Re: Getting ready for testing-Help!

[Guest guest]

Hi Cheryl. I'm glad you are getting a few answers re: celiac disease. It

isn't a fun diagnosis to get, but the good news is that a gluten-free

diet can make things so much better that it will seem like a blessing in

the end.

Personally, if I were you (and I'm not, so take this for what it is

worth), I would not go back on gluten to get tested. If you already know

you are allergic to wheat, you are right that you shouldn't add that

back into your diet. I don't know that you'd be able to eat enough other

gluten to make the tests positive. What I've heard is two slices of

wheat bread a day for six weeks. That's a lot! I don't know how much

that would equate to in oats.

So, if it were me, I'd have the gene test done, have your daughter's

biopsy done, and go gluten free. If you feel better and those other

issues resolve, then you have your answer without having to put your

body through so much to get a positive test result. I know there will be

others that disagree with me though, so take that for what it is worth.

Oh, and you say you don't eat barley, but keep in mind about barley

malt. It's in so much!

Good luck,

Elaine

rxp_us wrote:

> As we get ready to be tested, I

> have one problem I need help with. I was diagnosed with wheat allergy

> (and soy and yeast)

> 6 months ago and took it out of my diet. I noticed a dramatic

> improvement in my

> symptoms, but they never quite went away-- especially the diarrhea and

> gas.

[Guest guest]

If that little amount of gluten bothers

her, I would take it out of her diet. Don’t worry about the test, you

already know how it affects her.

I

figured if it was a matter of slipping in a small bit every day,

maybe we

could muddle through, but even two pieces of normal pasta

cause her to

scream for hours. I can't even begin to imagine what

two pieces

of bread would do.

[Guest guest]

If that little amount of gluten bothers

her, I would take it out of her diet. Don’t worry about the test, you

already know how it affects her.

I

figured if it was a matter of slipping in a small bit every day,

maybe we

could muddle through, but even two pieces of normal pasta

cause her to

scream for hours. I can't even begin to imagine what

two pieces

of bread would do.

[Guest guest]

I wouldn't put myself or my kid through pain when I know that's the

problem. Is there some reason you NEED a diagnosis? You can eat GF

and feed your family GF without a prescription!

Just my 2 cents!

Celeste

> The big question is: what is the best source of non-wheat gluten I

can eat before these tests? And does anyone know how much I have to

eat on a daily basis for it to be effective?

> The pedi-GI we saw was kind of vague with " you need to add wheat

back into your diet. " Um, I'm allergic...... There has to be a way

around this in order to be tested. Any bright

> ideas?

>

> Thanks,

> Cheryl in Tampa

[Guest guest]

I wouldn't put myself or my kid through pain when I know that's the

problem. Is there some reason you NEED a diagnosis? You can eat GF

and feed your family GF without a prescription!

Just my 2 cents!

Celeste

> The big question is: what is the best source of non-wheat gluten I

can eat before these tests? And does anyone know how much I have to

eat on a daily basis for it to be effective?

> The pedi-GI we saw was kind of vague with " you need to add wheat

back into your diet. " Um, I'm allergic...... There has to be a way

around this in order to be tested. Any bright

> ideas?

>

> Thanks,

> Cheryl in Tampa

[Guest guest]

I was told 6 months by Dr. Fasano.

ita

[Guest guest]

Actually, most experts think you need to eat that much

for 12 weeks -- and even then there's no guarantee

that's enough.

richard

I don't know that you'd be able

> to eat enough other

> gluten to make the tests positive. What I've heard

> is two slices of

> wheat bread a day for six weeks. That's a lot! I

> don't know how much

> that would equate to in oats.

>

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