Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Good luck with the surgery,Carla. You're in my prayers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Dear Friends, This will be my last post for the next couple of weeks as tomorrow morning I enter the UCLA Medical Center for surgery to remove my fibroids via myomectomy. I need some time off from the list to both recover from the surgery but also to simply spend some much needed time with my family. Those of you who've been to uterinefibroids.com know that I underwent UAE almost 2.5 years ago. It was a successful embolization and did allow me to regain my life in a most enthusiastic way. (Well, except for the sex issue which sucked royally but now is something I've rather learned to simply deal with.) At any rate, I will begin adding new My Journal entries as my current health is now leading me down a path of additional care that I never anticipated. Hell, no one anticipated it. Basically, my large subserosal fibroid which was indeed successfully embolized and shrunk down to ~8 cm, has decided to move a bit and has tilted my uterus considerably with the beginnings of prolapse of the tumor into the vagina. Rather suddenly, late January, and while I was working on the leg press at the gym, something " gave " . Now, the fibroid is being quite ugly and uncooperative. Painful. Simply time for it to go. Sigh. I would have loved to avoid surgery entirely -- but that just isn't in my journey on this planet I guess. Laparotomy it is then..... I was actually scheduled for surgery last Monday, but a paperwork screw-up between my dear sweet gyn and his surgery coordinator meant that I never made that Monday schedule. So, tomorrow at 9 a.m. it is. Will a myomectomy make things better or worse in my current beginning phases of prolapse? I don't know. We'll see. I'm just taking this thing one step at a time these days. Did my UAE cause the fibroid prolapse? No, I don't believe so. It may have made the fibroid smaller and more likely to prolapse, but more than likely a good decade walking around with a HUGE, burdensome, weighted, fibroid uterus stressed the pelvic support ligaments tremendously. I'm a diligent kegal fan (always helped with vaginal control and enhancing feeling in sexual function!) and in my case it simply wasn't enough to fend off the stress a HUGE fibroid uterus has on those ever-so-essential pelvic ligaments. I do have to admit I am angry over this. Very. At every gyn I ever consulted who refused to do a myomectomy and insisted that ONLY a hysterectomy could be done for my subserosal fibroid. And that's a lot of gyns! It's also a LOT of years to be carrying around a growing fibroid uterus of tremendous size. In addition, I'm angry at the gyns who make women watch and wait forever when they have a fibroid uterus equal to or greater than 16 weeks in size. No symptoms? Give me a break. I don't believe for a moment that SOME damage isn't being done with a fibroid uterus this size. Subserosal fibroids can get quite large without presenting bleeding symptoms for a woman -- but that doesn't mean it's not causing damage. It most certainly is. Prolapse after UAE, myomectomy, myolysis, and even hysterectomy is probably an increased risk factor for any woman with a fibroid uterus this size. So, here I am. Nervous as hell and simply waiting for tomorrow to come at this point. Dr. Broder is my surgeon and I have every confidence in the world in him. Maybe not with paperwork....but surgery yes! Oddly enough, I am strong, healthy, and not the typical myo patient at all. I have no fibroid symptoms typical of a patient undergoing surgery for myo. No anemia. Considerable weight loss from pre-UAE days. A much better mental frame of mind than pre-UAE days. MUCH better. And, I trust my doctor these days. I'm hoping that all of this bears weight in my favor when it comes to surgery and recovery. We'll see. I'm still a big weenie with the pain thing so I could give the anesthesiologists a run for their money....but, we'll see. If I do come back online early, it won't be to post. Rather, I will be spending time updating My Journal and my website. I hope all understand the much needed respite I will need with this. In terms of technical coverage for the uterinefibroids list group, my daughter -- a senior at University of California at Irvine -- will be handling all technical details requiring moderation. She doesn't read the list email so if there are any of you who wish to unsubscribe and can't quite figure out how to do it, please email her at: poohsticks@... Also, anyone requiring assistance with this group should feel free to email her with your questions. She will most likely also come online tomorrow and post an update regarding my surgery. I'm certain all will go well but she has agreed to do this for me anyway. Good health to all and please remember to be kind to one another while you are trying to get a grip on your own fibroid situation and in attempting to understand this ugly disease which has entered into your life. Carla Dionne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Best wishes to you ...... i will be thinkin about u and hoping all goes well cyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Best wishes to you ...... i will be thinkin about u and hoping all goes well cyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Best wishes to you ...... i will be thinkin about u and hoping all goes well cyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 I will say a very enthusiastic prayer for you. And having had a myomectomy, I say go ahead and be a weenie re: the pain. Use that pump as often as you need it. Also take as much time to rest as you need. This is your chance to be the prima donna. Good luck and God bless you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Best of luck to you. Will say a prayer for you for a successful operation & quick recovery. Thanks for everything you do for us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Best of luck to you. Will say a prayer for you for a successful operation & quick recovery. Thanks for everything you do for us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Best of luck to you. Will say a prayer for you for a successful operation & quick recovery. Thanks for everything you do for us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 best wishes, Carla, for your surgery and recovery. You'll be missed while you take the time out to take care of yourself. This is some surprise as you hadn't mentioned this difficulty before. As you know, I also have a huge subserosal fibroid and I am waiting to see how much it shrinks from UAE before deciding on whether to have myomectomy; I really would like to avoid surgery. I have wondered sometimes whether this fibroid would pull by uterus to the side. Do you now think that women with very large fibroids should have them removed surgically even if they have UAE, as a preventative measure, or would you still wait and watch as you did for the 2.5 years after embolisation? Obviously I can't expect an answer quickly, but this is an issue to keep in mind for discussion when you're writing again. Also perhaps other readers might have something to say on the issue in the meantime. