recommend Danna Korn's book on Raising our Celiac

> Kids...you will find it indespensible...and Bette Hagman's

cookbooks. I

> have the Gluten Free Gourmet: Living Well without Wheat and I

could not

> live without it.

>

> ANd, last but most importantly, keep coming to this group. It's

great!!!

>

> Bridget

>

> Hi, new here with a 3 year old with

CD...

>

>

> We just had our son diagnosed with CD. He has had 2 strongly

> positive

> blood tests but his biopsy only showed damage and inflamation

> from a

> very severe gluten allergy so far... We think that just

means

> we

> cought it before it could cause any worse damage...

>

> Anyway I am being tested and we are trying to decide if we

will

> test

> our 1 year old daughter also since she has similar

symptoms.

>

> I am at a loss though. I keep reading and trying to figure

out

> what I

> am doing. I have bought all this special gluten free food

and

> am

> trying to be careful but at the same time I just have such a

> hard time

> grasping the concept of things like cross contamination???

My

> husband

> and my family think it's insane when I said that I was told

to

> buy new

> things like a new toaster and new collander for his GF food

> only...

> And the idea of having multiple items of like Peanut butter

and

> Jelly

> just makes my husband convinced I am loosing my mind...

>

> I just dont know how serious I have to be about that stuff

and

> what I

> can let slide. We are really very tight on money and this

> special

> food is really killing us, I dont know how I will afford to

buy

> so

> many new kitchen things if it is really necessary to get

them.

>

> Any help would be greatly appreciated..

>

> Thank you,

> , waiting on test results...

> (5-23-01), diagnosed with CD.

> Emma (7-17-03), yet to be tested.

>

>

>

>

[Guest guest]

Hi, , I know that you aren't going to appreciate my recommending you spend money to buy the book, KIDS WITH CELIAC DISEASE, by Danna Korn, but it would be outstanding for helping you deal with the issues you just raised and a whole lot more involving celiac children. You probably can buy it cheapest at http://www.overstock.com, $12.09, including shipping.

Since your son has celiac, it had to come from somewhere because it is a genetic disease--almost certainly you or your husband have a celiac gene. Danna Korn suggests explaining celiac with words like "toxic". Her Quick Start Diet Guide for Celiac Disease could help those who sometimes feed your children or sometimes do the grocery shopping.

With the purchase of Tinkyada pasta (which many believe to be the best gluten-free pasta, and our family likes it better than gluten pasta), you can make many pasta meals, such as spaghetti, meat sauce and macaroni, and so on that are cheaper and usually please the whole family.

Separate butter or margarine, peanut butter and jelly don't cost any more than one jar, because two of each lasts longer.

Some people toast the celiac's toast in the oven or the microwave. Since your child is so young--maybe you can spend some of his Christmas money on a separate toaster. He might be very proud to have his own.

I don't know about a collander--I've never seen it mentioned to be a separate item for a celiac. My thinking is that putting it through the dishwasher and using it first for the celiac should take care of the problem. Others may tell you differently.

Jo Anne

Hi, new here with a 3 year old with CD...

We just had our son diagnosed with CD. He has had 2 strongly positiveblood tests but his biopsy only showed damage and inflamation from avery severe gluten allergy so far... We think that just means wecought it before it could cause any worse damage...Anyway I am being tested and we are trying to decide if we will testour 1 year old daughter also since she has similar symptoms. I am at a loss though. I keep reading and trying to figure out what Iam doing. I have bought all this special gluten free food and amtrying to be careful but at the same time I just have such a hard timegrasping the concept of things like cross contamination??? My husbandand my family think it's insane when I said that I was told to buy newthings like a new toaster and new collander for his GF food only...And the idea of having multiple items of like Peanut butter and Jellyjust makes my husband convinced I am loosing my mind...I just dont know how serious I have to be about that stuff and what Ican let slide. We are really very tight on money and this specialfood is really killing us, I dont know how I will afford to buy somany new kitchen things if it is really necessary to get them.Any help would be greatly appreciated.. Thank you, , waiting on test results... (5-23-01), diagnosed with CD.Emma (7-17-03), yet to be tested.

