Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Hi everyone. I had a quick question. I was diagnosed with vulvular vestibulitis in 2000. I have went through several treatments (estrace, clobestol, and Nortriptyline). However, I got pregnant May of last year and had to stop all treatment. After having the baby (and throughout my pregnancy) I am right back where I started from before treatment. The pain certainly wasn't gone before I got pregnant but every once in a while I would get a little glimmer of hope becasue it wouldn't hurt so bad or something. Right now we don't have insurance yet and we just moved to a new area so I have no specialist or any money to see one. I am terribly discouraged and I do not think that this will ever end or go away. My husband gets very frustrated because I never want to have sex. It just hurts too bad. Anyway, my question is this: I have always been told that VV is generally pain around the opening of the vulva with POC. That is what the estrace and all is supposed to treat right? Anyway, I have pain all in the inside too. I told the specialist I was seeing in Wisconsin this and he just dismissed it. But I don't see how using estrace just on the opening would help the intense pain on the inside. Is this normal for VV?? At this point in the game I just want to give up on the hope of ever being healed!! I am just frustrated and worried about the continuous effect of " sex every once in a blue moon " on my marriage. Even when we do have sex it doesn't help things becasue it's not enjoyable to me and therefore not enjoyable for my husband. I am really scared. Okay I didn't mean to pour my heart out like that but you guys are the only ones who truly understand this stuff. I can talk to my friends but they don't really understand or know what to say! Thanks for listening. I appreciate you all being there. Healing thoughts to all, Deidre Sleister ===== " I can do all things through Christ who gives me strength. " ~Philippians 4:13 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 Dave The first thing is there are very few instances of Prostate Cancer that require immediate decisions. When I was diagnosed in 1996 it took me a couple of months to decide. Tell us a little about yourself, how you found out you have Prostate Cancer and what info you have been given about the tests you have. The decision about what you will do will be based on what is required for your stats and the emotional aspects of what you can live with. We won't decide for you, we will try to help you narrow the choices down. Don't panic, you will be around for some time yet!!! confused Have to say being newly diagnosed, a nurse, and reading so much, I haveno idea what to do. So much compares older forms of treatment with morerefined treatment today. This is truly over whelming! No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.42/2042 - Release Date: 04/05/09 10:54:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 Dave The first thing is there are very few instances of Prostate Cancer that require immediate decisions. When I was diagnosed in 1996 it took me a couple of months to decide. Tell us a little about yourself, how you found out you have Prostate Cancer and what info you have been given about the tests you have. The decision about what you will do will be based on what is required for your stats and the emotional aspects of what you can live with. We won't decide for you, we will try to help you narrow the choices down. Don't panic, you will be around for some time yet!!! confused Have to say being newly diagnosed, a nurse, and reading so much, I haveno idea what to do. So much compares older forms of treatment with morerefined treatment today. This is truly over whelming! No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.42/2042 - Release Date: 04/05/09 10:54:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 Dave The first thing is there are very few instances of Prostate Cancer that require immediate decisions. When I was diagnosed in 1996 it took me a couple of months to decide. Tell us a little about yourself, how you found out you have Prostate Cancer and what info you have been given about the tests you have. The decision about what you will do will be based on what is required for your stats and the emotional aspects of what you can live with. We won't decide for you, we will try to help you narrow the choices down. Don't panic, you will be around for some time yet!!! confused Have to say being newly diagnosed, a nurse, and reading so much, I haveno idea what to do. So much compares older forms of treatment with morerefined treatment today. This is truly over whelming! No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.42/2042 - Release Date: 04/05/09 10:54:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 Highest PSA was 3.6, Gleasion score was 6, with 5 of 12 biopsies positive with 5 or less % of tissue. > > Have to say being newly diagnosed, a nurse, and reading so much, I have > no idea what to do. So much compares older forms of treatment with more > refined treatment today. This is truly over whelming! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 Highest PSA was 3.6, Gleasion score was 6, with 5 of 12 biopsies positive with 5 or less % of tissue. > > Have to say being newly diagnosed, a nurse, and reading so much, I have > no idea what to do. So much compares older forms of treatment with more > refined treatment today. This is truly over whelming! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 Dave I have to say that with stats like this you have time. Options seem to be active monitoring, sugery or one of the radiotherapies there are a few others. The active monitoring comes high on the agenda if you want to postpone the possible side effects that come with the more radical treatments. It gives you chance to find out if the cancer is progressing or dormant. On the other hand if action is more of a concern than side effects we into a radical treatment. You have time to decide!!! Re: confused Highest PSA was 3.6, Gleasion score was 6, with 5 of 12 biopsiespositive with 5 or less % of tissue.>> Have to say being newly diagnosed, a nurse, and reading so much, Ihave> no idea what to do. So much compares older forms of treatment withmore> refined treatment today. This is truly over whelming!> No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.42/2042 - Release Date: 04/05/09 10:54:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 Dave I have to say that with stats like this you have time. Options seem to be active monitoring, sugery or one of the radiotherapies there are a few others. The active monitoring comes high on the agenda if you want to postpone the possible side effects that come with the more radical treatments. It gives you chance to find out if the cancer is progressing or dormant. On the other hand if action is more of a concern than side effects we into a radical treatment. You have time to decide!!! Re: confused Highest PSA was 3.6, Gleasion score was 6, with 5 of 12 biopsiespositive with 5 or less % of tissue.>> Have to say being newly diagnosed, a nurse, and reading so much, Ihave> no idea what to do. So much compares older forms of treatment withmore> refined treatment today. This is truly over whelming!> No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.42/2042 - Release Date: 04/05/09 10:54:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 Dave I have to say that with stats like this you have time. Options seem to be active monitoring, sugery or one of the radiotherapies there are a few others. The active monitoring comes high on the agenda if you want to postpone the possible side effects that come with the more radical treatments. It gives you chance to find out if the cancer is progressing or dormant. On the other hand if action is more of a concern than side effects we into a radical treatment. You have time to decide!!! Re: confused Highest PSA was 3.6, Gleasion score was 6, with 5 of 12 biopsiespositive with 5 or less % of tissue.>> Have to say being newly diagnosed, a nurse, and reading so much, Ihave> no idea what to do. So much compares older forms of treatment withmore> refined treatment today. This is truly over whelming!> No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.42/2042 - Release Date: 04/05/09 10:54:00 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.