, you explain things beautifully....

[Guest guest]

Hi : Thanks for explaining the maneuvers about re-establishing

nsr....since I am new to afib and the board I had to ask you what

you meant, I did not want to presume that I knew something. I was

not informed by my doctors as to what to do to re-establish

nsr....except in passing and by the way from an er doc,a pastor and

a book that one of my friend's loaned me. I had never heard of afib

much less know how to get out of it. I still have atrial

tachycardia since last Thursday and continue to lose weight. An

expert in iron overload disorders advises me to be bled and says I

will not heal my heart unless I am bled. Very small donations of

l50ml once a week until my ferritin is down to 10-20 and my

transferrin sat%is below 25%. Very complicated this stuff since I

am on Coumadin and Aspirin but I trust him...although he is not a

physician, he has lived with HH for 26 years and since very few

physicians know how to treat iod, I am relying on his knowledge. I

have also researched the subject....unfortunately I am really

treating myself...since the local hematologist did not want to take

the responsability for the phlebotomies(bleedings)and tried to tell

me that I might have some other disease and was going to subject me

to the Ulysses Syndrome(A phys. ordering too many unecessary and

expensive tests.) With all the research I had done I told him that

many of the Blood Centers have not ordered the blood assay test in

20 years that he wanted me to take. (I ordered phys. convention

tapes on the disease he thought I had and learned about it that

way.) in addition to reading the literature in PubMed. , You

are very special and thank you for being such a big help.

Regards, Isabelle