Re: New Also

[Guest guest]

Hi ,

Welcome! My son Blair is 4 1/2 and has also been on 7 meds with no

effect. He is not sz free even now after 2 1/2 years on the diet but

the diet has been a blessing for Blair. He has been able to get off 2

meds and we are weaning the third (and last). He is more alert, and

able to learn! Amazing progress in his development.

He was taken off pheno at the start of the diet, one reason we chose

to do the hospital thing (Stanford). I was too frightened of

withdrawl seizures to go it alone. Our hospital experience was not

too bad, the worst thing was the nurses keeping us awake at night.

Blair went into ketosis quickly and we went home on the 3rd day. I

have no experience with the other two drugs, sorry cant help there.

He goes to pre-school and we have a good relationship with the

teaching staff. Sure it's not easy, and letting go of control is VERY

hard but what he gets from the experience is worth it.

Best of luck, any questions, you are in the right place.

Jill, Blairs mom, keto kid since 8/99 >

> > Hello,

> >

> > My name is . I have a 4 year old little girl who started

> having many seizures a year ago. She has many different types. She

> has tonic-clonic ,drop, ,partial, and Absence seizures. She was

> diagnosed with Lennox Gastaut Syndrome. We have tried many AEDs

with

> no sucsess. She has seen three diffrent doctors and is now going to

> see a Dr. Wheeless is Houston ,Texas. He has recommended to start

her

> on the diet. I quit my job to take care of her at home. I am so

> nervous about starting the diet. I pray everyday God will let this

> work for her. I am interested in any advice. She starts the diet

> October the 8. That is on her birthday. Her name is Sydney. Please

> pray for us.

> >

> > Sydney's mom,

> >

>

> Hi . My daughter just started the diet in July. She tried

> and failed many different AED's also. I know how you feel about

the

> diet working for our dauthers - it feels like the last hope and it

> just HAS to work. So far, it has been a God send. Her seizures

have

> been significantly reduced and we have already gone off one of the

> three drugs she is on. We have had some ups and downs, and not

> everything has gone perfectly, but boy, has it been worth it. Good

> for you for staying home with her - I think it will make your

> transistion into the diet much easier, as it is a lot of work. You

> are luck to have found this support group already. It seems that

the

> more specific you are with your questions, the easier it is for

> people to share their experiences. I wish I had known about it

> sooner! What a wonderful birthday gift for you all if you find

> success. I know you will be in many prayers.