Re: denied SSDI claim- 2nd time-I HATE this BS!!!

[Guest guest]

Dear Kerrie:

I am just a little ahead of you on the disability issue. I also was denied twice. I then had to download the appeal form again and fill it out - requesting a hearing in front of a judge. I hand delivered the form (don't mail it) to the closest SS office. Make sure you do this and have them make a copy for you and have it stamped with the date - as proof that you submitted it in a timely manner (You have 60 days from the date of the denial letter). This way, if there's ever a question that you didn't appeal in the proper time, you have proof.

I took care of this first, then I went about getting a lawyer to represent me. He still has to look over my file, so I'm not sure if he will take me on as a client or not. A lawyer won't accept your case if he doesn't think he can win it - 'cause that's the only way he makes money.

When he does accept me, then the lawyer knows to fill out another form for SS stating that he is representing me at my hearing. Here in TN, your hearing date doesn't come around until a year after you appeal! So, it's still a long process and can only wait. Wherever you live, the hearing might come sooner. Ask your lawyer.

Sorry you are feeling the frustration and anger, but believe me, I know exactly what you are feeling! This whole process of SSDI is SO ridiculous!

Good luck with your 3rd attempt!

Smiles,

[Guest guest]

Dear Kerrie:

I am just a little ahead of you on the disability issue. I also was denied twice. I then had to download the appeal form again and fill it out - requesting a hearing in front of a judge. I hand delivered the form (don't mail it) to the closest SS office. Make sure you do this and have them make a copy for you and have it stamped with the date - as proof that you submitted it in a timely manner (You have 60 days from the date of the denial letter). This way, if there's ever a question that you didn't appeal in the proper time, you have proof.

I took care of this first, then I went about getting a lawyer to represent me. He still has to look over my file, so I'm not sure if he will take me on as a client or not. A lawyer won't accept your case if he doesn't think he can win it - 'cause that's the only way he makes money.

When he does accept me, then the lawyer knows to fill out another form for SS stating that he is representing me at my hearing. Here in TN, your hearing date doesn't come around until a year after you appeal! So, it's still a long process and can only wait. Wherever you live, the hearing might come sooner. Ask your lawyer.

Sorry you are feeling the frustration and anger, but believe me, I know exactly what you are feeling! This whole process of SSDI is SO ridiculous!

Good luck with your 3rd attempt!

Smiles,

[Guest guest]

Dear Kerrie:

I am just a little ahead of you on the disability issue. I also was denied twice. I then had to download the appeal form again and fill it out - requesting a hearing in front of a judge. I hand delivered the form (don't mail it) to the closest SS office. Make sure you do this and have them make a copy for you and have it stamped with the date - as proof that you submitted it in a timely manner (You have 60 days from the date of the denial letter). This way, if there's ever a question that you didn't appeal in the proper time, you have proof.

I took care of this first, then I went about getting a lawyer to represent me. He still has to look over my file, so I'm not sure if he will take me on as a client or not. A lawyer won't accept your case if he doesn't think he can win it - 'cause that's the only way he makes money.

When he does accept me, then the lawyer knows to fill out another form for SS stating that he is representing me at my hearing. Here in TN, your hearing date doesn't come around until a year after you appeal! So, it's still a long process and can only wait. Wherever you live, the hearing might come sooner. Ask your lawyer.

Sorry you are feeling the frustration and anger, but believe me, I know exactly what you are feeling! This whole process of SSDI is SO ridiculous!

Good luck with your 3rd attempt!

Smiles,

[Guest guest]

Kerrie!!!!!! I'm sooooooooo soooooooooooo sorry and i can most definately feel for you! I wish i were writing to you with some answers, but i have ZERO hopes of getting SSI because not only am i working because i am supplied with enough NARCOTICS to enable me to, but because I CAN'T AFFORD to go see enough DOCTORS to get enough MEDICAL RECORDS to BACK my case.

Please dont give up hope.... from what i DO understand: EVERYONE goes through loops after LOOPS after LOOOOPS before they are approved SSI.....

GOD it's just maddening........ I wish SO MUCH that those people who sit in their offices and made these decisions get to live in our skins for a few days - just a FEW DAYS and those f---kers would be writing approvals left & right.

Anyway..... im just sitting here waiting for my pain meds to kick in so i can wash my dishes that have been sitting at my sink for 5 days.

Keep venting -- we're here to listen and hopefully someone here who's been thru this process will have some great advise for you!!!!!!! I am SURE of it!

Love & HUGS,

jaana

[Norton AntiSpam] denied SSDI claim- 2nd time-I HATE this BS!!!

Well guys, I'm kinda bummin'. I have a shitty cold and a kinda high fever today. But what is worse, I received my second denial from SSDI yesterday. I pretty much knew it would get denied again, but I was just hoping....

What really makes me mad is the reasons why they denied me again. They tell me that even though I suffer from pain that makes things difficult for me, I can still work. I don't even leave my bed most days, never mind my apartment. I haven't really left my bed in the last couple of weeks cause I've been feeling extra shitty. I hate SSDI. I hate what they make you go through.

What is my next step? I know I can get a lawyer now, and I already know who I am using. (Thank you JeanB.) I just don't have the energy to go to the websites that tell me the whole process and what to expect. I figured maybe a few of you who have already gone through this can tell me what to do and what to expect. (I am in Rhode Island, BTW.)