[Guest guest]

Hi, , I know that you aren't going to appreciate my recommending you spend money to buy the book, KIDS WITH CELIAC DISEASE, by Danna Korn, but it would be outstanding for helping you deal with the issues you just raised and a whole lot more involving celiac children. You probably can buy it cheapest at http://www.overstock.com, $12.09, including shipping.

Since your son has celiac, it had to come from somewhere because it is a genetic disease--almost certainly you or your husband have a celiac gene. Danna Korn suggests explaining celiac with words like "toxic". Her Quick Start Diet Guide for Celiac Disease could help those who sometimes feed your children or sometimes do the grocery shopping.

With the purchase of Tinkyada pasta (which many believe to be the best gluten-free pasta, and our family likes it better than gluten pasta), you can make many pasta meals, such as spaghetti, meat sauce and macaroni, and so on that are cheaper and usually please the whole family.

Separate butter or margarine, peanut butter and jelly don't cost any more than one jar, because two of each lasts longer.

Some people toast the celiac's toast in the oven or the microwave. Since your child is so young--maybe you can spend some of his Christmas money on a separate toaster. He might be very proud to have his own.

I don't know about a collander--I've never seen it mentioned to be a separate item for a celiac. My thinking is that putting it through the dishwasher and using it first for the celiac should take care of the problem. Others may tell you differently.

Jo Anne

Hi, new here with a 3 year old with CD...

We just had our son diagnosed with CD. He has had 2 strongly positiveblood tests but his biopsy only showed damage and inflamation from avery severe gluten allergy so far... We think that just means wecought it before it could cause any worse damage...Anyway I am being tested and we are trying to decide if we will testour 1 year old daughter also since she has similar symptoms. I am at a loss though. I keep reading and trying to figure out what Iam doing. I have bought all this special gluten free food and amtrying to be careful but at the same time I just have such a hard timegrasping the concept of things like cross contamination??? My husbandand my family think it's insane when I said that I was told to buy newthings like a new toaster and new collander for his GF food only...And the idea of having multiple items of like Peanut butter and Jellyjust makes my husband convinced I am loosing my mind...I just dont know how serious I have to be about that stuff and what Ican let slide. We are really very tight on money and this specialfood is really killing us, I dont know how I will afford to buy somany new kitchen things if it is really necessary to get them.Any help would be greatly appreciated.. Thank you, , waiting on test results... (5-23-01), diagnosed with CD.Emma (7-17-03), yet to be tested.

[Guest guest]

Thank you for your reply... I have a question about the skillet

actually... I heard as long as they are washed out well it is ok (I

have the Tfal?, coated, stuff) got very ill last night though

and I am trying to figure out what caused it. It could be either the

Ragu spagetti sauce I used or my spices... Basically I am trashing

the left overs and not using Ragu again because they could only tell

me that if it contained wheat it would be listed. I had to explain to

the lady that Gluten is in so much more than just wheat! I was

wondering about the pot though and now that you mentioned it I am

wondering more... All my dishes go through the dish washer so are

they getting clean enough or should I get a special pot/skillet just

for his stuff??? Most of the stuff we will be using from now on will

be GF just to make it easier and avoid chances of him getting

something he can't have. So like I got rid of all our regular pasta.

But I still make my own pancakes till I use up that mix then I will

go to completely GF pancakes and that stuff also. I made a cake for

him the other day and it tasted good so I see no reason to have to

make 2 of everythin when his food doesn't taste bad.

Anyway I better go... Wanted to run errands but never get around to

it. lol!

> Hi . Welcome to the world of gluten free. You've done a good job

> getting your child diagnosed!

>

> I think a new toaster is a worthwhile investment to prevent cross

> contamination. Also a skillet that you can use for grilled cheeses

on GF

> bread, sauteeing, etc.