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Carla, Good luck with your surgery. Everything will be fine. I had a myomectomy on 3/8 and all is well with me. Hazel surgery scheduled.... > Dear Friends, > > This will be my last post for the next couple of weeks as tomorrow > morning I enter the UCLA Medical Center for surgery to remove my > fibroids via myomectomy. I need some time off from the list to both > recover from the surgery but also to simply spend some much needed time > with my family. > > Those of you who've been to uterinefibroids.com know that I underwent > UAE almost 2.5 years ago. It was a successful embolization and did > allow me to regain my life in a most enthusiastic way. (Well, except > for the sex issue which sucked royally but now is something I've rather > learned to simply deal with.) At any rate, I will begin adding new My > Journal entries as my current health is now leading me down a path of > additional care that I never anticipated. Hell, no one anticipated it. > Basically, my large subserosal fibroid which was indeed successfully > embolized and shrunk down to ~8 cm, has decided to move a bit and has > tilted my uterus considerably with the beginnings of prolapse of the > tumor into the vagina. Rather suddenly, late January, and while I was > working on the leg press at the gym, something " gave " . Now, the fibroid > is being quite ugly and uncooperative. Painful. Simply time for it to > go. Sigh. I would have loved to avoid surgery entirely -- but that > just isn't in my journey on this planet I guess. Laparotomy it is > then..... > > I was actually scheduled for surgery last Monday, but a paperwork > screw-up between my dear sweet gyn and his surgery coordinator meant > that I never made that Monday schedule. So, tomorrow at 9 a.m. it is. > > Will a myomectomy make things better or worse in my current beginning > phases of prolapse? I don't know. We'll see. I'm just taking this > thing one step at a time these days. > > Did my UAE cause the fibroid prolapse? No, I don't believe so. It may > have made the fibroid smaller and more likely to prolapse, but more than > likely a good decade walking around with a HUGE, burdensome, weighted, > fibroid uterus stressed the pelvic support ligaments tremendously. I'm > a diligent kegal fan (always helped with vaginal control and enhancing > feeling in sexual function!) and in my case it simply wasn't enough to > fend off the stress a HUGE fibroid uterus has on those > ever-so-essential pelvic ligaments. > > I do have to admit I am angry over this. Very. At every gyn I ever > consulted who refused to do a myomectomy and insisted that ONLY a > hysterectomy could be done for my subserosal fibroid. And that's a lot > of gyns! It's also a LOT of years to be carrying around a growing > fibroid uterus of tremendous size. In addition, I'm angry at the gyns > who make women watch and wait forever when they have a fibroid uterus > equal to or greater than 16 weeks in size. No symptoms? Give me a > break. I don't believe for a moment that SOME damage isn't being done > with a fibroid uterus this size. Subserosal fibroids can get quite > large without presenting bleeding symptoms for a woman -- but that > doesn't mean it's not causing damage. It most certainly is. Prolapse > after UAE, myomectomy, myolysis, and even hysterectomy is probably an > increased risk factor for any woman with a fibroid uterus this size. > > So, here I am. Nervous as hell and simply waiting for tomorrow to come > at this point. Dr. Broder is my surgeon and I have every > confidence in the world in him. Maybe not with paperwork....but surgery > yes! Oddly enough, I am strong, healthy, and not the typical myo > patient at all. I have no fibroid symptoms typical of a patient > undergoing surgery for myo. No anemia. Considerable weight loss from > pre-UAE days. A much better mental frame of mind than pre-UAE days. > MUCH better. And, I trust my doctor these days. I'm hoping that all of > this bears weight in my favor when it comes to surgery and recovery. > We'll see. I'm still a big weenie with the pain thing so I could give > the anesthesiologists a run for their money....but, we'll see. > > If I do come back online early, it won't be to post. Rather, I will be > spending time updating My Journal and my website. I hope all understand > the much needed respite I will need with this. > > In terms of technical coverage for the uterinefibroids list group, my > daughter -- a senior at University of California at Irvine -- > will be handling all technical details requiring moderation. She > doesn't read the list email so if there are any of you who wish to > unsubscribe and can't quite figure out how to do it, please email her > at: > > poohsticks@... > > Also, anyone requiring assistance with this group should feel free to > email her with your questions. She will most likely also come online > tomorrow and post an update regarding my surgery. I'm certain all will > go well but she has agreed to do this for me anyway. > > Good health to all and please remember to be kind to one another while > you are trying to get a grip on your own fibroid situation and in > attempting to understand this ugly disease which has entered into your > life. > > Carla Dionne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Carla, Good luck with your surgery. Everything will be fine. I had a myomectomy on 3/8 and all is well with me. Hazel surgery scheduled.... > Dear Friends, > > This will be my last post for the next couple of weeks as tomorrow > morning I enter the UCLA Medical Center for surgery to remove my > fibroids via myomectomy. I need some time off from the list to both > recover from the surgery but also to simply spend some much needed time > with my family. > > Those of you who've been to uterinefibroids.com know that I underwent > UAE almost 2.5 years ago. It was a successful embolization and did > allow me to regain my life in a most enthusiastic way. (Well, except > for the sex issue which sucked royally but now is something I've rather > learned to simply deal with.) At any rate, I will begin adding new My > Journal entries as my current health is now leading me down a path of > additional care that I never anticipated. Hell, no one anticipated it. > Basically, my large subserosal fibroid which was indeed successfully > embolized and shrunk down to ~8 cm, has decided to move a bit and has > tilted my uterus considerably with the beginnings of prolapse of the > tumor into the vagina. Rather suddenly, late January, and while I was > working on the leg press at the gym, something " gave " . Now, the fibroid > is being quite ugly and uncooperative. Painful. Simply time for it to > go. Sigh. I would have loved to avoid surgery entirely -- but that > just isn't in my journey on this planet I guess. Laparotomy it is > then..... > > I was actually scheduled for surgery last Monday, but a paperwork > screw-up between my dear sweet gyn and his surgery coordinator meant > that I never made that Monday schedule. So, tomorrow at 9 a.m. it is. > > Will a myomectomy make things better or worse in my current beginning > phases of prolapse? I don't know. We'll see. I'm just taking this > thing one step at a time these days. > > Did my UAE cause the fibroid prolapse? No, I don't believe so. It may > have made the fibroid smaller and more likely to prolapse, but more than > likely a good decade walking around with a HUGE, burdensome, weighted, > fibroid uterus stressed the pelvic support ligaments tremendously. I'm > a diligent kegal fan (always helped with vaginal control and enhancing > feeling in sexual function!) and in my case it simply wasn't enough to > fend off the stress a HUGE fibroid uterus has on those > ever-so-essential pelvic ligaments. > > I do have to admit I am angry over this. Very. At every gyn I ever > consulted who refused to do a myomectomy and insisted that ONLY a > hysterectomy could be done for my subserosal fibroid. And that's a lot > of gyns! It's also a LOT of years to be carrying around a growing > fibroid uterus of tremendous size. In addition, I'm angry at the gyns > who make women watch and wait forever when they have a fibroid uterus > equal to or greater than 16 weeks in size. No symptoms? Give me a > break. I don't believe for a moment that SOME damage isn't being done > with a fibroid uterus this size. Subserosal