Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 Just got a report from my MRI that was done a few days ago. RE-growths I knew about. Been watching them for several years. I now have a neurofibroma on the Jugular Bulb. Have been in the Crew since the beginning but can't remember if anyone else has or had this problem. Would really love to hear from you. Ruth in Houston and it is raining! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 Just got a report from my MRI that was done a few days ago. RE-growths I knew about. Been watching them for several years. I now have a neurofibroma on the Jugular Bulb. Have been in the Crew since the beginning but can't remember if anyone else has or had this problem. Would really love to hear from you. Ruth in Houston and it is raining! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 In a message dated 9/13/00 7:07:12 PM Eastern Daylight Time, RandKBrack@... writes: << Just got a report from my MRI that was done a few days ago. RE-growths I knew about. Been watching them for several years. I now have a neurofibroma on the Jugular Bulb. Have been in the Crew since the beginning but can't remember if anyone else has or had this problem. Would really love to hear from you. Ruth in Houston and it is raining! >> if imm not mistaken, Jennette was asking about this recently as well. Caren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 In a message dated 9/13/00 7:07:12 PM Eastern Daylight Time, RandKBrack@... writes: << Just got a report from my MRI that was done a few days ago. RE-growths I knew about. Been watching them for several years. I now have a neurofibroma on the Jugular Bulb. Have been in the Crew since the beginning but can't remember if anyone else has or had this problem. Would really love to hear from you. Ruth in Houston and it is raining! >> if imm not mistaken, Jennette was asking about this recently as well. Caren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 HI Ruth!! How's ? So sorry to hear about the jugular bulb tumor. I'm curious though, do you mean jugular foramen? If so, I have those, and right now I'm planning to go to SF in early Oct. to talk with Drs. Jackler and Chang, to see if surgery or radiation is best way to proceed. I'll be sure and let you know what I find out, but you have wonderful access there in Texas. As far as I know, no one has ever tackled these things yet, have they? At first I was told regrowth AN's... I kind of wish they were now. Jennette Re: MRI > Just got a report from my MRI that was done a few days ago. > RE-growths I knew about. Been watching them for several years. > I now have a neurofibroma on the Jugular Bulb. Have been in the Crew since > the beginning but can't remember if anyone else has or had this problem. > Would really love to hear from you. > Ruth in Houston and it is raining! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 HI Ruth!! How's ? So sorry to hear about the jugular bulb tumor. I'm curious though, do you mean jugular foramen? If so, I have those, and right now I'm planning to go to SF in early Oct. to talk with Drs. Jackler and Chang, to see if surgery or radiation is best way to proceed. I'll be sure and let you know what I find out, but you have wonderful access there in Texas. As far as I know, no one has ever tackled these things yet, have they? At first I was told regrowth AN's... I kind of wish they were now. Jennette Re: MRI > Just got a report from my MRI that was done a few days ago. > RE-growths I knew about. Been watching them for several years. > I now have a neurofibroma on the Jugular Bulb. Have been in the Crew since > the beginning but can't remember if anyone else has or had this problem. > Would really love to hear from you. > Ruth in Houston and it is raining! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 Jennette, Bulb is the word wrote down when the doctor called. We will check with him tomorrow. I have an appointment Monday with Sherri's doctor. He is the one that did a MRI a few yeas ago. We will take these new pictures with us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 Ruth I think that is exactly what Jeannette is dealing with now? Boy I thought us " old " Crewbies were done with surgery; HA! But then I thought I would never go deaf, either! marie Re: MRI >Just got a report from my MRI that was done a few days ago. > RE-growths I knew about. Been watching them for several years. >I now have a neurofibroma on the Jugular Bulb. Have been in the Crew since >the beginning but can't remember if anyone else has or had this problem. >Would really love to hear from you. >Ruth in Houston and it is raining! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 Ruth I think that is exactly what Jeannette is dealing with now? Boy I thought us " old " Crewbies were done with surgery; HA! But then I thought I would never go deaf, either! marie Re: MRI >Just got a report from my MRI that was done a few days ago. > RE-growths I knew about. Been watching them for several years. >I now have a neurofibroma on the Jugular Bulb. Have been in the Crew since >the beginning but can't remember if anyone else has or had this problem. >Would really love to hear from you. >Ruth in Houston and it is raining! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 In a message dated 12/8/00 1:43:25 PM Pacific Standard Time, marcusmc@... writes: << SHeesh Marnie you sound like MY ECHO !!! Marcus aka Yoda > Lori Jo > > Relax what is there is there and you wont know until the MRI IS DONE so > don't fret about it!!!!! Enjoy Christmas with your kids!!!!!! > > Marnie I think I will do just that!!!!!!!!!!!!!!!!!!!!!Lori Jo >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 In a message dated 12/8/00 1:43:25 PM Pacific Standard Time, marcusmc@... writes: << SHeesh Marnie you sound like MY ECHO !!! Marcus aka Yoda > Lori Jo > > Relax what is there is there and you wont know until the MRI IS DONE so > don't fret about it!!!!! Enjoy Christmas with your kids!!!!!! > > Marnie I think I will do just that!!!!!!!!!!!!!!!!!!!!!Lori Jo >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 In a message dated 12/8/00 1:43:25 PM Pacific Standard Time, marcusmc@... writes: << SHeesh Marnie you sound like MY ECHO !!! Marcus aka Yoda > Lori Jo > > Relax what is there is there and you wont know until the MRI IS DONE so > don't