[Guest guest]

Thank you for your reply... I have a question about the skillet

actually... I heard as long as they are washed out well it is ok (I

have the Tfal?, coated, stuff) got very ill last night though

and I am trying to figure out what caused it. It could be either the

Ragu spagetti sauce I used or my spices... Basically I am trashing

the left overs and not using Ragu again because they could only tell

me that if it contained wheat it would be listed. I had to explain to

the lady that Gluten is in so much more than just wheat! I was

wondering about the pot though and now that you mentioned it I am

wondering more... All my dishes go through the dish washer so are

they getting clean enough or should I get a special pot/skillet just

for his stuff??? Most of the stuff we will be using from now on will

be GF just to make it easier and avoid chances of him getting

something he can't have. So like I got rid of all our regular pasta.

But I still make my own pancakes till I use up that mix then I will

go to completely GF pancakes and that stuff also. I made a cake for

him the other day and it tasted good so I see no reason to have to

make 2 of everythin when his food doesn't taste bad.

Anyway I better go... Wanted to run errands but never get around to

it. lol!

> Hi . Welcome to the world of gluten free. You've done a good job

> getting your child diagnosed!

>

> I think a new toaster is a worthwhile investment to prevent cross

> contamination. Also a skillet that you can use for grilled cheeses

on GF

> bread, sauteeing, etc.

[Guest guest]

Actually I went and bought that book and 2 cookbooks before we even

had the final diagnosis. His first blood test when he was really sick

came back strongly positive and the specialist said that with

william's symptoms and that test he was 75% positive he had CD. The

biopsy came back showing a very severe gluten allergy but they weren't

sure it was CD yet, but they said he would have to be on the same diet

so I got those books right away. This 2nd blood test came back

strongly postive again so the specialist said he is 100% certain

william has it and we cought it before it caused too much damage that

is why the biopsy only came back as a severe allergy...

I have another weird question for people... What about my bread

maker??? PLEASE tell me I dont have to replace it!!! I clean it out

good and will even clean it again before making his bread but they are

so dang expensive...

> Hi, , I know that you aren't going to appreciate my

recommending you spend money to buy the book, KIDS WITH CELIAC

DISEASE, by Danna Korn, but it would be outstanding for helping you

deal with the issues you just raised and a whole lot more involving

celiac children. You probably can buy it cheapest at

http://www.overstock.com, $12.09, including shipping.

>

> Since your son has celiac, it had to come from somewhere because it

is a genetic disease--almost certainly you or your husband have a

celiac gene. Danna Korn suggests explaining celiac with words like

" toxic " . Her Quick Start Diet Guide for Celiac Disease could help

those who sometimes feed your children or sometimes do the grocery

shopping.

>

> With the purchase of Tinkyada pasta (which many believe to be the

best gluten-free pasta, and our family likes it better than gluten

pasta), you can make many pasta meals, such as spaghetti, meat sauce

and macaroni, and so on that are cheaper and usually please the whole

family.

>

> Separate butter or margarine, peanut butter and jelly don't cost any

more than one jar, because two of each lasts longer.

>

> Some people toast the celiac's toast in the oven or the microwave.

Since your child is so young--maybe you can spend some of his

Christmas money on a separate toaster. He might be very proud to have

his own.

>

> I don't know about a collander--I've never seen it mentioned to be a

separate item for a celiac. My thinking is that putting it through

the dishwasher and using it first for the celiac should take care of

the problem. Others may tell you differently.

>

> Jo Anne

>

[Guest guest]

I didn't buy a new breadmaker, but I assume I'm running a pretty high

risk. Actually though, I prefer making bread by " hand " (you don't knead

GF bread) rather than in the breadmaker. I think it turns out better

that way. Personally I don't know if I'd risk going back and forth b/w

GF and non-GF bread in a breadmaker. You should be able to get it clean

enough once to use for GF bread, but I would think you'd have a hard

time keeping it that clean. You'll probably be making a lot more GF

bread than regular bread from now on.

Good luck,

Elaine

and Kristopher wrote:

> I have another weird question for people... What about my bread

> maker??? PLEASE tell me I dont have to replace it!!! I clean it out

> good and will even clean it again before making his bread but they are

> so dang expensive...

