Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Who is UNOS Barb, I am not up on all the abbreviations. Martha from Mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Who is UNOS Barb, I am not up on all the abbreviations. Martha from Mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Why can't we get points or some form of multiplier for cholangiocarcinoma risk? Penny I think that is a good question....I know that it has been discussed many times in the past that there is now alot of things to help PSCers to move up on the list....I really think as I am sure everyone else does that we get a fair chance at tx...and before we are soooo sick that we are not strong enough to get well after tx...and of course before cholangiocarcinoma risk sets in..... It is almost as if because this is a fairly rare disease...I most of us would disagree with that....that we are forgotten when it comes to making what counts and what doesn't..... Thanks for thinking of the question to ask....hope we get an answer that will make us feel a little bit better about this.... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Why can't we get points or some form of multiplier for cholangiocarcinoma risk? Penny Barb Henshaw wrote: > Does anyone have a question they would like UNOS to answer?I > have their ear again....Barb In Texas - Son (Ken) UC 91 PSC 99 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Does anyone have a question they would like UNOS to answer? I have their ear again.... Barb, here is my question. As I understand it considerable thought was given in how livers are allocated and the listing to those ready for transplant. UNOS has the numbers of those waiting for transplant and the unmet demand for these organs. How many more lives will be saved by the new allocation method? And if it means less people will make it to transplantation why reinvent the 'wheel' (so to speak)? Why change something that is working and saving more lives? Iowa Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Does anyone have a question they would like UNOS to answer? I have their ear again.... Barb, here is my question. As I understand it considerable thought was given in how livers are allocated and the listing to those ready for transplant. UNOS has the numbers of those waiting for transplant and the unmet demand for these organs. How many more lives will be saved by the new allocation method? And if it means less people will make it to transplantation why reinvent the 'wheel' (so to speak)? Why change something that is working and saving more lives? Iowa Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Does anyone have a question they would like UNOS to answer? I have their ear again.... Barb, here is my question. As I understand it considerable thought was given in how livers are allocated and the listing to those ready for transplant. UNOS has the numbers of those waiting for transplant and the unmet demand for these organs. How many more lives will be saved by the new allocation method? And if it means less people will make it to transplantation why reinvent the 'wheel' (so to speak)? Why change something that is working and saving more lives? Iowa Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Why can't consideration be given to someone who has repeated infections, with blood tests ok and only slightly elevated liver enzymes? Here, here. Janet. Barbara (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Why can't consideration be given to someone who has repeated infections, with blood tests ok and only slightly elevated liver enzymes? **************************************************************** This e-mail and any documents accompanying this e-mail contain information which is confidential and/or legally privileged. The information is intended only for the use of the individual or entity named on this e-mail. If you are not the intended recipient, you are hereby notified that any disclosure, copying, distribution, or the taking of any action in reliance on the contents of this e-mail information, is strictly prohibited and that the documents should be returned to Saiber Schlesinger Satz & Goldstein, LLC immediately. In this regard, if you have received this e-mail in error, please notify us by return e-mail or telephone () immediately, delete the e-mail and all attachments and destroy all hard copies of same. >>> " Barb Henshaw " 03/07/02 12:46PM >>> Does anyone have a question they would like UNOS to answer? I have their ear again.... Barb In Texas - Son (Ken) UC 91 PSC 99 Quote Link to comment Share on other sites More sharing options...
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