fibroids can get quite > large without presenting bleeding symptoms for a woman -- but that > doesn't mean it's not causing damage. It most certainly is. Prolapse > after UAE, myomectomy, myolysis, and even hysterectomy is probably an > increased risk factor for any woman with a fibroid uterus this size. > > So, here I am. Nervous as hell and simply waiting for tomorrow to come > at this point. Dr. Broder is my surgeon and I have every > confidence in the world in him. Maybe not with paperwork....but surgery > yes! Oddly enough, I am strong, healthy, and not the typical myo > patient at all. I have no fibroid symptoms typical of a patient > undergoing surgery for myo. No anemia. Considerable weight loss from > pre-UAE days. A much better mental frame of mind than pre-UAE days. > MUCH better. And, I trust my doctor these days. I'm hoping that all of > this bears weight in my favor when it comes to surgery and recovery. > We'll see. I'm still a big weenie with the pain thing so I could give > the anesthesiologists a run for their money....but, we'll see. > > If I do come back online early, it won't be to post. Rather, I will be > spending time updating My Journal and my website. I hope all understand > the much needed respite I will need with this. > > In terms of technical coverage for the uterinefibroids list group, my > daughter -- a senior at University of California at Irvine -- > will be handling all technical details requiring moderation. She > doesn't read the list email so if there are any of you who wish to > unsubscribe and can't quite figure out how to do it, please email her > at: > > poohsticks@... > > Also, anyone requiring assistance with this group should feel free to > email her with your questions. She will most likely also come online > tomorrow and post an update regarding my surgery. I'm certain all will > go well but she has agreed to do this for me anyway. > > Good health to all and please remember to be kind to one another while > you are trying to get a grip on your own fibroid situation and in > attempting to understand this ugly disease which has entered into your > life. > > Carla Dionne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 good luck. I'm getting UAE done in May and so have appreciated all the news and discussion from you. Re: surgery scheduled.... >Date: Mon, 26 Mar 2001 10:54:57 -0800 > >Carla, >Good luck with your surgery. Everything will be fine. I had a myomectomy on >3/8 and all is well with me. >Hazel > > surgery scheduled.... > > > > Dear Friends, > > > > This will be my last post for the next couple of weeks as tomorrow > > morning I enter the UCLA Medical Center for surgery to remove my > > fibroids via myomectomy. I need some time off from the list to both > > recover from the surgery but also to simply spend some much needed time > > with my family. > > > > Those of you who've been to uterinefibroids.com know that I underwent > > UAE almost 2.5 years ago. It was a successful embolization and did > > allow me to regain my life in a most enthusiastic way. (Well, except > > for the sex issue which sucked royally but now is something I've rather > > learned to simply deal with.) At any rate, I will begin adding new My > > Journal entries as my current health is now leading me down a path of > > additional care that I never anticipated. Hell, no one anticipated it. > > Basically, my large subserosal fibroid which was indeed successfully > > embolized and shrunk down to ~8 cm, has decided to move a bit and has > > tilted my uterus considerably with the beginnings of prolapse of the > > tumor into the vagina. Rather suddenly, late January, and while I was > > working on the leg press at the gym, something " gave " . Now, the fibroid > > is being quite ugly and uncooperative. Painful. Simply time for it to > > go. Sigh. I would have loved to avoid surgery entirely -- but that > > just isn't in my journey on this planet I guess. Laparotomy it is > > then..... > > > > I was actually scheduled for surgery last Monday, but a paperwork > > screw-up between my dear sweet gyn and his surgery coordinator meant > > that I never made that Monday schedule. So, tomorrow at 9 a.m. it is. > > > > Will a myomectomy make things better or worse in my current beginning > > phases of prolapse? I don't know. We'll see. I'm just taking this > > thing one step at a time these days. > > > > Did my UAE cause the fibroid prolapse? No, I don't believe so. It may > > have made the fibroid smaller and more likely to prolapse, but more than > > likely a good decade walking around with a HUGE, burdensome, weighted, > > fibroid uterus stressed the pelvic support ligaments tremendously. I'm > > a diligent kegal fan (always helped with vaginal control and enhancing > > feeling in sexual function!) and in my case it simply wasn't enough to > > fend off the stress a HUGE fibroid uterus has on those > > ever-so-essential pelvic ligaments. > > > > I do have to admit I am angry over this. Very. At every gyn I ever > > consulted who refused to do a myomectomy and insisted that ONLY a > > hysterectomy could be done for my subserosal fibroid. And that's a lot > > of gyns! It's also a LOT of years to be carrying around a growing > > fibroid uterus of tremendous size. In addition, I'm angry at the gyns > > who make women watch and wait forever when they have a fibroid uterus > > equal to or greater than 16 weeks in size. No symptoms? Give me a > > break. I don't believe for a moment that SOME damage isn't being done > > with a fibroid uterus this size. Subserosal fibroids can get quite > > large without presenting bleeding symptoms for a woman -- but that > > doesn't mean it's not causing damage. It most certainly is. Prolapse > > after UAE, myomectomy, myolysis, and even hysterectomy is probably an > > increased risk factor for any woman with a fibroid uterus this size. > > > > So, here I am. Nervous as hell and simply waiting for tomorrow to come > > at this point. Dr. Broder is my surgeon and I have every > > confidence in the world in him. Maybe not with paperwork....but surgery > > yes! Oddly enough, I am strong, healthy, and not the typical myo > > patient at all. I have no fibroid symptoms typical of a patient > > undergoing surgery for myo. No anemia. Considerable weight loss from > > pre-UAE days. A much better mental frame of mind than pre-UAE days. > > MUCH better. And, I trust my doctor these days. I'm hoping that all of > > this bears weight in my favor when it comes to surgery and recovery. > > We'll see. I'm still a big weenie with the pain thing so I could give > > the anesthesiologists a run for their money....but, we'll see. > > > > If I do come back online early, it won't be to post. Rather, I will be > > spending time updating My Journal and my website. I hope all understand > > the much needed respite I will need with this. > > > > In terms of technical coverage for the uterinefibroids list group, my > > daughter -- a senior at University of California at Irvine -- > > will be handling all technical details requiring moderation. She > > doesn't read the list email so if there are any of you who wish to > > unsubscribe and can't quite figure out how to do it, please email her > > at: > > > > poohsticks@... > > > > Also, anyone requiring assistance with this group should feel free to > > email her with your questions. She will most likely also come online > > tomorrow and post an update regarding my surgery. I'm certain all will > > go well but she has agreed to do this for me anyway. > > > > Good health to all and please remember to be kind to one another while > > you are trying to get a grip on your own fibroid situation and in > > attempting to understand this ugly disease which has entered into your > > life. > > > > Carla Dionne > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Carla, Good