Is the next step a hearing or do I have to appeal again or what? How do I appeal for this one? I appealed my first denial by writing to them and sending in the particular form they ask for. Do I do the same thing now? When do I actually call the lawyer? I'm feeling lost right now. I just want to go to bed and bury my head under the covers right now cause I feel so shitty and now I am really depressed over this. I cannot believe I will have to wait even LONGER. I know you guys know how it is though. I just don't understand HOW they can say I am OK to work and go about my daily life like there is nothing wrong when I can't even leave the friggin' bed. Assholes. I am really, really worried about going to a hearing too. I read the post in my RI group from the person who went to the hearing and was STILL denied because the judge said he did not believe fibro was a real illness. How can they say that? It has been PROVEN that fibro is a real illness, has it not? How can a judge deny you based on their personal opinion?

My doctors aren't helping the matter much. Every time I ask for a specific test, they don't send me cause they say it wouldn't matter. I have insurance so it's not like I have to pay for the tests. I am going to have to type out a letter and send it to all my docs telling them WHY I need SSDI so bad. I went this past winter without heat in my apartment. That made the whole stiffness business a hundred times worse. I'm living off my husband's salary, which is not much. We are barely getting by. We aren't able to get any welfare or any assistance because we haven't got any kids. I HAVE tried. I've tried every agency, you name it, to get help. I am just thankful I've been able to go this long without working without living on the street, cause that is my next move. I don't know ANYONE who I could stay with longer than a couple weeks, maximum. If I don't end up getting this SSDI, that's it. I might as well hang myself cause my life WILL be over. This has been my ONLY hope these past few years. Ever since I was told that fibro was on the list of acceptable illnesses, I felt HOPE. Now it's starting to feel more and more hopeless.

I don't have anyone to REALLY talk to about this stuff in my life except my online groups. Everyone in my life either got sick of hearing me complain about being in so much pain or being so unhappy, or they try to tell me about these "cures" that they read about, or that someone they know told them about. I know they mean well, but no matter what anyone tells me to try, I have TRIED IT ALREADY. I just want to scream that to them. Like, don't you think I have done exhaustive research about how to make myself feel better? Most of the time I just let them talk and hold the phone away from my ear to keep myself from getting upset. The people who DO NOT have this illness do not realize that it takes up 99.9% of my time, my life, everything. It's a WAY of life.

Anyway, I don't mean to complain, I'm just so damn bummed right now. No matter if I have to take my case to the supreme court, lol, I HAVE to TRY. What I don't get is that my rheumatologist told me that I am one of the most severe cases of fibro she has ever seen, so why doesn't that help me? I was also diagnosed with depression not too long ago, but on the denial it says that even though I am depressed, it is not SEVERE enough to keep me from working, etc. OK, I told my doc that I want to commit suicide cause of the constant pain, etc., yet that is NOT severe enough? What is? Do I have to hang myself to prove my point? I'm going to have to start seeing a psychiatrist, even though I really cannot afford it, just to PROVE I am really as depressed as it seems. This means I'll have to pull money out my ass, since I don't have any, plus I'll have to find rides to the appts. Wonderful. I have a hard enough time as it is.

Someone, anyone, HELP. What comes next? I could look this all up but I just cannot sit out here long enough. I WILL look it all up when I feel better just to be sure I know what I'm doing and doing it all correctly. It sure would help to hear from some of you though. You people on these boards are truly angels. I don't know what I'd do if I didn't have anyone to "talk" to who REALLY understands.

I just had to buy some generic Soma online since my doc won't write for it. She gives me Zanaflex though, which I totally do not understand since it's just as addictive as Soma. She is really generous with the Zanaflex script too. I just paid $15 plus $15 next day FedEx for #30 generic Soma. Not bad considering I have to buy online. I did the research though, and the site I got them at got really good reviews, plus it's in the US and you don't need to send them records or pay for a consult. If they deliver like they say, I'm going to order the 90 count Soma next time. So far, Soma is the best muscle relaxer I've had, except for Valium, lol. I can get Valium, it just takes longer to get here and I have to worry about it getting seized by Customs since it comes from overseas. I really wish they would let up and be a bit more lenient with these drug laws. I wanted to get some hydro for breakthrough pain, but the only place I can get hydro 10/325 without the whole consult bullshit costs $187 for 90 pills. Crazy. My husband used to get 120 Norco for about $65 when we didn't have insurance. I just don't have the money to do any online consults like I did when I first got really sick. No work, no money. Ha.

This post has gotten a lot longer than I intended, so I will wrap it up. If you got this far, thank you. I know how hard it is to get through these long posts without just hitting delete. TIA for any replies. I'll be back tomorrow. Right now I'm going back to bed to bury my head and hide from my problems by watching the perfect people on TV. Hope you are all well. Hugz!!!

~*Kerrie*~

[Guest guest]

Kerrie!!!!!! I'm sooooooooo soooooooooooo sorry and i can most definately feel for you! I wish i were writing to you with some answers, but i have ZERO hopes of getting SSI because not only am i working because i am supplied with enough NARCOTICS to enable me to, but because I CAN'T AFFORD to go see enough DOCTORS to get enough MEDICAL RECORDS to BACK my case.

Please dont give up hope.... from what i DO understand: EVERYONE goes through loops after LOOPS after LOOOOPS before they are approved SSI.....

GOD it's just maddening........ I wish SO MUCH that those people who sit in their offices and made these decisions get to live in our skins for a few days - just a FEW DAYS and those f---kers would be writing approvals left & right.

Anyway..... im just sitting here waiting for my pain meds to kick in so i can wash my dishes that have been sitting at my sink for 5 days.

Keep venting -- we're here to listen and hopefully someone here who's been thru this process will have some great advise for you!!!!!!! I am SURE of it!

Love & HUGS,

jaana

[Norton AntiSpam] denied SSDI claim- 2nd time-I HATE this BS!!!

Well guys, I'm kinda bummin'. I have a shitty cold and a kinda high fever today. But what is worse, I received my second denial from SSDI yesterday. I pretty much knew it would get denied again, but I was just hoping....

