Thanks

[Guest guest]

Thanks for all your support. It was Jen's 11th birthday yesterday & I let

her go off her GFCF and keto like diet. I sent a real birthday cake to

school and we had a little one at home for us and her friend just so she

could blow out the candle. Her behavior is worse but not terrible. No

seizures so the Zonegran is working and the slow topomax wean is also. That

stuff must be really powerful I only weaned 5mg at a time-slower than the

neuro wanted and still had withdrawal seizures. Now we are weaning 3mg. I

may have forgotten one evening dose of meds though-I did not put them in the

pill box so I have no way of double checking myself-won't do that again. I

absolutely can't remember whether I gave it or not. The on call Dr. said it

was too late to give extra & she might be fine. It stays in the system 60

hours so we will see tomorrow.

Joan-Mom to -11 years old-epilepsy, adhd, autistic behaviors, mild

cp, speech & learning problems, high functioning & sometimes charming.

Co-options Coordinator-Bergen, Hudson, Passaic Counties-north NJ

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