luck with your surgery. (The anticipation is really the worst part of the whole thing.) Best wishes for a successful surgery and a speedy recovery! > Dear Friends, > > This will be my last post for the next couple of weeks as tomorrow > morning I enter the UCLA Medical Center for surgery to remove my > fibroids via myomectomy. I need some time off from the list to both > recover from the surgery but also to simply spend some much needed time > with my family. > > Those of you who've been to uterinefibroids.com know that I underwent > UAE almost 2.5 years ago. It was a successful embolization and did > allow me to regain my life in a most enthusiastic way. (Well, except > for the sex issue which sucked royally but now is something I've rather > learned to simply deal with.) At any rate, I will begin adding new My > Journal entries as my current health is now leading me down a path of > additional care that I never anticipated. Hell, no one anticipated it. > Basically, my large subserosal fibroid which was indeed successfully > embolized and shrunk down to ~8 cm, has decided to move a bit and has > tilted my uterus considerably with the beginnings of prolapse of the > tumor into the vagina. Rather suddenly, late January, and while I was > working on the leg press at the gym, something " gave " . Now, the fibroid > is being quite ugly and uncooperative. Painful. Simply time for it to > go. Sigh. I would have loved to avoid surgery entirely -- but that > just isn't in my journey on this planet I guess. Laparotomy it is > then..... > > I was actually scheduled for surgery last Monday, but a paperwork > screw-up between my dear sweet gyn and his surgery coordinator meant > that I never made that Monday schedule. So, tomorrow at 9 a.m. it is. > > Will a myomectomy make things better or worse in my current beginning > phases of prolapse? I don't know. We'll see. I'm just taking this > thing one step at a time these days. > > Did my UAE cause the fibroid prolapse? No, I don't believe so. It may > have made the fibroid smaller and more likely to prolapse, but more than > likely a good decade walking around with a HUGE, burdensome, weighted, > fibroid uterus stressed the pelvic support ligaments tremendously. I'm > a diligent kegal fan (always helped with vaginal control and enhancing > feeling in sexual function!) and in my case it simply wasn't enough to > fend off the stress a HUGE fibroid uterus has on those > ever-so-essential pelvic ligaments. > > I do have to admit I am angry over this. Very. At every gyn I ever > consulted who refused to do a myomectomy and insisted that ONLY a > hysterectomy could be done for my subserosal fibroid. And that's a lot > of gyns! It's also a LOT of years to be carrying around a growing > fibroid uterus of tremendous size. In addition, I'm angry at the gyns > who make women watch and wait forever when they have a fibroid uterus > equal to or greater than 16 weeks in size. No symptoms? Give me a > break. I don't believe for a moment that SOME damage isn't being done > with a fibroid uterus this size. Subserosal fibroids can get quite > large without presenting bleeding symptoms for a woman -- but that > doesn't mean it's not causing damage. It most certainly is. Prolapse > after UAE, myomectomy, myolysis, and even hysterectomy is probably an > increased risk factor for any woman with a fibroid uterus this size. > > So, here I am. Nervous as hell and simply waiting for tomorrow to come > at this point. Dr. Broder is my surgeon and I have every > confidence in the world in him. Maybe not with paperwork....but surgery > yes! Oddly enough, I am strong, healthy, and not the typical myo > patient at all. I have no fibroid symptoms typical of a patient > undergoing surgery for myo. No anemia. Considerable weight loss from > pre-UAE days. A much better mental frame of mind than pre-UAE days. > MUCH better. And, I trust my doctor these days. I'm hoping that all of > this bears weight in my favor when it comes to surgery and recovery. > We'll see. I'm still a big weenie with the pain thing so I could give > the anesthesiologists a run for their money....but, we'll see. > > If I do come back online early, it won't be to post. Rather, I will be > spending time updating My Journal and my website. I hope all understand > the much needed respite I will need with this. > > In terms of technical coverage for the uterinefibroids list group, my > daughter -- a senior at University of California at Irvine - - > will be handling all technical details requiring moderation. She > doesn't read the list email so if there are any of you who wish to > unsubscribe and can't quite figure out how to do it, please email her > at: > > poohsticks@h... > > Also, anyone requiring assistance with this group should feel free to > email her with your questions. She will most likely also come online > tomorrow and post an update regarding my surgery. I'm certain all will > go well but she has agreed to do this for me anyway. > > Good health to all and please remember to be kind to one another while > you are trying to get a grip on your own fibroid situation and in > attempting to understand this ugly disease which has entered into your > life. > > Carla Dionne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Carla, Good luck with your surgery. (The anticipation is really the worst part of the whole thing.) Best wishes for a successful surgery and a speedy recovery! > Dear Friends, > > This will be my last post for the next couple of weeks as tomorrow > morning I enter the UCLA Medical Center for surgery to remove my > fibroids via myomectomy. I need some time off from the list to both > recover from the surgery but also to simply spend some much needed time > with my family. > > Those of you who've been to uterinefibroids.com know that I underwent > UAE almost 2.5 years ago. It was a successful embolization and did > allow me to regain my life in a most enthusiastic way. (Well, except > for the sex issue which sucked royally but now is something I've rather > learned to simply deal with.) At any rate, I will begin adding new My > Journal entries as my current health is now leading me down a path of > additional care that I never anticipated. Hell, no one anticipated it. > Basically, my large subserosal fibroid which was indeed successfully > embolized and shrunk down to ~8 cm, has decided to move a bit and has > tilted my uterus considerably with the beginnings of prolapse of the > tumor into the vagina. Rather suddenly, late January, and while I was > working on the leg press at the gym, something " gave " . Now, the fibroid > is being quite ugly and uncooperative. Painful. Simply time for it to > go. Sigh. I would have loved to avoid surgery entirely -- but that > just isn't in my journey on this planet I guess. Laparotomy it is > then..... > > I was actually scheduled for surgery last Monday, but a paperwork > screw-up between my dear sweet gyn and his surgery coordinator meant > that I never made that Monday schedule. So, tomorrow at 9 a.m. it is. > > Will a myomectomy make things better or worse in my current beginning > phases of prolapse? I don't know. We'll see. I'm just taking this > thing one step at a time these days. > > Did my UAE cause the fibroid prolapse? No, I don't believe so. It may > have made the fibroid smaller and more likely to prolapse, but more than > likely a good decade walking around with a HUGE, burdensome, weighted, > fibroid uterus stressed the pelvic support ligaments tremendously. I'm > a diligent kegal fan (always helped with vaginal control and enhancing > feeling in sexual function!) and in my case it simply wasn't enough to > fend off the stress a HUGE fibroid uterus has on those > ever-so-essential pelvic ligaments. > > I do have to admit I am angry over