What really makes me mad is the reasons why they denied me again. They tell me that even though I suffer from pain that makes things difficult for me, I can still work. I don't even leave my bed most days, never mind my apartment. I haven't really left my bed in the last couple of weeks cause I've been feeling extra shitty. I hate SSDI. I hate what they make you go through.

What is my next step? I know I can get a lawyer now, and I already know who I am using. (Thank you JeanB.) I just don't have the energy to go to the websites that tell me the whole process and what to expect. I figured maybe a few of you who have already gone through this can tell me what to do and what to expect. (I am in Rhode Island, BTW.)

Is the next step a hearing or do I have to appeal again or what? How do I appeal for this one? I appealed my first denial by writing to them and sending in the particular form they ask for. Do I do the same thing now? When do I actually call the lawyer? I'm feeling lost right now. I just want to go to bed and bury my head under the covers right now cause I feel so shitty and now I am really depressed over this. I cannot believe I will have to wait even LONGER. I know you guys know how it is though. I just don't understand HOW they can say I am OK to work and go about my daily life like there is nothing wrong when I can't even leave the friggin' bed. Assholes. I am really, really worried about going to a hearing too. I read the post in my RI group from the person who went to the hearing and was STILL denied because the judge said he did not believe fibro was a real illness. How can they say that? It has been PROVEN that fibro is a real illness, has it not? How can a judge deny you based on their personal opinion?

My doctors aren't helping the matter much. Every time I ask for a specific test, they don't send me cause they say it wouldn't matter. I have insurance so it's not like I have to pay for the tests. I am going to have to type out a letter and send it to all my docs telling them WHY I need SSDI so bad. I went this past winter without heat in my apartment. That made the whole stiffness business a hundred times worse. I'm living off my husband's salary, which is not much. We are barely getting by. We aren't able to get any welfare or any assistance because we haven't got any kids. I HAVE tried. I've tried every agency, you name it, to get help. I am just thankful I've been able to go this long without working without living on the street, cause that is my next move. I don't know ANYONE who I could stay with longer than a couple weeks, maximum. If I don't end up getting this SSDI, that's it. I might as well hang myself cause my life WILL be over. This has been my ONLY hope these past few years. Ever since I was told that fibro was on the list of acceptable illnesses, I felt HOPE. Now it's starting to feel more and more hopeless.

I don't have anyone to REALLY talk to about this stuff in my life except my online groups. Everyone in my life either got sick of hearing me complain about being in so much pain or being so unhappy, or they try to tell me about these "cures" that they read about, or that someone they know told them about. I know they mean well, but no matter what anyone tells me to try, I have TRIED IT ALREADY. I just want to scream that to them. Like, don't you think I have done exhaustive research about how to make myself feel better? Most of the time I just let them talk and hold the phone away from my ear to keep myself from getting upset. The people who DO NOT have this illness do not realize that it takes up 99.9% of my time, my life, everything. It's a WAY of life.

Anyway, I don't mean to complain, I'm just so damn bummed right now. No matter if I have to take my case to the supreme court, lol, I HAVE to TRY. What I don't get is that my rheumatologist told me that I am one of the most severe cases of fibro she has ever seen, so why doesn't that help me? I was also diagnosed with depression not too long ago, but on the denial it says that even though I am depressed, it is not SEVERE enough to keep me from working, etc. OK, I told my doc that I want to commit suicide cause of the constant pain, etc., yet that is NOT severe enough? What is? Do I have to hang myself to prove my point? I'm going to have to start seeing a psychiatrist, even though I really cannot afford it, just to PROVE I am really as depressed as it seems. This means I'll have to pull money out my ass, since I don't have any, plus I'll have to find rides to the appts. Wonderful. I have a hard enough time as it is.

Someone, anyone, HELP. What comes next? I could look this all up but I just cannot sit out here long enough. I WILL look it all up when I feel better just to be sure I know what I'm doing and doing it all correctly. It sure would help to hear from some of you though. You people on these boards are truly angels. I don't know what I'd do if I didn't have anyone to "talk" to who REALLY understands.

I just had to buy some generic Soma online since my doc won't write for it. She gives me Zanaflex though, which I totally do not understand since it's just as addictive as Soma. She is really generous with the Zanaflex script too. I just paid $15 plus $15 next day FedEx for #30 generic Soma. Not bad considering I have to buy online. I did the research though, and the site I got them at got really good reviews, plus it's in the US and you don't need to send them records or pay for a consult. If they deliver like they say, I'm going to order the 90 count Soma next time. So far, Soma is the best muscle relaxer I've had, except for Valium, lol. I can get Valium, it just takes longer to get here and I have to worry about it getting seized by Customs since it comes from overseas. I really wish they would let up and be a bit more lenient with these drug laws. I wanted to get some hydro for breakthrough pain, but the only place I can get hydro 10/325 without the whole consult bullshit costs $187 for 90 pills. Crazy. My husband used to get 120 Norco for about $65 when we didn't have insurance. I just don't have the money to do any online consults like I did when I first got really sick. No work, no money. Ha.

This post has gotten a lot longer than I intended, so I will wrap it up. If you got this far, thank you. I know how hard it is to get through these long posts without just hitting delete. TIA for any replies. I'll be back tomorrow. Right now I'm going back to bed to bury my head and hide from my problems by watching the perfect people on TV. Hope you are all well. Hugz!!!

~*Kerrie*~

[Guest guest]

Kerrie!!!!!! I'm sooooooooo soooooooooooo sorry and i can most definately feel for you! I wish i were writing to you with some answers, but i have ZERO hopes of getting SSI because not only am i working because i am supplied with enough NARCOTICS to enable me to, but because I CAN'T AFFORD to go see enough DOCTORS to get enough MEDICAL RECORDS to BACK my case.