[Guest guest]

I have actually found that I don't WANT to use my bread maker. GF Bread only

rises once, and you don't knead it. So I've been making it in the oven and

having wonderful results!! I am actually going to sell my bread maker!

Bridget

________________________________

From: and Kristopher

Sent: Tue 9/14/2004 5:05 PM

To: SillyYaks

Subject: Re: Hi, new here with a 3 year old with CD...

Actually I went and bought that book and 2 cookbooks before we even

had the final diagnosis. His first blood test when he was really sick

came back strongly positive and the specialist said that with

william's symptoms and that test he was 75% positive he had CD. The

biopsy came back showing a very severe gluten allergy but they weren't

sure it was CD yet, but they said he would have to be on the same diet

so I got those books right away. This 2nd blood test came back

strongly postive again so the specialist said he is 100% certain

william has it and we cought it before it caused too much damage that

is why the biopsy only came back as a severe allergy...

I have another weird question for people... What about my bread

maker??? PLEASE tell me I dont have to replace it!!! I clean it out

good and will even clean it again before making his bread but they are

so dang expensive...

> Hi, , I know that you aren't going to appreciate my

recommending you spend money to buy the book, KIDS WITH CELIAC

DISEASE, by Danna Korn, but it would be outstanding for helping you

deal with the issues you just raised and a whole lot more involving

celiac children. You probably can buy it cheapest at

http://www.overstock.com, $12.09, including shipping.

>

> Since your son has celiac, it had to come from somewhere because it

is a genetic disease--almost certainly you or your husband have a

celiac gene. Danna Korn suggests explaining celiac with words like

" toxic " . Her Quick Start Diet Guide for Celiac Disease could help

those who sometimes feed your children or sometimes do the grocery

shopping.

>

> With the purchase of Tinkyada pasta (which many believe to be the

best gluten-free pasta, and our family likes it better than gluten

pasta), you can make many pasta meals, such as spaghetti, meat sauce

and macaroni, and so on that are cheaper and usually please the whole

family.

>

> Separate butter or margarine, peanut butter and jelly don't cost any

more than one jar, because two of each lasts longer.

>

> Some people toast the celiac's toast in the oven or the microwave.

Since your child is so young--maybe you can spend some of his

Christmas money on a separate toaster. He might be very proud to have

his own.

>

> I don't know about a collander--I've never seen it mentioned to be a

separate item for a celiac. My thinking is that putting it through

the dishwasher and using it first for the celiac should take care of

the problem. Others may tell you differently.

>

> Jo Anne

>

[Guest guest]

I have actually found that I don't WANT to use my bread maker. GF Bread only

rises once, and you don't knead it. So I've been making it in the oven and

having wonderful results!! I am actually going to sell my bread maker!

Bridget

________________________________

From: and Kristopher

Sent: Tue 9/14/2004 5:05 PM

To: SillyYaks

Subject: Re: Hi, new here with a 3 year old with CD...

Actually I went and bought that book and 2 cookbooks before we even

had the final diagnosis. His first blood test when he was really sick

came back strongly positive and the specialist said that with

william's symptoms and that test he was 75% positive he had CD. The

biopsy came back showing a very severe gluten allergy but they weren't

sure it was CD yet, but they said he would have to be on the same diet

so I got those books right away. This 2nd blood test came back

strongly postive again so the specialist said he is 100% certain

william has it and we cought it before it caused too much damage that

is why the biopsy only came back as a severe allergy...

I have another weird question for people... What about my bread

maker??? PLEASE tell me I dont have to replace it!!! I clean it out

good and will even clean it again before making his bread but they are

so dang expensive...

> Hi, , I know that you aren't going to appreciate my

recommending you spend money to buy the book, KIDS WITH CELIAC

DISEASE, by Danna Korn, but it would be outstanding for helping you

deal with the issues you just raised and a whole lot more involving

celiac children. You probably can buy it cheapest at

http://www.overstock.com, $12.09, including shipping.