this. Very. At every gyn I ever > consulted who refused to do a myomectomy and insisted that ONLY a > hysterectomy could be done for my subserosal fibroid. And that's a lot > of gyns! It's also a LOT of years to be carrying around a growing > fibroid uterus of tremendous size. In addition, I'm angry at the gyns > who make women watch and wait forever when they have a fibroid uterus > equal to or greater than 16 weeks in size. No symptoms? Give me a > break. I don't believe for a moment that SOME damage isn't being done > with a fibroid uterus this size. Subserosal fibroids can get quite > large without presenting bleeding symptoms for a woman -- but that > doesn't mean it's not causing damage. It most certainly is. Prolapse > after UAE, myomectomy, myolysis, and even hysterectomy is probably an > increased risk factor for any woman with a fibroid uterus this size. > > So, here I am. Nervous as hell and simply waiting for tomorrow to come > at this point. Dr. Broder is my surgeon and I have every > confidence in the world in him. Maybe not with paperwork....but surgery > yes! Oddly enough, I am strong, healthy, and not the typical myo > patient at all. I have no fibroid symptoms typical of a patient > undergoing surgery for myo. No anemia. Considerable weight loss from > pre-UAE days. A much better mental frame of mind than pre-UAE days. > MUCH better. And, I trust my doctor these days. I'm hoping that all of > this bears weight in my favor when it comes to surgery and recovery. > We'll see. I'm still a big weenie with the pain thing so I could give > the anesthesiologists a run for their money....but, we'll see. > > If I do come back online early, it won't be to post. Rather, I will be > spending time updating My Journal and my website. I hope all understand > the much needed respite I will need with this. > > In terms of technical coverage for the uterinefibroids list group, my > daughter -- a senior at University of California at Irvine - - > will be handling all technical details requiring moderation. She > doesn't read the list email so if there are any of you who wish to > unsubscribe and can't quite figure out how to do it, please email her > at: > > poohsticks@h... > > Also, anyone requiring assistance with this group should feel free to > email her with your questions. She will most likely also come online > tomorrow and post an update regarding my surgery. I'm certain all will > go well but she has agreed to do this for me anyway. > > Good health to all and please remember to be kind to one another while > you are trying to get a grip on your own fibroid situation and in > attempting to understand this ugly disease which has entered into your > life. > > Carla Dionne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Carla, Good luck with your surgery. (The anticipation is really the worst part of the whole thing.) Best wishes for a successful surgery and a speedy recovery! > Dear Friends, > > This will be my last post for the next couple of weeks as tomorrow > morning I enter the UCLA Medical Center for surgery to remove my > fibroids via myomectomy. I need some time off from the list to both > recover from the surgery but also to simply spend some much needed time > with my family. > > Those of you who've been to uterinefibroids.com know that I underwent > UAE almost 2.5 years ago. It was a successful embolization and did > allow me to regain my life in a most enthusiastic way. (Well, except > for the sex issue which sucked royally but now is something I've rather > learned to simply deal with.) At any rate, I will begin adding new My > Journal entries as my current health is now leading me down a path of > additional care that I never anticipated. Hell, no one anticipated it. > Basically, my large subserosal fibroid which was indeed successfully > embolized and shrunk down to ~8 cm, has decided to move a bit and has > tilted my uterus considerably with the beginnings of prolapse of the > tumor into the vagina. Rather suddenly, late January, and while I was > working on the leg press at the gym, something " gave " . Now, the fibroid > is being quite ugly and uncooperative. Painful. Simply time for it to > go. Sigh. I would have loved to avoid surgery entirely -- but that > just isn't in my journey on this planet I guess. Laparotomy it is > then..... > > I was actually scheduled for surgery last Monday, but a paperwork > screw-up between my dear sweet gyn and his surgery coordinator meant > that I never made that Monday schedule. So, tomorrow at 9 a.m. it is. > > Will a myomectomy make things better or worse in my current beginning > phases of prolapse? I don't know. We'll see. I'm just taking this > thing one step at a time these days. > > Did my UAE cause the fibroid prolapse? No, I don't believe so. It may > have made the fibroid smaller and more likely to prolapse, but more than > likely a good decade walking around with a HUGE, burdensome, weighted, > fibroid uterus stressed the pelvic support ligaments tremendously. I'm > a diligent kegal fan (always helped with vaginal control and enhancing > feeling in sexual function!) and in my case it simply wasn't enough to > fend off the stress a HUGE fibroid uterus has on those > ever-so-essential pelvic ligaments. > > I do have to admit I am angry over this. Very. At every gyn I ever > consulted who refused to do a myomectomy and insisted that ONLY a > hysterectomy could be done for my subserosal fibroid. And that's a lot > of gyns! It's also a LOT of years to be carrying around a growing > fibroid uterus of tremendous size. In addition, I'm angry at the gyns > who make women watch and wait forever when they have a fibroid uterus > equal to or greater than 16 weeks in size. No symptoms? Give me a > break. I don't believe for a moment that SOME damage isn't being done > with a fibroid uterus this size. Subserosal fibroids can get quite > large without presenting bleeding symptoms for a woman -- but that > doesn't mean it's not causing damage. It most certainly is. Prolapse > after UAE, myomectomy, myolysis, and even hysterectomy is probably an > increased risk factor for any woman with a fibroid uterus this size. > > So, here I am. Nervous as hell and simply waiting for tomorrow to come > at this point. Dr. Broder is my surgeon and I have every > confidence in the world in him. Maybe not with paperwork....but surgery > yes! Oddly enough, I am strong, healthy, and not the typical myo > patient at all. I have no fibroid symptoms typical of a patient > undergoing surgery for myo. No anemia. Considerable weight loss from > pre-UAE days. A much better mental frame of mind than pre-UAE days. > MUCH better. And, I trust my doctor these days. I'm hoping that all of > this bears weight in my favor when it comes to surgery and recovery. > We'll see. I'm still a big weenie with the pain thing so I could give > the anesthesiologists a run for their money....but, we'll see. > > If I do come back online early, it won't be to post. Rather, I will be > spending time updating My Journal and my website. I hope all understand > the much needed respite I will need with this. > > In terms of technical coverage for the uterinefibroids list group, my > daughter -- a senior at University of California at Irvine - - > will be handling all technical details requiring moderation. She > doesn't read the list email so if there are any of you who wish to > unsubscribe and can't quite figure out how to do it, please email her > at: > > poohsticks@h... > > Also, anyone requiring assistance with this group should feel free to > email her with your questions. She will most likely also come online > tomorrow and post an update regarding my surgery. I'm certain all will > go well but she has agreed to do this for me anyway. > > Good health to all and please remember to be kind to