Please dont give up hope.... from what i DO understand: EVERYONE goes through loops after LOOPS after LOOOOPS before they are approved SSI.....

GOD it's just maddening........ I wish SO MUCH that those people who sit in their offices and made these decisions get to live in our skins for a few days - just a FEW DAYS and those f---kers would be writing approvals left & right.

Anyway..... im just sitting here waiting for my pain meds to kick in so i can wash my dishes that have been sitting at my sink for 5 days.

Keep venting -- we're here to listen and hopefully someone here who's been thru this process will have some great advise for you!!!!!!! I am SURE of it!

Love & HUGS,

jaana

[Norton AntiSpam] denied SSDI claim- 2nd time-I HATE this BS!!!

Well guys, I'm kinda bummin'. I have a shitty cold and a kinda high fever today. But what is worse, I received my second denial from SSDI yesterday. I pretty much knew it would get denied again, but I was just hoping....

What really makes me mad is the reasons why they denied me again. They tell me that even though I suffer from pain that makes things difficult for me, I can still work. I don't even leave my bed most days, never mind my apartment. I haven't really left my bed in the last couple of weeks cause I've been feeling extra shitty. I hate SSDI. I hate what they make you go through.

What is my next step? I know I can get a lawyer now, and I already know who I am using. (Thank you JeanB.) I just don't have the energy to go to the websites that tell me the whole process and what to expect. I figured maybe a few of you who have already gone through this can tell me what to do and what to expect. (I am in Rhode Island, BTW.)

Is the next step a hearing or do I have to appeal again or what? How do I appeal for this one? I appealed my first denial by writing to them and sending in the particular form they ask for. Do I do the same thing now? When do I actually call the lawyer? I'm feeling lost right now. I just want to go to bed and bury my head under the covers right now cause I feel so shitty and now I am really depressed over this. I cannot believe I will have to wait even LONGER. I know you guys know how it is though. I just don't understand HOW they can say I am OK to work and go about my daily life like there is nothing wrong when I can't even leave the friggin' bed. Assholes. I am really, really worried about going to a hearing too. I read the post in my RI group from the person who went to the hearing and was STILL denied because the judge said he did not believe fibro was a real illness. How can they say that? It has been PROVEN that fibro is a real illness, has it not? How can a judge deny you based on their personal opinion?

My doctors aren't helping the matter much. Every time I ask for a specific test, they don't send me cause they say it wouldn't matter. I have insurance so it's not like I have to pay for the tests. I am going to have to type out a letter and send it to all my docs telling them WHY I need SSDI so bad. I went this past winter without heat in my apartment. That made the whole stiffness business a hundred times worse. I'm living off my husband's salary, which is not much. We are barely getting by. We aren't able to get any welfare or any assistance because we haven't got any kids. I HAVE tried. I've tried every agency, you name it, to get help. I am just thankful I've been able to go this long without working without living on the street, cause that is my next move. I don't know ANYONE who I could stay with longer than a couple weeks, maximum. If I don't end up getting this SSDI, that's it. I might as well hang myself cause my life WILL be over. This has been my ONLY hope these past few years. Ever since I was told that fibro was on the list of acceptable illnesses, I felt HOPE. Now it's starting to feel more and more hopeless.

I don't have anyone to REALLY talk to about this stuff in my life except my online groups. Everyone in my life either got sick of hearing me complain about being in so much pain or being so unhappy, or they try to tell me about these "cures" that they read about, or that someone they know told them about. I know they mean well, but no matter what anyone tells me to try, I have TRIED IT ALREADY. I just want to scream that to them. Like, don't you think I have done exhaustive research about how to make myself feel better? Most of the time I just let them talk and hold the phone away from my ear to keep myself from getting upset. The people who DO NOT have this illness do not realize that it takes up 99.9% of my time, my life, everything. It's a WAY of life.

Anyway, I don't mean to complain, I'm just so damn bummed right now. No matter if I have to take my case to the supreme court, lol, I HAVE to TRY. What I don't get is that my rheumatologist told me that I am one of the most severe cases of fibro she has ever seen, so why doesn't that help me? I was also diagnosed with depression not too long ago, but on the denial it says that even though I am depressed, it is not SEVERE enough to keep me from working, etc. OK, I told my doc that I want to commit suicide cause of the constant pain, etc., yet that is NOT severe enough? What is? Do I have to hang myself to prove my point? I'm going to have to start seeing a psychiatrist, even though I really cannot afford it, just to PROVE I am really as depressed as it seems. This means I'll have to pull money out my ass, since I don't have any, plus I'll have to find rides to the appts. Wonderful. I have a hard enough time as it is.

Someone, anyone, HELP. What comes next? I could look this all up but I just cannot sit out here long enough. I WILL look it all up when I feel better just to be sure I know what I'm doing and doing it all correctly. It sure would help to hear from some of you though. You people on these boards are truly angels. I don't know what I'd do if I didn't have anyone to "talk" to who REALLY understands.

I just had to buy some generic Soma online since my doc won't write for it. She gives me Zanaflex though, which I totally do not understand since it's just as addictive as Soma. She is really generous with the Zanaflex script too. I just paid $15 plus $15 next day FedEx for #30 generic Soma. Not bad considering I have to buy online. I did the research though, and the site I got them at got really good reviews, plus it's in the US and you don't need to send them records or pay for a consult. If they deliver like they say, I'm going to order the 90 count Soma next time. So far, Soma is the best muscle relaxer I've had, except for Valium, lol. I can get Valium, it just takes longer to get here and I have to worry about it getting seized by Customs since it comes from overseas. I really wish they would let up and be a bit more lenient with these drug laws. I wanted to get some hydro for breakthrough pain, but the only place I can get hydro 10/325 without the whole consult bullshit costs $187 for 90 pills. Crazy. My husband used to get 120 Norco for about $65 when we didn't have insurance. I just don't have the money to do any online consults like I did when I first got really sick. No work, no money. Ha.