>

> Since your son has celiac, it had to come from somewhere because it

is a genetic disease--almost certainly you or your husband have a

celiac gene. Danna Korn suggests explaining celiac with words like

" toxic " . Her Quick Start Diet Guide for Celiac Disease could help

those who sometimes feed your children or sometimes do the grocery

shopping.

>

> With the purchase of Tinkyada pasta (which many believe to be the

best gluten-free pasta, and our family likes it better than gluten

pasta), you can make many pasta meals, such as spaghetti, meat sauce

and macaroni, and so on that are cheaper and usually please the whole

family.

>

> Separate butter or margarine, peanut butter and jelly don't cost any

more than one jar, because two of each lasts longer.

>

> Some people toast the celiac's toast in the oven or the microwave.

Since your child is so young--maybe you can spend some of his

Christmas money on a separate toaster. He might be very proud to have

his own.

>

> I don't know about a collander--I've never seen it mentioned to be a

separate item for a celiac. My thinking is that putting it through

the dishwasher and using it first for the celiac should take care of

the problem. Others may tell you differently.

>

> Jo Anne

>

[Guest guest]

I bought new ones...I figured it wasn't worth the risk. But I don't put my

wooden stuff through the dishwasher either. But I think the theory is that the

gluten gets " stuck " in the crevaces and it's too hard to get it all out. I

figured those things are cheap enough, so why not just do it. Now, I have NO

replaced my pots and pans. I just don't use the pots/pans that have the " bolts "

(??) used to attach the handle on the inside (re, Calphalon) bc I know I could

never scrub enough to get the gluten out of there. So I use my old Revereware

and the Analon for GF cooking. But that's just me. My son is only 2 1/2 and

can't yet tell me how he feels, so until he can voice that I'm taking no

chances.

B

________________________________

From: pjs_21030

Sent: Tue 9/14/2004 4:48 PM

To: SillyYaks

Subject: Re: Hi, new here with a 3 year old with CD...

I have a follow up question based on a comment in the last response.

You mentioned one should change their wooden utensils.

Is that necessary? Isn't the dishwasher enough to remove any gluten

remnants?

Thanks for you help

paul stefano

> First, take a deep breath. Second, know you are not alone. There

are

> many people on this board with small children going and we all went

> through exactly what you are now. My son was just diagnosed in

> June...he's 2 1/2.

>

> Now, how careful do you have to be? Well, the toaster and the

colander

> are both important. Replace any wooden utensils you use as well.

Or, do

> not use them to cook GF and use something else instead. You will

find

> that there are many, many " mainstream " foods that are GF so a lot

of the

> " special " stuff is not necessary. You just might have to change

brands

> is all. The hardest things are breads, baked goods, crackers and

cereal.

> The mixes are great to have on hand for " emergencies " but it's

> definitely cheaper to make things from scratch with the " special "

> flours. I highly recommend Danna Korn's book on Raising our Celiac

> Kids...you will find it indespensible...and Bette Hagman's

cookbooks. I

> have the Gluten Free Gourmet: Living Well without Wheat and I

could not

> live without it.

>

> ANd, last but most importantly, keep coming to this group. It's

great!!!

>

> Bridget

>

> Hi, new here with a 3 year old with

CD...

>

>

> We just had our son diagnosed with CD. He has had 2 strongly

> positive

> blood tests but his biopsy only showed damage and inflamation

> from a

> very severe gluten allergy so far... We think that just

means

> we

> cought it before it could cause any worse damage...

>

> Anyway I am being tested and we are trying to decide if we

will

> test

> our 1 year old daughter also since she has similar

symptoms.

>

> I am at a loss though. I keep reading and trying to figure

out

> what I

> am doing. I have bought all this special gluten free food

and

> am

> trying to be careful but at the same time I just have such a

> hard time

> grasping the concept of things like cross contamination???

My

> husband

> and my family think it's insane when I said that I was told

to

> buy new

> things like a new toaster and new collander for his GF food

> only...

> And the idea of having multiple items of like Peanut butter

and

> Jelly

> just makes my husband convinced I am loosing my mind...