fret about it!!!!! Enjoy Christmas with your kids!!!!!! > > Marnie I think I will do just that!!!!!!!!!!!!!!!!!!!!!Lori Jo >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 SHeesh Marnie you sound like MY ECHO !!! Marcus aka Yoda > Lori Jo > > Relax what is there is there and you wont know until the MRI IS DONE so > don't fret about it!!!!! Enjoy Christmas with your kids!!!!!! > > Marnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 SHeesh Marnie you sound like MY ECHO !!! Marcus aka Yoda > Lori Jo > > Relax what is there is there and you wont know until the MRI IS DONE so > don't fret about it!!!!! Enjoy Christmas with your kids!!!!!! > > Marnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 SHeesh Marnie you sound like MY ECHO !!! Marcus aka Yoda > Lori Jo > > Relax what is there is there and you wont know until the MRI IS DONE so > don't fret about it!!!!! Enjoy Christmas with your kids!!!!!! > > Marnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 Hey its easy to say but hard to do Lori Jo. Just wait till Marcus has MRI scheduled, I just fall apart ... , Marcus the not so brave > SHeesh Marnie you sound like MY ECHO !!! > Marcus aka Yoda > > > Lori Jo > > > > Relax what is there is there and you wont know until the MRI IS DONE so > > don't fret about it!!!!! Enjoy Christmas with your kids!!!!!! > > > > Marnie > > > I think I will do just that!!!!!!!!!!!!!!!!!!!!!Lori Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 Perhaps I should clarify my last post. an MRI is a breeze, its the results that hurt. haha Marcus who lived through the AIR IN THE BRAIN TEST ! ( you there my fellow AIR-bie Jane ???? ) we tortured people have to stick together . > > Hey its easy to say but hard to do Lori Jo. > Just wait till Marcus has MRI scheduled, I just fall apart ... , > > Marcus the not so brave > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 Perhaps I should clarify my last post. an MRI is a breeze, its the results that hurt. haha Marcus who lived through the AIR IN THE BRAIN TEST ! ( you there my fellow AIR-bie Jane ???? ) we tortured people have to stick together . > > Hey its easy to say but hard to do Lori Jo. > Just wait till Marcus has MRI scheduled, I just fall apart ... , > > Marcus the not so brave > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 I am here Marcus. I agree. MRI's are a breeze to the air in the brain tests! Maybe that is why we are so spaced out. The medical name for the air in the brain test is - neumocephlagram. The x-ray of the dark ages! Jane Re: MRI >Perhaps I should clarify my last post. an MRI is a breeze, its the results >that hurt. haha > >Marcus who lived through the AIR IN THE BRAIN TEST ! ( you there my fellow >AIR-bie Jane ???? ) we tortured people have to stick together . > > >> >> Hey its easy to say but hard to do Lori Jo. >> Just wait till Marcus has MRI scheduled, I just fall apart ... , >> >> Marcus the not so brave >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 I am here Marcus. I agree. MRI's are a breeze to the air in the brain tests! Maybe that is why we are so spaced out. The medical name for the air in the brain test is - neumocephlagram. The x-ray of the dark ages! Jane Re: MRI >Perhaps I should clarify my last post. an MRI is a breeze, its the results >that hurt. haha > >Marcus who lived through the AIR IN THE BRAIN TEST ! ( you there my fellow >AIR-bie Jane ???? ) we tortured people have to stick together . > > >> >> Hey its easy to say but hard to do Lori Jo. >> Just wait till Marcus has MRI scheduled, I just fall apart ... , >> >> Marcus the not so brave >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 In a message dated 6/6/01 8:05:51 PM Eastern Daylight Time, MGrant@... writes: << Holly, How about left putamen and the right thalamus. Just a thought, Margaret >> I bet that is it. This doc is sooooooooo hard to understand. Holly ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Holly, How about left putamen and the right thalamus. Just a thought, Margaret >>> 06/06/01 07:47PM >>> The latest MRI showed some few lacunar infarcts upon determinating the basal ganglia in the left s/l *cutainment* on the right thalamus. TIA, Holly TO REMOVE YOURSELF FROM THIS MAILING LIST send a blank email to nmtc-unsubscribe PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2001 Report Share Posted June 7, 2001 I hope someone is still up that can help me w/ this. The MRI did not show significant pressure in the s/l *quality crina*. sounds like quality (CRY-NA) I am clueless as to what he is saying and radiology is definitely a weak point for me. TIA, Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2001 Report Share Posted June 8, 2001 Could it be " cauda equina " ? This I hear often. It is a tail-like collection of spinal roots that descend from the lower part of the spinal cord and coccupy the vertebral canal below the cord. > The MRI did not show significant pressure in the s/l *quality crina*. > > sounds like quality (CRY-NA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 It all depends on your insurance. I needed a referral for mine. Even though your OB/GYN does not think it is necessary, ask her if she would refer you any way (it does not hurt to try). The reason I suggest this is that I asked my OB/GYN if I could have an MRI and she stated that she didn't normally use MRI for evaluating GYN problems and didn't think it was necessary. She then told me that she had no problem with me having one done. If you've already tried this route, try another doc. I have Blue Choice (Michigan) and it was actually my Primary care doc that had to write the referral for the MRI. I've e-mailed a few IR's in my quest for an information regarding my decision and asked what tests would need to be done prior to UAE. All of them indicated that an MRI was something they require. One actually indicated that the MRI would have to be done at their facility since they had control over the quality of the test/images. Another also stated a MRI was recommended because it would allow them to rule out other pelvic/gyn problems. I've actually seen the images produced by an MRI and US and I can tell you hands down that the MRI produces a much clearer picture. Good Luck, Ann Quote Link to comment Share on other sites More sharing options...
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