This post has gotten a lot longer than I intended, so I will wrap it up. If you got this far, thank you. I know how hard it is to get through these long posts without just hitting delete. TIA for any replies. I'll be back tomorrow. Right now I'm going back to bed to bury my head and hide from my problems by watching the perfect people on TV. Hope you are all well. Hugz!!!

~*Kerrie*~

[Guest guest]

Hi,

I don't know you, but thought you could use a short story of hope. I'll give you the ultra condensed version...

I have Fibro and a bladder condition called Interstitial Cystitis and it took me over 2 years to win my case. Barely anyone wins their disability and SSI with my condition and I was turned down the first time. Then, I got a lawyer (Ward White and Associates) and they screwed it up and I lost again. Then, I finally had to make a decision to do everything in my power and fire my lawyer. I found a disability consultant who cared about my case and worked extra hours by talking with me and explaining things, he even coached me on the questions they were going to ask me at my hearing.

He prepared me for what was going to happen, he made sure I was always on the up and up. That's what you need. Don't let them discourage you and don't let a lwayer fail you. If you feel like you can be better represented find a lawyer that won't get paid until you win. That's what I did and I still thought I'd lose and I won. I also had a lot of medical documentation, and had my doctor write me a letter for the judge.

I also typed up a 4 page letter about what it's like to live in my condition. I typed up another sheet on all of the things I have lost since becoming ill. I typed up all hte meds that I currently take, another sheet on all the meds that I tried that failed to work, and all the treatments I had been through. I made my presentation organized and well planned and that along with a good disability consultant won the case. Just remember that social security wants you to give up.

I hope you don't give up because if you are really sick and have the medical proof, you can win, but my advice is to do everything in your power even if it takes all of the strength you have because in the end, hopefully it will be worth it! Good luck and sorry if this was long and boring, but sometimes we just need the encouragement to keep going.

Lexi Kerrie wrote:

Well guys, I'm kinda bummin'. I have a shitty cold and a kinda high fever today. But what is worse, I received my second denial from SSDI yesterday. I pretty much knew it would get denied again, but I was just hoping....

What really makes me mad is the reasons why they denied me again. They tell me that even though I suffer from pain that makes things difficult for me, I can still work. I don't even leave my bed most days, never mind my apartment. I haven't really left my bed in the last couple of weeks cause I've been feeling extra shitty. I hate SSDI. I hate what they make you go through.

What is my next step? I know I can get a lawyer now, and I already know who I am using. (Thank you JeanB.) I just don't have the energy to go to the websites that tell me the whole process and what to expect. I figured maybe a few of you who have already gone through this can tell me what to do and what to expect. (I am in Rhode Island, BTW.)

Is the next step a hearing or do I have to appeal again or what? How do I appeal for this one? I appealed my first denial by writing to them and sending in the particular form they ask for. Do I do the same thing now? When do I actually call the lawyer? I'm feeling lost right now. I just want to go to bed and bury my head under the covers right now cause I feel so shitty and now I am really depressed over this. I cannot believe I will have to wait even LONGER. I know you guys know how it is though. I just don't understand HOW they can say I am OK to work and go about my daily life like there is nothing wrong when I can't even leave the friggin' bed. Assholes. I am really, really worried about going to a hearing too. I read the post in my RI group from the person who went to the hearing and was STILL denied because the judge said he did not believe fibro was a real illness. How can they say that? It has been PROVEN that fibro is a real illness, has it not? How can a judge deny

you based on their personal opinion?

My doctors aren't helping the matter much. Every time I ask for a specific test, they don't send me cause they say it wouldn't matter. I have insurance so it's not like I have to pay for the tests. I am going to have to type out a letter and send it to all my docs telling them WHY I need SSDI so bad. I went this past winter without heat in my apartment. That made the whole stiffness business a hundred times worse. I'm living off my husband's salary, which is not much. We are barely getting by. We aren't able to get any welfare or any assistance because we haven't got any kids. I HAVE tried. I've tried every agency, you name it, to get help. I am just thankful I've been able to go this long without working without living on the street, cause that is my next move. I don't know ANYONE who I could stay with longer than a couple weeks, maximum. If I don't end up getting this SSDI, that's it. I might as well hang myself cause my life WILL be over. This has been my ONLY hope these

past few years. Ever since I was told that fibro was on the list of acceptable illnesses, I felt HOPE. Now it's starting to feel more and more hopeless.

I don't have anyone to REALLY talk to about this stuff in my life except my online groups. Everyone in my life either got sick of hearing me complain about being in so much pain or being so unhappy, or they try to tell me about these "cures" that they read about, or that someone they know told them about. I know they mean well, but no matter what anyone tells me to try, I have TRIED IT ALREADY. I just want to scream that to them. Like, don't you think I have done exhaustive research about how to make myself feel better? Most of the time I just let them talk and hold the phone away from my ear to keep myself from getting upset. The people who DO NOT have this illness do not realize that it takes up 99.9% of my time, my life, everything. It's a WAY of life.