>

> I just dont know how serious I have to be about that stuff

and

> what I

> can let slide. We are really very tight on money and this

> special

> food is really killing us, I dont know how I will afford to

buy

> so

> many new kitchen things if it is really necessary to get

them.

>

> Any help would be greatly appreciated..

>

> Thank you,

> , waiting on test results...

> (5-23-01), diagnosed with CD.

> Emma (7-17-03), yet to be tested.

>

>

>

>

[Guest guest]

You mention that you are being tested, but you do not say whether your

husband is. If you're just getting tested because your son has the

disease you and your husband should both be tested since some celiacs

are asymptomatic while the damage continues.

julie

---

IM/Yahoo/LJ: Maguire708 ICQ: 54035938

NCSSM '91 Antioch '95

IWG #708 APJ 2/13/02 NEJ 5/13/04

[Guest guest]

You mention that you are being tested, but you do not say whether your

husband is. If you're just getting tested because your son has the

disease you and your husband should both be tested since some celiacs

are asymptomatic while the damage continues.

julie

---

IM/Yahoo/LJ: Maguire708 ICQ: 54035938

NCSSM '91 Antioch '95

IWG #708 APJ 2/13/02 NEJ 5/13/04

[Guest guest]

,

If you would like to contact me personally, I will send you some info to get you started. My email address is honedu@....

I promise that it gets better after awhile of being GF. It gets easier and easier.

Barbara

I am at a loss though. I keep reading and trying to figure out what Iam doing. I have bought all this special gluten free food and amtrying to be careful but at the same time I just have such a hard timegrasping the concept of things like cross contamination??? My husbandand my family think it's insane when I said that I was told to buy newthings like a new toaster and new collander for his GF food only...And the idea of having multiple items of like Peanut butter and Jellyjust makes my husband convinced I am loosing my mind...I just dont know how serious I have to be about that stuff and what Ican let slide. We are really very tight on money and this specialfood is really killing us, I dont know how I will afford to buy somany new kitchen things if it is really necessary to get them.Any help would be greatly appreciated.. Thank you, , waiting on test results... (5-23-01), diagnosed with CD.Emma (7-17-03), yet to be tested.

[Guest guest]

Hi

,

I can

understand the spending so much money on items that seem a waste when the kids

won’t eat them or the need isn’t seen by others. However I do have a couple of cost cutting ideas. The Kids With Celiac Disease is a

wonderful book and you can get it for nothing for a short time. I checked it out of my local library

through an inter library loan program since they do not carry the book here at

the library. It gave me a chance

to check it out before I buy it which I think I will. Also there are cook books that are there and you can give

them a try before you put the money out on something you are not sure if you

will use. It helped cut down on

the cost of items I was not sure if I wanted plus gave me a lot of

information!

Hope this helps.

Plus if you get the numbers for the store brands they will get you a

list of some of their gluten free items.

Hope this helps.

[Guest guest]

Hi

,

I can

understand the spending so much money on items that seem a waste when the kids

won’t eat them or the need isn’t seen by others. However I do have a couple of cost cutting ideas. The Kids With Celiac Disease is a

wonderful book and you can get it for nothing for a short time. I checked it out of my local library

through an inter library loan program since they do not carry the book here at

the library. It gave me a chance

to check it out before I buy it which I think I will. Also there are cook books that are there and you can give

them a try before you put the money out on something you are not sure if you

will use. It helped cut down on

the cost of items I was not sure if I wanted plus gave me a lot of

information!

Hope this helps.

Plus if you get the numbers for the store brands they will get you a

list of some of their gluten free items.

Hope this helps.

[Guest guest]

I gave away my bread machine. Can't stand the thing for gluten free bread. Use a stand mixer (like a kitchen aid), and that one tool will work for everything! I bought mine refurbished for about $165. I know that's a lot of money, but it's something you may want to consider down the road!

Becki

Re: Hi, new here with a 3 year old with CD...

