D - Bloodwork

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D,

These vitamin and mineral (and carnitine) levels have to be asked for

specifically. Many of them have to be sent off to another lab, so this

takes a while. Here's how we do bloodwork: over the course of time, I

read and read of what everyone else is ordering, then I let my doc know

what I'm reading and worried about. He also adds what he is concerned

with and we go from there. Remember, we have no keto team (just me, my

pediatrician, and the LORD). My pediatrician has been learning, just as

I have. He usually orders a CBC (I think it is a complete blood count)

and a CMP (complete metabolic profile) and a lipid profile and any other

thing that we are concerned with. My doc is very open to me asking for

specifics, I mean, they are already drawing blood, why not satisfy the

mom by honoring her request!?! Unlike some docs, he is very respectful

of what the mothers on our list have " uncovered. " He has never once

discounted what I've learned from this list (trust me, I'm super

thankful!). My neuro is clueless on bloodwork, he's never once even

asked about bloodwork (since we are off AEDs), he is very uneducated on

the diet.

Kathy in Tennessee

Mom to - 6 - Keto kid since 02/00, Med free, seizures 95% reduced

Mom to 'lil sis, a - 3

" Even to your old age and gray hairs I am He, I am He who will sustain

you. I have made you and I will carry you; I will sustain you and I will

rescue you. "

Isaiah 46:4

On Thu, 30 Aug 2001 09:54:21 -0700 (PDT) DeEtte Person

writes:

> Kathy -- What kind of bloodwork do you routinely do?

> This was the type of info I thought I was going to get

> from our blood work (selenium, carnitine, etc.) but it

> didn't have any of that!--D

>

> --- myketokid@... wrote:

> > ,

> > LOL!!!! Won't tell IZ a thing! continues to

> > do very well. But,

> > this month, he has had 4 seizures (instead of his

> > monthly 2). I have 2

> > possible culprits. We decreased his ratio a couple

> > of months ago to

> > 3.3:1 (from 3.5:1). Well, when I remade the meals,

> > I added some

> > calories. He hadn't grown at his last Doc's visit

> > and he had been

> > getting hungry. So, (yes, the cardinal sin) I

> > increase calories at the

> > same time that I decreased the ratio. Well, then I

> > added a nut snack a

> > few weeks ago, when he started school (trying to

> > coordinate times, etc.).

> > This is when we've seen the extra seizures. They

> > are still " one at a

> > time " always in the middle of the night. But, I

> > really think the calorie

> > increase is our culprit, so a few days ago I

> > decreased them a little. If

> > this doesn't seem to cut them back down, I'll look

> > at raising the ratio

> > back up. But, I'm gonna give it a couple months.

> > OH, and also, Dh

> > changed the brands of mac nuts, so my calculations

> > have been off for a

> > while (less fat), so this also could have done some

> > ketone fluctuating.

> > You'd think a mac nut is a mac nut, I guess not!

> > We are scheduled for a " bone densitometry " test

> > next week (he was

> > suppose to have it last week, but I forgot and gave

> > him his calcium that

> > day, so they had to reschedule). I've been a little

> > parnoid about the

> > osteoporosis thing anyway, but when showed no

> > recent growth, we

> > REALLY felt we should go ahead with this. Plus,

> > this will give us a

> > baseline to compare with over the years (looks like

> > we are in this diet

> > for life).

> > His recent bloodwork showed his selenium is low -

> > I'm adding brazil

> > nuts, and his Vit A is low - I'm adding more carrots

> > to his meals. I'm

> > trying to avoid adding more supplements. What multi

> > vitamin are you

> > using (I know I've asked this a million times). I

> > really need to change

> > from the Bugs, but I've haven't because loves

> > it (he begs for his

> > vitamin everyday) and until now, all his vitamin

> > levels have came back

> > great. Figure this one: his carnitine level was

> > abnormally high - and

> > we haven't supplemented carnitine in over a year. I

> > thought this diet

> > was suppose to deplete the carnitine level, who

> > knows?

> > Anyway, this is more info than what you asked for.

> > Thanks for your

> > concern. So glad Jess has made it through 2

> > " seizure " months. Hope it

> > continues.

> > Kathy in Tennessee

> > Mom to - 6 - Keto kid since 02/00, Med free,

> > seizures 95% reduced

> > Mom to 'lil sis, a - 3

> > " Even to your old age and gray hairs I am He, I am

> > He who will sustain

> > you. I have made you and I will carry you; I will

> > sustain you and I will

> > rescue you. "

> > Isaiah 46:4

> >

> >

> > On Wed, 29 Aug 2001 18:57:40 +0000 " m.coole "

> >

> > writes:

> > > myketokid@... wrote:

> > >

> > > > ,

> > > > Careful using the word " status " in your

> > posts - my heart

> > > skipped

> > > > a beat

> > > > - thought your were gonna tell us Jess was

> > having seizures. SO

> > > GLAD

> > > > that

> > > > wasn't the case - so glad you have a good

> > vacation.

> > > >

> > >

> > > Oh my gosh, sorry this is so old, I saved it to

> > respond to, then

> > > just

> > > found it again

> > > Well you're right, never thought of that, maybe I

> > should set my

> > > puter to

> > > delete THAT word from the spellcheck and just

> > refuse to let it be

> > > typed

> > > in at all, think it will work? LOL Speakin of

> > that word, we are

> > > doing

> > > good - nothing since Feb and both May and Aug are

> > " those " months so

> > > I do

> > > believe the diamox with the diet is working -

> > shhhh- don't tell

> > > Isabel,

> > > she will accuse me of killing my child! Okay, slap

> > me, just being

> > > catty.......... Geuss I am in a good mood,

> > wonder why? LOL

> > >

> > > > We buy our food coloring from Bickford

> > flavorings

> > > > (1). I

> > > > just started using the colors about 3-4 months

> > ago. I'm scared

> > > 's

> > > >

> > > > gonna grow up thinking that lime, chocolate,

> > lemon, and whatever

> > > > flavoring we use, are all white! (color of

> > 's pudding). So,

> > > we

> > > > started coloring the lime green, etc. Bickford

> > people are very

> > > nice

> > > > to

> > > > deal with. They are familiar with the diet, but

> > they will not

> > > " swear "

> > > > to

> > > > you that their stuff is keto friendly, but we've

> > never had any

> > > > problems

> > > > with them.

> > >

> > > Thanks, I use their flavourings, have never tried

> > the colours. So it

> > > would appear the colours are keto friendly too

> > then. How is

> > > doing??

> > >

> >

> >

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>

>

> =====

> DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures

> greatly reduced) and (, 4), sdale, AZ

>

> " I know God would never give me more than I can handle. . .I just

> wish he didn't trust me so much. "

>

> __________________________________________________

>