Anyway, I don't mean to complain, I'm just so damn bummed right now. No matter if I have to take my case to the supreme court, lol, I HAVE to TRY. What I don't get is that my rheumatologist told me that I am one of the most severe cases of fibro she has ever seen, so why doesn't that help me? I was also diagnosed with depression not too long ago, but on the denial it says that even though I am depressed, it is not SEVERE enough to keep me from working, etc. OK, I told my doc that I want to commit suicide cause of the constant pain, etc., yet that is NOT severe enough? What is? Do I have to hang myself to prove my point? I'm going to have to start seeing a psychiatrist, even though I really cannot afford it, just to PROVE I am really as depressed as it seems. This means I'll have to pull money out my ass, since I don't have any, plus I'll have to find rides to the appts. Wonderful. I have a hard enough time as it is.

Someone, anyone, HELP. What comes next? I could look this all up but I just cannot sit out here long enough. I WILL look it all up when I feel better just to be sure I know what I'm doing and doing it all correctly. It sure would help to hear from some of you though. You people on these boards are truly angels. I don't know what I'd do if I didn't have anyone to "talk" to who REALLY understands.

I just had to buy some generic Soma online since my doc won't write for it. She gives me Zanaflex though, which I totally do not understand since it's just as addictive as Soma. She is really generous with the Zanaflex script too. I just paid $15 plus $15 next day FedEx for #30 generic Soma. Not bad considering I have to buy online. I did the research though, and the site I got them at got really good reviews, plus it's in the US and you don't need to send them records or pay for a consult. If they deliver like they say, I'm going to order the 90 count Soma next time. So far, Soma is the best muscle relaxer I've had, except for Valium, lol. I can get Valium, it just takes longer to get here and I have to worry about it getting seized by Customs since it comes from overseas. I really wish they would let up and be a bit more lenient with these drug laws. I wanted to get some hydro for breakthrough pain, but the only place I can get hydro 10/325 without the whole consult

bullshit costs $187 for 90 pills. Crazy. My husband used to get 120 Norco for about $65 when we didn't have insurance. I just don't have the money to do any online consults like I did when I first got really sick. No work, no money. Ha.

This post has gotten a lot longer than I intended, so I will wrap it up. If you got this far, thank you. I know how hard it is to get through these long posts without just hitting delete. TIA for any replies. I'll be back tomorrow. Right now I'm going back to bed to bury my head and hide from my problems by watching the perfect people on TV. Hope you are all well. Hugz!!!

~*Kerrie*~1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.No virus found in this outgoing message.Checked by AVG Anti-Virus.Version: 7.0.322 / Virus Database: 266.11.15 - Release Date: 5-22-2005__________________________________________________

[Guest guest]

Hi,

I don't know you, but thought you could use a short story of hope. I'll give you the ultra condensed version...

I have Fibro and a bladder condition called Interstitial Cystitis and it took me over 2 years to win my case. Barely anyone wins their disability and SSI with my condition and I was turned down the first time. Then, I got a lawyer (Ward White and Associates) and they screwed it up and I lost again. Then, I finally had to make a decision to do everything in my power and fire my lawyer. I found a disability consultant who cared about my case and worked extra hours by talking with me and explaining things, he even coached me on the questions they were going to ask me at my hearing.

He prepared me for what was going to happen, he made sure I was always on the up and up. That's what you need. Don't let them discourage you and don't let a lwayer fail you. If you feel like you can be better represented find a lawyer that won't get paid until you win. That's what I did and I still thought I'd lose and I won. I also had a lot of medical documentation, and had my doctor write me a letter for the judge.

I also typed up a 4 page letter about what it's like to live in my condition. I typed up another sheet on all of the things I have lost since becoming ill. I typed up all hte meds that I currently take, another sheet on all the meds that I tried that failed to work, and all the treatments I had been through. I made my presentation organized and well planned and that along with a good disability consultant won the case. Just remember that social security wants you to give up.

I hope you don't give up because if you are really sick and have the medical proof, you can win, but my advice is to do everything in your power even if it takes all of the strength you have because in the end, hopefully it will be worth it! Good luck and sorry if this was long and boring, but sometimes we just need the encouragement to keep going.

Lexi Kerrie wrote:

Well guys, I'm kinda bummin'. I have a shitty cold and a kinda high fever today. But what is worse, I received my second denial from SSDI yesterday. I pretty much knew it would get denied again, but I was just hoping....

What really makes me mad is the reasons why they denied me again. They tell me that even though I suffer from pain that makes things difficult for me, I can still work. I don't even leave my bed most days, never mind my apartment. I haven't really left my bed in the last couple of weeks cause I've been feeling extra shitty. I hate SSDI. I hate what they make you go through.

What is my next step? I know I can get a lawyer now, and I already know who I am using. (Thank you JeanB.) I just don't have the energy to go to the websites that tell me the whole process and what to expect. I figured maybe a few of you who have already gone through this can tell me what to do and what to expect. (I am in Rhode Island, BTW.)

Is the next step a hearing or do I have to appeal again or what? How do I appeal for this one? I appealed my first denial by writing to them and sending in the particular form they ask for. Do I do the same thing now? When do I actually call the lawyer? I'm feeling lost right now. I just want to go to bed and bury my head under the covers right now cause I feel so shitty and now I am really depressed over this. I cannot believe I will have to wait even LONGER. I know you guys know how it is though. I just don't understand HOW they can say I am OK to work and go about my daily life like there is nothing wrong when I can't even leave the friggin' bed. Assholes. I am really, really worried about going to a hearing too. I read the post in my RI group from the person who went to the hearing and was STILL denied because the judge said he did not believe fibro was a real illness. How can they say that? It has been PROVEN that fibro is a real illness, has it not? How can a judge deny

you based on their personal opinion?