one another while > you are trying to get a grip on your own fibroid situation and in > attempting to understand this ugly disease which has entered into your > life. > > Carla Dionne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Carla I wish you the best and thank you for all your posts, they are a road trip for us and I am too in my way to get a myomectomy even if I have to fight the hmo. Good luck. . > >Reply-To: uterinefibroids >To: <uterinefibroids > >Subject: Re: surgery scheduled.... >Date: Mon, 26 Mar 2001 10:54:57 -0800 > >Carla, >Good luck with your surgery. Everything will be fine. I had a myomectomy on >3/8 and all is well with me. >Hazel > > surgery scheduled.... > > > > Dear Friends, > > > > This will be my last post for the next couple of weeks as tomorrow > > morning I enter the UCLA Medical Center for surgery to remove my > > fibroids via myomectomy. I need some time off from the list to both > > recover from the surgery but also to simply spend some much needed time > > with my family. > > > > Those of you who've been to uterinefibroids.com know that I underwent > > UAE almost 2.5 years ago. It was a successful embolization and did > > allow me to regain my life in a most enthusiastic way. (Well, except > > for the sex issue which sucked royally but now is something I've rather > > learned to simply deal with.) At any rate, I will begin adding new My > > Journal entries as my current health is now leading me down a path of > > additional care that I never anticipated. Hell, no one anticipated it. > > Basically, my large subserosal fibroid which was indeed successfully > > embolized and shrunk down to ~8 cm, has decided to move a bit and has > > tilted my uterus considerably with the beginnings of prolapse of the > > tumor into the vagina. Rather suddenly, late January, and while I was > > working on the leg press at the gym, something " gave " . Now, the fibroid > > is being quite ugly and uncooperative. Painful. Simply time for it to > > go. Sigh. I would have loved to avoid surgery entirely -- but that > > just isn't in my journey on this planet I guess. Laparotomy it is > > then..... > > > > I was actually scheduled for surgery last Monday, but a paperwork > > screw-up between my dear sweet gyn and his surgery coordinator meant > > that I never made that Monday schedule. So, tomorrow at 9 a.m. it is. > > > > Will a myomectomy make things better or worse in my current beginning > > phases of prolapse? I don't know. We'll see. I'm just taking this > > thing one step at a time these days. > > > > Did my UAE cause the fibroid prolapse? No, I don't believe so. It may > > have made the fibroid smaller and more likely to prolapse, but more than > > likely a good decade walking around with a HUGE, burdensome, weighted, > > fibroid uterus stressed the pelvic support ligaments tremendously. I'm > > a diligent kegal fan (always helped with vaginal control and enhancing > > feeling in sexual function!) and in my case it simply wasn't enough to > > fend off the stress a HUGE fibroid uterus has on those > > ever-so-essential pelvic ligaments. > > > > I do have to admit I am angry over this. Very. At every gyn I ever > > consulted who refused to do a myomectomy and insisted that ONLY a > > hysterectomy could be done for my subserosal fibroid. And that's a lot > > of gyns! It's also a LOT of years to be carrying around a growing > > fibroid uterus of tremendous size. In addition, I'm angry at the gyns > > who make women watch and wait forever when they have a fibroid uterus > > equal to or greater than 16 weeks in size. No symptoms? Give me a > > break. I don't believe for a moment that SOME damage isn't being done > > with a fibroid uterus this size. Subserosal fibroids can get quite > > large without presenting bleeding symptoms for a woman -- but that > > doesn't mean it's not causing damage. It most certainly is. Prolapse > > after UAE, myomectomy, myolysis, and even hysterectomy is probably an > > increased risk factor for any woman with a fibroid uterus this size. > > > > So, here I am. Nervous as hell and simply waiting for tomorrow to come > > at this point. Dr. Broder is my surgeon and I have every > > confidence in the world in him. Maybe not with paperwork....but surgery > > yes! Oddly enough, I am strong, healthy, and not the typical myo > > patient at all. I have no fibroid symptoms typical of a patient > > undergoing surgery for myo. No anemia. Considerable weight loss from > > pre-UAE days. A much better mental frame of mind than pre-UAE days. > > MUCH better. And, I trust my doctor these days. I'm hoping that all of > > this bears weight in my favor when it comes to surgery and recovery. > > We'll see. I'm still a big weenie with the pain thing so I could give > > the anesthesiologists a run for their money....but, we'll see. > > > > If I do come back online early, it won't be to post. Rather, I will be > > spending time updating My Journal and my website. I hope all understand > > the much needed respite I will need with this. > > > > In terms of technical coverage for the uterinefibroids list group, my > > daughter -- a senior at University of California at Irvine -- > > will be handling all technical details requiring moderation. She > > doesn't read the list email so if there are any of you who wish to > > unsubscribe and can't quite figure out how to do it, please email her > > at: > > > > poohsticks@... > > > > Also, anyone requiring assistance with this group should feel free to > > email her with your questions. She will most likely also come online > > tomorrow and post an update regarding my surgery. I'm certain all will > > go well but she has agreed to do this for me anyway. > > > > Good health to all and please remember to be kind to one another while > > you are trying to get a grip on your own fibroid situation and in > > attempting to understand this ugly disease which has entered into your > > life. > > > > Carla Dionne > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Carla -Good luck with your surgery tomorrow. I'm sure everyone will be thinking of you and wishing you well. You've been through so much already I sincerely hope this procedure will solve the problem for you. Best wishes for a complete recovery. Sincerely, Jill surgery scheduled.... > Dear Friends, > > This will be my last post for the next couple of weeks as tomorrow > morning I enter the UCLA Medical Center for surgery to remove my > fibroids via myomectomy. I need some time off from the list to both > recover from the surgery but also to simply spend some much needed time > with my family. > > Those of you who've been to uterinefibroids.com know that I underwent > UAE almost 2.5 years ago. It was a successful embolization and did > allow me to regain my life in a most enthusiastic way. (Well, except > for the sex issue which sucked royally but now is something I've rather > learned to simply deal with.) At any rate, I will begin adding new My > Journal entries as my current health is now leading me down a path of > additional care that I never anticipated. Hell, no one anticipated it. > Basically, my large subserosal fibroid which was indeed successfully > embolized and shrunk down to ~8 cm, has decided to move a bit and has > tilted my uterus considerably with the beginnings of prolapse of the > tumor into the vagina. Rather suddenly, late January, and while I was > working on the leg press at the gym, something " gave " . Now, the fibroid > is being quite ugly and uncooperative. Painful. Simply time for it to > go. Sigh. I would have loved to avoid surgery entirely -- but that > just isn't in my journey on this planet I guess. Laparotomy it is > then..... > > I was actually scheduled for surgery last Monday, but a paperwork > screw-up between my dear sweet gyn and his surgery coordinator