Actually I went and bought that book and 2 cookbooks before we evenhad the final diagnosis. His first blood test when he was really sickcame back strongly positive and the specialist said that withwilliam's symptoms and that test he was 75% positive he had CD. Thebiopsy came back showing a very severe gluten allergy but they weren'tsure it was CD yet, but they said he would have to be on the same dietso I got those books right away. This 2nd blood test came backstrongly postive again so the specialist said he is 100% certainwilliam has it and we cought it before it caused too much damage thatis why the biopsy only came back as a severe allergy...I have another weird question for people... What about my breadmaker??? PLEASE tell me I dont have to replace it!!! I clean it outgood and will even clean it again before making his bread but they areso dang expensive...> Hi, , I know that you aren't going to appreciate myrecommending you spend money to buy the book, KIDS WITH CELIACDISEASE, by Danna Korn, but it would be outstanding for helping youdeal with the issues you just raised and a whole lot more involvingceliac children. You probably can buy it cheapest athttp://www.overstock.com, $12.09, including shipping.> > Since your son has celiac, it had to come from somewhere because itis a genetic disease--almost certainly you or your husband have aceliac gene. Danna Korn suggests explaining celiac with words like"toxic". Her Quick Start Diet Guide for Celiac Disease could helpthose who sometimes feed your children or sometimes do the groceryshopping.> > With the purchase of Tinkyada pasta (which many believe to be thebest gluten-free pasta, and our family likes it better than glutenpasta), you can make many pasta meals, such as spaghetti, meat sauceand macaroni, and so on that are cheaper and usually please the wholefamily.> > Separate butter or margarine, peanut butter and jelly don't cost anymore than one jar, because two of each lasts longer.> > Some people toast the celiac's toast in the oven or the microwave. Since your child is so young--maybe you can spend some of hisChristmas money on a separate toaster. He might be very proud to havehis own.> > I don't know about a collander--I've never seen it mentioned to be aseparate item for a celiac. My thinking is that putting it throughthe dishwasher and using it first for the celiac should take care ofthe problem. Others may tell you differently.> > Jo Anne>

[Guest guest]

Hi - I have an Emma too (-: First of all, it sounds like

maybe your husband needs to do some reading or talk to a doctor? At

least from your comments, it makes him sound like he is kind of

taking it lightly and thinks some of the extra measures are silly.

He's got to get on board - even if you are the primary label checker

and GF food preparer in the house, as I am, you still need the

support.

Here are a couple of things we do that are good, inexpensive meals.

Many versions of the foods listed below are GF, but definitely check

your labels:

" soft tacos " with corn tortillas, shredded cheese, scrambled

hamburger. You can also make a kind of " sandwich " and grill it like

a quesadilla.

Make up a gluten free flour ahead of time (there are a couple of

versions - I use one with rice glour, potato starch, tapioca, and

xanthan gum), keep it in a canister and then just make pancakes,

biscuits, and muffins from scratch. Very cheap and usually works

pretty well.

Emma hasn't had peanuts yet, but if your son has, PB and J on a

Quaker Rice cake (open face) is good, and store brand peanuts are a

good snack that is usually pretty cheap.

Hope these help!

[Guest guest]

Hi - I have an Emma too (-: First of all, it sounds like

maybe your husband needs to do some reading or talk to a doctor? At

least from your comments, it makes him sound like he is kind of

taking it lightly and thinks some of the extra measures are silly.

He's got to get on board - even if you are the primary label checker

and GF food preparer in the house, as I am, you still need the

support.

Here are a couple of things we do that are good, inexpensive meals.

Many versions of the foods listed below are GF, but definitely check

your labels:

" soft tacos " with corn tortillas, shredded cheese, scrambled

hamburger. You can also make a kind of " sandwich " and grill it like

a quesadilla.

Make up a gluten free flour ahead of time (there are a couple of

versions - I use one with rice glour, potato starch, tapioca, and

xanthan gum), keep it in a canister and then just make pancakes,

biscuits, and muffins from scratch. Very cheap and usually works

pretty well.

Emma hasn't had peanuts yet, but if your son has, PB and J on a

Quaker Rice cake (open face) is good, and store brand peanuts are a

good snack that is usually pretty cheap.

Hope these help!