My doctors aren't helping the matter much. Every time I ask for a specific test, they don't send me cause they say it wouldn't matter. I have insurance so it's not like I have to pay for the tests. I am going to have to type out a letter and send it to all my docs telling them WHY I need SSDI so bad. I went this past winter without heat in my apartment. That made the whole stiffness business a hundred times worse. I'm living off my husband's salary, which is not much. We are barely getting by. We aren't able to get any welfare or any assistance because we haven't got any kids. I HAVE tried. I've tried every agency, you name it, to get help. I am just thankful I've been able to go this long without working without living on the street, cause that is my next move. I don't know ANYONE who I could stay with longer than a couple weeks, maximum. If I don't end up getting this SSDI, that's it. I might as well hang myself cause my life WILL be over. This has been my ONLY hope these

past few years. Ever since I was told that fibro was on the list of acceptable illnesses, I felt HOPE. Now it's starting to feel more and more hopeless.

I don't have anyone to REALLY talk to about this stuff in my life except my online groups. Everyone in my life either got sick of hearing me complain about being in so much pain or being so unhappy, or they try to tell me about these "cures" that they read about, or that someone they know told them about. I know they mean well, but no matter what anyone tells me to try, I have TRIED IT ALREADY. I just want to scream that to them. Like, don't you think I have done exhaustive research about how to make myself feel better? Most of the time I just let them talk and hold the phone away from my ear to keep myself from getting upset. The people who DO NOT have this illness do not realize that it takes up 99.9% of my time, my life, everything. It's a WAY of life.

Anyway, I don't mean to complain, I'm just so damn bummed right now. No matter if I have to take my case to the supreme court, lol, I HAVE to TRY. What I don't get is that my rheumatologist told me that I am one of the most severe cases of fibro she has ever seen, so why doesn't that help me? I was also diagnosed with depression not too long ago, but on the denial it says that even though I am depressed, it is not SEVERE enough to keep me from working, etc. OK, I told my doc that I want to commit suicide cause of the constant pain, etc., yet that is NOT severe enough? What is? Do I have to hang myself to prove my point? I'm going to have to start seeing a psychiatrist, even though I really cannot afford it, just to PROVE I am really as depressed as it seems. This means I'll have to pull money out my ass, since I don't have any, plus I'll have to find rides to the appts. Wonderful. I have a hard enough time as it is.

Someone, anyone, HELP. What comes next? I could look this all up but I just cannot sit out here long enough. I WILL look it all up when I feel better just to be sure I know what I'm doing and doing it all correctly. It sure would help to hear from some of you though. You people on these boards are truly angels. I don't know what I'd do if I didn't have anyone to "talk" to who REALLY understands.

I just had to buy some generic Soma online since my doc won't write for it. She gives me Zanaflex though, which I totally do not understand since it's just as addictive as Soma. She is really generous with the Zanaflex script too. I just paid $15 plus $15 next day FedEx for #30 generic Soma. Not bad considering I have to buy online. I did the research though, and the site I got them at got really good reviews, plus it's in the US and you don't need to send them records or pay for a consult. If they deliver like they say, I'm going to order the 90 count Soma next time. So far, Soma is the best muscle relaxer I've had, except for Valium, lol. I can get Valium, it just takes longer to get here and I have to worry about it getting seized by Customs since it comes from overseas. I really wish they would let up and be a bit more lenient with these drug laws. I wanted to get some hydro for breakthrough pain, but the only place I can get hydro 10/325 without the whole consult

bullshit costs $187 for 90 pills. Crazy. My husband used to get 120 Norco for about $65 when we didn't have insurance. I just don't have the money to do any online consults like I did when I first got really sick. No work, no money. Ha.

This post has gotten a lot longer than I intended, so I will wrap it up. If you got this far, thank you. I know how hard it is to get through these long posts without just hitting delete. TIA for any replies. I'll be back tomorrow. Right now I'm going back to bed to bury my head and hide from my problems by watching the perfect people on TV. Hope you are all well. Hugz!!!

~*Kerrie*~1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.No virus found in this outgoing message.Checked by AVG Anti-Virus.Version: 7.0.322 / Virus Database: 266.11.15 - Release Date: 5-22-2005__________________________________________________

[Guest guest]

Hi,

I don't know you, but thought you could use a short story of hope. I'll give you the ultra condensed version...

I have Fibro and a bladder condition called Interstitial Cystitis and it took me over 2 years to win my case. Barely anyone wins their disability and SSI with my condition and I was turned down the first time. Then, I got a lawyer (Ward White and Associates) and they screwed it up and I lost again. Then, I finally had to make a decision to do everything in my power and fire my lawyer. I found a disability consultant who cared about my case and worked extra hours by talking with me and explaining things, he even coached me on the questions they were going to ask me at my hearing.

He prepared me for what was going to happen, he made sure I was always on the up and up. That's what you need. Don't let them discourage you and don't let a lwayer fail you. If you feel like you can be better represented find a lawyer that won't get paid until you win. That's what I did and I still thought I'd lose and I won. I also had a lot of medical documentation, and had my doctor write me a letter for the judge.

I also typed up a 4 page letter about what it's like to live in my condition. I typed up another sheet on all of the things I have lost since becoming ill. I typed up all hte meds that I currently take, another sheet on all the meds that I tried that failed to work, and all the treatments I had been through. I made my presentation organized and well planned and that along with a good disability consultant won the case. Just remember that social security wants you to give up.

I hope you don't give up because if you are really sick and have the medical proof, you can win, but my advice is to do everything in your power even if it takes all of the strength you have because in the end, hopefully it will be worth it! Good luck and sorry if this was long and boring, but sometimes we just need the encouragement to keep going.

Lexi Kerrie wrote:

Well guys, I'm kinda bummin'. I have a shitty cold and a kinda high fever today. But what is worse, I received my second denial from SSDI yesterday. I pretty much knew it would get denied again, but I was just hoping....