meant > that I never made that Monday schedule. So, tomorrow at 9 a.m. it is. > > Will a myomectomy make things better or worse in my current beginning > phases of prolapse? I don't know. We'll see. I'm just taking this > thing one step at a time these days. > > Did my UAE cause the fibroid prolapse? No, I don't believe so. It may > have made the fibroid smaller and more likely to prolapse, but more than > likely a good decade walking around with a HUGE, burdensome, weighted, > fibroid uterus stressed the pelvic support ligaments tremendously. I'm > a diligent kegal fan (always helped with vaginal control and enhancing > feeling in sexual function!) and in my case it simply wasn't enough to > fend off the stress a HUGE fibroid uterus has on those > ever-so-essential pelvic ligaments. > > I do have to admit I am angry over this. Very. At every gyn I ever > consulted who refused to do a myomectomy and insisted that ONLY a > hysterectomy could be done for my subserosal fibroid. And that's a lot > of gyns! It's also a LOT of years to be carrying around a growing > fibroid uterus of tremendous size. In addition, I'm angry at the gyns > who make women watch and wait forever when they have a fibroid uterus > equal to or greater than 16 weeks in size. No symptoms? Give me a > break. I don't believe for a moment that SOME damage isn't being done > with a fibroid uterus this size. Subserosal fibroids can get quite > large without presenting bleeding symptoms for a woman -- but that > doesn't mean it's not causing damage. It most certainly is. Prolapse > after UAE, myomectomy, myolysis, and even hysterectomy is probably an > increased risk factor for any woman with a fibroid uterus this size. > > So, here I am. Nervous as hell and simply waiting for tomorrow to come > at this point. Dr. Broder is my surgeon and I have every > confidence in the world in him. Maybe not with paperwork....but surgery > yes! Oddly enough, I am strong, healthy, and not the typical myo > patient at all. I have no fibroid symptoms typical of a patient > undergoing surgery for myo. No anemia. Considerable weight loss from > pre-UAE days. A much better mental frame of mind than pre-UAE days. > MUCH better. And, I trust my doctor these days. I'm hoping that all of > this bears weight in my favor when it comes to surgery and recovery. > We'll see. I'm still a big weenie with the pain thing so I could give > the anesthesiologists a run for their money....but, we'll see. > > If I do come back online early, it won't be to post. Rather, I will be > spending time updating My Journal and my website. I hope all understand > the much needed respite I will need with this. > > In terms of technical coverage for the uterinefibroids list group, my > daughter -- a senior at University of California at Irvine -- > will be handling all technical details requiring moderation. She > doesn't read the list email so if there are any of you who wish to > unsubscribe and can't quite figure out how to do it, please email her > at: > > poohsticks@... > > Also, anyone requiring assistance with this group should feel free to > email her with your questions. She will most likely also come online > tomorrow and post an update regarding my surgery. I'm certain all will > go well but she has agreed to do this for me anyway. > > Good health to all and please remember to be kind to one another while > you are trying to get a grip on your own fibroid situation and in > attempting to understand this ugly disease which has entered into your > life. > > Carla Dionne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 I had a question on the sex part of this email. Please clarify. Do fibroids cause a dysfunction or lack of feeling or what? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Dear Carla, I pray all goes well with your surgery and wish you a complete recovery. from Belgium surgery scheduled.... > Dear Friends, > > This will be my last post for the next couple of weeks as tomorrow > morning I enter the UCLA Medical Center for surgery to remove my > fibroids via myomectomy. I need some time off from the list to both > recover from the surgery but also to simply spend some much needed time > with my family. > > Those of you who've been to uterinefibroids.com know that I underwent > UAE almost 2.5 years ago. It was a successful embolization and did > allow me to regain my life in a most enthusiastic way. (Well, except > for the sex issue which sucked royally but now is something I've rather > learned to simply deal with.) At any rate, I will begin adding new My > Journal entries as my current health is now leading me down a path of > additional care that I never anticipated. Hell, no one anticipated it. > Basically, my large subserosal fibroid which was indeed successfully > embolized and shrunk down to ~8 cm, has decided to move a bit and has > tilted my uterus considerably with the beginnings of prolapse of the > tumor into the vagina. Rather suddenly, late January, and while I was > working on the leg press at the gym, something " gave " . Now, the fibroid > is being quite ugly and uncooperative. Painful. Simply time for it to > go. Sigh. I would have loved to avoid surgery entirely -- but that > just isn't in my journey on this planet I guess. Laparotomy it is > then..... > > I was actually scheduled for surgery last Monday, but a paperwork > screw-up between my dear sweet gyn and his surgery coordinator meant > that I never made that Monday schedule. So, tomorrow at 9 a.m. it is. > > Will a myomectomy make things better or worse in my current beginning > phases of prolapse? I don't know. We'll see. I'm just taking this > thing one step at a time these days. > > Did my UAE cause the fibroid prolapse? No, I don't believe so. It may > have made the fibroid smaller and more likely to prolapse, but more than > likely a good decade walking around with a HUGE, burdensome, weighted, > fibroid uterus stressed the pelvic support ligaments tremendously. I'm > a diligent kegal fan (always helped with vaginal control and enhancing > feeling in sexual function!) and in my case it simply wasn't enough to > fend off the stress a HUGE fibroid uterus has on those > ever-so-essential pelvic ligaments. > > I do have to admit I am angry over this. Very. At every gyn I ever > consulted who refused to do a myomectomy and insisted that ONLY a > hysterectomy could be done for my subserosal fibroid. And that's a lot > of gyns! It's also a LOT of years to be carrying around a growing > fibroid uterus of tremendous size. In addition, I'm angry at the gyns > who make women watch and wait forever when they have a fibroid uterus > equal to or greater than 16 weeks in size. No symptoms? Give me a > break. I don't believe for a moment that SOME damage isn't being done > with a fibroid uterus this size. Subserosal fibroids can get quite > large without presenting bleeding symptoms for a woman -- but that > doesn't mean it's not causing damage. It most certainly is. Prolapse > after UAE, myomectomy, myolysis, and even hysterectomy is probably an > increased risk factor for any woman with a fibroid uterus this size. > > So, here I am. Nervous as hell and simply waiting for tomorrow to come > at this point. Dr. Broder is my surgeon and I have every > confidence in the world in him. Maybe not with paperwork....but surgery > yes! Oddly enough, I am strong, healthy, and not the typical myo > patient at all. I have no fibroid symptoms typical of a patient > undergoing surgery for myo. No anemia. Considerable weight loss from > pre-UAE days. A much better mental frame of mind than pre-UAE days. > MUCH better. And, I trust my doctor these days. I'm hoping that all of > this bears weight in my favor when it comes to surgery and recovery. > We'll see. I'm still a big weenie with the pain thing so I could give > the anesthesiologists a run for their money....but, we'll see. > > If I do come back online early, it won't be to post. Rather, I will be > spending time updating My Journal and my website. I hope all understand > the much needed respite I will need with this. > > In terms of technical coverage for the uterinefibroids list group, my > daughter -- a senior at University of California at Irvine -- > will be handling all technical details requiring moderation. She > doesn't read the list email so if there are any of you who wish to > unsubscribe and can't quite figure out how to do it, please email her > at: > > poohsticks@... > > Also, anyone requiring assistance with this group should feel free to > email her with your questions. She will most likely also come online > tomorrow and post an update regarding my surgery. I'm certain all will > go well but she has agreed to do this for me anyway. > > Good health to all and please remember to be kind to one another while > you are trying to get a grip on your own fibroid situation and in > attempting to understand this ugly disease which has entered into your > life. > > Carla Dionne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 I have often wondered if fibroids were large enough to more or less " invade " the uterine muscle whether this could cause a lessening of sexual response.I don't know if this has been studied-somehow I doubt it. Bonnie gwenihall@... wrote: > I had a question on the sex part of this email. Please clarify. Do > fibroids cause a dysfunction or lack of feeling or what? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 I have often wondered if fibroids were large enough to more or less " invade " the uterine muscle whether this could cause a lessening of sexual response.I don't know if this has been studied-somehow I doubt it. Bonnie gwenihall@... wrote: > I had a question on the sex part of this email. Please clarify. Do > fibroids cause a dysfunction or lack of feeling or what? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Good luck and quick recovery, Carla. Good luck and quick recovery for anyone else from this group who is going through surgery soon. Nitza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Hi I had my three week post op visit with Dr. Stanley West. He examined me looked at my incision and said I have no more restrictions. My abdomen is still a little swollen and numb. He said the numbness will take about six months to go away. I have a follow up appointment with him in six months. I am very happy with my decision to have Dr. West perform my surgery. Hazel surgery scheduled.... > Dear Friends, > > This will be my last post for the next couple of weeks as tomorrow > morning I enter the UCLA Medical Center for surgery to remove my > fibroids via myomectomy. I need some time off from the list to both > recover from the surgery but also to simply spend some much needed time > with my family. > > Those of you who've been to uterinefibroids.com know that I underwent > UAE almost 2.5 years ago. It was a successful embolization and did > allow me to regain my life in a most enthusiastic way. (Well, except > for the sex issue which sucked royally but now is something I've rather > learned to simply deal with.) At any rate, I will begin adding new My > Journal entries as my current health is now leading me down a path of > additional care that I never anticipated. Hell, no one anticipated it. > Basically, my large subserosal fibroid which was indeed successfully > embolized and shrunk down to ~8 cm, has decided to move a bit and has > tilted my uterus considerably with the beginnings of prolapse of the > tumor into the vagina. Rather suddenly, late January, and while I was > working on the leg press at the gym, something " gave " . Now, the fibroid > is being quite ugly and uncooperative. Painful. Simply time for it to > go. Sigh. I would have loved to avoid surgery entirely -- but that > just isn't in my journey on this planet I guess. Laparotomy it is > then..... > > I was actually scheduled for surgery last Monday, but a paperwork > screw-up between my dear sweet gyn and his surgery coordinator meant > that I never made that Monday schedule. So, tomorrow at 9 a.m. it is. > > Will a myomectomy make things better or worse in my current beginning > phases of prolapse? I don't know. We'll see. I'm just taking this > thing one step at a time these days. > > Did my UAE cause the fibroid prolapse? No, I don't believe so. It may > have made the fibroid smaller and more likely to prolapse, but more than > likely a good decade walking around with a HUGE, burdensome, weighted, > fibroid uterus stressed the pelvic support ligaments tremendously. I'm > a diligent kegal fan (always helped with vaginal control and enhancing > feeling in sexual function!) and in my case it simply wasn't enough to > fend off the stress a HUGE fibroid uterus has on those > ever-so-essential pelvic ligaments. > > I do have to admit I am angry over this. Very. At every gyn I ever > consulted who refused to do a myomectomy and insisted that ONLY a > hysterectomy could be done for my subserosal fibroid. And that's a lot > of gyns! It's also a LOT of years to be carrying around a growing > fibroid uterus of tremendous size. In addition, I'm angry at the gyns > who make women watch and wait forever when they have a fibroid uterus > equal to or greater than 16 weeks in size. No symptoms? Give me a > break. I don't believe for a moment that SOME damage isn't being done > with a fibroid uterus this size. Subserosal fibroids can get quite > large without presenting bleeding symptoms for a woman -- but that > doesn't mean it's not causing damage. It most certainly is. Prolapse > after UAE, myomectomy, myolysis, and even hysterectomy is probably an > increased risk factor for any woman with a fibroid uterus this size. > > So, here I am. Nervous as hell and simply waiting for tomorrow to come > at this point. Dr. Broder is my surgeon and I have every > confidence in the world in him. Maybe not with paperwork....but surgery > yes! Oddly enough, I am strong, healthy, and not the typical myo > patient at all. I have no fibroid symptoms typical of a patient > undergoing surgery for myo. No anemia. Considerable weight loss from > pre-UAE days. A much better mental frame of mind than pre-UAE days. > MUCH better. And, I trust my doctor these days. I'm hoping that all of > this bears weight in my favor when it comes to surgery and recovery. > We'll see. I'm still a big weenie with the pain thing so I could give > the anesthesiologists a run for their money....but, we'll see. > > If I do come back online early, it won't be to post. Rather, I will be > spending time updating My Journal and my website. I hope all understand > the much needed respite I will need with this. > > In terms of technical coverage for the uterinefibroids list group, my > daughter -- a senior at University of California at Irvine -- > will be handling all technical details requiring moderation. She > doesn't read the list email so if there are any of you who wish to > unsubscribe and can't quite figure out how to do it, please email her > at: > > poohsticks@... > > Also, anyone requiring assistance with this group should feel free to > email her with your questions. She will most likely also come online > tomorrow and post an update regarding my surgery. I'm certain all will > go well but she has agreed to do this for me anyway. > > Good health to all and please remember to be kind to one another while > you are trying to get a grip on your own fibroid situation and in > attempting to understand this ugly disease which has entered into your > life. > > Carla Dionne > > > Quote Link to comment Share on other sites More sharing options...
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