Guest guest Posted July 21, 1999 Report Share Posted July 21, 1999 In a message dated 7/21/99 12:35:51 PM Eastern Daylight Time, Dillr@... writes: > Thanks . Keep us posted about the combination. I have read about the > VNS. Our daughter is 3yr. and has uncontrolled seizures. She was on the > ketogenic diet and had OK success but, wasn't sz free but, was better. I am > hoping that the topamax that we started last night will give her some relief > of all of the subclinical and clinical seizures she is still having. Maybe > just maybe she could give us a little development if the blasted seizes > stopped. We started at 15 mg (using sprinkles) and will work up every week > by 15 mg. Up to 200 mg I believe. I just hate the thought of going back on > drugs but, what can we do???? > Hi , Your story sounds familiar! Isn't it so true - you just wonder what we would see developmentally if the seizures would subside! Over the years we have certainly seen glimpses of the behind all of the seizures. If your daughter has side effects at that rate of increase, you can slow it down some. A discussion on another list recently dealt with this. Many parents slowed to a rate of 6.25 mg/week (using the tablets, tho). We went up by 12.5 mg every other week and again, did much better this go-around. My best to you and your daughter! Let me know how it goes! Quote Link to comment Share on other sites More sharing options...
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