What really makes me mad is the reasons why they denied me again. They tell me that even though I suffer from pain that makes things difficult for me, I can still work. I don't even leave my bed most days, never mind my apartment. I haven't really left my bed in the last couple of weeks cause I've been feeling extra shitty. I hate SSDI. I hate what they make you go through.

What is my next step? I know I can get a lawyer now, and I already know who I am using. (Thank you JeanB.) I just don't have the energy to go to the websites that tell me the whole process and what to expect. I figured maybe a few of you who have already gone through this can tell me what to do and what to expect. (I am in Rhode Island, BTW.)

Is the next step a hearing or do I have to appeal again or what? How do I appeal for this one? I appealed my first denial by writing to them and sending in the particular form they ask for. Do I do the same thing now? When do I actually call the lawyer? I'm feeling lost right now. I just want to go to bed and bury my head under the covers right now cause I feel so shitty and now I am really depressed over this. I cannot believe I will have to wait even LONGER. I know you guys know how it is though. I just don't understand HOW they can say I am OK to work and go about my daily life like there is nothing wrong when I can't even leave the friggin' bed. Assholes. I am really, really worried about going to a hearing too. I read the post in my RI group from the person who went to the hearing and was STILL denied because the judge said he did not believe fibro was a real illness. How can they say that? It has been PROVEN that fibro is a real illness, has it not? How can a judge deny

you based on their personal opinion?

My doctors aren't helping the matter much. Every time I ask for a specific test, they don't send me cause they say it wouldn't matter. I have insurance so it's not like I have to pay for the tests. I am going to have to type out a letter and send it to all my docs telling them WHY I need SSDI so bad. I went this past winter without heat in my apartment. That made the whole stiffness business a hundred times worse. I'm living off my husband's salary, which is not much. We are barely getting by. We aren't able to get any welfare or any assistance because we haven't got any kids. I HAVE tried. I've tried every agency, you name it, to get help. I am just thankful I've been able to go this long without working without living on the street, cause that is my next move. I don't know ANYONE who I could stay with longer than a couple weeks, maximum. If I don't end up getting this SSDI, that's it. I might as well hang myself cause my life WILL be over. This has been my ONLY hope these

past few years. Ever since I was told that fibro was on the list of acceptable illnesses, I felt HOPE. Now it's starting to feel more and more hopeless.

I don't have anyone to REALLY talk to about this stuff in my life except my online groups. Everyone in my life either got sick of hearing me complain about being in so much pain or being so unhappy, or they try to tell me about these "cures" that they read about, or that someone they know told them about. I know they mean well, but no matter what anyone tells me to try, I have TRIED IT ALREADY. I just want to scream that to them. Like, don't you think I have done exhaustive research about how to make myself feel better? Most of the time I just let them talk and hold the phone away from my ear to keep myself from getting upset. The people who DO NOT have this illness do not realize that it takes up 99.9% of my time, my life, everything. It's a WAY of life.

Anyway, I don't mean to complain, I'm just so damn bummed right now. No matter if I have to take my case to the supreme court, lol, I HAVE to TRY. What I don't get is that my rheumatologist told me that I am one of the most severe cases of fibro she has ever seen, so why doesn't that help me? I was also diagnosed with depression not too long ago, but on the denial it says that even though I am depressed, it is not SEVERE enough to keep me from working, etc. OK, I told my doc that I want to commit suicide cause of the constant pain, etc., yet that is NOT severe enough? What is? Do I have to hang myself to prove my point? I'm going to have to start seeing a psychiatrist, even though I really cannot afford it, just to PROVE I am really as depressed as it seems. This means I'll have to pull money out my ass, since I don't have any, plus I'll have to find rides to the appts. Wonderful. I have a hard enough time as it is.

Someone, anyone, HELP. What comes next? I could look this all up but I just cannot sit out here long enough. I WILL look it all up when I feel better just to be sure I know what I'm doing and doing it all correctly. It sure would help to hear from some of you though. You people on these boards are truly angels. I don't know what I'd do if I didn't have anyone to "talk" to who REALLY understands.

I just had to buy some generic Soma online since my doc won't write for it. She gives me Zanaflex though, which I totally do not understand since it's just as addictive as Soma. She is really generous with the Zanaflex script too. I just paid $15 plus $15 next day FedEx for #30 generic Soma. Not bad considering I have to buy online. I did the research though, and the site I got them at got really good reviews, plus it's in the US and you don't need to send them records or pay for a consult. If they deliver like they say, I'm going to order the 90 count Soma next time. So far, Soma is the best muscle relaxer I've had, except for Valium, lol. I can get Valium, it just takes longer to get here and I have to worry about it getting seized by Customs since it comes from overseas. I really wish they would let up and be a bit more lenient with these drug laws. I wanted to get some hydro for breakthrough pain, but the only place I can get hydro 10/325 without the whole consult

bullshit costs $187 for 90 pills. Crazy. My husband used to get 120 Norco for about $65 when we didn't have insurance. I just don't have the money to do any online consults like I did when I first got really sick. No work, no money. Ha.

This post has gotten a lot longer than I intended, so I will wrap it up. If you got this far, thank you. I know how hard it is to get through these long posts without just hitting delete. TIA for any replies. I'll be back tomorrow. Right now I'm going back to bed to bury my head and hide from my problems by watching the perfect people on TV. Hope you are all well. Hugz!!!

~*Kerrie*~1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.No virus found in this outgoing message.Checked by AVG Anti-Virus.Version: 7.0.322 / Virus Database: 266.11.15 - Release Date: 5-22-2005__________________________________________________